Acsr: withdrawal after 6 months or adrenal crash

[Acsr]

Hi , I need your help guys …

 

I’m 20 months  off an Ad Protheadene 75 mg. I’m still holding 0,50 quietipine and 0,5 mg benzo mexazolam .

 

I have Lyme . But story started with a flu 6 months after finishing my ad tapper . 
( you can see old posts and see how symptoms were so similar to withdrawal) 

 

my health deteriorated after an iron injection and an antibiotic . 
 

im now bedridden, no walking with severe Cfs ,overstimulation sensitivity, waking up lots at times at night , my heart races if I move a finger and I wake up with racing heart and urgency to go to the toilet 🚽! My hormones rule my life… completely out of wack , extreme moods swings …I’m extremely underweight.
 

I don’t know if this is protracted withdrawal from Ad, or cfs/Me , or Lyme or benzo tolerance… I’m sensitive to meds and supplements, my crashes are awful , Idon’t see what I can do . 
 

I feel guilty for not treating lyme , but I’m afraid of getting even worse . 
 

I don’t know if I should tapper de benzo , cause I know I feel worse than I’m now, I’m underweight, my heartit’s crazy , my fatigue it’s trough the roof … and my brain will get more sensitized making Lyme treatment impossible and severe Cfs worse . 
 

I feel like I’m stuck and I’m only thinking of ending my life as I can’t see an end on this suffering. 
 

will my brain get homeostasis whilst on 2 meds still ? 
If not how long it’s safe to hold this meds? I imagined that will take me years to get a bit better and then have to withdrawal and get worse again … I’m so weak right now still after 2 years . 
 

im very very depressed and suicidal not cause of withdrawal butbecause I lost my life to bed . Can’t even watch tv. Ijust need other ideas or advice to open my mind a bit a maybe see some light . 

@Altostrata @brassmonkey
@LadyBartonella @geoff22
@getofflex
I found a doctor who wants to change mexazolam to alprazolam and want to reinstate an antidepressant. I told him that I would reinstate my last one not a new one but I didn’t told him  in what dosage !

 

I don’t know what to do , on one hand I want to try reinstatement and try another benzo because I think I will end up to end my life due to emotional pain ( I cry in despair from being bedridden, I try to cut myself one of these days during a crash where I have to be fed and can’t move )  

 

I just need your support here My family is tired and want me to trust the doctor and obviously I can’t but I’m in such emotional pain that I just want someone to take care of me …

thank you 🙏 

[Altostrata]

Hello, @Acsr What times o'clock do you take each of your drugs, with their dosages? How do you feel before and after each dose?

[Acsr]

1 hour ago, Altostrata said:

Hello, @Acsr What times o'clock do you take each of your drugs, with their dosages? How do you feel before and after each dose?

Hi thank you for reaching out ! 
 

im taking mexazolam 0,5 mg at 7 pm -

before taking it it’s hard to say because I’m bedridden and my day it’s an emotional roller coaster. I wake up with a heart racing and have to go to the toilet. After that I’m more or less and use to have a dip in energy at 2pm and I cry a lot . Then I cry again around 7 pm. ( I have been crying for 1,5 years every single day ) 

 AFTER - 2 hours later my pulse goes a bit down . Sometimes I feel calmer , but depends on my level of fatigue. For example when my hormones change I can be crying the entire day . 
 

I take quietipine 0,50 at 11pm and I can fall asleep after one hour but my sleep is interrupted don’t know if it’s because my heart races when I wake up at night but I know my deep sleep is around 30 min. 
 

thank you so much really , I’m very lost here and my family is pressure me to take another antidepressant and change the benzo … 

 

[Altostrata]

It is possible you have interdose withdrawal from the benzodiazepine, mexazolam. @Frogie will help you figure out a good schedule.

 

0.5mg quetiapine is not very much quetiapine. How are you measuring this dose?

[Acsr]

28 minutes ago, Altostrata said:

It is possible you have interdose withdrawal from the benzodiazepine, mexazolam. @Frogie will help you figure out a good schedule.

 

0.5mg quetiapine is not very much quetiapine. How are you measuring this dose?

