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PMS, PMDD, and menstrual cycle issues during withdrawal and after


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Hope someone will read this. I’m at 8 months off ssri, suffering intensely. At first it was « just »awful  anxiety. Then I started having really bad PMS 4-5 days before my period (intense depression) that would pass instantly once periods started. Then I started having the PMS earlier , 2 weeks prior periods. Then the nightmare continues, last month as I get intense PMS, the scariest thing happened: it did not pass with my periods. I kept feeling awful. It didn’t pass either once periods were over. It went like this, debilitating depression since my last cycle, until I was 2 days pre ovulation and felt a HUGE immense relief, I felt healed, cured of everything. Then the night after that I ovulated (I feel pain when I ovulate so I know). The next morning my mood dropped drastically, and it kept dropping all day until I felt absolute torture. I couldn’t sleep last night. My periods are in two weeks. I feel my PMS or rather PMDD (which I NEVER HAD BEFORE SSRIS!!!) is becoming permanent. I feel like the serotonin drop is harder and harder for my brain to fix. 
This is pure hell. I’m terrified and in pain. 
Also: i do not take any contraceptive pill, does it help ? I read both yes and no so it’s not encouraging   

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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I think you might be experiencing windows and waves and sometimes they coincide with your pre-period and sometimes they don't. Hormonal changes can in fact cause serious mood and physical changes but they are not a disorder.

 

There is no such thing as a PMDD- it's just a reaction to hormonal fluctuations that was rebranded so women could be sold more pills. Nothing is wrong with you. 

I am not a doctor and this should not be considered medical advice. You can use the information provided in whatever way you want and all decisions on your treatment are yours. 

 

If you would like to get a response from me directly please type @Onmyway some place in your message so I get notified of your post. I am not able to follow all of the threads all the time.

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week, 

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785

 

Supplements: magnesium citrate and bi-glycinate

 

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@Onmywayyour comment sounds totally flippant and gaslighting towards those of us suffering with PMDD and trying to navigate it without antidepressants. Not at all helpful.

I took Zoloft at 50mg/day, then 100mg/day, for 18 months for Postpartum Depression. My dr wanted to increase to 150mg, at which point I decided I needed to get off (at about 1 year). I had many debilitating symptoms but it took me a while to recognize that it was the drug causing the problems. I tapered off over 6 months, and had lots of horrible discontinuation symptoms. I went from 100 to 50 by alternating doses (doctor's plan), for probably 2-3 weeks, then to 50, and stayed there for several months. Then down to 25mg/day alternated with 50 mg/day for a couple of weeks, then straight 25, then every other day 25, for like 2 weeks each time, down to one dose of 25 every few days, then off completely. I'm now 3-4 months drug-free but still experiencing severe mood fluctuations and some depression and self-harm. Just wondering when it's all going to end and when I'll be back to my old self. As long as the answer isn't "never" I just want to hear other stories. xo

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Posted (edited)

@Twinmom, I am in no way denying that you are experiencing strong symptoms before your period.

 

But as all diagnostic labels it is just that - a label. It became a 'disorder' in 2013 in the DSM IV. If you prefer to label yourself as having a disorder, you are free to do so. That is not going to change my opinion that it is a made up label. 

 

It might help to know that the FDA had a special advisory in 1999 to agree that this constellation of symptoms were a psychiatric disorder so that they could approve fluoxetine for this use. Prozac's patent was expiring and so to avoid generic competition Eli Lilly rebranded fluoxetine as Serafem for Prozac.

 

https://www.webmd.com/women/pms/news/20000706/fda-approves-prozac-for-treating-severe-form-of-pms

https://universe.byu.edu/2000/05/16/prozacs-patent-soon-to-expire-controversy-still-rages/

https://www.medpagetoday.com/special-reports/loweringthebar/61457

Edited by Onmyway

I am not a doctor and this should not be considered medical advice. You can use the information provided in whatever way you want and all decisions on your treatment are yours. 

 

If you would like to get a response from me directly please type @Onmyway some place in your message so I get notified of your post. I am not able to follow all of the threads all the time.

