leavingorganon Posted December 21, 2020 Share Posted December 21, 2020 (edited) Here are some good online resources for CPTSD: https://www.outofthestorm.website https://www.havoca.org -------------------------------------------------------------------------------------------------------------------------------- I'm curious to know what this community thinks of the subjects of trauma, emotional/narcissistic abuse, and CPTSD. I've been reading some of Pete Walker's work and it's been absolutely helpful in my journey to rely less and less on psychiatric meds. I found this particular article useful to deal with Emotional Feedback (i.e. emotional spiral in this community's parlance). Specifically the table at the end with the 13 steps to deal with the flashback. Edited November 15, 2023 by getofflex added some links for online CPTSD support General history: 2005 - Present: Remeron, various dosage between 7.5mg to 30mg 2011 - 2014: Lexapro, 10/20mg 2014 - 2016: Zoloft, various dosages 2016 - 2018: Pristiq, various dosages 2018 - Present: Brintellix 10/20mg, 2019: Klonopin, 0.125mg as needed. Successfully got off of it in December. Concerta XR, stopped in December. November 2019 - January 2020: Latuda 9mg December 2019 - Present: 30mg Dextroamphetamine (for ADHD, don't plan to get off of that for now) Updates: Brintellix: Reduced to 10mg in December 2019. Reduced to 5mg in January 2020. Upped to 7.5mg in February 2020. So, currently: 7.5mg Remeron, 7.5mg Brintellix Link to comment Share on other sites More sharing options...
Marian Posted December 24, 2020 Share Posted December 24, 2020 Hey, thanks for the article. I struggle with complex ptsd, i believe. I have some childhood trauma, but more adult trauma in a narcissistic relationship. Also the medication, treatment and withdrawal (psychosis) caused a trauma in itself. Still have all the symptoms, but Pete Walker was useful for me too! How are you doing now? 2011-2012 Adjustment disorder with anxiety. Oxazepam, seroquel. 2012 Cold turkeyed both, psychosis 2012 Haldol, ativan 2013-2014 Efexor 2014 Quick taper, psychosis 2014-2016 Bad interaction with antibiotic (fluoroquinolone). On and off haldol many times, cold turkeyed. 2016 Olanzapine 2016-2018 Back to haldol, slow taper without doc 2mg to 0.5mg 2018-2020 0.5mg haldol Nov 2020 Stressrelated psychosis. Begin dec 2020 Ativan 10mg, half dec 0mg. Haldol begin dec 2.5mg. Jan haldol 1mg. Link to comment Share on other sites More sharing options...
Moderator hayduke Posted December 28, 2020 Moderator Share Posted December 28, 2020 Resonates here. When I was drugged I was the 'sick one' in my family and it was all said to be genetic! ***ed for life, poor hayduke, tut tut, how sad. How convenient for everyone else. The reality that has been emerging in part looks like trauma from being sexually abused as a small child, raped in early 20s, narcissistic traits in one parent and serious dysfunction in the other. I am pretty sure there is intergenerational trauma in play which I'd like to learn more about. I now have a useful working diagnosis of C-PTSD and am well on my way out of the quicksand I was left for dead in, healing, with a lot more wisdom about how to steer clear of toxic people. Bessel van der Kolk's The Body Keeps the Score is a key work worth mentioning. 1 I am not a health professional - your actions are your own. Please do not seek tapering support via private message - "Any reason to hold is a good one" My taper visualised as a graph | My intro thread Backdrop: 2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole 2015: olanzapine 10 -> 7½ -> 6⅔ -> 5mg by crude pill cutter 2018: Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold Jan 2019 2.50mg water titration -> Jan 2020 1.214 -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂 Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^ Jan-Feb 2024 cross taper off shots to 1mg risperidone Ask not what you can do for your country, but what your country did to you" -- KMFDM Link to comment Share on other sites More sharing options...
Moderator Emeritus getofflex Posted November 15, 2023 Moderator Emeritus Share Posted November 15, 2023 (edited) Yes, I have CPTSD. I had a malignant narcissistic mother who abused me physically and mentally, and was neglectful. There was some very twisted psychological abuse. She turned my 3 siblings against me in early adulthood even. I believe this caused me anxiety and depression, and this is why I was put on drugs. I believe that if I had received the proper help and support, I wouldn't have needed drugs. In the 1980's, when I was seeking help, little was known about narcissism and CPTSD. I'm glad there is more awareness about this. I believe that if we are in the throes of WD, it probably better to avoid digging up past trauma, but if the narcissist or whoever is still wreaking havoc in your life, (which mine were), it has to be dealt with. Things in my family were sort of tolerable in the recent years, but once the COVID lockdown hit, the narcissistic insanity flared up again. Edited November 15, 2023 by getofflex 1 Please do not private message me. Only tag me for urgent questions about tapering and reinstating - thank you. ***Please note this is not medical advice. Discuss any decisions about your medical care with a doctor who understands psych meds and how to withdraw from them, if you can find one. Lexapro Started Apr 15 2010 - 10 mg; started taper August 2017, recent taper info: Apr 2 '20 0.18 mg; Jul 16 0.17 mg, Aug 23 0.16 mg, Oct 7 0.15 mg, Nov 8 - 0.14, Jan 16 '21 - 0.13, Feb 7 - 0.12, Feb 22 - 0.11, Mar 26 - 0.10, May 21 - 0.09, June 15 - 0.08 Aug 16 - 0.07, Oct 6 - 0.06, Nov 21 0.05, Dec. 17 0.04, Jan 14 '22 0.03, Feb 19 0.02, Apr 18 0.01, May 15 0.005, Jul 8, 0.00. Psych Drug Free as of July 8, 2022!! Woohoo!!! other meds: Levothyroxine 75 mg magnesium in small amounts at 4 AM, before bed suppl AM: fish oil, flax oil, vit C, vit E, multivitamin, zinc suppl 8 PM: magnesium 350 mg, extended release vitamin C, melatonin 2 mg Paxil 2002 - 2010, switched to Lexapro 2010 Trazodone 50 mg. 2002 - 2019, fast tapered in 2019 Xanax 0.5 mg as needed 2002 - 2019, up to 3x weekly Link to comment Share on other sites More sharing options...
