Jump to content

draggin49: Help! I’m really struggling


draggin49

Recommended Posts

draggin49

Hello, 

I’m 39 years old.  I’m really struggling right now . I think I may be suffering from discontinuation syndrome ??? Not sure. 


my current meds my psychiatrist had me on were 

celexa 60mg 

amitriptilene 100mg 

guanfacine 1 mg 2x per day 

Ativan 0.5 mg twice a day 

 

My psych had me taper off of amitripteline over the span of about 3.5 months . 
I was doing ok through the taper didn’t notice anything dramatic as I moved the dose lower and lower every 3 weeks . 
 

I took my last small dosage of around 6mg November 11th. 
just a couple weeks ago I got hit with severe depression /anxiety , much worse than when I was on the amitriptyline prior to tapering off . My doctor has decided to put me back on amitripteline so I’m taking 12.5 mg of that now , I’m on my second day back of taking it . I feel so horrible , I’m really struggling to get through this . Is there anything that can be done or that I can do to help get me some relief ??? Will going back on help too? I was hoping it would 


would any of these things help lessen the discontinuation syndrome? Like walking , or specific diet , vitamins ? 
I just feel hopeless and really need some guidance , help, support . I’m sorry to ask but I feel lost and without support . 
I’ve been suffering from anxiety and major depressive disorder for over 20 years . 
I look forward to being part of this group and hope I can find some help and support that I desperately need . Thank you 

 

Edited by manymoretodays
name to title, moved to Intros, reduced all caps
Link to post
  • manymoretodays changed the title to draggin49: HELP!! I’m really struggling
draggin49
Posted (edited)

Hello, 

Im really struggling here and was hoping someone could give me some insight on how I could help ease some of what I’m going through . 
my meds are 60mg celexa 

1mg guanfacine 2x daily

0.5mg Ativan 2x daily 

 

and I was on 100mg daily of amitripteline 

 

my psychiatrist put made me a taper schedule to get off amitriptyline. I followed that it was over the course of maybe 3.5-4 months till I took my last dose. .

 

I am 2 months from my last dose and I have been hit with a huge wave of severe anxiety /depression , much worse than when I was on the med . 
 

my doctor has opted to reinstate the amitripteline. Yesterday was my 3rd day back on it . This is beyond rough, the physical symptoms aren’t super bad but mentally I’m just a wreck. .It’s so overwhelming. 
 

is there anything I can do to help ease this suffering ??? I purchased vitamin D ,b12 , and omega 3 yesterday but haven’t taken them yet . I spoke with the pharmacist at target and she said that I shouldn’t have an issue taking those with my meds. If my body is depleted in these areas would these vitamins help ? Or do I just need to let my body get more doses of amitriptyline back in my system ? 
This is truly so hard , I’m not someone who would complain or ask for help unless I REALLY am struggling . 
I’m praying someone here has some info or has been through what I’m going through and can give me some insight /hope . Thank you

 

 

Edited by manymoretodays
moved from S and SC, name added to title, reduced all caps in title
Link to post
  • manymoretodays changed the title to draggin49: Help! I’m really struggling
  • Administrator
Altostrata

Welcome, @draggin49

 

How do you feel now having added 12.5mg amitriptyline back in?

 

What times of day do you take each of your drugs, with their dosages?

 

Please put ALL your drugs in the Drug Interactions Checker https://www.drugs.com/drug_interactions.php
and copy and paste the results or a link to them in this topic.

 

It is not good medical practice to prescribe those 2 antidepressants at the same time. You may wish to find another doctor.

 

To help us out, follow these instructions Please put your drug and withdrawal history in your signature You may need to use a computer to do this.

 

 

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49

Altostrata ,

tonight is my first night down to 12.5mg of amitripteline. Sorry , I only have my phone at the moment , don’t have computer access but will try and get to computer to put in my current med info in my signature . 
I still feel pretty rough , but am hoping that the more days of amitripteline I get back into my system the more relief I will get . This is my 5th night of being back on it. I am in the process of trying to find a new psychiatrist . I appreciate your insight on my drug combo , I feel I’m on too many drugs at too high of doses. I was better off many years ago with nothing but celexa at a low dose . I’m actually scheduled to do a genesight test that is in relation to what drugs suit my particular makeup .My TMS treatment doctor offers the test . I did TMS treatment a different time I had discontinuation symptoms to help ease things a bit .
 

 I just need to get back to stabilized and then I will be changing psych’s and I’ve also had blood drawn to check for vitamin deficiencies, and am having an endocrinologist run an extensive panel of tests . It’s time to make some positive changes. 

Link to post
  • Administrator
Altostrata

Genesight test does not show how to treat "depression and anxiety", all it shows is what drugs might cause adverse reactions. You're on too many damn drugs at too high doses. It's not due to your genes, it's your doctor's incompetence.

 

Amitriptyline has a long half-life, which probably is why you didn't feel withdrawal until after you quit. It probably will take a week or so for the 12.5mg to take full effect. Please let us know how you're doing.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49

Thank you for clarifying . And all this time my psychiatrist has acted like I’m a fool for questioning him about being on so many meds , at such high doses . 
 

he just told me there is no way this can be withdrawls because I’ve been off the med for 2 months . I’m changing to the psychiatrist who does my TMS treatments. He actually has compassion and cares . He voiced the EXACT sentiments as you . Too many drugs too high of doses . It’s time to take my life back. I’m gonna do the 12.5 amitripteline to get stabilized. 
then it’s time to figure out a plan on how I can taper off these drugs or at least get the dosages down to something small. Thank you for speaking up , and thank you for the support. I will keep you posted how I’m doing. 

 


 

Link to post
draggin49

I’m assuming my taper was too fast ??
 

And in too large of increments .

Wouldn’t that be part of why I’m feeling how I do? 

he claims  it’s not possible for me to be having effects from withdrawals,after 6-7 weeks after the last dose of amitripteline. 
he is telling me it’s simply my depression and anxiety re-emerging. 
He never will take any accountability for when I spiral and get into a situation like this or when I feel terrible . 

it’s sad how many psychs act this way and have zero empathy after THEY are the ones who created this entire mess .🤬🤬🤬🤬

I hope I can recover from this , thank you for the support and insight , it truly means so much. 
 

Link to post
  • Administrator
Altostrata

Yes, your taper probably was too fast.

 

Do your symptoms follow any daily pattern?  Please keep daily notes of times of day you take your drugs, their dosages, and your symptoms throughout the day. Post 24 hours of notes at a time in this topic, in a simple list format with time of day on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49

I just got a call from the lab . I had ordered vitamin d and b12 tests . 
wow...... could this severe vitamin D deficiency be causing some of this ??the more I read it showed a high correlation between heavy vitamin d deficiencies and depression and anxiety a lot of the time . 

A friend of mine had the exact same low # 16 as me. The doctor has put her on 50,000 IU weekly to correct the severe low and get it back to where it should be . She said it has helped her tremendously . 
I spoke to the pharmacist and he verified that is how it would be done . And that it would be ok to do while on my current medications. 
I will take a list of pill time taking and notes on how I feel in morning , afternoon and evening . 
I have a series of other tests that my endocrinologist will have done , I hope this can shed light on other major deficiencies and things that had never had light shed on them . 

77FEEDBC-B352-4C62-B6EA-46EC0D16CE60.jpeg

Link to post
  • Administrator
Altostrata

Suggest you gradually build up in vitamin D3 dose by starting with a tiny drop of the liquid form or chips from a tablet daily rather than taking 50,000IU at once. People who have been sensitized from withdrawal may have bad reactions to large doses of vitamin D3.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49

Damn, good to know . What IU would be a good starting point do you think ? I think my mom has some here that is 5,000 IU. 
yeah, maybe once I stabilize more with the amitripteline back in my system then I could better handle the 50,000 IU dose per week to get my levels back up high enough. 

 

Link to post
draggin49

Still am feeling bad, I was thinking about starting with 5,000 IU of vitamin d3 and omega 3 in the morning to try and see if it helps me . Instead of the large weekly does of vitamin d of 50,000 IU. 

Im hoping as I get more time back on the amitripteline that should help get me back to normal too . My TMS doctor told me he wants me to try and go for a walk every morning to get the positive effects from that. 

My endocrinologist tests hopefully will be done on Monday. 
see if that can shed any light on something . 

 

Link to post
  • Administrator
Altostrata
On 1/11/2021 at 7:39 PM, Altostrata said:

Suggest you gradually build up in vitamin D3 dose by starting with a tiny drop of the liquid form or chips from a tablet daily rather than taking 50,000IU at once. People who have been sensitized from withdrawal may have bad reactions to large doses of vitamin D3.

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49

Still am having a hard time , but I’ve only been back on the amitripteline for 10 days now so it may need more time for to get built back up in my system . I think that taper was too fast and my body is just still recovering from it .  I guess I’m just scared cuz during this it makes you feel like you are never going to get back to feeling ok. It makes you so fearful and emotional . 
 


I called my primary care physician, she told me to take a daily regimen of vitamin d to try and correct the levels , so instead of the 50,000 iu dose I’ve been taking 5000iu daily .

I will have to retest my levels in a few months . 
 

Link to post
draggin49

Titled:  Guanfacine taper help needed

 

My new doctor wants to taper me off guanfacine in the near future .

 

after a recent failure with my old doctor , 

he tried to taper me off 100mg of amitriptyline over the course of 3.5-4 months. I restarted amitripteline and am coming up on 2 weeks of being back on it. 
 

I told my new doctor I didn’t feel that the suggested fda taper of Guanfacine was not long enough. FDA says you can taper off 1mg every 5 days . 
I’ve been on this a drug a few years . If I’m going to taper off I want to do it the slowest /safest way possible . I don’t think most doctors realize you need a longer /gradual taper than that what the general suggested taper says. 
 

I currently am on 60 mg celexa 

25mg amitripteline ( coming up on 2 weeks back on it)

ativan 0.5mg 2x a day 

guanfacine 1mg  2x a day 


maybe I shouldn’t even attempt a Guanfacine taper until I have more time of being back on the amitriptyline????

 

 

Edited by manymoretodays
merged to introduction, title added
Link to post
  • Moderator
manymoretodays

Hi draggin49, and welcome, @draggin49

I just merged your last post back here.  Best to keep all your information together, for now.

Since you are new here:  Please put your withdrawal history in your signature

This is different from the initial information you gave on registration, and you'll see it below all your posts, once done

Just go to that link and follow the instructions, and link.

 

Why are you on the guanfacine?

And yes, good idea to do some form of taper on it.  It's not one of the usual drugs that we see here, but I think yes, that definitely some of the same priniciples will apply to tapering.

 

We take aharm reduction approach to going off psychiatric drugs.
 
 
 
 

 

When we take medications, the CNS (central nervous system) responds by making changes over the months and years we take the drug(s). When the medication is discontinued, the CNS has to undo all the changes it made.  The CNS likes stability. Rebuilding the neurotransmitter production and reactivating the receptor and transporter cells takes time -- during that rebuilding process symptoms occur. And sleep is really important during withdrawal.
 

Why are you on the amytriptiline?

Celexa?

And Ativan?

How have they helped?

 

On 1/8/2021 at 9:53 AM, draggin49 said:

would any of these things help lessen the discontinuation syndrome? Like walking , or specific diet , vitamins ? 
I just feel hopeless and really need some guidance , help, support . I’m sorry to ask but I feel lost and without support . 
I’ve been suffering from anxiety and major depressive disorder for over 20 years . 
I look forward to being part of this group and hope I can find some help and support that I desperately need . Thank you 

 

Yes, of course.  Walking, a good diet, and of course learning a bit more about your drug treatments.  Meditation, mindfulness, all kinds of things can help.

 

Please use the interaction checker at Drugs.com and plug your medications/drugs in there.  Then link us to the results, or copy and paste right here.

 

We only recommend 2 supplements:

BASIC SUPPLEMENT TOOLKIT

King of supplements: Omega-3 fatty acids (fish oil)

Magnesium, nature's calcium channel blocker

 

Often when one has been on and off drugs like these for a number of years, our bodies and nervous systems become sensitized.  So in general, just start one new thing at a time, and single ingredient is the best.  Start low, and observe.  That way you will have a better idea of what does what.

 

Any improvements the last 2 weeks, since you reinstated the amitryptiline?

 

And best, welcome,

 

Love, peace, healing, and growth,

manymoretodays(mmt)

Edited by manymoretodays

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016. 

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

Link to post
draggin49
11 hours ago, manymoretodays said:

Hi draggin49, and welcome, @draggin49

I just merged your last post back here.  Best to keep all your information together, for now.

Since you are new here:  Please put your withdrawal history in your signature

This is different from the initial information you gave on registration, and you'll see it below all your posts, once done

Just go to that link and follow the instructions, and link.

 

****
I can’t find an area that says edit signature . Do I have to do this from a computer to be possible ? I currently am on my iPhone . So maybe that is the issue ?

11 hours ago, manymoretodays said:

 

Why are you on the guanfacine?

I think it was just some attempt by my psych to help my anxiety or depression to be honest. 

11 hours ago, manymoretodays said:

And yes, good idea to do some form of taper on it.  It's not one of the usual drugs that we see here, but I think yes, that definitely some of the same priniciples will apply to tapering.

 

We take aharm reduction approach to going off psychiatric drugs.
 
 
 
 

 

When we take medications, the CNS (central nervous system) responds by making changes over the months and years we take the drug(s). When the medication is discontinued, the CNS has to undo all the changes it made.  The CNS likes stability. Rebuilding the neurotransmitter production and reactivating the receptor and transporter cells takes time -- during that rebuilding process symptoms occur. And sleep is really important during withdrawal.
 

Why are you on the amytriptiline?

Celexa?

And Ativan?

How have they helped?


****
These were all given to me for my anxiety /depression. I wouldn’t say that they’ve helped greatly . 

 

Yes, of course.  Walking, a good diet, and of course learning a bit more about your drug treatments.  Meditation, mindfulness, all kinds of things can help.

 

Please use the interaction checker at Drugs.com and plug your medications/drugs in there.  Then link us to the results, or copy and paste right here.

 

We only recommend 2 supplements:

BASIC SUPPLEMENT TOOLKIT

King of supplements: Omega-3 fatty acids (fish oil)

Magnesium, nature's calcium channel blocker

 

Often when one has been on and off drugs like these for a number of years, our bodies and nervous systems become sensitized.  So in general, just start one new thing at a time, and single ingredient is the best.  Start low, and observe.  That way you will have a better idea of what does what.

 

Any improvements the last 2 weeks, since you reinstated the amitryptiline?


there has been a tiny bit of improvement since reinstating the amitriptyline. Don’t get me wrong I’m still a complete mess but I’m hoping as my body gets readjusted I will continue to see improvement. 
I have been searching for a doctor in Southern California or some place that could help me through this but I haven’t had any luck. I feel like there is no legitimate places to help me get through this . People need a place /people to help them through adjusting meds /changing meds or tapering off them etc 

 

 

It’s completely unfair that these doctors give us all these meds and then when things go bad they don’t want to be bothered or help when you are completely falling apart . I cried my eyes out yesterday after my appointment because my new doctor gave me a hard time because he wanted to reduce my guanfacine in half for 5 days then take me completely off it . I told him I am already a complete mess and can hardly function due to how my previous doctor took me off my amitripteline. I told him I was scared that I’m gonna make myself even worse than I am now . These doctors are so clueless about the severity of what patients go through. 
 


It’s taking everything I have to just make it through the day /night right now. 

My life is destroyed . What I’m going through is just way too overwhelming.  
This is not living , it is suffering . 
 

And best, welcome,

 

Love, peace, healing, and growth,

manymoretodays(mmt)

 

Link to post
  • Administrator
Altostrata

Reminder:

On 1/11/2021 at 7:39 PM, Altostrata said:

Suggest you gradually build up in vitamin D3 dose by starting with a tiny drop of the liquid form or chips from a tablet daily rather than taking 50,000IU at once. People who have been sensitized from withdrawal may have bad reactions to large doses of vitamin D3.

 

How have your symptoms changed since you added in 25mg amitriptyline?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49
3 minutes ago, Altostrata said:

Reminder:

 

How have your symptoms changed since you added in 25mg amitriptyline?

 I have seen a little bit of improvement since adding back the 25mg of amitriptyline. I still am having a really hard time but it seems like it took a tiny bit of the edge off .So hopefully this is a step in the right direction and as I get more and more weeks of being back on the amitriptyline I will see more improvement . Because I for sure could use some relief . 
Doing my best to be strong , even though it’s tremendously hard . 

Link to post
  • Administrator
Altostrata

It takes a couple of weeks for a change in amitriptyline dosage to take full effect, give it time. Please let us know how you're doing.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
draggin49
1 minute ago, Altostrata said:

It takes a couple of weeks for a change in amitriptyline dosage to take full effect, give it time. Please let us know how you're doing.

Thanks for the heads up on that . I will keep you guys posted on how it’s going . I’m doing my best to take it easy , and allow myself to recover . I just have to keep reminding myself what you told me , that i just need to continue forward and let the amitriptyline get back in my system . I appreciate your guys support greatly , it’s nice to know there’s people who truly want to help. 

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy