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FeralCatman: recovering from Seroquel


FeralCatman

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Now that I have done all of this 'Thinking Allowed'  and have a couple of variables identified I have a several questions for anyone / everyone.

 

  1. Right now I have to use the antihistamines for safety/functionality reasons. Allegra only binds with peripheral receptors not with the CNS so it is not directly affecting the CNS. It seems that calming the body helps to calm the CNS. Benadryl I rarely use as a rescue medication but it does bind with both peripheral receptors and the CNS. Is using it going to upset the CNS recovery process? It's the only thing I am truly worried about right now.
  2. I have seen the term 'Kindling' but need a link which describes that so I can understand it.
  3. In addition to food sensitivities I also seem to be very sensitive to the environment during allergy season even on the Allegra. Still trying to identify specific triggers which is proving to be very difficult.  I cannot spend time outside right now without an N95 mask. Annoying but oh well as I can still walk 3 miles in the mask with no issues. Has anyone else had a problem with environmental sensitivity issues? Issues with light and sound passed pretty quickly for me last year.

 

As much as possible I am staying away from anything other than a simple whole food diet, water, decaf coffee, my listed meds, fish oil, vitamin pill, vitamin C, and a probiotic. I never eat anything I don't make myself anymore. I get as much exercise as I can. I had considered a naturopath but all they seem to want is to sell supplements and expensive tests that I know are bogus and insurance is reimbursement only they do not cover directly and I am not really interested in supplements. I am going to a nutritionist starting Friday to make sure what I am eating is well balanced and giving me what I need and to address any possible gut healing issues as suggested by Altostrata. Other than what I have mentioned about the possibility of MCAS I am largely trying to continue gathering information to keep building up a complete picture of my situation and am changing as little as possible so as to leave my CNS alone and let it heal.

 

Any thoughts on this would be greatly appreciated. 

 

I don't log on or post daily as sometimes reading what other people are going through can be very distressing for me as can even simple interactions with people even on line so I log on when I am up to it. I have a lot of anger about all of this and it bothers me that so many people have had this done to them. Nothing to do with anyone on this site. That's all me and what I can deal with every day.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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With respect to MCAS and Immunology I am proceeding very very cautiously to any medications they may want to try but it is definitely a path worth pursuing given my long term history of symptoms including pre medication symptoms. Trying very hard to not add insult to injury.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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18 hours ago, FeralCatman said:

I have seen the term 'Kindling' but need a link which describes that so I can understand it.

 

I did a search for posts by Shep for kindling (link below).  Basically it is trauma to the nervous system (sensitisation) which may be caused by going on and off psychiatric drugs, taking too high a dose, going up and down in doses, adding or switching drugs, reducing too quickly and experiencing bad withdrawal symptoms.  The effect of psychiatric drugs is cumulative and what you might have worked for you previously might not work the next time you try the same thing.

 

https://www.survivingantidepressants.org/search/?&q=kindling&author=shep&search_and_or=and

 

  

On 7/26/2012 at 11:38 AM, Altostrata said:

Kindling is another name for hypersensitive reactions to neurologically active substances.

 

Yes, people who have withdrawn from antidepressants experience this. We have many, many discussions about post-withdrawal hyper-reactivity.

 

This is another reason to care for the nervous system with a slow taper.

 

On 8/6/2011 at 6:43 AM, Altostrata said:

If you've had withdrawal symptoms or adverse reactions before, you are likely to have them again. Be careful, because an injury to the nervous system is like any other injury -- it can take time to heal. Repeated nervous system injuries cause more and more intense symptoms -- a phenomenon called "kindling."

 

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

 

MISSION ACCOMPLISHED:    (6 year taper)      0mg Pristiq      on 13th November 2021

Woohoo!!!  Finally off Pristiq    Post 0 updates start here

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  Please DO NOT TAG me - thank you.

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Thank you Chessie Cat. That's very helpful. Still working on figuring out how to navigate this site. For the first time in my 50+ years I am finally building a connected holistic big picture view of everything I am dealing with. The Website 'Beyond Meds' has been very helpful in building this picture as it helped me to connect many previously disconnected dots. My next post will be a summary of it all. Drug withdrawal is only part of it as I am finding out. Basically I am kind of a mess right now. I am glad I have decided not to change much right now so as not to make things worse. I am actually having a very hard time recently with these sensitivities and they seem to be getting worse. I am becoming nervous about too many things as I don't know what will trigger the next reaction which of course is raising my stress and anxiety levels which probably is not helping the sensitivities and it is starting to snowball. Due to the sensitivities and a bad allergy season in full swing I am unable to get out and do what comforts me which is to go hike and be out in nature. I had a reaction last night and don't know what caused it. The benadryl didn't really help this time so it's a bit scary for me which is hard for me to admit. I did get the blood work back from my trip to the ER a couple of nights ago and my Tryptase levels were elevated above baseline by 12% at 3-4 hours after the onset. Since levels peak 1-2 hours after onset they were already decreasing and had been higher so even though they are still in the normal range this is a possible indicator of a MAST cell reaction hence why I have been talking about MCAS. I have had to do some pretty scary things in my life but this definitely takes the cake because it is so unpredictable. I haven't been able to coherently post very much about it because of the lack of a big picture perspective on what is happening and a lack of understanding about the protracted withdrawal process but now that I have done a ton of reading and have that I will try to start because I definitely can't do this one alone which is typically what I have always done. My best friend of 20 years recently compared me to Sheldon on 'The Big Bang Theory' so social interaction can be very draining on me even online. I've basically been a loner since birth so reaching out consistently is very hard for me. I have also had repeated trauma over the years in the hands of people who I was supposed to be able to trust, including as a child, so that has just reinforced the loner mentality. I won't post the details here because I know it is triggering for a lot of people and this is not the appropriate place for that. I will say much of the trauma and abuse occurred in VA Hospitals and civilian Psychiatric Wards. The last time I was in one of those places they literally almost killed me and I consider myself lucky to be alive. My brother is the same way as we basically had to raise ourselves. So, my ability to trust is hanging by a thread at this point. When I did my original write up I had hoped that once off the Seroquel there would just be a slow steady recovery but that does not seem to be the case since things took a turn for the worse over the last few weeks. This is an incredibly steep learning curve. Much steeper than learning to operate and maintain nuclear reactors. I am learning it's not as simple as just wait it out and gut it out and it will eventually get better. There are multiple things I will need to start doing to really heal from this. It's very stressful in and of itself and as much as I want to I just can't do this alone any longer. I will need help which is why I am so glad I found this site.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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I am going to write up the holistic summary I spoke about and when it is done I will post it. However, before I do that I am going to finally stop being a stubborn loner and take the advice of Altostrata and post daily logs for awhile so I can have some input on what may be going on. Also, here is my full set of official diagnosis.

