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LostRunner: took Citalopram for 7 days - feel terrible 7 weeks later

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sunnysideup69
18 minutes ago, LostRunner said:

yes I was. I used to run 2-3 times a week, that seems like another life now. 

 

It'll come back. You're still a runner, you're just taking an extended break ;) I've actually stopped running over the last two months , went through bereavements in April and then decided I needed to be gentler on my nervous system.

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LostRunner

Hi me again.. 

 

Sorry I'm going to be moaning again and asking for some advice. So I haven't had any improvement so far in my physical symptoms. Every day is the same and I'm really limited in what I can do, which is getting me down. 

 

I spend a lot of the day sitting in bed but make sure I get up often to go for walks around the garden and get some air. I spent some more time outside earlier this week playing catch and things but I've had really bad muscle aches in my legs since as if I've really overdone it when in reality I've not done much at all! I've been having epsom Salt baths at night and just started using a magnesium spray. Walking is difficult in that my pelvis feels unstable, I sway when I try to stand still and my legs are very heavy and vibrating. I can't stand for long. Of course I still have the constant movement in my lower back when I sit down as well. it feel as if the nerves are misfiring constantly resulting in this grinding feeling in my back. I'd like to get this looked into more but don't know where to go. My GP isnt really interested in helping me. My life is limited and i don't know how to make it better. Do walking issues like mine even get better? As I've said previously, it feels like it goes beyond a 'normal' symptom.  

 

I'm constantly aware of my heart as well. It pulses so strongly in my chest, not necessarily always fast it's just there thudding away and feels tight. My body feels so alien to me. My skin has changed too, its very flaccid and saggy like the collagen has just gone or I've just had 4 babies (I'm 30 years old, no babies) can anyone relate?

 

My stomach also just doesn't work. I have no sensations in it. I don't feel hunger like I did and can't contract my muscles. Maybe this is also whats causing the pelvis instability I don't know. I'm also always thirsty.

 

I'm so bored of talking about symptoms and feeling down but they are also restricting me so much so its difficult. I want to be able to make progress but how can I when I can't even go out anywhere. I know I've caused the severity of these symptoms through taking the drug for too long. It's a hard thing to constantly be reminded of! Can people really recover from poisoning themselves so badly? 

 

I think I'll have to come to terms with the fact that some of this is likely to be permanent. My body just cannot do what it used to do. I can't move it the way I want to. 

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Gridley

@LostRunner

 

I'm sorry you're feeling so bad, LostRunner.  

 

1 hour ago, LostRunner said:

Do walking issues like mine even get better? As I've said previously, it feels like it goes beyond a 'normal' symptom.  

 

 

Adverse reaction symptoms, like the withdrawal symptoms they resemble, do get better. The adverse reaction threw your system into chaos and now it has to find its way back.  It's very good that you're getting out and about a bit.  That at least keeps your muscles from atrophy.

 

I know your symptoms are more varied than pain, but perhaps you'll find something helpful in this link.

 

Non-drug techniques for dealing with body pain

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Altostrata

Have any of your symptoms gotten better over the last 6 weeks?

 

You had the drug mishap only in February. When we say recovery is slow, we mean slow. Months, not weeks.

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LostRunner

Thanks @Gridley I hope I can some improvements soon. I think some of them getting better is a bit wishful thinking. I'm just so frustrated, but I imagine everyone on here is! I want to be working and back being a person again and socialising. Its crazy as every system in my body isn't really working right at the moment (still don't have periods either for example) so it really is in complete chaos! it's fascinating to me how it can even come back?!

 

Hello @Altostrata I wish I could say they have! I think I'm getting better at not freaking out all the time and I'm more able to self soothe at nighttime. Otherwise I'd say they're consistent at the moment. I was getting more Akathisia type episodes a few weeks ago, extreme restlessness and pacing and I haven't had them lately (I'm scared to even mention that word through fear of it coming back) I feel like my whole body is constantly pulsing in one way or another. its horrible. Every part of me is quite dysfunctional that I don't even know where to look in terms of drs and tests and things. The walking is my most upsetting symptom I'd say. 

