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Jack37: Hello everyone, I need some help with Remeron / mirtazapine


Jack37

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  • Administrator

How often do you get flushing at 3 a.m.? What times o'clock do you take mirtazapine, Nexium, etc.?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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14 minutes ago, Altostrata said:

How often do you get flushing at 3 a.m.? What times o'clock do you take mirtazapine, Nexium, etc.?

The past few days it feels like I am right back to square one. I am not sleeping, not eating, pacing a lot, burning skin. I was getting relief and I still get relief at night when I take my mirtazapine but it does not last. I am not sure if I am just in a wave right now or what it is. I take Nexium at 9 am. I take mirtazapine at 9 pm. Things were getting better but today is awful again. The week was not that bad this week. The flushing went away at reinstatement at night but now the last three nights it is back. It seems like I can only eat rice and chicken and anything else sets me back again. This is nuts. Is my reinstatement failing? I feel like it’s my only hope so I really hope not.

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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I feel the same. Reinstatement is my only hope and I’ve only gotten worse. Now stuck back on med

 

zoloft 50 mg 1998  , 1999 switched to Celexa 20mg
2000 switched to Neurontin, Xanax 2 mg, Depakote  .May 2001, cold turkeyed all 3 drugs
reinstated Celexa in the middle of pregnancy, august 2001
after birth of child switched to Prozac weekly september 2002
2008 ..added  Lamictal..dropped after 1 month , switched from Prozac weekly to Effexor 75mg
2010,  upped dose to 150 of Effexor
.tapered down to 20mg over 8 months January to December 2012, started Lexapro 2012 10mg
upped it to 20 mg eventually...Spot treated randomly with .25 of Klonopin once or twice a month
2017  Did not want to switch meds again, tried Lamictal again...c/t after 4 weeks.

added 3.75 mg of Remeron...started researching...found the groups...started taper Sept. 2018.

current doses 4.5 Lexapro, 1.6 Remeron ...updosed Remeron to 2.2 October 2021

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  • Administrator
4 minutes ago, Jack37 said:

It seems like I can only eat rice and chicken and anything else sets me back again.

 

Keep at it, your food reactions will gradually decrease. I love rice and chicken myself.

 

Your reinstatement is not failing, 1mg is not very much mirtazapine. Your sweet spot may be at a higher dosage. Do you want to increase by 0.25mg?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Just now, Altostrata said:

 

Keep at it, your food reactions will gradually decrease. I love rice and chicken myself.

 

Your reinstatement is not failing, 1mg is not very much mirtazapine. Your sweet spot may be at a higher dosage. Do you want to increase by 0.25mg?

Thanks so much Alto. I am going to increase tonight. I spoke to my doc today and she upped my script to 6 mg(liquid) so now I have plenty of room to play with where I was maxed out at 1 mg before. I actually read my post from the last time I felt this bad before my reinstatement and I can see how I am actually doing better now in comparison to what I described then but my mind plays tricks on me.  I am in rough shape again though even if not quite as rough.

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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  • Administrator
9 minutes ago, Jack37 said:

I can see how I am actually doing better now in comparison to what I described then but my mind plays tricks on me.  I am in rough shape again though even if not quite as rough.

 

This is why we ask people to track their progress in their Intro topics. A little bit better is a good sign.

 

Good to hear your doctor is sympathetic. Please let us know how you're doing.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 3 weeks later...

Jack how are you doing since Oct 20 ?  Is the reinstatement stablized for you ? 

2012- 2018 clonazepam .5 for noise explosion in my ears /vestibular disorder /vertigo and balance issues . 
tapered off clonazepam thru 2018 

2018 -2021 15 mg mirtazapine 

Jan 21 7.5 mg mirt

March 21 - 5 mg mirt 

april- june21 -  3 mg mirt 

june 15 21 thru -jun26 1 mg mirt and stopped . 

 

 

 

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Jack—did you get the v@x?

