Moderator Onmyway Posted May 23, 2022 Moderator Share Posted May 23, 2022 Hi @OldDodgy, I suspect people are suggesting kimchi for the probiotic properties. Can you substitute a probiotic pill instead to avoid the histaminic properties? (I don't know if that will bypass them). I am glad that you are getting to the pool. How is your recovery from Covid going? OMW "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
OldDodgy Posted May 24, 2022 Author Share Posted May 24, 2022 @Onmyway Hi. As you say it would be nice to take something that was not histamine rich with the Zinc to help with Long Covid. I dunno about probiotics I am afraid but Tim Spector recommends them. I gather quercetin will aid zinc absorption. It is extremely difficult to differentiate the effects of long Covid from that of the increase in histamine. On the plus side I think Kimchi and Tim’s high fibre vegetable diet and partial fasting have now started to help with the IBs and sleep. However the fatigue is ridiculous as the ongoing pain. Sorry not to be much help in this OD 1 My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Moderator Onmyway Posted May 24, 2022 Moderator Share Posted May 24, 2022 Hi @OldDodgy, this is the kind of probiotic I would recommend (link at the end). I don't know much about quercetin and zinc. Why are you taking them? Are they supposed to be good for long Covid? I also don't know much about the histamine issues unfortunately Luckily they haven't been one of my symptoms yet and I hope it stays that way, they seem to be awful. I am so sorry you are still struggling with fatigue, it is your body's way of healing from the Covid and in time it will be restored but it is quite hard as it prevents us from doing other things which we need to be grounded. I hope that it resolves soon. Can you get any positive social interaction while struggling with the fatigue? Any sunshine, even if not strong enough for walks? Keeping you in my thoughts OD, OMW https://www.amazon.co.uk/Health-Plus-Acidophilus-Probiotic-Supplement/dp/B004JTZ7YM/ref=sxts_rp_s1_0?crid=1TJI3942NSACY&cv_ct_cx=health+plus+acidophilus&keywords=health+plus+acidophilus&pd_rd_i=B004JTZ7YM&pd_rd_r=f241202d-9592-4e79-a55f-d36c4564ac2e&pd_rd_w=oURmd&pd_rd_wg=U2i3L&pf_rd_p=3620568b-626f-42ce-92ec-2ee027f498a4&pf_rd_r=0NV6QRDRPEG3JMNXSV9F&psc=1&qid=1653372664&sprefix=health+plus+acid%2Caps%2C184&sr=1-1-1890b328-3a40-4864-baa0-a8eddba1bf6a "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
OldDodgy Posted May 24, 2022 Author Share Posted May 24, 2022 Sorry am too weak to hold phone for long. Can’t formulate reply. OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Moderator Onmyway Posted May 24, 2022 Moderator Share Posted May 24, 2022 @OldDodgy, pls don't worry about responding. I am thinking of you. Hope things will get better soon. OMW "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Knosretep Posted May 24, 2022 Share Posted May 24, 2022 Hey @OldDodgy Sorry I haven't been by lately, I'm no longer getting emails or update notices for the site. Hope your strength returns soon and you find a break from the pain! Hang in there! 2013 - Jan 4, 2021 - Sertraline 50mg Jan 2021 - Venlafaxine 75mg (1/4) Feb 2021 : Mar 2021 - Venlafaxine 75mg April 2021 - Venlafaxine 75mg, Amitriptyline 2mg (4/20), Clonazepam 2mg May 2021 - Venlafaxine 75mg (5/16 - 0mg), Amitriptyline (5/1 - 1mg, 5/16 - 0mg), Clonazepam 2mg Aug 2021 - Sertraline 25mg (re 8/20), Clonazepam 2mg Sep 2021 - Sertraline 50mg (up 9/3), Clonazepam (9/29 - 1mg), Diazepam (9/29 - 2.5mg) Oct 2021 - Sertraline 50mg, Clonazepam (10/14 - 0.9mg, 10/24 - 1mg), Diazepam (10/6 - 1.25mg, 10/14 - 0mg), Trazodone (10/03 - 50mg, 10/17 - 25mg, 10/21 - 12.5mg), Mirtazapine (10/17 - 15mg) Nov 2021 : Current - Sertraline 50mg, Clonazepam (4/22 - 0.975mg, 5/22 - 0.9125mg, co 6/22 - 0.25mg, co 8/22 - 0.5mg, co 1/23 - 0.25mg), Diazepam (co 6/22 - 12mg, 7/22 - 11mg, co 8/22 - 5mg, 9/22 - 4mg, 10/22 - 3mg, 11/22 - 2mg, 12/22 - 1mg, co 1/23 - 5mg, 2/23 - 4.5mg, 3/23 - 3.5mg, 4/23 - 3mg), Trazodone 12.5mg, Mirtazapine 15mg Supplements: 1/2 Multivitamin, Fish Oil 2000mg, Probiotic, Magnesium Chelate 280mg, Vit C 500mg, . Melatonin 5mg/3mgXR Link to comment
