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Dr. Joseph Glenmullen's withdrawal symptom checklist


dalsaan

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  • wake up in total anxiety/terror

can't cry, laugh, scream, love....just a zombie wit hell inside, trying to do things

go to bed with total anxiety/terror

I want my old life back!!!! :(

Damaged people are dangerous. They know they can SURVIVE!06/2012 - 02/2015 CIPRALEX 10mg (for master degree last year deep stress and abdominal pain somatization) 02/2015 - 04/2015 tapering from 10mg to 0mg for 4/3 weeks FREE feeling totally "normal" then SUDDENLYnever-had-before huge anxiety, burning skin sensation, painc, fear, not able to cry, never-had-before insomnia, totally lost appetite, little loss of vision in one eye, sweating, chest pain, short breath, restlessness, accelerated heartbeat for ONE MONTH ZERO IMPROVEMENT30/05/2015 CAN'T bear anymore => reinstated 8mg 06/2015 same symptoms (my GP gave me also benzo for anxiety but I threw them away) 07/2015 same, few tiny improvemets 08/2015 general improving + trying a phosphate supplement (LOW dose) 09/2015 quite stable (supplement finished, no effect) 10/2015 start tapering 7mg 11/2015 6mg 12/2015 5mg 1/2016 4mg 2/2016 4mg 3/2016 3mg (hopefully) ->fail back to 4mg AGAIN....8/2016 3mg stable<p>
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  • 4 months later...
  • Moderator Emeritus

Instead of printing a new symptom page to fill out each day, here's what I do: 

 

I use a large, lined book (like a school book).  I typed up then printed all the symptoms listed in the symptom-checklists, plus other ones personal to me.  I glue this in a column down the left side of the page. 

 

Then I rule it up so I can record symptoms daily for one month, by giving each symptom I've had a score out of 9.  1=barely felt it, 9=awful.  I fill it in each morning (to record the night's symptoms) and each evening (to record the day's symptoms).  Then I add up my score each day and write it at the bottom of that day's column, and under that I write one of these words:  Awful, bad, blah, ok, good, great.  Then I make a note of anything that may have affected the score e.g. getting my period, stress due to outside circumstances, too much exercise. 

 

At the end of each month I transfer each daily score to a line graph. 

 

I've found it really valuable for working out how I'm going, what I can expect, and whether I really have been settled long enough to try another dose-reduction.  Seeing the up-down line can be very reassuring as it's a clear picture that things do get worse and better again.  Trends are easier to spot.

 

I also like being able to see a whole month at a glance. 

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

My story of healing:ContinuedHealing

***I am not a doctor; please do your own research and be able to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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  • 3 months later...
  • Moderator Emeritus

Hi Everyone,

 

Finally got around to converting the Dr Joseph Glenmullen's Excel Symptoms List to a document for printing off.  I also made up a blank version for people to fill in their own and also added some additional lines to the Excel version (and corrected a typo).

 

So attached here is monthly:

 

PDF - with Dr Glenmullen's Symptoms (will print out on 2 x A4 sheets)

 

PDF - blank version of the above (will print on 1 x A4 sheet)

 

Please see next post for other Excel version (slightly revised)

 

CC

Dr Glenmullens Symptom List for Month to Print.pdf

Blank Symptom List for Month to Print.pdf

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 6 Mar 2021:  Pristiq 0.328 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Excel version - Dr Glenmullen's Symptoms List for completing on the computer (slightly revised version of the original I did last year - I added some blank lines and corrected a typo)

 

 

CC

Dr Glenmullens Symptom List for Month.xls

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 6 Mar 2021:  Pristiq 0.328 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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  • 1 month later...
ingridphoenix

 

This complete absence of motivation I experienced last fall. For me it wasn't part of depression. It wasn't like, I dont "feel" like doing... Whatever. It was not feeling at all. Numb. Intellectually I knew I should do it, but that was the extent of it. Even eating and showering. It wasn't that I didn't feel like doing them. I just didn't feel anything about them and didnt do them. Does that sound familiar to anyone?

