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Gussy

Gussy: fast effexor taper, The Darkness has faded, the light is back. Almost 3 years at 0.

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Gussy

mod note:  Gussy's introduction topic:  Gussy: 9 weeks off effexor, wondering if it will ever end?

 

I never thought I would be asked to write a story of recovery in the group I think of as the premier withdrawal group. The knowledge you guys have here is just out of this world. I don't know if it can be rivaled anywhere. When Alto asked me to write a story of recovery here one day I felt honoured and obligated to write something. I hope someone can gain something from this.

  It was at the start of 2017 after a failing journey i requested a blood test. The result of this showed me i could no longer trust what drs and specialists were telling me about the harmless effects of effexor and i knew i had to be off it. So before i joined here i did some research and decided on a taper slower than most drs but much faster than the 10% or less method. I really thought the real life experiences i was reading were people looking for sympathy and thought i.d be fine. Wow, how wrong i was!!! I realise a mod has to approve this so i want to tell you that i can.t write this story in one sitting. It.ll prob take many to do it with many edits along the way. I will add to it soon and then add to it again. I.ll submit this for now but save it on my phone too just incase you can.t approve it. Know that this can be done though. Gus.

Edited by manymoretodays
will add link to members introduction, once locked

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Gussy

Oh drats, i.ve come back to add some more but can.t find an edit icon, any ideas?

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manymoretodays

Hi Gussy, @Gussy

And congratulations and thank you for writing this.

For members, the edit time is only one hour after a post.

17 hours ago, Gussy said:

Oh drats, i.ve come back to add some more but can.t find an edit icon, any ideas?

 

a couple of  options, for your consideration:

1. write all that you wish to, on paper, or on a document that you could then copy and share right here.

2.  just add some more right here, on this page, when you have some time to put it all together.

Just hit the reply button after this post, to add to your first post. (I can always get rid of my post here later too, so it flows nicely)

 

I think option 2 might work out just fine.

 

You could: go with this for a general guideline:

And take a look at some of the other success stories in this forum, if you'd like.

 

I can't wait to read more.

 

Congratulations again!  And thank you so much for sharing here.

 

L, P, H, and G,

mod mmt

Edited by manymoretodays
additional, added an @ to member

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Gussy
11 hours ago, manymoretodays said:

Hi Gussy, @Gussy

And congratulations and thank you for writing this.

For members, the edit time is only one hour after a post.

 

a couple of  options, for your consideration:

1. write all that you wish to, on paper, or on a document that you could then copy and share right here.

2.  just add some more right here, on this page, when you have some time to put it all together.

Just hit the reply button after this post, to add to your first post. (I can always get rid of my post here later too, so it flows nicely)

 

I think option 2 might work out just fine.

 

You could: go with this for a general guideline:

And take a look at some of the other success stories in this forum, if you'd like.

 

I can't wait to read more.

 

Congratulations again!  And thank you so much for sharing here.

 

L, P, H, and G,

mod mmt

Thanks for your reply manymoredays. Up until recently i was editing posts i.d make here all the time so i could add more details not realising it had a 1hr limit. Now i.ve started i must finish it so i.ll work something out. Are you guys able to edit members comments? Gus.

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Rozon1

Hey gussy! I’m 2 1/2 months off Effexor. My anxiety is terrible but has improved. I can’t sleep however. And I have constipation. Did you experience any of these during your withdrawl? How long did it last?

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manymoretodays
On 2/15/2020 at 3:32 AM, Gussy said:

Thanks for your reply manymoredays. Up until recently i was editing posts i.d make here all the time so i could add more details not realising it had a 1hr limit. Now i.ve started i must finish it so i.ll work something out. Are you guys able to edit members comments? Gus.

 

Yes, we could, as moderators edit members comments.  We don't though, or at least would never, without notifying the member first.  I mean certain posts might get hidden(but they are still here), or warnings issued if there is a direct violation of site rules.  See: Rules and Guidelines, the first post there pretty much covers that.  Or if a posting might be offensive, or we make the call, that it is not good for the community as a whole. 