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week, 

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785

 

Supplements: magnesium citrate and bi-glycinate

 

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On 7/26/2022 at 2:29 AM, Nypeaches89 said:

Hope someone will read this. I’m at 8 months off ssri, suffering intensely. At first it was « just »awful  anxiety. Then I started having really bad PMS 4-5 days before my period (intense depression) that would pass instantly once periods started. Then I started having the PMS earlier , 2 weeks prior periods. Then the nightmare continues, last month as I get intense PMS, the scariest thing happened: it did not pass with my periods. I kept feeling awful. It didn’t pass either once periods were over. It went like this, debilitating depression since my last cycle, until I was 2 days pre ovulation and felt a HUGE immense relief, I felt healed, cured of everything. Then the night after that I ovulated (I feel pain when I ovulate so I know). The next morning my mood dropped drastically, and it kept dropping all day until I felt absolute torture. I couldn’t sleep last night. My periods are in two weeks. I feel my PMS or rather PMDD (which I NEVER HAD BEFORE SSRIS!!!) is becoming permanent. I feel like the serotonin drop is harder and harder for my brain to fix. 
This is pure hell. I’m terrified and in pain. 
Also: i do not take any contraceptive pill, does it help ? I read both yes and no so it’s not encouraging   

I relate to every part of the story. For me, PMS mood changes get worse with age (in general but at times it’s “milder”). I experience relief usually when I get my period and last

period I did not. 
i also experience better times during ovulation. We are such cyclical beings. Personally, I attribute worsening PMS symptoms and loner durations to age and WD. Ive heard that as we get closer to menopause, PMS gets worse. Not sure what age you are. I was told I am on perimenopause so it makes sense considering my experiences with worsening PMS. I interestingly , PMS physical symptoms have improved. Its just the anxiety and depression that get out of control. 
in regards to your question on birth control, I took it decades ago and it made me feel depressed and anxious and my appetite was unreal so I haven’t used them since. 
I have read that magnesium can help with PMS. I don’t know if it does, in my case. I have also read that a “low estrogen”, low inflammatory diet helps as well. I’m still making diet changes so I can’t speak to it yet. I thought it helped the first reduction but definitely didn’t see any help after the 2nd reduction, except maybe the unbearable days shortened by a couple of days. But I know you you know that every hour without such horrible PMS counts. It’s like having to endure life not one day at a time, but an hour or minute at a time those days. (For me it can be)

You aren’t alone with these horrible PMS symptoms. The struggle gets very real! Sending healing and peace to you.

2002-2021: 19 years on/off different psychotropics  (ADs, lamotrigine, stimulants)

2/22: Wellbutrin 150mg, Lexapro 20mg

3/22: Wellbutrin 150mg xl, Lexapro 10mg
4/22: Wellbutrin 150xl, Lexapro 5mg (hadn’t read how to properly taper yet)

4/15/22: reinstate Lexa to 7.5mg total, Wellbutrin 150mg

5/22: Wellbutrin 112.5, Lexa 7.5

6/8/22: Welbutrin 111, Lexa 6.8  -  HOLDING

Other Daily Meds: Singulair 10mg, Zyrtec 10mg, 1-2 puffs Spiriva Respimat inhaler. 

As Needed: removed Hydroxyzine, omeprazole, Clonazepam on 5/22. Rarely taking: OTC pain relievers, Albuterol, Diclofenac, Cyclobenzaprine, anti acids

Supplements: Blood levels ok. Taking Fish oil 1300-2600mg, Nigella oil, Mag Glycinate 200-400mg, Probiotics 15 billion, 1/5 dose prenatals, Melatonin .38-3mg, Lactium 167mg

 

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@onmyway it sounds like the fear you and probably others have of the condition being over medicalized for profit, though legitimate of course, is also part of the problem with learning more about it and women's reproductive health. It's not just about labels and words. I'll stick to looking to medical experts like my gyno about severe endocrinology fluctuations and symptoms of the disorder. 