Sounds totally familiar for me. I had never in my life problems motivating myself. Just now. I know I should submit sick certs to work, send the bills to the health insurance, take care of my disability process. But I don't care. I just can't get myself to do it. It doesn't even phase me that my bank account will be empty pretty soon. I hope this will subside soon, otherwise I will be bankrupt.

 

Been like this for years ON the meds. Now as I am taking less, I am getting more motivated. very odd. stopping the drugs was my last resort to get over this NotDoingAnythingEver.....

I did not pay bills, and dishes sat for 3 months - amazing science projects, purple and lilac mold anyone? ;)

Getting off Amitriptyline 25 mg, on 12.5 mg now. 50 mg to 25 mg; Cymbalta 60 mg, currently 30 mg/day for 15 days. Decided to cut open remaining 60 mg capsules and take the little tablets inside. 6 = 30 mg. If need be, I can up the dosage, but aside from a bit of toe pain I am ok.UPDATE: >>>>> Amitriptyline 25 mg 1992- ??? ----- 50 mg until March 21, 2016. 2016 - then 25 mg <<<<<went to 20 mg of Amitriptyline, and down 5 tiny tabs of Cymbalta. (less than 30 mg now. cut Klonopin to 1/4 mg now. Trazadone 50 mg 4/14/16Variety of ADs, Buspar, Effexor, Celexa, Zoloft, Wellbutrin (to quit smoking. Success!) Cymbalta, Klonopin from '95 to present.Norco (Vicodin or Hydrocodone) '92 to 2014 - cold turkey - minor issuesHad 1 day with withdrawal symptoms - dealing mostly with Side Effects. April 7, 2016: now taking Ami 12.5 and Cymbalta 30 mg. (in bead form) still 1/2 mg Klonopin. Melatonin 10 mg (have been for years). 1 Trazadone 50 mg for sleep. Amino Acids, Omega 3,6 and 9 w/DHA. Turmeric and Ibuprofen for pain,Tramadol, 50 mg, as needed (PRN) - take maybe 1 per day for Fibro pain. Had one day of very swollen calves and ankles, one day of lumps on calves, all better. Today the toes, lasted 2 hrs, now gone. Important to note I am getting off these drugs BECAUSE of multiple side effects. BM much better, I have an appetite and crave healthy foods again. More energy, but not nervous. Sleeping great, much easier to rise, ok with 7 hrs/sleep, used to need 9 or 10.No burning toes 2nd day. Doing well so far. 4/14/16. legs, ankles still an issue, but less so. <p>
4/21/16.>>>> went to 4 tablets Cymbalta and 15 mg Ami and cut Klonpin to 1/8.
UPDATE: 5/5/16 - 15 mg Amitriptyline, 3 tablet Cymbalta (there are 12 in a 60 mg capsule,) very little Klonopin, 50 mg Trazadone, 10 mg Melatonin, Inositol and Ashwagandha. Tramadol PRN.
---- feeling great - no addl. symptoms , only 3 times something like you all list here. leg/ankle swelling still an issue, but not so much-----

6/5/2016 - All done, except for Trazadone. 50mg/nt is all. It is next, in a couple of months. No more Tramadol either - that was unintentionally, but hey, I am not complaining. I am using Kratom once or twice daily.

6/13/2016 - 25 mg of trazadone. 
Doctor is happy for me how well this is all going. :) Almost done with it all!!

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ingridphoenix

 

 

I read the book "Coming off Antidepressants" by Joseph Glenmullen, and I always recommend it to people thinking of tapering, that book was my big lightbulb moment when I suddenly understood what was going on and that I was experiencing withdrawals, it is still available on Amazon and I can really recommend it.

That is an expensive book! I was determined and found 1 copy at abebooks.com

amazon was spendy - lol - but you so highly recommended it, I bought it. Thanks!

 

 

ingridphoenix I am in the UK so I have a feeling it was cheap and readily available here at the time, no idea why it's so expensive in the US.