Sorry it’s 0,50mg  quetiapine and 0,5 mg mexazolam 
 

what do you think about Changing to alprazolam ? And reinstatement of Ad ? 
 

thank you 🙏 

[Frogie]

Before you change to alprazolam, I would try splitting your dose and taking it at least twice a day to see if that helps. What time do you normally take your mexazolam? If you let me know, I can help you set up a schedule to split the dose in 2.

[Acsr]

8 minutes ago, Frogie said:

Before you change to alprazolam, I would try splitting your dose and taking it at least twice a day to see if that helps. What time do you normally take your mexazolam? If you let me know, I can help you set up a schedule to split the dose in 2.

Hi ! Thank you so much for trying to help . 
Im taking it at 7 pm 

[Frogie]

Ok, here’s an example schedule:

 

If you take the whole dose at 7:00 pm, take .25 mg at 7:00 pm and .25 mg at 6:00 pm. The next day, take the 6:00 pm dose at and so forth until you get the .25 mg at 7:00 am. Does that make sense? Then you’ll take .25 mg at 7:00 am and .25 mg at 7:00 pm. We’ll try this and see how you do once you get to every 12 hours. We’ll get it figured out for you, just might take a little tweaking here and there. I hope you feel better soon. Let me know if I can do anything else for you.

 

Take care,

 Frogie xx

[Altostrata]

4 hours ago, Acsr said:

Sorry it’s 0,50mg  quetiapine

 

Do you mean 50mg quetiapine? Fifty milligrams?

 

Alprazolam's half-life is longer than mexazolam, but not a huge improvement. Why wouldn't your doctor prescribe diazepam? That is the benzodiazepine with the longest half-life and needs to be taken only once a day.

 

[Acsr]

13 hours ago, Altostrata said:

 

Do you mean 50mg quetiapine? Fifty milligrams?

 

Alprazolam's half-life is longer than mexazolam, but not a huge improvement. Why wouldn't your doctor prescribe diazepam? That is the benzodiazepine with the longest half-life and needs to be taken only once a day.

 

Yes 50 mg . 
 

I don’t know … he wants me to get calmer due to my situation and extreme anxiety. I will ask him thank you so much 🙏

[Acsr]

16 hours ago, Frogie said:

Ok, here’s an example schedule:

 

If you take the whole dose at 7:00 pm, take .25 mg at 7:00 pm and .25 mg at 6:00 pm. The next day, take the 6:00 pm dose at and so forth until you get the .25 mg at 7:00 am. Does that make sense? Then you’ll take .25 mg at 7:00 am and .25 mg at 7:00 pm. We’ll try this and see how you do once you get to every 12 hours. We’ll get it figured out for you, just might take a little tweaking here and there. I hope you feel better soon. Let me know if I can do anything else for you.

 

Take care,

 Frogie xx

Hi Frogie , 

 

thank so much for trying to help. I would like to ask you something, since I’m going to bed at 11 pm but never asleep befor 00:30 can I take it at 8 pm , them 9 pm and then starting to split the dosage ? Then I wouldn’t have to interrupt my sleep to take the benzo . What do you think ? 

[Altostrata]

19 hours ago, Acsr said:

I take quietipine 0,50 at 11pm and I can fall asleep after one hour but my sleep is interrupted don’t know if it’s because my heart races when I wake up at night but I know my deep sleep is around 30 min. 

 

My guess is that with the benzo, 50mg quetiapine at night is TOO MUCH and is causing a paradoxical reaction; that is, when it starts to ramp up in your bloodstream, the sedation is too much and your body fights against it, waking you up.

 

Are you taking 50mg quetiapine in one tablet? When did you last change quetiapine dosage?

 

Please correct your signature, it says 0.5mg quetiapine (1/2 milligram).

[Acsr]

30 minutes ago, Altostrata said:

 

My guess is that with the benzo, 50mg quetiapine at night is TOO MUCH and is causing a paradoxical reaction; that is, when it starts to ramp up in your bloodstream, the sedation is too much and your body fights against it, waking you up.

 

Are you taking 50mg quetiapine in one tablet? When did you last change quetiapine dosage?

