Monica633: Intro by mother

[Monica633]

We need your advice. My son has been on and off psychiatric drugs for about ten years. We think he  has quit suddenly about six times and had five different doctors. About a year ago he quit his meds of about eight months cold turkey. He was taking:

 

Olanzepine, (Zyprexa) 2.5mg and

brotizolam, .25mg, each once/day.

 

He was feeling much better for a few months, but had what I would call a disastrous ending after six months.

That was last March and he was admitted to a hospital and stayed there for seven months. When he got out, he was prescribed:

 

Depakene R, 1200mg at bedtime

Silensu (not sure about the English name), 2mg,  at bedtime

Haldol Decanoate, 50mg, 1ml, 3A (30 day injection)

 

He felt tired and heavy and drowsy, but couldn't sleep on these meds, so he decided to go to a different doctor and ask him for the meds he was taking previously:

 

Olanzepine, (Zyprexa) 2.5mg and

brotizolam, .25mg, each once/day.

 

He took those for about three weeks and felt better and could move more easily, but his appetite increased and he was eating another meal before bed.

 

He decided to go back to the doctor at the hospial because his home nurse talked him into it, and he was promised he could get disability payments if he continued at that hospital for 1.5 years from the time he was first admitted.

 

Its been three days and he is back to feeling tired, heavy and drowsy, but can't sleep. After taking the meds before bed he has a headache and feels dizzy.

He desparately wants to cut down the Olanzepine

Any advice greatly appreciated.

Thank you@

[Sassenach]

Hello Monica    and welcome to SA.

 

This site is run entirely by volunteer Administrators and Moderators, all have been through or going through withdrawal.

There are no commercial interests or influences  involved .

 

I am sorry your son is having such a rough time but you are now in the right place.

 

The site is currently extremely busy so please ensure you answer any requests from staff fully.

 

How old is your son?

Why is taking psychiatric drugs?

When did he reinstate

On 12/7/2019 at 5:29 AM, Monica633 said:

Olanzepine, (Zyprexa) 2.5mg and

brotizolam, .25mg, each once/day.

this year?

 

On 12/7/2019 at 5:29 AM, Monica633 said:

Silensu

I cannot find this on any of our databases.

Is it prescribed or over the counter?

Please give us any info. you can off the packaging.

On 12/7/2019 at 5:29 AM, Monica633 said:

Its been three days and he is back to feeling tired, heavy and drowsy, but can't sleep. After taking the meds before bed he has a headache and feels dizzy.

Have the hospital changed his meds or added to them?

 

On 12/7/2019 at 5:29 AM, Monica633 said:

About a year ago he quit his meds of about eight months cold turkey. He was taking:

 

Olanzepine, (Zyprexa) 2.5mg and

brotizolam, .25mg, each once/day.

 

He was feeling much better for a few months, but had what I would call a disastrous ending after six months.

What symptoms did he experience during this time and what was

 

On 12/7/2019 at 5:29 AM, Monica633 said:

but had what I would call a disastrous ending after six months.

What happened?

As soon as we recieve the drugs info. we can assess your situation.

In the meantime DO NOT MAKE ANY CHANGE TO YOUR CURRENT MEDS please.

Please feel free to browse the site, it is a wealth of info.

Other members threads will give you an insight and the opportunity to share experiences.

 

Again welcome.

 

Sassenach

[Sassenach]

When was his last injection?

[Monica633]

His last injection was December 6.

[Monica633]

My son is 31 years old. 

When he was about 19 my husband thought he was acting strange (neither my son nor I can remember why he went the first time.) anyway, my husband’s father, sister and some uncles has all spent time in psychiatric hospitals for diagnoses from bipolar to stress and Alzheimer’s. My husband recognized behavior that he had seen in other family members. My son says at that first visit to a psychiatrist, he was told he wasn’t sick, but was given some kind of medicine, but he took only one and didn’t continue because the drug made him feel bad.

 

More background info: We live in Japan. I’m American and my husband is Japanese. Our kids were born here and raised here. Our son went to Japanese school until fifth grade when we changed both children to an international school. Our son was bullied and fighting a lot at school and I was helping him with his homework, plus he had a tutor. 
At international school for four years, he didn’t enjoy it, but he wasn’t bullied and I could help with his homework. When he graduated junior high school, the school had a policy to switch as much of the curriculum as they could into Japanese. This was very difficult for my son and  we decided to homeschool him. He says he learned more during homeschooling than at any other school.  I did that for 1.5 years and then he and I moved to my hometown in Washington state so he could attend special ed classes. It’s a very small town of 900 people, but they have a good school and my mom used to be the special ed teacher and I knew the teacher at the time. I couldn’t homeschool him any more in Japan because the math was getting too hard for me. (Our son was pretty good at math even though he had difficulty learning to read.) 

He graduated from high school in the U.S. and got his driver’s license (I taught him to drive and study for the test.) He was working at McDonald’s in a new boring town and doing weightlifting and feeling pretty good about himself. 

