Jools44: badly managed reinstatement of mirtazapine

[Jools44]

@Altostrata  things seemed to have plateaued with my symptoms. I am having some better days but then I hit some bad days where I can't sleep at all, and the fatigue, tinnitus and hyperacusis flare badly. It feels as though my hearing has been badly effected by this, but I also  suffer with neuro emotions at these times too, partly due to sleep deprivation.

I feel like I'm living some sort of half life, where I'm trying to go about life as normal as possible but feeling really lousy most of the time. 

 

I'm unsure whether I'd classify myself as recovering. The reinstatement hasn't really worked and I don't know what to do? I'm too scared to drop the dose again but not convinced carrying on as I am is working either? The waves and windows scenario seems to apply to those in withdrawal but am I still in withdrawal or is this damage permanent? I've been on the same dose now for 9 weeks. I know compared to some this is no time at all but to me it feels like an eternity. 

 

On the better days my ears are on the whole quieter and the hyperacusis tends to show up at the end of the day. The hyperacusis manifests itself as an exaggerated startle response, I can literally feel my reaction to sounds run down the nerves of my hands, its very peculiar. It also really gets me down. The smallest sounds can set me off. 

 

I keep trying to change my reaction to all of this but without much success. I keep telling myself that others suffer worse than me but it does little to change my reality. 

 

I'm also due my 3rd covid vaccine shortly and with reports of people developing tinnitus after administration (albeit a small number) I'm concerned it may exacerbate the issue. 

 

Sorry for the long post but this is the loneliest road I've ever walked (and I've felt lonely most of my life,but this is a whole new level). 

 

I take magnesium but not sure it really makes any difference. I eat well, although I haven't really gained weight which indicates to me the mirtazepine isn't working as it once did as I always gained with it. My heart rate is constantly high at around 80-85 bpm and I drink a fair bit of wster as a result. 

 

No alcohol, caffeine, illicit substances etc. 

 

My GP is sympathetic but that's all she can offer, sympathy. 

 

Suicidal thoughts are a daily occurance although I'm far from that point really, but I do see it as an option if I can't cope in the future, as I don't see myself being able to keep down a job with things so unpredictable. 

 

I've spent a lot of time on this site and it all makes sense and there are common themes, but equally most are from people in withdrawal and reducing or off the med. I'm not sure which I am now? 

 

 

 

 

[Hamster]

Hi,

I can imagine how you feel. You had a mirtazapine rollercoaster ride and it may take time for things to improve. But they eventually will. 

 

Do not blame yourself for your decisions! You made them with the best knowledge you had (+ a lot of desperation) and many people here can relate. I definitively can. Your withdrawal symptoms are bad enough so beating yourself up for things you cannot change anymore will only make things worse. It is in no way your "fault" how you feel right now. 

 

You feel alone (many of us do), but you are not. Any possibility to get other forms of therapy? Talking to a psychologist helped me a lot to get to the core of my issues.

Open up to people you can trust, they may not understand you, but they may support you in critical periods.

 

All the best ... Hamster

[Jools44]

58 minutes ago, Hamster said:

Hi,

I can imagine how you feel. You had a mirtazapine rollercoaster ride and it may take time for things to improve. But they eventually will. 

 

Do not blame yourself for your decisions! You made them with the best knowledge you had (+ a lot of desperation) and many people here can relate. I definitively can. Your withdrawal symptoms are bad enough so beating yourself up for things you cannot change anymore will only make things worse. It is in no way your "fault" how you feel right now. 

 

You feel alone (many of us do), but you are not. Any possibility to get other forms of therapy? Talking to a psychologist helped me a lot to get to the core of my issues.

Open up to people you can trust, they may not understand you, but they may support you in critical periods.

 

All the best ... Hamster

Thank you for your reply @Hamster I really appreciate you taking the time.

I think I'm just finding it hard to come to terms with what's happened. It feels like overnight my world has been turned upside down and it is, unfortunately, part of my own making. I thought my taper was going okay but in hindsight there were warning signs that I just attributed to other things. 

