Jump to content

Struggling


Jilla

Recommended Posts

I am really having a hard time with all of this. I am losing weight fast, down to 104 pounds. I’m eating small healthy meals all day long, but am still loosing. The anxiety is crushing, I try to fight it but the fear and anxiety are winning. I seem to be getting worse not better. I don’t know what else to do. I  had tachycardia, then found out I was histamine intolerant. Cutting out histamine foods has helped that. I am sensitive to supplements. I am scared. I’m not afraid of dying, but I am scared of THIS. Why am I getting worse? Why am I not seeing any signs of healing? Did any of you get worse for months before seeing improvement? So many questions. Thanks for listening. I really need to talk to someone who has been thru this. Thanks!

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment
  • 5 months later...

Hi are you still hurting? I’m on 17 months of a bit of a Ct and tapering off Prozac and going through many confusing ups and downs. Feel like I’ve got a foothold then gone. 

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment

I am much the same way. I will have a few very good weeks, minor withdrawals, and then have a setback where the withdrawals are a bit more intense. I know I am healing, but the setbacks are no fun. 

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment

I agree the setbacks can be the most challenging for me. Kind of erases progress. I also see improvement but it’s so erratic it’s hard to make logic out of. Are you still tapering? I’m at 7.8mg of Prozac trying to get some stability so I can continue 

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment

No, my pcp had me go off of Paxil cold turkey. So I was hit with post acute withdrawals. That being said, when I was in the hospital for a week, they were treating it as a relapse, not withdrawals, and put me on 2 different meds. So when I am finished with the Paxil withdrawals, I will very slowly start tapering off the other meds. I have a long road ahead of me….but one step at a time. 

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment
1 hour ago, Jilla said:

No, my pcp had me go off of Paxil cold turkey. So I was hit with post acute withdrawals. That being said, when I was in the hospital for a week, they were treating it as a relapse, not withdrawals, and put me on 2 different meds. So when I am finished with the Paxil withdrawals, I will very slowly start tapering off the other meds. I have a long road ahead of me….but one step at a time. 

 

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment

That’s about where I am with the Prozac. After I was pulled off cymbalta with a poor crossover to Prozac another provider put me on Nortriptylene not knowing it was withdrawals. I had to then taper off the Nortriptylene while probably still in withdrawals from the cymbalta. I just switched over to liquid Prozac which can cause a bump for a while. From my experience be very careful when you get to one med below the 5-10mg mark. Our bodies seem to react more to these decreases 

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment

Thank you for that advice. I think once I get that low, I might think I can stop altogether. Now I know not to. I am just anxious to get over the withdrawals from Paxil so that I can start on the next part of my journey…withdrawing from the other meds. I have just learned that being hungry is too stressful on my body….and can cause withdrawals. I need to be more careful and eat more often. I was beginning to get a bit careless during this busy holiday season and not eating as often or as healthy as I should.  Always learning something new in this journey 👍. Hang in there my friend.

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment
  • 1 month later...

Hey Jilla im having the same problem with weight loss , Did yours seem to improve? 

December 27, 22’ Lexapro 10mg (only took one dose and immediately stopped) 

(Taking magnesium before bed 11 PM)

 

 

Look to the LORD, and his strength; seek his face always 🙏❤️

Link to comment

I lost about 20 pounds and have only been able to gain about 3 pounds back. I’m hoping that will improve as I continue to improve, but not much is going back on as of yet. At least I’m not loosing now, so that is an improvement.

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment

@Jilla thank you for your response I have lost 15 pounds in 6 weeks . And I keep loosing. Hopefully mine improves as well 

December 27, 22’ Lexapro 10mg (only took one dose and immediately stopped) 

(Taking magnesium before bed 11 PM)

 

 

Look to the LORD, and his strength; seek his face always 🙏❤️

Link to comment
  • 2 weeks later...