 

Please correct your signature, it says 0.5mg quetiapine (1/2 milligram).

i take 2 tablets of 25 mg , but I don’t feel very sedated, some nights are difficult to fall asleep. I never change it it’s has been like this for 3 years already . 
 

I will correct that thank you for noticing! 

[Wania]

Acsr how are You now? I have Lyme as well, cant treat because of reactions and have no idea what is wd and what is lyme

[Acsr]

On 11/20/2021 at 4:29 PM, Wania said:

Acsr how are You now? I have Lyme as well, cant treat because of reactions and have no idea what is wd and what is lyme

Hi! I’m so sorry you are also true this … I’m in the same situation and I wish I could help you , but I don’t know. Im

also not treating it . I guess we will never know until you find someone you understand your sensitivities and start to healing you in stages . I’m. Still looking for a good funcional doctor who deals with withdrawal. 
 

best of luck my friend ❤️

[Acsr]

Hi @Ladybird@Altostrata @Go2zero.

 

I need help again… but this time is very serious because I was polydruged again . My family sent me to that hospital and the doctor convinced my family that I have “ anxiety for desease “ and I will only get better if I take the medication. 
long story short , I was emotional abused and I was so fragile , that I finally took the the medication to prove everybody’s wrong . Despair … amd now I’m feeling so angry at my myself and my family and the doctor ( the dr house people call h …) 

 

I was put:

150 Wellbutrin -1 pill in the morning 

trazodone long release 100mg - in the evening 

xanax 2 mg long release - in the evening 

50 mg ( 2 pills of 25 mg) quetiapine - also in the evening. 
 

with the cfs my body did a lot of effort to handle all this , but I did not know what was from the meds or from the condition . Off course I got worse and Now have 2 pain chest and more high heart rate . 
 

I feel my body it’s still trying to recover but I need what to do . 
which one should I start? 
trazodone interacts with everything , benzo it’s 10 times higher then I was taking … I don’t know where to start and how because they are extended release I can’t cut the pills right ? 
 

My body it’s shutting down , don’t know if I should wait .

im 3 months on this new medication excepting the benzo ( I was mexalolam 0,5) and quietipine same dosage 3 years . 
 

thank you so much I’m looking forward to hearing from you . 

[Altostrata]

What date did you start each of Wellbutrin, Xanax, trazodone, and quetiapine? What times o'clock do you take your drugs, with their dosages?

 

For what reason did your family want you to go to the hospital?

[Acsr]

14 hours ago, Altostrata said:

What date did you start each of Wellbutrin, Xanax, trazodone, and quetiapine? What times o'clock do you take your drugs, with their dosages?

 

For what reason did your family want you to go to the hospital?

 Hi ! Thank you for replying.

 

 

150 Wellbutrin -1 pill in the morning  10am - started 2December 2021 

all of these together at 8pm: 

trazodone long release 100mg - started 2 December 2021

xanax 2 mg long release - started 2 December 2021 but I was already on 0,50 mg of mexazolam since 2017- they changed it for Xanax 

50 mg ( 2 pills of 25 mg) quetiapine . Started August 2018 

 

My family wanted in this particular hospital where is a doctor internist that have lots of experience . Since I’m bedridden with severe cfs (since March 2020 ) they are desperate as I’m . Most of the days I can’t talk or able to eat my food without being smashed. When I crash I can’t move at all. I’m bone and skin in bed 24/7 , and I’m loosing my mind . I m crying everyday , have despair anxiety attacks, I just think of dying because I can’t handle seeing the days go by. So this doctor said he will cure me and my family and husband believed him. 
 

( note that I weaned off an antidepressant in November 2019. 8 months of tapering Protheadene 75mg . ( at same time as mexazolam and quietipine) )

 

 thank so much ,

 

p.s I’m trying to change my signature but I can’t  find it how . Maybe it’s very simple but I didn’t figured out yet ! 
 

 

[Wania]

Im so sory to read that. I just had conversation about it with my husband yesterday. There is great book Antidepressed that would be nice if Your family would like to read. Also Gabor Mate has good podcasts about ,myth of being normal'. We have to educate people around as they are clueless. Im so sory for Your struggle.