I will sometimes, change the font or spacing, in a members post, just for readability.  Or bold something.  And leave a note in the edit box, as to what I did.

 

Free speech and all, is encouraged, within certain guidelines.  We tend, here, at survivingantidepressants.org, to be fairly vigorous, in terms of requiring a basis for opinion.  Meaning that, it is nice if opinions are referenced a bit, if possible, and even that references are given a critical analysis.

 

When it comes to your own stuff and what helped, and even what did not..........we do want you to tell all, if you wish.  It can be very helpful for others really struggling right now.

 

And......If you are asking in regards to your postings, and find that after posting, and after your own editing time is up........that you want us to edit something, then PM one of us, and we could do so.

Try not to make a habit of it though, you could always re-post, quoting your own post, and then add below what you wish to clarify or something to that effect.

Here is another little trick too:  if you are posting and get interrupted, and have to sign off or log out.  When you come back, sometimes, if you just hit the reply box where you had posted.......your post will still be there, intact, to keep working on.  It's not the best method, and IS most likely, time limited too, but.....well, there is that.  B)

 

We tend to run a bit short handed, as it is, and need to focus on the introductions, and giving guidance there, primarily.  This is a busy site sometimes.  And we all just try to do our best, with the time we have, as well, to devote here.

 

Our members matter!  A lot.

 

Congratulations again Gussy!  @Gussy  And thank you again, for participating and all!

L, P, H, and G,

mmt

Edited by manymoretodays
added an @ notification for member, additional
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Gussy
5 hours ago, manymoretodays said:

 

Yes, we could, as moderators edit members comments.  We don't though, or at least would never, without notifying the member first.  I mean certain posts might get hidden(but they are still here), or warnings issued if there is a direct violation of site rules.  See: Rules and Guidelines, the first post there pretty much covers that.  Or if a posting might be offensive, or we make the call, that it is not good for the community as a whole. 

I will sometimes, change the font or spacing, in a members post, just for readability.  Or bold something.  And leave a note in the edit box, as to what I did.

 

Free speech and all, is encouraged, within certain guidelines.  We tend, here, at survivingantidepressants.org, to be fairly vigorous, in terms of requiring a basis for opinion.  Meaning that, it is nice if opinions are referenced a bit, if possible, and even that references are given a critical analysis.

 

When it comes to your own stuff and what helped, and even what did not..........we do want you to tell all, if you wish.  It can be very helpful for others really struggling right now.

 

And......If you are asking in regards to your postings, and find that after posting, and after your own editing time is up........that you want us to edit something, then PM one of us, and we could do so.

Try not to make a habit of it though, you could always re-post, quoting your own post, and then add below what you wish to clarify or something to that effect.

Here is another little trick too:  if you are posting and get interrupted, and have to sign off or log out.  When you come back, sometimes, if you just hit the reply box where you had posted.......your post will still be there, intact, to keep working on.  It's not the best method, and IS most likely, time limited too, but.....well, there is that.  B)

 

We tend to run a bit short handed, as it is, and need to focus on the introductions, and giving guidance there, primarily.  This is a busy site sometimes.  And we all just try to do our best, with the time we have, as well, to devote here.

 

Our members matter!  A lot.

 

Congratulations again Gussy!  @Gussy  And thank you again, for participating and all!

L, P, H, and G,

mmt

Thanks again for your reply, I understand exactly what you mean. I'm mod in a Facebook effexor group and find it hard to find the time to respond to people as much as ID like with things that are happening in my life. So I get where you're coming from. No worries, I don't plan on breaking any rules or anything I was just asking about maybe being able to clean up my first comment in my recovery post but that's no problem I'll just keep going on from that.

