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Coronavirus, covid-19, covid-19 vaccine, & psychiatric drug tapering & withdrawal


sunnysideup69

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Had first jab yesterday. Felt ok last night but today seem to have got a headache, fever and emotionally feeling worse. Was Pfizer jab.

Started Lexapro 5mg Mid March 2020

Came off Completely September 2020

Hospitalised september 2021

Slowly worked up to 50mg lamictal and 60mg Prozac

reduced to 20mg Prozac September 2021

Holding 20mg Prozac and 50mg Lamictal for a good while to stabilise. November 2021

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  • Mentor

Got my first Astra Zeneca shot on March the 5th

Flu like symptoms for 48 hours. 
Ten days later developed rash on my arm, so called “covid arm” It faded with in about 4 days. 
Got my second shot on the 20 of May without any symptoms.

 

 


1999-2020  20 mg Paxil

Bridged with Fluoxetine to help me get off Paxil.

2022 Fluoxetine 15 mg 12/12 14mg 27/12  13mg jan 12mg feb 11mg mars 10mg, 9 mg 8,5 mg 7.6mg 7.0 mg 6,3 mg 5,6 mg 5,0 mg 4,5 mg 4,0 mg 3.6mg 3,2 mg 2,9 mg 2,6 mg 2,3 mg 2,0 mg 1.8 mg

 


I am not a medical professional nor is this a medical advice. I only talk from my own experience.

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Wondering how many have had a, or both shots who had akathisia before which they had recovered from, and if anyone had it come back.  Also, is there anyone here who has a doctor who admitted they had had akathisia who had any info on the vaccine's potential to possibly make it reappear, who was advised one way or another to have it/not have it?  And anyone who has had tardive dyskinesia who recovered from it who has had the vaccine and if so did it come back?

 

And is there anyone who is dealing with autoimmune issues who has had it too, and if so did you get an AI flare. 

 

Thanks for any help!

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I don’t have a TD diagnosis, but Lexapro left me twitchy in general (including one spot in front of my ear), which has improved very slowly from its peak about a year ago. I had absolutely zero resurgence in my SSRI-related symptoms following either of my doses of Pfizer. 

2014 & 2017 - 25mg sertraline for postpartum depression

Late May ‘20 - Early June ‘20: 7.5mg buspirone 2x/day (adverse reaction)

Mid-June ‘20 (six days total): 5mg escitalopram (adverse reaction)

currently taking: vitamin D, magnesium, omega 3, occasional melatonin.

no alcohol, no caffeine.

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6 hours ago, HopeToHeal said:

I don’t have a TD diagnosis, but Lexapro left me twitchy in general (including one spot in front of my ear), which has improved very slowly from its peak about a year ago. I had absolutely zero resurgence in my SSRI-related symptoms following either of my doses of Pfizer. 

 

Thank you for this Hope, good to hear the vaccinations went well.

 

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Hi everyone.

 

I'm twelve weeks off Citalopram and, up until a week ago, the WD process was going the same way as the Olanzapine WD that I did last year. (which is well documented in my profile). I had my first Covid 19 jab last Monday & have had another massive wave of physical, and really difficult emotional, withdrawal that started a few days ago. Has anyone on here got any experience of the AstraZenica vaccine triggering waves of withdrawal symptoms? If so, is there any guidance on how it manifested, or how long it's going to have an effect? Thanks! x

Olanzapine 2.5mg 2007 - 8.5.2020. 1.25mg held for 4 weeks then stopped.

 

Citalopram 20mg 2007 - December 2020. Tapered down from 20mg daily, to 1.25, by halving the dose, holding for 3/4 weeks after each reduction, then jumping off in March 2021.

 

23/6/ 2021 Reinstated Citalopram, 0.5mg, held for a week then increased to 1mg. Held for four weeks then increased to 1.5mg. Held for two weeks then increased to 2mg. held for two weeks then increased to 2.5mg. been on 2.5mg since 24/8/21

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Was vaccinated in April. I got the Moderna vaccine a couple weeks after a drop.  No side effects I would attribute to any interaction.  First dose had a sore arm, light headache, felt a little tired and spacey in head.  Seemed to be typical vaccine side effects. Cleared up after a couple days.

Second dose was going to be right around when I was planning to make the jump to 0.  After having no unusual side effects from my first dose decided to go through with my original plan.  Did the drop to 0 about a week and a half before my second dose.  My drop to 0 went good, felt slightly elevated withdrawal effects than my normal drop, but resolved after about a week.  Got the second dose and did not notice any interrelated side effects.  I did have a sore arm, quite a bad headache, fever, and body aches.  All side effects the nurse explained may happen.  I ended up taking Tylenol for the fever.  Headache and fever resolved after a day.  Sore arm and body aches took 2-3 days to resolve.

40 yo Male. Started Paxil about 15 years ago. 10 mg (pill weight .125 - .129 g). 5 yrs wanted less side effects, doctor took me off Paxil over couple week period and put me on Wellbutrin. Not good. Went back on Paxil. Relieved my symptoms, but didn't work as well and more side effects. Severe reaction between Paxil and Zomig Summer of 2012. Head was affected during warmer days (cloudiness, confusion, pressure). Began 10% withdrawal 10/24/12.

Withdrawel helped many symptoms, but also added side effects: nausea, dizziness, tiredness. Hyper-anxiety started January 2014.

Went through a 2 year period of de-realization (2016-2018).  Rarely any windows.  
Current dose: 0.00 as of 4/10/21.  Made a lot of progress in my withdrawal symptoms the last 2 years of my taper.  I think doing a liquid taper helped stabilize things on the lower doses.  A lot of my symptoms have reduced significantly.  Hoping for even more improvement now that I am off.
My thread: http://survivingantidepressants.org/index.php?/topic/8909-rusty1-paxil-withdrawal-help-and-advice-welcome/#entry150222

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I'm just curious if anyone, and how many of you all here, have had the COVID vaccine and have NOT had a catastrophic reaction to it....

2005-2009 Various ADs and maybe some random Ativan, nothing long-term

2009 Started Celexa 10 mg

2012 Symptoms of depression worsened when I quit drinking, started a course of Viibryd (10 mg), Buspar (5 mg), Xanax

2013 Hospitalized, added Lamictal in the hospital (quit Lamictal cold turkey in 2014)

2014 Switched back to Celexa from Viibryd

2015 Quit Buspar cold turkey

2016 Cut down to 5 mg of Celexa (all seemingly without issues)

June-August 2017 tapered off Celexa

October 2017 Hospitalized for insomnia (quit sleeping entirely)

reinstated w/ Trintellix 5mg (stopped in 1/18) and 7.5 mg of Mirtazapine

Mirtazapine (in mgs) 2/18 5,  6/19 3.5, 9/25/19 3.2, 2/24/20 2.9, 3/2020 2.85, 6/20/20 2.5, 10/3/20 2.3, 11/30/20 2.1, 1/1/21 1.95 3/19/21 1.86 9/1/21 1.65 11/30 1.5 mgs 3/1/22 1.41 mgs 6/28/22 1.37 mgs 10/22 1.20 mgs

Daily supplements: 470 mgs magnesium, Miralax, 640 Omega complex, probiotic, testosterone 2 gms, progesterone 12.5 mgs

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Hi everyone,

I want to till you that i got my first vaccine on Sunday 5/23/2021 and the second on 6/13/2021. The vaccine was the Russian sputnik v. On the same day of the first jab i did not feel any thing. The next day i felt pain on the site of the vaccine and felt exhausted for two days. After that it was ok. The same was on the first day of the second jab. However, on the second day i felt wobbly, like my brain is not in coordination with my body and i still have this feeling. It is awful and weird symptom. I did not have any other symptom. I am almost five years of protracted withdrawal. I choose sputnik v over Pfizer because the latter is new type of vaccination and have not been studied for long term side effects while sputnik v is actually is an adenovirus vector vaccine which have been around for many years. Anyway i think the vaccine will affect your hypersensitive nervous system regardless of its type. 