 

I think it is out of print now - so it is rare. I got my copy - it was shipped - so thanks again for recommending it! Can't wait to read it. :)

Getting off Amitriptyline 25 mg, on 12.5 mg now. 50 mg to 25 mg; Cymbalta 60 mg, currently 30 mg/day for 15 days. Decided to cut open remaining 60 mg capsules and take the little tablets inside. 6 = 30 mg. If need be, I can up the dosage, but aside from a bit of toe pain I am ok.UPDATE: >>>>> Amitriptyline 25 mg 1992- ??? ----- 50 mg until March 21, 2016. 2016 - then 25 mg <<<<<went to 20 mg of Amitriptyline, and down 5 tiny tabs of Cymbalta. (less than 30 mg now. cut Klonopin to 1/4 mg now. Trazadone 50 mg 4/14/16Variety of ADs, Buspar, Effexor, Celexa, Zoloft, Wellbutrin (to quit smoking. Success!) Cymbalta, Klonopin from '95 to present.Norco (Vicodin or Hydrocodone) '92 to 2014 - cold turkey - minor issuesHad 1 day with withdrawal symptoms - dealing mostly with Side Effects. April 7, 2016: now taking Ami 12.5 and Cymbalta 30 mg. (in bead form) still 1/2 mg Klonopin. Melatonin 10 mg (have been for years). 1 Trazadone 50 mg for sleep. Amino Acids, Omega 3,6 and 9 w/DHA. Turmeric and Ibuprofen for pain,Tramadol, 50 mg, as needed (PRN) - take maybe 1 per day for Fibro pain. Had one day of very swollen calves and ankles, one day of lumps on calves, all better. Today the toes, lasted 2 hrs, now gone. Important to note I am getting off these drugs BECAUSE of multiple side effects. BM much better, I have an appetite and crave healthy foods again. More energy, but not nervous. Sleeping great, much easier to rise, ok with 7 hrs/sleep, used to need 9 or 10.No burning toes 2nd day. Doing well so far. 4/14/16. legs, ankles still an issue, but less so. <p>
4/21/16.>>>> went to 4 tablets Cymbalta and 15 mg Ami and cut Klonpin to 1/8.
UPDATE: 5/5/16 - 15 mg Amitriptyline, 3 tablet Cymbalta (there are 12 in a 60 mg capsule,) very little Klonopin, 50 mg Trazadone, 10 mg Melatonin, Inositol and Ashwagandha. Tramadol PRN.
---- feeling great - no addl. symptoms , only 3 times something like you all list here. leg/ankle swelling still an issue, but not so much-----

6/5/2016 - All done, except for Trazadone. 50mg/nt is all. It is next, in a couple of months. No more Tramadol either - that was unintentionally, but hey, I am not complaining. I am using Kratom once or twice daily.

6/13/2016 - 25 mg of trazadone. 
Doctor is happy for me how well this is all going. :) Almost done with it all!!

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In the U.S., the book is called The Antidepressant Solution.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 2 weeks later...

I got it at the library after reading his first book oddly enough both of the books were falling apart by the time I got them I sure hope the library bought some new copies. I started to wake up reading the first one I was already off the drugs but reading what he was seeing in his patients when they were on the drugs... I could see myself as I had many of the things his patients had... twitching eyes for one that one sticks in my mind... 

 

Somebody has suggested he be the person to do the needed research.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I just searched his books...

The Pornographer's Grief: And Other Tales of Human Sexuality Paperback – March, 1994

A Harvard psychiatrist and expert on human sexuality shares some of his most fascinating cases, covering sexual behavior, drugs, trauma, and religious repression.

 

 

Prozac Backlash: Overcoming the Dangers of Prozac, Zoloft, Paxil, and Other Antidepressants with Safe, Effective Alternatives Paperback – Apr 17 2001

Dr. Joseph Glenmullen, a psychiatrist who has a private practice and also works for Harvard University Health Services, sees this antidepressant mania as dangerous, even reckless. He notes that these drugs can have severe side effects, including uncontrollable facial and body tics, which could be signs of severe and permanent brain damage. About 50 percent of patients suffer often-debilitating withdrawal symptoms from them, and about 60 percent end up with sexual dysfunction. And Prozac may make a small number of people homicidal or suicidal, or both.

 

 

Sexual Mysteries: Tales of PsychotherapyPaperback – Apr 20 2000 same as the other book 
by Joseph Glenmullen (Author), Robert Coles M.D. (Foreword)
I read this book under its previous title, "The Pornographer's Grief," and am glad to see it has been re-published under the title "Sexual Mysteries" (a better description of its contents). This is a charming book of insightful stories from the author's general psychiatric practice. Each of the chapters discusses a different patient in dialogue form. While these are true stories of therapy, they are so well written they read like good fiction. They provide an unusual opportunity to look in on someone else's life and their problems, how those problems play out in their sexual life (or how they are manifested in sexual symptoms), and how the problems are solved through therapy
The Antidepressant Solution: A Step-by-Step Guide to Safely Overcoming Antidepressant Withdrawal, Dependence, and "Addiction"

check this review note the author

 
Alan Stone, M.D., Professor of Psychiatry and Law, Harvard University, former President of the American Psychiatric Association Dr. Glenmullen has assembled from every possible source the clinical and scientific evidence that there are costs as well as benefits to Prozac and related drugs. He warns us that no one really knows the long-term consequences of these chemicals on the brain.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • 3 months later...

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • 1 month later...
  • Moderator

This is not Glenmullen, it is a list of Post SSRI withdrawal symptoms from Fava:

 

http://hulpgids.nl/assets/files/pdf/DESS.pdf

 

compare/contrast.  Maybe one is easier to use than the other, maybe someone will prefer this one.

 

Lots of overlap, but it's good to get confirmation that Glenmullen is not the only one who has a withdrawal symptoms list!

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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That's a really well laid out comparison chart.  Great find!  I will try and combine Glenmullen's symptoms with Fava's symptoms in a comparison chart.

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 6 Mar 2021:  Pristiq 0.328 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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  • Moderator Emeritus

I was curious as to what differences there are between the two lists:

 

Fava omits:  Suicidal thoughts; Suicide attempts; Self-harm; Homicidal thoughts or urges; Manic-like reactions; Impulsivity; Electric zap-like sensations in brain; Electric shock-like sensations in body; Chest pain; Hung over or waterlogged feeling: Change in appetite

 

Fava:  Unusual sensitivity to sound     Glenmullen:  Auditory hallucinations

 

I find the majority of the omissions alarming (the first 8 specifically) considering that this is a Discontinuation-Emergent Signs and Symptoms list and the copyright is for the Massachusetts General Hospital.

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 6 Mar 2021:  Pristiq 0.328 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Well spotted cc

I noticed Favas was about 43 symptoms and i think Glenmullen has 58 but i didnt look into what was omitted.

Gee that is disappointing to ommit all those very common things....ok lets not make it a sticky ...i'll  take that back

 

This is odd because one of my favourite quotes is this

 

Fava,  2006 published a paper citing further withdrawal symptoms, such as "agitation, anxiety, akathesia, panic attacks, irritability, aggressiveness, worsening of mood, dysphoria, crying spells or mood lability, overactivity or hyperactivity, depersonalization, decreased concentration, slowed thinking, confusion and memory/concentration difficulties." To the authors, these symptoms and their widespread recurrence looked increasingly like a drug-related syndrome.

 

I know there is  more than one Fava.

But if they are the same then surely to mention akathisia is to mention SI

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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  • 2 years later...
  • Moderator Emeritus

Just bumping this to let members know about the computer and printable symptom lists.  Each sheet is set up for 1 month using the symptoms from:  Dr Joseph Glenmullen's Withdrawal Symptoms

 

At the bottom left of each list is rating code for symptoms:  SEVERITY SCORE FOR DAY:  None=0;  Mild=1-3; Moderate=4-7; Severe=8-10

 

PDF Monthly List of Dr Glenmullen's Symptoms to Print

 

PDF Monthly List BLANK to Print
 
Excel Spreadsheet Monthly format of Dr Glenmullen's Symptoms to use on the computer   SUGGESTION:  Keep the first sheet as master blank sheet and copy it to a new sheet each month.

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 6 Mar 2021:  Pristiq 0.328 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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  • 6 months later...
On 6/8/2012 at 3:02 AM, dalsaan said:

ADMIN NOTE www.drglenmullen.com seems to be closed.

