Jump to content

ViolinStudent: Tinnitus - Withdrawal Symptom?


ViolinStudent

Recommended Posts

ViolinStudent
On 12/20/2019 at 2:20 PM, Gridley said:

This doesn't make a lot of sense to me. The Seroxat wasn't preventing the tinnitus.   You didn't have tinnitus at all until you reduced by 50%. (Also the skipping doses on those three days exacerbated the situation, since that was a further 50% reduction each day.)  The dose reduction didn't cause your tinnitus to "sound louder." The reduction created the tinnitus as a symptom of withdrawal.

 

Regarding informing your doctor, that is a complicated situation.  As I said in my earlier post, doctors have no understanding of withdrawal (they don't believe it exists) or safe tapering.  (Your GP's analysis of the cause of your tinnitus doesn't inspire confidence.) Some members don't tell their doctors about their tapering and just use their doctor as a drug source.  Others tell their doctors and receive no help or active opposition to the 10% taper (since they've been taught there's no such thing as withdrawal and thus no need to taper slowly).  These doctors invariably try to convince their patients to taper dangerously quickly. Other patients receive cooperation if not understanding or useful advice.  Obviously, this latter arrangement is the preferable one.  

 

Of some help may be the fact that the United Kingdom's medical treatment arbiter National Institute for Health and Care Excellence (NICE) just revised its guidelines for the use of antidepressants, changing the 2009 guidelines stating withdrawal symptoms were usually "mild" and

"self-limiting " over a week.  The new guideline highlights the possibility of "severe" and long lasting withdrawal symptoms.

 

You might print out this article from the UK's Royal Pharmaceutical Society journal for your doctor, highlighting the relevant portions..

 

https://www.pharmaceutical-journal.com/news-and-analysis/news/nice-amends-depression-guideline-highlighting-severe-and-long-lasting-withdrawal-symptoms/20207226.article

 

Here's a synopsis.
 

  Quote

 

NICE amends depression guideline highlighting 'severe' and long-lasting withdrawal symptoms

 

The Pharmaceutical Journal 22 OCT 2019 By Julia Robinson

 

The National Institute for Health and Care Excellence (NICE) has amended its guidelines on depression in adults to highlight that antidepressant withdrawal symptoms may be severe in some patients.

 

The guidance, which was published in 2009 originally said that antidepressant withdrawal symptoms were usually “mild” and “self-limiting” over the course of a week.

 

The amendment, dated September 2019, clarifies that there can be “substantial variation in people’s experience” and that symptoms can persist for months or more and be “more severe for some patients”.

 

It also advises that before stopping antidepressant medication, patients should discuss the decision with their practitioner.

 

The amendments are in line with a position statement released by the Royal College of Psychiatrists (RCPsych) in May 2019.

... 

 

The first thing you'll need to decide is what method you'll use to taper.  The choices basically are to cut tablets and weigh them, to use a prescription liquid or to make your own liquid.  Details about these methods are in the link below that I previously sent you.  It appears from my Internet research that liquid Seroxat is available in the U.K..  This would be the easiest method but you would of course need to cooperation of your doctor.  If you choose to cut and weigh tablets, many members use the AWS Gemini-20 scale, available on Amazon.  

 

Tips for tapering off Paxil (paroxetine)

 

I'm sorry you're having to deal with this just as you're beginning your studies in a foreign country.  We will help you any way we can.

 

 

 

 

 

Edit: this does not affect the main direction of the conversation, but I just want to clarify I went from 10mg per day to 10mg per two days instead of 20mg per day to 10mg per two days; I wasn't clear with my first post.

I will see the ENT on 2nd June. If they don't offer me an MRI to ensure the tinnitus is not an organic cause (in order to justify tinnitus being a withdrawal symptom in my case), I will have to arrange a referral by my private doctor (the one who prescribed me Paroxetine initailly) to do an MRI.

 

Meanwhile I'm on 4.052555153018976‬‬mg now (49mg actual weight), I have got no other withdrawal symptoms nor panic attacks relapse so I'm glad I've discovered this site; I really hope getting off Paroxetine completely can speed up the stopping of withdrawal syptoms. 😔

Paroxetine
Aug 2014: 20mg

?: 10mg

1 Nov 2019: 10mg [per two days]
6 Nov 2019: tinnitus onset
29 Nov 2019: 10mg
2 Dec 2019: 20mg
13 Dec 2019: 30mg

10 Jan 2020: 30 x 0.9 = 27mg [began 10% tapering according to https://www.survivingantidepressants.org/topic/405-tips-for-tapering-off-paxil-paroxetine/]
...
2 Apr 2021: 5.003154509899971‬

Link to post
ViolinStudent
On 12/19/2019 at 11:15 PM, Gridley said:

How and when can it stop?  As posts in the link about tinnitus indicate, it will stop eventually once you're off the drug and the effects of your too-fast taper fade.