Moderator hayduke Posted November 16, 2023 Moderator Share Posted November 16, 2023 12 hours ago, getofflex said: I believe that if we are in the throes of WD, it probably better to avoid digging up past trauma, but if the narcissist or whoever is still wreaking havoc in your life, (which mine were), it has to be dealt with. Things in my family were sort of tolerable in the recent years, but once the COVID lockdown hit, the narcissistic insanity flared up again. That really resonates. I was heavily into deep trauma work in the later stages of my wd and post wd. I won't attempt that work at that phase next time. 1 I am not a health professional - your actions are your own. Please do not seek tapering support via private message - "Any reason to hold is a good one" My taper visualised as a graph | My intro thread Backdrop: 2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole 2015: olanzapine 10 -> 7½ -> 6⅔ -> 5mg by crude pill cutter 2018: Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold Jan 2019 2.50mg water titration -> Jan 2020 1.214 -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂 Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^ Jan-Feb 2024 cross taper off shots to 1mg risperidone Ask not what you can do for your country, but what your country did to you" -- KMFDM Link to comment Share on other sites More sharing options...
Mentor littlebird Posted November 16, 2023 Mentor Share Posted November 16, 2023 1 hour ago, hayduke said: That really resonates. I was heavily into deep trauma work in the later stages of my wd and post wd. I won't attempt that work at that phase next time. Kinda wishing I'd told my therapist that I wasn't up for delving so deeply into the trauma, but then again I tend to have a "how bad can it be, I'm tough" attitude and only realize in hindsight something was a bad idea. I have nothing to compare it to, but I have been wondering if the loop I was thrown for would have been so big if meds weren't changing? Live and learn, I guess! Pronouns: they/them/theirs Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since. 2002-2004, 2017-2022: Buspar, tapered down to 0 2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg 2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 2018-present: 25mg Pristiq 2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed Link to comment Share on other sites More sharing options...
Moderator hayduke Posted November 16, 2023 Moderator Share Posted November 16, 2023 1 hour ago, littlebird said: Kinda wishing I'd told my therapist that I wasn't up for delving so deeply into the trauma, but then again I tend to have a "how bad can it be, I'm tough" attitude and only realize in hindsight something was a bad idea. I have nothing to compare it to, but I have been wondering if the loop I was thrown for would have been so big if meds weren't changing? Live and learn, I guess! Yeah there has to be a balance. I wouldn't have been able to do my major healing with EMDR if I hadn't been tapering at the time. I think that portion was really helpful. Later in wds and after I think I got overambitious with trying to make a timeline of adverse events. It was so triggering. It makes sense to me now that not giving myself constant flashbacks will be the way forward the next time. Reading Pete Walker's CPTSD Handbook has helped with that perspective. 1 I am not a health professional - your actions are your own. Please do not seek tapering support via private message - "Any reason to hold is a good one" My taper visualised as a graph | My intro thread Backdrop: 2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole 2015: olanzapine 10 -> 7½ -> 6⅔ -> 5mg by crude pill cutter 2018: Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold Jan 2019 2.50mg water titration -> Jan 2020 1.214 -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂 Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^ Jan-Feb 2024 cross taper off shots to 1mg risperidone Ask not what you can do for your country, but what your country did to you" -- KMFDM Link to comment Share on other sites More sharing options...