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Rozon1

hey @Gussy I posted above earlier, forgot to tag you. I apologize! Could you answer the above questions? ❤️

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Gussy
On 2/17/2020 at 2:50 PM, Rozon1 said:

hey @Gussy I posted above earlier, forgot to tag you. I apologize! Could you answer the above questions? ❤️

Hi Rozon1. Wow your taper was very fast. Jumping off at 18.75 is a risky move. From 37.5-0 is where the most of this drug.s effect is taken away per mg. Roughly 65% is taken away if 37.5 is stopped abruptly. It can take our bodies and brains a long time to recover from this. I came off pretty quick myself. I struggled to get to sleep for a while but always managed to and i don.t think i had that symptom as bad as most. As far as constipation goes, I was much the opposite. I couldn't stop myself from going to the toilet. In the group I'm in we often suggest the use of probiotics and sometimes digestive enzymes. I believe the reason these are suggested is to help with constipation. I can't remember how long my toilet problems were at their worst and the same goes for my terrible moods. ID say they were at their worst for at least six months. It varies from person to person though. Are you using any supplements right now? Gus.

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Rozon1

How do you feel now? How’s your anxiety? @Gussy

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Gussy
8 hours ago, Rozon1 said:

How do you feel now? How’s your anxiety? @Gussy

At a normal level. The neuro emotions are gone for me. I'm still a Little Sensitive to some noises music in particular which makes my emotions act up a bit but nothing like it used to be.

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Rozon1

@Gussy how long did you have your anxiety before it went away? 

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Gussy
10 hours ago, Rozon1 said:

@Gussy how long did you have your anxiety before it went away? 

I.m sorry that i can.t be exactly sure. It would.ve been extremely strong for 3-4 months then very strong for a good while after that. I realised after a while that there was no use trying to fight it, just to accept that it was going to happen and it.d be out of my control. I prefered to let what was going to happen just happen and try to save energy for healing i didn.t even know was happening.

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HappilyDerailed

Awesome ! I'm just now reemerging myself 😁

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Gussy

So i.d better add to this story now. Like i said earlier, i knew i had enough doubt in what i was being told about effexor.s harmless effects and had to get off it faster than recommended. I used scales to weigh the beads. I do ok at maths so it saved me much time over counting. So i spent somewhere between 3&1/2-4&1/2 months "tapering" off effexor from around 150mg. It could.ve been 175 but not any less than 150 pre taper. I could feel things happening that weren.t nice as i got close to zero but kept going. My reason to get off effexor wasn.t one i.d put in a normal category so it had to be that way. It was 2017 when it started so i can.t remember exact timelines but i.ll do the best i can. 

   I wish i could use the worst swear words to describe what i felt but i don.t know if s.a would approve. Oh man it was soooooo bad. If i didn.t have such a reason to allow myself to be owned by something so overwhelming and powerful i doubt i.d have made it. I think around the first 2&1/2-3&1/2 months were just darkness. There was no letup at all. I realize there are many who go on much longer with no letup at all so i mean no offense to you. My brain felt like it was almost on fire. I could feel lobes/lines (don.t know what else to call the lines, like a straight line from the top of my forehead right along the middle of my skull to around where our skulls start to curve downwards at the top/back) all round my brain in an incredible discomfort. It was screaming out because something was very wrong. I could identify them on brain anatomy diagrams. It was like it was being fried and there was nothing i could do about it. The anger, depression, anxiety and all things bad were off the charts. Few believed me which only made it worse so we quickly work out who and who not to discuss it with don.t we? I remember a dr telling me it shouldn.t be that as it.s out of my system now and looking at me strange when i mentioned sensitivity to light and sound. Anyway, for months (at least) i was too cold for whatever the temp was and shivering like a mad thing. Later on in wd i was too hot and sweating quite a bit. Especially from my legs and groin when sleeping. Actually i think it was everywhere when i was in bed. The sheets were quite moist from sweating in bed. My posture isn.t great but after a bit i realised i was walking around leaning even further forward than normal and had to try to make an effort to stand a bit straighter. I think i.d have fallen on my face if i.d leant any further forward. The nerves in my feet went bananas. I still feel them now but to much less a degree and it.s mainly only in some parts of my heels, arches and balls of my feet now i think. My toes are ok now. My heels felt so bad, it was like the nerves had become super agrivated, along with everywhere else in my feet. My toes were as bad as my heels i think. It felt like the nerves were wriggling under my skin. I spent so much time trying to relieve this to no avail. I wish i.d actually looked at my feet, i.ve heard others say they could see wriggling under their skin. I.d wake each morning to my heels feeling awful and a song i hate playing in my mind that i couldn.t stop unless i interupted it by saying "stop,stop,stop" in my mind, only to have it start playing again when i wasn.t interupting it.  My forearms felt like really thin strings were slowly being pulled out from them. Like they were in the muscly part of my forearms and being pulled out through my wrists. That kind of direction. My lower leg bones felt like they were twisting, it was an awful feeling but nothing could be done. 

