Moderator Emeritus WiggleIt Posted February 1, 2015 Moderator Emeritus Share Posted February 1, 2015 We can only be improved if you make our problem be heard and get some researchers to help else we are doomed I am telling you the truth .Our only hope is to get doctor and researcher involved but I am trying here to raise people awareness but they just are not interested in pursuing a solution.If we don`t fight for our health no body will. People here ARE interested in finding a solution, but are too sick right now to be able to actively pursue the solutions. It's the recovered people whose help we need because they are well enough to do something, PLUS they have the knowledge. Personally, when I'm well enough, nobody is going to be able to stop me from publicly voicing the dangers of these drugs, but right now, I'm too handicapped to do anything. THAT'S how the drug companies get away with it: because after they hurt people, those people are too sick to stand up for themselves. Lack of ability to pursue the solution is NOT the same thing as lack of desire to do so. *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment Share on other sites More sharing options...
btdt Posted February 2, 2015 Share Posted February 2, 2015 We can only be improved if you make our problem be heard and get some researchers to help else we are doomed I am telling you the truth .Our only hope is to get doctor and researcher involved but I am trying here to raise people awareness but they just are not interested in pursuing a solution.If we don`t fight for our health no body will. Do you have any opinion on the article I posted? WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
MRothbard Posted September 17, 2015 Share Posted September 17, 2015 Anybody ever have a bad reaction to steroids? Last september my doc put me on some for an ear infection. They knocked me back into depression/anxiety big time. Anyone else this kind of reaction? 1 September 2014 to July 2015 - 20 mg Lexapro, 30mg Mirtazipine August 2015 to November 2016- 10mg Lexapro, 30 mg Mirtazipine Nov. 2016 to Nov. 2017 - 10mg Lexapro, 3.75 mg Mirtazipine Nov. 2017 to Mach 2018 - 5mg/2.5mg Lexapro, 0mg Mirtazipne Mach 2018 to Dec. 2018 - 0mg Lexapro, 0mg Mirtazipne Link to comment Share on other sites More sharing options...
Meimeiquest Posted September 17, 2015 Share Posted September 17, 2015 This is pretty common. I think you can find a thread on it. 1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms. Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12 Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13 Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15 11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble) 9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol 7.4.14 Started Walsh Protocol 56 years old Link to comment Share on other sites More sharing options...
Moderator Emeritus Petunia Posted September 18, 2015 Moderator Emeritus Share Posted September 18, 2015 (edited) Steroids (Prednisolone) in SSRI withdrawal - Symptoms and ... topics merged Edited September 21, 2015 by Petunia I'm not a doctor. My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one. My Introduction Thread Full Drug and Withdrawal History Brief Summary Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects 2 month 'taper' off Lexapro 2010 Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms Failed reinstatement of Lexapro and trial of Prozac (became suicidal) May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins. Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes Supplements which have helped: Vitamin C, Magnesium, Taurine Bad reactions: Many supplements but mostly fish oil and Vitamin D June 2016 - Started daily juicing, mostly vegetables and lots of greens. Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered Oct 2016 -Symptoms returned - bad days and less bad days. April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close. VIDEO: Where did the chemical imbalance theory come from? VIDEO: How are psychiatric diagnoses made? VIDEO: Why do psychiatric drugs have withdrawal syndromes? VIDEO: Can psychiatric drugs cause long-lasting negative effects? VIDEO: Dr. Claire Weekes Link to comment Share on other sites More sharing options...
MRothbard Posted September 19, 2015 Share Posted September 19, 2015 thanks everyone September 2014 to July 2015 - 20 mg Lexapro, 30mg Mirtazipine August 2015 to November 2016- 10mg Lexapro, 30 mg Mirtazipine Nov. 2016 to Nov. 2017 - 10mg Lexapro, 3.75 mg Mirtazipine Nov. 2017 to Mach 2018 - 5mg/2.5mg Lexapro, 0mg Mirtazipne Mach 2018 to Dec. 2018 - 0mg Lexapro, 0mg Mirtazipne Link to comment Share on other sites More sharing options...
btdt Posted March 5, 2016 Share Posted March 5, 2016 I have taken prednisone twice in the past year or so and feel I am still not fully recovered from the last round I took it for 4 days in Nov 2015 this is March....so 4 months out I am not back to where I was before I took it... It may be just me or it may be the wd and previous ssri snri drug use has made me suspetible to what is called steroid dementia... I had the feeling of my brain shutting down could not drive ect... a warning if you can avoid this drug post serotonin drug use I think it wise to avoid it. Below you will find a bit of what I have learned about prednisone it is another drug that needs to be taper and has a wd of years... just so you know. wiki Glucocorticoids may be used in low doses in adrenal insufficiency. In much higher doses, oral or inhaled glucocorticoids are used to suppress various allergic, inflammatory, and autoimmune disorders. Inhaled glucocorticoids are the second-line treatment for asthma. They are also administered as post-transplantory immunosuppressants to prevent the acute transplant rejection and the graft-versus-host disease. Nevertheless, they do not prevent an infection and also inhibit later reparative processes. Here is a table of potency and list of the different names to avoid if you can Comparative steroid potencies [19] [20] Name Glucocorticoid potency Mineralocorticoid potency Duration of action (t1/2in hours) Cortisol (hydrocortisone) 1 1 8 Cortisone 0.8 0.8 oral 8, intramuscular 18+ Prednisone 3.5-5 0.8 16-36 Prednisolone 4 0.8 16-36 Methylprednisolone 5-7.5 0.5 18-40 Dexamethasone 25-80 0 36-54 Betamethasone 25-30 0 36-54 Triamcinolone 5 0 12-36 Beclometasone 8 puffs 4 times a day equals 14 mg oral prednisone once a day[clarification needed] - - Fludrocortisone acetate 15 200 24 Deoxycorticosteroneacetate (DOCA) 0 20 - Aldosterone 0.3 200-1000 - "Impact on Memory, Cognition, and Behavior Glucocorticoid effects on concentration, recall, abstraction, and analysis (sometimes referred to as “steroid dementia” when extreme and protracted) may be due partly to dysfunction in neural circuits in the hippocampus and the prefrontal cortex (12, 54), both of which contain high concentrations of MRs and GRs (44). Working memory is dependent on the prefrontal cortex and is involved in temporary storage of information necessary to carry out cognitive tasks like learning and reasoning (55, 56). Declarative memory, which is involved in explicit recall of verbal information, facts, and events,is dependent on the hippocampus (57, 58). Deficits in these functions can be attributed to the effect of prolonged glucocorticoid exposure on GRs or MRs in the hippocampus, reduction of hippocampal volume (59), or elevated glutamate accumulation in that area (60). Declarative memory impairment has also been associated with reduced blood flow in the medial temporal lobe during glucocorticoid therapy (21). In healthy subjects, acute glucocorticoid administration is associated with functional changes in several brain regions: decreased activity in the left hippocampus (61), reduced hippocampal glucose metabolism (48), and reduced cerebral blood flow in the posterior medial temporal lobe (21). In patients with asthma or arthritis, long-term glucocorticoid exposure is associated with smaller hippocampal volume and lower levels of temporal lobe N-acetylaspartate (a marker of neuronal viability) compared with patients with the same conditions but with minimal lifetime glucocorticoid exposure (19). Atrophy of the right amygdala, which is important for regulation of mood and anxiety, was correlated with duration of prednisone treatment in this sample (62). That said, glucocorticoids in any form—oral, topical, inhaled, or parenteral—have the potential to disrupt HPA axis function and should be prescribed only if there is no effective non-glucocorticoid treatment for the medical condition (63). In one study, HPA axis dysfunction occurred in two-thirds of 143 asthmatic children treated with inhaled corticosteroids; in one-third of those affected, adrenal suppression persisted after central function recovered (64). The more potent topical glucocorticoids can also suppress the HPA axis (65). . Numerous case studies have focused on the effects of acute glucocorticoid