UnusualRoom: Luvox withdrawal - writing with tears and desperation

[UnusualRoom]

Just now, Altostrata said:

I would not add in another drug change, to Prozac, right now. We need to get the Luvox and Xanax schedule settled. This will take at least a week.

 

Agreed. I was reading over the information in detail and I don't think my nervous system being so sensitive it's worth it. 

 

I'm going to do the half in the AM, half in the PM with the Luvox and then one benzo dose in the AM and one of the PM.

[getofflex]

25 minutes ago, UnusualRoom said:

I'm going to do the half in the AM, half in the PM with the Luvox and then one benzo dose in the AM and one of the PM.

By this, you mean shift the Luvox dose to take equal amounts of Luvox both in AM and PM as discussed, but the total daily dose would be the same, right?  So you would still only be taking Luvox and benzo on a regular schedule?  Just trying to clarify.  

Edited December 28, 2021 by getofflex

[UnusualRoom]

4 minutes ago, getofflex said:

By this, you mean shift the Luvox dose to take equal amounts of Luvox both in AM and PM as discussed, but the total daily dose would be the same, right?  So you would still only be taking Luvox and benzo on a regular schedule?  Just trying to clarify.  

 

 

Purely Luvox and bezno-not adding Prozac.

 

Future schedule going forward:

 

-15.625 mg of Luvox in the AM

-15.625 mg of Luvox in the PM

-0.03 mg of Xanax in the AM

-0.03 mg of Xanax in the PM

 

 

[getofflex]

Good.  👍🏼Please make the changes to your Luvox dosing schedule gradually as advised.  

Edited December 28, 2021 by getofflex

[UnusualRoom]

3 hours ago, getofflex said:

Good.  👍🏼Please make the changes to your Luvox dosing schedule gradually as advised.  

 

I was having anxiety pretty severe today and took 15 mg in the afternoon on accident, so I guess starting this tomorrow.

[UnusualRoom]

Random, but I have *horrible* akathisia today.

 

I noticed it's severely triggered when I get anything with sugar or carbs. Is the simple mechanism for this because it's revving up my CNS? Or is there more to it?

 

I could use some reassurance. This is the worst thing I've ever felt in my life. I'm not moving or pacing but it feels like everything in my body is tensed or "surging" with something, I want to crawl out of my skin, I feel incredibly uncomfortable and distressed but it's not pain-it's like that nerve irritation you get when someone tickles you but times 1000X. 

 

It affects everything in my body and even makes my eyelids want to clamp down and my vision shake. It makes me dizzy and throws me balance off, as well as affecting the nerves in my head and I have huge mood swings, a lot of anger and feel like I have moments where my brain is "stopping". I can feel the irritation/agitation in my lungs and it feels like I can't breathe. 

 

I'm seriously terrified I'm going to die from this. 

[UnusualRoom]

December 28, 2021

 

8:00 A.M.- 0.03 mg Xanax. Anxious. 

8:30 A.M.- Spaced out/zoned out. Less anxious but feeling disconnected.

10:30 A.M.-Ate

10:45 A.M.-15.625 mg Luvox (messed up dosing due to anxiety)

1:00 P.M.- Having a lot of anxiety and muscle tension. 

4:30-P.M.- Muscle irritation/akathisia/twitchy. (Also had 4 pieces about chocolate though, unsure if blood sugar related.) 250mg of Tylenol.

4:45 P.M.- Ate (protein)

5:00 P.M.- Horrible akathisia/restless “body” syndrome. Head/ear pressure, tinnitus. Dizziness/rocking. Worse on left side, in part due to chronic pinched nerve in neck. 250 mg of Tylenol. 0.03 of Xanax.

5:30 P.M.-12.5 mg of  Benadryl to try and curb akathisia. 

7:10 P.M.-Akathisia and dizziness. Rocking while laying down. (Think this might be reactive hypoglycemia and not w/d).

8:20 P.M.- 15.625 mg Luvox and 1 baby aspirin 

9:00 P.M. -Akathisia 

10:00 P.M.- Horrible akathisia. Took 0.0625 mg of Xanax.

11:00 P.M. -Leg burning, feeling hot, severe panic, cognitive issues 

4:00 A.M.- Severe pain, nerve pain, internal tremors, tension, sort of a transformed akathisia. 

[Frogie]

@UnusualRoom

 

I see you your notes you took .03 mg xanax at 8 am, 5 pm then .0625 mg at 10 pm.

 

So you took more than what you were going to take?

 

Are you having a lot of anxiety? 

 

We can up your dosage to 3 times a day at .03 mg. Because xanax only stays in your system 6 hours or so, you might consider this.

 

Please let me know and I can help you set up a new schedule.

 

[UnusualRoom]

20 minutes ago, Frogie said:

 

Are you having a lot of anxiety? 

 

We can up your dosage to 3 times a day at .03 mg. Because xanax only stays in your system 6 hours or so, you might consider this.

 

 

It was more the absolutely insane akathisia. We're talking suicidal level akathisia and benzos are one on the only things that even remotely takes the edge off. I feel stuck between a rock and a hard place because I want to get on a schedule but my withdrawal symptoms are so severe that they're almost unmanageable without benzos. 

 

I wanted to bring this up as well-I obviously accidentally took the wrong dose yesterday. But I've noticed anytime I take more Luvox during the day, my symptoms are noticeably worse. The day I was brain-fogged and took 25mg in the afternoon is when I ended up in the ER at night, and yesterday I took 15.625 mg in the afternoon on accident (I was trying to cut up pills while having anxiety/panic and accidentally took the wrong dose.) But yesterday was absolutely horrible and it got worse when I took my Luvox at night,  and I'm still feeling it today. 

 

I feel like the Luvox is killing my body and I need to get off of it but also don't want to risk withdrawal dangers. @AltostrataDo you have any ideas? I can't find that fine line and I'm terrified.

[getofflex]

10 hours ago, UnusualRoom said:

I was having anxiety pretty severe today and took 15 mg in the afternoon on accident, so I guess starting this tomorrow.

I realize that your anxiety is a major problem, and this symptom is a hallmark symptom of withdrawal from psych meds.  As Manymoretodays said, Is there any way that someone else can help you with dosing your meds?  Or, can you possibly lay out your doses in advance when you are feeling less bad?  It is essential to be precise and consistent with your dosing both at the same time each day, and the same dose each time.  Irregular dosing (skipping alternating, changing, etc) can cause significant problems.  The nervous system craves and needs stability in order to heal and recover.  

 

Never Skip or Vary Doses

 

10 hours ago, UnusualRoom said:

Random, but I have *horrible* akathisia today.

 

I noticed it's severely triggered when I get anything with sugar or carbs. Is the simple mechanism for this because it's revving up my CNS? Or is there more to it?

I'm very sorry to hear you are dealing with akathisia.  In this case, now you know to avoid sugar and carbs.  Perhaps you would be able to handle whole grains and legumes, since they tend to have a low glycemic index.  When our nervous systems are in withdrawal, they tend to be very sensitive.  Since you are really sensitive to the drugs, it stands to reason that you are also sensitive to sugar and carbs.  Many of us have food sensitivities.  I'm sensitive to MSG and caffeine myself, and avoid them.  

 

3 hours ago, UnusualRoom said:

(Also had 4 pieces about chocolate though, unsure if blood sugar related

Chocolate has caffeine and theobromine, both of which are stimulants.  If it were me, I would completely avoid chocolate.  It's just not worth it, if it causes you akathisia.  

 

The Benadryl doesn't appear to be helping with the akathisia.  I would suggest staying away from that.  Sometimes, drugs can go paradoxical on us in withdrawal, again due to our wonky nervous systems.  Paradoxical means the drug does the opposite of what it is supposed to do.  

 

In your notes, please include information about your sleep - when you sleep, how many hours you sleep.  Thank you.  