Things have improved in the last two months which is good, but I can still feel my brain just isn't right, and the tinnitus and hyperacusis only reinforces this. I am trying to learn acceptance, but it's clearly not a strength of mine! 

 

Your tapering journey looked nice and steady, how are you feeling now, well I hope? 😊 Were you on Mirtazepine for long? Any advice would be much appreciated. 

[Altostrata]

On 12/10/2021 at 10:14 PM, Jools44 said:

I am having some better days

 

This is a good sign. We do not expect you to immediately snap back to "normal" with reinstatement. Quite often the effect is gradual. 

 

Stabilization can take months. See The Windows and Waves Pattern of Stabilization

 

"Is it always going to be like this?"

 

The importance of recognizing you're feeling good

 

How has your sleep pattern changed?

[Jools44]

@Altostrata thank you. My sleep has improved and I can go 5 or 6 days where I sleep for about 5 hours, some times a bit less some times a bit more, but then I get a wave and the sleep dries up completely for a few nights and my mood plummets. I am seeing a pattern in it now though. Fatigue is still an issue. 

 

It's the tinntius/hyperacusis /hearing that bothers me the most. That too has improved on what it was, but it can't resolve quickly enough for me. I just need to be more patient and try and see the positives. 

 

I'm weaning off the oestrogen as I don't want to risk the progesterone at this stage. Hoping my sleep won't be negatively affected. 

[Jools44]

@Altostrata do you believe histamine intolerance causes or worsen withdrawal symptoms when tapering off of mirtazepine? 

[Greatful]

@Jools44

Hi stopping by to let you know you are not alone, it does feel lonely sometimes but reach out and  connect with us here and feel heard.

This is a very tough journey for all of us and we need all the support and hope we can get.

 

I don't have ringing in my ears but they are very sensitive.  When they are really agitated I feel like I want to rip them off my head.  I get really nervous we thy are on high alert and start to hurt that I will get tinnitus UGH.  That must be hard.  I hear all this get better right, lol

 

You are having some small windows, what a good sign for you that you will heal.

I am in WD and taper  Drug mess last winter, trying to recover from, from what I hear it doesn't  matter WD, Tapering, CT'd , the  nervous system is upset.  So you reinstate and now the brain has to adjust to that also.  Windows and waves for all of us...............The chemicals did this to our brains and bodies, not us. Patience and love for our  brains that are trying to get it right for us so we can move on in live.

 

Please feel free to tag me if you need someone to talk too, small talk, venting, crying whatever you need I will listen and help in anyway I can.❤️

 

 

[Jools44]

1 hour ago, Greatful said:

@Jools44

Hi stopping by to let you know you are not alone, it does feel lonely sometimes but reach out and  connect with us here and feel heard.

This is a very tough journey for all of us and we need all the support and hope we can get.

 

I don't have ringing in my ears but they are very sensitive.  When they are really agitated I feel like I want to rip them off my head.  I get really nervous we thy are on high alert and start to hurt that I will get tinnitus UGH.  That must be hard.  I hear all this get better right, lol

 

You are having some small windows, what a good sign for you that you will heal.

I am in WD and taper  Drug mess last winter, trying to recover from, from what I hear it doesn't  matter WD, Tapering, CT'd , the  nervous system is upset.  So you reinstate and now the brain has to adjust to that also.  Windows and waves for all of us...............The chemicals did this to our brains and bodies, not us. Patience and love for our  brains that are trying to get it right for us so we can move on in live.

 

Please feel free to tag me if you need someone to talk too, small talk, venting, crying whatever you need I will listen and help in anyway I can.❤️

 

 

@Greatful thanks so much for this message. I am getting a little more used to the waves and windows affect now and give myself a little pep talk when the waves hit. Its just so disappointing to have some good days only for them to be replaced with the misery of a wave but I see that everyone goes through this.

 

My ears are not as bad as they were and I actually hate the hyperacusis more than the tinnitus. I also get this weird pressure in my ears but I guess it's all nerve related. I really hope it resolves eventually or that I at least get used to it! 

 

I'm not crying as regularly now but I do feel fairly flat and a bit emotionless but I am slowly getting my sense of humour back. That vanished like a rat up a drain pipe when the withdrawal hit. 

 

I hope you stabilise again soon. Don't rip your ears off, you'll still need them once you've recovered from these crappy drugs! Xx

[Altostrata]

How are you doing, @Jools?

 

Histamine intolerance can make you more miserable, and it can cause symptoms similar to withdrawal. It is a complication, you need to manage it.

[Jools44]

@Altostrata I'm doing okay thank you. Still in the windows and waves effect, but the windows are getting better and the waves a bit less intense.

My hearing is very slowly improving I think, but again it comes and goes. 

I'm still unsure if histamine is a major issue but I'm avoiding foods high in it anyway. 

[Jools44]

@Altostrata I spoke too soon. I've developed diarrhoea, lost my appetite and have gone 3 nights without sleeping at all.

I've just tapered off the oestrogen gel over the course of 2 weeks, I'm wondering if this is why I can't sleep? 

If I need the oestrogen I'll have to start the progesterone too this time, as my doctor won't let me have one without the other. 

 

 

[Altostrata]

On 12/22/2021 at 6:57 PM, Jools44 said:

I've just tapered off the oestrogen gel over the course of 2 weeks, I'm wondering if this is why I can't sleep? 

 

Possible. I'd try a little dab here and there as rescue doses, see if that helps. 

 

In the US, we can get phytoestrogen and vegan progesterone cream over-the-counter. Very low dose estrogen does not require progesterone opposition.

[Malbec37]

@Jools44Hi Jools I've had a brief look through what you've written and of course we have already met on my thread

 

I want to try and tell you something hopeful and positive....unfortunately mirtazapine WD is very hard (like other WD's from these drugs) but we can make progress and I have made progress and currently in a strong window of healing. I can totally relate to the insomnia problems caused by this drug and the knock on effect on our lives and trying to hold down demanding jobs when sleep can be so elusive. You're a hero for even trying! I have found that sleep returns and pretty strongly but only when my brain has fully stabilised from a drop and that can be anywhere from 3 to 6 weeks after the drop...during that time I just do my best to keep going and do use sleep aides like zopiclone and clonazepam but I am very careful to not overuse as I don't want another dependancy...I'm not saying you do the same (I can see you used zop before) but sometimes I am just so desperate for some rest and they are the only things that help me 

 

Having said that I'm not using them at the moment and currently I am having some success with a combination of L-Theanine, Melatonin and a strong chamomile tea before bed....and I am sleeping much better but this could be because my CNS has stabilised on my latest dose of 11mg

 

If you do try any supplements for sleep then do it one at a time so you can know what reaction you get 

 

Also of use are the mirtazapine groups on Facebook if you use that...although because they can be quite triggering at times as so many people are pouring their suffering out on there, so I don't have all the posts in my FB feed, but I do go in there to post as there are lots of people with a lot of knowledge and they'll try their best to help you....just beware though that if you ask a question you are likely to get lots of different responses which can sometimes be a little confusing 

 

They are called 'Remeron should be illegal' and 'mirtzazapine support, withdrawal and recovery'

 

I'll keep an eye on your thread and post anything I think could help 

 

Keep going and stay hopeful as things will definitely settle down and the symptoms are only temporary...I had awful tinnitus for weeks which felt like a dentist drill going into my brain but in the end it did pass and got a lot better 

 

Malbec 

[Jools44]

14 hours ago, Altostrata said:

 

Possible. I'd try a little dab here and there as rescue doses, see if that helps. 

 

In the US, we can get phytoestrogen and vegan progesterone cream over-the-counter. Very low dose estrogen does not require progesterone opposition.

@Altostrata thanks for that, I'll look to see if there is anything similar here in the UK. I think I've confused things a little by adding in the HRT oestrogen, as this week could have "just" been another wave (quite a nasty one though). 

[Jools44]

12 minutes ago, Malbec37 said:

@Jools44Hi Jools I've had a brief look through what you've written and of course we have already met on my thread

 

I want to try and tell you something hopeful and positive....unfortunately mirtazapine WD is very hard (like other WD's from these drugs) but we can make progress and I have made progress and currently in a strong window of healing. I can totally relate to the insomnia problems caused by this drug and the knock on effect on our lives and trying to hold down demanding jobs when sleep can be so elusive. You're a hero for even trying! I have found that sleep returns and pretty strongly but only when my brain has fully stabilised from a drop and that can be anywhere from 3 to 6 weeks after the drop...during that time I just do my best to keep going and do use sleep aides like zopiclone and clonazepam but I am very careful to not overuse as I don't want another dependancy...I'm not saying you do the same (I can see you used zop before) but sometimes I am just so desperate for some rest and they are the only things that help me 

 

Having said that I'm not using them at the moment and currently I am having some success with a combination of L-Theanine, Melatonin and a strong chamomile tea before bed....and I am sleeping much better but this could be because my CNS has stabilised on my latest dose of 11mg

 

If you do try any supplements for sleep then do it one at a time so you can know what reaction you get 

 

Also of use are the mirtazapine groups on Facebook if you use that...although because they can be quite triggering at times as so many people are pouring their suffering out on there, so I don't have all the posts in my FB feed, but I do go in there to post as there are lots of people with a lot of knowledge and they'll try their best to help you....just beware though that if you ask a question you are likely to get lots of different responses which can sometimes be a little confusing 

 

They are called 'Remeron should be illegal' and 'mirtzazapine support, withdrawal and recovery'

 

I'll keep an eye on your thread and post anything I think could help 

 

Keep going and stay hopeful as things will definitely settle down and the symptoms are only temporary...I had awful tinnitus for weeks which felt like a dentist drill going into my brain but in the end it did pass and got a lot better 

 

Malbec 

@Malbec37 thanks so much for your message, I really appreciate you taking the time.

The insomnia I've suffered since making a fairly catastrophic dose drop back in September (after tapering quite responsibly for 12 months 🤦🏻‍♀️) has been the worst. Coupled with all the neuro emotions which I'd not really experienced during my taper, it's been a rough 3 months. I really wished I'd found this site earlier and then I would have made more sensible/less knee jerky decisions! 

Still, lesson learnt.

I am stabilising very slowly. The tinnitus and hyperacusis are resolving gradually. I was convinced I was stuck with them forever, and perhaps I will be to a lesser extent, but it's currently more manageable. 

 Thank you for your advice on the supplements. I take magnesium every night but that's it at the moment. I did try melatonin but I didn't find it terribly effective for me but I will try the chamomile and the L-thianine, especially when I start to taper again, although that's a little way off yet, I need to get over this episode first. 

I too was using zopiclone during my taper this year. Like you, I only used it sparingly, but during this episode I've found that it made everything worse, especially the tinnitus so I just stuck to the mirt and the magnesium and eventually it started to kick back in. 

I am in a FB group for people just starting out on the drug and all I want to do is say "nooooooo, don't do it!!" but of course you can't. It's awful thinking that many of those people will end up where we are and there's nothing we can do to help prevent that. 

I hope your current window is a nice long one and it's come at a good time. Thanks again for your tips, I'm very open to any help with this hellish process! 

 

Jools

 

[Altostrata]

2 hours ago, Jools44 said:

@Altostrata thanks for that, I'll look to see if there is anything similar here in the UK. I think I've confused things a little by adding in the HRT oestrogen, as this week could have "just" been another wave (quite a nasty one though). 

 

Very true, multiple drug changes are confusing. Please let us know how you're doing.

[Jools44]

@Altostrata can I just ask what I should expect to feel when considered "stabilised" on this dose?

Even on a better day I still feel extremely flat, emotionless and fatigued. 

Can I expect these issues to improve over time? I'm still holding on by my fingernails a bit and just want to reach a state where I can at least participate in life in some meaningful way before attempting withdrawal again, but I wonder if I'm being realistic? I do appreciate everybody is different and there's no hard and fast rule, but from you experience can you give me an idea? 

 

[Malbec37]

@Jools44You're right to ask the opinion of an expert like Altostrata - what I would say is that, as you know, there has been a fair bit of up and down for your CNS to figure out and it's just trying to catch up now...it's not a disaster, far from it, but probably the best thing you can do now is keep on holding until you feel considerably better. I think in one way or another everyone on this site has made similar changes with their meds without realising the difficulties it can get us into...and how could we know as medicine does not validate us, support us or really even believe us which is infuriating. But no matter it will stabilise and in the meantime just take it one day at a time and do whatever you can to support yourself 

[Jools44]

10 minutes ago, Malbec37 said:

@Jools44You're right to ask the opinion of an expert like Altostrata - what I would say is that, as you know, there has been a fair bit of up and down for your CNS to figure out and it's just trying to catch up now...it's not a disaster, far from it, but probably the best thing you can do now is keep on holding until you feel considerably better. I think in one way or another everyone on this site has made similar changes with their meds without realising the difficulties it can get us into...and how could we know as medicine does not validate us, support us or really even believe us which is infuriating. But no matter it will stabilise and in the meantime just take it one day at a time and do whatever you can to support yourself 

@Malbec37 thank you for your reply and reassurance. The anhedonia is the one thing that seems to be getting worse not better. It's Christmas day and I've hardly said one word to my family and I've really brought the mood down for everyone, which just makes me feel even more worthless, but I just feel so empty and void of any feelings. I've hardly eaten anything as I feel quite sick. The one thing I've had going for me is I've had a decent appetite but now that's disappeared too. Just drinking water like a fish. 

I didn't think I'd make it through today and was going to head home but thought that would hurt them even more so have stuck it out. So sad 😔 

[Jools44]

@Altostrata @Kiasofia is it normal for new symptoms to appear during stabilisation? I've now developed gut issues, mainly bad nausea. I tried to switch to a low histamine diet but then I developed diarrhoea and nausea, which is not abating. The one thing I had going for me was that I was eating well until the last week. Since stopping the oestrogen I've developed morning anxiety which is new.

I feel like I've taken a bit of a nosedive. I have wondered all along if I've had an adverse reaction to the big increase in dose I made back in September and then the dramatic cut 3 weeks later. 

My heart rate is constantly high again too. It was like that initially but had calmed down. I also drink a lot too. 

I understand healing isn't linear but this feels different to the waves I've had before. 

[Altostrata]

On 12/25/2021 at 8:39 AM, Jools44 said:

Even on a better day I still feel extremely flat, emotionless and fatigued. 

 

These are symptoms that are common effects of psychiatric drugs, and may persist for some time after you go off. They are the consequence of drug use, not withdrawal symptoms per se.

 

Please note in which ways you feel better, that's what indicates stabilization.

 

13 hours ago, Jools44 said:

The one thing I had going for me was that I was eating well until the last week.

 

What occurred just prior to this new symptom? You first reported it Wednesday.

[Jools44]

1 hour ago, Altostrata said:

 

These are symptoms that are common effects of psychiatric drugs, and may persist for some time after you go off. They are the consequence of drug use, not withdrawal symptoms per se.

 

Please note in which ways you feel better, that's what indicates stabilization.

 

 

What occurred just prior to this new symptom? You first reported it Wednesday.

 

 

I guess I just didn't feel like this prior to the crash in September. I felt fairly normal, if quite stressed. This is the first time ever I've felt, well, nothing. The only emotion I have now is sadness it seems. 

 

The only improvement I've seen is that sometimes my hearing is a bit better in that the tinnitus and hyperacusis is less intrusive and the pressure on my ear Drum is less noticeable . Not today though, its roaring. 

 

I have had a dietary change this week as was trying to avoid high histamine foods so that may explain the upset stomach or perhaps I've just picked up a bug. But my appetite is not that brilliant now which is not normal for mirtazepine. 