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Altostrata
46 minutes ago, LostRunner said:

I was getting more Akathisia type episodes a few weeks ago, extreme restlessness and pacing and I haven't had them lately

 

This is an improvement. Please be patient, allow healing to move along slowly, as it will.

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rupa
10 hours ago, LostRunner said:

Hi me again.. 

 

Sorry I'm going to be moaning again and asking for some advice. So I haven't had any improvement so far in my physical symptoms. Every day is the same and I'm really limited in what I can do, which is getting me down. 

 

I spend a lot of the day sitting in bed but make sure I get up often to go for walks around the garden and get some air. I spent some more time outside earlier this week playing catch and things but I've had really bad muscle aches in my legs since as if I've really overdone it when in reality I've not done much at all! I've been having epsom Salt baths at night and just started using a magnesium spray. Walking is difficult in that my pelvis feels unstable, I sway when I try to stand still and my legs are very heavy and vibrating. I can't stand for long. Of course I still have the constant movement in my lower back when I sit down as well. it feel as if the nerves are misfiring constantly resulting in this grinding feeling in my back. I'd like to get this looked into more but don't know where to go. My GP isnt really interested in helping me. My life is limited and i don't know how to make it better. Do walking issues like mine even get better? As I've said previously, it feels like it goes beyond a 'normal' symptom.  

 

I'm constantly aware of my heart as well. It pulses so strongly in my chest, not necessarily always fast it's just there thudding away and feels tight. My body feels so alien to me. My skin has changed too, its very flaccid and saggy like the collagen has just gone or I've just had 4 babies (I'm 30 years old, no babies) can anyone relate?

 

My stomach also just doesn't work. I have no sensations in it. I don't feel hunger like I did and can't contract my muscles. Maybe this is also whats causing the pelvis instability I don't know. I'm also always thirsty.

 

I'm so bored of talking about symptoms and feeling down but they are also restricting me so much so its difficult. I want to be able to make progress but how can I when I can't even go out anywhere. I know I've caused the severity of these symptoms through taking the drug for too long. It's a hard thing to constantly be reminded of! Can people really recover from poisoning themselves so badly? 

 

I think I'll have to come to terms with the fact that some of this is likely to be permanent. My body just cannot do what it used to do. I can't move it the way I want to. 

Lost Runner

You have used these so called medications , only a week.

Chances are very high, you would recover within 4 years.

I remember, My brain was prompting to walk 24/7 non stop and I did as it say, walking within the basket ball premises and in the home at nights.

I could only eat curds with soft rice while walking.

All my body's vitamins got evaporated.

After recovery I got my blood picture tested and used vitamins accordingly.

It's exact 4 years since my life became miserable.

Now I am sleeping deep all the night 9 pm to 6 am

Waking up with just pleasant kind of dreams.That too getting dream rare, when sleep is too deep.

Noticed , curds mixing with water and savouring often helping alot.

So please be hopeful that time heals everything.

 

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LostRunner

Thank you @rupa wow 4 years, I can't imagine! I'm so pleased that your sleep returned. it must have felt beyond incredible to sleep through the night again. Thanks for sharing your story! 

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Usha

@LostRunner I can very well relate with youm I can just give you the hope that all will be well in the end. I know how frustrating it is.

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LostRunner

Hello I've just had some hormone tests done as I haven't had a period since taking Citalopram and I've never had period problems before. It's come back not normal as my Prolactin is low which im guessing is the reason for the lack of periods. Is this something that other people have experienced? I'm terrified that im infertile now all because of a week of citalopram its ridiculous. Can these things change on their own or will I need treatment? All my other symptoms remain the same. 

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keogh08

Hi lost

 

Having a quick look online it doesnt say being low in this particular hormone causes problems with conceiving. It does mention dopamine though which we know has problems following a reaction, with that said this all gets back to normal so I wouldn't worry too much about it. 

 

I personally know how upsetting it is doubting whether you will ever conceive, but as we know people fully recover from adverse reactions so there is no reason add more worries and anxiety to the mix.

 

Have you seen any improvements in your symptoms?

 

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LostRunner

hello @keogh08 how are you doing?

