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Have there been any movements or lawsuits in the US?


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tryingtosurvive330

I know that so much hard work is being done to expose the dangers behind these drugs that were supposed to help us. 
 

I’ve said before in my extreme anger that I wish there were a class action lawsuit against the pharmaceutical companies who push these dangerous claims and hide/do not study the long term damaging effects. And that I would sue if I could. But I feel like an insignificant dot amongst the world and could never do it. (I also watched a lot of How to Get Away With Murder and was engrossed in their class action lawsuit storyline, lol....I know it’s tv but I just imagined how difficult it must be to pull something like that off). 
 

I’m just curious if this has ever been attempted. I have seen some small things about lawsuits for teenagers who committed suicide due to ADs. All settled individually, I think (pushed under the rug). I would never have the energy myself to invest time into this and I know I realistically wouldn’t feel better after, but maybe I’d feel some justice. Or it would give people adequate time to heal without worry of losing their jobs. I’m just not articulate enough to explain this horrible ordeal to anyone. But there are class action lawsuits for much smaller issues, I feel like! Doesnt this problem deserve justice for the people it’s harmed?

 

Has anyone else ever thought about this? I’ve never been a litigious person but seeing how many people are suffering on this site and knowing exactly how it feels, it’s so heartbreaking and creates a raging anger in me. Ultimately I feel like I won’t see anything in my lifetime considering these have been pushed for a few decades. But that could also be cynicism or ignorance on my part of how this stuff works. Also, today I’m feeling especially down about this whole situation so I’ve been ruminating on these thoughts. 
 

we need more people in the world and managing healthcare like the wonderful people who run this site. I honestly don’t know if I would be here otherwise. 

Zoloft 100mg - June 2015-April 2018 - 2 month taper, had extreme antsiness (different from my normal anxiety) previously said 25mg, was wrong

Xanax 0.25-0.5mg - Aug 2018- Dec 2020 - Rarely took, probably less than every other month. Over 2020 holidays took 0.5mg 5-6times

Escitalopram 10mg - Aug 2018 - Nov 2020 - tapered over 5 months:

June 25 2020 - Aug 14 2020 - Can't remember what I did but assuming it was 5mg this whole time.

Aug 14 2020 - Oct 24th 2020?? - 2.5mg for awhile, then tried every 27 hrs. Did something where I kept trying to extend length of hours, up to 36. This is where symptoms got bad but I was able to tolerate as it was more fatigue and irritability.

Oct 25 2020 - mid Nov 2020 - 1.25mg every 24-36 hours, then stopped completely. These are estimates because I was cutting the pills and this is 1/8 of 10mg but by now, it was dust. Tried just having the dust toward the end.

Dec 27 2020 began having major crying spells and depressive, empty/hopeless feeling dead thoughts. Had a couple ok days, a couple really bad ones a week out.

Reinstated liquid Escitalopram 0.15mg - Jan 12 2021  -  Mar 5 2021 - 0.14mg

Mar 16 2021 - 2.5mg

Mar 17 2021 - 5mg

Reinstated BC (Nuvaring) - Feb 21 2021

 

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HealingWithQi

I've been hoping for something for years.  Spoke to a lawyer at one point who said there was nothing to be done unless there was already a class action in motion.  I guess we wait?

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tryingtosurvive330

@HealingWithQi that feels so circular...I guess there’s only a certain type of lawyer or group who can do it but for a lawyer to say “there’s nothing to be done unless there’s already one in action..” well who do they expect would be the ones to begin one?

Zoloft 100mg - June 2015-April 2018 - 2 month taper, had extreme antsiness (different from my normal anxiety) previously said 25mg, was wrong

Xanax 0.25-0.5mg - Aug 2018- Dec 2020 - Rarely took, probably less than every other month. Over 2020 holidays took 0.5mg 5-6times

Escitalopram 10mg - Aug 2018 - Nov 2020 - tapered over 5 months:

June 25 2020 - Aug 14 2020 - Can't remember what I did but assuming it was 5mg this whole time.

Aug 14 2020 - Oct 24th 2020?? - 2.5mg for awhile, then tried every 27 hrs. Did something where I kept trying to extend length of hours, up to 36. This is where symptoms got bad but I was able to tolerate as it was more fatigue and irritability.

Oct 25 2020 - mid Nov 2020 - 1.25mg every 24-36 hours, then stopped completely. These are estimates because I was cutting the pills and this is 1/8 of 10mg but by now, it was dust. Tried just having the dust toward the end.

Dec 27 2020 began having major crying spells and depressive, empty/hopeless feeling dead thoughts. Had a couple ok days, a couple really bad ones a week out.

Reinstated liquid Escitalopram 0.15mg - Jan 12 2021  -  Mar 5 2021 - 0.14mg

Mar 16 2021 - 2.5mg

Mar 17 2021 - 5mg

Reinstated BC (Nuvaring) - Feb 21 2021

 

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HealingWithQi

Exactly!  I guess only a very particular firm would have the resources or gusto to take it on.

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HealingWithQi

He also said that since they put "discontinuation syndrome" in the literature, that we really don't have a case.  But as we've seen that doesn't quite cover the extent of harm done.  So maybe some brave young lawyer will be inspired to take on our case.

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tryingtosurvive330
4 minutes ago, HealingWithQi said:

But as we've seen that doesn't quite cover the extent of harm done.

Right, because discontinuation syndrome is supposed to be “self limiting” and only last for a few days. Not drive people to the brink of losing their jobs and creating severe anxiety and depression that never existed before. 

Zoloft 100mg - June 2015-April 2018 - 2 month taper, had extreme antsiness (different from my normal anxiety) previously said 25mg, was wrong

Xanax 0.25-0.5mg - Aug 2018- Dec 2020 - Rarely took, probably less than every other month. Over 2020 holidays took 0.5mg 5-6times

Escitalopram 10mg - Aug 2018 - Nov 2020 - tapered over 5 months:

June 25 2020 - Aug 14 2020 - Can't remember what I did but assuming it was 5mg this whole time.

Aug 14 2020 - Oct 24th 2020?? - 2.5mg for awhile, then tried every 27 hrs. Did something where I kept trying to extend length of hours, up to 36. This is where symptoms got bad but I was able to tolerate as it was more fatigue and irritability.

Oct 25 2020 - mid Nov 2020 - 1.25mg every 24-36 hours, then stopped completely. These are estimates because I was cutting the pills and this is 1/8 of 10mg but by now, it was dust. Tried just having the dust toward the end.

Dec 27 2020 began having major crying spells and depressive, empty/hopeless feeling dead thoughts. Had a couple ok days, a couple really bad ones a week out.

Reinstated liquid Escitalopram 0.15mg - Jan 12 2021  -  Mar 5 2021 - 0.14mg

Mar 16 2021 - 2.5mg

Mar 17 2021 - 5mg

Reinstated BC (Nuvaring) - Feb 21 2021

 

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I live in the UK where recognition of the problems these drugs cause has started to be recognised My brother has repeatedly told me that, since the recognition is now there, I should attempt to take legal action over the harm I have suffered and the complete lack of anything approaching informed consent. I didn't hold out much hope, but I did start looking to see whether anything of the type has recently been attempted.

 

This quickly led me to Dr David Healy who has acted as an expert witness for a number of such cases. He has a series of posts on his blog about the death of Stephen O'Neill which give a very clear indication of just what such an attempt would be up against. As an expert witness, Dr Healy actually had access to the "evidence" that the drug companies use to "prove" the safety of their drugs. He calls it, quite simply, fake.

 

Despite that, and the fact that he is an expert in his field, he couldn't get anywhere. Stephen O'Neill's death, following an adverse reaction to a combination of an SSRI and an antibiotic with known SSRI-like effects and a history of causing suicide, was deemed to be an accident.

 

The post The Perfect Killing Machine shows how the problem is endemic to the way the whole medical system now works. Nobody is listening to patient experiences anymore: they're dismissed as "anecdotal".

 

It's incredibly disheartening. The system desperately needs to be shaken up somehow. But when a recognised expert such as Dr Healy, with clear evidence, can be ignored with impunity there doesn't seem to be much hope.

1999 - 2001: Paroxetine 20mg

1999 - December 2017: Lansoprazole 15mg

2003: Venlafaxine 75mg

2003 - 2014: Escitalopram 20mg

2014 - December 2017: Citalopram 20mg

December 2017: Mirtazapine 30mg, stopped after 4 days due to immediate bad reaction

December 2017: Zopiclone 3.75mg, stopped after 2 days due to immediate bad reaction

January 2018 - April 2018: Citalopram liquid, tapering, final dose 0.1mg

December 2018 onwards: Vitamin C 1000mg

Long term (for asthma): Salbutamol and Salmeterol inhalers

Occasional use for headaches: Paracetamol 40mg or Ibuprofen 40mg

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tryingtosurvive330
17 minutes ago, AlanC said:

 

The post The Perfect Killing Machine shows how the problem is endemic to the way the whole medical system now works. Nobody is listening to patient experiences anymore: they're dismissed as "anecdotal".

 

It's incredibly disheartening. The system desperately needs to be shaken up somehow. But when a recognised expert such as Dr Healy, with clear evidence, can be ignored with impunity there doesn't seem to be much hope.

This makes me so sad. It makes me wonder how other cases have made it through. 

Zoloft 100mg - June 2015-April 2018 - 2 month taper, had extreme antsiness (different from my normal anxiety) previously said 25mg, was wrong

Xanax 0.25-0.5mg - Aug 2018- Dec 2020 - Rarely took, probably less than every other month. Over 2020 holidays took 0.5mg 5-6times

Escitalopram 10mg - Aug 2018 - Nov 2020 - tapered over 5 months:

June 25 2020 - Aug 14 2020 - Can't remember what I did but assuming it was 5mg this whole time.

Aug 14 2020 - Oct 24th 2020?? - 2.5mg for awhile, then tried every 27 hrs. Did something where I kept trying to extend length of hours, up to 36. This is where symptoms got bad but I was able to tolerate as it was more fatigue and irritability.

Oct 25 2020 - mid Nov 2020 - 1.25mg every 24-36 hours, then stopped completely. These are estimates because I was cutting the pills and this is 1/8 of 10mg but by now, it was dust. Tried just having the dust toward the end.

Dec 27 2020 began having major crying spells and depressive, empty/hopeless feeling dead thoughts. Had a couple ok days, a couple really bad ones a week out.

Reinstated liquid Escitalopram 0.15mg - Jan 12 2021  -  Mar 5 2021 - 0.14mg

Mar 16 2021 - 2.5mg

Mar 17 2021 - 5mg

Reinstated BC (Nuvaring) - Feb 21 2021

 

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ChessieCat
3 hours ago, HealingWithQi said:

He also said that since they put "discontinuation syndrome" in the literature, that we really don't have a case. 

 

I am fairly certain that the Pristiq leaflet warns about going off the drug too quickly (I cannot be bothered trying to find it).  However, Pristiq is only available in 25mg, 50mg and 100mg and it is also stated that the tablets should not be cut.

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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1 hour ago, tryingtosurvive330 said:

This makes me so sad. It makes me wonder how other cases have made it through. 

 

I don't think it's completely hopeless. As you said in your original post there is an increasing amount of research being done, and if that is able to conclusively show that antidepressants do cause severe dependency then we could have a situation similar to the one where it was shown that Paroxetine increased the risk of suicide in young adults. That resulted in the manufacturer Glaxo Smith Kline paying a $3 billion fine and $1 billion in compensation in the US and the drug effectively being withdrawn from use in the UK.

 

It's taken thirty years to get the problem acknowledged but it has, finally, happened. And the people behind that here in the UK (Prof. John Read, in particular) are now pushing for action to be taken. I'm really hoping we'll start to see more significant progress.

1999 - 2001: Paroxetine 20mg

1999 - December 2017: Lansoprazole 15mg

2003: Venlafaxine 75mg

2003 - 2014: Escitalopram 20mg

2014 - December 2017: Citalopram 20mg

December 2017: Mirtazapine 30mg, stopped after 4 days due to immediate bad reaction

December 2017: Zopiclone 3.75mg, stopped after 2 days due to immediate bad reaction

January 2018 - April 2018: Citalopram liquid, tapering, final dose 0.1mg

December 2018 onwards: Vitamin C 1000mg

Long term (for asthma): Salbutamol and Salmeterol inhalers

Occasional use for headaches: Paracetamol 40mg or Ibuprofen 40mg

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tryingtosurvive330
3 hours ago, AlanC said:

It's taken thirty years to get the problem acknowledged but it has, finally, happened. And the people behind that here in the UK (Prof. John Read, in particular) are now pushing for action to be taken. I'm really hoping we'll start to see more significant progress.

I read about David Healy and I hope something happens. I have never heard of John read, I will look him up. 
 

when did the paroxetine thing happen? I wonder if there were a lawsuit, does it apply to the brand name and generic (because of patents on the product?)?

 

I wish with everything I have that we would see some sort of revolution on this tomorrow. 

Zoloft 100mg - June 2015-April 2018 - 2 month taper, had extreme antsiness (different from my normal anxiety) previously said 25mg, was wrong

Xanax 0.25-0.5mg - Aug 2018- Dec 2020 - Rarely took, probably less than every other month. Over 2020 holidays took 0.5mg 5-6times

Escitalopram 10mg - Aug 2018 - Nov 2020 - tapered over 5 months:

June 25 2020 - Aug 14 2020 - Can't remember what I did but assuming it was 5mg this whole time.

Aug 14 2020 - Oct 24th 2020?? - 2.5mg for awhile, then tried every 27 hrs. Did something where I kept trying to extend length of hours, up to 36. This is where symptoms got bad but I was able to tolerate as it was more fatigue and irritability.

Oct 25 2020 - mid Nov 2020 - 1.25mg every 24-36 hours, then stopped completely. These are estimates because I was cutting the pills and this is 1/8 of 10mg but by now, it was dust. Tried just having the dust toward the end.

Dec 27 2020 began having major crying spells and depressive, empty/hopeless feeling dead thoughts. Had a couple ok days, a couple really bad ones a week out.

Reinstated liquid Escitalopram 0.15mg - Jan 12 2021  -  Mar 5 2021 - 0.14mg

Mar 16 2021 - 2.5mg

Mar 17 2021 - 5mg

Reinstated BC (Nuvaring) - Feb 21 2021

 

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6 hours ago, tryingtosurvive330 said:

when did the paroxetine thing happen? I wonder if there were a lawsuit, does it apply to the brand name and generic (because of patents on the product?)?

 

Read about Study 329:

Wikipedia

Restoring Study 329

The British Medical Journal

 

There was a major lawsuit in the US, resulting in the largest corporate fine ever levied against a drug company. GSK is british, so here in the UK the only thing that happened was that paroxetine was withdrawn from use.

1999 - 2001: Paroxetine 20mg

1999 - December 2017: Lansoprazole 15mg

2003: Venlafaxine 75mg

2003 - 2014: Escitalopram 20mg

2014 - December 2017: Citalopram 20mg

December 2017: Mirtazapine 30mg, stopped after 4 days due to immediate bad reaction

December 2017: Zopiclone 3.75mg, stopped after 2 days due to immediate bad reaction

January 2018 - April 2018: Citalopram liquid, tapering, final dose 0.1mg

December 2018 onwards: Vitamin C 1000mg

Long term (for asthma): Salbutamol and Salmeterol inhalers

Occasional use for headaches: Paracetamol 40mg or Ibuprofen 40mg

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bubbles
On 3/9/2021 at 5:25 AM, ChessieCat said:

 

I am fairly certain that the Pristiq leaflet warns about going off the drug too quickly (I cannot be bothered trying to find it).  However, Pristiq is only available in 25mg, 50mg and 100mg and it is also stated that the tablets should not be cut.

 

That suggests that it should be safe to taper using those doses, and finally jump off at 25mg. Since we know it is not the case, their leaflet is misleading?

 

 

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

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  • 2 weeks later...
tehknologik

I think a a good first step would be a documentary-like mini-series exposing the dark side of antidepressants.  The producers would need to reach out to members of this group and other groups.  Dedicate a whole episode to akathesia, and show the many faces of this most extreme suffering.  Throughout the series, build up a case.  Do some of the work for the lawyers for them.  Make it as compelling as possible.

 

I remember a documentary series on Netflix called the Keepers.  It exposes a child abuse scandal and murder cover up within the Catholic Church.  I'm thinking a miniseries along these lines.  If Netflix would be willing to pull the rug from underneath the Catholic Church in this way, I'm not sure why it would be opposed to doing the same with the pharmaceutical companies.  

 

Then the question becomes who should approach producers to persuade them to take on this project.  May require some diligence in pestering them.  But all it takes is one key convert somewhere. 

Nov. 2019 : started sertraline 25 mg Apr 7 2020 : tried tapering sertraline 25% per doctor's rec, horrific suffering after just 3 days, went back to 25 mg, discovered online help. Sep 2020 : stabilized on 25 mg sertraline, been on 25 mg ever since (up to present), started 5 mg melatonin for sleep issues Oct 14 2020 : attempted to cold turkey melatonin, failed miserably and reinstated 5 mg Oct 17 2020 : dropped melatonin to 4.5 mg (90% of 5 mg) Nov 8 2020 : dropped melatonin to 4 mg (80 % of 5 mg), tough out WD symptoms and plan slower taper Nov 29 2020 : dropped melatonin to 3.85 mg (77% of 5 mg) after feeling better Dec 12 2020 : WD catches up and surprises me, horrid window / wave pattern ensues for months, hold melatonin at 3.85 mg. Feb 5 2021 : up dose of melatonin to 3.9 mg, still waiting to stabilize fully.

 

Currently taking 6 am : flaxseed oil 1 capsule, astaxanthin 6 mg, coq10 100 mg, gentle b-complex gummy, K2 100 mcg, D3 8000IU, potassium chloride 500 mg, C 500 mg, E 180 mg, 25 mg sertraline

Currently taking 6 pm : flaxseed oil 1 capsule, calcium carbonate 250 mg, potassium chloride 500 mg, magnesium glycinate 400 mg, 3.9 mg melatonin

 

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HealingWithQi

I am a documentary filmmaker by profession and I have been toying with this idea for many years.  I have collected a lot of research and even filmed myself during some symptomatic episodes.  I recently revisited the idea in terms of creating a series.  However, haven't felt ready or equipped enough to take on the project yet.

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tehknologik

What have you produced? 

 

Personally, I would rather see something like this pitched to Netflix or Hulu or the likes, to ensure the most widespread reach.  Not a little indie thing that premieres at some festival or something.  Just saying.

Nov. 2019 : started sertraline 25 mg Apr 7 2020 : tried tapering sertraline 25% per doctor's rec, horrific suffering after just 3 days, went back to 25 mg, discovered online help. Sep 2020 : stabilized on 25 mg sertraline, been on 25 mg ever since (up to present), started 5 mg melatonin for sleep issues Oct 14 2020 : attempted to cold turkey melatonin, failed miserably and reinstated 5 mg Oct 17 2020 : dropped melatonin to 4.5 mg (90% of 5 mg) Nov 8 2020 : dropped melatonin to 4 mg (80 % of 5 mg), tough out WD symptoms and plan slower taper Nov 29 2020 : dropped melatonin to 3.85 mg (77% of 5 mg) after feeling better Dec 12 2020 : WD catches up and surprises me, horrid window / wave pattern ensues for months, hold melatonin at 3.85 mg. Feb 5 2021 : up dose of melatonin to 3.9 mg, still waiting to stabilize fully.

 

Currently taking 6 am : flaxseed oil 1 capsule, astaxanthin 6 mg, coq10 100 mg, gentle b-complex gummy, K2 100 mcg, D3 8000IU, potassium chloride 500 mg, C 500 mg, E 180 mg, 25 mg sertraline

Currently taking 6 pm : flaxseed oil 1 capsule, calcium carbonate 250 mg, potassium chloride 500 mg, magnesium glycinate 400 mg, 3.9 mg melatonin

 

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HealingWithQi

Film production and distribution is a bit more complicated than the implication.  Perhaps another discussion for another forum.  

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