treatment on cognition, including difficulty with concentration, declarative memory, working memory, abstraction, and analysis (12, 13). Although generally thought to remit fully and quickly after glucocorticoid discontinuation (14), severe cognitive disturbances have occasionally been reported to persist for an extended period afterward (15). Cognitive impairments in patients have also been found in prospective studies of change associated with acute glucocorticoid treatment in children (16) and adults (7) and in longer-term treatment in adults (10), as well as studies of acutely (17) and chronically (18–20) treated patients compared with untreated patients with similar underlying illness severity. Cognitive effects of acute glucocorticoid treatment have been studied in medically and psychiatrically healthy adults (21), including in small double-blind placebo-controlled studies (22–27). Neuropsychiatric effects during glucocorticoid discontinuation have also been reported from case studies (28). Again using THIN data, Fardet et al. (29) analyzed the incidence of five severe neuropsychiatric outcomes among 21,995 adult patients during withdrawal from 1 to 3 years of oral glucocorticoid therapy, counting only new episodes present during but not prior to withdrawal. Incidence rates per 100 person-years at risk during the withdrawal period were 11.1 (95% CI510.0, 12.3) for depression; 3.9 (95% CI53.3, 4.6) for delirium, confusion, or disorientation; 0.4 (95% CI50.2, 0.7) for mania; 0.4 (95% CI50.3, 0.7) for panic disorders; and 0.03 (95% CI50.01, 0.20) for suicide or serious suicide attempt. https://psychiatry.ucsd.edu/News/publicationsofnote/Documents/ajp13091264_rp1_REV%20PROOF.pdf They call it steroid dementia nice term eh.... some books I have read equate serotonin type drugs with steroids saying they are the same thing new name... but the end result is the same. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
btdt Posted March 7, 2016 Share Posted March 7, 2016 Glucocorticoid withdrawal - UpToDate www.uptodate.com/contents/glucocorticoid-withdrawal Mar 11, 2014 - Marked alterations in dose-dependent prednisolone kinetics in women taking oral contraceptives. ... Withdrawal from glucocorticoid therapy. http://www.uptodate.com/contents/glucocorticoid-withdrawal Despite its efficacy, steroid-induced side effects generally require tapering of the drug as soon as the disease being treated is under control. Tapering must be done carefully to avoid both recurrent activity of the underlying disease and possible cortisol deficiency resulting from hypothalamic-pituitary-adrenal axis (HPA) suppression during the period of steroid therapy. (See "Pharmacologic use of glucocorticoids", section on 'HPA axis suppression'.) This topic discusses the major issues related to tapering, the regimen(s) we use in most patients, and other glucocorticoid tapering regimens that have been reported in the literature. The clinical manifestations, diagnosis, and treatment of adrenal insufficiency are presented separately. (See "Clinical manifestations of adrenal insufficiency in adults" and "Treatment of adrenal insufficiency in adults".) INDICATIONS FOR WITHDRAWING GLUCOCORTICOIDS It is helpful to briefly review the indications for glucocorticoid withdrawal before discussing the different glucocorticoid withdrawal regimens. These indications include the following .... then you have to log in or something WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
Clatterbust Posted November 13, 2018 Share Posted November 13, 2018 Hey guys, Im currently being treated with inhaled corticosteroids for my asthma. Im taking duoresp spiromax (160 micrograms of budesonide and 4.5 micrograms of formoterol fumarate dihydrate) twice a day for atleast 6 months. I do feel like my nervous system gets "triggered" after the inhalations (increased tinnitus mainly). Has anyone else been treated with inhaled corticosteroids for a long period of time? and if so, were there any complications? Paxil (20mg): Nov. 2012 - June 2014. CT of paxil. Severe psyhological symptoms. Reinstatement of Paxil (20mg): September 2014. Several attempts (4 or 5) of withdrawal, failing each time (due to increased symptoms:hypersensitivity to sounds, panic, anxiety) and reinstating back to 20mg. Last reinstatement was in January 2016. Symptoms still present. Stopped paxil cold turkey by the end of January, and switched to Citalopram (30mg) Citalopram (30mg): Feb 1st 2016 - March 17 2016. CT off Citalopram. Escitalopram (10mg): March 18 2016 - April 14 2016 Escitalopram (15mg): April 15 2016 - on going. Symptoms: Anxiety, Panic, Hypersensitivity to sounds, Tinnitus, Anhedonia. Link to comment Share on other sites More sharing options...