I took Zoloft at 50mg/day, then 100mg/day, for 18 months for Postpartum Depression. My dr wanted to increase to 150mg, at which point I decided I needed to get off (at about 1 year). I had many debilitating symptoms but it took me a while to recognize that it was the drug causing the problems. I tapered off over 6 months, and had lots of horrible discontinuation symptoms. I went from 100 to 50 by alternating doses (doctor's plan), for probably 2-3 weeks, then to 50, and stayed there for several months. Then down to 25mg/day alternated with 50 mg/day for a couple of weeks, then straight 25, then every other day 25, for like 2 weeks each time, down to one dose of 25 every few days, then off completely. I'm now 3-4 months drug-free but still experiencing severe mood fluctuations and some depression and self-harm. Just wondering when it's all going to end and when I'll be back to my old self. As long as the answer isn't "never" I just want to hear other stories. xo

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3 hours ago, DazzlingCold said:

I relate to every part of the story. For me, PMS mood changes get worse with age (in general but at times it’s “milder”). I experience relief usually when I get my period and last

period I did not. 
i also experience better times during ovulation. We are such cyclical beings. Personally, I attribute worsening PMS symptoms and loner durations to age and WD. Ive heard that as we get closer to menopause, PMS gets worse. Not sure what age you are. I was told I am on perimenopause so it makes sense considering my experiences with worsening PMS. I interestingly , PMS physical symptoms have improved. Its just the anxiety and depression that get out of control. 
in regards to your question on birth control, I took it decades ago and it made me feel depressed and anxious and my appetite was unreal so I haven’t used them since. 
I have read that magnesium can help with PMS. I don’t know if it does, in my case. I have also read that a “low estrogen”, low inflammatory diet helps as well. I’m still making diet changes so I can’t speak to it yet. I thought it helped the first reduction but definitely didn’t see any help after the 2nd reduction, except maybe the unbearable days shortened by a couple of days. But I know you you know that every hour without such horrible PMS counts. It’s like having to endure life not one day at a time, but an hour or minute at a time those days. (For me it can be)

You aren’t alone with these horrible PMS symptoms. The struggle gets very real! Sending healing and peace to you.

I’m only 32… I have huge pain during ovulation so I also wonder if I don’t have some problem there. But still I 100% attribute this new type of Pms to wd. As always no doctor believes it, it’s so infuriating. I know they look at me like I’m a crazy anti meds person. Anyway I hope it passes this time with my periods otherwise it’s going to be unbearable. Last month was so hard. 

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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@Nypeaches89

 

29 minutes ago, Nypeaches89 said:

I’m only 32… I have huge pain during ovulation so I also wonder if I don’t have some problem there. But still I 100% attribute this new type of Pms to wd. As always no doctor believes it, it’s so infuriating. I know they look at me like I’m a crazy anti meds person. Anyway I hope it passes this time with my periods otherwise it’s going to be unbearable. Last month was so hard. 

 

Could you please set up your drug signature? 

As a fellow member of this site I rely on this information to provide context for people's comments. 

It would be very helpful!

Thank you <3

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin 9pm 

August 1, 2022 - 1 mg melatonin, approx. 10:30pm

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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5 minutes ago, Ariel said:

@Nypeaches89

 

 

Could you please set up your drug signature? 

As a fellow member of this site I rely on this information to provide context for people's comments. 

It would be very helpful!

Thank you ❤️

I have no idea how to do this… I wrote in my about me section but idk if that’s it? 

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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44 minutes ago, Nypeaches89 said:

I’m only 32… I have huge pain during ovulation so I also wonder if I don’t have some problem there. But still I 100% attribute this new type of Pms to wd. As always no doctor believes it, it’s so infuriating. I know they look at me like I’m a crazy anti meds person. Anyway I hope it passes this time with my periods otherwise it’s going to be unbearable. Last month was so hard. 

Hey @Nypeaches89, women's pain is often ignored while their moods are medicated. You should get checked out for endometriosis and PID. A friend just discovered her periods were unusually painful due to endometriosis for years. She didn't know because she always thought everyone else had such painful periods.

 

We don't know what about WD causes worse symptoms during PMS - it might be as simple as us being more sensitive to normal hormonal fluctuations, after all we are sensitive to so many things. Or it could be that our hormones are out of whack. My periods have gone out of order during WD for sure. I don't know if we will ever know.

 

OMW

I am not a doctor and this should not be considered medical advice. You can use the information provided in whatever way you want and all decisions on your treatment are yours. 

 

If you would like to get a response from me directly please type @Onmyway some place in your message so I get notified of your post. I am not able to follow all of the threads all the time.

