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Outsider: confused history of multiple antidepressants, symptoms still occur after years


Outsider

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I'm sensitive to migraine again, does my withdrawal reaction get worse randomly or should I be warned? 

 

Note: I may increase Topiramate to 75 MG, I just want to reach a stable state without ANY risk of "migraines" or "seizures" or "nerve attacks" or whatever they're called (they have mixed featured of migraines and seizures and I mentioned them multiple times here) 

 

Also, @arborI appreciate going as far as translating for me, but in general I'm more comfortable with English, I can understand you very well no worries (also I kinda don't like my mother tongue or whatever)

 

But it was nice

Thanks for the support again, I'm still too much tired emotionally and I just feel angry most of the time, if I offend anyone, I don't mean it. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Moderator

Hi @Outsider  Thanks for posting.  I respect your anger.  I feel a lot of anger too.  The effects of these drugs anger me.  On top of that, one of the hardest neuro-emotions they cause is rage.  I find it's so very hard living with it.  Take care--

Arbor💜

Zoloft: 1995 - 2015

Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on  December 15, 2018

Gabapentin: 2016 to 2019  (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019

Enalapril: 2010 - 2019

Lipitor: 2017 -2017

Metformin: 2000 - 2020

Liothyronine: 2007 - 2019

Levothyroxine: 2000 - 

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Had to take 10 MG Diazepam yesterday to stop the migraine.. Thinking about increasing my dosage to 6 MG daily 

 

I never had problems with side effects from it, only withdrawal (causes migraine), and hitting tolerance fast, does hitting tolerance cause withdrawal effects? 

 

I just want to reach a stable state, these "migraines" are driving me crazy 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Moderator

Hi @Outsider

On 9/23/2021 at 6:20 AM, Outsider said:

I'm sensitive to migraine again, does my withdrawal reaction get worse randomly or should I be warned? 

 

Yes, once the withdrawal syndrome sets in, symptoms tend to wax and wane. They can become much more severe and then revert back to normal. That is generally the pattern with most people. Probably best to decide on a maximum level of medication that could possibly cover withdrawal from pregabalin, diazepam and topiramate. I think you are getting to the maximum levels you have ever taken of these drugs, correct? How long were you taking the 50mg of pregabalin thinking it was 80mg? Since what date? 

 

If you can increase dosages to reach some stable state, that is great, but so far that strategy has failed. Another feature of withdrawal syndrome is never feeling stable or comfortable for very long. This can persist for quite a prolonged period. It's important to recognize the pattern of symptoms or you may get stuck in a loop of forever trying to updose and stabilize.

 

I think it would be best if you could write down a plan that makes sense to you, given what you have tried so far and what you think is causing the migraines, seizures and other symptoms. This way you can refer back to that so that you don't end up trying the same sort of things over and over again. Cognitive impairment can be pretty substantial, so it is possible to exhibit the same behaviors repeatedly but not really recognize them. Important to identify this in yourself when it is happening. If you have a firm plan, and you can see that you have tried it and it didn't work, then you can at least do something different and start making some progress. I think if you were to read over your topic you would see that it is very similar solutions tried without much success. Then you can decide whether things have gotten better or worse over that period. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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On 9/24/2021 at 6:31 PM, DataGuy said:

I think you are getting to the maximum levels you have ever taken of these drugs, correct? How long were you taking the 50mg of pregabalin thinking it was 80mg? Since what date? 

Yes I'm past that (except for Pregabalin which I held at the same dose since I said it was 80)

And I've been taking 50 since I thought it was 80, but somehow my father calculated it per servings not per day, he makes 6 each time, uses a pill and half for them, and I take 4 of them per day (is what he told me) 

 

Also, ended up in the ER again, this time there was no Tramadol shots, and I spent and hour fighting with them to get a prescription, they tried to fool me into giving me Diazepam 5 MG by giving me 3 different names for it saying they're "a different drug like Tramadol and it'll make me feel better", I kept telling them that I already know it's Diazepam and I already took 12 MG of it and it didn't work (like seriously, you're about to overdose me) 

In the end they gave me a pill prescription since it was the day off for all doctors and none of them was responding to calls, and we proceeded to an hour of agony of fighting with pharmacies this time because the med is scarce. 

 

I don't understand how Tramadol is considered VERY dangerous for them and Diazepam, Pregabalin, and Seroxat Are not. 

 

Then just for the icing on the cake, a conversation with my mother at the end of the day:

- "if you leave me alone with my sis, is there a Taxi or something to call in case of emergency?" (mother takes the car with her and I'm staying in an unfinished house because it's inside the city and much more mentally comfortable for me than secluded areas)

- "You're fine, it's all in your hea-" 

- "Shut it." 

- "We're just going along with you because you're a little depressed but that doesn't mea-" 

- "Shut it." 

- "Stop being rud-" 

- " SHUT IT." 

 

I don't know.. I took 10 MG Diazepam the day I posted I did, with 75 MG Topiramate, barley worked. 

Next day I had to take 12 MG Diazepam and 75 Topiramate + 75 MG Diclofenac JUST to avoid their scary Tramadol shot and all that didn't work

 

Yesterday was a little comfortable, just too tired and sleepy (THANK GOD, I rarely can sleep) like always after Tramadol (took 2 pills the day before, 37 MGx2) 

 

And now taking 6 MG Diazepam a day at least thinking of upping it to 10.. And Topiramate to 75.. I really don't know what's gonna become of me after that mess.. If they listened and gave me Tramadol early I wouldn't have needed to up my Diazepam.. 

 

Too dizzy tbh.. I just want to be stable.. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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On 9/26/2021 at 3:06 AM, Outsider said:

I don't understand how Tramadol is considered VERY dangerous for them and Diazepam, Pregabalin, and Seroxat Are not. 

 

This is because they believe the main risk with tramadol is addiction. They are not really aware of how bad withdrawal and other adverse effects can be. They think since those other drugs are not addictive that they are not dangerous. When they see people suffering from the adverse effects of these drugs (like you) they just think it is mental illness and so never actually classify anything as an adverse drug effect. So in their mind they rarely see many problems with these drugs. 

 

Why do you think increasing the dose will make your situation better? You're free to experiment, of course. But I would suggest you first read some of your previous posts where you increased dosage on other meds or started new ones.

 

I think you could probably convince your family that it is the adverse effects of drugs. There are enough doctors around who will testify about it. I believe we are phasing out the use of tramadol here because of the lack of safety, for whatever that is worth. You are almost better taking a pure opioid, rather than an SNRI/opioid hybrid. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Somewhat stable, pain is still there, but not as critical as before. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Moderator

@Outsider great, hope this keeps things in check for awhile. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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@DataGuy do you think the SNRI part of Tramadol is the one working as reinstatement, not the Opioid?

 

Because I tried them in the past (and stated that here) and they had less of an effect than Diclofenac 

 

Also the entire migraine thing stopped when I was on Amitriptyline, and came back amplified after its withdrawal, however I don't remember if I was having it before the cross over from Seroxat (I was on Seroxat before Amitriptyline for month or two) 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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https://www.nhs.uk/medicines/amitriptyline-for-pain/

Yes, this came too late but all I'm having is DEFINITELY Amitriptyline withdrawal. 

 

And that drug is even discontinued 

And it was NOT supposed to be taken if I have taken ADs before. 

 

And I was CTed from Seroxat to switch to it. 

What a wonderful way to kill me that I survived... 

 

No wonder I was struggling with seizures, Serotonin Toxicity, all those weird side effects, occipital neurologlia, nerve attacks... 

 

Now what? 

The side effects of 5 MG of Amitriptyline were too much to handle (but that was without Topiramate, Diazepam or Pregabalin) 

 

And it's been like 8 months since I stopped? Or more... 

 

I had 2 more migraine attacks the past 2 days and I only have a couple of pills of Tramadol left. No more at hand, I'm running out options.

 

Any idea what to do? 

 

BTW I sent a post above this too. 

 

@arbor @DataGuy @Altostrata

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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Please help me... Goddammit why did this happen.. I only wanted therapy this time and that... $(@$@# sent me to a psychiatrist because "I was in a too dire state that therapy won't work on me" 

 

After YEARS of searching for a therapist.. And fighting psychologists.. Why did I do that same mistake again?! Why did no single doctor through all those years notice and tell me?! 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Moderator

@Outsider there are not really any good options for SNRIs. They are all famously difficult to taper and can result in some terrible wd syndromes. Duloxetine and Effexor are the most commonly used ones. You could try a very small dose of one of those. May be better than Tramadol. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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  • Moderator

@Outsider, this article has the binding profiles for various tricyclics. You could choose the one that has a profile most similar to amitryptiline (or just amitryp. itself at a very low dose). 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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11 minutes ago, DataGuy said:

@Outsider, this article has the binding profiles for various tricyclics. You could choose the one that has a profile most similar to amitryptiline (or just amitryp. itself at a very low dose). 

Sorry, I couldn't find the profiles or understand that, can you find me one that similar to amitriptyline but with less side effects? Specifically the nausea and Serotonin Toxicity (if possible) 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Moderator

Unfortunately they all have negative side effects and it's impossible to tell which have worse or better profiles. In their studies of these drugs the concern is always with efficacy, so it's tough to even know the frequency of various adverse effects.

 

I think what makes the most sense is to reinstate a very small amount of amitriptyline if you feel that is causing the problem. But even reinstating a drug like that doesn't always improve symptoms and can sometimes make them worse by causing an adverse reaction. Best to start with a very low amount. Much lower than you think you need. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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  • Administrator

@Outsider did you have migraines or seizures before taking psychiatric drugs?

 

Are you taking tramadol? That doesn't appear in your signature. Are you sometimes taking a triptan or other migraine drug?

 

I'm afraid we're not going to be much help in advising you how to treat migraines or seizures. We know about tapering and withdrawal, but if this is your original condition, you may wish to talk to a seizure or migraine specialist.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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3 hours ago, Altostrata said:

@Outsider did you have migraines or seizures before taking psychiatric drugs?

 

Are you taking tramadol? That doesn't appear in your signature. Are you sometimes taking a triptan or other migraine drug?

 

I'm afraid we're not going to be much help in advising you how to treat migraines or seizures. We know about tapering and withdrawal, but if this is your original condition, you may wish to talk to a seizure or migraine specialist.

No I didn't have migraines nor seizures before psychiatric drugs, only some heavy headaches under severe psychological stress. 

 

I'm not actively taking Tramadol, only as the current emergency treatment in the case of migraine-like nerve attacks (I explained those multiple times through my thread, but I'm too sensitive to light to stay on screens for long and I'm on phone) 

 

I talked to multiple neurologists, some were surgeons, their diagnosis was varied from (you're totally fine and it's psychological) with a prescription full of antidepressants or a transfer to a psychiatrist, to occipital neuralgia, and FINALLY one doctor came close and diagnosed me with migraine, but all took my psychiatric medical history with deaf ear or refused to even listen, also took my MRI image (which revealed a tumor in the pituitary gland) lightly because "tests were fine" and it wasn't big enough to press on the brain

 

Mind you, I'm pretty sure I got Serotonin Toxicity Because I had 6/10 of the symptoms (also listed in the thread here) + there was a warning about it when using amitryptiline after using another antidepressant which is exactly what the previous psychiatrist did to me (and he CTed the Ad, which was Seroxat For the switch) 

 

On Amytriptyline I didn't have migraine but I did have seizure and Serotonin Toxicity signs

 

Yes I took Triptans but they amplified the toxicity symptoms (this isn't the first time I take them nor my first withdrawal, but it's the first time I felt the toxicity symptoms) so I had to drop them. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Administrator
20 hours ago, Outsider said:

also took my MRI image (which revealed a tumor in the pituitary gland)

 

I would pursue this with getting a second and third opinion from specialists.

 

While people get various forms of headache and body pains from withdrawal, we're just a peer support site. We cannot say for sure that symptom is iatrogenic when you have evidence of a pituitary tumor.

 

At what point and what drug combination do you think you developed serotonin toxicity? Your drug history does not indicate this.

 

Please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
1 hour ago, Altostrata said:

 

I would pursue this with getting a second and third opinion from specialists.

 

While people get various forms of headache and body pains from withdrawal, we're just a peer support site. We cannot say for sure that symptom is iatrogenic when you have evidence of a pituitary tumor.

 

At what point and what drug combination do you think you developed serotonin toxicity? Your drug history does not indicate this.

 

Please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

What kind of "specialists" am I supposed to check with? 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Administrator

Pituitary specialists, neuroendocrinology.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
  • Moderator

How are you managing, @Outsider?

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

Link to comment
On 10/10/2021 at 1:07 AM, DataGuy said:

How are you managing, @Outsider?

I didn't get to open the daily thing Alto sent because of too many chaotic things happening and apparently a heavy depression (I'm suspecting the increased Diazepam dose) 

But my screen tolerance is back higher a bit so I'll check ASAP

 

Did another MRI, the tumor is shrinking, very likely it was the Serotonin Toxicity behind it and the entire migraine thing going haywire, but I guess it'll need a couple of years or more to be completely gone. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

Link to comment

Psychologically I'm even worse (I replied up too) 

Thanks for checking up on me 

 

Edit: Holy.. 

I just checked the link.. 

One of the most things I struggle with is identifying that I'm having a symptom or what the symptom is or what is it caused by, it took me years just to notice some critical stuff 

 

Both because I have ADHD and this was my "Normal" for 7+ years, so I don't remember what's the normal state like

 

 

I'll try, but I mainly tried to use this thread as a daily in an indirect way, as for the time of taking the meds and sleeping time I guess I can.. Get close? Medss are always at the same time but sleeping takes anywhere from 2 hours to 6 to fall asleep 

Edited by Outsider
Checked the daily list

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

Link to comment
  • Moderator

Ok, thanks for the update @Outsider. What are your current dosages at?

 

I'm sorry you're doing worse. Did this start after the updosing? 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

Link to comment
6 minutes ago, DataGuy said:

Ok, thanks for the update @Outsider. What are your current dosages at?

 

I'm sorry you're doing worse. Did this start after the updosing? 

It started after missing an entire day of Pregabalin (Migraine / Screen sensitivity) 

 

Depression / Mood drops increased significantly after increasing the dosage of Diazepam and Topiramate 

 

Current dosages and timing :

- Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 6:00 12:00 AM

 

- Diazepam : 10 MG at 6:00 PM

 

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

 

I'm taking Magnesium 470 MG as a supplement sometimes once sometimes twice a day, no specific time. 

 

I tried 2.5 MG of Zolmitriptan again and I didn't have Serotonin Toxicity adverse reactions like before, it was effective in treating the migraine too, but I'm not gonna resort to it unless I absolutely have to. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

Link to comment
  • Moderator

Ok, thanks @Outsider. Hope this is the final experiment with updosing. Let's just hope you become stable enough to feel a bit more secure during the days, then when you feel more comfortable you can start to taper. I'm glad the tumor has shrunk. 

 

Sedative drugs are not particularly good for mood and benzos are known to have depression as an adverse effect. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

Link to comment

I'm getting migraines too often and resorting to Zolmitriptan too

Like 3 times a week 

 

Mostly because of my psychological state going dire and me needing to play online after I got my favorite game to work, I feel too alone and rejected betrayed, all just for not being a standard patient, and this is going out of control.. 

 

Also my doctor gave me a Tramadol prescription, but my mother is playing Doctor on me and after hardly finding the med, she took it away and she's refusing to give it back, I have to resort to the Triptan and the dose is increasing. 

 

 

And to answer your question, Alto:

On 10/3/2021 at 11:01 PM, Altostrata said:

I would pursue this with getting a second and third opinion from specialists.

They brushed off everything saying I'm fine and the tumor is not doing anything, but one's primary focus was on testing if I was taking hormones (I'm a transsexual but I'm not on hormones) and the other didn't give much thoughts to the Serotonin Toxicity part

 

Tho yes, my drug history DOES indicate Serotonin Toxicity with Amitriptyline being taken after a multitude of antidepressants which is WARNED to cause Serotonin Toxicity (I mean no offense here) 

 

And the tumor shrinking is an indicator too

 

Sorry if I sound offensive, it's just too hard to be sane. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

Link to comment
  • Administrator

I'm afraid I've lost the thread here. What are the psychiatric drug or withdrawal-related symptoms for which you'd like peer support?

 

If your current drug regimen is supposed to address migraines, we're not going to be able to help, we don't know anything about treating migraines.

 

If it's for migraines, we can't tell you whether you should increase topiramate or not. If diazepam is causing the common adverse effect of depression, you'll have to decide whether you need this dosage to control your migraines or whether the adverse effects are too great and you'd be better off with less.

 

FYI Brain zaps, which are not unrelated to migraine, and muscle pain are common withdrawal symptoms. Many people find fish oil and magnesium supplements helpful for them, see

 

https://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

 

https://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

You might try a little bit of one at a time to see how it affects you.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment

The "fear" definitely has an effect on me.  It's not natural anxiety in my opinion. So many  psychosomatic issues with the drugs.  I reckon if you are hyper sensitive, the feelings at withdrawal can last, but you have to find a new feeling/environment to reset your natural flow that was there before meds. 

Social Anxiety diagnosis at root.

 

Born. 1983.

 

2001 - 2003  olanzapine and risperidone. 

 

2003 - 2007 Seroxat and prophanol. Cold turkey. Went on venlafaxine straight after.

 

2008- 2014. Venlafaxine. 6 month taper, crushing tablets powder form.

 

end 2014 - present. No meds.

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31 minutes ago, Altostrata said:

I'm afraid I've lost the thread here. What are the psychiatric drug or withdrawal-related symptoms for which you'd like peer support?

 

If your current drug regimen is supposed to address migraines, we're not going to be able to help, we don't know anything about treating migraines.

 

If it's for migraines, we can't tell you whether you should increase topiramate or not. If diazepam is causing the common adverse effect of depression, you'll have to decide whether you need this dosage to control your migraines or whether the adverse effects are too great and you'd be better off with less.

 

FYI Brain zaps, which are not unrelated to migraine, and muscle pain are common withdrawal symptoms. Many people find fish oil and magnesium supplements helpful for them, see

 

https://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

 

https://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

You might try a little bit of one at a time to see how it affects you.

@DataGuy do you think you can help me explain? I seem to have failed. 

 

Alto, the "Migraines" (Which aren't exactly migraines and I'm not sure what they are) started AFTER my withdrawal of Amitriptyline, or restarted but MUCH heavier and with new symptoms, the first time they started was after the old withdrawals from ADs. 

 

So again, it's heavily tied to ADs, and it's not a "Migraine" per say, rather something caused by ADs and called "migraine" by doctors, or different names like "nerve attacks" or even "panic attacks", always a different name. 

 

It has mixed symptoms of Migraines, Seizures and Strokes (pretty sure I don't have stroke because I did 2 MRIs and I'd be dead by now anyways) 

 

Too tired and out of focus to recall the symptoms but they're in the thread, I hope DataGuy can help me with that part and further explaining. 

 

19 minutes ago, Darren said:

The "fear" definitely has an effect on me.  It's not natural anxiety in my opinion. So many  psychosomatic issues with the drugs.  I reckon if you are hyper sensitive, the feelings at withdrawal can last, but you have to find a new feeling/environment to reset your natural flow that was there before meds. 

Too hard when living in a post apocalyptic country where you're struggling to manage food. 

 

But thanks for the advice, I'm still trying. 

 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Moderator

I am not sure how to explain, @Outsider. I think you really need to stop what are you are doing and go back and read your entire thread, and decide whether you are improved or stabilized on this updose. If not, I think you can conclude that your symptoms are primarily due to the adverse effects/protracted withdrawal effects of the drugs. Then you can begin a slow taper, starting with pregabalin, then topiramate, then diazepam. You also need to ask yourself what drug withdrawal issue you are addressing with this updose. Normally we only updose a drug we have been tapering because we tapered too quickly. In your case, I'm not sure you have been tapering these drugs or even taking them for very long.

 

You need to do a lot more reading a make a coherent plan. I think when you read your thread you'll see it doesn't make a lot of sense. So my advice is just stop, evaluate your situation, and make a plan so that you are not repeating the same mistakes. I have my own issues to deal with currently so I'm not going to be around quite as much, but this will take you at least a few days, I'm sure. 

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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  • Administrator

You increased diazepam fairly dramatically in September? How did your symptom pattern change after that?

 

How often do you use triptans? You may wish to track what happens as the triptan dose wears off (look up half-lives of the drugs you're taking).

 

Please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
  • 2 weeks later...
On 10/20/2021 at 10:47 PM, Altostrata said:

You increased diazepam fairly dramatically in September? How did your symptom pattern change after that?

 

How often do you use triptans? You may wish to track what happens as the triptan dose wears off (look up half-lives of the drugs you're taking).

 

Please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

 

I increased as an emergency measure because the emergency med I used to use (Tramadol) was rejected for me and they gave this to me instead, so I got stuck on it. 

 

It's REALLY hard for me to grasp anything, changes included, but I noticed an overall fatigue and depression, it's significantly harder to move and balance (it already was) 

 

However, the nerve attacks somehow aren't as heavy as before, they're quicker and the symptoms are like 25% milder, I managed to get through one of them without extra meds, but I had one of those prolonged seizures where I do that involuntary random talk / noise like (tashatadatsjsay) for like 30+ minutes, I don't know what is it called, had my father ridiculating me while I'm trying to crawly away from the room because I had enough of their @$(&($& -_- he thought I was faking it.

 

About timing and symptoms.. I'm still trying.. But I don't know the difference between insomnia and my own desire to stay away or my fear of being forced out of the place for example (trauma), also I lived with mad heavy symptoms for years so I really forgot what is normal, add to that my near dead cognitive capacity..

 

One last thing, my doctor is cutting my off Pregabalin CT so I'm reducing it about 1.3 MG a day because he's not gonna give me any more prescriptions, and I only have a few pills left. 

Other docs will completely refuse to give me anything, it's hard enough to get the Diazepam prescription and the Diazepam itself. 

 

 

About how often I use Triptans, prior to your question I only used them twice with like a week in between, but after that I went nuts and used them 5-10 MG at most days, been like 2 days without using them tho, I'm trying to cool down but my mental health is drained. I needed to use my computer and phone.. They're all I had left in the world 

 

Everything else is just rejection and betrayal. 

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

Link to comment

Update on Pregabalin withdrawal :

Yesterday :

- Dry mouth

- Heavy insomnia

- Resltess legs

- Bones and muscles felt pretty heavy 

- Runny nose

- Heavy headache (separate from the usual migraine / nerve attack ones, this one feels more like heavy pressure / vertigo) 

- Head feels hot (like in Vertigo) 

 

Today:

Most of them is significantly less, I could sleep. 

- Dry throat (felt on fire, I'm suspecting flu tho, took a med for the symptoms and feeling better

- Restless legs

- Headaches (less)

- Hot head

 

Still reducing the dose, dunno what hell awaits me but don't think I have a choice when the doc is firm about CT and others aren't even listening. 

 

For the medical side effects, I think I don't have any right after taking the meds, I just have my constant ones with hugely amplified psychological ones (neuro emotions?) 

Mostly anger and resentment, defensive behavior and violent tendencies.

 

It's easy to get into that behavior and whenever I hold myself back, I get nerve attacks / migraines 

That's how it goes. 

 

I hope you too don't say "it's psychological", I know they go hand in hand but it's not JUST psychological. 

 

As for the times:

-;Pregabalin is split into 4 doses [every 6 hours] 

- Diazepam [10 MG] and Topiramate [100 MG] are at night 6 PM.

Sometimes I notice myself more vulnerable to depression after 6 PM along with the stress that accompanies it. 

 

@Altostrata @DataGuy @arbor

- 2014 - 2018 >> 3 years of chaotic 4 pack prescriptions by 10 different doctors

- 2018 >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up)

- 2018 - 2020 >> withdrawal effects for 3-ish years, slight recovery after the long fight

- 09/2020? or so >> was put back on Seroxat, lowest dosage but don't remember how much [will update when possible]

- 11?2020 >> Seroxat replaced with Amitriplatine and getting stuck with 10 MG dosage, getting seizures if I go off

- 01/2021 >> Amytriptaline reduced to 5 MG

- 23/01/2021 >> Amytriptaline quit CT, severe withdrawal for a week but went down after

- 23/02/2021 Diagnosed with Occipital Nerve infection because of the withdrawals mess

- 02/2021 - Diazepam 5mg per day

- 06/2021 - 100mg Pregabalin

- 07/2021 - 25mg Topiramate

August:

80mg Pregabalin, Split into 4 doses per day 

Diazepam every 12 hours (1mg at 6 AM and 2mg at 6 PM)

50mg topiramate

 

September/October 2021 attempt to stabilize:

 

10 MG Diazepam 

50 MG Pregabalin 

75 MG Topiramate 

 

Oct 15th 2021: 

Pregabalin (calculated this time,it's the dose I thought it was 80): 26.6 MG split into 4 doses at 6:00 AM, 12:00 PM, 6:00 PM and 12:00 AM

- Diazepam : 10 MG at 6:00 PM

- Topiramate : 100 MG at 6:00 AM (5th day, was 75) 

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  • Administrator

If you can't get enough pregabalin to taper properly, you'll have to do the best you can. Please try to stay as calm as possible if you get withdrawal symptoms and hold on until they pass.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

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  • Moderator

Glad you were better yesterday than the day before @Outsider. Hopefully the rapid withdrawal isn't as bad as anticipated. What is the reason your doc gave you for CT'ing the pregabalin? Why is he ok with diazepam but not pregabalin?

 

Someone had linked me with a good article on how to deal with migraines, just have to find it again. I will link it when I locate it. 

 

Sorry this is happening to you : (

Remeron - 2004-2005 (bad withdrawal)

Clonazepam - 2005-2018 (jumped around March)

Olanzapine - 2014- late 2017

Domperidone - 2008-2018

Many drugs in between including Lexapro, other benzos and z-drugs.

Still suffering post-withdrawal from Clonazepam (Klonopin), Olanzapine and Domperidone. 

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