 

The checklist is here (PDF will download) glenmullen_symptoms_AS Appendix 1.pdf
 
Our esteemed member ChessieCat has provided these resources:

PDF Monthly List of Dr Glenmullen's Symptoms to Print & PDF Monthly List BLANK to Print
 
Excel Spreadsheet Monthly format of Dr Glenmullen's Symptoms to use on the computer
 
Related topics:

Rate symptoms daily to track patterns and progress

What symptoms should I expect while tapering?

Papers on diagnosis of antidepressant withdrawal syndrome

Guides to tapering off psychiatric medication



Hi Glenmullen has provided a checklist of withdrawal symptoms available here [see below] I found this helped me put 2 and 2 together in terms of the diverse range of symptoms I was experiencing (some obvious ones I had identified as withdrawals, others I thought were an unfortunate coincidence : ). The checklist got me on the right page as such. Its also helpful to track changes with dose reductions and to take to Dr's appts. I have printed a heap of them odd and have them in a folder. It can help gps understand and accept what you are saying It may not be perfect but I think it helps to get your head around it and short circuits reading a lot of stuff Don't know if you want to put this with the intro stuff or start a thread for it or ... And I don't know how to make it a link as such Dalsaan

 

 

 

@manymoretodays I shall track with this. Thank you so much. 

~DS~

On Lexapro 20 mg for 6 years. 

*Tapered down from 20 mg to 10 mg starting Dec 10, 2018 and hit 10 mg around March 13. 

         - waited over one month on 10 mg -

*Started my taper from 10 mg around April 15. 

*Reached 5 mg on June 14. 

***** currently using Valium daily (sometimes Xanax as emergency) for panic/anxiety

* Valium 5 mg when start of a panic. Sometimes 10 mg. Started as soon as I started the taper.  

* Xanax when I am in the throws before stabilization of a dose- for emergency, major anxiety. 1 mg.  This could range from every day for one week. Or none at all for 2 months. 

* the Valium however is constant

 

~~ I am currently trying to stabilize on 5 mg lexapro ~~

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On 2/11/2016 at 5:50 PM, ChessieCat said:

Excel version - Dr Glenmullen's Symptoms List for completing on the computer (slightly revised version of the original I did last year - I added some blank lines and corrected a typo)

 

 

CC

Dr Glenmullens Symptom List for Month.xls 17.5 kB · 999 downloads

Thank you for this!

~DS~

On Lexapro 20 mg for 6 years. 

*Tapered down from 20 mg to 10 mg starting Dec 10, 2018 and hit 10 mg around March 13. 

         - waited over one month on 10 mg -

*Started my taper from 10 mg around April 15. 

*Reached 5 mg on June 14. 

***** currently using Valium daily (sometimes Xanax as emergency) for panic/anxiety

* Valium 5 mg when start of a panic. Sometimes 10 mg. Started as soon as I started the taper.  

* Xanax when I am in the throws before stabilization of a dose- for emergency, major anxiety. 1 mg.  This could range from every day for one week. Or none at all for 2 months. 

* the Valium however is constant

 

~~ I am currently trying to stabilize on 5 mg lexapro ~~

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  • 5 months later...
On 6/8/2012 at 6:54 PM, Altostrata said:

Thanks, dalsaan. A valuable addition to our Tapering section.

 

I thought Joseph Glenmullen's book The Antidepressant Solution was excellent. His tapering schedule is moderate, but he specifies over and over that it should be slowed if needed for the individual.

 

It's also a good book to give to your doctor. Joseph Glenmullen is a Harvard psychiatrist. The book has a complete citation section.

I have brought the book over the internet, it sounds really good, maybe I might give a copy to my doctor.

  • 13th of August 2019 started to take 20 mg citalopram
  • 😀24th of August 2019 down to 10mg stopped citalopram altogether on the 30th of August 2019
Quote

Short term citalopram

 

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  • 2 weeks later...
ChickenBurrito

This topic is blowing my mind. I just ordered a copy of the book, and can't wait to read it.

 

I am having symptoms from both columns of the checklist. 

 

What I just realized, thanks Nikki, is that I am having numbness issues in my both hands.....from having my elbows bent while sleeping. Not a problem I have had often in the past, though I do have some cartel tunnel issues in my right wrist. Symptoms continue to evolve, or atleast become acknowledged.

 

My worst symptoms to date are anxiety, sudden rage and self harm. Awful. These symptoms were less frequent before I began taking Citalopram; now they are a daily, lurking menace.

 

Thanks to all, CB

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

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  • 2 months later...
  • Moderator
manymoretodays

  

15 hours ago, CyanideFlower said:

Titled:  App for tracking symptoms

 

Hi everyone :) I tried looking up apps that can help me track symptoms. I couldn't find anything that fits my needs - they were either unusable, or they were actually for tracking mood...

Is anyone using apps to track their symptoms?

 

For me, the best thing would be being able to enter a symptom (from a list is OK too) and be able to "check" when it's happening, at least. Even better if you can add how bad the symptom is (numbers or words).

 

Thanks a lot and stay safe,

CF.

 

(sorry if it's the wrong forum for such things)

 

Edited by manymoretodays
quoted here for CyanideFlower

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016. 

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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  • 3 weeks later...

I hope I am posting in the right spot. I have had a symptom since yesterday afternoon and it won't go away. It feels like my body is shaking inside. Like trembling or chills but I'm not cold so I am imagining trembling. It has kept me up tonight. Hard to sleep with it... Anyone have this...is there a way to manage it for sleep- meditation or something?

LZie, Zoloft 25 mg, 3/31-4/6, 

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ChickenBurrito

I have had the vibrational feeling in my legs off and on for the last ten months or so. The symptom is typically worse when I am anxious about something. Often I don't know what I am anxious about, but sharing it out loud to my wife is really helpful. I have to say out loud that I am feeling anxious, my body is tense, I am afraid and so on. Acknowledging my anxiety often serves as a reset of the overwhelming feelings I am experiencing and nine times out of ten it helps. Also, I have taken to telling myself that it is o.k. if my legs are vibrating/trembling and that it is o.k. to be anxious.

 

Another thing I have done is 4-8 breathing. Breathe in for four seconds and then slowly breathe out for 8 seconds. The exact timing isn't important; inhale slowly and then exhale for two to three times longer than the inhale.  Adjust the length and speed of breaths if you get light headed. I do like four or five cycles normally, but will often do more when I am feeling anxious.

 

Sleep hygiene helps. Establish a routine at bed time and stick to it. Dim the lights for a half hour or so before you want to go to sleep. Eliminate all screen time. Read something other than news or current events with a red light. 

 

I use exercise just about every day to help fatigue my legs just a bit. Not too much, though.

 

I have also been taking Benadryl just before bed time to put the tiredness just a bit over the top, which is a bonus now since it's hay fever season.

 

Stretching and massaging my legs before my bedtime routine has also helped once or twice in the past.

 

I hope this helps, CB 

 

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

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Thank you @ChickenBurrito. I don't think Benadryl would be a wise decision for me. I tried D3 yesterday and it set my system in distress

 

May I ask how you manage the pain with this? It's intense today. Head pressure, fire and overall pain. Happened after the shaking last night. Unbearable. Thx

 

 

LZie, Zoloft 25 mg, 3/31-4/6, 

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ChickenBurrito

That sounds rough. I have nothing for you. Sorry.

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

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On 4/27/2020 at 10:32 AM, Lzieb said:

May I ask how you manage the pain with this?

 

This link is about managing pain.  I hope it helps.

 

Non-drug techniques for dealing with body pain

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg 1986-1991 CT, soon reinstated.  CT 2000. RI 1 mg 2011-2016.  Sept. 2016  0.625mg X 3

Nov.27, 2020, 7-week Ativan-Valium crossover + change to one 18.75mg dose, w/1 month hold.

Feb. 9, 2021, begin 10% every 4 weeks taper.  Current dose as of Feb. 23: 16.0mgai.

 

Imipramine 75 mg daily since 1986.  Jan. 2016 began every 3-weeks 10% taper, down to 16mgai (0.44mgpw).  Aug 2016, discovered SA, holding at 16mg.  Taper is 78% complete.  

  

Supplements: omega, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg.


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

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