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Tips to help sleep: so many of us have that awful withdrawal insomnia


Altostrata

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Can't answer your question but wanted to comment on the issue of taking meds vs. not doing it because I have experienced the same dilemma.  What finally convinced me to stop looking at meds is the I listened to a pocast of a progressive sleep specialist who said that taking meds does not lead to restorative sleep and when brain are scanned of people on sleep med, they look like someone who is unconcious.   It really made me take note.

When you wake up, you might want to consider finding a fun activity even if it violates every sleep hygiene rule that exists.  Last night, I chose to listen to a beach boys video and ended up getting two more hours of sleep.  So much for the theory that you shouldn't listen to active music.

Thanks for your reply. Honestly, I feel that my sleep problems post withdrawal are psychological and anxiety based.  I do think the anxiety and extreme reactivity and panic is related to withdrawal.  However, once I start using meds to fall asleep, then the fear and anticipation become a self-fulfilling prophecy. Yet, what I don't understand is why is it I can't fall asleep when I feel so incredibly tired and sleepy that I can't keep my eyes open for anything, and yet sleep doesn't come. Even when I'm not worried or anxious about anything else.  I guess I'm just not aware of my anxiety about not being able to fall asleep without drugs?  But it almost feels like the minute I get a drug like Ambien into my system, it creates an immediate rebound affect. All schools of thought say that it's impossible to experience addiction to a drug just after taking it one time. It's hard to tell if it's psychological or physiological.  Maybe both.   

I know that when I quit Lexapro cold-turkey, the withdrawal insomnia started immediately and was purely a physiological reaction to the lack of drug in my system. I wasn't anxious or thinking about some problem. I just couldn't fall asleep. Hypnosis tapes were completely ineffective then.  Now it feels like it's a combination of factors.  What I find really hard NOT to do, is to resist not being able to fall asleep. I get frustrated, upset, annoyed. I do all the things I'm not supposed to, like keep looking at the clock. I hate being awake at night. Hate it hate it hate it!  I resist, and it persists.  It's a vicious circle.

 

Oh, I totally understand about getting frustrated.

 

By the way, I always look at the clock.  When I don't, I am always very accurate as to what time it is so really, not doing it is simply a BS exercise for me. 

 

I know this is easier said than done, but I would say bleep the rules.  Whatever you can do to lessen your insanity is what I would do.   And if that means listening to a tape that the sleep hygiene expert wouldn't approve of, that is what you should do.

 

I would not do well with hypnosis tapes either by the way.

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

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I don't know exactly. I have much, much stronger reactions to drugs from the past than when I was taking them regularly, totally wiped out on a bit of Zyprexa, wildly activated and anxious on Nuvigil, increased oxazepam 10% and unable to recognize people at a conference. Maybe that's happening to you, I don't know.

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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Altostrata, 

How come you don't have this article posted on here or somewhere on this site. I've been browsing Monica's site BeyondMeds and found this article which I find really informative.  Not just because you explain the whole alerting system, but also because there's some background about your own story! I have seen people mention Cortisol here and there on this site, and didn't really understand why.  Then I read your article and I sort of understand. It also explains why when listening to sleep hypnosis tape, my body starts to jerk and get more activated than before.  I still don't quite understand it though.  How did you come to the conclusion that it is the downregulated receptors that cause this dysregulation of the alerting system?  Was this documented anywhere?

 

http://beyondmeds.com/2011/07/28/ssriprotractedwithdrawal/

 

"For some people, it takes a long time for the serotonin receptors to correct. Without adequate serotonergic participation, other systems take over and establish a dysfunctional homeostasis.


With the locus coeruleus reacting with “fight or flight” to the least stimulation, the dysregulated alerting system causes inappropriate production of the “fight or flight” hormones norepinephrine, noradrenaline, and cortisol. Spurts of elevated cortisol cause many symptoms, from muscle stiffness and pain to waves of anxiety, panic, and despair. CNS instability causes “autonomic dumping.”

 

Sleep disorders are very, very common in withdrawal syndrome. Excessive alerting activity and inappropriately raised cortisol at night causes the awful withdrawal insomnia.

 

The brain wants to keep us alert to respond to (non-existent) threats, and wakes us up when we become too inattentive. Tragically, the alerting response is triggered by the relaxation of sleep. This is not a circadian rhythm disorder. It is entirely iatrogenic.

 

Too strong an intervention, even deep relaxation, will cause the meta-homeostasis to increase alerting activity. The paradoxical nature of the condition is particularly hard to understand.

 

Theories of serotonin or dopamine deficiency etc. are particularly stubborn red herrings. The mythology of neurotransmitter imbalance is irrelevant in withdrawal. In withdrawal syndrome, gentle interventions that reduce cortisol are helpful. Noradrenergic medications such as buproprion (Wellbutrin) and mirtazapine (Remeron) are not. Celexa and other SSRIs may be activating. Benzodiazepines and sleep drugs may rapidly go paradoxical.


If you suffer from withdrawal syndrome, avoid psychiatric drugs. If you must try them, experiment with drasticallly reduced dosages only.

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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You can make a new topic for the article if you wish, Lilu.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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You can make a new topic for the article if you wish, Lilu.

In what section?

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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This section, Symptoms and Self-care.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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The last few nights, I have suddenly been able to sleep very peacefully for 6 to 8 hours straight with no substances what's so ever. Please check out my post about using Qi Gong for sleep and anxiety relief: http://survivingantidepressants.org/index.php?/topic/6698-uncontrollable-crying-spells-during-and-after-withdrawal/?p=103590

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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  • 1 month later...

I have found that every time I have a night without sleep, the same terror haunts me:to loose the abiity to sleep..

this "trauma" triggers an awful spiral of neuro fear, and the wave becomes very bad.

Fear, neuro fear about loosing the ability to sleep, even when I have noticed that my sleep is not as bad as it used to be.

Can anybody relate to this??

4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.
Tapered 150-0mgs in 3 months.

Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.
First 3 months off acute w/d
Protracted w/d ever since.
Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD

04/13/2014 Awful Relapse.Recovered fairly fast.

3 years and 4 months off.

waves and windows.Very much recovered.

November 2015,health issue.Setback.
 

 

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Yes!!! Sitting up right now, scared to death that I will have another sleepless night. It seems I either sleep or I dont. No waking up a lot. Either it's there or gone completely.

 

I have bodily sensations that make sleep difficult and that is what is happening right now. Hate it!!!!!

 

How are you doing? You having to use the Benzo?

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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How are you doing? You having to use the Benzo?

 

I use it very rarely, and in avery low dose.

I don't think it makes to much difference.

4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.
Tapered 150-0mgs in 3 months.

Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.
First 3 months off acute w/d
Protracted w/d ever since.
Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD

04/13/2014 Awful Relapse.Recovered fairly fast.

3 years and 4 months off.

waves and windows.Very much recovered.

November 2015,health issue.Setback.
 

 

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Well, I'm up. And honestly I belive this is the fear that drives my WD. I had to take a med for a GI issue and in sure I'm reacting, and I'm only a week away from a reaction to a med given at the dentist to numb me. But, in both cases, it was necessary

 

But now awake and petrified of not sleeping :(

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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I have found that every time I have a night without sleep, the same terror haunts me:to loose the abiity to sleep..

this "trauma" triggers an awful spiral of neuro fear, and the wave becomes very bad.

Fear, neuro fear about loosing the ability to sleep, even when I have noticed that my sleep is not as bad as it used to be.

Can anybody relate to this??

 

I don't have this problem Alex, but I've been looking for some help for you.  This seems to be different from 'regular' withdrawal insomnia in that you are actually sleeping better than before, but that your 'fear' of insomnia, when you have a bad night, starts a cycle of symptoms and more insomnia.

 

I found this, which may help:

 

http://www.sleeplikethedead.com/chronic-insomnia-recovery.html

Nothing more (or less) than a phobia

After a few years, I had a breakthrough of sorts for myself when I realized something important: Chronic insomnia is a phobia. Specifically, it is a phobia of being unable to sleep or sleep well. It even has a technical name: hypnophobia or somniphobia.

A phobia is a persistent irrational fear of an object or a situation that's generally considered harmless. In other words, a phobia is fear that does not conform to the facts of reality. Chronic insomnia does not conform to reality because there is nothing inherent about attaining sleep that should cause fear.

The source of the phobia can usually be traced back to one or more specific triggering event, usually something traumatic that happened, often but not always at an early age. Sound familiar?

In addition, a phobia is characterized by the following:

  • An immediate response of uncontrollable anxiety when exposed to the object, activity or situation that causes fear

  • A forceful desire to avoid what you fear and taking atypical measures to stay away from what you fear

  • An impaired capability to function at ordinary tasks because of the fear

  • The fear is out of proportion with the stimulus (that which is causing the fear)

  • Alarmed feelings, such as sweating, rapid heartbeat, avoidance behavior, trouble breathing and intense anxiety when confronted with the source of the fear

  • Anxiety when simply anticipating an encounter with the source of the fear

 

I don't think this CBT based program would be much help to people suffering from purely withdrawal related insomnia, because its a physiological issue.  But when normal sleep returns, or improves, if there is an underlying psychological fear related to not being able to sleep, then this article may be helpful. 

 

Losing the ability to sleep because of drug withdrawal, I think would qualify as a traumatic triggering event for someone who didn't previously have this phobia.

 

Follow the link above for the complete article.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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My psych drug nightmare started because of my phobia of not sleeping. I read this article last year and found it to be the most helpful approach to dealing with my insomnia. When I started "behaving as if I had no insomnia or fear of being unable to sleep" things really started to turn around for me.

2.5 tapered to .75 mgs ativan (7 months) c/o to 7.50 valium tapered to 0 (15 months) benzo free 12/2011!<p>1500 mgs gabapentin microtapering, down to 1350 as of 1/5/2015, 1225 as of 11/1/2015

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  • 2 weeks later...

I have insomnia. It seems all or none for me. I can tell the first 10 minutes in bed if I will sleep.

 

It really has little to do with my mind. I have body sensations that make it impossible to sleep. Crawly sensations and feeling floaty, like my limbs are detached, which normally is accompanied by my nerves feeling hair triggered. So, when I begin to doze off, if the sheet brushes my hair on my arm, I jolt.

 

Has anyone else dealt with this?

 

I have tried magnesium and it made me really depressed. So, no go on that.

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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YES!!!!  This is happening to me.  My dad has been leading me through guided meditation at night and it helps.  It's not perfect, but helps.  Also, my uncle gave me a mantra to repeat as I breathe deeply and try to rest: when you breathe in, think to yourself "Heal."  When you breathe out, think to yourself "Cleanse."

 

The guided meditation my dad does with me is very difficult to explain without an actual guide leading you through, but I will share a story with you.  The other night, my dad helped calm me down in a crisis.  I said to him, "Thank you for calming me down."  He said, "I didn't do anything.  You did it.  Thank you for allowing yourself to calm down."

 

Then it hit me: I can ALLOW myself to be calm.  So, another thing to repeat to myself as I fall asleep is to think,"I will allow myself to be calm.  I will allow myself to sleep."

 

So maybe those are some thoughts you could try to repeat to yourself as you breathe deeply and try to sleep. "Heal, Cleanse." Or "I can allow myself to sleep."

 

Please try it and let me know how it goes. 

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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I will give it a try! I normally spend some time in prayer and it calms me. My body just does not want to shut down sometimes. It's like once the "on" switch is flipped, that's it.

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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I fell off the feel-good train. For about a month I felt incredibly good. Good mood. No insomnia, except occasionally, which I handled without sleep meds. But then my sleep patterns became eratic due to going out, holiday parties, feeling overstimulated. The insomnia was inconsistent as well. I was falling asleep easily but kept waking up at 5 am. Even if I went to bed at 2:30, I'd wake up at 5. Other times, I'd fall asleep quickly, only to wake up at 1 am or 3 am and then try every non-drug means to get back to sleep. To no avail. I started using Ambien again. And now 2 1/2 weeks later, I'm having massive crying spells again.  How could I forget that is what ambien does to me?  But I felt so desperate. In the past 2.5 weeks I have on average slept about 4 -6 hrs per night.  I need 8 hrs in order to function normally.  I was so anxious and distraught yesterday, crying all day, that I had to take Ativan. I took .5 mg and slept for 10 hrs. Woke up with a massive headache. So emotionally exhausted. 

It seems that even when I take ambien now, it lets me sleep for about 4-5 hrs tops. when I took it at 5 am. It kept me asleep only for 2 hrs. When I've taken Klonopin and now Ativan, it lets me sleep thru the night, but the hangover is bad. And I don't want to take it due to the many problems that benzos cause.  I tried Ambien extended release 6 mg, but it didn't put me to sleep even after 1.5 hrs of taking it.

 

Is there a natural supplement that is GABA - ergic like benzos that would calm me down enough to sleep?

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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I have written about inositol on my thread and in the inositol and sleep thread. I do have to do a second dose in middle of night, and I am taking high doses. Also, do you have PCOS? It is a big treatment for that as well. You can also take GABA, but it does not cross the blood-brain barrier if it is working well. But it can help peripherally relax muscles, etc.

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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Here is an idea I do not see above: 

 

I have always had trouble sleeping, and my insomnia became VERY bad while I was going through the worst of my depression (2006-2009). Sleeping pills did not work for me.  I was desperate and ordered a "light and sound" machine from Amazon--not knowing which one to get, I simply ordered the highest rated system I could afford. 

 

The light and sound machine uses a pattern of lights and noises to put the brain into a different state. It is a form of "neurotherapy," which I knew a tiny bit about because years ago my housemate had been involved with some of the research. I knew it could be used to help sleep...

 

I tried it. The very first night, it worked GREAT...  I woke up feeling like I had never slept so well in my life. The machine just sort of grabbed my brain and said to it "you will go to sleep now" and I did. 

 

(It had one odd side effect... I had been a lifelong nail biter. I bit my nails until they bled and became infected. I had tried everything to stop... I could not stop. After two or three times on the light and sound machine, I stopped biting my nails. Stopped cold. I haven't done it since. It was truly odd.)

 

One tip: If you are using the light and sound machine to sleep, you will fall asleep with the goggles still on, and roll over on them. This is hard on the goggles. After a while, you'll have to buy new ones (duct tape can only take you so far). So don't buy the expensive goggles, or have a buddy come in and take the goggles off after you've fallen asleep. 

Advice in this post is based on personal experience and reading; this is not medical advice and I am not a doctor. 

 

History: Started Zoloft 1996. On and off meds (including Serzone, Buspar, Wellbutrin) until pregnancy in 2003. Started Zoloft again in 2004. Zoloft lost effectiveness. Started Effexor low dose. In 2006, began crash and burn. Nightmares. Memory loss. Very severe depression. Loss of appetite. Insomnia. Sleeping pills did not work. In 2007, hit bottom. Very high doses of medication did not work. In 2008, sought alternatives. Entered EMDR therapy. EMDR gave relief from severe depression and anxiety after a few sessions. In 2009, I tapered off Effexor grain by grain. EMDR helped. Exercise helped. Better nutrition helped. Left with severe memory loss, probably due to Effexor. Neurofeedback therapy helped me recover memory and got rid of last remnants of depression. As of 2014, memory is much better. I have slowly regained my capacity to feel contentment and joy. I continue with exercise, nutrition, and a meditation practice.

