LostRunner Posted April 13, 2021 Author Share Posted April 13, 2021 thank you @Longroadhome hope you're doing okay yourself! @TotallylostSomeone who is also lost! I know how awful you must feel! The regret is strong I know. I still cant believe I took it either. i hope you get some relief soon. its hard as we don't know when that will be, but symptoms do change and the intensity lessens. You won't feel this bad forever. 1 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Longroadhome Posted April 13, 2021 Share Posted April 13, 2021 @LostRunner theres a success story on Bloom in Wellness site by someone who had an adverse reaction to AD only taken for a day. and she recovered. please read it if you can not sure it’s assessable to non members 1 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
LostRunner Posted April 13, 2021 Author Share Posted April 13, 2021 Ah yes I know the story you're talking about thanks @Longroadhome I have listened to it a few times. Unbelievable that it was just one pill. Thank god for success stories! Like everyone else, I love listening to them/reading them! 1 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Totallylost Posted April 13, 2021 Share Posted April 13, 2021 23 minutes ago, LostRunner said: thank you @Longroadhome hope you're doing okay yourself! @TotallylostSomeone who is also lost! I know how awful you must feel! The regret is strong I know. I still cant believe I took it either. i hope you get some relief soon. its hard as we don't know when that will be, but symptoms do change and the intensity lessens. You won't feel this bad forever. Thank you, you have the right attitude it has to get better in time 1 10 days Citalopram c/t 7 days buspirone c/t 5 days trazodone c/t 2 weeks lorazepam c/t started in January now off work 3 months Stomach issues weakness in legs feeling of dread all day cant sleep barely eating no appetite fever on and off Link to comment
Phoenixmama Posted April 14, 2021 Share Posted April 14, 2021 i would like to read that success story on bloom , is there a way you can share the link please , i am too a short timer who withdraw has got a hold of 2021: started celexa 10mg feb 2nd feb 25th took my last 10g; feb 26th 5mg; feb 27th 5mg; feb 28th 2021 cold turkey currently taking mag Link to comment
keogh08 Posted April 14, 2021 Share Posted April 14, 2021 @Longroadhome hi would you happen to know roughly how long recovery took of the person on Baylissas site? I used to be a member but the stories dont seem to mention the timeline for recovery. Thanks Citalopram 20mg september 23 2019 - 29th September 2019 Link to comment
Longroadhome Posted April 15, 2021 Share Posted April 15, 2021 Hi there @keogh08 the adverse reaction success story after taking one tablet . It took over a year before she started to have better days regarding anxiety. And gradual progress in other areas from there. But as you say very sketchy as Baylissa says it doesn’t matter how long a person is in WD only that eventually all recover. She doesn’t want us to get hung up on timelines which is understandable. the site is baylissa.com for those not aware of the Bloom in wellness website. Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
LostRunner Posted May 14, 2021 Author Share Posted May 14, 2021 15 month update 15 months since my severe adverse reaction to Citalopram - not much positive to report. I hoped that I'd be a lot better by now and feeling hopeful but I'm not. Taking that drug for 7 days has completely destroyed my life. I still cant believe it. My body feels broken beyond repair. SYMPTOMS: I have vibrations in my spine 24/7, heavy spine, burning, tingling, weak, uncoordinated legs, heavy limbs, numbness, raynaud's/bad circulation, brain fog, teeth chattering 24/7, feel like I could black out or have a stroke at any point, blurry vision, bad sleep, popping joints, pulsing feelings in my chest. I had none of these symptoms prior to taking Citalopram. It's still torture everyday and I don't have windows. My nervous system is certainly damaged and I'm doubtful that it will be able to recover. Everyday I wonder how I'm going to live the rest of my life like this, 15 months already feels way too long. I have not worked since this happened and can feel life just passing me by. How do I come to terms with accepting such a profound neurological injury and all the grief that comes along with it? I'm just feeling completely overwhelmed and devastated. 1 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Longroadhome Posted May 14, 2021 Share Posted May 14, 2021 Hi @LostRunner what improvements have you had ? Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