My drug history:

Cipralex 10mg for two months from February 2015 to April 2015. Tapered for one month 

Cipralex 20mg for six months from February 2016 to August 2016. Tapered for 5 weeks.

From October 2016 till fourth of April 2018 I am drug free.

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I don't know what to do about the COVID vaccine. I know no one here can give medical advice. I am nervous about contracting COVID now that life has "normalized" again. I've been avoiding the vaccine because of the possibility for a resurgence in WD symptoms. I had a terrible reaction to iodinated contrast dye last November, and since then have had a lot of anxiety about receiving any medical treatments at all.

 

I also don't want to catch COVID and risk the possibility of being intubated. I have otherwise excellent health status (other than W/D), and am getting better, but still am almost unreasonably terrified of any pharmaceutical. I really don't know what to do in this situation, and of course, for the reasons we all know, I can't have a conversation with my doctor about this.

 

Just at a loss at what to do.

2005-2009 Various ADs and maybe some random Ativan, nothing long-term

2009 Started Celexa 10 mg

2012 Symptoms of depression worsened when I quit drinking, started a course of Viibryd (10 mg), Buspar (5 mg), Xanax

2013 Hospitalized, added Lamictal in the hospital (quit Lamictal cold turkey in 2014)

2014 Switched back to Celexa from Viibryd

2015 Quit Buspar cold turkey

2016 Cut down to 5 mg of Celexa (all seemingly without issues)

June-August 2017 tapered off Celexa

October 2017 Hospitalized for insomnia (quit sleeping entirely)

reinstated w/ Trintellix 5mg (stopped in 1/18) and 7.5 mg of Mirtazapine

Mirtazapine (in mgs) 2/18 5,  6/19 3.5, 9/25/19 3.2, 2/24/20 2.9, 3/2020 2.85, 6/20/20 2.5, 10/3/20 2.3, 11/30/20 2.1, 1/1/21 1.95 3/19/21 1.86 9/1/21 1.65 11/30 1.5 mgs 3/1/22 1.41 mgs 6/28/22 1.37 mgs 10/22 1.20 mgs

Daily supplements: 470 mgs magnesium, Miralax, 640 Omega complex, probiotic, testosterone 2 gms, progesterone 12.5 mgs

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On 6/19/2021 at 5:40 AM, LiaJ said:

I'm just curious if anyone, and how many of you all here, have had the COVID vaccine and have NOT had a catastrophic reaction to it....

Hi @LiaJ, I received both doses of the Pfizer vaccine in February and did not have a significant reaction to it beyond what is generally reported. I had tiredness after the first dose and flu-like body aches and headaches after the second dose which lasted 24 hrs.
 

I am tapering my AD very slowly and have been quite stable with no major withdrawal symptoms or kindling over the past 2 years.  
 

Based on a cursory review of some of the more recent responses on this thread, most people did not have a “catastrophic” reaction to the vaccine. I wonder if receiving a different vaccine that you have had before would assuage your fears, like the flu vaccine? See how you respond to that. I recognize your fear is related to hypersensitivity and not knowing how your body might respond. 

Apr 2018: Began 10 mg Amitriptyline (for headaches & insomnia from concussion).

Jul - Aug 2018: Fast taper to 5 mg and then 2.5 mg (too fast, hellish withdrawal at 2.5 mg). Sept 2018: Reinstated 10 mg (many symptoms improved). Oct 2018 - Apr 2019: Updosed & stabilized on 11 mg (2 waves at 3 and 5 months post-withdrawal). Apr 2019 - Apr 2020: Tapered 0.5-0.25 mg per month using compounded pills: 11 mg —> 6 mg. (2 waves at 12 and 16 months post-withdrawal.) Apr 2020 - present: Switched to a liquid taper at rate of 0.1 mg per month. Currently: 1.1 mg. No more waves. 

 

Supplements: Omega-3 fish oil, Vit B12, coenzyme Q10, Hawthorn extract (for tachycardia) Tools for insomnia/waves (as needed): Epsom salt foot soaks, 0.5 mg Melatonin, quality time, waves WILL PASS. Lifestyle: Eat real foods, mostly plants; sunlight, walking, yoga; symptom tracking on adapted Glenmullen chart.

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I had both doses of Pfizer and definitely did NOT have anything remotely near a catastrophic reaction. A bit of arm soreness with both doses and some very mild fatigue and headache with the second. Most people I know have had the vaccine by now and none of them had a catastrophic reaction either.

2014 & 2017 - 25mg sertraline for postpartum depression

Late May ‘20 - Early June ‘20: 7.5mg buspirone 2x/day (adverse reaction)

Mid-June ‘20 (six days total): 5mg escitalopram (adverse reaction)

currently taking: vitamin D, magnesium, omega 3, occasional melatonin.

no alcohol, no caffeine.

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I did find one of the older 12 page pdf's for Covid vaccine's in trials:

 

COVID-19-Vaccine-Candidates-and-Abortion-Derived-Cell-Lines.pdf (pcdn.co)

 

There are 8 currently being funded by operation WARP Speed, that was more than I realized.