 

Bipolar 1

PTSD

Generalized Anxiety Disorder

Diabetes type 2 (Non Medication Dependant Now)

Hypothyroidism

High Cholesterol

Hypogammaglobulanemia (Including IGG Subclass Deficiency of IGG 1 & 3)

IGA deficiency

Forestiers Disease

Ankylosing Spondylitis

Seasonal Allergies

REM Behavior Disorder

Possible Mast Cell Activation Syndrome (MCAS) under evaluation

 

This is my log from yesterday.

 

0430 - Woke up from an adrenaline surge. The worst of the anxiety lasted about 2 hours and then started to settle down. Slept 6-7 hours broken. Tried 12.5mg benadryl but was not much help this time. Stayed in bed and did vagus nerve breathing exercises and listened to music to try and calm things down. Waking symptoms - Back pain lower right side (Normal AS pain), Anxiety, Shaky, Very Hot, Mild blurry vision (comes and goes)

 

0630 Out of bed. 16 oz glass of water (caused cramping and discomfort), Anxiety reducing.

                   Took 100mcg synthroid.

0645 - 0730 Cleaned litter boxes, vacuumed the house, medicated cats, changed water bowls, fed cats

0730           20mg Nexium

0800 2 cups decaf coffee with light cream and stevia - No reactions

0900 Took remaining Pills

                   200mg carbamazepine

                   180 mg allegra

                   1000 mg fish oil

                   1000 mg vitamin C

                    Nasal Sprays For Allergies (Azelastine, Ipratropium Bromide)

0915 Normal Bowel Movement

0930 Breakfast - 2 scrambled eggs, Turkey Sausage, Grapes, Small apple, Water

                            (Some short term mild cramping and discomfort)

1000 - 1600 Got dressed, took garbage to dump, went to post office, went to grocery store. Wore an N95 Mask the entire time due to seasonal allergies. Didn't have to do this until it warmed up and the snow melted. Trying to minimize exacerbation of reactions. Symptoms throughout the day included small adrenaline surges, waxing and waning axiety, irritability, a bit of anxiety and fear when leaving the house due to fear of making reactions worse by environmental exposure, transient blurry vision, transient pain in stomach and intestines, transient lymph node pain in my arm pits (I've had this one for years).

1600 - 1700 3 mile walk, got some odd feeling cramps and twitching in my left thigh that was new and triggered anxiety. Overall though anxiety is greatly reduced.

1800 Nightly Pills and 1 glass low sugar gatorade for the cramps

                      Carbamazepine 200mg

                      Crestor 5 mg

                      Allegra 180 mg

                      Paxil 10 mg

                      Vitamin D3 2000IU

                      Multivitamin

                      Fish Oil 2000mg

                      Allergy Nasal Sprays (Azelastine, Ipratropium Bromide, Triamcinolone)

1800-1830  Cleaned litter boxes, Changed water bowls, vacummed, medicated cats, fed cats

1845 Supper - Boiled haddock and vegetables and sweet potato, water

1930 Desert - 1 cup frozen blueberries with stevia and half and half

2100 Anxiety ramping up again, muscle twitching, facial muscle twitching, short adrenaline surges, urges to urinate increasing

~2200 Fell asleep

                     

 

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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Forgot to add that I take a probiotic as well in the morning

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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Thinking about you. How are you doing today, FeralCatMan?

64 y/o Female

Current meds:

Started:26 February, Propranolol 5 mg 8am and 8 pm

Started: 11 March 2022, Ativan : 0 .25mg 1pm and 9pm

Started: 19 February (?) Seroquel 25 mg :Now, just less than 1/4 pill ( 0.012 scale weight) 1030 pm

Started: 26 February 2022, Lunesta 1 mg: Now less than 1/4 pill (0.018 scale weight) 10:30 pm

 

Other meds: Levothyroxine 50mcg with extra 25mcg Mon. Wed. Fri.

 

 

 

 

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18 hours ago, Pollyjay said:

Thinking about you. How are you doing today, FeralCatMan?

@Pollyjay Yesterday was a really rough day. Didn't sleep much. Had bad anxiety in the morning and several bouts of bad adrenaline surges at night. Had to use the benadryl again. My body is really in an uproar all of a sudden. So sorry to get back so late but yesterday was a long busy day and I didn't have the energy to log on last night.

 

Thank you so much for checking in and thinking of me. It's really appreciated. 😉😉

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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Thursdays log 04/21/2022

 

0200 - Woke up from with severe adrenaline surge and muscle twitching. Panicked and took 25 mg of Benadryl. Didn’t help like it has been. The worst of the anxiety lasted about 1 hour and then started to settle down. Slept a bit until 0445 then got on phone and started reading on Surviving Antidepressants and Beyond Meds. Also did vagus nerve breathing exercises and listened to music to try and calm things down. Waking symptoms - Back pain lower right side (Normal AS pain), Anxiety, Shaky, Very Hot, Mild blurry vision (comes and goes)

700 Out of bed. 16 oz glass of water (caused cramping and discomfort), Anxiety reducing.

                   Took 100mcg synthroid.

0720 - 0800 Cleaned litter boxes, vacuumed the house, medicated cats, changed water bowls, fed cats

0800   20mg Nexium

0830   Logged on to reply to chessie cat

0900 Took remaining Pills

                   200mg carbamazepine

                   180 mg allegra

                   1000 mg fish oil

                   1000 mg vitamin C

                    Nasal Sprays For Allergies (Azelastine, Ipratropium Bromide)

                    Pro Biotic

0930 Normal Bowel Movement

0945 Breakfast - 2 scrambled eggs with asparagus, Small apple, Water

                           (Some short term mild cramping and discomfort)

1015 logged on to post yesterdays log

1106 Anxiety is ramping up again, Feel twitching in my face again, house is 69F but I am cold again and had to turn up the heat to 72

1430 Phone appointment with therapist

1430 – 1800 Stayed inside today to give my body the best chance of some rest and recovery. Had a cup of unsweetened applesauce at 1600. Symptoms throughout the day included small adrenaline surges, waxing and waning anxiety, irritability, transient blurry vision, transient pain in stomach and intestines, sobbing fits. Seems to get better as the day goes by again. Ability to cope waxes and wanes with the anxiety and adrenaline surges.