LostRunner Posted May 14, 2021 Author Share Posted May 14, 2021 hi @Longroadhome it seems like very little has improved. I no longer pace and probably look more 'normal' but internally its all a complete mess still. just feel all mangled. hope you're doing okay! 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
MrMiyagi Posted May 14, 2021 Share Posted May 14, 2021 You will get better do not lose hope you can turn a corner at any moment as hard as it is to belive recovery will happen 🙏 1 2001-2019 Effexor XR 150mg Cross to Zoloft 100mg. 2003-2004 CT Effexor XR 150 09/18/2020 Zoloft 100mg CT Switch Paxil 20mg /Valium 10mg 2020 Paxil 20mg /Valium 10mg/Gabapentin 900mg. 2021 Paxil 20mg /Valium 6mg /Gabapentin 600mg. Currently: 04/14/2022 Paxil 20mg to 15mg 25% reduction/Valium 3mg/Gabapentin 900mg/Fludrocortisone .01mg Paxil: Tablet/Liquid Switch 10% Monthly Drops 5/16 Paxil Liquid 7.4ml/ Valium 3mg/ Gabapentin 900mg, 6/1 Paxil Liquid 6.66ml/ Valium 3mg/ Gabapentin 900mg 6/18 "Switch back to tablets" paxil 10mg+1.66ml/Valium 3mg/Gabapentin 900mg Supplements: Fish Oil, Melatonin 1.5mg, Luracidin. "Slow Steady Stable" 💚 Link to comment
Longroadhome Posted May 14, 2021 Share Posted May 14, 2021 5 hours ago, LostRunner said: hi @Longroadhome it seems like very little has improved. I no longer pace and probably look more 'normal' but internally its all a complete mess still. just feel all mangled. hope you're doing okay! You WILL get better. There is not one person with an adverse reaction, given time, that has not made it to recovery. Why will you be any different? I know how you feel when in the throes it’s impossible to think our body will ever find peace again. That’s another symptom of WD. Ruminating. Yes it’s so unfair that this has happened to you. One week on a drug and 15 months later still very ill. It’s not fair on anybody to have to suffer so much from a prescription drug. But we are in this situation and we have to accept the seemingly impossible task of facing yet another day. Day after day. But it’s the only way through. You have been very brave Lostrunner. Continue to be so because you will get your reward. Recovery. keep going. So many have made it before us. One day we too will be able to send a message to others suffering. And that message will be that we made it through to recovery x 5 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
LostRunner Posted May 14, 2021 Author Share Posted May 14, 2021 Thank you @Longroadhome you're so kind to offer encouragement! I worry because I had seizures on the medication and I had terrible burning and electric shocks down my spine and since then it has been almost unbearable and is so weak. I haven't seen this in others. Thank you I know its the only way through, just feels impossible. 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Nomansland Posted May 15, 2021 Share Posted May 15, 2021 5 hours ago, Longroadhome said: But we are in this situation and we have to accept the seemingly impossible task of facing yet another day. Day after day. But it’s the only way through. You have been very brave Lostrunner. Continue to be so because you will get your reward. Recovery. keep going. So many have made it before us. One day we too will be able to send a message to others suffering. And that message will be that we made it through to recovery x Hello @Longroadhome, this is sooo true! Thank you, needed that today. Wish both of you a lot of healing. Greetings ----------------------------------------------------------------------------------------------------------------------------------- 2021 IMPORTANT WITHDRAWAL SURVEY, PLEASE PARTICIPATE: https://uelpsych.eu.qualtrics.com/jfe/form/SV_0AR9IsQ61jsiXBk 2022 IMPORTANT WITHDRAWAL SURVEY, PLEASE PARTICIPATE: https://uelpsych.eu.qualtrics.com/jfe/form/SV_0AR9IsQ61jsiXBk non-native speaker of english 2020: 3-March -> started Mirtazapine 15mg; 3-March to 6-April -> approx. cutting to 0 mg; 6-April to 20-April -> ~ 7,5 mg; 21-April to 31-April -> 15 mg; 1-May to 13-May -> ~ 10 mg (approx.); 15-May to 19-July -> 15 mg (psychosomatic clinic) 19-July -> started taper (scale and file) 14 mg (-6,6%); 08-August -> 12 mg (-14,3 %); 27-August -> 10 mg (-16,6 %); 15-September -> 8 mg (-20 %, bad idea, heavy WD); 23-September -> 10.2 mg (+20 %, 102 mgpw) 2021: 12-April to 12-May -> crossover from solid pill to DIY liquid (water only), 10.2 mg, not stable; 10-September -> back to crushing and weighing, still 10.2 mg (102 mgpw) 2022: 13-March -> changed to DIY liquid with suspension vehicle, 10.2 mg Supplements: 1 x ~125 mg magnesiumbiglycinate before bed, low histamine diet Link to comment