Floss Posted August 16, 2021 Share Posted August 16, 2021 Im 2 and a half months into a setback from a steroid after being well for 14 months , is there any point hanging on this time , i cant see recovery as a outcome for me now , i have 4 children one being a baby and i cant be the mother i am to them i feel so symptomatic , i think of ending it daily 😞 is there any chance for me , i cant see any recovery stories , has anyone recovered from a steroid? Polly drugged in 2019 adverse reaction , celexa , cymbalta, mirtazapeine , quitiapeiene , valium for one day , amitryptaline all given over 4/5 months . recovered april 2020 setback by a steroid 2021 Link to comment Share on other sites More sharing options...
Floss Posted August 16, 2021 Share Posted August 16, 2021 I had a horrific withdrawal previously and really don't think i can endure it again, is there any chance for me , please honest answers Polly drugged in 2019 adverse reaction , celexa , cymbalta, mirtazapeine , quitiapeiene , valium for one day , amitryptaline all given over 4/5 months . recovered april 2020 setback by a steroid 2021 Link to comment Share on other sites More sharing options...
Floss Posted August 16, 2021 Share Posted August 16, 2021 Why no replies , is there some damage ive caused myself from the steroid ? Polly drugged in 2019 adverse reaction , celexa , cymbalta, mirtazapeine , quitiapeiene , valium for one day , amitryptaline all given over 4/5 months . recovered april 2020 setback by a steroid 2021 Link to comment Share on other sites More sharing options...
Administrator Altostrata Posted August 16, 2021 Administrator Share Posted August 16, 2021 See above. We have seen people whose nervous systems have been sensitized by withdrawal or other adverse drug effects may react badly to steroids (and antibiotics), with an emergence or exacerbation of symptoms very much like withdrawal symptoms. It may take some time for your system to very slowly recover from being shaken up, in the usual Windows and Waves Pattern of Stabilization This may take months. Please be patient and allow your system to gradually recover. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment Share on other sites More sharing options...
Nsr99 Posted August 22, 2021 Share Posted August 22, 2021 @Altostrata @Go2zero If someone going through WD and is asked to take prednisolone (steroid) as anti-inflammatory, and knowing that it would flare up his WD symptoms, what would be an alternative? Any suggestions or clues so that the same person may present it to the doctor prescribing the steroid to consider and maybe approve. I searched but could not find any. I found some sites mentioning that some food may have natural anti-inflammatory strength, like ginger and cinnamon. I don't know if this is affective as the medication! Any ideas in this regard is appreciated. @Floss How do you feel now? 2010-2016 Cipralex 25mg October 31, 2015: Started tapering March 29, 2016: 0 mg Cipralex 2016: severe withdrawal symptoms. Link to comment Share on other sites More sharing options...
Administrator Altostrata Posted August 22, 2021 Administrator Share Posted August 22, 2021 As you know, we don't practice general medicine (or any type of medicine) here. You'd have to talk to your doctor to see what alternative treatments might be for your particular condition. Please Google for herb treatments, etc. and use your own judgment. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment Share on other sites More sharing options...
Mascasa Posted September 22, 2021 Share Posted September 22, 2021 @MRothbard I was exploring the topic of steroids and saw your question. I definitely have a connection to steroids and issues. Had a CT guided injection Sept. 2020 and within a few weeks hit the lows pretty seriously. Wasn't tapering then. Now I have been tapering and considered another steroid injection in my piriformis muscle. I did tell the doctor I had a bad reaction last time. He gave me a different steroid. Well, here I am a week later and going through the lows again after being such great windows for weeks. So hoping this will be less than last time, and move pretty quickly out of my system. I know they can stay awhile. Sept.2019 to present Lexapro August 2019 1 week on Ativan. May 10th 2021 began taper of 20 mg of Lexapro. July 5, 2021 at 12 mg. Been there two weeks. Going to stay here awhile 7/6 12 mg of Lexapro7/7 12 mg of Lexapro. 11.7 on August 8th using 2.5% Sept 6th @ 10.8 9/20 10.2 11/11/21 9.411/21 8.7 will hold for 3 weeks.12/1 to present 9 mg.*I will find the other dates from 12/1/2021.Dates I could find: 6/3/22 6.7, 7/2/33 6.3, 7/16 5.9, 8/6/22 5.6. 9/3/2022 5.6 to 5.3 5% drop, 9/30/2022 @5 5% drop, 10/302022 @ 4.8 held for a week. 9_3 5.6 to 5.3 5% drop.eml Link to comment Share on other sites More sharing options...
Floss Posted October 14, 2021 Share Posted October 14, 2021 im still in my setback and very suicidal as i was better and now can barely function they are thinking of putting me on medication again after i took so long to get better too . im devastated and have 4 children to look after . has anyone recovered from a steriod setback ? Polly drugged in 2019 adverse reaction , celexa , cymbalta, mirtazapeine , quitiapeiene , valium for one day , amitryptaline all given over 4/5 months . recovered april 2020 setback by a steroid 2021 Link to comment Share on other sites More sharing options...
Mentor Yesyes123 Posted January 22, 2022 Mentor Share Posted January 22, 2022 On 10/14/2021 at 4:56 AM, Floss said: im still in my setback and very suicidal as i was better and now can barely function they are thinking of putting me on medication again after i took so long to get better too . im devastated and have 4 children to look after . has anyone recovered from a steriod setback ? Hey floss how are you now? - Escitalopram 10mg from ages 15 - 21 - Severe crash after 4 month taper to 0 - Reinstated, stabilized, slowly tapering. "Although the world is full of suffering, it is also full of the overcoming of it." - Hellen Keller I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs. Link to comment Share on other sites More sharing options...
Ventus Posted April 25, 2023 Share Posted April 25, 2023 So I definitely can confirm avoid corticosteroids at all costs. I am sleeping again, 4 days of normal sleep, but I still feel weak and fatigued. Not to the extreme of the first 2 weeks but still pretty bad. I hope I continue to sleep well so i can continue the taper of the ssri .It's been about 15 days since I took 5 days of 10mg of prednisone. ???? To early April 2021: citalopram 20mg. This was a about 12+years April 2021: stopped taking citalopram 6/10/2021 to 6/11/2021: started taking buspirone for anxiety . Got ringing in the ears and insomnia so I stopped 6/16/2021 reinstatement of citalopram at 10mg 8/12/2021: 4.5ml/9mg citalopram 10/11/21 4ml 11/15/21 3.5ml 12/28/2021: 3ml/6mg 1/28/2022 2.5ml/5mg 2mL/4mg 3/6/2022 1.5ml/3mg 4/12/2022 5/31/2022 1ml/2mg 7/31/2022 .5ml/1mg 9/3/2022: .4ml/.8mg citalopram. after a few days got some severe withdrawal so .45ml/.9mg 9/8/2022 10/6/2022 1mg again .45ml/.9mg 12/9/2022 Link to comment Share on other sites More sharing options...
Albert Posted June 12, 2023 Share Posted June 12, 2023 On 4/25/2023 at 3:45 PM, Ventus said: So I definitely can confirm avoid corticosteroids at all costs. I am sleeping again, 4 days of normal sleep, but I still feel weak and fatigued. Not to the extreme of the first 2 weeks but still pretty bad. I hope I continue to sleep well so i can continue the taper of the ssri .It's been about 15 days since I took 5 days of 10mg of prednisone. On 4/25/2023 at 3:45 PM, Ventus said: So I definitely can confirm avoid corticosteroids at all costs. I am sleeping again, 4 days of normal sleep, but I still feel weak and fatigued. Not to the extreme of the first 2 weeks but still pretty bad. I hope I continue to sleep well so i can continue the taper of the ssri .It's been about 15 days since I took 5 days of 10mg of prednisone. So I have just taken a 5 day cycle of steroids as well. I almost feel like it has set me back to an episode that is similar to my original chronic episode. Looks like your started to settle over course of 2 weeks. Did you get lots of symptoms. Just very scary that I am dealing with this. Meds: Paroxetine, Hydrocodone, k flex, Xanax, Amatriptline, Gabapentin 1998-Apr 2020 Paroxetine 30mg. 04/20 2-week taper off, 0ff 6 weeks -05/20 reinstated 20mg, Paroxetine - Cymbalta Cross taper attempt 04/20 - 30mg - Cut CT after 6-7 weeks. Around 06/19 started Paroxetine taper from 30mg by cutting and eyeballing - By 08/19 symptoms started 09/19 - 04/20 = 3 back surgeries thinking symptoms were spine related. During that time was on and off opiods after each operation, Gabapentin 300 mg daily for about 6-8 weeks, K flex / Flexeril - once before bedtime 04/19 - 05/20, Xanax as needed for past 3 years - stopped 04/20, ( usually twice per week ), Amatriptline 10mg for aprox 6 weeks = off since aprox 02/20. Currently Tapered all the way down to 1 mg Hydro daily and 20mg Paroxetine - In severe withdrawals. Was taking .5 Hydro 2 times daily. Spread it out to 3 then 4 times daily to avoid inter dose withdrawal. Taking .5 hydroo 4 times daily. - 2mg daily. Spread Paroxetine to twice daily. 10 mg at 7 am and at 3:00 PM for a total of 20 mg daily. 04/13/2021 Paroxetine 10mg twice daily (total 20mg ) 7:00 am and 7:00 pm. 10/22/2021 Completely OFF Hydrocodone. 10/2022 - 10mg Parox AM - 9 mg parox PM ( 19mg) 01/06/2023 18mg Paroxetine-9mg am /9 mg Pm 11/2023 - Been dropping 1% every 30 days after extended hold. Currently at 17.2 mg Paroxetine daily. Link to comment Share on other sites More sharing options...
Ventus Posted June 12, 2023 Share Posted June 12, 2023 Yeah for the first 2 weeks I was too fatigued to move, in a lot of pain and couldn't sleep. After that I started to sleep and the fatigue and pain began to lessen. It was another 2 to 3 weeks of the symptoms getting slowly better until they went away. The longest lasting symptom was knee pain but that also has gone away. 17 minutes ago, Albert said: Did you get lots of symptoms. Just very scary that I am dealing with this ???? To early April 2021: citalopram 20mg. This was a about 12+years April 2021: stopped taking citalopram 6/10/2021 to 6/11/2021: started taking buspirone for anxiety . Got ringing in the ears and insomnia so I stopped 6/16/2021 reinstatement of citalopram at 10mg 8/12/2021: 4.5ml/9mg citalopram 10/11/21 4ml 11/15/21 3.5ml 12/28/2021: 3ml/6mg 1/28/2022 2.5ml/5mg 2mL/4mg 3/6/2022 1.5ml/3mg 4/12/2022 5/31/2022 1ml/2mg 7/31/2022 .5ml/1mg 9/3/2022: .4ml/.8mg citalopram. after a few days got some severe withdrawal so .45ml/.9mg 9/8/2022 10/6/2022 1mg again .45ml/.9mg 12/9/2022 Link to comment Share on other sites More sharing options...
Albert Posted June 12, 2023 Share Posted June 12, 2023 33 minutes ago, Ventus said: Yeah for the first 2 weeks I was too fatigued to move, in a lot of pain and couldn't sleep. After that I started to sleep and the fatigue and pain began to lessen. It was another 2 to 3 weeks of the symptoms getting slowly better until they went away. The longest lasting symptom was knee pain but that also has gone away. Man, thanks for reply. I am getting all kinds of symptoms that I have not had in like 2 years. !!!! Super scary. They gave me a 5 day cycle and it was just take two tablets once daily for 5 days and then they cut me off. Now my system is completely freaking out !!! I am really hope it only takes me two weeks. I was relatively stable before this event. I was tapering, but going super slow. I wonder if I should call the DR and ask to reinstate the prednisone and then slow taper. Maybe I am overthinking. Thanks Meds: Paroxetine, Hydrocodone, k flex, Xanax, Amatriptline, Gabapentin 1998-Apr 2020 Paroxetine 30mg. 04/20 2-week taper off, 0ff 6 weeks -05/20 reinstated 20mg, Paroxetine - Cymbalta Cross taper attempt 04/20 - 30mg - Cut CT after 6-7 weeks. Around 06/19 started Paroxetine taper from 30mg by cutting and eyeballing - By 08/19 symptoms started 09/19 - 04/20 = 3 back surgeries thinking symptoms were spine related. During that time was on and off opiods after each operation, Gabapentin 300 mg daily for about 6-8 weeks, K flex / Flexeril - once before bedtime 04/19 - 05/20, Xanax as needed for past 3 years - stopped 04/20, ( usually twice per week ), Amatriptline 10mg for aprox 6 weeks = off since aprox 02/20. Currently Tapered all the way down to 1 mg Hydro daily and 20mg Paroxetine - In severe withdrawals. Was taking .5 Hydro 2 times daily. Spread it out to 3 then 4 times daily to avoid inter dose withdrawal. Taking .5 hydroo 4 times daily. - 2mg daily. Spread Paroxetine to twice daily. 10 mg at 7 am and at 3:00 PM for a total of 20 mg daily. 04/13/2021 Paroxetine 10mg twice daily (total 20mg ) 7:00 am and 7:00 pm. 10/22/2021 Completely OFF Hydrocodone. 10/2022 - 10mg Parox AM - 9 mg parox PM ( 19mg) 01/06/2023 18mg Paroxetine-9mg am /9 mg Pm 11/2023 - Been dropping 1% every 30 days after extended hold. Currently at 17.2 mg Paroxetine daily. Link to comment Share on other sites More sharing options...
alex01 Posted July 13, 2023 Share Posted July 13, 2023 Hey guys, I hate using corticosteroids. I had an episode of bronchitis due to a viral respiratory infection, and I had to use it for five days (prednisolone 40 mg/ day). I finished yesterday. Today, I already had anger outbursts, and I fought with someone I love. Moments of intense depression will soon come, also due to the corticoid. That's it, a lot of anger and sadness for about one week after interrupting the corticoid. Then I go back to my withdrawal normal. Even topical corticosteroids for the maxillary sinuses cause this in me. Interesting to note that my blurred vision and fatigue got better during the use of the corticosteroid. I've already had eye exams, and my eyes are fine. I believe it is due to the withdrawal itself. - 2012-2019: Paroxetine (20-40 mg) - Jan-Mar 2020: Fast-tapering. 3 months from 40 to 0 mg - Apr 2020 - June 2022: No drugs. Severe hellish PAWS. - June 2022 - Feb 2023: Tried St John's Wort, Lexapro, Luvox, 5 htp, Paroxetine reinstatement. All caused more side effects than benefits. I also tried Mindfullness and CBT, both didn't help. - 2023: Magnesium L-Threonate 370 mg (first worthwhile sup), Omega 3 (1000DHA + 500EPA), vitamin c 500 mg and multivitamin. No alcohol. Currently, overall improvement of 40% in symptoms. Link to comment Share on other sites More sharing options...
Emma7855 Posted November 7, 2023 Share Posted November 7, 2023 Hi @Albert, did you end up reinstating the Prednisone? If so, how did that go for you? Thanks. PRN = as needed; WDR = withdrawal reaction; ADR = adverse reaction 2007: Started BC pills 2008: Prozac 0 --> 80 mg 2010: Tapered Prozac 80 --> 0 mg 2015: LSD/shrooms/MDMA once; Xanax 0.25 mg PRN; Prozac 0 --> 40 mg; Lamictal 0 --> 150 mg 2018: Tapered Prozac 40 --> 0 mg (WDR); Klonopin 0.125 mg PRN 2019: DC'd BC pills (WDR); Klonopin 0.125 mg PRN; tapered Lamictal 150 --> 35 mg (WDR); Trileptal 0 --> 4 mg 2020: Jan: one BC pill (ADR + hormonal effects); Apr-Jun: curcumin cream daily + Elidel cream PRN (ADR + hormonal effects); Oct: started melatonin 0.375 mg; Nov: acupuncture treatment (ADR + hormonal effects); Dec: tapered off melatonin 0.375 mg 2021: Jan: benzoyl peroxide cream (ADR); Feb: started probiotic; Mar: tapered off probiotic; May: Trileptal 4 mg --> 0.4 mg (ADR); Nov: Trileptal 0.4 mg --> 0.3 mg 2023: Nov: Prednisone 60 mg Current medications: Lamictal 35 mg, Trileptal 0.3 mg, Prednisone 60 mg Link to comment Share on other sites More sharing options...
Albert Posted November 20, 2023 Share Posted November 20, 2023 I did not have to re-instate the Prednisone, thank goodness. I just held out and it started to fade. Took about a month. Meds: Paroxetine, Hydrocodone, k flex, Xanax, Amatriptline, Gabapentin 1998-Apr 2020 Paroxetine 30mg. 04/20 2-week taper off, 0ff 6 weeks -05/20 reinstated 20mg, Paroxetine - Cymbalta Cross taper attempt 04/20 - 30mg - Cut CT after 6-7 weeks. Around 06/19 started Paroxetine taper from 30mg by cutting and eyeballing - By 08/19 symptoms started 09/19 - 04/20 = 3 back surgeries thinking symptoms were spine related. During that time was on and off opiods after each operation, Gabapentin 300 mg daily for about 6-8 weeks, K flex / Flexeril - once before bedtime 04/19 - 05/20, Xanax as needed for past 3 years - stopped 04/20, ( usually twice per week ), Amatriptline 10mg for aprox 6 weeks = off since aprox 02/20. Currently Tapered all the way down to 1 mg Hydro daily and 20mg Paroxetine - In severe withdrawals. Was taking .5 Hydro 2 times daily. Spread it out to 3 then 4 times daily to avoid inter dose withdrawal. Taking .5 hydroo 4 times daily. - 2mg daily. Spread Paroxetine to twice daily. 10 mg at 7 am and at 3:00 PM for a total of 20 mg daily. 04/13/2021 Paroxetine 10mg twice daily (total 20mg ) 7:00 am and 7:00 pm. 10/22/2021 Completely OFF Hydrocodone. 10/2022 - 10mg Parox AM - 9 mg parox PM ( 19mg) 01/06/2023 18mg Paroxetine-9mg am /9 mg Pm 11/2023 - Been dropping 1% every 30 days after extended hold. Currently at 17.2 mg Paroxetine daily. Link to comment Share on other sites More sharing options...
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