 

I did have my 3rd pfizer jab last Friday. Felt a bit rough the following day but then was fine. I guess that may have upset my gut but delayed response if it was. 

 

I'm only applying a tiny bit of oestrogen gel now, so perhaps that's contributing to my drop in mood and my sleep is still all over the place. 

 

Anxiety is beginning to creep back in but I wonder if that is related to the oestrogen as well. 

 

I've started making a diary of my symptoms so perhaps that will clarify things a little better. 

 

 

[Malbec37]

@Jools44wanted to check in and see how you are doing?

[Jools44]

2 minutes ago, Malbec37 said:

@Jools44wanted to check in and see how you are doing?

@Malbec37 thanks for checking in on me, I really appreciate it. Things are slowly improving now, the emphasis being slowly! The hyperacusis has settled down (still there but definitely an improvement), the tinnitus is still roaring away at times and still suffering ear pressure, but still hopeful that will go with time too 🤞🤞

My Emotions have settled down now, if anything my they are too flat which doesn't feel great either but it's an improvement on floods of tears. 

Overall I feel more stable, not there yet but definitely going in the right direction. 

I've learnt a lot in the last 3 months, that's for sure. Mainly how NOT to respond to destabilisation, so i believe I'm in a better position to taper next time, once I feel ready. 

How are you doing with your taper, did you cope with festive period okay? Such a tricky time for those in withdrawal. 

 

[Malbec37]

Hi @Jools44it all sounds much more positive and that's great to hear! I sort of have permanent tinnitus in a way but as I've got used to it I've cared about it less and so it's become less noisy, if that makes sense. I know it'll go fully eventually like all the other symptoms.

 

There is indeed a lot to learn when it comes to AD withdrawal

 

I'm doing well, feeling very stable on 11mg and taking another month to just enjoy being stable and having a fairly normal life and then I will resume my taper in Feb...thanks for asking

[Altostrata]

Hello, @Jools44 Good to hear of some improvement. Please summarize the drug changes you made in the last month, so we might be able to see what worked.

[Jools44]

18 minutes ago, Altostrata said:

Hello, @Jools44 Good to hear of some improvement. Please summarize the drug changes you made in the last month, so we might be able to see what worked.

Hi @AltostrataI am still taking 22.5mg Mirtazpeine daily and magnesium at night. I tapered off the oestrogen over 2.5 weeks ago now. 

 I had a nasty wave over Christmas (insomnia, bad fatigue, nausea, diarrhoea).

Still have the hearing issues but not as bad, only sleeping about 5 hours a night, and get very tired in the evenings but I haven't been feeling as emotional. 

I'll update my signature. 

[Altostrata]

Thanks.

 

Sounds like you're getting over whatever that upset was. You might want to look up adverse effects of the estrogen you were taking.

[Jools44]

@Altostrata I have developed an additional symptom that I don't recall having before, or if I did it was very occasionally, and that is restless leg syndrome. From a brief look on Google its likely to be related to dopamine (although I thought mirt didn't have a huge affect on dopamine unless at high doses??).

I am wondering if I wouldn't be better to start reducing the dose sooner rather than later, as I still feel pretty flat most days. Prior to the taper I had a full range of normal emotions but now, really not. 

Having said that I am still suffering with the hearing issues and after saying the wild emotions had calmed down I've had a pretty tearful day. 

I updosed by far too much back in September and never felt right. I'm wondering if my brain hasn't fully recovered from the big updose and my question is will it ever if I remain at this higher dose and how long should I leave it before trying? The serious WD symptoms came on after the massive cut though. All "how long is a piece of string" questions I know, but if you've any guidance I'd be grateful. 

[Altostrata]

Leg stretching and magnesium are good for so-called "restless legs".

 

Many people find fish oil and magnesium supplements helpful, see

 

https://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

 

https://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

You might try a little bit of one at a time to see how it affects you. Please let us know how you’re doing.

[Jools44]

Just thought I'd list my current symptoms which seem to be changing daily:

- headache

- am nausea

- am anxiety

-restless leg syndrome 

-worsening fatigue

-dry/sore eyes

- I developed a weird itchy rash on my leg last week but that seems to have resolved without treatment 

- variable head tinnitus (not as bad or I'm just getting used to it) 

- hyperacusis some improvement 

-ear pressure 

- neuro emotions although this is not as severe as it was 

- poor sleep or outright insomnia 

 

Low histamine diet, no alcohol or coffee, 22.5mg mirtazepine, 200mg magnesium, just started omega 3 (introducing slowly). 

 

[Greatful]

@Jools44

The wonderful gifts of WD 

It's funny I've been having burning eyes...

What are you calling variable head tinnitus?  Buzzing in the brain?  I have a ton of brain issues.  lol  Not just cognitive but sensation wise, sometimes painful😥

Yep the ear pressure is fun.  Usually when mine gets bad I want to rip them off.  I know I told you that already lol

Do you think it is restless leg syndrome or maybe akathesia.  Do you have to move your legs all the time? when did it start?

 

Hang in there. 🌞

 

 

Edited January 12, 2022 by Greatful

[Jools44]

22 minutes ago, Greatful said:

@Jools44

The wonderful gifts of WD 

It's funny I've been having burning eyes...

What are you calling variable head tinnitus?  Buzzing in the brain?  I have a ton of brain issues.  lol  Not just cognitive but sensation wise, sometimes painful😥

Yep the ear pressure is fun.  Usually when mine gets bad I want to rip them off.  I know I told you that already lol

Do you think it is restless leg syndrome or maybe akathesia.  Do you have to move your legs all the time? when did it start?

 

Hang in there. 🌞

 

 

 Hi @Greatful 👋 you sound awfully cheerful about your symptoms, mine are making me a miserable old boot! 😆

 

I think it is RLS rather than akathisia  as it only comes on immediately after taking the mirtazepine at night. I think mirtazepine is known for it too. The rest of the time it's fine. Its not happening every night, like all the other symptoms they come and go and then come again. I'm just longing for the day they go and stay gone!! I think it's their unpredictable nature I find so hard to cope with. 

 

The head tinnitus sounds like my brain is fizzing, which I sometimes worry it might be!! I'm pretty sure it's lessened in intensity though, along with the noise sensitivity. I can still feel this weird sensation on my ear drums though, hopefully it the neurones regenerating!! That's what I tell myself. 

 

I'm probably getting there, but sometimes it really doesn't feel that way and the fatigue is worsening,. Hopefully it's only temporary 🤞🤞

 

Are thing settling down for you at all? 

 

 

[Altostrata]

4 hours ago, Jools44 said:

I think it is RLS rather than akathisia  as it only comes on immediately after taking the mirtazepine at night.

 

Does this happen consistently? Do you ever have the leg symptom before taking mirtazapine?

 

This leg symptom is very common at night. If I were you, I'd try taking magnesium or rubbing magnesium oil on your legs.

 

How do you feel before and after taking mirtazapine? Do any other symptoms occur after you take it?

[Jools44]

8 hours ago, Altostrata said:

 

Does this happen consistently? Do you ever have the leg symptom before taking mirtazapine?

 

This leg symptom is very common at night. If I were you, I'd try taking magnesium or rubbing magnesium oil on your legs.

 

How do you feel before and after taking mirtazapine? Do any other symptoms occur after you take it?

@Altostrata no it doesn't happen consistently but I had noticed it happening a little more frequently. I do take take magnesium at night but quite a conservative dose.

 

I think I had an uptick in the tinnitus after taking the mirtazepine last night, it had been fairly quiet all day until then. 

 

I have noticed I feel better in the evenings, my mood improves and I feel less tired, I had wondered if that was due to the mirtazepine?

 

My guts still aren't right either. I was always constipated on Mirtazepine before the taper but I am drinking a fair bit of water now. 

[Altostrata]

Is it possible you had food poisoning or similar?

 

How do you feel before and after taking mirtazapine? How has your sleep pattern changed in the last week?