1730 Anxiety is ramping back up again. Not sure if this is a reaction or just anxiety. Vitals are good. BP is up a bit but okay.

1800 Getting worse. Took 50mg Benadryl to see if it helps. Used some of my Boost Oxygen bottle to see if it helps.

1845 Nightly Pills. Benadryl is helping

 

                      Carbamazepine 200mg

 

                      Crestor 5 mg

 

                      Allegra 180 mg

 

                      Paxil 10 mg

 

                      Vitamin D3 2000IU

 

                      Multivitamin

 

                      Fish Oil 2000mg

 

                      Allergy Nasal Sprays (Azelastine, Ipratropium Bromide, Triamcinolone)

 

1800-1830  Cleaned litter boxes, Changed water bowls, vacuumed, medicated cats, fed cats

1900 Supper - Boiled chicken and broccoli and potato, water. Blueberries, cream, and stevia.

2100 Bad episode of adrenaline spike and anxiety that started in my guts. Going to see nutritionist tomorrow. Benadryl helped again.

2230 Bed time

 

 

                     

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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3 hours ago, FeralCatman said:

@Pollyjay Yesterday was a really rough day. Didn't sleep much. Had bad anxiety in the morning and several bouts of bad adrenaline surges at night. Had to use the benadryl again. My body is really in an uproar all of a sudden. So sorry to get back so late but yesterday was a long busy day and I didn't have the energy to log on last night.

 

Thank you so much for checking in and thinking of me. It's really appreciated. 😉😉

 

Please don't feel the need to apologize FeralCatMan! You have enough on your plate to deal with. I'm struggling with the anxiety also and sometimes it's all we can do to just breathe our way through the day. 

 

I hope your appointment with the nutritionist went well. It sounds like you had a very full day and that just ramps things up even more. You even vacuumed the house!

 

I hope today you can rest and bring the adrenaline down a bit. Take it easy and just do small things. Have one thing   you can check off as "done" call it quits and feel good about yourself.

 

My thing today is Take a Shower  I have no idea why getting in the shower always seems like an insurmountable task! Moeso than doing the farm chores. It's nuts. 

Yesterday was very hot - at least for me-  I found the anxiety getting worse and worse the more I tried to work out there. All I got done was to fill two large planters with soil. Had to keep coming in to lay on the bed and try to get the anxiety down. It took 4 hours to fill two pots!  But they're done! Maybe I'll get the flower seeds planted in there today.

 

Anyway, I'm rooting for you and praying that you'll have some relief from all the symptoms you're having, especially the anxiety!

 

Scratches and kisses to the precious kitties!

 

Polly

 

 

 

 

 

64 y/o Female

Current meds:

Started:26 February, Propranolol 5 mg 8am and 8 pm

Started: 11 March 2022, Ativan : 0 .25mg 1pm and 9pm

Started: 19 February (?) Seroquel 25 mg :Now, just less than 1/4 pill ( 0.012 scale weight) 1030 pm

Started: 26 February 2022, Lunesta 1 mg: Now less than 1/4 pill (0.018 scale weight) 10:30 pm

 

Other meds: Levothyroxine 50mcg with extra 25mcg Mon. Wed. Fri.

 

 

 

 

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@PollyJay Just wanted to let you know I will have to be off line for awhile. I had to call my dad and he is staying with me right now. Lots of crazy things happening to my body right now and had to go to the ER twice in the last 3 days. Not sure what is going on but BP has been all over the place, Body temp control is whacked and I shiver in the house at 69F, no sleep in over 2 days, etc. I've been very careful since getting off the seroquel about caring for my nervous system and not jerking it around too much so this may be something else. I am in good hands with my dad and he is staying for the duration. I will get in touch when things settle out and I get some answers.

 

Please take care and thank you for reaching out. I really appreciate it.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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On 4/23/2022 at 3:57 AM, FeralCatman said:

Thursdays log 04/21/2022

 

0200 - Woke up from with severe adrenaline surge and muscle twitching. Panicked and took 25 mg of Benadryl. Didn’t help like it has been. The worst of the anxiety lasted about 1 hour and then started to settle down. Slept a bit until 0445 then got on phone and started reading on Surviving Antidepressants and Beyond Meds. Also did vagus nerve breathing exercises and listened to music to try and calm things down. Waking symptoms - Back pain lower right side (Normal AS pain), Anxiety, Shaky, Very Hot, Mild blurry vision (comes and goes)

700 Out of bed. 16 oz glass of water (caused cramping and discomfort), Anxiety reducing.

                   Took 100mcg synthroid.

0720 - 0800 Cleaned litter boxes, vacuumed the house, medicated cats, changed water bowls, fed cats

0800   20mg Nexium

0830   Logged on to reply to chessie cat

0900 Took remaining Pills

                   200mg carbamazepine

                   180 mg allegra

                   1000 mg fish oil

                   1000 mg vitamin C

                    Nasal Sprays For Allergies (Azelastine, Ipratropium Bromide)

                    Pro Biotic

0930 Normal Bowel Movement

0945 Breakfast - 2 scrambled eggs with asparagus, Small apple, Water

                           (Some short term mild cramping and discomfort)

1015 logged on to post yesterdays log

1106 Anxiety is ramping up again, Feel twitching in my face again, house is 69F but I am cold again and had to turn up the heat to 72

1430 Phone appointment with therapist

1430 – 1800 Stayed inside today to give my body the best chance of some rest and recovery. Had a cup of unsweetened applesauce at 1600. Symptoms throughout the day included small adrenaline surges, waxing and waning anxiety, irritability, transient blurry vision, transient pain in stomach and intestines, sobbing fits. Seems to get better as the day goes by again. Ability to cope waxes and wanes with the anxiety and adrenaline surges.

1730 Anxiety is ramping back up again. Not sure if this is a reaction or just anxiety. Vitals are good. BP is up a bit but okay.

1800 Getting worse. Took 50mg Benadryl to see if it helps. Used some of my Boost Oxygen bottle to see if it helps.

1845 Nightly Pills. Benadryl is helping

 

                      Carbamazepine 200mg

 

                      Crestor 5 mg

 

                      Allegra 180 mg

 

                      Paxil 10 mg

 

                      Vitamin D3 2000IU

 

                      Multivitamin

 

                      Fish Oil 2000mg

 

                      Allergy Nasal Sprays (Azelastine, Ipratropium Bromide, Triamcinolone)

 

1800-1830  Cleaned litter boxes, Changed water bowls, vacuumed, medicated cats, fed cats

1900 Supper - Boiled chicken and broccoli and potato, water. Blueberries, cream, and stevia.

2100 Bad episode of adrenaline spike and anxiety that started in my guts. Going to see nutritionist tomorrow. Benadryl helped again.

2230 Bed time

 

 

                     

Taking antihistamines may have adverse reactions..

 

 

 

Chronic IBS since 1990

Former smoker (1992- Jun 2017)

Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation.

Mirtazapine 7.5mg 8/17 to 5/18

Mirtazapine 3.75mg 5/18 to 1/19

Off Mirtazapine since 2/19.

Vit B, Vit D+K2 and Magnesium Glycinate as needed.

On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020

On Ashwagandha 1g since Nov 2020

 

 

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4 hours ago, FeralCatman said:

@PollyJay Just wanted to let you know I will have to be off line for awhile. I had to call my dad and he is staying with me right now. Lots of crazy things happening to my body right now and had to go to the ER twice in the last 3 days. Not sure what is going on but BP has been all over the place, Body temp control is whacked and I shiver in the house at 69F, no sleep in over 2 days, etc. I've been very careful since getting off the seroquel about caring for my nervous system and not jerking it around too much so this may be something else. I am in good hands with my dad and he is staying for the duration. I will get in touch when things settle out and I get some answers.

 

Please take care and thank you for reaching out. I really appreciate it.

 

I just wanted to say that taking antihistamines may cause adverse reactions..  

 

 

Chronic IBS since 1990

Former smoker (1992- Jun 2017)

Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation.

Mirtazapine 7.5mg 8/17 to 5/18

Mirtazapine 3.75mg 5/18 to 1/19

Off Mirtazapine since 2/19.

Vit B, Vit D+K2 and Magnesium Glycinate as needed.

On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020

On Ashwagandha 1g since Nov 2020

 

 

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On 4/24/2022 at 3:32 PM, FeralCatman said:

@PollyJay Just wanted to let you know I will have to be off line for awhile. I had to call my dad and he is staying with me right now. Lots of crazy things happening to my body right now and had to go to the ER twice in the last 3 days. Not sure what is going on but BP has been all over the place, Body temp control is whacked and I shiver in the house at 69F, no sleep in over 2 days, etc. I've been very careful since getting off the seroquel about caring for my nervous system and not jerking it around too much so this may be something else. I am in good hands with my dad and he is staying for the duration. I will get in touch when things settle out and I get some answers.

 

Please take care and thank you for reaching out. I really appreciate it.

 

Thinking of you, and praying for you, FeralCatMan!!!!

 

I'm so glad you have your dad there for help and support. Praying for him too. I'm sure he's very worried about you. 

 

Hugs to you both!

64 y/o Female

Current meds:

Started:26 February, Propranolol 5 mg 8am and 8 pm

Started: 11 March 2022, Ativan : 0 .25mg 1pm and 9pm

Started: 19 February (?) Seroquel 25 mg :Now, just less than 1/4 pill ( 0.012 scale weight) 1030 pm

Started: 26 February 2022, Lunesta 1 mg: Now less than 1/4 pill (0.018 scale weight) 10:30 pm

 

Other meds: Levothyroxine 50mcg with extra 25mcg Mon. Wed. Fri.

 

 

 

 

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Well, that was scary. My BP spiked to 175/110 which is what led to the ER visits. Here is the big picture holistic view.

 

My dad just left. I have almost completely recovered. On Tuesday my PCP prescribed a very low dose of Metoprolol ER Succinate which is a beta blocker. Things calmed down within an hour and I was able to get  several hours of broken sleep. Yesterday was still shaky but last night I passed out on the couch and slept pretty well until about 0330 and everything is starting to resolve very quickly. I will have to taper off of it when it is time to stop but I can deal with that as it is certainly less aggressive than Seroquel. My food sensitivities are also already lessening and my guts are moving again.

 

There is definitely post Seroquel CNS Hypersensitivity involved.

 

There is also a hyper-immune response going on as well as I have several lymph nodes that are swollen and a few CBC values are off. This may be the pre-existing conditon that led me to be medicated in the first place since I had symptoms like this, albeit not quite as severe, prior to ever being on psychiatric medications while in the Military. Exposure to toxins combined with a high stress environment may have been the initial trigger while in the Military but it will be difficult to say for sure. Long term exposure to Seroquel and the other psych meds most likely made it much worse. This is a theory but at this point I would be willing to put money on it.

 

Right now both conditions seem to be feeding on each other and seem to be magnifying each others responses to triggers.

 

My dad helped me to identify the trigger for this and for my last episode earlier this year. It was environmental not medication triggered. I can easily avoid that trigger but will still have to be careful. I am sticking to a very strict diet for now until I know more.

 

Since the VA has once again dropped the ball my civilian ENT doctor is getting me into the Mast Cell Disorders clinic at Brigham and Womens Hospital in Boston ASAP. He let me know that in no way should I decrease my Allegra or tinker with the dose in any way as these reactions are quite risky and reducing the dose will most likely cause another episode so I am going to have to walk on eggshells around myself for awhile. 😷😿😿😿😿

 

I know this is not entirely tapering or withdrawal related however there may be others who are having post cessation issues that may have a root cause beyond withdrawal so I though posting this could be helpful to anyone else who may have similar issues.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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  • 2 weeks later...

Doing much better now. Everything is calming down. Other than the early waking cortisol burst at 3-4 am I am getting enough sleep. Today was the 4th mostly normal day in a row.  Still a bit fatigued but overall pretty good. Anxiety has shifted into the background when it is present and most of the time now it is not there. Mood is pretty much back to normal.

 

The low histamine diet I am on seems to be very helpful. Earlier on Altostrata mentioned that the histamine intolerance symptoms may be related to gut dysbiosis. I have been looking into it and that may be a big part of the issue here since almost all of my recent symptoms started between my sternum and my tailbone with pain in various portions of my guts. I discussed this with my PCP and my nutritionist and my psych provider and they all agree it could be at least part of the problem. My PCP has been reading studies on gut health and the microbiome and the importance of gut health on overall physical and mental health. So has my psych provider. If MCAS comes up negative, which I actually hope it does for obvious reasons, then this could be a gut generated histamine intolerance that just happens to be very nasty right now in combination with allergy season. Trying to come down off the antihistamines too fast may have precipitated the gut issues because Allegra binds heavily with H-1 receptors in the gut and I may have opened up those receptors too quickly for my body to adapt. Seroquel also binds with those receptors so years of use may have left my guts more sensitive to changes like stopping the Allegra. Even if my brain and nervous system are healing up my guts may still be very dependent on having an antihistamine on board since my digestive system has been trained to deal with the world through a Seroquel lens. Upset the guts and the microbiome and then that back feeds into the ANS and the Feral Catman gets suddenly very miserable. That portion of the equation makes this recent setback also a Seroquel withdrawal issue though maybe indirectly. Perhaps this is what is teaming up with a still sensitive ANS to have made me exceptionally miserable for a bit. So hard to know. My nutritionist sent me recipes for homemade electrolyte drinks and I am making one with cranberry and apple juice with are both low histamine / antihistamine. I tried it this morning and it settled my guts right down almost immediately. I was pretty shocked truth be told but grateful at the same time. I am still in the process of getting tested for MCAS and don't have any of the results back yet. As I mentioned earlier it seems that the trigger for this recent wave of pretty severe symptoms was environmental however as I think more upon it there were actually multiple triggers stacked on top of each other including stress triggers. The first one being a frozen septic line in my yard right before this all started winding up. All things I used to do and deal with fine but now I apparently have to be more careful with pretty much everything. My stress tolerances are still very very low. So I have scaled back activities for now and take long breaks and listen even more closely to what my body is telling me to do. I am working with my acupuncturist to settle my guts and to strengthen vagus nerve tone and parasympathetic response. Deep breathing exercises seem to be working better and more quickly now that I am practicing and using them consistently. Any anxiety over the last few days I have been able to quell with a few slow deep breaths and forcing my body to relax. I haven't quite figured it all out yet but I am making progress along the learning curve. Once I figure out all of my current limits I can then figure out how to slowly expand them again over time. In the mean time I am trying to enjoy these relatively quiet days. Despite this recent setback I still seem to be healing. One interesting thing is that now that things are settling down my blood sugars seem to be more stable and the spikes are lower. I am getting more and more readings between 90 - 110 for longer stretches. Some of it may be the diet but I like to think some of this is me healing up.

 

That's it for now. As part of limiting activites I am limiting TV, Internet Use, News Checking, etc. to keep stress levels as low as possible. I've replaced it with music most of the time. I will check back in when all of my testing is done and I have the results and an MCAS confirm or deny.

 

Before I sign off I want to say thank you again to Altostrata and to everyone on this web site who has shared their experiences. Even though I am not all that interactive I do read a lot and learn from it. With this recent setback I would have been very lost without this site and all of the information that has been shared. I have been reading symptoms and self care as I have felt up to it and have found a lot of useful information. My PCP and psych provider are also cruising this web site trying to learn what they can to help me with all of this. They are definitely on board with and sympathetic to what people here are having to say about these medications and their effects and to the suffering so many have endured. My psych provider is turning heavily towards non drug therapies as much a possible with medications as an acute crisis management tool only. Information on this site has helped push her further in that direction. When I have felt better consistently for awhile and have a list of things that definitely helped me I will be sure to post them in the appropriate forums.

 

A big Thank You Cute kitten :: Thank You :: MyNiceProfile.com

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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@manymoretodays Forgot that I was supposed to be tagging a moderator when I post on my introduction thread so sorry about that.

 

I am definitely feeling better. My blood sugars seem to be stabilizing at lower levels and the spikes are smaller and I have lost some weight. My overnight blood sugars are sitting between 90 and 110. That's the first time ever since I was first diagnosed as diabetic. All signs that my endocrine system is making adjustments. It may also partly explain the recent upsets in that my body is just trying to adjust to a new normal and gets a bit confused and freaks out from time to time. My first lab result came back and my 24 hour histamine levels are normal so things are moving in the direction away from MCAS and towards a histamine intolerance / sensitivity that should pass in time. I have several more tests I am waiting for before I call the ball and will update when I get them. What I am learning quickly is that my former limits on stress and daily activities have for now been greatly reduced and I need to operate within those limits for now and as time goes by I will have to expand them back out again. Extreme patience is the key.

 

I have been reading quite a bit on 'Symptoms and Self Care' and realized something this morning.

 

I have been through all of this before. Multiple times.

 

At the time I was told it was either my illness or I was adjusting to a new medication. In looking back at my medication timeline and extensive reading of 'Symptoms and Self Care' it is pretty obvious that I have been through withdrawal and recovery many times. It is awful that they do this to people. With the number of meds I have been on and the number of times I have been CT'd it's amazing I am even still here to talk about it. However, there is very good news for everyone here in realizing this.

 

Each time I went through it it took on average 6-14 months to stabilize and achieve some sort of normality in sleep, appetite, vital signs, etc. The worst was after my last hospitalization where they dropped my Seroquel by 200 mg in one shot and completely stopped my Tegretol at the same time and replaced it with Ativan. I had to restart at the lowest dose when I got home on my own. It took 3 months for me to be able to tolerate much food, the anxiety was horrific, sleep was sporadic, etc. All familiar things to people here. After 3 months the worst of it passed except for the neuropathy that I developed. My skin, especially on my arms, felt badly sunburned constantly. It was diagnosed by a neurologist as small cell peripheral neuropathy and was told it was due to my diabetes. They were wrong. It healed up in 14 months and is still gone many years later.

 

This realization gives me hope more than anything else. I have been through this before and healed. I will heal again as will everyone else here eventually so hang in there. It will happen 😉✌️😺😺😺😺

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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  • Moderator

Hi Feral! 

You don't have to necessarily tag a moderator for each post.  Posts of course, do get scanned, and prioritized by staff.  

I don't mind though, popped in today,  and do know how nice it can be to get a reply sometimes when you are getting things all in perspective.

Which it seems you are.

 

I'm kind of inactive right now.......longish break but tickled to read that you are feeling good and seeking medical care for you medical issues right now, while in a HOLDING pattern.

I really do need to do the offline thing from time to time.  Take some huge breaks.  I read that you do that too, so I'm sure you get it.

 

HOLDS can be lengthy at times, and yes, you will, when the time comes....... need to carefully taper the metopropol to avoid rebound increases in your BP.

We've got a couple topics:

* Tapering Beta Blockers or Alpha Blockers

^definitely worth a read

Beta Blockers: Propranolol, Metpropol, Atenolol

 

And I'm assuming you've plugged it into your interactions checked as well?  I know you were doing good at that.

 

2 hours ago, FeralCatman said:

This realization gives me hope more than anything else. I have been through this before and healed. I will heal again as will everyone else here eventually so hang in there. It will happen

^ sums it up nicely and thank you for the positive intentions for all!

 

I enjoyed your update and wish you continued healing.

 

And most definitely do tag someone when you have a specific question that needs attention.

 

L, P, H, and G,

mmt

 

 

 

2022 May- continuing with limited activity on site, just something I need to do right now

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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It's so good to read your update and see how much better you're feeling! There's so much more hope now that you know your histamine levels are normal. You really do seem to have a good team of doctors! 

 

I'm glad that you're finding ways to manage your symptoms. I know when I was at my worst, even though I tried to read and apply what I was reading in the self help areas; here and on the web, I just couldn't apply any of the techniques. But now that my symptoms are easing up a bit I'm more able to do the breathing and CBT type stuff. 

 

I'm particularly happy to read that your neuropathy symptoms cleared up! I've got them in my hands. Although I did take the advice of DR Berg on you tube and started taking Benfotianine. It's a fat soluble vitamin B1. I was reluctant to start taking a supplement but it does seem to be helping and, maybe it's just a coincidence, but since I started taking it about 4  days ago, the anxiety has not been as bad! 

 

Please keep updating and letting us know how your doing. 

 

Praying that you'll continue to make strides to complete recovery!

 

Pollyjay

 

64 y/o Female

Current meds:

Started:26 February, Propranolol 5 mg 8am and 8 pm

Started: 11 March 2022, Ativan : 0 .25mg 1pm and 9pm

Started: 19 February (?) Seroquel 25 mg :Now, just less than 1/4 pill ( 0.012 scale weight) 1030 pm

Started: 26 February 2022, Lunesta 1 mg: Now less than 1/4 pill (0.018 scale weight) 10:30 pm

 

Other meds: Levothyroxine 50mcg with extra 25mcg Mon. Wed. Fri.

 

 

 

 

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Had some more good days this week. 3 really good days in a row, Thursday was a bust, Thursday night was awful, Friday was so so, and Saturday was really good again. So far I feel fine today. So I seem to be back to having more good days than bad. Once all of this MCAS and nutrition testing is done I should be able to relax for a bit with the medical stuff. I have a good idea of what happened but won't post the summary until the testing is done.

 

There has been a very positive outcome to this food sensitivity fiasco. Working with my nutritionist I have scaled back my diet to bare bones basic as I really didn't have much choice. Since I did that my sugars have dropped significantly and my current average glucose is now 123 which is no longer diabetic. I am back into the pre-diabetic range for the first time in 16 years. I have also lost 13 pounds, partly as a result of the adrenaline issues when I lost a pound a day for a bit, and am down to 173 and stable. That's the lowest my weight has been since 1994 when I was still in the Navy. So, all of this recent craziness and suffering has resulted in something very good. I plan to stay on this diet for a long time and will start adding in things one by one week by week next winter. It's boring but it is helping and that is what matters and fortunately I am not a picky eater so I don't mind eating the same few things every day. 😁

 

All of my vitamins have been swapped out to ones with no colors, preservatives, etc on the recommendation of my nutritionist. I am tolerating my new vitamin D, Vitamin C, Fish Oil, and a Multi Vitamin just fine. Going to try some Quercetin next. When the nutrition testing comes back my nutritionist will recommend an appropriate probiotic and any other necessary treatment for what is found. My PCP is also having me slowly taper off of my Nexium which should help my digestion. I am using a jewlers scale to do the taper. I took out 20 % of the beads for this week and will see how I feel. If I do okay then next week I will take out 40% of the beads and see how I do. I started Nexium when taking NSAIDS every day for my Ankylosing Spondylitis but no longer take the NSAIDS so don't need it any more. We are looking at other options should I need the NSAIDS again which at some point I probably will. Nexium and other PPI's are one of the most common causes of gut dysbiosis so hopefully getting off of it will help. Either way, one less medication for my body to deal with is a good thing.

 

The VA also prescribed me a CES (Cranial Electrical Stimulation) unit for sleep and anxiety and it actually works pretty well. I use it for 20 minutes twice daily and it definitely helps relax you and it's not a drug. It supposedly helps build Vagal Tone and need for it's use should decrease over time. The unit they prescribed also doubles as a TENS unit for pain so I am going to use that as well for joint pain.

 

All in all good things seem to be happening despite some bad days and progress is definitely being made.

 

May 1st marked 9 months off of Seroquel. 😁😸😸😸😸

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment

@FeralCatman

 

Thanks for encouraging post, onwards and upwards. 
 

Great news about the diabetes thing. ! 
 

Agree Omeprazole causes havoc.  I was B12 and iron deficient on it. I now just use Gaviscon! 
 

OD 

My Intro topic.  Was Dickie in FB gabapentinoids 

2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 

2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 

2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). 

Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22

Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop 

Oxazepam 10mg.STOPPED 10th FEB 2022  “Rescue dose x 2 in 2 months. 

Buccastem 3mg less than 1 a month for nausea. 

Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene.

Oxazepam 10mg Prn since 1990's  1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night.

2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. 

Link to comment

@Frogie I have a couple of questions regarding meds.

 

1.) My anxiety always seems worse in the morning and improves as the day goes by. I am still waking up at 3-4 am. Sometimes with anxiety but getting some days now that I just wake up and can't sleep any more but feel okay. I take my 10mg paxil at night. I am wondering if the paxil could be contributing to my morning anxiety and if what once was helpful has now become activating. Not looking to change anything right now that is not critical so looking for information. I am trying to keep things as consistent and stable as possible for awhile.

 

2.) I am now also taking metoprolol ec succinate 25mg at night due to the adrenaline surges causing high BP. It makes me really tired so I take it at 8 pm and am in bed at 9 pm. Paxil can increase the effects of metoprolol in some people. Would it be better to not take paxil and metoprolol at the same time of day? Would it be better to take the paxil in the morning and the metoprolol at night? If so how would I go about switching the timing without upsetting things? Again, not looking to change things if I don't really need to.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment
On 3/20/2022 at 3:52 AM, FeralCatman said:

I have a question for everyone, especially Seroquel survivors.

 

I am 7+ months off of Seroquel now. I have been experiencing anxiety attacks that feel like they start with discomfort in my gut and bowels. I get pain in my abdomen, lower intestine, and bowels. Shortly after that I start getting what feels like adrenaline surges followed by moderate to severe anxiety. So basically it feels like body generated anxiety that starts from the bottom and moves up instead of starting from the top down. These last for about an hour when they happen. I am still having the early morning waking anxiety to varying degrees daily. Some mornings it involves just waking up a bit early and being really awake instantly and other times it is a crippling curled up in a ball on the couch anxiety. The vagus nerve exercises seem to help as does walking and eating a low histamine diet.

 

Any of this sound familiar to anyone? If so what did you find that was helpful.

 

I am going to see my provider for a CES (Cranial Electrical Stimulation) device that has been shown to help some people.

Just came across your post. I’m down to 50mg Sertraline from 200mg Sertraline and my adrenaline surges/stomach churning/morning anxiety is REAL. It’s awful. The second I open my eyes, even if I’m still super sleepy my body is refusing to rest. How are the surges going for you?

2000-2018 150-200mg Sertraline and Vyvanse

2018- vyvanse 60mg to 50mg to 40mg to 30mg to 20mg to 10mg. After vyvanse taper I did 200mg Sertraline to 150mg

2019- 150mg Sertraline to 100mg

Early 2021- 100mg to 87.5 

two weeks later 87.5 to 75mg

spot taking 1.25-4mg bromazepam (lexomil) as needed (one three week period of 4mg a day spread throughout day, other than that it was 1.25mg during panic attack)

Mid 2021 - slow taper 2.5%-5% from 75mg to 50mg 

Feb 2022 last 2.5% cut to 50mg, holding here

March 2022 spot taking lexomil for vestibular migraine 1.25mg to 3mg 2x/wk for 3 wks 

May 9th 2022 started Propranolol, 10mg in the morning and 10mg in the evening

July 2022- no more propranolol 

Current supplements and drugs: 350mg of magnesium biglycinate at lunch, progesterone only birth control at breakfast, 50mg Sertraline 1x per day at breakfast

Link to comment

@Lauren90 The Metoprolol ER Succinate 25mg tablets my PCP prescribed pretty much nipped the adrenaline surges in the bud. Had to do something since my BP was so high (spiked to 175/110). Unfortunately when it is time to come off of that I will have to taper it but it is helping. The anxiety still comes and goes but I am having more good days in a row than bad. Averaging 4-6 hours of sleep per night. Since May 1st I only have 2 bad days marked on the calander with 2 bad nights at the same time. I had 6 mediocre type days with mild symptoms marked and 8 good days marked.

 

So out of 16 days that is:   50% Good - 37.5% Mediocre - 12.5% Bad

 

I actually had a day a couple of days ago that was completely normal. No anxiety, no surges, no nothing. Just normal and boring. It was amazing. So progress is slowly being made. I find that being on a simple and clean low histamine diet has helped. All whole foods, no eating out, no preservatives or colors, etc....just back to basics simple. Same with my vitamins and fish oil. I have a nutritionist who made sure I am getting all of my nutrients with what I am eating so I am going to keep it like this for awhile. Seems like the fewer chemicals you can put through your system the better.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment
  • Moderator

@FeralCatman

 

You should take them at least 2 hours apart from each other. So you could move the Paxil up an hour each night for a couple of days and see if that helps.

 

It sounds to me like you are getting cortisol spikes early morning which is normal. Everyone gets them, just people on these medications feel them a lot stronger than someone that isn’t on them.

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

Link to comment

@FrogieThank you. I will separate the doses by 2 hours. I am also going to slowly move the Metoprolol to 9pm by changing the time I take it by 10 minutes every day. Ultimately I will take everything but the Metoprolol at 6 pm and then will be taking the Metoprolol at 9 pm. Hopefully this shift will help. I will be so glad when all of this craziness has passed. Woke up at 4 am today with no bad anxiety or surges so things are very slowly improving. Once I am off the Nexium I will hold for a bit to see how my guts respond and then I am going to work on slowly getting my Allegra dose back down to 180mg twice a day. Once that is done I will hold for awhile and see how things go.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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  • Moderator

@FeralCatman

 

Just beware that once you stop the Nexium you will probably have heartburn. It stops the production of stomach acid. I was on Prilosec for years and it took a good month or so. I just ate bland until my stomach got used to the acid again.

 

Sounds like you have a good plan going. I'm really glad to hear you aren't waking with bad anxiety and surges as before. That is always a good sign.

 

Please keep me updated.

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

Link to comment

@Frogie I am tapering the Nexium. I open the capsules and use a jewelers scale to put the reduced dose back in. Last Sunday I took out 20% by weight so the dose was 80%. No problems so far this week. This coming Sunday I will take out 40% by weight so the dose will be 60%. If I have symptoms I will stop there until I feel better and then start in again. Slower if needed.

 

My engineer in the Navy hated rework and had a saying he drilled into us. "Slower is faster". From now on that is my mantra with all of these meds. I have given up on strict timelines and am just going with how I feel. The consequences just suck too bad to do otherwise.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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  • Moderator

@FeralCatman

 

That is a great saying to remember. You are not on a schedule, do as your body feels. I finally told myself, "slower than a turtle", because I just wanted it over and I learned the hard way. You are starting out with a great attitude toward this and it will pay off in the long run.

 

The Nexium schedule you are using sounds like a good plan.

 

Let me know if I can help any further or you have any questions.

 

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

Link to comment

I just posted this in Finding Meaning. Thought I would post it here as well. Here is the link.

 

 

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment

 

Update on Diabetes

 

On April 26, 2022, less than a month ago, my A1C was:

 

6.2% with an average glucose of 131

 

Today May 20, 2022 I took a home A1C test and it is now:

 

5.5% with an average glucose of 110

 

A normal, Non-Diabetic A1C is 5.1% or below with an average glucose of 100 or below.

 

I am almost there and it seems like the decrease in glucose levels is accelerating rapidly since just a month ago. So from time of cessation of the Seroquel on August 1, 2021 to time of visible rapid recovery of my glucose levels was 8 months and 25 days.

 

Going through this craziness is definitely worth it to see results like this.