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week, 

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785

 

Supplements: magnesium citrate and bi-glycinate

 

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In regards to WD-related symptoms, from personal experience, it does get better! 

 

Whether it's the sensitivity to hormonal fluctuations during my cycle or the hormones themselves or both or neither, the climbing-the-walls WD little shop of menstrual horrors thing does improve over time. (And, technically, I'm not getting any younger, so if anything I'm getting closer to perimenopause.) I still notice it but in general it has significantly decreased in intensity and the bothersome symptoms are fewer.

 

It's possible that supplementing with magnesium has been / is helpful to me with this (anecdotal evidence only) (see previous comments in this thread); as well as a regular practice of gentle muscle relaxation techniques, e.g. gentle yoga, stretching, psoas release exercises, etc. If nothing else, the magnesium and gentle exercises certainly haven't made things worse.

 

Takeaway: WD is temporary, it will pass. It gets better!

(Haha, menstruation is temporary, too. It will pass soon enough! Whichever passes first, WD or menses, amirite? Eventually we'll be free of both.) 

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin 9pm 

August 1, 2022 - 1 mg melatonin, approx. 10:30pm

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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8 minutes ago, Onmyway said:

Hey @Nypeaches89, women's pain is often ignored while their moods are medicated. You should get checked out for endometriosis and PID. A friend just discovered her periods were unusually painful due to endometriosis for years. She didn't know because she always thought everyone else had such painful periods.

 

We don't know what about WD causes worse symptoms during PMS - it might be as simple as us being more sensitive to normal hormonal fluctuations, after all we are sensitive to so many things. Or it could be that our hormones are out of whack. My periods have gone out of order during WD for sure. I don't know if we will ever know.

 

OMW

I’m going to do a big check up of everything. Maybe I have low œstrogen or some other hormone. Or maybe it’s just the wd that makes us extra sensitive. I’m upset because my parents don’t believe all this is caused by wd anymore. Even though my father could never quit SSRIs lol. No one believes me. It’s a special kind of hell to feel so unheard on this. 

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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21 minutes ago, Nypeaches89 said:

I’m going to do a big check up of everything. Maybe I have low œstrogen or some other hormone. Or maybe it’s just the wd that makes us extra sensitive. I’m upset because my parents don’t believe all this is caused by wd anymore. Even though my father could never quit SSRIs lol. No one believes me. It’s a special kind of hell to feel so unheard on this. 

It sucks to not be believed, sorry to hear that you have to deal with that. However, you can take solace in the fact that we are all going through this together. Your experience is real.

I am not a doctor and this should not be considered medical advice. You can use the information provided in whatever way you want and all decisions on your treatment are yours. 

 

If you would like to get a response from me directly please type @Onmyway some place in your message so I get notified of your post. I am not able to follow all of the threads all the time.

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week, 

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785

 

Supplements: magnesium citrate and bi-glycinate

 

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On 7/28/2022 at 9:45 AM, Onmyway said:

It sucks to not be believed, sorry to hear that you have to deal with that. However, you can take solace in the fact that we are all going through this together. Your experience is real.

My father even thinks of the Covid vaccine to explain my pmdd more than about the ssri withdrawal. Seriously we need a Netflix documentary to reveal the damages of these meds because nobody knows nor believes it!! 

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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19 minutes ago, Nypeaches89 said:

Seriously we need a Netflix documentary to reveal the damages of these meds because nobody knows nor believes it!! 

 

Watch this one.  Be aware that SA's taper rate is no more than 10% of current dose with a hold of at least 4 weeks to allow the brain to adapt to not getting as much of the drug.  I think the taper rate mentioned in this video is faster but they do say to reduce by less if you get withdrawal symptoms.  However the aim of tapering is to keep withdrawal symptoms to a minimum, not react after the fact by updosing and/or holding longer.

 

Antidepressant Withdrawal Syndrome and its Management

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

 

MISSION ACCOMPLISHED:    (6 year taper)      0mg Pristiq      on 13th November 2021

Woohoo!!!  Finally off Pristiq    Post 0 updates start here

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  Please DO NOT TAG me - thank you.