Mentor littlebird Posted December 11, 2023 Mentor Share Posted December 11, 2023 On 11/15/2023 at 8:49 PM, hayduke said: Reading Pete Walker's CPTSD Handbook has helped with that perspective. Sorry for the late response, I lost track of this thread! Love Pete Walker's work, one of my favorite authors (and I find he presents things in a safer way than the Body Keeps the Score guy did). On 11/15/2023 at 8:49 PM, hayduke said: Later in wds and after I think I got overambitious with trying to make a timeline of adverse events. It was so triggering. That timeline of adverse events is brutal. Did it in a support group once, had to ask for a second page. There was so much I hadn't realized was traumatic at the time, then in the introduction of the activity realized a lot of my "normal" was trauma. Gladly haven't had someone ask for another one of those! On 11/15/2023 at 8:49 PM, hayduke said: It makes sense to me now that not giving myself constant flashbacks will be the way forward the next time So hard to set limits with myself, I tend to push push push... but maybe part of the cPTSD homework is taking breaks and not being stuck in "drive." How have you been doing with cPTSD these days? Have you found anything that helps? 1 Pronouns: they/them/theirs Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since. 2002-2004, 2017-2022: Buspar, tapered down to 0 2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg 2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 2018-present: 25mg Pristiq 2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed Link to comment Share on other sites More sharing options...
Moderator hayduke Posted December 11, 2023 Moderator Share Posted December 11, 2023 (edited) 5 hours ago, littlebird said: Sorry for the late response, I lost track of this thread! Love Pete Walker's work, one of my favorite authors (and I find he presents things in a safer way than the Body Keeps the Score guy did). That timeline of adverse events is brutal. Did it in a support group once, had to ask for a second page. There was so much I hadn't realized was traumatic at the time, then in the introduction of the activity realized a lot of my "normal" was trauma. Gladly haven't had someone ask for another one of those! So hard to set limits with myself, I tend to push push push... but maybe part of the cPTSD homework is taking breaks and not being stuck in "drive." How have you been doing with cPTSD these days? Have you found anything that helps? Definitely take it easy in wds and afterwards. I started compiling my timeline just to sort it all out for once and all, and to prepare to seek damages. I think it will be helpful with therapists in future, too. But it was too much to take on at that stage of long term withdrawal - I wound up having daily flashbacks, part of the hot water I was in this year. Another part was the emotional release of years and years of drug-suppressed emotions, another reason I will take my next endgame taper more slowly, along with dopamine supersensitivity. That's really validating to hear someone else has come up with the concept of the timeline. But I would be careful just expecting that to go well in a group class, because it can so quickly become overwhelming. It seems to me that flashbacks are often mistaken for psychosis. I might use my time while I am still on a considerable dosage to do things like refine the timeline and review my medical records, while sedated. Though I still don't want to open the recent ones and might well not. Sensible limits are really good. I feel like I've done the major healing I need to to function well, and while there is a ton more I'd like to resolve, it can probably wait for now. I may do some EMDR during my next taper, but I will park the remainder for 5 years down the road or something if it bugs me. I wish my psychologist had been more aware of the mechanics of my taper. At this stage, since being re-drugged, I don't notice more than a few flashbacks a week and they are usually pretty quickly damped. So I don't have to do much to manage the condition except be mindful for now. I am looking forward to being on a lower dose and able to do some healing work again. Despite what I've written above, I would much rather look my demons in the eye than pretend everything is cool when they're locked in the basement and making a racket. Probably best to let them up one at a time though 🙂 Edited December 11, 2023 by hayduke 1 I am not a health professional - your actions are your own. Please do not seek tapering support via private message - "Any reason to hold is a good one" My taper visualised as a graph | My intro thread Backdrop: 2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole 2015: olanzapine 10 -> 7½ -> 6⅔ -> 5mg by crude pill cutter 2018: Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold Jan 2019 2.50mg water titration -> Jan 2020 1.214 -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂 Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^ Jan-Feb 2024 cross taper off shots to 1mg risperidone Ask not what you can do for your country, but what your country did to you" -- KMFDM Link to comment Share on other sites More sharing options...
FeralCatman Posted December 15, 2023 Share Posted December 15, 2023 This link is a great description of trauma and why it is so hard but not impossible to recover from. I found it very useful. This article explains exactly why I'm having a hard time now and why I've always had a hard time and also that you can heal from it but it is very hard. So I think my therapist is right a lot of what's going on now is becoming less about the drug withdrawal and more about no longer having my emotions suppressed and all this stuff is coming back to bite me in the ass. Why it's hard to heal from trauma | Three challenges of trauma https://www.carolynspring.com/blog/three-challenges-of-trauma-why-recovery-is-so-hard/ 3 Current Psychiatric Medications Paxil 10mg daily (a.m.) 2017 - Present Carbamazepine IR 190 mg twice daily (380mg Daily) 2011 - Present (Currently Tapering) Past Psychiatric Medications From 1994 to August 2021 Seroquel (in Recovery since August 2021 final dose 6.25mg), Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary) Current Non Psychiatric Medications - Levothyroxine 88mcg (a.m.)-Vitamin D3 1000 IU (p.m.)-Fexofenadine 180 mg twice daily -Clonidine 0.1 mg (p.m.)-Azelastine Nasal Spray Other - Fish Oil Twice Daily-Multi-Vitamin (a.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Magnesium Citrate 250mg twice daily, Betaine HCL & Digestine Enzymes With Meals Quitting Seroquel_A Vacation In Hell_Redacted.pdf Other Documents https://www.survivingantidepressants.org/topic/26099-feralcatman-recovering-from-seroquel/?do=findComment&comment=633907 Link to comment Share on other sites More sharing options...
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