 

10 hours ago, UnusualRoom said:

I could use some reassurance. This is the worst thing I've ever felt in my life. I'm not moving or pacing but it feels like everything in my body is tensed or "surging" with something, I want to crawl out of my skin, I feel incredibly uncomfortable and distressed but it's not pain-it's like that nerve irritation you get when someone tickles you but times 1000X

I can truly relate to this.  I went though this too, in withdrawal.  Thankfully, this has almost gone away.  It is the result of a ramped up nervous system, from all the things we've already talked about - the many psych drug changes, the irregular dosing schedule, perhaps the chocolate/sugar, the adverse drug reaction.  

 

Akathisia vs. Restlessness, Anxiety Agitation

 

It is vitally important for you to find it in yourself, or get someone else to get on the regular drug dosing schedule that frogie and I have come up for you.  You can recover from this, but it is imperative that you do you part to take care of yourself properly. We can only do so much to help you on an online forum.  All we can really do is give you the information of how to take care of yourself, but you must do the footwork.   

[UnusualRoom]

1 minute ago, getofflex said:

I realize that your anxiety is a major problem, and this symptom is a hallmark symptom of withdrawal from psych meds.  As Manymoretodays said, Is there any way that someone else can help you with dosing your meds?  Or, can you possibly lay out your doses in advance when you are feeling less bad?  It is essential to be precise and consistent with your dosing both at the same time each day, and the same dose each time.  Irregular dosing (skipping alternating, changing, etc) can cause significant problems.  The nervous system craves and needs stability in order to heal and recover.  

 

Never Skip or Vary Doses

 

I'm very sorry to hear you are dealing with akathisia.  In this case, now you know to avoid sugar and carbs.  Perhaps you would be able to handle whole grains and legumes, since they tend to have a low glycemic index.  When our nervous systems are in withdrawal, they tend to be very sensitive.  Since you are really sensitive to the drugs, it stands to reason that you are also sensitive to sugar and carbs.  Many of us have food sensitivities.  I'm sensitive to MSG and caffeine myself, and avoid them.  

 

Chocolate has caffeine and theobromine, both of which are stimulants.  If it were me, I would completely avoid chocolate.  It's just not worth it, if it causes you akathisia.  

 

The Benadryl doesn't appear to be helping with the akathisia.  I would suggest staying away from that.  Sometimes, drugs can go paradoxical on us in withdrawal, again due to our wonky nervous systems.  Paradoxical means the drug does the opposite of what it is supposed to do.  

 

In your notes, please include information about your sleep - when you sleep, how many hours you sleep.  Thank you.  

 

I can truly relate to this.  I went though this too, in withdrawal.  Thankfully, this has almost gone away.  It is the result of a ramped up nervous system, from all the things we've already talked about - the many psych drug changes, the irregular dosing schedule, perhaps the chocolate/sugar, the adverse drug reaction.  

 

Akathisia vs. Restlessness, Anxiety Agitation

 

It is vitally important for you to find it in yourself, or get someone else to get on the regular drug dosing schedule that frogie and I have come up for you.  You can recover from this, but it is imperative that you do you part to take care of yourself properly. We can only do so much to help you on an online forum.  All we can really do is give you the information of how to take care of yourself, but you must do the footwork.   

 

I'm trying but for example, only my benzos work on akathisia. So if I have to pick between suicidal ideation and a small chunk of benzo, you know?

 

I posted this but it seems like taking more Luvox during the day is causing issues. I was reading the info on Luvox and it said it was one of the more sedating SSRIS as opposed to Prozac which is more stimulating, so should I not be taking it during the day so much?

 

It seems like I'm having some serious reactions to Luvox in general. I feel stuck at this point. 

[getofflex]

However, when you took the higher dose of Luvox during the day, instead of adjusting it gradually, you made a sudden drug change, which is very hard on the nervous system.  So we don't know whether or not your problems are from the Luvox, or from jumping around on your doses from day to day. 

[UnusualRoom]

3 minutes ago, getofflex said:

However, when you took the higher dose of Luvox during the day, instead of adjusting it gradually, you made a sudden drug change, which is very hard on the nervous system.  So we don't know whether or not your problems are from the Luvox, or from jumping around on your doses from day to day. 

 

Ok. That's fair. I will go back to 6.25 mg/25 mg today and then do the gradual dosing tomorrow. My brain fog is messing with a lot of my cognitive abilities. I'm also having issues getting exactly 1mg off a 25 mg pill. I don't have a scale that is that sensitive and can't find any pharmacies to make me a liquid, beads, etc. The best I can come up with is to crush 1/4 of the pill, make an even pile on all sides and cut it with a razor. 

 

I looked for this but couldn't find a solid answer: what OTC meds are safe for pain? I've just been splitting Tylenol into parts and taking it. 

[UnusualRoom]

Update: Just went and bought a milligram scale. So that solves that part.

[Frogie]

41 minutes ago, UnusualRoom said:

It was more the absolutely insane akathisia. We're talking suicidal level akathisia and benzos are one on the only things that even remotely takes the edge off. I feel stuck between a rock and a hard place because I want to get on a schedule but my withdrawal symptoms are so severe that they're almost unmanageable without benzos. 

That is why I'm suggesting going up to .03 mg of xanax 3 times a day. Xanax stays in your system approximately 6 hours. I think this would help. But you have to stay on a consistent schedule so we know if it is working or not. Let me know if you want to try this and I can help you set up a schedule.

[UnusualRoom]

3 minutes ago, Frogie said:

That is why I'm suggesting going up to .03 mg of xanax 3 times a day. Xanax stays in your system approximately 6 hours. I think this would help. But you have to stay on a consistent schedule so we know if it is working or not. Let me know if you want to try this and I can help you set up a schedule.

 

Alright. Let's set up a schedule. i think while it's this bad, and so I don't have the urge to take extra doses, maybe doing 3, 0.0625mg doses would be beneficial? That's still less than .125 per day total.

 

Your thoughts?

[Frogie]

@UnusualRoom

 

We can do .0625 mg 3 times a day.

 

Try 8 am, 2 pm and 8 pm. That's every 6 hours.

 

If that doesn't work we can go up a little on the dosage and see if that helps.

 

Please stay on this schedule and dosage for a few days so we know if it's working or not. 

 

 

 

[UnusualRoom]

5 minutes ago, Frogie said:

@UnusualRoom

 

We can do .0625 mg 3 times a day.

 

Try 8 am, 2 pm and 8 pm. That's every 6 hours.

 

If that doesn't work we can go up a little on the dosage and see if that helps.

 

Please stay on this schedule and dosage for a few days so we know if it's working or not. 

 

 

 

 

Ok this is way doable. As I noted earlier, I bought a scale (waiting for delivery), so this will help a lot. 

[Frogie]

41 minutes ago, UnusualRoom said:

Ok this is way doable. As I noted earlier, I bought a scale (waiting for delivery), so this will help a lot. 

The scale will help a lot and keep you on a regular dosage. I think this is doable and you will feel better on a regular schedule.

[UnusualRoom]

8 minutes ago, Frogie said:

The scale will help a lot and keep you on a regular dosage. I think this is doable and you will feel better on a regular schedule.

Can I get your thoughts on this?

 

Whenever I take Xanax, I sometimes get little muscle twitches and muscle feels a little weird. It's almost as if they're relaxing a bit and that in itself sort of causes a nervous system reaction. Is this normal or am I, god forbid, having a bad reaction to Xanax now too?

[Frogie]

@UnusualRoom

 

No I don't believe you are having a reaction to the xanax. My opinion is you are not taking it on a set schedule and your body is reacting to it. I did that until I came on this site and was put on a regular schedule. 

 

I think once you are on a regular schedule and not taking more/less, skipping/adding doses you will even out and start feeling better.

Edited December 29, 2021 by Frogie

[UnusualRoom]

4 minutes ago, Frogie said:

@UnusualRoom

 

No I don't believe you are having a reaction to the xanax. My opinion is you are not taking it on a set schedule and your body is reacting to it. I did that until I cam on this site and was put on a regular schedule. 

 

I think once you are on a regular schedule and not taking more/less, skipping/adding doses you will even out and start feeling better.

 

Sounds good. Thank you for the help. 

[Frogie]

5 minutes ago, UnusualRoom said:

 

Sounds good. Thank you for the help. 

You're very welcome

[UnusualRoom]

39 minutes ago, Frogie said:

You're very welcome

Is Tylenol legit for muscle pains due to the Luvox and/or w/d?

[Frogie]

@UnusualRoom

 

You can take tylenol for minor aches/pains. But it should be taken in moderation, not everyday for wd symptoms.

[UnusualRoom]

December 29, 2021

 

4:00 A.M-Woke up in severe pain. Took 250 mg of Tylenol.

 

7:45 A.M.-Woke up in severe pain and tension. Took 250 mg of Tylenol.

 

8:50 A.M.- 0.0625 mg of Xanax (will start at 8 tomorrow.)

 

9:30 A.M.- Very tired. Some small leg twitches.

 

10:00 A.M.-6.25 mg Luvox. 

10:10 A.M.-Ate.

 

10:30 A.M.- Fatigue and muscle pain. 

 

10:45 A.M. -Dizzy. Tinnitus. Head fullness.

 

11:00 A.M.-Ear wetness. Sharps pain on right side of head and temple. Tight chest and muscles.

 

11:30 A.M.- Heart palpitations/heavy heartbeat even though normal pace. Sharp pains in right leg. 

 

12:00 P.M.- Nausea. 

12:05 P.M.-Ate

 

12:30 P.M.-Body feeling a bit revved up. Some pain and head pressure. A bit of muscle pain. Rocking. Dizzy.

 

1:00 P.M.- Snack.

 

1:30 P.M.- Some body tension and akathisia. Continuous pain on right side of head.

 

2:00 P.M.- 0.0625 mg of Xanax. Having body aches, stiffness and “head tension”. Starting to feel really bad.

 

2:30 P.M.- Feeling calmer

 

3:15 P.M.- Some body aches/tension/akathisia

 

5:00 P.M.- Moderate akathisia all afternoon. Took l-theanine and a b-complex vitamin. 

 

5:30 P.M.- Took 1/4 capsule of magnesium gylcinate 

 

5:45 P.M.- 250 mg of Tylenol 

 

6:30 P.M.- Ate

 

7:00 P.M.- Body a little hyperaroused from eating but not bad. Sharp pains on right side of head are back.

7:30 P.M.- Sharp paints still there on right side of head. Feeling hot and had nerve sensation/palpitation in chest. Wave of nausea when stretching neck. 

 

7:30 P.M. -Akathisia calming a bit

 

8:00 P.M. - 0.0625 mg Xanax. Ate.

 

8:30 P.M.- Some akathisia triggered by eating (it’s anything, even low histamine foods.)

 

10:00 P.M.- 25 mg of Luvox 

 

10:30 P.M. - Bath. Heat seems to irritate nerves (akathisia) 

 

10:50 P.M.-250 mg of Tylenol 

[manymoretodays]

Hi there UR,

Okay, so yesterday doesn't look too bad as far as your dosing goes.

And just starting to get regular with that.

And you are managing to get 6.25 mg of your Luvox now how?

I'm guessing then that you are cutting 25 mg pills?

 

And then with the Xanax(alprazolam)?  How are you getting those presently .0625 mg dosages?

I'm seeing that it comes in 0.25, 0.5, 1, and 2 mg.

 

Good, as it looks like the Xanax right now is doing what it is supposed to.  Or was yesterday, for the most part.

 

You are going to have to describe your symptoms a bit more, briefly if you can in the notes.....rather than using the blanket term akathisia.  I do see your description of "irritated nerves" when you tried a bath.....still not quite clear on that.

Akathisia vs. restlessness, anxiety, agitation

This might help you clarify and then possibly rate symptoms when you do daily drug and symptom logs aka Notes.  Do take a look at the weighted blankets link too.  I have seen those at Wallmart, fairly inexpensive.  And in my own brief experience with some major internal agitation that was completely out of this world, I was able to just bundle myself up in blankets......then lie still, and have some one read to me, calmly......and just repeat over and over a passage in a book that I liked.  I think you might be able to also pick and then use an audio from youtube or elsewhere, there is so much now out there and easily accessed.  Let us know what you find and what helps.

On 12/29/2021 at 3:16 AM, UnusualRoom said:

December 28, 2021

 

8:00 A.M.- 0.03 mg Xanax. Anxious. 

8:30 A.M.- Spaced out/zoned out. Less anxious but feeling disconnected.

10:30 A.M.-Ate

10:45 A.M.-15.625 mg Luvox (messed up dosing due to anxiety)

1:00 P.M.- Having a lot of anxiety and muscle tension. 

4:30-P.M.- Muscle irritation/akathisia/twitchy. (Also had 4 pieces about chocolate though, unsure if blood sugar related.) 250mg of Tylenol.

4:45 P.M.- Ate (protein)

5:00 P.M.- Horrible akathisia/restless “body” syndrome. Head/ear pressure, tinnitus. Dizziness/rocking. Worse on left side, in part due to chronic pinched nerve in neck. 250 mg of Tylenol. 0.03 of Xanax.

5:30 P.M.-12.5 mg of  Benadryl to try and curb akathisia. 

7:10 P.M.-Akathisia and dizziness. Rocking while laying down. (Think this might be reactive hypoglycemia and not w/d).

8:20 P.M.- 15.625 mg Luvox and 1 baby aspirin 

9:00 P.M. -Akathisia 

10:00 P.M.- Horrible akathisia. Took 0.0625 mg of Xanax.

11:00 P.M. -Leg burning, feeling hot, severe panic, cognitive issues 

4:00 A.M.- Severe pain, nerve pain, internal tremors, tension, sort of a transformed akathisia. 

 

Was there any sleep on the night of the 28th to the morning of 29th?

I do see that this day you mixed up Luvox dosing again with an additional dose, and then backed off on your usual pm dose.  Again, these kind of mess ups will usually level off over a few days.  So hold on tight, with the expectation that things will definitely be improving sooner rather than later.

 

You might also consider liquid Luvox, the do it yourself suspension, or compounded from your pharmacy.  I take it you've had time to look at the Luvox tapering topic, with an eye for getting the non-standard doses.

 

And then you are working towards getting a split of 15.65 mg twice a day with the Luvox now?

If it was me, while you are working the new Xanax schedule, the change in both dose and timing, I might just HOLD with your Luvox 6.25 mg in the morning, and then 25 mg in the evening.

Does that sound doable?

 

And okay, I'll check back tomorrow sometime, to see how today went for you.  Do use all the non-drug coping possible.......I know it's tough, and this might be one of the most difficult challenges you'll ever experience.......but I think you will pull through and get there.  Holding you close in the meantime.

 

And best, L, P, H, and G,

mmt

 

And then how was your sleep last night.  I'm not seeing much summarized after 10:50 pm.

So my fingers are crossed that you got a good stretch of it.

Edited December 30, 2021 by manymoretodays
formating, clarity

[manymoretodays]

And then, just a reminder too to update your signature with your current Xanax too.

Anything since 2018.  Thankyou.

Go to AccountSettings/signature  to edit that in.  Do remember to hit the SAVE at the bottom when done.

 

[UnusualRoom]

2 hours ago, manymoretodays said:

And then, just a reminder too to update your signature with your current Xanax too.

Anything since 2018.  Thankyou.

Go to AccountSettings/signature  to edit that in.  Do remember to hit the SAVE at the bottom when done.

 

 

Just updated it but sometimes it doesn't update. I counted the lines and such, so I hope it went through. 

[UnusualRoom]

3 hours ago, manymoretodays said:

And you are managing to get 6.25 mg of your Luvox now how?

I'm guessing then that you are cutting 25 mg pills?

 

Cutting and then crushing/weighing powder or pieces. Right now I am unfortunately eyeballing it severely but my scale comes in a couple days which will be far more accuraye.

 

3 hours ago, manymoretodays said:

 

And then with the Xanax(alprazolam)?  How are you getting those presently .0625 mg dosages?

I'm seeing that it comes in 0.25, 0.5, 1, and 2 mg.

 

Same deal. I have .5, so I split them in half, then quarters, then in half again. Again, scale will help a lot. 

 

3 hours ago, manymoretodays said:

 

You are going to have to describe your symptoms a bit more, briefly if you can in the notes.....rather than using the blanket term akathisia.  I do see your description of "irritated nerves" when you tried a bath.....still not quite clear on that.

 

Akathisia...what a pain in the... what I experience just seems to be an overall severe irritation of nerves. It is irritated by EVERYTHING: exercise, eating, baths, weather, etc. The act of being alive sets my nervous system into overdrive. I once wrote down what I was feeling for a rheumatologist appt, and I'm going to put it here. When I get this, it can fluctuate between pain, restlessness, crawling sensation, or a combo of all the above. It reminds me of something get tighter and tighter and smaller and smaller, think like the Big Bang Theory, until it feels like it's going to explode. I don't pace or move, it's just an inner turmoil that affects both my mind and body. When it happens really badly, it affects my cognition and I'm afraid I'm going insane.  I will make a separate post about my akathisia sensation so others can weigh in easier.

 

3 hours ago, manymoretodays said:

 

Was there any sleep on the night of the 28th to the morning of 29th?

I do see that this day you mixed up Luvox dosing again with an additional dose, and then backed off on your usual pm dose.  Again, these kind of mess ups will usually level off over a few days.  So hold on tight, with the expectation that things will definitely be improving sooner rather than later.

 

No kidding. Horrible sleep on the day I messed up my meds, but was able to sleep last night through the night. I only woke up once for a bit and was able to fall back a sleep easily. 

 

3 hours ago, manymoretodays said:

 

You might also consider liquid Luvox, the do it yourself suspension, or compounded from your pharmacy.  I take it you've had time to look at the Luvox tapering topic, with an eye for getting the non-standard doses.

 

Tried this and it's difficult. Might try doing it by myself but the pharmacies around here....no help. Ill keep checking though. Hoping having a mg scale will help.

 

3 hours ago, manymoretodays said:

 

And then you are working towards getting a split of 15.65 mg twice a day with the Luvox now?

If it was me, while you are working the new Xanax schedule, the change in both dose and timing, I might just HOLD with your Luvox 6.25 mg in the morning, and then 25 mg in the evening.

Does that sound doable?

 

For now that's what I'm going to do. Accidentally switching dosages is horrible and I just need to sort of chill for a bit. I still get a lot of side effects but the horrible windows are less severe with the original 6.25/25 schedule. Once I feel more stable, then Im going to start trying to even the dosages out to 15.65.  Good suggestion.

3 hours ago, manymoretodays said:

 

And okay, I'll check back tomorrow sometime, to see how today went for you.  Do use all the non-drug coping possible.......I know it's tough, and this might be one of the most difficult challenges you'll ever experience.......but I think you will pull through and get there.  Holding you close in the meantime.

 

And best, L, P, H, and G,

mmt

 

And then how was your sleep last night.  I'm not seeing much summarized after 10:50 pm.

So my fingers are crossed that you got a good stretch of it.

 

Sleep was ok! And thank you.

[UnusualRoom]

Here is the word doc I made for my doctor in some attempt to describe what I call "akathisia". It is not relieved by movement, nor do I move at all. It just feels like a constant..something...creating inner havoc and that my body is going to stop.

 

"Awful Body Feeling

 

 

I don’t know what the name for this sensation is so this is my attempt to describe it. It seems to be deep inside my body, not necessarily my skin, as if in my muscles and nerves. The closest I’ve found in definitions would be something along the lines of:  agitation, restlessness, itchy, irritated, twitchy, inflamed, akathisia, formication, crawly, moving, clamping.

 

It affects every part of my body. My face and neck feel horrible, especially the back of my head and neck area. It goes into my face and makes my eyes and eyelids feel odd, like I need to clamp them shut, or that they’re “hyperactive” or moving or have some kind of wiring hooked up to them with a surge of energy or electricity. It often affects my vision, and everything seems “sparkly” or flashy, or like there’s energy or electricity in my eyes. Sometimes it seems like there’s a “veil” between me and the world with weird moving patterns but it’s not in the same way because describe traditional migraine aura with scotoma or bright flights//kaleidoscopes. It doesn’t hurt in the sense of pain, or burning-it just feels horrible and uncomfortable beyond description.

 

It goes down into my shoulder and hips the worst and creates a sense in my genital area like I’m hyper stimulated or “turned on “or sexually stimulated-even though I’m not. It’s horribly uncomfortable. I often feel the need to have an orgasm just to get rid of the feeling, which rarely works but sometimes with mild relief.

 

It goes through my entire body on some level, from my feet, legs, hips, abdomen, back, shoulders, arms and hands. Sometimes it feels like I must move or that I have some inner movement or restlessness, even if I’m not twitching or flailing my limbs. It sometimes has an internal tremor or shaking, where it feels like my body is vibrating or tremoring from the inside. It feels like everything, every nerve of my body is turned on, or up, or is connected to some outside wiring keeping them hyper-aroused and hyper-stimulated. I often call it “restless body syndrome”. It happens when I eat, take baths, am stressed, taking meds-pretty much anything that stimulates my nervous system. It also happens when I’m lying down or laying on the heating pads-where it affects my neck and hips quite badly. I’m not sure why this is, but sometimes it triggers a full body chain reaction which is quite horrible. My body feels horrible, uncomfortable, irritated and over-sensitized. It is not traditional pain.

 

When it gets really bad, it feels like it affects me mentally as well. I get tearful and my thoughts seemed clogged and as if all the nerves are firing in my head and I can’t think straight, or well, and it affects me emotions, like I can’t feel them the same way I normally do. It’s like brain-fog on crack. "

[Ktven48]

@UnusualRoom

Very accurate description of what I go through as well. Absolutely brain fog on crack. Comes with feelings of fear that are hard to control. Read the description once of battery acid in veins - just a toxic icky feeling. 
 

It’s gotten a lot better after four months but still with me on occasion. 
 

Hope it goes away for you soon! 

[UnusualRoom]

18 minutes ago, Ktven48 said:

@UnusualRoom

Very accurate description of what I go through as well. Absolutely brain fog on crack. Comes with feelings of fear that are hard to control. Read the description once of battery acid in veins - just a toxic icky feeling. 
 

It’s gotten a lot better after four months but still with me on occasion. 
 

Hope it goes away for you soon! 

 

Knowing it gets better makes me hopeful. Thank you for sharing this. 

[UnusualRoom]

I wanted to ask this on my intro thread:

 

I've noticed from logging and being more aware that I actually feel pretty crappy within 30 mins of taking Xanax:

 

-Increased muscle pain, especially neck and back of head.

-Increased nerve pain, especially in back of head/occipital area.

-Muscle twitches

-Brain fog; feels like my brain is "stopping".

 

All very scary. Why would Xanax cause this and is it dangerous? Any thoughts from anyone?

 

@Frogie

[Frogie]

I’ve never known it to cause nerve pain/occipital area.

 

 I do know it can cause muscle twitches though.

[UnusualRoom]

50 minutes ago, Frogie said:

I’ve never known it to cause nerve pain/occipital area.

 

 I do know it can cause muscle twitches though.

 

It feels like all my muscles don't work and ache..it oddly seems to be making things worse. Should I maybe go back to twice a day? I feel like the side effects are giving me anxiety.  @Frogie