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24 minutes ago, Nypeaches89 said:

Seriously we need a Netflix documentary to reveal the damages of these meds because nobody knows nor believes it!! 

 

There is this one:

 

https://medicatingnormal.com/

 

From August 2020:

 

Medicating Normal - SurvivingAntidepressants.org Community Discussion video (1 hour and 26 minutes)

 

Alto is one of the panelists and gives a brief description of her withdrawal experience in this panel discussion which was shown after the presentation of the Surviving Antidepressants Presents showing of "Medicating Normal": 

 

AND

 

mad-in-america-surviving-antidepressants-an-interview-with-alto - audio and transcript

This podcast is an interview with Altostrata (SA's founder) and she talks about her own research and withdrawal experience and why she started this website after she was unable to get help from the medical professionals for her Paxil withdrawal symptoms.

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

 

MISSION ACCOMPLISHED:    (6 year taper)      0mg Pristiq      on 13th November 2021

Woohoo!!!  Finally off Pristiq    Post 0 updates start here

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  Please DO NOT TAG me - thank you.

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On 7/26/2022 at 9:29 AM, Nypeaches89 said:

Hope someone will read this. I’m at 8 months off ssri, suffering intensely. At first it was « just »awful  anxiety. Then I started having really bad PMS 4-5 days before my period (intense depression) that would pass instantly once periods started. Then I started having the PMS earlier , 2 weeks prior periods. Then the nightmare continues, last month as I get intense PMS, the scariest thing happened: it did not pass with my periods. I kept feeling awful. It didn’t pass either once periods were over. It went like this, debilitating depression since my last cycle, until I was 2 days pre ovulation and felt a HUGE immense relief, I felt healed, cured of everything. Then the night after that I ovulated (I feel pain when I ovulate so I know). The next morning my mood dropped drastically, and it kept dropping all day until I felt absolute torture. I couldn’t sleep last night. My periods are in two weeks. I feel my PMS or rather PMDD (which I NEVER HAD BEFORE SSRIS!!!) is becoming permanent. I feel like the serotonin drop is harder and harder for my brain to fix. 
This is pure hell. I’m terrified and in pain. 
Also: i do not take any contraceptive pill, does it help ? I read both yes and no so it’s not encouraging   

My contraceptives help - but it depends which one you take. I had 3 different ones over my lifetime, and each one affected my mood in menstrual cycle differently. You have to find one that suits you well if you choose to take them.

In WD I also have PMS problems which I didn't have before, but they change depending whether my WD is better or worse at the time. What didn't change though is that I'm crappy depressed IN periods (but worse in WD).

 

Also don't forget that in WD you're much more sensitive to everything - food, supplements, hormone changes, etc. 8 months is a short time to say it's permanent. You're still in WD after all.

Took Effoxor XR/Venlafaxine 75mg for 6 months, starting and withdrawing from it was no problem.

Currently suffering withdrawal from Remeron/Mirtazapine 7.5mg which I took 2 months for sleep.

 

January 2021 - Took Effoxor 37.5mg then 75mg

June/July 2021 - Stopped taking Effoxor. (Cold turkey - had to reinstate 37.5mg two days later because of vomiting and then tapered quickly over the next few days). Mild withdrawal that lasted two weeks.

 

February 2022 - took 7.5mg Mirtazapine

4th April 2022 - stopped taking Mirtazapine 7.5mg (no tapering - I didn’t know about it until I was heavy into withdrawal.)

As of 14th July 2022 - reached WDnormal, feel about 40% recovered.

20th July 2022 - Really bad crash. Feel like back to zero.

2th August 2022 - Reached WDnormal again, feel about 15% recovered.

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53 minutes ago, SunnyRainyDays said:

My contraceptives help - but it depends which one you take. I had 3 different ones over my lifetime, and each one affected my mood in menstrual cycle differently. You have to find one that suits you well if you choose to take them.

In WD I also have PMS problems which I didn't have before, but they change depending whether my WD is better or worse at the time. What didn't change though is that I'm crappy depressed IN periods (but worse in WD).

 

Also don't forget that in WD you're much more sensitive to everything - food, supplements, hormone changes, etc. 8 months is a short time to say it's permanent. You're still in WD after all.

Do you use an œstrogen + progesterone one ? I started one but it’s only progesterone as the other ones are dangerous for smokers like me. I’m at day 2 of using that, hope it’ll help… 

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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4 hours ago, Nypeaches89 said:

Do you use an œstrogen + progesterone one ? I started one but it’s only progesterone as the other ones are dangerous for smokers like me. I’m at day 2 of using that, hope it’ll help… 

I'm using estrogen + progesterone because of hormonal imbalance/PCOS. I felt most effects after 6 months of use, and felt most well after 2 years of use. But I have a hormonal imbalance, so of course it's going to be different for someone without.

I needed to try two different ones to find my third current, which I do very well on. The first one made me very sleepy all the time, the second I was on for only two months because it made me irritable and aggressive.

 

Hope it'll help you, for me the contraceptives act like an antidepressant. I feel best when taking them, and the one week where I have my period is my least favourite (It only counts for my current one, the last two I took made no difference really). This one cured my headaches, PCOS depression, made my body work normally again, etc. Again, if you have hormone imbalance of course you'll fell most well on a medicine that balances hormones... genius me.

 

You have to also look out because some can worsen your mental well-being and/or make you feel or act different than you usually do (personality change). It can also worsen your PMS, and lots of other side effects which most you won't experience. I have extremely few on mine, and on the other two I also experienced only 1-3 side effects maximum.

But if you stop them or change to another one it goes away, so don't worry. It's not like ADs where it has long lasting effects.

Took Effoxor XR/Venlafaxine 75mg for 6 months, starting and withdrawing from it was no problem.

Currently suffering withdrawal from Remeron/Mirtazapine 7.5mg which I took 2 months for sleep.

 

January 2021 - Took Effoxor 37.5mg then 75mg

June/July 2021 - Stopped taking Effoxor. (Cold turkey - had to reinstate 37.5mg two days later because of vomiting and then tapered quickly over the next few days). Mild withdrawal that lasted two weeks.

 

February 2022 - took 7.5mg Mirtazapine

4th April 2022 - stopped taking Mirtazapine 7.5mg (no tapering - I didn’t know about it until I was heavy into withdrawal.)

As of 14th July 2022 - reached WDnormal, feel about 40% recovered.

20th July 2022 - Really bad crash. Feel like back to zero.

2th August 2022 - Reached WDnormal again, feel about 15% recovered.

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17 hours ago, SunnyRainyDays said:

I'm using estrogen + progesterone because of hormonal imbalance/PCOS. I felt most effects after 6 months of use, and felt most well after 2 years of use. But I have a hormonal imbalance, so of course it's going to be different for someone without.

I needed to try two different ones to find my third current, which I do very well on. The first one made me very sleepy all the time, the second I was on for only two months because it made me irritable and aggressive.

 

Hope it'll help you, for me the contraceptives act like an antidepressant. I feel best when taking them, and the one week where I have my period is my least favourite (It only counts for my current one, the last two I took made no difference really). This one cured my headaches, PCOS depression, made my body work normally again, etc. Again, if you have hormone imbalance of course you'll fell most well on a medicine that balances hormones... genius me.

 

You have to also look out because some can worsen your mental well-being and/or make you feel or act different than you usually do (personality change). It can also worsen your PMS, and lots of other side effects which most you won't experience. I have extremely few on mine, and on the other two I also experienced only 1-3 side effects maximum.

But if you stop them or change to another one it goes away, so don't worry. It's not like ADs where it has long lasting effects.

Wow so great you found the right contraceptive! I suspect I might have some gynecological issue since my ovulation is extremely painful, and periods newly long and so heavy + the new PMDD. Or that’s all SSRI withdrawal, which wouldn’t surprise me. Anyway I feel better today, at day 22 of my cycle. I’m very scared of the 4 days before my periods which are going to be the worst. Hopefully not as bad as the 2 nightmareish days after ovulation. Hope my birth control will help . 

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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On 7/28/2022 at 1:51 AM, Ariel said:

@Nypeaches89

 

 

Could you please set up your drug signature? 

As a fellow member of this site I rely on this information to provide context for people's comments. 

It would be very helpful!