 

 

 

 Starting ds 2 (12.5 CR'S) = 25 MG PAXIL CR 1/21/15: 1 Pill + 10mg liquid (2 weeks) 2/4: 1 Pill + 9mg Lq (3 weeks) 2/25: 1 Pill + 8 mg lq (1 week) 3/4: 1 Pill + 6 mg lq (2 weeks) 3/18/15 1 Pill + 4 mg lq (2 weeks) 4/1/15 1 Pill + 3 mg lq (2 weeks) 4/14/15 1 Pill + 2 mg lq (2 weeks) 4/29/15 1Pill + 1 mg lq (16 days) 5/15/15 1 12.5 mg Pill ONLY (9 days) 5/24/15 12 mgs liquid (8 days) 6/1/15 11mg lq (12 days) 6/13/15 10 mg.  12/3/15 Drop from 8mg to 7.6 (24 days to) 12/27/15 7.2mgs 8/4/16 6.8mgs,  11/1/16 6.4mgs, 2/5/17 6 mgs  4/3/17 5.6mgs, 4/24/17 5.2mg, 6/13/17 4.8mgs, 9/20/17 4.4mgS, 11/23/17 4 mgs, 1/1/18 3.6 mgs, 2/15/18 3.2 mgs. 4/13/18 2.8mgs, 5/11/18 2.4mgs, 6/10/18 2.0 mgs, 8/4/18 1.6mgs,  9/27/18 1.2mgs, 12/24/18 0.8mg, 3/24/19 0.64 mg,(syringe change issue date?) 4/22/19 0.60 mg, 5/24/19 0.60 mg, 7/7/19 0.52 mgs, 8/4/19 0.44mgs, 11/4/19 0.36mgs, 2/1/20 0.28mgs, 3/1/20 0.24mgs (crash April 6) Compound started 6/28/21: 0.24mgs, 8/29/21: 0.22mgs, 10/31/21: 0.20mgs, 1/03/22: 0.18mgs, 3/5/22: 0.16mgs, 5/5/22: 0.14mgs.

 

Original Wellbutrin Dose: 6 months from 9/14 to 3/2015, 300 XL 3/15/15: Half to 150 XL ( severe symptoms started on day 12) 4/16/15: 125mg   for 20 days to: 5/6/15:   100mg  for  15 days to: 5/21/15    75mg  for  10 days to: 6/1/15:  56.25mg      13 days to: 6/13/15: 37.25mg    7 days to: 6/20/15  28.12mg   14 days to: 7/4/15  18.75mg, 7 days to: 7/11/15; RAISE BACK TO: 28.12 to 8/14/15: 18.75mg  20 days to :9/3/15 : 12.5mg, 8/4/16 9mg 1/9/17: 8.5mg 2/8/17 8mg, 3/9/17: 7.6  4/9/17  7.2  5/27/17 6.4 6/24/17 5.8, 8/1/17 5.0, 8/29/17 4.2mgs, 10/2/17 3.5mgs, 12/28/17 2.5mgs, 2/27/18 1.7mgs,  4/19/18 0.8 mgs, LAST DOSE: 6/11/18:  3 YEARS, 2 MONTHS, 27 DAYS...

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On 6/16/2021 at 4:25 PM, MindDrift said:

Hi everyone.

 

I'm twelve weeks off Citalopram and, up until a week ago, the WD process was going the same way as the Olanzapine WD that I did last year. (which is well documented in my profile). I had my first Covid 19 jab last Monday & have had another massive wave of physical, and really difficult emotional, withdrawal that started a few days ago. Has anyone on here got any experience of the AstraZenica vaccine triggering waves of withdrawal symptoms? If so, is there any guidance on how it manifested, or how long it's going to have an effect? Thanks! x

Hi MindDrift,

 

I had my first Moderna vaccine on 14th June, i was already in a wave, but the wave seems to have worsened over the last 6 days, nausea, dizzy, headaches, brain fog, anxiety. its horrible, hope it settles soon! 

May 2016- August 2020 Fluoxetine 20mg (pooped out)

August 2020 - December 2020 Sertraline 50mg (adverse effects)

Dec 2020-Mar 10th 2021 Citalopram 20mg (adverse effects)- STOPPED cold turkey

Fully antidepressant free since 10th March 2021. 

Take occasional propranolol 10mg.

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  • Moderator Emeritus
On 6/22/2021 at 2:34 PM, LiaJ said:

I don't know what to do about the COVID vaccine. I know no one here can give medical advice. I am nervous about contracting COVID now that life has "normalized" again. I've been avoiding the vaccine because of the possibility for a resurgence in WD symptoms. I had a terrible reaction to iodinated contrast dye last November, and since then have had a lot of anxiety about receiving any medical treatments at all.

 

I also don't want to catch COVID and risk the possibility of being intubated. I have otherwise excellent health status (other than W/D), and am getting better, but still am almost unreasonably terrified of any pharmaceutical. I really don't know what to do in this situation, and of course, for the reasons we all know, I can't have a conversation with my doctor about this.

 

Just at a loss at what to do.

 

Hi LiaJ, @LiaJ

I had moved your previous post over here to topic, and it does look like composter responded to your first post already. 

 

I too, got the Pfizer 2 dose vaccine back in March without any catastrophic reactions or results.   After the second dose, I might have gotten briefly thrown, fatigue and mild emotional distress.  It certainly wasn't catastrophic.

 

You can google the vaccines and find out the ingredients too.

 

And perhaps, you'll get more reassurance on this topic/thread too. 

I'm just about 64 now, without pre-existing conditions, and faced my fears, went and got the vaccine, and obviously have lived to tell the tale.  It was important to me to do so.  And although a bit scary, I did okay.  Honest.

 

Oh sweetie, best, and on into making a decision, either way, and reducing the health anxiety.

 

Love, peace, healing, and growth,

mmt

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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On 6/22/2021 at 6:47 PM, composter said:

Hi @LiaJ, I received both doses of the Pfizer vaccine in February and did not have a significant reaction to it beyond what is generally reported. I had tiredness after the first dose and flu-like body aches and headaches after the second dose which lasted 24 hrs.
 

I am tapering my AD very slowly and have been quite stable with no major withdrawal symptoms or kindling over the past 2 years.  
 

Based on a cursory review of some of the more recent responses on this thread, most people did not have a “catastrophic” reaction to the vaccine. I wonder if receiving a different vaccine that you have had before would assuage your fears, like the flu vaccine? See how you respond to that. I recognize your fear is related to hypersensitivity and not knowing how your body might respond. 

Hi Composter, 

 

Thank you for your reply :) I'm glad to hear you are fully vaccinated at that you had no issues! I have never been vaccinated for the flu, I've never had the flu, either. I did, however, receive a tetanus shot in 2018 for splitting my leg open at a cross fit gym, down to the bone. That was early in W/D (8 months) for me, when I was still too weak to be doing intense exercise, but stupidly still trying to push through it. I had no issues with the tetanus shot that I recall. That is encouraging. At first I dismissed the COVID vaccine because I automatically assumed that it would create issues, but now that I'm hearing that people in W/D are getting vaccinated and not having setbacks, I am seriously considering it. These conversations do help. Thank you!

