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Hey Warriors!

 

I’m approaching 3 months tapering off Pregabalin, reducing 1-2mg/day using water titration. Today marks -80mg, or 520mg down from 600mg/day. And the day I found this forum.


Feeling constant sadness most days, with some energy and a few happy moments here and there. Sleep has been erratic, it affects me badly to be so tired all the time.

 

I’ve got appointments next week: 

- Julia Ross Nutritional Consultant for Amino acid therapy

- New GP To get referral to Psychiatrist 

 

Three other meds to come off after this. The order I’m hoping to follow is:

1. Pregabalin

2. Lamotrigine

3. Fluoxetine 

4. Moclobemide 

 

I’d love to be blessed with a quick and easy tapering journey but I know it’s not always possible. But I’ll do my best to have the best possible outcome. 
 

Thank you for sharing in the good and the challenging times xxx

2008-2015 Desvenlafaxine 100 to 300mg | 2010-2013 Tramadol 150mg | 2011-2015 Alcohol, abstinent since | Jan 2016 to Dec 2018 Amitriptyline 100mg + Mirtazapine 90mg + Valium (5mg prn)

Dec 2018-now Moclobemide 600mg

Mar 2019-now Fluoxetine 20mg

Mar 2020-now Lamotrigine 100mg
Oct 2019-now Pregabalin (tapering down) 

Started 300, up to 1200mg | 11 Jul to 25 Jul 20 stable at 600mg | 25 Jul started micro taper 01Aug 592 | 01Sep 561 | 01Oct 527

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  • ChessieCat changed the title to Faithingod: one down three to go
  • Moderator

Welcome to SA, Faithingod.

 

To give members the best information, we ask them to summarize their medication history in a signature -- drugs, doses, dates, and discontinuations & reinstatements, in the last 12-24 months particularly.  Please include the current doses of all drugs, plus the original dose of pregabalin, the date you started tapering it and your rate o taper.

 

Account Settings – Create or Edit a signature.

 

Were you feeling the symptoms of sadness, tiredness and erratic sleep before you started tapering pregabalin?  If the symptoms, which are typical withdrawal symptoms, are from your pregabalin taper, you may need to slow down your taper or hold for a while until the symptoms calm down.  

 

The type of taper you're using is called a micro-taper.  You can read more about it here.

 

Micro-taper instead of 10% or 5% decreases

 

A micro-taper is perhaps the gentlest method of tapering.  Another method is to taper by 10% of current dose every four weeks.

 

Why taper by 10% of my dosage?

 

We recommend tapering only one drug at a time.  Otherwise, if there are problems, you won't know the cause.  

 

How did you choose the order of the drugs to taper? In the absence of other factors (such as side effects), we recommend tapering the stimulating drug(s) first, leaving the sedating drug(s) in order to help preserve sleep to be tapered later.  Pregabalin has a sedative effect and moclobemide can have a sedative effect.  Fluoxetine and lamotrigine have a stimulating effect.

 

The following link is specifically about tapering pregabalin.

 

Tips for tapering off Lyrica (pregabalin)

 

We don't recommend a lot of supplements on SA, as many members report being sensitive to them due to our over-reactive nervous systems, but two supplements that we do recommend are magnesium and omega 3 (fish oil). Many people find these to be calming to the nervous system. 

 

Magnesium, nature's calcium channel blocker 

 

Omega-3 fatty acids (fish oil) 

 

Add in one at a time and at a low dose in case you do experience problems.

 

This is your Introductory topic, where you can compete your drug signature, ask questions and connect with other members.  We're glad you found your way here.

 

 

 

 

 

 

 

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg 1986-1991 CT, soon reinstated.  CT 2000. RI 1 mg 2011-2016.  Sept. 2016  0.625mg X 3

Nov.27, 2020, 7-week Ativan-Valium crossover + change to one 18.75mg dose, w/1 month hold.

Feb. 9, 2021, begin 10% every 4 weeks taper.  Current dose as of April 10: 13mgai.  Taper is 31% complete.

 

Imipramine 75 mg daily since 1986.  Jan. 2016 began every 3-weeks 10% taper, down to 16mgai (44mgpw).  Aug 2016, discovered SA, holding at 16mg.  Taper is 78% complete.  

  

Supplements: omega, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg.


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

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Hello!

 

Thank you so much for your reply! So good to not feel alone in this. I’ve added a signature with my meds history and here’s a more thorough introduction.
 

I’ve had a history of depression since my early 20’s, took Zoloft for just about 6 months then. A decade later was told by a GP that I needed antidepressants ‘indefinitely’ following post partum depression. That’s when I wish I’d looked for natural alternatives. It’s been trial and error since, often increasing dosages or switching to other types of ADs to achieve a level of functionality, whatever that means in today’s sick society. 

I ended up on three prescriptions for depression and one for nerve pain. And I feel depressed and in pain. This is my current situation.
 

At first the antidepressants and Lyrica combo worked a treat. I was pain free, great mood, was able to look after the kids, do the housework, have energy and the awesome bonus was the easy weight loss. 