Thank you ❤️

@Nypeaches89you will find Ariel a supportive peer here. :)

2002-2021: 19 years on/off different psychotropics  (ADs, lamotrigine, stimulants)

2/22: Wellbutrin 150mg, Lexapro 20mg

3/22: Wellbutrin 150mg xl, Lexapro 10mg
4/22: Wellbutrin 150xl, Lexapro 5mg (hadn’t read how to properly taper yet)

4/15/22: reinstate Lexa to 7.5mg total, Wellbutrin 150mg

5/22: Wellbutrin 112.5, Lexa 7.5

6/8/22: Welbutrin 111, Lexa 6.8  -  HOLDING

Other Daily Meds: Singulair 10mg, Zyrtec 10mg, 1-2 puffs Spiriva Respimat inhaler. 

As Needed: removed Hydroxyzine, omeprazole, Clonazepam on 5/22. Rarely taking: OTC pain relievers, Albuterol, Diclofenac, Cyclobenzaprine, anti acids

Supplements: Blood levels ok. Taking Fish oil 1300-2600mg, Nigella oil, Mag Glycinate 200-400mg, Probiotics 15 billion, 1/5 dose prenatals, Melatonin .38-3mg, Lactium 167mg

 

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On 7/29/2022 at 4:29 AM, ChessieCat said:

 

There is this one:

 

https://medicatingnormal.com/

 

From August 2020:

 

Medicating Normal - SurvivingAntidepressants.org Community Discussion video (1 hour and 26 minutes)

 

Alto is one of the panelists and gives a brief description of her withdrawal experience in this panel discussion which was shown after the presentation of the Surviving Antidepressants Presents showing of "Medicating Normal": 

 

AND

 

mad-in-america-surviving-antidepressants-an-interview-with-alto - audio and transcript

This podcast is an interview with Altostrata (SA's founder) and she talks about her own research and withdrawal experience and why she started this website after she was unable to get help from the medical professionals for her Paxil withdrawal symptoms.

These amazing moderators are making things happen!!! 👏 i’ll be happy to share my testimony if ever needed.

2002-2021: 19 years on/off different psychotropics  (ADs, lamotrigine, stimulants)

2/22: Wellbutrin 150mg, Lexapro 20mg

3/22: Wellbutrin 150mg xl, Lexapro 10mg
4/22: Wellbutrin 150xl, Lexapro 5mg (hadn’t read how to properly taper yet)

4/15/22: reinstate Lexa to 7.5mg total, Wellbutrin 150mg

5/22: Wellbutrin 112.5, Lexa 7.5

6/8/22: Welbutrin 111, Lexa 6.8  -  HOLDING

Other Daily Meds: Singulair 10mg, Zyrtec 10mg, 1-2 puffs Spiriva Respimat inhaler. 

As Needed: removed Hydroxyzine, omeprazole, Clonazepam on 5/22. Rarely taking: OTC pain relievers, Albuterol, Diclofenac, Cyclobenzaprine, anti acids

Supplements: Blood levels ok. Taking Fish oil 1300-2600mg, Nigella oil, Mag Glycinate 200-400mg, Probiotics 15 billion, 1/5 dose prenatals, Melatonin .38-3mg, Lactium 167mg

 

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5 hours ago, DazzlingCold said:

These amazing moderators are making things happen!!! 👏 i’ll be happy to share my testimony if ever needed.

I read her interview, I have exactly the same experience than her. The denial of psychiatrists is what baffle me the most. Why don’t they hear us ?

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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On 8/1/2022 at 2:19 AM, Nypeaches89 said:

I read her interview, I have exactly the same experience than her. The denial of psychiatrists is what baffle me the most. Why don’t they hear us ?

Yes! Such shady businesses. I saw a brief part of Altos interview and I cannot imagine experiencing WD for 11 years. 

2002-2021: 19 years on/off different psychotropics  (ADs, lamotrigine, stimulants)

2/22: Wellbutrin 150mg, Lexapro 20mg

3/22: Wellbutrin 150mg xl, Lexapro 10mg
4/22: Wellbutrin 150xl, Lexapro 5mg (hadn’t read how to properly taper yet)

4/15/22: reinstate Lexa to 7.5mg total, Wellbutrin 150mg

5/22: Wellbutrin 112.5, Lexa 7.5

6/8/22: Welbutrin 111, Lexa 6.8  -  HOLDING

Other Daily Meds: Singulair 10mg, Zyrtec 10mg, 1-2 puffs Spiriva Respimat inhaler. 