2005-2009 Various ADs and maybe some random Ativan, nothing long-term

2009 Started Celexa 10 mg

2012 Symptoms of depression worsened when I quit drinking, started a course of Viibryd (10 mg), Buspar (5 mg), Xanax

2013 Hospitalized, added Lamictal in the hospital (quit Lamictal cold turkey in 2014)

2014 Switched back to Celexa from Viibryd

2015 Quit Buspar cold turkey

2016 Cut down to 5 mg of Celexa (all seemingly without issues)

June-August 2017 tapered off Celexa

October 2017 Hospitalized for insomnia (quit sleeping entirely)

reinstated w/ Trintellix 5mg (stopped in 1/18) and 7.5 mg of Mirtazapine

Mirtazapine (in mgs) 2/18 5,  6/19 3.5, 9/25/19 3.2, 2/24/20 2.9, 3/2020 2.85, 6/20/20 2.5, 10/3/20 2.3, 11/30/20 2.1, 1/1/21 1.95 3/19/21 1.86 9/1/21 1.65 11/30 1.5 mgs 3/1/22 1.41 mgs 6/28/22 1.37 mgs 10/22 1.20 mgs

Daily supplements: 470 mgs magnesium, Miralax, 640 Omega complex, probiotic, testosterone 2 gms, progesterone 12.5 mgs

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10 hours ago, manymoretodays said:

 

Hi LiaJ, @LiaJ

I had moved your previous post over here to topic, and it does look like composter responded to your first post already. 

 

I too, got the Pfizer 2 dose vaccine back in March without any catastrophic reactions or results.   After the second dose, I might have gotten briefly thrown, fatigue and mild emotional distress.  It certainly wasn't catastrophic.

 

You can google the vaccines and find out the ingredients too.

 

And perhaps, you'll get more reassurance on this topic/thread too. 

I'm just about 64 now, without pre-existing conditions, and faced my fears, went and got the vaccine, and obviously have lived to tell the tale.  It was important to me to do so.  And although a bit scary, I did okay.  Honest.

 

Oh sweetie, best, and on into making a decision, either way, and reducing the health anxiety.

 

Love, peace, healing, and growth,

mmt

Hi MMT,

 

Thank you for your response and your encouraging words! It is so scary. I didn't expect this to be the outcome of the W/D experience, honestly, that now I would fear having a sinus infection that would require an antibiotic, or getting a vaccine, or any involvement with the medical industry and the extreme mistrust I've developed. It's pretty exhausting, and isolating, because no one else really gets it, other than people who have had the same experience. I really appreciate you responding so empathetically. My husband thinks I'm crazy. 

 

I'm glad to hear you had a good outcome and now are protected :) 

 

To facing our fears,

Lia

2005-2009 Various ADs and maybe some random Ativan, nothing long-term

2009 Started Celexa 10 mg

2012 Symptoms of depression worsened when I quit drinking, started a course of Viibryd (10 mg), Buspar (5 mg), Xanax

2013 Hospitalized, added Lamictal in the hospital (quit Lamictal cold turkey in 2014)

2014 Switched back to Celexa from Viibryd

2015 Quit Buspar cold turkey

2016 Cut down to 5 mg of Celexa (all seemingly without issues)

June-August 2017 tapered off Celexa

October 2017 Hospitalized for insomnia (quit sleeping entirely)

reinstated w/ Trintellix 5mg (stopped in 1/18) and 7.5 mg of Mirtazapine

Mirtazapine (in mgs) 2/18 5,  6/19 3.5, 9/25/19 3.2, 2/24/20 2.9, 3/2020 2.85, 6/20/20 2.5, 10/3/20 2.3, 11/30/20 2.1, 1/1/21 1.95 3/19/21 1.86 9/1/21 1.65 11/30 1.5 mgs 3/1/22 1.41 mgs 6/28/22 1.37 mgs 10/22 1.20 mgs

Daily supplements: 470 mgs magnesium, Miralax, 640 Omega complex, probiotic, testosterone 2 gms, progesterone 12.5 mgs

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On 6/22/2021 at 8:52 PM, HopeToHeal said:

I had both doses of Pfizer and definitely did NOT have anything remotely near a catastrophic reaction. A bit of arm soreness with both doses and some very mild fatigue and headache with the second. Most people I know have had the vaccine by now and none of them had a catastrophic reaction either.

Hi HopeToHeal,

 

I'm glad you had a positive experience! When you say "most people I know", do you mean people you know who have had a W/D experience, or just "most people?" It's encouraging to hear this kind of feedback, it gives me more courage to just get it done.

2005-2009 Various ADs and maybe some random Ativan, nothing long-term

2009 Started Celexa 10 mg

2012 Symptoms of depression worsened when I quit drinking, started a course of Viibryd (10 mg), Buspar (5 mg), Xanax

2013 Hospitalized, added Lamictal in the hospital (quit Lamictal cold turkey in 2014)

2014 Switched back to Celexa from Viibryd

2015 Quit Buspar cold turkey

2016 Cut down to 5 mg of Celexa (all seemingly without issues)

June-August 2017 tapered off Celexa

October 2017 Hospitalized for insomnia (quit sleeping entirely)

reinstated w/ Trintellix 5mg (stopped in 1/18) and 7.5 mg of Mirtazapine

Mirtazapine (in mgs) 2/18 5,  6/19 3.5, 9/25/19 3.2, 2/24/20 2.9, 3/2020 2.85, 6/20/20 2.5, 10/3/20 2.3, 11/30/20 2.1, 1/1/21 1.95 3/19/21 1.86 9/1/21 1.65 11/30 1.5 mgs 3/1/22 1.41 mgs 6/28/22 1.37 mgs 10/22 1.20 mgs

Daily supplements: 470 mgs magnesium, Miralax, 640 Omega complex, probiotic, testosterone 2 gms, progesterone 12.5 mgs

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4 hours ago, LiaJ said:

Hi MMT,

 

Thank you for your response and your encouraging words! It is so scary. I didn't expect this to be the outcome of the W/D experience, honestly, that now I would fear having a sinus infection that would require an antibiotic, or getting a vaccine, or any involvement with the medical industry and the extreme mistrust I've developed. It's pretty exhausting, and isolating, because no one else really gets it, other than people who have had the same experience. I really appreciate you responding so empathetically. My husband thinks I'm crazy. 

 

I'm glad to hear you had a good outcome and now are protected :) 

 

To facing our fears,

Lia

I had those same fears as well. I became hypersensitive to medications and supplements. Even Vitamin D! At my very worst I got a flu shot and had no issues.

When I got my Covid vaccine I certainly was in a spot of feeling much better and did not have any side effects related to their interaction.

 

I think for most of us the anxiety worrying about an interaction is worse than the shot itself. You know your body so definitely do what you are comfortable with, but I would try to take comfort in that it seems the majority here have done just fine getting the vaccine.

40 yo Male. Started Paxil about 15 years ago. 10 mg (pill weight .125 - .129 g). 5 yrs wanted less side effects, doctor took me off Paxil over couple week period and put me on Wellbutrin. Not good. Went back on Paxil. Relieved my symptoms, but didn't work as well and more side effects. Severe reaction between Paxil and Zomig Summer of 2012. Head was affected during warmer days (cloudiness, confusion, pressure). Began 10% withdrawal 10/24/12.

Withdrawel helped many symptoms, but also added side effects: nausea, dizziness, tiredness. Hyper-anxiety started January 2014.