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This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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Re: Lilu's post above.

 

If there ever was a better reason not to ever try drugs again just to get sleep, that was it. I can see a horror story in the making if one persists in thinking that after suffering wd insomnia, using drugs to try to correct it is a good idea. For me (and only for me, mind you) I'll take some sleepless or short sleep nights before I will ever consider drugs again. This includes OTC stuff like benadryl. I think my poor body has had enough drugs for this lifetime.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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There are a hundred diffrerent options to help you sleep at night that are natural.

 

Sounds like your schedule just got off. You may just not be able to handle going to bed at 2:30 for a long long time.

 

But, you ARE sleeping. I used to feel I needed a certain amount of sleep, but now anything consistant is a blessing.

 

Using Rx drugs to sleep sounds like s disaster waiting to happen.

 

Sounds like you just might have pushed too hard with all of the socialization, and will have to do some self care to get back on track. May take a while though to correct.

 

Good luck.

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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I will be brutually honest.  If I had found a sleep med that I was comfortable taking at least on a short term basis, I would take it in a heartbeat.    Suffering from chronic sleep deprivation for months has literally made my life hell.

 

Unfortunately, the only med that seems to work is Temazepam and I am only comfortable taking it on a PRN basis.   Even my sleep doctor doesn't like it which is quite telling.

 

It is not an issue of correcting something but an issue of sanity at least for me.

 

Obviously, the preferred goal is to get off all meds and start sleeping naturally.   But there is also reality.

 

CS

 

PS - OTC remedies have not worked.

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

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CS,

 

Yours and others like you who suffer from sleep apnea have that issue complicating your ability to sleep 'naturally'. I imagine it is quite a production at bedtime - getting the equipment ready, adjusting the mask and your position in bed and then waiting for sleep to come. The noise of the machine, the foreignness of all the stuff invading your comfy cozy bed. After months of this it is no wonder you still suffer. The single biggest thing that helped me was reading long ago about the importance of 'getting rest' if sleep refuses to come. Lying there quietly even though everything in me was screaming for the peace and oblivion of sleep. Knowing that as soon as 6:30 am rolled around I would have to get out of bed whether I had slept or not and begin the endless days of suffering. But I survived on 'rest' until sleep started coming in longer and longer intervals. I always felt the lack of sleep physically as a sort of 'rough edge' around me, we all know that feeling. Some days I can still feel it, especially if I do not make myself stay in bed long enough. But it was a neat trick of mind knowing that my body would survive on 'rest'. I made myself believe it until it came true. I can't believe the stuff I made myself do to recover, I was that desperate. It was either that or die.

 

I calculated (from your sig) you were on meds for about 11 years and you have only been off going on 5. For some, recovery (including the ability to sleep well) takes a lot longer to happen. I think you are right on schedule.

 

Alto started her recovery in what was it, 2004? And here it will soon be 2015, eleven years later and we are eagerly awaiting her recovery story. (Personally, I do not think we will ever see it).

 

It takes what it takes.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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I will be brutually honest. If I had found a sleep med that I was comfortable taking at least on a short term basis, I would take it in a heartbeat. Suffering from chronic sleep deprivation for months has literally made my life hell.

 

Unfortunately, the only med that seems to work is Temazepam and I am only comfortable taking it on a PRN basis. Even my sleep doctor doesn't like it which is quite telling.

 

It is not an issue of correcting something but an issue of sanity at least for me.

 

Obviously, the preferred goal is to get off all meds and start sleeping naturally. But there is also reality.

 

CS

 

PS - OTC remedies have not worked.

 

I am very empathetic to your situation as a fellow sufferer. I have been in sleep deprivation going on a year now, with stretches of days on end with zero sleep. In the last week, I've already had three of those nights.

 

But, I believe I will get better. I have to.

 

I'm sorry about your situation, very difficult. I'm sure the machine makes it uncomfortable and difficult.

 

I hope it changes for you. For all of us...

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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CS,

 

Yours and others like you who suffer from sleep apnea have that issue complicating your ability to sleep 'naturally'. I imagine it is quite a production at bedtime - getting the equipment ready, adjusting the mask and your position in bed and then waiting for sleep to come. The noise of the machine, the foreignness of all the stuff invading your comfy cozy bed. After months of this it is no wonder you still suffer. The single biggest thing that helped me was reading long ago about the importance of 'getting rest' if sleep refuses to come. Lying there quietly even though everything in me was screaming for the peace and oblivion of sleep. Knowing that as soon as 6:30 am rolled around I would have to get out of bed whether I had slept or not and begin the endless days of suffering. But I survived on 'rest' until sleep started coming in longer and longer intervals. I always felt the lack of sleep physically as a sort of 'rough edge' around me, we all know that feeling. Some days I can still feel it, especially if I do not make myself stay in bed long enough. But it was a neat trick of mind knowing that my body would survive on 'rest'. I made myself believe it until it came true. I can't believe the stuff I made myself do to recover, I was that desperate. It was either that or die.

 

I calculated (from your sig) you were on meds for about 11 years and you have only been off going on 5. For some, recovery (including the ability to sleep well) takes a lot longer to happen. I think you are right on schedule.

 

Alto started her recovery in what was it, 2004? And here it will soon be 2015, eleven years later and we are eagerly awaiting her recovery story. (Personally, I do not think we will ever see it).

 

It takes what it takes.

Why do you think we won't see Alto's story? :(

 

It does seem to take quite a long time for people to heal.... I'm hoping I am lucky and recover faster... No hurting in being positive, even if I don't believe it, I just keep saying it.

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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I will be brutually honest.  If I had found a sleep med that I was comfortable taking at least on a short term basis, I would take it in a heartbeat.    Suffering from chronic sleep deprivation for months has literally made my life hell.

 

Unfortunately, the only med that seems to work is Temazepam and I am only comfortable taking it on a PRN basis.   Even my sleep doctor doesn't like it which is quite telling.

 

It is not an issue of correcting something but an issue of sanity at least for me.

 

Obviously, the preferred goal is to get off all meds and start sleeping naturally.   But there is also reality.

 

CS

 

PS - OTC remedies have not worked.

 

How much sleep are you able to get now?

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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Thanks CW and JDM for your empathetic replies.  It means alot.

 

CW, unfortunately, lying in bed with the mask when I don't feel like sleeping is not very comfortable so I get up and watch TV, which is usually boring infomercials that kind of mesmorize me.   I am glad you were able to find workable solutions.

 

Actually, I was on meds a total of 15 years including withdrawal time.  I can see though my signature isn't clear and will revise it at some point.

 

JDM, I hope your situation gets better also.  I can't imagine going without sleep at all.

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

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I have written about inositol on my thread and in the inositol and sleep thread. I do have to do a second dose in middle of night, and I am taking high doses. Also, do you have PCOS? It is a big treatment for that as well. You can also take GABA, but it does not cross the blood-brain barrier if it is working well. But it can help peripherally relax muscles, etc.

What is the minimum dose of inositol that will help?

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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Nadia started a thread on inositol here.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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Called my psych doc and she suggested I try Lunesta. I'm scared.  But feel desperate. So tired.  The Lorazepam after effect was awful. At first it was great how it put me to sleep and I slept for 10 hours and felt so peaceful. But then the next night I woke up after an hour of going to bed with my heart racing and unable to go back to sleep. I know Ativan is a benzo, and lunesta is similar to ambien. But...

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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I feel for you Lilu but the only way I know of treating wd insomnia is to grit your teeth and hang on till it passes. Taking drugs to sleep only prolongs the inevitable. When you remove the drugs the insomnia will still be there. You are back on the same drug merry-go-round all over again. But you will do what you will. I survived it so I know it can be done.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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I feel for you Lilu but the only way I know of treating wd insomnia is to grit your teeth and hang on till it passes. Taking drugs to sleep only prolongs the inevitable. When you remove the drugs the insomnia will still be there. You are back on the same drug merry-go-round all over again. But you will do what you will. I survived it so I know it can be done.