 

Hopefully more of the excess weight will go next. Once I am up and fully active again I am pretty sure it will.

 

😁😁😁😁😁😁😁😁😻😻😻😻

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment

Love to see your updates ,that's such great news FCM!! 

 

How are you feeling?

64 y/o Female

Current meds:

Started:26 February, Propranolol 5 mg 8am and 8 pm

Started: 11 March 2022, Ativan : 0 .25mg 1pm and 9pm

Started: 19 February (?) Seroquel 25 mg :Now, just less than 1/4 pill ( 0.012 scale weight) 1030 pm

Started: 26 February 2022, Lunesta 1 mg: Now less than 1/4 pill (0.018 scale weight) 10:30 pm

 

Other meds: Levothyroxine 50mcg with extra 25mcg Mon. Wed. Fri.

 

 

 

 

Link to comment

@Pollyjay Still up and down but that's to be expected. I just posted on your thread but wanted to answer your question. I am doing as well as can be expected at this point. More of my MCAS testing came back and so far it is all normal. So this is looking more and more like it is WD related which is good because that will heal over time. Currently researching adrenal fatigue and adrenal dysautonomia to see where they may fit into the picture and what I can do that would be beneficial so I can eventually get off the beta blocker. Lots of healing to do. Still waiting for a test the nutritionist ordered so we can see what kind of shape my guts are in so we can tailor what we do to match what is broken. The test will be back at the end of the month so I will update on that. I speak to my ENT doc about the MCAS labs on Monday and talk to Immunology on June 7. The only other thing that came back bad was my IGM levels are now low. They had been fine up until now. I already had low IGA and IGG. Those are all immunoglobulins which are part of your immune system and because they are low I have the diagnosis of hypogammaglobulanemia which is just another way of saying immune deficiency. We had hoped it was the seroquel but that is turning out to not be the case. It could also be the carbamazapine but there is no way to quickly test that. I also have a couple of red blood cell values that are off. I have a truckload of toxic exposure on top of the meds from where I lived as a kid and the military and my other jobs as well as occupational radiation exposure . Hopefully it is not bone marrow related. I will find out June 7 where we go next.

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment

Quick update. I am now on my third straight day of complete normality. No anxiety. Relaxed. Cool as a cucumber. Sleep is still off but oh well. It will straighten out in time. Amazing 😁

 

I found the final dietary culprit that may have been causing trouble. I had completely cleaned out my diet of anything artificial and went hard core low histamine, or so I thought. I finally read the label on the jar of chicken boullion cubes I had been using in my nightly boiled supper. They seemed harmless enough. Turns out they are little cubes of toxicity and contain a long list of toxic food additives such as MSG. I stopped using them and switched to garlic powder, onion powder, and salt. No more headaches and digestion is better.

 

I am down to 70% of the full dose of Nexium and am still doing fine.

 

Physical activity will probably need to be restricted for awhile but I am still able to get done what I need to get done.

 

Hopefully the trend will continue.

 

Sooooooo nice to feel better. 😁😸😸😸😸

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

Link to comment
On 1/17/2022 at 6:23 PM, Altostrata said:

My guess is a lot of your problems stem from gut damage, not from Seroquel's effect on histamine receptors.

@Altostrata

 

No need to reply to this but I wanted you to know that it looks like gut damage is now confirmed to be at least part of the problem. Probably a big part of the problem since most of my symptoms seem to start with my guts. I have started seeing a nutritionist and she did a 24 hour cortisol test and a GI Map Stool test. The cortisol was of course very high. Not a surprise right now. The GI Map test shows Gut Dysbiosis and SIBO. Most of my good bacteria are very low and I have high Bacillus spp. bacteria and High Streptococcus spp. bacteria levels both of which can cause quite a few problems on their own. One of my digestive enzymes is way too high and my IGA response was borderline low. All of this makes my guts a bit of a mess and is probably the combined result of Seroquel WD and years of medication induced gut abuse. So, I find out this coming Tuesday what her plan will be for all of this. The whole food low histamine diet definitely helps since I currently seem to have food related histamine issues so we are addressing a histamine intolerance as well. I have confirmed that Dairy of any kind right now is a big no no. I am slowly tapering off my Nexium per her suggestion and my PCP's approval at a rate of 10% a week. All of these issues can be addressed and healed over time so it is good news and should in time help me get back up and running. Certainly better than alternatives like MCAS. Seems like trying to yank away another antihistamine too quickly was just too much for my body to handle in a hypersensitive post WD state and my guts and ANS just freaked out. This makes sense since Allegra binds heavily to receptors in the gut and unbinding them too quickly just added to the chaos already unfolding in my guts. There were other stressors as well along with things I was doing, some which I thought would be helpful like stepping up my exercise routine, that I should not have because my body was already too stressed out to handle it. I am writing a critique of the last few months and will post it when done so other people can chime in and also learn from my mistakes.

 

Thank you again for putting this site together and for all of the information and support that it offers. I am grateful for having found it. My providers are all aware of this site and are educating themselves. They are all on board with my continuing down this path and they are all quite insistent that I do all of this very very slowly in adherence to the 10% rule and holding when needed. I will not be cutting back any more psychiatric medications for quite awhile to give my body time to heal and adjust. Whatever I need they are helping me with all of this and part of their ability to help me is coming from this website. 😉✌️😺😺😺😺

Current Psychiatric Medications

  1. Paxil 10mg daily (a.m.) 2017 - Present
  2. Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present
  3. Ativan 1 mg daily as needed  2018 - Present

Recently Stopped Psychiatric Medications

  1. Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery

Past Psychiatric Medications From 1994 to April 2018 -  Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary)

Current Non Psychiatric Medications Levothyroxine 88mcg (a.m.)-Vitamin D3 2000 IU (p.m.)-Crestor 5mg (p.m.)-Fexofenadine 420mg (Half in a.m. and Half in p.m.)   -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Triamcinolone Nasal Spray-Ipratropium Bromine Nasal Spray

Other - Fish Oil Twice Daily-Multi-Vitamin (p.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Alpha Stim-M electrotherapy device (CES for sleep/anxiety/depression - TENS Pain)-Magnesium Glycinate 50mg-Quercetin 500mg

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  • Administrator

Good to hear you've put together a supportive team, @FeralCatman, and you're feeling a little more in control of your condition. Please let us know how you're doing.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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  • ChessieCat changed the title to FeralCatman: recovering from Seroquel

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