Went through a 2 year period of de-realization (2016-2018).  Rarely any windows.  
Current dose: 0.00 as of 4/10/21.  Made a lot of progress in my withdrawal symptoms the last 2 years of my taper.  I think doing a liquid taper helped stabilize things on the lower doses.  A lot of my symptoms have reduced significantly.  Hoping for even more improvement now that I am off.
My thread: http://survivingantidepressants.org/index.php?/topic/8909-rusty1-paxil-withdrawal-help-and-advice-welcome/#entry150222

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So glad there is a whole thread about this. I have med-induced dystonia that never fully resolved and am terrified to get the vaccine should it worsen my dystonia. After all, if I never fully healed from med-induced dystonia in the first place, I'm so scared that it will get flared and stay flared forever if I get the COVID vaccine. I lived through this once, but I cannot live through dystonia that bad again. I can't. 

This whole thing has triggered my deep loathing of the doctor who messed me up with psych meds in the first place. I'd finally gotten to a place in my life where my days were no longer disrupted by seething hatred for her, where I could go without thinking about her anymore, but now that I have to be hesitant about something as important as a life-saving vaccine, all of my rage is spiked at how she ruined my life. 

I don't suppose anyone else here with med-induced dystonia has gotten the COVID vaccine?

Edited by WiggleIt

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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On 2/10/2021 at 8:15 AM, savinggrace said:

Hello,

 

I had my first dose of the Moderna vaccine 4 days ago and have felt like I am in withdrawal ever since. I had minimal side effects (sore arm, mild headache, nausea) but I am waking every hour at night with shocks and nightmares and general muscle rigidity. Has anyone noticed this?  Research on this is minimal and generally unrecognized. It is recommended to “talk to your physician” which is a joke to me. I wonder if this will settle down as the vaccine takes hold. I am just worried it will de-rail me for a long time. I really want to follow through with both injections but it is going to be extremely difficult to get the second one if these symptoms haven’t abated. Anyone else had this difficulty?  I have w/d symptoms to EVERYTHING I try that is new to me. I cannot tolerate baby doses of supplements I need. I appreciate any input. Thank you. 
 

Grace


Hi @savinggrace - Did your muscle rigidity ever improve after the vaccine? Because I already have dystonia from psych meds, things like muscle rigidity from the vaccine TERRIFY me.

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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On 6/15/2021 at 4:17 PM, UnfoldingSky said:

Wondering how many have had a, or both shots who had akathisia before which they had recovered from, and if anyone had it come back.  Also, is there anyone here who has a doctor who admitted they had had akathisia who had any info on the vaccine's potential to possibly make it reappear, who was advised one way or another to have it/not have it?  And anyone who has had tardive dyskinesia who recovered from it who has had the vaccine and if so did it come back?

 

And is there anyone who is dealing with autoimmune issues who has had it too, and if so did you get an AI flare. 

 

Thanks for any help!


Hi @UnfoldingSky! I've been gone for a long time but am back and have similar questions to yours. I, too, wonder about TD and the COVID vaccine. 

I hope you're well <3 

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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On 6/22/2021 at 4:34 PM, LiaJ said:

I don't know what to do about the COVID vaccine. I know no one here can give medical advice. I am nervous about contracting COVID now that life has "normalized" again. I've been avoiding the vaccine because of the possibility for a resurgence in WD symptoms. I had a terrible reaction to iodinated contrast dye last November, and since then have had a lot of anxiety about receiving any medical treatments at all.

 

I also don't want to catch COVID and risk the possibility of being intubated. I have otherwise excellent health status (other than W/D), and am getting better, but still am almost unreasonably terrified of any pharmaceutical. I really don't know what to do in this situation, and of course, for the reasons we all know, I can't have a conversation with my doctor about this.

 

Hi Lia,

How is your problem coming along?

Have You been able to "research" any doctors online that share concerns about the shots?

 

 Starting ds 2 (12.5 CR'S) = 25 MG PAXIL CR 1/21/15: 1 Pill + 10mg liquid (2 weeks) 2/4: 1 Pill + 9mg Lq (3 weeks) 2/25: 1 Pill + 8 mg lq (1 week) 3/4: 1 Pill + 6 mg lq (2 weeks) 3/18/15 1 Pill + 4 mg lq (2 weeks) 4/1/15 1 Pill + 3 mg lq (2 weeks) 4/14/15 1 Pill + 2 mg lq (2 weeks) 4/29/15 1Pill + 1 mg lq (16 days) 5/15/15 1 12.5 mg Pill ONLY (9 days) 5/24/15 12 mgs liquid (8 days) 6/1/15 11mg lq (12 days) 6/13/15 10 mg.  12/3/15 Drop from 8mg to 7.6 (24 days to) 12/27/15 7.2mgs 8/4/16 6.8mgs,  11/1/16 6.4mgs, 2/5/17 6 mgs  4/3/17 5.6mgs, 4/24/17 5.2mg, 6/13/17 4.8mgs, 9/20/17 4.4mgS, 11/23/17 4 mgs, 1/1/18 3.6 mgs, 2/15/18 3.2 mgs. 4/13/18 2.8mgs, 5/11/18 2.4mgs, 6/10/18 2.0 mgs, 8/4/18 1.6mgs,  9/27/18 1.2mgs, 12/24/18 0.8mg, 3/24/19 0.64 mg,(syringe change issue date?) 4/22/19 0.60 mg, 5/24/19 0.60 mg, 7/7/19 0.52 mgs, 8/4/19 0.44mgs, 11/4/19 0.36mgs, 2/1/20 0.28mgs, 3/1/20 0.24mgs (crash April 6) Compound started 6/28/21: 0.24mgs, 8/29/21: 0.22mgs, 10/31/21: 0.20mgs, 1/03/22: 0.18mgs, 3/5/22: 0.16mgs, 5/5/22: 0.14mgs.

 

Original Wellbutrin Dose: 6 months from 9/14 to 3/2015, 300 XL 3/15/15: Half to 150 XL ( severe symptoms started on day 12) 4/16/15: 125mg   for 20 days to: 5/6/15:   100mg  for  15 days to: 5/21/15    75mg  for  10 days to: 6/1/15:  56.25mg      13 days to: 6/13/15: 37.25mg    7 days to: 6/20/15  28.12mg   14 days to: 7/4/15  18.75mg, 7 days to: 7/11/15; RAISE BACK TO: 28.12 to 8/14/15: 18.75mg  20 days to :9/3/15 : 12.5mg, 8/4/16 9mg 1/9/17: 8.5mg 2/8/17 8mg, 3/9/17: 7.6  4/9/17  7.2  5/27/17 6.4 6/24/17 5.8, 8/1/17 5.0, 8/29/17 4.2mgs, 10/2/17 3.5mgs, 12/28/17 2.5mgs, 2/27/18 1.7mgs,  4/19/18 0.8 mgs, LAST DOSE: 6/11/18:  3 YEARS, 2 MONTHS, 27 DAYS...

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Have you all been following news about the worse new variant, Delta? It's even worse news and more contagious and more dangerous for unvaccinated folks, but, again, I still feel stuck and confused about the vaccine. If I didn't have dystonia, I think I'd get the vax, even if it threw me back into WD. It's the prospect of flaring the TD that I know I wouldn't be able to survive again. Sigh.

Anyone else got any insight? I appreciate all who've already posted here about their vaccine experience.

Am I correct in assuming that most on this SA site are still unvaxxed because of our WD complications?

Here are a couple of links about the Delta variant if anyone is curious:

https://www.cnbc.com/2021/06/25/delta-who-urges-fully-vaccinated-people-to-continue-to-wear-masks-as-variant-spreads.html 

and

https://www.nature.com/articles/d41586-021-01696-3 

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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On 6/24/2021 at 3:22 AM, LiaJ said:

Hi HopeToHeal,

 

I'm glad you had a positive experience! When you say "most people I know", do you mean people you know who have had a W/D experience, or just "most people?" It's encouraging to hear this kind of feedback, it gives me more courage to just get it done.

 

I did mean most people I know, although I do have a very close relative who went through substance withdrawal and detox (albeit alcohol, not SSRI) and he had no side effects or relapses at all from the vaccine. 

2014 & 2017 - 25mg sertraline for postpartum depression

Late May ‘20 - Early June ‘20: 7.5mg buspirone 2x/day (adverse reaction)

Mid-June ‘20 (six days total): 5mg escitalopram (adverse reaction)

currently taking: vitamin D, magnesium, omega 3, occasional melatonin.

no alcohol, no caffeine.

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11 hours ago, WiggleIt said:

Am I correct in assuming that most on this SA site are still unvaxxed because of our WD complications?

 

No, I wouldn't assume that. Many of us (myself included) chose to get the vaccine. 

 

It's a personal choice and some people who are severely ill from withdrawal and are able to quarantine may opt not to get it, but I wouldn't assume that withdrawal in and of itself is a reason to avoid it. 

 

Many people dealing with withdrawal and those of us well on the way to healing have chosen the vaccine. I go into work every day, so to me, it was important to receive the vaccine. 

 

 

 

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1 minute ago, Shep said:

It's a personal choice and some people who are severely ill from withdrawal and are able to quarantine may opt not to get it, but I wouldn't assume that withdrawal in and of itself is a reason to avoid it. 

Same here.  Even when I was in the worst of my WD, I got an annual flu shot.  I think being really sick during that time would have made WD that much worse.  My wife and I got our J&J vaccines a few weeks ago and other than feeling a bit wrung out for a few hours, we were fine.  With the Delta virus making the rounds, I wouldn't take the chance of forgoing the vaccine unless there was a compelling medical reason. Again, just my opinion. 

Tim C

Started Paxil for GAD in 1999

Unsuccessful taper attempt in 2006

Paxilprogress helped with a successful taper completed in 2009

Using therapy and CBT to manage my anxiety

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2 hours ago, Shep said:

 

No, I wouldn't assume that. Many of us (myself included) chose to get the vaccine. 

 

... I wouldn't assume that withdrawal in and of itself is a reason to avoid it. 

 


It's actually a huge relief to me to hear that many here are getting vaccinated, and I agree with you that WD isn't necessarily a reason to avoid it.

Like I wrote above, if I had survived WD without getting dystonia, I'd get the vaccine, even if it regressed me back into WD. I feel like I could survive most of WD again, but not a worsening of involuntary movements. Because I do still have med-induced dystonia, I've held back from the vaccine. Luckily, I am able to quarantine strictly, but Jesus... it'd be nice to leave my house every once in while without such complete terror of COVID :( Plus, the new Delta variant is nothing to mess with.

 

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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I’ve had both Pfizer shots.  The first one was March 26 and the second in mid May.  Not long after the first shot I noticed my anxiety was very high and I ended up in the hospital twice, once in April and then early May.  About two weeks after the second shot I was hospitalized again.   I can’t know for sure that the vaccine set me off, but I had a doctor visit today and he told me that it could have caused it.  That really throws me for a loop.  I can’t unvaccinate myself.  Some of my problems are certainly caused by meds.  It was only after my third hospitalization that the anhedonia and avolition have been so bad as to keep me in bed all day.  

Could it be the vaccine?  I’m so scared I’m permanently damaged.  I can only hope that time and getting off psych meds will help.

 

Introduction: Orbet: First post

on numerous psych meds going back to 2003

2020 sertaline for a few months, tried latuda for about a week, ct sertaline over concerns about serotonin syndrome

seroquel 100 and trazodone 50 continuing through 

2021 April seroquel increased to 200 mg, Trazodone increased to 100 mg,  a few days latuda before I stopped taking it.also, took low doses of haldol left over from an old script ending in April. May 2021

Doctor cut seroquel from 200 mg to 100 mg

trazodone raised from 100 mg to 150 mg

became suicidal, hospitalized for 6th time in two years

tried on vraylar, 2 days, haldol, 3 days, sent home, took latuda a couple of days,put on Prozac but stopped after two days due to heightened anxiety. Currently on: seroquel 100 mg, trazodone 150 mg, and Benadryl 50 mg at 12:00 am nightly, and hydroxyzine 100 mg x 3 I only take twice daily at 12:00 Pm and 6 pm.

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On 6/27/2021 at 9:18 PM, WiggleIt said:

Am I correct in assuming that most on this SA site are still unvaxxed because of our WD complications?

 

I wouldn't make that assumption.

 

I suppose it depends what each of us mean by "WD Complications". Then there is the question of whether a person is only temporarily delaying the shot if their in a bad wave or if they are choosing to not get the shot altogether. Most doctors I know do not recommend getting a shot if you are actively sick but wait until Your feeling better.

 

The problem is many non wd people are reporting "side effects" that really are not all that much different to wd episodes so it's kind of hard to know if looking at the experiences of that group can extrapolate over to a wd person. And in truth, even person to person inside the wd group it's hard to extrapolate since different meds affect different parts of the brain and body. There's so much we don't know as to WHY only a subset of us deal with these issues to begin with. 

 

23 hours ago, Orbet said:

 About two weeks after the second shot I was hospitalized again.   I can’t know for sure that the vaccine set me off, but I had a doctor visit today and he told me that it could have caused it.  That really throws me for a loop.  I can’t unvaccinate myself.  Some of my problems are certainly caused by meds.  It was only after my third hospitalization that the anhedonia and avolition have been so bad as to keep me in bed all day.  

Could it be the vaccine?

 

Alot of people are being hospitalized, if even for a short amount of time, within the first few weeks of the second vaccine. Everything from neurological to physical issues: bells palsy, heart issues, etc.  If Your suffering worsening symptoms You may wish to consider holding where You are in Your taper until Your feeling better. You may not be able to decipher if the symptoms are a worsening of wd and which are vaccine proper of perhaps a combination.

 

I wouldn't let the fact that it could be the shot upset you too much if you can help it.  You simply can't tell and worrying about it will just make the symptoms worse.  As you say, You can't unvaccinate Yourself at this point. We have upticks for all sorts of things like anti-biotics, etc. You made a decision based on the facts You had at the time, that's really all any of Us can do. 