As Needed: removed Hydroxyzine, omeprazole, Clonazepam on 5/22. Rarely taking: OTC pain relievers, Albuterol, Diclofenac, Cyclobenzaprine, anti acids

Supplements: Blood levels ok. Taking Fish oil 1300-2600mg, Nigella oil, Mag Glycinate 200-400mg, Probiotics 15 billion, 1/5 dose prenatals, Melatonin .38-3mg, Lactium 167mg

 

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On 7/26/2022 at 9:18 PM, Onmyway said:

@Twinmom, I am in no way denying that you are experiencing strong symptoms before your period.

 

But as all diagnostic labels it is just that - a label. It became a 'disorder' in 2013 in the DSM IV. If you prefer to label yourself as having a disorder, you are free to do so. That is not going to change my opinion that it is a made up label. 

 

It might help to know that the FDA had a special advisory in 1999 to agree that this constellation of symptoms were a psychiatric disorder so that they could approve fluoxetine for this use. Prozac's patent was expiring and so to avoid generic competition Eli Lilly rebranded fluoxetine as Serafem for Prozac.

 

https://www.webmd.com/women/pms/news/20000706/fda-approves-prozac-for-treating-severe-form-of-pms

https://universe.byu.edu/2000/05/16/prozacs-patent-soon-to-expire-controversy-still-rages/

https://www.medpagetoday.com/special-reports/loweringthebar/61457

 

2009-2018: 15mg Celexa

June 2018-January 2019: .5mg-1mg Ativan

2010-June 2021: Marvelon (Birth Control) 

September 2018-December 2021: Prozac reinstated 1mg (.25ml) April 21st 2019 , updosed to .32ml June 19, 2019 & started taper in October 2019.

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Update, i started à progestative pill. Right after my last ovulation. It is stopping my periods which I dont like. I started in the middle of a pms/pmdd phase, I feel stuck in it. I think I’ll quit the pill momentarily to get my periods, and maybe hopefully find relief.  

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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12 hours ago, Nypeaches89 said:

Update, i started à progestative pill. Right after my last ovulation. It is stopping my periods which I dont like. I started in the middle of a pms/pmdd phase, I feel stuck in it. I think I’ll quit the pill momentarily to get my periods, and maybe hopefully find relief.  

Is the stopping your periods affecting you negatively? Relief vibes on your way.

2002-2021: 19 years on/off different psychotropics  (ADs, lamotrigine, stimulants)

2/22: Wellbutrin 150mg, Lexapro 20mg

3/22: Wellbutrin 150mg xl, Lexapro 10mg
4/22: Wellbutrin 150xl, Lexapro 5mg (hadn’t read how to properly taper yet)

4/15/22: reinstate Lexa to 7.5mg total, Wellbutrin 150mg

5/22: Wellbutrin 112.5, Lexa 7.5

6/8/22: Welbutrin 111, Lexa 6.8  -  HOLDING

Other Daily Meds: Singulair 10mg, Zyrtec 10mg, 1-2 puffs Spiriva Respimat inhaler. 

As Needed: removed Hydroxyzine, omeprazole, Clonazepam on 5/22. Rarely taking: OTC pain relievers, Albuterol, Diclofenac, Cyclobenzaprine, anti acids

Supplements: Blood levels ok. Taking Fish oil 1300-2600mg, Nigella oil, Mag Glycinate 200-400mg, Probiotics 15 billion, 1/5 dose prenatals, Melatonin .38-3mg, Lactium 167mg

 

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On 8/5/2022 at 9:08 PM, DazzlingCold said:

Is the stopping your periods affecting you negatively? Relief vibes on your way.

I’m used to pms symptoms going away with periods so it was a weird change since I feel kind of weirdly depressed. I stopped the pill a while to provoke periods. No relief tho my brain still feels absolutely broken 😀

April 2020: 10mg Escitalopram 

July 2020: fast tapper tried to quit. Failed. 
september 2020: Trintellix 20mg. 
october 2021: fast taper off Trintellix (1 week). 

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