As i was approaching zero i felt pain and a spasming kind of feeling in my kidney area on both sides which hightenned my already terrible emotions. I believe this to be my adrenals going nuts. Please correct me if i.m wrong. I thought my kidneys were going to explode or that i had cancer and was going to die etc. This went on for, to me, a long time. My sensitivity to light and sound i think was very high, if the tv wasn.t turned down for me i.d have to squint or wear sunglasses to watch it while the tears were streaming down my face. The noise from the tv probably added to this along with my wd reaction to nice things or people doing well. It was like things that were the slightest example of someone achieving something good or something that was touching like an owner seeing his/her dog for the first time in a month just made tears flood down my face. I spent much time in 2017 hiding this from my wife, along with doing my best to not unload the anger, depression and anxiety on her. Even driving home from work each night i.d wear my sunglasses if the lights from oncoming cars were too bright or the mobile roadworks lights were bright led lights so i.d have the glasses ready for going past them. I still cried but i think the emotions might.ve been a smidge less. I.d ball my eyes out after work listenning to music i was relating to how i was feeling at the time. I ended up turning the music right down or off after a while as it was too much for my brain. I could feel my hormone cycle kicking in from time to time but it wasn.t something i could count on. It was, as i think Alto called it in a msg once, sporadic. 

 I had real trouble trying to eat for probably 9 months i.d say. I lost at least 14kg i.d reckon. I got too skinny for my liking. My clothes weren.t a very good size anymore although effexor had caused quite a bit of weight gain.

I had trouble concentrating, even thinking was difficult. Thinking about work or how to do things. If someone tried to explain something to me i hadn.t done before it.d take a good bit of explaining for me to have a chance.

  Muscle twitches, aches, weakness and some cramping went on for a long time but is only mainly in my butt, upper hamstrings and biceps at times now. The aches that is for butt and hammies but weakness/almost crampiness for biceps. I feel my arms at work when lifting boxes etc. After around 3 months i noticed my symptoms slightly easing at night from around 9 or 9:30 pm until i went to sleep which would.ve been around 12:30-1:30am. Over time this changed from slightly easing to really backing off so i felt how i wanted to all the time. I wished on so many nights i.d wake up feeling that way but the heel pain and stupid song were always playing so it wasn.t to be for a good while. So i.d spend my days feeling pretty terrible (i think it was a little less bad as the first 3 months though) waiting for 9pm. I think the periods of easing symptoms may.ve been caused by the parasympathetic coming on. I have more to add and will in a few days.

 

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Gussy
On 2/21/2020 at 7:23 AM, HappilyDerailed said:

Awesome ! I'm just now reemerging myself 😁

What was your pre taper dose? How.d you come off it? How long at zero?

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Cocopuffz17

That is amazing to hear. I relate so much with the muscle spasms and sensitivity to light( I was wearing sunglasses for months). I also had massive amounts of vertigo/fatigue. Mine has improved greatly! I know it will get better. Thank you so much for sharing you story! You are roughly 34 months off of effexor ?  

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Gussy
4 hours ago, Cocopuffz17 said:

That is amazing to hear. I relate so much with the muscle spasms and sensitivity to light( I was wearing sunglasses for months). I also had massive amounts of vertigo/fatigue. Mine has improved greatly! I know it will get better. Thank you so much for sharing you story! You are roughly 34 months off of effexor ?  