 Starting ds 2 (12.5 CR'S) = 25 MG PAXIL CR 1/21/15: 1 Pill + 10mg liquid (2 weeks) 2/4: 1 Pill + 9mg Lq (3 weeks) 2/25: 1 Pill + 8 mg lq (1 week) 3/4: 1 Pill + 6 mg lq (2 weeks) 3/18/15 1 Pill + 4 mg lq (2 weeks) 4/1/15 1 Pill + 3 mg lq (2 weeks) 4/14/15 1 Pill + 2 mg lq (2 weeks) 4/29/15 1Pill + 1 mg lq (16 days) 5/15/15 1 12.5 mg Pill ONLY (9 days) 5/24/15 12 mgs liquid (8 days) 6/1/15 11mg lq (12 days) 6/13/15 10 mg.  12/3/15 Drop from 8mg to 7.6 (24 days to) 12/27/15 7.2mgs 8/4/16 6.8mgs,  11/1/16 6.4mgs, 2/5/17 6 mgs  4/3/17 5.6mgs, 4/24/17 5.2mg, 6/13/17 4.8mgs, 9/20/17 4.4mgS, 11/23/17 4 mgs, 1/1/18 3.6 mgs, 2/15/18 3.2 mgs. 4/13/18 2.8mgs, 5/11/18 2.4mgs, 6/10/18 2.0 mgs, 8/4/18 1.6mgs,  9/27/18 1.2mgs, 12/24/18 0.8mg, 3/24/19 0.64 mg,(syringe change issue date?) 4/22/19 0.60 mg, 5/24/19 0.60 mg, 7/7/19 0.52 mgs, 8/4/19 0.44mgs, 11/4/19 0.36mgs, 2/1/20 0.28mgs, 3/1/20 0.24mgs (crash April 6) Compound started 6/28/21: 0.24mgs, 8/29/21: 0.22mgs, 10/31/21: 0.20mgs, 1/03/22: 0.18mgs, 3/5/22: 0.16mgs, 5/5/22: 0.14mgs.

 

Original Wellbutrin Dose: 6 months from 9/14 to 3/2015, 300 XL 3/15/15: Half to 150 XL ( severe symptoms started on day 12) 4/16/15: 125mg   for 20 days to: 5/6/15:   100mg  for  15 days to: 5/21/15    75mg  for  10 days to: 6/1/15:  56.25mg      13 days to: 6/13/15: 37.25mg    7 days to: 6/20/15  28.12mg   14 days to: 7/4/15  18.75mg, 7 days to: 7/11/15; RAISE BACK TO: 28.12 to 8/14/15: 18.75mg  20 days to :9/3/15 : 12.5mg, 8/4/16 9mg 1/9/17: 8.5mg 2/8/17 8mg, 3/9/17: 7.6  4/9/17  7.2  5/27/17 6.4 6/24/17 5.8, 8/1/17 5.0, 8/29/17 4.2mgs, 10/2/17 3.5mgs, 12/28/17 2.5mgs, 2/27/18 1.7mgs,  4/19/18 0.8 mgs, LAST DOSE: 6/11/18:  3 YEARS, 2 MONTHS, 27 DAYS...

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4 minutes ago, Colonial said:

I wouldn't let the fact that it could be the shot upset you too much if you can help it.  You simply can't tell and worrying about it will just make the symptoms worse.

Yup! I also think this is a case of media-induced symptomology.  We keep hearing stories about side-effects or reactions in certain age groups or populations.  The power of suggestion is very strong.  After I got my jab, it was as if the anxious part of me kept saying "OK, there has to be some kind of reaction.  What'll mine be?!?"  Once I recognized that, my side effects really diminished. 

Tim C

Started Paxil for GAD in 1999

Unsuccessful taper attempt in 2006

Paxilprogress helped with a successful taper completed in 2009

Using therapy and CBT to manage my anxiety

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That’s what’s so maddening about it.  I have no way to tell if it has anything to do with the shot other than the suspicious timing.  So, I’m trying to find information about whether other people have suffered psych symptoms.  I’ve been holding for about a month after being tried on 4 drugs at the end of May.  My last reduction was cutting Seroquel from 200 to 100 on my doctor’s advice.  More about him later.  I don’t know how to figure out what is causing my present symptoms.  It’s been a month and a half since my second shot.

 

Introduction: Orbet: First post

on numerous psych meds going back to 2003

2020 sertaline for a few months, tried latuda for about a week, ct sertaline over concerns about serotonin syndrome

seroquel 100 and trazodone 50 continuing through 

2021 April seroquel increased to 200 mg, Trazodone increased to 100 mg,  a few days latuda before I stopped taking it.also, took low doses of haldol left over from an old script ending in April. May 2021

Doctor cut seroquel from 200 mg to 100 mg

trazodone raised from 100 mg to 150 mg

became suicidal, hospitalized for 6th time in two years

tried on vraylar, 2 days, haldol, 3 days, sent home, took latuda a couple of days,put on Prozac but stopped after two days due to heightened anxiety. Currently on: seroquel 100 mg, trazodone 150 mg, and Benadryl 50 mg at 12:00 am nightly, and hydroxyzine 100 mg x 3 I only take twice daily at 12:00 Pm and 6 pm.

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55 minutes ago, mstimc said:

After I got my jab, it was as if the anxious part of me kept saying "OK, there has to be some kind of reaction.  What'll mine be?!?"  Once I recognized that, my side effects really diminished. 

 

So wise, so wise.

 

And the reasons people are having reactions may NOT apply to everyone.

Were they on a certain medication?

Were they diabetic?

Can all the blood clotting be traced back to a certain high risk issue? Etc.

 

Second guessing Ourselves into symptoms after the fact is not productive.

If You have difficulty, frame it in a positive light of what it may have saved You FROM.

 

I guess the most important thing is, whether You decide to get the shot or not, is not to decide out of fear.

If You make Your decision rationally, then You can accept whatever outcome with less doubt and guilt.

 

 

 Starting ds 2 (12.5 CR'S) = 25 MG PAXIL CR 1/21/15: 1 Pill + 10mg liquid (2 weeks) 2/4: 1 Pill + 9mg Lq (3 weeks) 2/25: 1 Pill + 8 mg lq (1 week) 3/4: 1 Pill + 6 mg lq (2 weeks) 3/18/15 1 Pill + 4 mg lq (2 weeks) 4/1/15 1 Pill + 3 mg lq (2 weeks) 4/14/15 1 Pill + 2 mg lq (2 weeks) 4/29/15 1Pill + 1 mg lq (16 days) 5/15/15 1 12.5 mg Pill ONLY (9 days) 5/24/15 12 mgs liquid (8 days) 6/1/15 11mg lq (12 days) 6/13/15 10 mg.  12/3/15 Drop from 8mg to 7.6 (24 days to) 12/27/15 7.2mgs 8/4/16 6.8mgs,  11/1/16 6.4mgs, 2/5/17 6 mgs  4/3/17 5.6mgs, 4/24/17 5.2mg, 6/13/17 4.8mgs, 9/20/17 4.4mgS, 11/23/17 4 mgs, 1/1/18 3.6 mgs, 2/15/18 3.2 mgs. 4/13/18 2.8mgs, 5/11/18 2.4mgs, 6/10/18 2.0 mgs, 8/4/18 1.6mgs,  9/27/18 1.2mgs, 12/24/18 0.8mg, 3/24/19 0.64 mg,(syringe change issue date?) 4/22/19 0.60 mg, 5/24/19 0.60 mg, 7/7/19 0.52 mgs, 8/4/19 0.44mgs, 11/4/19 0.36mgs, 2/1/20 0.28mgs, 3/1/20 0.24mgs (crash April 6) Compound started 6/28/21: 0.24mgs, 8/29/21: 0.22mgs, 10/31/21: 0.20mgs, 1/03/22: 0.18mgs, 3/5/22: 0.16mgs, 5/5/22: 0.14mgs.