Hello, I am also in WD from Effexor 75 XR and happened to read your post about weight loss. I have lost 31 pounds in the last 9 months and can't continue. I am getting way too frail. Most foods cause increased symptoms, so my diet is very limited and I react to all supplements. How is your weight situation? Have you been able to stop your weight loss? I hope that you are doing better. Take care. Rebecca

Prozac 10mg 1990-1999    -1999-2018 Effexor XR 75 mg capsules

-2018 Dr direct switched me from Effexor 75XR to Cymbalta 20mg XR and 20 mg Metoprolol following irregular heartbeat incident  -Late 2019 began worsening anxiety/ depression symptoms     -2020 Dr direct switched  back to 75 mg Effex XR   Symptoms worsened   -2021 Changed Dr and began therapy for GAD and worsening physical symptoms   -2022 Found this forum and began slow taper by removing beads -    6/7 - 6/10 Effexor 73.2mg  6/11-6/14  Effexor 72.9mg   nightmares, tinnitus, anxiety;  6/15- Effexor XR 72.6mg  6/16 - 6/20 Effexor XR 72.8   nausea, heart palpitations, anxiety, tinnitus 6/22-7/4 hold Effexor XR 72.9-73.1     7/5-7/11  Effexor XR 72.62  7/12 - 7/15  Effexor 72.6  bad symptoms 

7/16-7/17 Effexor XR upped to 72.9  7/18 Effexor XR 72.9  most symptoms gone  hold at 72.9 - 73.0   8/26 - 9/6  Trying to keep dosage under 73. Holding around 72.9 sometime 72.86 due to bead count  Having symptoms most days.

9/6-9/23    Holding at about 72.9-73. Still very ill. No improvement.

9/23 - 11/23  Still keeping dose around 72.9-73

11-23-Jan 14   Held until one week ago. Dropped to 72.75-72.81  terrible WD

1/14- present   Worse WD symptoms. Back to 73.10. Cannot seem to stabilize. 

2/2 - present Holding at about 73 hoping to stabilize  

3/19 - present Dropped to aprox 92.9-92.88. (vary from day to day.) Holding 

Take only Clarinex 5mg for allergies and the Effexor 73 XR. I cannot take any supplements. No caffeine, sugar, soy, gluten, dairy.

 

Link to comment

I’m so sorry to hear about your situation. I was very reactive to foods as well and had to be so very careful. Just keep eating…and try to stay away from hard to chew foods. I cooked my vegetables for months so they would be easier to digest. And if I overcooked my chicken and had trouble chewing it, then I would react to it as well….too much stress on my body to try to digest it🤦‍♀️ I was also reactive when I had too many high carb foods at one sitting..even it they were healthy carbs. Hang in there and I hope this helps somewhat. It will get better. Just be gentle on yourself in every area!!!

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment

Thank you for responding, Jilla. I find so much strength hearing from others here. It makes me feel less alone in this terrible journey. I have cut out sugar, caffeine, gluten, dairy, and soy. I also can't tolerate fresh fruits or veggies. I pretty much live on oatmeal, hard-boiled eggs, baked chicken and beef, baked potatoes, gluten-free crackers, and frozen green beans that I microwave and season with seasoned salt and soy-free margarine. I also eat gluten-free fettuccini and I add the diced baked chicken and green beans. (I pretend I'm eating chicken alfredo.) I have tried the gluten-free bread, but I find I react to it some days. 

 

I wish I could tolerate at least a multi-vit, but I react to that. I bought some Nordic Naturals Omega 3 for infants, and I have taken a tiny dose for the last 3 days. I don't feel any worse, but it's also a dose for 10-20 pound babies. I hope to increase it slowly to an adult dose since the info here says it helps. I do drink decaf coffee which I know contains a trace of caffeine, but I only fill the cup a third then add water to make a full cup. I really don't know what else to do. I also soak the gluten-free crackers in water because my tinnitus is so bad that I can't stand the crunching. 

 

I hope you are progressing. Sending healing, caring thoughts your way.  Rebecca

Prozac 10mg 1990-1999    -1999-2018 Effexor XR 75 mg capsules

-2018 Dr direct switched me from Effexor 75XR to Cymbalta 20mg XR and 20 mg Metoprolol following irregular heartbeat incident  -Late 2019 began worsening anxiety/ depression symptoms     -2020 Dr direct switched  back to 75 mg Effex XR   Symptoms worsened   -2021 Changed Dr and began therapy for GAD and worsening physical symptoms   -2022 Found this forum and began slow taper by removing beads -    6/7 - 6/10 Effexor 73.2mg  6/11-6/14  Effexor 72.9mg   nightmares, tinnitus, anxiety;  6/15- Effexor XR 72.6mg  6/16 - 6/20 Effexor XR 72.8   nausea, heart palpitations, anxiety, tinnitus 6/22-7/4 hold Effexor XR 72.9-73.1     7/5-7/11  Effexor XR 72.62  7/12 - 7/15  Effexor 72.6  bad symptoms 

7/16-7/17 Effexor XR upped to 72.9  7/18 Effexor XR 72.9  most symptoms gone  hold at 72.9 - 73.0   8/26 - 9/6  Trying to keep dosage under 73. Holding around 72.9 sometime 72.86 due to bead count  Having symptoms most days.