March/April this year I started experiencing horrible side effects from Lyrica and that’s why I’ve chosen to taper down from it first. Huge cognitive impairment (memory, word retrieval, verbal fluency, focus, reasoning, decision making, all forced me to stop working), involuntary head movements, loss of eyesight, coordination, and awful withdrawals when attempting to reduce or skip doses (extreme panic attacks, anxiety, agoraphobia, insomnia, fear, isolation, worsened depression, suicidal thinking, and more I probably can’t remember)

 

I found the Lyrica Survivors page in July, stabilised my dose for 2 weeks and started tapering. I haven’t had a panic attack since starting tapering -1mg/day but other new symptoms are pretty much constant:

 

- ravenous hunger, have put on 15kg since starting tapering (80 days)

- deep constant sadness, not able to smile 

- apathy, no motivation, drive, initiative

- no physical or mental energy
- insomnia most nights, tired all the time 

- sometimes an internal shakiness/anxious feeling
 

I’ve also quit cigarettes, edible cannabis and an unhealthy relationship around that time so it’s hard to know how much of the sadness I feel is mostly from Lyrica withdrawal or a combination.

 

Sometimes I think the Pregabalin itself is what’s continuing to damage my CNS the most. Am I intensifying the damage by staying on it so long due to micro tapering? Would it be a good idea to start going a bit faster to see if I can cope and reinstate if not?

 

Regarding supplements, where can I find personalised support? I’ve read so much and bought all the different things but get really lost, not knowing the ideal schedule etc?

 

Also I’ve been reading about amino acid therapy to assist with neurotransmitter production, have you heard if this is helpful/dangerous, if under a registered nutritionist/consultant? 

 

Do you mind making suggestions of where I can post this info to start sharing with others going through similar things? I find forums so hard to understand...

 

Thank you so much for taking the time to respond, I hope you’re doing well on your personal journey :)

 

All the best x

 

2008-2015 Desvenlafaxine 100 to 300mg | 2010-2013 Tramadol 150mg | 2011-2015 Alcohol, abstinent since | Jan 2016 to Dec 2018 Amitriptyline 100mg + Mirtazapine 90mg + Valium (5mg prn)

Dec 2018-now Moclobemide 600mg

Mar 2019-now Fluoxetine 20mg

Mar 2020-now Lamotrigine 100mg
Oct 2019-now Pregabalin (tapering down) 

Started 300, up to 1200mg | 11 Jul to 25 Jul 20 stable at 600mg | 25 Jul started micro taper 01Aug 592 | 01Sep 561 | 01Oct 527

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  • Moderator
2 hours ago, Faithingod said:

Am I intensifying the damage by staying on it so long due to micro tapering? Would it be a good idea to start going a bit faster to see if I can cope

 

If you wanted, you could try the 10% taper, which is reducing by 10% of your current dose every four weeks. Read the link and, if you feel comfortable with it, you could try it for four weeks and see how you feel.

 

Why taper by 10% of my dosage

 

Here's the link for tapering Pregabalin, including how to get the nonstandard doses you'll need for the taper.  You could continue the water titration. The fo link has instruction for making your own liquid Pregabalin.

 

Tips for tapering off Lyrica (pregabalin)

 

2 hours ago, Faithingod said:

 

Regarding supplements, where can I find personalised support? I’ve read so much and bought all the different things but get really lost, not knowing the ideal schedule etc?

 

 

With the exception of magnesium and omega oil, as I said in my first post, we don't recommend a lot of supplements on SA, as many members report being sensitive to them due to our over-reactive nervous systems.  If you do introduce a new supplement, introduce one at a time and at a low dose to see how you react.  Google SurvivingAntidepressant.org supplements and you'll see a number of links with posts from other members about their experiences and suggestions.

 

2 hours ago, Faithingod said:

 

Also I’ve been reading about amino acid therapy to assist with neurotransmitter production, have you heard if this is helpful/dangerous, if under a registered nutritionist/consultant? 

 

 

 Amino acid therapy may be too strong for those in withdrawal with sensitized nervous system. Here's one link with a discussion of one type of amino acid therapy.

Marty Hinz supplements and neurotransmitter imbalance ...

If you Google SurvivingAntidepressants.org amino acid therapy you'll see several other threads on the subject.  I'd research it thoroughly if you're considering this.

 

2 hours ago, Faithingod said:

 

Do you mind making suggestions of where I can post this info to start sharing with others going through similar things? I find forums so hard to understand...

 

If you google survivingantidepressants.org lyrica pregabalin you'll see posts by other members dealing with this drug.  If the post is old, likely that member is no longer active, but your could post on the threads of members with recent posts.  If the post is new information about you, it's best to post here in your own Introduction thread so that all your information is in one place.

 

 

 

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg 1986-1991 CT, soon reinstated.  CT 2000. RI 1 mg 2011-2016.  Sept. 2016  0.625mg X 3

Nov.27, 2020, 7-week Ativan-Valium crossover + change to one 18.75mg dose, w/1 month hold.

Feb. 9, 2021, begin 10% every 4 weeks taper.  Current dose as of April 10: 13mgai.  Taper is 31% complete.

 

Imipramine 75 mg daily since 1986.  Jan. 2016 began every 3-weeks 10% taper, down to 16mgai (44mgpw).  Aug 2016, discovered SA, holding at 16mg.  Taper is 78% complete.  

  

Supplements: omega, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg.


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

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