He  Enrolled at community college and stayed in the US for another year or so. He couldn’t do the work, so he couldn’t continue, but he wanted to stay in the US. He went back to my hometown and moved in with my mother, even though I told him that wasn’t an option because she was 86 or so at the time. I don’t remember when he started smoking marijuana, but at some point he was smoking marijuana and cigarettes and drinking beer a lot in my mother’s basement. This was hard on her. My son wouldn’t come back to Japan and we didn’t know what to do. My brother kicked him out and he was homeless for about three months. He was taken to a shelter in Spokane and a few weeks later took the bus to Portland and lived in a youth shelter. He says he was smoking marijuana as much as possible. We got an email from my brother that our son was in a psychiatric hospital in Portland. He had broken a plate glass window and the police took him to the hospital. My husband and  I flew from Japan to Portland, Oregon, and convinced him to return home with us. He stopped taking meds after one week or so of starting them. After a couple of months we forced him into a mental hospital, because he was acting so strange. This included threatening us and taking some of our furniture and paintings into the street and destroying them with a baseball bat and decorating the neighbor’s yard with plastic flowers. He was in that hospital for three months and came home and quit the meds after about a week.

 

 

About the end of October, 2018,  he quit CT. He was fine for a few months, and we thought he was finally going to be okay without them. The doctor said if he reduced the meds any more, there would be no reason to take them. The doctor gave his permission to quit, so he did.
After about five months, he started having delusions and going back to old delusions like being the boss of Portland,  or the worlds best pool player. This time he thought he had won the lottery. He was playing music at top volume all night long, so I couldn’t sleep. I moved in with my MIL next door, because my son was beginning to scare me. He was screaming that he hated me right in my face and trying to gain entrance to MIL’s house. She and I were quite scared and wondering what to do. My husband was in Europe on business. At one point, my MIL’s door was unlocked and my son came into the house and was screaming at us. I called the police and they came and took him to the hospital. When I went back into the house after not having been there a few days, coffee and cigarettes were everywhere and he had used kitchen knives to cut up a bunch of pornographic magazines. He hadn’t slept for three nights at that point.

[Monica633]

When did he reinstate

   On 12/7/2019 at 2:29 PM,  Monica633 said: 

Olanzepine, (Zyprexa) 2.5mg and 

brotizolam, .25mg, each once/day.

this year?

 

Yes, he went back into the hospital in March, 2019, and was there for seven months. He got out in October, 2019 and took the meds for about three weeks. Then he went to a different doctor and got the same meds he was on before he quit in 2018.

Olanzepine, (Zyprexa) 2.5mg and 

brotizolam, .25mg, each once/day.

He took those for about three weeks and his home nurse convinced him to go back to the meds he was taking in the hospital,  So he went back and got his injection last Friday,  December 6, 2019, and he reinstated his meds from the hospital.

 

   On 12/7/2019 at 2:29 PM,  Monica633 said: 

Silensu

I cannot find this on any of our databases.

Is it prescribed or over the counter?

Please give us any info. you can off the packaging.

 

This is a drug made in Japan as I understand it. It is prescribed. It is written in Japanese and I made a mistake in my original spelling. It should be Siresu or Sairesu , 2mg, E202.  The company name is Ezai. This may be their website, but I don’t see this med listed. https://www.google.com/search?q=eisai pharmaceuticals japan I took a pic of the package, but don’t know how to insert it here. https://www.google.com/search?q=eisai pharmaceuticals japanhttps://www.google.com/search?q=eisai pharmaceuticals japan

   On 12/7/2019 at 2:29 PM,  Monica633 said:

Its been three days and he is back to feeling tired, heavy and drowsy, but can't sleep. After taking the meds before bed he has a headache and feels dizzy.

Have the hospital changed his meds or added to them? 

No, the hospital didn’t change his meds or add to them. He says he is feeling the same way he felt when he was in the hospital.

[Sassenach]

Hello Monica.

 

I cannot imagine how you must have felt watching your son going through this.

His constant drugs merry go round and recent changes mean his central nervous system is destabilised.

On 12/7/2019 at 5:29 AM, Monica633 said:

Haldol Decanoate, 50mg, 1ml, 3A (30 day injection)

 

This recent injection will be making matters worse.

We do not recommend anyone to try tapering when they are unstable.

Your son needs to settle on the drugs until he is stable and then consider dose reduction.

This is likely to take several months, please see

the-windows-and-waves-pattern-of-stabilization/

the-rule-of-3kis-keep-it-simple-keep-it-slow-keep-it-stable/

I am sure you were hoping for more positive results but the brain takes a long time to recover.

It can only do that if it not subjected to constant med changes.

Please keep in touch and when your son stabilises we will be happy to help.

 

Good luck

 

Sassenach

 

[Monica633]

Dear Sassenach, 

Thank you so much for your help! My son is insisting he is stable, and I don’t know how to answer. How will we know when he is stable? 

Right now, he is having a pain in his leg muscle and he thinks its from drinking a beer the other night. Is that possible? 

His doctor recently said he can reduce one depakene pill per month as long as he is stable. That is one out of six. This made my son happy, but I’m thinking you will say its too fast. I haven’t told the doctor that I am getting advice from a website. How do others address this issue?

Thanks for the reading material. I will probably know more when I get done reading those.

[Monica633]

The sleeping medication is "Silece" サイレース, in Japanese, ＝Sailesu(Romanized letter) made by Eizai?The generic name is Flunitrazepam and it's one of the Benzodiazepines.

[Monica633]

http://www.cesar.umd.edu/cesar/drugs/rohypnol.asp

the above link is about the sleeping drug, FlunItrazipam, sold as Siresu here in Japan.