HopefulDawn Posted May 15, 2021 Share Posted May 15, 2021 I had a movement issue after taking an SSRI short term though it is a bit different to yours. Sometimes when I walk and move I would freeze in place, i'd feel stiff or I would fold over like i'm falling but I wouldn't actually fall and it would be difficult to get back up again because sometimes my body seemed not to respond to what I wanted. Stress made it worse but it was one of the earliest issues I had and went away the soonest. Sorry that you are still having problems with your back and walking and everything. Perhaps trying to fight against it and getting more upset about it would actually make the issue feel worse? idk though just my random thought. I say that because when I was really upset and worried about my symptoms and feeling like I would never get better sometimes it made my symptoms feel worse to me and was like a circle because they felt worse and it reinforced the thoughts that i'd not improve. Feel free to tell me if i'm telling rubbish though January 2018 - 50mg sertraline for only 2 days, had adverse reaction. On 0 psych drugs now. Took a very long time for symptoms to go away, got better mentally 100% in April 2020. Turns out also had low vitamin d, low calcium and low thyroid in August 2020. Treated with colecalciferol and now all physical symptoms gone. Possibly overlap between this issue & sertraline symptoms? May 2021 Still taking colecalciferol, all physical symptoms gone. Unsure if this will return if I stop vit D for long time ? Now consider myself fully healed. Other medication: 5mg certirizine for allergic rhinitis once a day or when needed, cut down from 10mg just in case that was causing issue too since i've taken for over 8 years now. FULLY RECOVERED NOW 🙂 Link to comment
LostRunner Posted May 16, 2021 Author Share Posted May 16, 2021 Hi @HopefulDawn I'm glad to see you feel recovered now, that really is excellent! Looking forward to read your success story! I don't know, everyone is effected differently by these drugs so it's hard to say how each person should feel. I don't think that I fight against my symptoms, they're just there. It is obviously distressing and worrisome but I do distract as much as possible. But overall I think it's a perfectly normal thing to find this upsetting and to allow myself the space to be upset about it. Other people might be different but for me it doesn't change the intensity of the symptoms. 1 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
LostRunner Posted June 30, 2021 Author Share Posted June 30, 2021 Thank you @GVR91 - right back at you! That's a great idea. We have to just keep going xx 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Lastisland Posted August 18, 2021 Share Posted August 18, 2021 One year passed today after severe adverse reaction to lexapro. Cant believe I am still breathing. What i went through the whole year is unimaginable. Ever second was an extreme torture. Every moment a fierce battle of survival. Thank God this month got that ages and ages long sought out break from constant terror and other innumerable insane symptoms. Have resumed my job again. Started working part time again as well. Never thougth I would be able to get back to life. There is light at the end of tunnel. Keep going. 3 December 2008, lexapro 5mg one pill (adverse reaction) January 2020, paxil 25 mg 5 pills (adverse reaction) Febryary-march 2020, lexapro 10 mg March-July 2020, tapered lexapro from 10mg to 2mg July 2020 updosed lexapro to 5mg (immediate serotonin syndrome) August 2020 holding lexapro at 0.5 mg Link to comment
Aurorax Posted November 26, 2021 Share Posted November 26, 2021 Hi @LostRunner! How are you doing? Aurorax 2001 Januari-May: Paxil 20 mg 2001 Oktober-December Xanax 1 mg, 0 to 4 pills/day (no wd from quitting Xanax) 2002-2003 Paxil 20 mg, tries to taper but reinstates 2004 Tries to come off Paxil, reinstates after 5 months off 2005 Paxil 30 mg 2006 to end of 2007: Paxil 15-20 mg, tries to taper but reinstates 2007, december: Increases to 30 mg but Paxil is no longer ”working” 2008 Januari to september: Tapering from 30 mg to 10 mg. 2008 September to december: 10 mg to 5 mg 2009 Januari to end of april: 5 mg to 0 mg. 2009 march to januari 2010: Various sleeping pills: Propiomazine and Promethazine for a few days, Alimemazine on and off for months. No benzo. 2010, January until now: 100% drug free. Link to comment
Longroadhome Posted December 23, 2021 Share Posted December 23, 2021 @LostRunner Just checking in how are you doing ? Hope you have a peaceful Christmas and more recovery in 2022. Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Longroadhome Posted February 27, 2022 Share Posted February 27, 2022 @LostRunner how are you ? Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Longroadhome Posted February 27, 2022 Share Posted February 27, 2022 Just now, Longroadhome said: @LostRunner how are you ? Are you better now is this why you are not answering . I hope so? Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Lastisland Posted February 27, 2022 Share Posted February 27, 2022 I hope she is doing fine as well. Because as I speak of myself I had the same adverse reaction and same sympyoms like the Lostrunner but I am now 100% back to normal and living a happy life after 2 years of unspeakable mental torture agony hopelesness, bed ridden non existance trauma, 24/7 suicidal ideation, and 100s of dreadful symptoms which I still cant belive I survived. Healing to all. I can understand how formidable it is to endure all this. 2 December 2008, lexapro 5mg one pill (adverse reaction) January 2020, paxil 25 mg 5 pills (adverse reaction) Febryary-march 2020, lexapro 10 mg March-July 2020, tapered lexapro from 10mg to 2mg July 2020 updosed lexapro to 5mg (immediate serotonin syndrome) August 2020 holding lexapro at 0.5 mg Link to comment
keogh08 Posted February 27, 2022 Share Posted February 27, 2022 @Lastisland I'm so happy you recovered. I'm 26 months out for severe advser reaction and I am still dealing with symptoms. Was your recovery gradual. Citalopram 20mg september 23 2019 - 29th September 2019 Link to comment
Lastisland Posted February 27, 2022 Share Posted February 27, 2022 Stay positive. It will definitely recover. There was time when I became dead sure that I am not gonna heal ever. I was the most difficult periold because it already had lapsed around 2 years. In these 2 years i just recovered 50%. Yes the recovery was very very gradual and subtle. A slight improvement every month and that too not so noticable. But the major recovery ensued in just last 2 months. A sudden improvement in every symptom and all dreadful symptoms vanished kind of suddenly. Now I even dont remember that once I went through hell. That seems just a scary dream. If you have come that much long then i assure you that you are very close to healing. And it will happen in a speedy way at the end. Try to take healthy choices in eating. It does make difference though in a subtle way. Stay strong. 1 December 2008, lexapro 5mg one pill (adverse reaction) January 2020, paxil 25 mg 5 pills (adverse reaction) Febryary-march 2020, lexapro 10 mg March-July 2020, tapered lexapro from 10mg to 2mg July 2020 updosed lexapro to 5mg (immediate serotonin syndrome) August 2020 holding lexapro at 0.5 mg Link to comment
LostRunner Posted February 28, 2022 Author Share Posted February 28, 2022 On 2/27/2022 at 12:49 PM, Longroadhome said: Are you better now is this why you are not answering . I hope so? Hi @Longroadhome Thanks for checking in on me and sorry I haven't responded till now. I'm doing better than when I last posted but definitely not recovered. I still have constant, very uncomfortable physical symptoms unfortunately. I haven't posted as I don't really know what to say. It is the slowest 'recovery' and I still don't know if this is my new normal or at what point my body has done all it can to recover. This month marked 2 years since my adverse reaction. Unbelievable! How are you doing? Glad you are doing better @Lastisland and @keogh08we're in a similar boat it seems! hope you find some more healing soon. 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Longroadhome Posted February 28, 2022 Share Posted February 28, 2022 3 minutes ago, LostRunner said: Hi @Longroadhome Thanks for checking in on me and sorry I haven't responded till now. I'm doing better than when I last posted but definitely not recovered. I still have constant, very uncomfortable physical symptoms unfortunately. I haven't posted as I don't really know what to say. It is the slowest 'recovery' and I still don't know if this is my new normal or at what point my body has done all it can to recover. This month marked 2 years since my adverse reaction. Unbelievable! How are you doing? Glad you are doing better @Lastisland and @keogh08we're in a similar boat it seems! hope you find some more healing soon. That’s such good news that you are seeing improvements . How is your walking ? What has improved ? im coming to the end of my taper and symptoms are intense I’m afraid . Some days more manageable than others. Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
LostRunner Posted March 13, 2022 Author Share Posted March 13, 2022 my walking has improved since last year. its a case of looking back every few months and realising that I have made some kind of improvement even if it's small - that's what keeps me going! sorry to hear your symptoms are intense, hope you get relief soon! seems like time is the only answer 1 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
sunnysideup69 Posted March 21, 2022 Share Posted March 21, 2022 Hey @LostRunner, Long time no speak. That's great news re your walking improving! I'm so pleased for you. You are absolutely right: time is the major factor in recovery. 1 January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg March 2016 used MDMA triggered setback April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg May 2018 used MDMA triggered setback June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg July/ August 2018 7.5mg, then 10mg June 2019 updosed to 20mg Citalopram August 2019 cold switch to Venlafaxine 75mg XR Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped. Link to comment
StarShopping87 Posted March 29, 2022 Share Posted March 29, 2022 Hello, I just came across your thread. I had a ADR back in jan.. 2 months out and really struggling. I’m glad to see you are improving even if it is just baby steps. Immediate adverse reaction lexapro 5mg 3x 1/27/22, 1/28/22, 1/30/22 Buspirone 7mg 1x 1/27/22 last dose 1/30/2022 Link to comment
1WishToHeal Posted October 21, 2022 Share Posted October 21, 2022 How are you LR? Fluoxetine 10mg 2 months 2019 Paroxetine 10mg 8 months 2020. tapered in 30 days, severe withdrawal symptoms when i tapered (30day-taper) Paroxetine 10mg re-instatement for 2 months 2020, adverse reaction that crippled me completely. DEC 2020 - Drug free DEC 2021 - 1 year later doing terrible and still deteriorating DEC 2022 - Fought for my life 2 years long only to end up worse than ever. Utterly disabled and torturous inhumane pain - intensity 20 on a scale of 10... 24/7 hell. Lost my health, my job, my friends, my marriage and i can go on to the greed of pharmaceutical companies. 31 year old male, before this i was an athletic runner that ran 10km in 50minutes, now i can't barely walk or prepare food because my legs and body affected badly. Housebound. improvements, only psychological symptoms improved. Physically worsening over the months. Especially my ability to walk, Now use wheelchair inside the house, on disability pay, household care. Body burns like hell, neuropathy from head to toe. I guess i won the sufferlottery. Please never re-instate. I don't know what exactly happened but it's definitely no withdrawal. Link to comment
LostRunner Posted November 2, 2022 Author Share Posted November 2, 2022 Hi, @1WishToHeal thanks for asking. i'm still very much trying to recover, i hope you are ok An update from me - i'm still on the very long road to recovery. Whilst I am in no way near the sheer hell of the first 18 months, I still have symptoms that significantly impact my life every day. It makes me really sad (and shocked) to think it's been 32 months since the reaction and I'm still quite uncomfortable in my body. My nervous system still vibrates 24/7, i have tinnitus & my spine still pulses all the time, which makes me feel generally weak and my legs feel shaky when I walk and stand. These are my most worrying and debilitating symptoms. I'm lucky in that I've been able to work for the past year. It is hard to concentrate with all the symptoms going on. I don't have very good resilience to stress and can feel exhausted from not very much. I do feel like my body has aged by 50 years, which does get me down. I can't remember what it's like to feel normal, but I'd love for my nervous system to calm down one day. I have no idea if that's possible or not. It feels overwhelming to think i might be stuck like this, and that i've recovered all i can. I try to take it a day at a time as much as possible and not think too far ahead. Sending love to anyone struggling right now x 3 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
Mentor mstimc Posted November 2, 2022 Mentor Share Posted November 2, 2022 On 3/13/2022 at 8:12 AM, LostRunner said: my walking has improved since last year. its a case of looking back every few months and realising that I have made some kind of improvement even if it's small - that's what keeps me going! Lostrunner it may not seem like it but you are making progress--see your post from March. Recovery takes place over time--I wish it was a nice steady daily path but its not. I never thought my WD would end and it seemed I wasn't improving as fast as others. Its frustrating and frightening to think we're stuck in this nightmare. But we're not. Anyone can recover. If I knew the secret to quick recovery, I'd be the first to share it, but unfortunately it takes time, acceptance and patience. You are stronger than you think--you will recover! 1 Tim C Started Paxil for GAD in 1999 Unsuccessful taper attempt in 2006 Paxilprogress helped with a successful taper completed in 2009 Using therapy and CBT to manage my anxiety Link to comment
LostRunner Posted November 2, 2022 Author Share Posted November 2, 2022 Thank you for your encouraging post @mstimc 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
1WishToHeal Posted November 4, 2022 Share Posted November 4, 2022 On 11/2/2022 at 7:54 PM, LostRunner said: It makes me really sad (and shocked) to think it's been 32 months since the reaction and I'm still quite uncomfortable in my body. My nervous system still vibrates 24/7, i have tinnitus & my spine still pulses all the time, which makes me feel generally weak and my legs feel shaky when I walk and stand. I'm sorry to hear that it's still troubling. It looks like most people that had an adverse reaction have a rough time 😕 Me too struggling every hour, still no improvement physically, only mentally. But physically i can't walk, buzzing CNS, neuropathy etc.. I'm 22 months out It detoriated neurologically over the months for me. But the head cleared up at least. I followed you from the beginning and will keep doing. I wish you all the best Lostrunner! Stay strong. I can relate to your name! I liked to do 10km joggings but that was a long time ago I would love to do even groceries by now. At least good that you can manage to work a bit, even when it's troubling. It sounds like a bit of progress... Much love 1wish Fluoxetine 10mg 2 months 2019 Paroxetine 10mg 8 months 2020. tapered in 30 days, severe withdrawal symptoms when i tapered (30day-taper) Paroxetine 10mg re-instatement for 2 months 2020, adverse reaction that crippled me completely. DEC 2020 - Drug free DEC 2021 - 1 year later doing terrible and still deteriorating DEC 2022 - Fought for my life 2 years long only to end up worse than ever. Utterly disabled and torturous inhumane pain - intensity 20 on a scale of 10... 24/7 hell. Lost my health, my job, my friends, my marriage and i can go on to the greed of pharmaceutical companies. 31 year old male, before this i was an athletic runner that ran 10km in 50minutes, now i can't barely walk or prepare food because my legs and body affected badly. Housebound. improvements, only psychological symptoms improved. Physically worsening over the months. Especially my ability to walk, Now use wheelchair inside the house, on disability pay, household care. Body burns like hell, neuropathy from head to toe. I guess i won the sufferlottery. Please never re-instate. I don't know what exactly happened but it's definitely no withdrawal. Link to comment
LostRunner Posted November 5, 2022 Author Share Posted November 5, 2022 Hi @1WishToHeal, so sorry to hear you're still struggling so horribly. I have definitely made progress, without a shadow of a doubt. I can only say, just keep going. the changes do happen but they may be microscopic and so you can't really notice them at the time, it's only say 6 months later you might look back and see there has been an improvement in something. I hope this becomes the case for you. I too found the mental improvements definitely started to get better after around 18 months, but the physical symptoms have been much much slower. I know I'd love to get back to running, i miss it so much and can't believe I could just do it before. However I can say that i can easily go and get groceries now, which i definitely couldn't do for a very long time without it being reallly really horrible both mentally and physically. Just give it more time and i hope you start to get a bit of ease in your body, it truly is mortifying when you cant do the things that you wouldn't have thought twice about before. Thanks for the support, keep going, the changes will come! 11th - 17th February 2020 - Citalopram (3 days 10mg & 4 days 20mg) - SEVERE ADVERSE REACTION Link to comment
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