 

Original Wellbutrin Dose: 6 months from 9/14 to 3/2015, 300 XL 3/15/15: Half to 150 XL ( severe symptoms started on day 12) 4/16/15: 125mg   for 20 days to: 5/6/15:   100mg  for  15 days to: 5/21/15    75mg  for  10 days to: 6/1/15:  56.25mg      13 days to: 6/13/15: 37.25mg    7 days to: 6/20/15  28.12mg   14 days to: 7/4/15  18.75mg, 7 days to: 7/11/15; RAISE BACK TO: 28.12 to 8/14/15: 18.75mg  20 days to :9/3/15 : 12.5mg, 8/4/16 9mg 1/9/17: 8.5mg 2/8/17 8mg, 3/9/17: 7.6  4/9/17  7.2  5/27/17 6.4 6/24/17 5.8, 8/1/17 5.0, 8/29/17 4.2mgs, 10/2/17 3.5mgs, 12/28/17 2.5mgs, 2/27/18 1.7mgs,  4/19/18 0.8 mgs, LAST DOSE: 6/11/18:  3 YEARS, 2 MONTHS, 27 DAYS...

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Anyway, my psychiatrist just might be down the rabbit hole.  All he wanted to talk about during our visit yesterday was antivaxxer talking points.  He said he was glad I was alive, because lots of people have died from the vaccine.  He went on about how the death rate isn’t enough to justify taking an experimental vaccine and he thinks the death toll is exaggerated by calling non covid deaths covid deaths.  He was really looking and sounding downright conspiratorial.  I suspect he may be a far right nut.  But, he told me my symptoms this spring could well be caused by the vaccine and it’s systemic effects.  

I’ve made a report to the government agency that keeps track of adverse vaccine events on his advice about a month ago, but hadn’t really thought much more about it until yesterday.

What am I to make of this?  

Is he right, is he a nut?  He thinks the powers that be are suppressing the truth about hydroxychloroquine, which he says is actually an effective treatment.  I think I need to find another doctor, though I have no idea how I’m going to do that.  Anyway, there’s at least one psychiatrist who thinks the vaccine could cause psych symptoms, for whatever that’s worth.

 

Introduction: Orbet: First post

on numerous psych meds going back to 2003

2020 sertaline for a few months, tried latuda for about a week, ct sertaline over concerns about serotonin syndrome

seroquel 100 and trazodone 50 continuing through 

2021 April seroquel increased to 200 mg, Trazodone increased to 100 mg,  a few days latuda before I stopped taking it.also, took low doses of haldol left over from an old script ending in April. May 2021

Doctor cut seroquel from 200 mg to 100 mg

trazodone raised from 100 mg to 150 mg

became suicidal, hospitalized for 6th time in two years

tried on vraylar, 2 days, haldol, 3 days, sent home, took latuda a couple of days,put on Prozac but stopped after two days due to heightened anxiety. Currently on: seroquel 100 mg, trazodone 150 mg, and Benadryl 50 mg at 12:00 am nightly, and hydroxyzine 100 mg x 3 I only take twice daily at 12:00 Pm and 6 pm.

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23 minutes ago, Orbet said:

He went on about how the death rate isn’t enough to justify taking an experimental vaccine


After my psych med and WD experience, yes, I've become more cautious about meds, vaccines, etc., but I've done the hard work to apply research and rational thought so that I didn't become a ball of fear just because something derives from Western medicine.
 
What I've seen firsthand among the scores of vaccinated people I know and what I've slaved to read about vaccine reactions does not support any claims that this COVID vaccine poses any more danger than long-accepted, known-to-be-safe vaccines do. That doesn't mean there are NO reactions, but it does mean that I don't see anything that I feel justifies pausing the vaccine's disrtibution.

What does alarm me is the rate of contagion, death, and hospitalizations from COVID. Those numbers are not comparable to the flu. They are undeniably higher.

Is your doc against all meds all the time? 

Edited by WiggleIt

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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4 minutes ago, WiggleIt said:


After my psych med and WD experience, yes, I've become more cautious about meds, vaccines, etc., but I've done the hard work to apply research and rational thought so that I didn't become a ball of fear just because something derives from Western medicine.
 
What I've seen firsthand among the scores of vaccinated people I know and what I've slaved to read about vaccine reactions does not support any claims that this COVID vaccine poses any more danger than long-accepted, known-to-be-safe vaccines do. That doesn't mean there are NO reactions, but it does mean that I don't see anything that I feel justifies pausing the vaccine's disrtibution.

What does alarm me is the rate of contagion, death, and hospitalizations from COVID. Those numbers are not comparable to the flu. They are undeniably higher.

Is your doc against all meds all the time? 

Oh, no, he has no problem prescribing psych meds in ways that seem crazy based on what I’m learning from this site.  He clearly doesn’t understand tapering or withdrawal, as he cut me from 200 to 100 mg seroquel in May and yesterday cut it again to 50 mg.  As far as the vaccine goes, I’m stuck with it.  I’m trying to find whatever information I can as to whether other people have experienced psych symptoms they relate to it and hopefully whether anything can be done about it, which I doubt.

 

Introduction: Orbet: First post

on numerous psych meds going back to 2003

2020 sertaline for a few months, tried latuda for about a week, ct sertaline over concerns about serotonin syndrome

seroquel 100 and trazodone 50 continuing through 

2021 April seroquel increased to 200 mg, Trazodone increased to 100 mg,  a few days latuda before I stopped taking it.also, took low doses of haldol left over from an old script ending in April. May 2021

Doctor cut seroquel from 200 mg to 100 mg

trazodone raised from 100 mg to 150 mg

became suicidal, hospitalized for 6th time in two years

tried on vraylar, 2 days, haldol, 3 days, sent home, took latuda a couple of days,put on Prozac but stopped after two days due to heightened anxiety. Currently on: seroquel 100 mg, trazodone 150 mg, and Benadryl 50 mg at 12:00 am nightly, and hydroxyzine 100 mg x 3 I only take twice daily at 12:00 Pm and 6 pm.

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