OldDodgy Posted May 24, 2022 Author Share Posted May 24, 2022 Thank you Covid chest pain main issue with fatigue. Hope you ok. OD 1 My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
JandD Posted May 25, 2022 Share Posted May 25, 2022 Unfortunately, I can't give you a recommendation at the moment. You will know things better and be able to assess them. I just send you lots of strength and a good recovery. Maybe it will also help you a little on another way. 13.10.21 - 50mg Sertraline + 2mg Diazepam (stop after 7 days). 15.11.21 - decission to stop sertraline, because of adverse reaction, no more Sertraline since 18.11.21 03.02.22 - Massive side effects from Sertraline, including head pressure, led to a suicide attempt and hospitalisation 16.03.22 - 20mg Olanzapine / 30mg Mirtazapine / 2.5mg Diazepam (last day of hospital and Diazepam) 17.04.22 - monthly microtapering Olanzapine (22.10.22 - 10mg / 22.02.23 - 7,5mg / 20.05.23 - 5mg / 15.07.23 - 3,7mg) 10.08.23 - monthly microtapering Mirtazapine (28.08.23 - 26mg / 18.09.23 - 22mg / 17.10.23 - 18mg / 20.11.23 - 15mg) 05.12.23 - monthly microtapering Olanzapine (15.12.23 - 3,2mg / 13.01.24 - 2,75mg / 12.02.24 - 2,25mg / 13.03.24 - 1,875mg) Current - monthly microtapering Mirtazapine 12mg / Olanzapine 1,875mg (holding) Link to comment
Ariel Posted May 28, 2022 Share Posted May 28, 2022 Hello @OldDodgy Just want to introduce myself and tell you how much I appreciate your kind posts. You are so good at supporting other members. Thank you for your contributions to our continuously co-created SA community! I'm impressed with your story, as well. You win the tenacity award! Sorry you came down with Covid. Illness in withdrawal can be so challenging. How is your recovery going? Sending healing vibes and well wishes, A. 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
OldDodgy Posted May 28, 2022 Author Share Posted May 28, 2022 @Ariel Thanks for taking the time to say hi - and the welcome to the group that is so important—- We have been though a lot. Your signature is nearly as scary as mine. My recovery is on hold whilst I get over long Covid. But I won’t give up. The privilege of being on psychotropic meds for 55 years is that I have been through withdrawals/ cross tapering/ hospital admissions etc and really feel for folk on here in anguish. On a bad day I am as useless as a chocolate teapot, but if I can help just one person on a good day then am happy to try. Best wishes OD 1 My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Ariel Posted May 28, 2022 Share Posted May 28, 2022 @OldDodgy So sorry you're dealing with long Covid. Good for you for not giving up! 8 minutes ago, OldDodgy said: On a bad day I am as useless as a chocolate teapot If you're anything like me, on a bad day a chocolate teapot is most useful -- as it can be devoured and enjoyed! (except when I'm in WD, of course -- can't have chocolate or tea these days) 10 minutes ago, OldDodgy said: if I can help just one person on a good day then am happy to try. You certainly do, OD. You helped me today -- thanks for making me laugh! Get well soon. Healing vibes, A. 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Mark840 Posted May 29, 2022 Share Posted May 29, 2022 Hello @OldDodgy, after you told me about the follow button, I explored my followers and realised I could visit your posts from there. I am here reading your posts, trying to know one another. My thread is quiet but your posts certainly help me feel better and I appreciate it very much. Sep-Dec '12: Cymbalta (60mg), Zyprexa (1.25 mg), Lexappo (5 mg), Wellbutrin SR (150mg); Dec '12-Apr '13: Lithium Carbonate Tab (150mg), Wellbutrin SR (150mg), Rivotril (1mg); May '13-Feb '15: no record; Mar '15-Aug '21: Cymbalta (60mg), Seroquel XR (50mg), Rivotril Tab (0.5mg); Jul-Sep '21: switched from private to government psychiatrist who changed my drugs to Cymbalta (60mg), Quentiapine (50mg)(IR); however, Quentiapine (50mg)(IR) led me to poor sleep; Oct '21: Due to poor sleep, I requested Cymbalta (60mg), Olanzapine (2.5mg), Rivotril Tab (0.5mg, when needed) Critial Stage: Nov '21-Jan '22: ceased drugs voluntarily in Nov '21. No major issue an offensive remark triggered my anger. Anger was intense and lasted unusually long. End of Jan-Feb '22: Doctor reinstated me with Cymbalta (30mg) only on 29 Jan '22. However; without Olanzapine (2.5mg), it caused poor sleep; End of Feb-Jun '22: after too much poor sleep, doctor replaced Cymbalta (30 mg) with Remeron (15 mg); Jul '22: attempted to tapper off slowly by 10% of last dose. It resulted in weird dreams and poor sleep; Aug-17 Nov '22: Resumed exactly 15 mg. My sleep restorerd and no more weird dreams; 17 Nov-11 Dec '22: Started to wake up after 2-4 hours of sleep for unknown reason; 12 Dec '22-May 23: 3-6 hous of sleep, partly due to work stress; Jun-Aug '23: 3.5 to 4.5 hours hours of sleep; Sep '23-present: take mirtazapine in morning and it resolves my insomnia. Link to comment
OldDodgy Posted May 29, 2022 Author Share Posted May 29, 2022 @Mark840 Bless you brother. I hope you are stable and not distressed in any way. OD 1 My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
OldDodgy Posted June 4, 2022 Author Share Posted June 4, 2022 @Onmyway Hi. The long Covid is getting worse. I haven’t changed meds. I fell in the bath yesterday and have no relief from ibuprofen and paracetamol. I am running out of courage. I even think I might have to go back to pregabalin as this is no sort of life. Would 75 at night for two weeks be the end of the world?? With a definitive end point. I will not take extra diaz for the spasm though it’s very tempting of course. Tens and acupuncture not working now. Ideas? Thank you OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Moderator Frogie Posted June 4, 2022 Moderator Share Posted June 4, 2022 @OldDodgy So sorry you are going through this. But because it is covid related, I would call a dr and see what they can do to help you with the falling and such. PREVIOUS medications and discontinuations: Have been on medications since 1996. Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist. Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form) ---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil. Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day. April 1, 2021 went back on 1mg a day. Started tapering May 19, 2023. July 28, 2023-approximately .87mg. Dr. fast tapered me at the end and realized he messed up. Prescribe it again and I am doing "slower than a turtle" taper. 19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020) I am not a medical professional. The suggestions I make are based on personal experience. Link to comment
Pollyjay Posted June 4, 2022 Share Posted June 4, 2022 1 hour ago, OldDodgy said: @Onmyway Hi. The long Covid is getting worse. I haven’t changed meds. I fell in the bath yesterday and have no relief from ibuprofen and paracetamol. I am running out of courage. I even think I might have to go back to pregabalin as this is no sort of life. Would 75 at night for two weeks be the end of the world?? With a definitive end point. I will not take extra diaz for the spasm though it’s very tempting of course. Tens and acupuncture not working now. Ideas? Thank you OD Oh no, so sorry to read this. Yes, I'd see the doctor first just to be sure. Prayers going up for you, OD!! 65 y/o Female Current meds: Started:26 February, Propranolol 5 mg 8am and 8 pm Started: 11 March 2022, Ativan : 0 .25mg 1pm and 9pm Off Seroquel since early October 2022 Off Lunesta since early September 2022 Other meds: Levothyroxine 50mcg with extra 25mcg Mon. Wed. Fri. Link to comment
OldDodgy Posted June 4, 2022 Author Share Posted June 4, 2022 Thanks for concern. I have been told that our out of hours service has a 4 hour window for call back. To see doc Monday- but she is on annual leave til 24th. I have completed my own neurological examination. I just need pain relief for sleep and wondering if a short course of a pentinoid might help. I have proven longstanding peripheral neuropathy from road accident with some ataxia. I think Covid has made this more troublesome. Best wishes OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Moderator Onmyway Posted June 5, 2022 Moderator Share Posted June 5, 2022 Hi @OldDodgy It's hard to advise because I'm not the one who is bearing the consequences either in pain or in destabilization. This will have to be a decision only you can make especially since you know just as much as I know about these drugs by now anyway. It's a really though spot to be in and my heart goes out to you. I wonder when this temporary Covid flare-up will resolve. I hope it's very soon. omw 1 "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Aussieblue Posted June 6, 2022 Share Posted June 6, 2022 Gosh OldDodgy I’m sorry to hear you have had a fall. Interesting to see you write you conducted your own neuro exam, sorry but I had a quiet chuckle imagining your assessment !! Surely a doctor would prescribe some narcotic analgesia for you short term rather than a gabapentinoid. Hope you have a family member or friend staying over to help with your care. Gentle hugs. 1 Michele G: my Intro topic Poly drugged 20 yrs ADs & sleeping pills. 10 years Anxiolytic. 7 yrs Lyrica. Hx Valium 15mg 12/20 cut dose in half now on 2.5mg 3x/day. Mirtazapine 7.5mg CTd 3/2021 per Dr, reinstated 4/21 @ 15mg. Zopiclone 3.75 CTd 7/21 E-script glitch, didn’t resume. 2016 Lyrica 150mg 2x/day, < 100mg 2x/day 2016. Tapered to 50mg 2x/day 4/2021-10/21, taper on hold. Oxybutnin Patch 3.9mg started 2016. LDN 3.0mg at night. Fish oil, Magnesium 400mg, Multivitamin, Iron, D3/K2, B Vitamins - all daily. Ashwagandha as needed Not cognisant of tapering until joining Lyrica Survivors. Link to comment
OldDodgy Posted June 6, 2022 Author Share Posted June 6, 2022 Hi. I am able to make toast and marmite. And let dog out. Two daughters within a mile - no help offered. Just “poor you” texts. Incidentally there is a data base for adverse vaccine reactions now which I started after the booster Nov 1 st. howbadismybatch.com Mine is of course the worst-). Hope you ok. OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Aussieblue Posted June 6, 2022 Share Posted June 6, 2022 I reported my adverse reaction to the TGA website here, however shall report it to the website you mentioned as well. Had another booster, not an mRNA though. BTW I read about drugs predisposing one to Covid and Pregab was on the list. Didn’t post on the Survivors group as I didn’t want to scare everyone. Your dog is lovely btw. Marmite & toast yum, had to give up Vegemite after the taper. Threw me into a wave!! All good this end have a neurosurgery appt next month. Whether I’m a candidate for C/spine surgery remains to be seen. Rather pleased with the appt as I was told last year the wait time was close to three years. Once I have a definitive answer shall recommence my taper. Didn’t want to explain an odd dose of pregab considering liquid isn’t available here! OD I’m so sorry you have long Covid, can’t begin to imagine the difficulties you face. From what I’ve read on Twitter & here it seems the medical profession is really struggling to find answers let alone provide appropriate care. There’s quite a few embittered medics about the lack of progress being made. Take care. Michele G: my Intro topic Poly drugged 20 yrs ADs & sleeping pills. 10 years Anxiolytic. 7 yrs Lyrica. Hx Valium 15mg 12/20 cut dose in half now on 2.5mg 3x/day. Mirtazapine 7.5mg CTd 3/2021 per Dr, reinstated 4/21 @ 15mg. Zopiclone 3.75 CTd 7/21 E-script glitch, didn’t resume. 2016 Lyrica 150mg 2x/day, < 100mg 2x/day 2016. Tapered to 50mg 2x/day 4/2021-10/21, taper on hold. Oxybutnin Patch 3.9mg started 2016. LDN 3.0mg at night. Fish oil, Magnesium 400mg, Multivitamin, Iron, D3/K2, B Vitamins - all daily. Ashwagandha as needed Not cognisant of tapering until joining Lyrica Survivors. Link to comment
FeralCatman Posted June 7, 2022 Share Posted June 7, 2022 @OldDodgy Sorry to read you are having such a hard time. I read that you are needing some pain control. One of the things I am looking at but have not tried yet is Collagen Supplements. My PCP says some of his patients swear by the stuff and a friend of my dad who has severe arthritis uses Collagen Supplementation and it really takes a bite out of the pain. It is the only thing he has tried that gives him his mobility back. There are many different varieties of Collagen and some are good for pain and some are good for other stuff so you would need to do your research and find which one would work for you as well as finding a reputable brand. As I said I have not tried it yet and am still researching. Everyone is different so what works for one won't work for another as you well know but I thought it worth mentioning. It is something you can do without having to run to the doctor to get them to help you can just do it on your own. Please take care and I hope you start to heal up soon. Current Psychiatric Medications Paxil 10mg daily (a.m.) 2017 - Present Carbamazepine IR 190 mg twice daily (380mg Daily) 2011 - Present (Currently Tapering) Past Psychiatric Medications From 1994 to August 2021 Seroquel (in Recovery since August 2021 final dose 6.25mg), Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary) Current Non Psychiatric Medications - Levothyroxine 88mcg (a.m.)-Vitamin D3 1000 IU (p.m.)-Fexofenadine 180 mg twice daily -Clonidine 0.1 mg (p.m.)-Azelastine Nasal Spray Other - Fish Oil Twice Daily-Multi-Vitamin (a.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Magnesium Citrate 250mg twice daily, Betaine HCL & Digestine Enzymes With Meals Quitting Seroquel_A Vacation In Hell_Redacted.pdf Other Documents https://www.survivingantidepressants.org/topic/26099-feralcatman-recovering-from-seroquel/?do=findComment&comment=633907 Link to comment
OldDodgy Posted June 7, 2022 Author Share Posted June 7, 2022 @FeralCatman Thanks for the heads up and good wishes. This have moved on I now probably have myocarditis and prostatitis from Covid. Have sent off bloods today. Hey ho. OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Knosretep Posted June 9, 2022 Share Posted June 9, 2022 Hey @OldDodgy Sorry to read that you're still struggling with long Covid and the pain from your fall. Hope your luck changes soon and you get some good news! 1 2013 - Jan 4, 2021 - Sertraline 50mg Jan 2021 - Venlafaxine 75mg (1/4) Feb 2021 : Mar 2021 - Venlafaxine 75mg April 2021 - Venlafaxine 75mg, Amitriptyline 2mg (4/20), Clonazepam 2mg May 2021 - Venlafaxine 75mg (5/16 - 0mg), Amitriptyline (5/1 - 1mg, 5/16 - 0mg), Clonazepam 2mg Aug 2021 - Sertraline 25mg (re 8/20), Clonazepam 2mg Sep 2021 - Sertraline 50mg (up 9/3), Clonazepam (9/29 - 1mg), Diazepam (9/29 - 2.5mg) Oct 2021 - Sertraline 50mg, Clonazepam (10/14 - 0.9mg, 10/24 - 1mg), Diazepam (10/6 - 1.25mg, 10/14 - 0mg), Trazodone (10/03 - 50mg, 10/17 - 25mg, 10/21 - 12.5mg), Mirtazapine (10/17 - 15mg) Nov 2021 : Current - Sertraline 50mg, Clonazepam (4/22 - 0.975mg, 5/22 - 0.9125mg, co 6/22 - 0.25mg, co 8/22 - 0.5mg, co 1/23 - 0.25mg), Diazepam (co 6/22 - 12mg, 7/22 - 11mg, co 8/22 - 5mg, 9/22 - 4mg, 10/22 - 3mg, 11/22 - 2mg, 12/22 - 1mg, co 1/23 - 5mg, 2/23 - 4.5mg, 3/23 - 3.5mg, 4/23 - 3mg), Trazodone 12.5mg, Mirtazapine 15mg Supplements: 1/2 Multivitamin, Fish Oil 2000mg, Probiotic, Magnesium Chelate 280mg, Vit C 500mg, . Melatonin 5mg/3mgXR Link to comment
Ariel Posted June 9, 2022 Share Posted June 9, 2022 Hi @OldDodgy I'm so sorry to hear you had a painful fall and are still struggling with long Covid. You must be in a lot of discomfort! It sounds like you are pretty isolated in your current circumstance. Is there any way someone could come to your home to offer practical assistance? I wish for you to have some helping hands and some human company (although I'm glad you've got your dog). How are you passing the time? Thinking of you and sending care across the aether, A. 1 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Moderator Onmyway Posted June 9, 2022 Moderator Share Posted June 9, 2022 On 6/7/2022 at 5:34 AM, OldDodgy said: @FeralCatman Thanks for the heads up and good wishes. This have moved on I now probably have myocarditis and prostatitis from Covid. Have sent off bloods today. Hey ho. OD Hi @OldDodgy Have you got the bloods back? They too had suspicion of myocarditis for me after Covid but things were ok but it was scary at the time. I hope you get good news. Can you get home help through the council to help with these issues. I like Ariel's idea! omw "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
OldDodgy Posted June 9, 2022 Author Share Posted June 9, 2022 Not yet no. thanks for asking. OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Ariel Posted June 9, 2022 Share Posted June 9, 2022 @OldDodgy If you find yourself bored and or in need of distraction, I'd love to hear all about your dog! If you feel like that might be a way to pass the time... Also, any other pets you may have known, past or present -- if you feel like sharing, I love reading pet stories! Hugs to you 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
OldDodgy Posted June 9, 2022 Author Share Posted June 9, 2022 @Ariel She's a light yellow Labrador b****. my third. When Pam was given a terminal diagnosis she said I must have another dog for when she died. She is a real softy and so well trained - constantly by Pam’s side til she died 8 years ago and a good friend to me ! We had guard dogs in Africa and I loved training them. I am not keen on cats though we’ve had three. We also had an African grey parrot which was fun. I tried a hand at tropical fish to help my autistic grandson but sadly they died of fin rot !!! When Saffy dies I will move to an apartment/- but though blind and deaf she still loves life-))). Have a good sleep! OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Ariel Posted June 10, 2022 Share Posted June 10, 2022 @OldDodgy Thank you for sharing this. I enjoyed reading it! Saffy sounds like a gem. Hugs to you both, and I hope you feel better soon 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
OldDodgy Posted June 11, 2022 Author Share Posted June 11, 2022 @Onmyway Well the bloods came back borderline so I was advised to go to Cas Er because of the pain and palpitations. Thankfully I was seen surprisingly quickly and repeat blood ecg and chest X-ray excluded new cardiac issues but have been referred for more tests. You can imagine that 7 hours on a trolley with no food or drink was exhausting. The agoraphobia was pretty awful especially as I haven’t slept for several nights. The staff see a lot of chest pain post Covid but obviously could not give me any guidance on managing fatigue and vertigo. Thank you for your concern all. I really appreciate your support. OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
OldDodgy Posted June 11, 2022 Author Share Posted June 11, 2022 @Onmyway@Frogie et Al Could I have some advice from a mod or friend please. ?? This Covid pain is just not manageable. My Gp has tried propranolol, nortriptyline, prochlorperazine and offered pentinoids. It is neuropathic and muscular in nature. I have use diaz 5 mg about twice a week on top of the 17.5 and it gives about 4 hours relief. Advice from Covid long haulers would be encouraging. Thank you. OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Moderator Onmyway Posted June 11, 2022 Moderator Share Posted June 11, 2022 Hi @OldDodgy Somewhat reassuring on the heart issue and I'm glad that you're getting some more tests done to see what is going on. I wish I could help with the pain. I'm afraid I know very little about pain management. Have you tried stretches and exercises? (It probably sounds laughable when you hear that - you probably have tried all of that). will I judge you for trying to use drugs to manage your pain? Of course not. I do want what's best for you. I might worry that you might have trouble later but that's about the extent of my worries about your use of gabapentin or benzos. With your history and situation I know you're making the best decisions you can. "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Ariel Posted June 11, 2022 Share Posted June 11, 2022 @OldDodgy Would you be interested in joining a long-covid support group? I know of a good one. (Long story short, in spring 2020 I may or may not have had neuro-covid (it may have been something else) and had post-viral complications for a long time after, so if the illness was covid, that would've been long covid.) The group is free to join, it's the Body Politic COVID-19 Support Group. Similar to SA it's a serious, organized research effort in addition to functioning as an online support community. Lots of long-haulers there. Sending best wishes for healing and relief <3 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
OldDodgy Posted June 11, 2022 Author Share Posted June 11, 2022 Thanks @ArielVery thoughtful of you. Luckily I belong to an LC group and U.K. CV family for those damaged by the vac. Great support. Glad you made a full recovery. living in hope 😏 OD My Intro topic. Was Dickie in FB gabapentinoids 2020 January Stopped Quetiapine 150 at night in a fairly chaotic fashion with holds, jumping at 6mg 2020 June Stopped Pregabalin 150 at night using Ashton Method Some holds. 2021 December Stopped Mirtazipine 15 using Ashton Method. (Slower at end). Nov 21 - Given Quetiapine 12.5 for sleep. Reduced mid March 2022 to 6mg - Off 30/5/22 Feb 2022 Ongoing Diazepam 17.5, Blip at Christmas when took 22.5mg for a few days, now 24 FEB Stable 17.5 as advised. Had long covid. Now going to 16.25 from 8/7/22. 7% drop Oxazepam 10mg.STOPPED 10th FEB 2022 “Rescue dose x 2 in 2 months. Buccastem 3mg less than 1 a month for nausea. Past meds since 1969 -Approx dates only available. Tranxene 15, Clomipramine 150 for about 25 years. 1993 Paroxetine 20 AD change. Diazepam 20mg swap from Tranxene. Oxazepam 10mg Prn since 1990's 1995 Trial of MAOIS. 2000 Escitaopram 10mg. 2015 trial of Trazadone. 2004 Pregabalin 150 at night. 2015 Started on Quetiapine 150 note, Mirtazipine 15 note. Diazepam increased to 30mg split dosing. Link to comment
Ariel Posted June 11, 2022 Share Posted June 11, 2022 16 minutes ago, OldDodgy said: Glad you made a full recovery. Well to be honest I don't know that I have yet, as whatever illness I had then (and I'll never know what it was) got all mixed up with WD symptoms and the autonomic dysregulation, nervous system destabilization, etc. It's impossible to distinguish what's what so I don't worry about it. But overall it's better than it was and I trust it will continue to improve. Don't know if this could be of interest, mentioning it just in case: 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
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