Hi Cocopuffz17. Yeah mid month ticks another one round for me so 34 months is right. I still have what i call creepy crawlies in my brain during certain hours each day. It brings that doubt that this process always brings but they do subside and when i compare it to 2017 i know i.ve come a real long way. I continue to hope my brain has the power to make further improvements because i think the term "brain injury" applies to what happened. I don.t think something like "brain distress" does it justice. How long have you been off? What was your pre taper dose? How did you go about reducing? Gus.

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Cocopuffz17
5 hours ago, Gussy said:

Hi Cocopuffz17. Yeah mid month ticks another one round for me so 34 months is right. I still have what i call creepy crawlies in my brain during certain hours each day. It brings that doubt that this process always brings but they do subside and when i compare it to 2017 i know i.ve come a real long way. I continue to hope my brain has the power to make further improvements because i think the term "brain injury" applies to what happened. I don.t think something like "brain distress" does it justice. How long have you been off? What was your pre taper dose? How did you go about reducing? Gus.


That’s great to hear. Yea, the waves definitely being the doubt. But when there is windows it is sooo good. Like unbelievable! 
 

Yes, your brain does have the power to repair itself. The human body is amazing and resilient when properly nourished and drug free. I honestly want to use the term brain destruction. I have watched the cells of my body be destroyed over the years and now realize a majority of it was from the medication I was on. I am now just over a year off and have watched these health challenges reverse. 
 

I was on 20 mg for 11 years. I attempted 2 CTs, absolute failures and I went nuts. Attempted 1 psychiatrists guided taper and was unable to sustain it after 1 month, I reinstated.  My most recent taper was 3 months at 25% of original dose per month. This was the information I received from my psychiatrist and was not a fun time coming off! But now I am almost 13 months drug free and have watched all my health conditions reverse. I also made nutrition changes which helped immensely!! 

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HappilyDerailed
18 hours ago, Gussy said:

What was your pre taper dose? How.d you come off it? How long at zero?

150. I literally counted beads for 1 year. Extremely slow taper. At zero for close to 6 years 

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Gussy
4 hours ago, HappilyDerailed said:

150. I literally counted beads for 1 year. Extremely slow taper. At zero for close to 6 years 

Yeah ok. You took longer than me to get to 0. One year from 150 is still quite fast believe it or not. If i ever had to do it again, which i never will, i.d expect it to take around 2 years providing everything went well. Good on you though for making it. I.d love to be able to know now how i.d be feeling at 6 years at 0.

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Gussy
6 hours ago, Cocopuffz17 said:


That’s great to hear. Yea, the waves definitely being the doubt. But when there is windows it is sooo good. Like unbelievable! 
 

Yes, your brain does have the power to repair itself. The human body is amazing and resilient when properly nourished and drug free. I honestly want to use the term brain destruction. I have watched the cells of my body be destroyed over the years and now realize a majority of it was from the medication I was on. I am now just over a year off and have watched these health challenges reverse. 
 

I was on 20 mg for 11 years. I attempted 2 CTs, absolute failures and I went nuts. Attempted 1 psychiatrists guided taper and was unable to sustain it after 1 month, I reinstated.  My most recent taper was 3 months at 25% of original dose per month. This was the information I received from my psychiatrist and was not a fun time coming off! But now I am almost 13 months drug free and have watched all my health conditions reverse. I also made nutrition changes which helped immensely!! 

That shows some real grit and will from you. 25% of original dose per month is asking a real lot of yourself and you.ve managed to get to the point where you.re believing and seeing it. I think the only way is up for you now and i think you.d be thinking that way too.

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Cocopuffz17
2 hours ago, Gussy said:

That shows some real grit and will from you. 25% of original dose per month is asking a real lot of yourself and you.ve managed to get to the point where you.re believing and seeing it. I think the only way is up for you now and i think you.d be thinking that way too.

Yes, it took a lot. But I knew I needed off of it. If I knew the proper way I would of tapered slowly. But I trusted the medical “professional” on the matter. It is still challenging, but immensely better than where I was. 

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