Thank you for your support and reminder. I know you are right. 

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin, Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Anxiety still triggers Myoclonus.)

10/7/2022 - 20 mg Lexapro (brand only) Plus occasional Klonopin for anxiety and Ambien for insomnia.

 

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Yes but being right means nothing. It is a he11 of a place to be, desperate for sleep. Sleep must be wooed by an amorous suitor with just the right touch or she flees in disgust, her return capricious and fickle. I never knew how much sleep meant till I could not call it up at will anymore. I'll never again take it for granted. It is the only respite in endless days of cortisol-fueled madness and akasthisia riddled hours. I don't ever want to go there again. Be glad you get any sleep at all. I clearly remember the days when I laid down to try to sleep and that was all my body needed to set up that inner vibration which destroyed any chance for calm for hours. You know what precipitated my wd syndrome? The doc convinced me that taking atarax (vistaril) 3 times a day would help with what he thought was sinus pressure because it is an antihistamine. Nope, it was the beginning of wd and I had no clue. That's why benadryl is not a good idea either. Both can push a fragile nervous system over the edge.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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I will be brutually honest.  If I had found a sleep med that I was comfortable taking at least on a short term basis, I would take it in a heartbeat.    Suffering from chronic sleep deprivation for months has literally made my life hell.

 

Unfortunately, the only med that seems to work is Temazepam and I am only comfortable taking it on a PRN basis.   Even my sleep doctor doesn't like it which is quite telling.

 

It is not an issue of correcting something but an issue of sanity at least for me.

 

Obviously, the preferred goal is to get off all meds and start sleeping naturally.   But there is also reality.

 

CS

 

PS - OTC remedies have not worked.

 

How much sleep are you able to get now?

 

Sorry I didn't see this post initially.   To answer your question, I have a very weird sleep pattern that started during withdrawal and hasn't let up.  I have big time problems with sleep attacks that feel like narcolepsy issues even though my sleep doctor doesn't feel I have it and I don't think I do either.

 

But even if I avoid them, I still only average about 3 hours of sleep initially on the machine.    I can usually get back to sleep after a break for about an hour.   Yeah, I am sleeping but I never get continuous sleep and feel like I get any type of deep sleep.  I feel totally non functional.  At one point, I had gotten up to 4 hours but for some reason, have been backsliding.

 

But really, the issue isn't the hours of sleep but the quality.   About a month ago, I got 4 hours on the machine and felt an energy I hadn't felt in months.  I can't explain what was different about that night and haven't been able to replicate it unfortunately.

 

Anyway, I am going to see an ENT in January to determine if nasal obstruction issues are interferring in any way.  I hope this guy has some answers.

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

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Yes but being right means nothing. It is a he11 of a place to be, desperate for sleep. Sleep must be wooed by an amorous suitor with just the right touch or she flees in disgust, her return capricious and fickle. I never knew how much sleep meant till I could not call it up at will anymore. I'll never again take it for granted. It is the only respite in endless days of cortisol-fueled madness and akasthisia riddled hours. I don't ever want to go there again. Be glad you get any sleep at all. I clearly remember the days when I laid down to try to sleep and that was all my body needed to set up that inner vibration which destroyed any chance for calm for hours. You know what precipitated my wd syndrome? The doc convinced me that taking atarax (vistaril) 3 times a day would help with what he thought was sinus pressure because it is an antihistamine. Nope, it was the beginning of wd and I had no clue. That's why benadryl is not a good idea either. Both can push a fragile nervous system over the edge.

CW,

 

As an FYI, it is hard to be grateful for any sleep when you wake up and still feel totally non functional and wonder how you can accomplish even one vital task that needs to get done.

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

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