 

No, no change really. just always feel unwell and uncomfortable. nothing has me feel hopeful yet! Its constant symptoms and has been 5 months. I dont have a life at all. I think the feeling in my spine is more of a tremor which is in my legs too. Walking is hard. I dont know if im going to recover as physically I am wrecked! Im not sure its actually possible. I'm pretty sure I had seratonin syndrome which never got treated as my dr wasn't listening to me. no idea what to do with myself tbh! 

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Hopela

Hey LostRunner,

Are you able to get any workout at all? Anything might be better than nothing. Like 5 squats, 4 lunges, 2 pushups. Repeat as long as entertaining and safe! (1 time, 2 times in a few days if no adverse reaction? ...)

Are you still having the anxiety that made you seek the GP who gave you the drug? Resolving old or new anxiety and finding as much calmness as possible without drugs may be good for recovery.

Would it be possible that your anxiety stemmed from something not feeling right in your CNS already back then and it just getting kick started with the drug? You mention you think you had serotonin syndrom, had you used any other drug of any sort prior to that which might have caused it? Perhaps taking a step back and widening your search for causes testing for vitamins, minerals and what ever more reasonable test is available (now you've checked hormones, findings could be not just a result but also a cause) could give a clue to there being some other underlying cause than just the citalopram curerntly and thereby finding more treatment options. Although be careful they dont sell you more invasive harmful stuff. 

 

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sunnysideup69

Hello @LostRunner, just checking in that you're surviving.

I haven't been running since 1st June. Decided to knock it on the head for a while because I know it increases cortisol... just been walking instead. How are your legs and movement going? 

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LostRunner

hi @sunnysideup69 thanks for checking in. hope you're okay!

nothing new to report unfortunately! im still pretty debilitated and finding things very difficult indeed! all the pulsings are 24/7 and seen a couple of neurologist they just all suggest is psychological and want to give me meds etc. its very frustrating! I cant imagine how this is ever going to stop. its affecting my spine so I dont hold much hope. its such a random thing to have happened every day I cant really believe it! I guess its not random in that I took a load of drugs but I never in a million years thought It could do this to my back and walking. I cant live a life at all its horrendous tbh. I'm potentially seeing a toxicologist soon but dont know if they'll be able to do anything. I'm assuming not but I guess hes interested in my case and what's happened. its super hard not to get super depressed. to think I was just anxious before this as well, does my head in! I dont like writing on here as its just me moaning. hope you're enjoying life x

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sunnysideup69

It seems such a crazy outcome, I know. Are you able to do any exercise at all, even a few steps around the garden, down the road etc?

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LostRunner

Yep I’m able to walk some days better than others. I can walk some days for hours (when I’m particularly agitated) but I’m always conscious of them and they throb/ feel drunk afterwards. Legs are heavy all the time and jelly like. Lower back/hips are also heavy and hips wobble. No idea what’s gone on and no doctor seems to know either/they tell me it’s psychological! But funny how I never had these issues before the drug!! Not sure what I can do really 

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sunnysideup69
5 hours ago, LostRunner said:

Yep I’m able to walk some days better than others. I can walk some days for hours (when I’m particularly agitated) but I’m always conscious of them and they throb/ feel drunk afterwards. Legs are heavy all the time and jelly like. Lower back/hips are also heavy and hips wobble. No idea what’s gone on and no doctor seems to know either/they tell me it’s psychological! But funny how I never had these issues before the drug!! Not sure what I can do really 

Wow! That's an improvement. Without scrolling back through your thread, don't I recall you saying you couldn't walk much in the beginning?

I can very much relate to the jelly legs. Also to the agitation, that's part of a wave for me. Had the jelly legs a lot when I did a drug switchover last summer.

I'm sorry this happened to you. Really hoping those around you are supportive, too. 

I'm doing ok, thanks for asking. I've seen some improvement since May, although the waves also keep rolling in...although they have lessened in their severity. On a good day, I feel pretty normal and sociable and that is a relief. Keeps me hanging in there. This is a slow journey indeed, I get impatient because I want to be steady enough to begin a taper off, but need to wait a bit longer.

Sending good wishes your way for your full recovery 😊

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