 

zoloft 50 mg 1998  , 1999 switched to Celexa 20mg
2000 switched to Neurontin, Xanax 2 mg, Depakote  .May 2001, cold turkeyed all 3 drugs
reinstated Celexa in the middle of pregnancy, august 2001
after birth of child switched to Prozac weekly september 2002
2008 ..added  Lamictal..dropped after 1 month , switched from Prozac weekly to Effexor 75mg
2010,  upped dose to 150 of Effexor
.tapered down to 20mg over 8 months January to December 2012, started Lexapro 2012 10mg
upped it to 20 mg eventually...Spot treated randomly with .25 of Klonopin once or twice a month
2017  Did not want to switch meds again, tried Lamictal again...c/t after 4 weeks.

added 3.75 mg of Remeron...started researching...found the groups...started taper Sept. 2018.

current doses 4.5 Lexapro, 1.6 Remeron ...updosed Remeron to 2.2 October 2021

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  • 2 weeks later...
On 11/7/2021 at 6:57 AM, Tyler84 said:

Jack how are you doing since Oct 20 ?  Is the reinstatement stablized for you ? 

I kept updosing and updosing out of desperation. I am now all the way up to 4.5 mg. I don’t think I am going to go any further and I also don’t think Remeron was the cause of my problems. I am upset because now I am stuck back on this stupid drug that I was free from. I can’t believe I have to taper this crap again and it will probably be harder of impossible to get off of now that I have gone back on. It helped with the burning but never got rid of it. I think I am on too

much too. I am not having any serious adverse affects but I just feel zoned out and not myself all the time. I guess I will adjust but I don’t know. I though about dropping back down to 3.75 but it had already been 5 days so it’s probably best to just stabilize and accept my fate at this point. I should have listened to Alto and just went .25 at a time. That way I would not have been at such a high dose now when I realized that it was not working. All of my symptoms seem related to my stomach pain. My stomach pain is related to the size of my meals. Also my systemic burning goes away when I take pepto bismol so it can’t be the Remeron. I am so angry at myself for not holding out. I really regret reinstating. I hope I am not stuck or mirt forever now. What a nightmare. I was free. I can’t believe this happened.

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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On 11/16/2021 at 1:15 PM, Jack37 said:

I kept updosing and updosing out of desperation. I am now all the way up to 4.5 mg. I don’t think I am going to go any further and I also don’t think Remeron was the cause of my problems. I am upset because now I am stuck back on this stupid drug that I was free from. I can’t believe I have to taper this crap again and it will probably be harder of impossible to get off of now that I have gone back on. It helped with the burning but never got rid of it. I think I am on too

much too. I am not having any serious adverse affects but I just feel zoned out and not myself all the time. I guess I will adjust but I don’t know. I though about dropping back down to 3.75 but it had already been 5 days so it’s probably best to just stabilize and accept my fate at this point. I should have listened to Alto and just went .25 at a time. That way I would not have been at such a high dose now when I realized that it was not working. All of my symptoms seem related to my stomach pain. My stomach pain is related to the size of my meals. Also my systemic burning goes away when I take pepto bismol so it can’t be the Remeron. I am so angry at myself for not holding out. I really regret reinstating. I hope I am not stuck or mirt forever now. What a nightmare. I was free. I can’t believe this happened.

I’m so sorry to hear that . I’m 5 months off this Saturday and suffering horrible with ears and head and spine burning everyday . I’m headed to the allergist tomorrow to see if there’s anything they recommend.    I hope you find some relief soon . 

2012- 2018 clonazepam .5 for noise explosion in my ears /vestibular disorder /vertigo and balance issues . 
tapered off clonazepam thru 2018 

2018 -2021 15 mg mirtazapine 

Jan 21 7.5 mg mirt

March 21 - 5 mg mirt 

april- june21 -  3 mg mirt 

june 15 21 thru -jun26 1 mg mirt and stopped . 

 

 

 

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@Altostrata

Hi Alto,

           I wanted to update you on where I am at and hopefully get your input. I have just not been able to stabilize. I kept increasing and increasing and it just doesn’t seem the be happening. I am ashamed to say that I did not listen to you. I made bigger increases out of desperation and I just don’t know if I did more harm than good. Last we spoke I increased to 1.5 mg. Then 7 days later to 1.89 mg. Then a few days after that I increased to 3.75 mg and then a week after that to 4.5 mg. That is where I am at now. I am at 4.5 mg. I am having food reactions to everything. Just the act of ingestion seems to make my stomach, skin and face arms and back burn. The worst of it is the malabsorption and diarrhea that I keep having. When this started a few months ago I was 180 lbs. Today I weigh 146 lbs. A week ago I was 150. Soon I will likely have to go on an IV for nutrients according to my doctor. This is why the desperate increases happened. I know that I am dying. My body can no longer sustain itself. I eat but my body can not digest it so it is slightly in vein. I can no longer find a safe food. I even react to the chicken and rice which were safe foods for me before. I just don’t know what to do. Do I keep increasing? This already seems like a lot. I am sure I am already on a higher dose than you would have expected. The akathisia has stopped. I  STILL can not sleep without melatonin.   I have to take 2.5 mg melatonin a couple of hours after Remeron to sleep. I am sleeping through the night now without waking up at 3 am with the burning like before. So some things have improved. But I can not stabilize the food reactions. They are severe. I still wonder if the food reactions are even related to the Remeron. It is very confusing. I am actually developing visible red dots on my tongue now from the burning. My ANA test was negative. I am awaiting biopsy results from an endoscopy the other day. Do I keep increasing or is this just a failed reinstatement at this point? 

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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I went through that when I hit tolerance to Lexapro . Turns out I had pancreatic insufficiency. Could not digest anything . Have you had your elastase tested? I take enzymes with every meal now and it’s better. Glad to hear your Akathisia is gone. I reinstated to 3.75 and still have it. Still suffering greatly and cannot leave my home .

 

zoloft 50 mg 1998  , 1999 switched to Celexa 20mg
2000 switched to Neurontin, Xanax 2 mg, Depakote  .May 2001, cold turkeyed all 3 drugs
reinstated Celexa in the middle of pregnancy, august 2001
after birth of child switched to Prozac weekly september 2002
2008 ..added  Lamictal..dropped after 1 month , switched from Prozac weekly to Effexor 75mg
2010,  upped dose to 150 of Effexor
.tapered down to 20mg over 8 months January to December 2012, started Lexapro 2012 10mg
upped it to 20 mg eventually...Spot treated randomly with .25 of Klonopin once or twice a month
2017  Did not want to switch meds again, tried Lamictal again...c/t after 4 weeks.

added 3.75 mg of Remeron...started researching...found the groups...started taper Sept. 2018.

current doses 4.5 Lexapro, 1.6 Remeron ...updosed Remeron to 2.2 October 2021

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2 minutes ago, HLH44 said:

I went through that when I hit tolerance to Lexapro . Turns out I had pancreatic insufficiency. Could not digest anything . Have you had your elastase tested? I take enzymes with every meal now and it’s better. Glad to hear your Akathisia is gone. I reinstated to 3.75 and still have it. Still suffering greatly and cannot leave my home .

I can’t go out much either just because I am so uncomfortable from the burning I want to jump out of my skin. I am thankful that I can sit still now but I would give anything to be able to be comfortable and relax. The burning makes that impossible. I am going to look into pancreatic insufficiency. I don’t think that would make my tongue burn like this and the metallic taste. It’s awful. It’s not acid reflux. 

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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Hi, Just wanted to say that Remeron is when my food intolerance started.  I am also losing weight rapidly.  I'm sorry you are going through this.  I have read a metallic taste can be triggered by a disorder in the digestive tract. I am no doctor but it you may want to look into  burning mouth syndrome, which can affect any part of the mouth but usually the tongue. It can also come with a metallic taste.  

 

Hang in there. I'm rooting for you.

Current: Bupropion 450mg, Neurontin 800mg, Klonopin 0.5mg

History:

July 2020: started Cogentin 1mg, Lamictal 50mg, Zoloft 150mg, Zyprexa 5mg (+5mg as needed), Klonopin 0.5mg

November 2020: stopped all meds cold-turkey

February 2021: started Latuda 60mg, Lithium 300mg, Melatonin 5mg, Protonix 40mg, Topamax 25mg

2 weeks later: stopped Topamax, increased Lithium 900mg, started Klonopin 1mg, Lexapro 20mg, Neurontin 400mg

April 2021: started Bupropion 150mg, Revia ?mg

May 2021: stopped ReviaProtonixLexaproincreased Neurontin 800mg, started Celexa 10mg

August 2021: decreased Celexa 5mg (stopped Celexa 2 weeks later), increased Bupropion 300mg

September 2021: increased Latuda 80mg

October 2021: decreased Lithium 600mg for 4 daysLithium 300mg for 4 daysstopped LithiumLatuda

     increased Bupropion 450mg, started Remeron 15mg, decreased Remeron 7.5mg, stopped Remeron

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  • Administrator
On 11/22/2021 at 4:38 PM, Jack37 said:

This already seems like a lot. I am sure I am already on a higher dose than you would have expected. The akathisia has stopped.

 

At what dosage did the akathisia stop?

 

On 11/22/2021 at 5:20 PM, Jack37 said:

I can’t go out much either just because I am so uncomfortable from the burning I want to jump out of my skin.

 

How has the burning changed as you've increased the dosage?

 

What kind of startup effects did you have when you started mirtazapine in 2018? You were taking Xanax at the same time, correct?

 

I'm not sure if I have any answers for you about the gut problems.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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12 hours ago, Altostrata said:

 

At what dosage did the akathisia stop?

 

 

How has the burning changed as you've increased the dosage?

 

What kind of startup effects did you have when you started mirtazapine in 2018? You were taking Xanax at the same time, correct?

 

I'm not sure if I have any answers for you about the gut problems.

The burning is not as much in my face anymore. It is mostly in my stomach, mouth and arms. The akathisia stopped at 3.75 mg. The burning is still really bad. I feel like I got worse after increasing to 4.5 mg. I felt more relaxed before but now I can not get relaxed with all of this discomfort. When I first got to 4.5 mg I felt very off and not myself. I have adjusted to it mentally at this point. I mentally feel normal but physically I am a mess. It feels like I have some sort of toxins in my stomach that get released every time I eat. It is relentless. I don’t even get full relief when I take my Remeron at night. I have this extremely sour taste in my mouth that gets worse after eating but never goes away. I am very curious whether this whole thing could actually be Xanax withdrawal as I every time I try to take magnesium I get terrible rebound anxiety. I was taking a antacid with a lot of magnesium(3-4000 mg per day) at the end of my Remeron taper. I stopped using that right before this all started and I concerned that this could be a severe benzo setback. It is all very confusing. I took 200 mg magnesium glycinate yesterday and I am extremely tense and anxious today. Same happened after two separate epsom salt baths I took this month. I am very lost and very scared. I am going to lose my job in six months if I can not get back and it is not looking good. I don’t understand. My taper went fairly smooth and even Xanax withdrawal did not go on this severe for this long although I was on Remeron helping with some of it. I need to eat but I can’t eat because my body punishes me when I eat. What a hell I am in. There is no end in sight. 
As far as startup on mirtazapine it is hard to say because my acute Xanax phase was at the same time. I think leg weakness was one of the symptoms but that could have been from Xanax withdrawal. There is no way to know. I had no burning though. I did have burning in Xanax withdrawal but going to Remeron cleared most of that up. 

Edited by Jack37
Forgot to answer a question

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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On 11/22/2021 at 8:16 PM, HLH44 said:

I went through that when I hit tolerance to Lexapro . Turns out I had pancreatic insufficiency. Could not digest anything . Have you had your elastase tested? I take enzymes with every meal now and it’s better. Glad to hear your Akathisia is gone. I reinstated to 3.75 and still have it. Still suffering greatly and cannot leave my home .

When you were having the pancreatic insufficiency did your gut burn and did you have a nasty taste in your mouth? Either or. My gut feels toxic but it really burns after I eat. It does not matter what I eat. Feels like a bacterial overgrowth of some kind. I am still waiting for the results of my h pylori test. Did you have pancreatitis or anything like that. I don’t think I have any damage to my pancreas but I am still not digesting food.

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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I had H pylori, SIBO, Candida overgrowth…sounds to me like maybe you have Gastritis? Are you in the Remeron should be Illegal group on FB? So many deal with severe gut issues during taper.

 

zoloft 50 mg 1998  , 1999 switched to Celexa 20mg
2000 switched to Neurontin, Xanax 2 mg, Depakote  .May 2001, cold turkeyed all 3 drugs
reinstated Celexa in the middle of pregnancy, august 2001
after birth of child switched to Prozac weekly september 2002
2008 ..added  Lamictal..dropped after 1 month , switched from Prozac weekly to Effexor 75mg
2010,  upped dose to 150 of Effexor
.tapered down to 20mg over 8 months January to December 2012, started Lexapro 2012 10mg
upped it to 20 mg eventually...Spot treated randomly with .25 of Klonopin once or twice a month
2017  Did not want to switch meds again, tried Lamictal again...c/t after 4 weeks.

added 3.75 mg of Remeron...started researching...found the groups...started taper Sept. 2018.

current doses 4.5 Lexapro, 1.6 Remeron ...updosed Remeron to 2.2 October 2021

Link to comment

Oh gosh. When did you finish your Xanax taper ?

 

zoloft 50 mg 1998  , 1999 switched to Celexa 20mg
2000 switched to Neurontin, Xanax 2 mg, Depakote  .May 2001, cold turkeyed all 3 drugs
reinstated Celexa in the middle of pregnancy, august 2001
after birth of child switched to Prozac weekly september 2002
2008 ..added  Lamictal..dropped after 1 month , switched from Prozac weekly to Effexor 75mg
2010,  upped dose to 150 of Effexor
.tapered down to 20mg over 8 months January to December 2012, started Lexapro 2012 10mg
upped it to 20 mg eventually...Spot treated randomly with .25 of Klonopin once or twice a month
2017  Did not want to switch meds again, tried Lamictal again...c/t after 4 weeks.

added 3.75 mg of Remeron...started researching...found the groups...started taper Sept. 2018.

current doses 4.5 Lexapro, 1.6 Remeron ...updosed Remeron to 2.2 October 2021

Link to comment
1 minute ago, HLH44 said:

Oh gosh. When did you finish your Xanax taper ?

December 2018

It is now 35 months. 

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

Link to comment
4 minutes ago, HLH44 said:

I had H pylori, SIBO, Candida overgrowth…sounds to me like maybe you have Gastritis? Are you in the Remeron should be Illegal group on FB? So many deal with severe gut issues during taper.

I did not have gastritis on my endoscopy but I took pepto pretty much constantly for the month leading up to it. 

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

Link to comment
Just now, Jack37 said:

I did not have gastritis on my endoscopy but I took pepto pretty much constantly for the month leading up to it. 

 

5 minutes ago, HLH44 said:

I had H pylori, SIBO, Candida overgrowth…sounds to me like maybe you have Gastritis? Are you in the Remeron should be Illegal group on FB? So many deal with severe gut issues during taper.

Did you treat the h pylori?

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

Link to comment

@Altostrata

Please help. I don’t know what to do. I don’t know if I am actually really sick with some rare disease or if this is Remeron withdrawal. My mouth tastes like metal and burns and my stomach and everything burns when I eat anything. I have no safe foods anymore. Not even my rice and chicken. That burns too now. The doctors can’t find anything wrong with me. I am considering taking a full 15 mg of Remeron. I don’t know what else to do. I am afraid that I am dying. I am losing weight like crazy. They are talking about putting me on IV feeding soon. If I take a whole 15 mg will it just backfire on me? What scares me is that at night about 2 hours after I take remeron I can eat without burning. Why is that? But I never get tired after I take it. Does Remeron just not work in my body anymore? I am so scared.

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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  • Administrator

How do you feel after you take mirtazapine, compared to before you take it?

 

On 11/22/2021 at 4:38 PM, Jack37 said:

 

The akathisia has stopped. I  STILL can not sleep without melatonin.   I have to take 2.5 mg melatonin a couple of hours after Remeron to sleep. I am sleeping through the night now without waking up at 3 am with the burning like before. So some things have improved. But I can not stabilize the food reactions. They are severe. I still wonder if the food reactions are even related to the Remeron. It is very confusing. I am actually developing visible red dots on my tongue now from the burning. My ANA test was negative. I am awaiting biopsy results from an endoscopy the other day. Do I keep increasing or is this just a failed reinstatement at this point? 

 

It seems to me that the amount of mirtazapine you're taking now reduces the burning reaction for a time and helping you sleep. If you have a hangover, 4.5mg may be a bit too much, you might back it down by 0.25mg and see if that helps.

 

It sounds to me like you are having a allergic reaction to something in your environment or food, or a food intolerance, which may not be related to withdrawal and mirtazapine at all.

 

Have you had tests for h. pylori and other gut infections? Have you stayed on an exclusion diet? You might have developed sensitivity to salicylates or other common substances in food. There are groups on Facebook devoted to identifying and managing food intolerances.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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23 hours ago, Altostrata said:

How do you feel after you take mirtazapine, compared to before you take it?

 

 

It seems to me that the amount of mirtazapine you're taking now reduces the burning reaction for a time and helping you sleep. If you have a hangover, 4.5mg may be a bit too much, you might back it down by 0.25mg and see if that helps.

 

It sounds to me like you are having a allergic reaction to something in your environment or food, or a food intolerance, which may not be related to withdrawal and mirtazapine at all.

 

Have you had tests for h. pylori and other gut infections? Have you stayed on an exclusion diet? You might have developed sensitivity to salicylates or other common substances in food. There are groups on Facebook devoted to identifying and managing food intolerances.

I don’t think I want to take less. I am desperate here. It seems more like I am food intolerant to all of it. White rice even makes me burn. That and chicken were my safe foods. I can’t think of a medical reason for what is happening right now. I have had a lot of tests. H pylori was negative. I now have like 5 mouth ulcers. This all started right after I finished my Remeron taper. First it was a mild fever with some burning around my lips after meals. I am considering increasing more. I am thinking about 7.5 mg or even more. I just don’t know what to do. I kind of regret reinstating but that’s done now. Just what is the point of reinstating if I don’t get relief. I am still extremely ill. Can’t work and am so weak sometimes I can’t even cook for myself. My symptoms continue to worsen. If these keeps uo then in about a month I will need to be fed my IV. This is really scary. I feel like maybe I should try taking a full 15 mg. Maybe that’s crazy. It’s just that I am at a point where I don’t think I will survive this anyway. Will this stuff really settle down if I just hold at 4.5 mg. I’ve been on this dose for 3 full weeks now and I’m in hell still. My blood feels like it is made of acid. This is awful. 

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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  • Administrator
56 minutes ago, Jack37 said:

I now have like 5 mouth ulcers.

 

This sounds like a vitamin deficiency from not eating enough.

 

I have no idea if increasing mirtazapine will help your gut issues, which may be from something else entirely.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • Moderator Emeritus
1 hour ago, Jack37 said:

I now have like 5 mouth ulcers.

 

When I developed a mouth full of ulcers the chemist lady told me it was due to acid coming up from the stomach caused by stress (due in my case to the death of my husband).

 

This might be happening to you, but for different reason/s.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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4 minutes ago, ChessieCat said:

 

When I developed a mouth full of ulcers the chemist lady told me it was due to acid coming up from the stomach caused by stress (due in my case to the death of my husband).

 

This might be happening to you, but for different reason/s.

I had a bunch of tests done and was checked for acidity. They even increased my Nexium just to be sure. It made no difference. 

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

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  • 1 month later...

@Altostrata

Hi Alto,

            Exactly 30 days ago I updosed to 7.5 mg and for the most part I stabilized. I still have some minor symptoms but I have been back to work for 2 weeks and I am eating normal again and gaining weight. But this morning I messed up and don’t know how to proceed. Last night I took my 7.5 mg dose at about 9 pm. Then this morning I woke up for work and at about 6:30 am about 10 hours after my night dose I took another 7.5 mg of mirtazapine. I was supposed to be taking my Nexium dose and I was tired and groggy and somehow got confused and autopilot took my Remeron. I am terrified about what to do next. Do I skip tonight’s dose and go back to taking mirt tomorrow or do I just take tonight’s dose at normal time and hope this did not screw up all of my progress. I am hoping you see this before I have to decide tonight. Thanks. 
 

If anyone else has any advice I am open to hear it. Thanks all.

 

Jack

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

Link to comment

Accidentally took extra dose

 

So, I finished my mirtazapine taper and had to reinstate. Finally wound up at 7.5 mg about 30 days ago and had mostly stabilized. Last night I took my 7.5 mg dose at 9 pm. Then this morning I woke up for work and accidentally took another 7.5 mg dose at 6:30 am. I thought I was taking my morning Nexium dose and was so groggy I did not even realize I had grabbed the wrong bottle and then auto piloted and took mirtazapine. I swallowed it and then horror flooded over me as I immediately realized what I had just done. Anyway, my dilemma. Do I skip tonight’s dose and then wait until tomorrow night to resume my normal dose time? Or do I just take my normal 7.5 mg dose at 9 pm tonight? I am very upset about it as I am not completely stabilized but was mostly getting my life back. I hope this does not send me back into hell. I don’t know what the path of least resistance is. I thought just skip tonight’s dose but other’s have said to take it. What is the general consensus on this?

 

Edited by ChessieCat
added topic title before merging with intro topic

6 months 2004 5 mg librium daily C/T * 6/2015 10 mg V 30 days C/T
1/2017 2 mg V 10 days C/T * 1/2018 Ambien 30 days C/T
6/2018 Xanax .25mg nightly up to .5mg 2x daily
5 months extreme tolerance/hospitalization
11/2018 - C/T Xanax started Ativan 2mg daily fast taper
started mirt 15mg Jumped from Ativan 12/31/18
8/21/2019 started mirt taper cut to 13.5 mg 9/4 13.2 * 10/13 11.1 * 11/10 10.5 * 12/1 9.6 * 1/5/20 8.55 * 2/6 7.26.3 * 3/5 6 * 3/26 5.1 *
6/1 4.95 * 7/6 4.05 * 8/11 3.15 * 9/19 3 * 10/1 2.64  * 11/1 2.04 * 12/1 1.68 * 1/1/21 1.38 * 3/1 1.08 * 4/5 .78 * 6/21 .3 * 7/4 .18 * 7/11 .12 *

7/18 .06 mg * 7/25/2021 .03 mg * 7/31/2021 Took last dose of Remeron
Reinstated Remeron 10/4/21 at  .25 mg * Increased to .5 mg on 10/5 * Increased to .75 on 10/9 * Increased to 1 mg 10/13
Take Nexium 40 mg daily

Link to comment
  • Administrator

You would take your normal mirtazapine dose tonight. Please update your signature.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
  • 1 year later...
On 11/22/2021 at 6:16 PM, HLH44 said:

I went through that when I hit tolerance to Lexapro . Turns out I had pancreatic insufficiency. Could not digest anything . Have you had your elastase tested? I take enzymes with every meal now and it’s better. Glad to hear your Akathisia is gone. I reinstated to 3.75 and still have it. Still suffering greatly and cannot leave my home .


I am having the same problem. I am going to beg my doctor for stool test. Do you still have to take the enzymes or has this symptom gone away for you ? @HLH44

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

Link to comment

I still take enzymes (prescription) with every meal...its SUCH a pain and I hate it...it barely keeps it under control and still some days are spent in loo....

 

zoloft 50 mg 1998  , 1999 switched to Celexa 20mg
2000 switched to Neurontin, Xanax 2 mg, Depakote  .May 2001, cold turkeyed all 3 drugs
reinstated Celexa in the middle of pregnancy, august 2001
after birth of child switched to Prozac weekly september 2002
2008 ..added  Lamictal..dropped after 1 month , switched from Prozac weekly to Effexor 75mg
2010,  upped dose to 150 of Effexor
.tapered down to 20mg over 8 months January to December 2012, started Lexapro 2012 10mg
upped it to 20 mg eventually...Spot treated randomly with .25 of Klonopin once or twice a month
2017  Did not want to switch meds again, tried Lamictal again...c/t after 4 weeks.

added 3.75 mg of Remeron...started researching...found the groups...started taper Sept. 2018.

current doses 4.5 Lexapro, 1.6 Remeron ...updosed Remeron to 2.2 October 2021

Link to comment
18 minutes ago, HLH44 said:

I still take enzymes (prescription) with every meal...its SUCH a pain and I hate it...it barely keeps it under control and still some days are spent in loo....


I’m sorry digestive issues are the worst. You’re not alone. I’m sure once your completely off your ssri this issue will go away?

 

& when you say time spent in the loo, is it constipation or diarrhea your having ? @HLH44

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

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