Hi. Sorry I don't know if this is a stupid question; as I've got tinnitus as a withdrawal symptom from reducing from 10mg per day to 10mg per two days (too quickly), and you have mentioned the two conditions need to be met to hopefully make the tinnitus stop: 1) once I'm off the drug and 2) the effects of my too-fast taper fade.

 

Is it safe to continue tapering, or I have to maintain the dosage when the withdrawal symptom has started infinitely until it goes away? (Although if I did it wrong it's too late because I'm already reducing according to th 10% tapering plan, and now on 4.052555153018976‬mg per day [49mg actual weight) Thank you.

Paroxetine
Aug 2014: 20mg

?: 10mg

1 Nov 2019: 10mg [per two days]
6 Nov 2019: tinnitus onset
29 Nov 2019: 10mg
2 Dec 2019: 20mg
13 Dec 2019: 30mg

10 Jan 2020: 30 x 0.9 = 27mg [began 10% tapering according to https://www.survivingantidepressants.org/topic/405-tips-for-tapering-off-paxil-paroxetine/]
...
2 Apr 2021: 5.003154509899971‬

Link to post
  • Moderator
Gridley
42 minutes ago, ViolinStudent said:

Is it safe to continue tapering, or I have to maintain the dosage when the withdrawal symptom has started infinitely until it goes away?

It's not realistic to expect no withdrawal symptoms as you taper.  If your symptoms are pretty much the same from day to day and haven't spiked due to a recent reduction, I'd say it's safe to continue with your 10% taper.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg 

Feb. 2021, begin 10%/4 week taper.  Current dose as of Sept 13: 9mg 

Taper is 52% complete.

 

Imipramine 75 mg daily since 1986.  Jan-Sept 2016 tapered to 16mg.  

Held until Aug 2021, tapered for 4 weeks to 14.4mg and holding.  

Taper is 80% complete.  

  

Supplements: omega-3, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

Link to post
ViolinStudent
34 minutes ago, Gridley said:

It's not realistic to expect no withdrawal symptoms as you taper.  If your symptoms are pretty much the same from day to day and haven't spiked due to a recent reduction, I'd say it's safe to continue with your 10% taper.

Thanks for the quick reply. The tinnitus haven’t worsened or lightened, and there are no other withdrawal symptoms during the 10% tapering.

Paroxetine
Aug 2014: 20mg

?: 10mg

1 Nov 2019: 10mg [per two days]
6 Nov 2019: tinnitus onset
29 Nov 2019: 10mg
2 Dec 2019: 20mg
13 Dec 2019: 30mg

10 Jan 2020: 30 x 0.9 = 27mg [began 10% tapering according to https://www.survivingantidepressants.org/topic/405-tips-for-tapering-off-paxil-paroxetine/]
...
2 Apr 2021: 5.003154509899971‬

Link to post
  • Moderator
Gridley
42 minutes ago, ViolinStudent said:

The tinnitus haven’t worsened or lightened, and there are no other withdrawal symptoms during the 10% tapering.

It sounds like you're in good shape for tapering.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg 

Feb. 2021, begin 10%/4 week taper.  Current dose as of Sept 13: 9mg 

Taper is 52% complete.

 

Imipramine 75 mg daily since 1986.  Jan-Sept 2016 tapered to 16mg.  

Held until Aug 2021, tapered for 4 weeks to 14.4mg and holding.  

Taper is 80% complete.  

  

Supplements: omega-3, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

Link to post
  • 2 months later...
ViolinStudent

Update 1st Aug, 2021

 

Did hearing test and MRI for both ears. Results indicated there's no hearing loss or any abnormality in inner ear and hearing nerve. I think at this point it is pretty much safe to say the tinnitus is related to Paroxetine, although the original doctor who prescribed Paroxetine still insists my tinnitus to be solely due to anxiety.

 

Currently, I'm following the 10% tapering plan with discipline: I'm on 3.282569673945371‬‬mg active ingredient per day, which means 241.8mg x (3.282569673945371‬‬ / 20) ≈ 40mg actual weight of Paroxetine per day.

 

However, I'm moving to Canada soon. I understand Paroxetine is a prescription drug. Does anyone know how do I get Paroxetine? Do I just go to the doctor and tell them I need Paroxetine? I have a letter from my original doctor stating I need Paroxetine, which I used to convince the UK (I'm currently living in UK) doctor to prescribe me it.

The tinnitus still hasn't stopped, but I believe it will stop eventually at a certain point after I am finally off the drug. Thank you.

Paroxetine
Aug 2014: 20mg

?: 10mg

1 Nov 2019: 10mg [per two days]
6 Nov 2019: tinnitus onset
29 Nov 2019: 10mg
2 Dec 2019: 20mg
13 Dec 2019: 30mg

10 Jan 2020: 30 x 0.9 = 27mg [began 10% tapering according to https://www.survivingantidepressants.org/topic/405-tips-for-tapering-off-paxil-paroxetine/]
...
2 Apr 2021: 5.003154509899971‬

Link to post
  • 1 month later...
On 8/1/2021 at 7:38 PM, ViolinStudent said:

Update 1st Aug, 2021

 

Did hearing test and MRI for both ears. Results indicated there's no hearing loss or any abnormality in inner ear and hearing nerve. I think at this point it is pretty much safe to say the tinnitus is related to Paroxetine, although the original doctor who prescribed Paroxetine still insists my tinnitus to be solely due to anxiety.

 

Currently, I'm following the 10% tapering plan with discipline: I'm on 3.282569673945371‬‬mg active ingredient per day, which means 241.8mg x (3.282569673945371‬‬ / 20) ≈ 40mg actual weight of Paroxetine per day.

 

However, I'm moving to Canada soon. I understand Paroxetine is a prescription drug. Does anyone know how do I get Paroxetine? Do I just go to the doctor and tell them I need Paroxetine? I have a letter from my original doctor stating I need Paroxetine, which I used to convince the UK (I'm currently living in UK) doctor to prescribe me it.

The tinnitus still hasn't stopped, but I believe it will stop eventually at a certain point after I am finally off the drug. Thank you.

I have been struggling with tinnitus for 8 months off pristiq and i took it for 1 month. I dont know what happened, but I am very worried it is permanent. I have always read that it either goes away when you discontinue or takes years. I hate tinnitus, and after 8 months all i want is silence again.

November 11th 2020 - Pristiq 50mg

November 25th 2020- Cold Turkey 

February 28th 2021- Pristiq 50mg 

March 25 2021 Cold Turkey 

 

Tinnitus Since March 1st and has not stopped/ Softened/ Improved  3 Months later.

 

 

 

Link to post
ViolinStudent
On 9/15/2021 at 4:51 AM, Jayy said:

I have been struggling with tinnitus for 8 months off pristiq and i took it for 1 month. I dont know what happened, but I am very worried it is permanent. I have always read that it either goes away when you discontinue or takes years. I hate tinnitus, and after 8 months all i want is silence again.

I think tinnitus as a side effect and withdrawal symptom are different. However, according to Gridley, it is just a matter of time for it to stop after appropriate discontinuation, as the human brain is constantly remodelling itself. I have faith and I believe our tinnitus will stop one day, and I won't let it take my happiness away in this period.

Paroxetine
Aug 2014: 20mg

?: 10mg

1 Nov 2019: 10mg [per two days]
6 Nov 2019: tinnitus onset
29 Nov 2019: 10mg
2 Dec 2019: 20mg
13 Dec 2019: 30mg

10 Jan 2020: 30 x 0.9 = 27mg [began 10% tapering according to https://www.survivingantidepressants.org/topic/405-tips-for-tapering-off-paxil-paroxetine/]
...
2 Apr 2021: 5.003154509899971‬

Link to post
On 9/18/2021 at 1:08 AM, ViolinStudent said:

I think tinnitus as a side effect and withdrawal symptom are different. However, according to Gridley, it is just a matter of time for it to stop after appropriate discontinuation, as the human brain is constantly remodelling itself. I have faith and I believe our tinnitus will stop one day, and I won't let it take my happiness away in this period.

I have a feeling that in 24 days I was on pristiq I had an ototoxic reaction that hyper activated my dorsal cochlear nucleus and now I am stuck with tinnitus. I am so much more depressed than ever before. I never in my life wanted to take an antidepressant, and I have always been against them, but I made a mistake to try them, and now my life is ruined. I can't live with my brain hurting and the tinnitus ringing constantly, I never get peace, I hate it so much. I just want the ringing to stop, which it should have when I stopped taking the drug if it was''t permanent damage. My doctor is an idiot and gave me the worst possible drug that now has ruined my life

November 11th 2020 - Pristiq 50mg

November 25th 2020- Cold Turkey 

February 28th 2021- Pristiq 50mg 

March 25 2021 Cold Turkey 

 

Tinnitus Since March 1st and has not stopped/ Softened/ Improved  3 Months later.

 

 

 

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy