Robynne: tapering Neulactil

[ChessieCat]

Sorry to read that you are not doing very well.

 

8 minutes ago, Robynne said:

I’ve gone back on 2.5 mg periciazine trying to feel better.

 

Please remember that it takes time for a dose change to be registered by the brain.  Depending on when you stopped the nexium and had the bad reaction to the Maxillon, you might want to try and wait for a while before trying a new drug if one is suggested (see next comment).

 

2 minutes ago, Robynne said:

I’m presently waiting to go to psychiatrist on Friday

 

Please be very careful if the psychiatric suggests any new drugs.  Make sure you do your own research about possible side effects and drug interactions BEFORE taking anything, as well as how you would go off that drug later.  Also be aware that some drugs are prescribed off label and some are psychiatric drugs (an example is Wellbutrin/buproprion which is used to help stop smoking).  I would also suggest that if you do decide to try another drug to only start with a small dose; generally adverse reactions are dose related so testing with a small dose first to see how you respond may mean that if you do get an adverse reaction, once you stop the drug you might recover quicker.

 

I genuinely wish you all the best.  It's a horrible situation that you are in.

 

Please continue to let us know how you are.

 

 

[Altostrata]

On 8/2/2022 at 10:33 PM, Robynne said:

I went off nexium which was very big mistake as my nausea was terrible as they were stopping the reflux in my tummy.

 

@Robynne, why did you go off Nexium?

 

The PPIs need to be tapered to avoid rebound stomach acid production:

Tips for tapering off stomach acid blockers or PPIs...

 

[Robynne]

I stupidly thought it was causing me more tummy pain I’m an idiot 

[Robynne]

Had I felt, a good appointment at the nicest psychiatrist. He was very upset I went so suddenly off periciazine although careful he didn’t blame the gps. I changed the dose of that drug 5 times in 9 weeks, he said I totally scrambled my brain. He is very happy I stay on the 2.5 mg tablet but can’t promise I’ll stabilise, well not yet. He’s suggested another med to add but did not push it onto me and said it was my decision . He basically was  very sad I’ve been suffering. I actually want to stabilise on my med as I’ve had many happy normal years on it. Today I feel calmer having had a kind ear who listened. The lesson for me has been choose your doctors carefully and you don’t have to believe what they say, and listen to your own body at all times as it is yours. Going to be positive from now on. 

[Altostrata]

Have you recovered from going off Nexium? If not, if I were you, I'd take 1/4 tablet for a while.

 

How often are you drinking alcohol?

[Robynne]

I’m not drinking just lots tea and zero alcohol drinks. I had really positive good day yesterday but woke in night with gastro and sore throat 🥴settling down this morning.  My daughter and partner  just rang me and have the same symptoms snd j stayed with them in last week. My intention is to go to a gastro specialist about taking nexium as I really don’t know if I need them?  My anxiety and weird feeling has settled which is giving me a break thank god. 

 

[Altostrata]

20 hours ago, Robynne said:

My intention is to go to a gastro specialist about taking nexium as I really don’t know if I need them?

 

You probably don't "need" Nexium, but you went off too fast and you are having stomach acid rebound. If you take a quarter-tablet, this should abate. You will be able to quit the 1/4 tablet in a week or two, after your gut settles down.

 

We don't offer general medicine services here. As peer support, we really cannot deal with frequent drug changes. Members have to do their part by not making drastic changes with their drugs, which upset your symptom pattern. We can't help you if you make your own problems.

[Robynne]

The nexium was definitely my problem but my nausea has settled . The dosage change on my periciazine was done directly from doctors advising me what to do. I’m going to listen only to the pych who said to settle on my 2.5 tablet. 

[Robynne]

My update is I’m up and Down like a yo yo ! Yesterday was completely good thought I had my life back now today back to anxiety and nausea, wondering if I’ll ever stabilise on the 2.5 mg periciazine. I’m even questioning the herbal teas I drink. I just can’t bring myself to take the Seroquil tablet up on my cupboard that pych gave me, researched that and sounded too scary. I’ve have another script waiting at the gp for something the pych sent but he said that  was my decision, well at this stage I want to completely hold off. I’d be happy just stabilising as I was happy on peri drug for years just had a minor anxiety attack on Occassion from trauma events. Just want to feel better it’s been nearly 3 months again. 

[ChessieCat]

If it was me I would definitely not be adding in any more drugs.  You have had a lot of changes in a very short period of time.  And there is no knowing what adding a new drug into the mix would do.

 

From https://go.drugbank.com/drugs/DB01608

 

Quetiapine may increase the orthostatic hypotensive, hypotensive, and antihypertensive activities of Periciazine.

[Robynne]

I totally agree !!! I’ve been researching too. Why do we get given these? is it because we go looking for help and want a quick fix. I’ll just keep battling on, I hope to stabilise them figure out what to do.