9/6-9/23    Holding at about 72.9-73. Still very ill. No improvement.

9/23 - 11/23  Still keeping dose around 72.9-73

11-23-Jan 14   Held until one week ago. Dropped to 72.75-72.81  terrible WD

1/14- present   Worse WD symptoms. Back to 73.10. Cannot seem to stabilize. 

2/2 - present Holding at about 73 hoping to stabilize  

3/19 - present Dropped to aprox 92.9-92.88. (vary from day to day.) Holding 

Take only Clarinex 5mg for allergies and the Effexor 73 XR. I cannot take any supplements. No caffeine, sugar, soy, gluten, dairy.

 

Link to comment
  • 2 months later...

Two weeks ago I had a nasty sinus infection.  Was feeling pretty stable even during being sick. I took 5 days of antibiotics to help with the infection as it wasn’t getting better. I also had a cyst removed on my hand last week. The day after the surgery I felt I had such a setback of anxiety low mood. Could all the above have accounted for the setback? I only took a local anesthesia for the cyst removal and no pain meds after. Please any help would be appreciated thank you 

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment

Sorry to hear about your setback. And yes, I find that any little thing can bring on a setback….and what you just went thru definitely could have brought it on. Hang in there while your body readjusts and heals from this latest stressor. 
Setbacks are the pits! But they appear to be a part of this healing journey…it’s definitely not linear!

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment

Thanks jlla, non linear is def for real. There’s no way to feel confident in progress. I’m at a dose that makes me feel such raw overblown irrational  emotions. It’s like I’m a little toddler agin with uncontrollable emotions. Anything you can relate too? Thanks for the support 

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment

Yes, the emotional side effects of withdrawal are the worst part of it in my opinion.  We had to put our dog down after an unfortunate accident a couple of weeks ago. The grief I experienced with that was worse than any grief I had EVER experienced before. Very irrational! It was horrible!

Paxil 2008 20mg 2016 40mg feb 21 2022  20mg, feb 28 0mg April 23 20mg April 24 40mg April 26 20mg April 27 10mg April 28 0mg May 7 10mg May 17 0mg

Duloxitine Feb. 21, ‘22-30mg feb 28 60mg March 14 0mg April 21. 30mg April 26 60mg April 28 30mg am/60mg pm May 7 60mg am currently still on

Lexapro 2022 April 14 5 mg April 18 10m

April 21 0mg

Trazodone April 24 50mg 

Currently on 60mg dulox and 50mg Trazadone 

taking hydroxyzine and xanax as needed

Link to comment

We just did the same a few weeks back. Life just goes on as we heal. ❤️

1993 started 20mg Prozac.

2008 switched to 10mg of lexapro.

2015 added 50mg of Wellbutrin. Between 2015 and 2020 raised and lowered dosage of both. 2021 moved to Zoloft for one month then back to lexapro for one month. Then switched to 60mg cymbalta for four months. Then Basically cold turkeyed off cymbalta in two weeks using Prozac as a crossover med to reduce withdrawals. Not good. Then had Nortriptylene added to Prozac. Was on 20mg Prozac and 50mg of Nortriptylene for four months. Then did a four month ween off Nortriptylene. To date have been off cymbalta for approximately 11 months and Nortriptylene 7 weeks.  Presently taking 12.5 mg Prozac. Also taking 10 mg of bystolic for BLood Pressure. I’m not sure how the Prozac makes me feel. It does nothing to make me feel not sad and anxious at times. I finally figured out the meds are not what I need. What I need is to get off the 12.5mg of Prozac and continue to work on my stuff. Any help is deeply appreciated thank you. Reduced from 12.5 to 10 then from 10 to 7.5. Too much of a drop. Bought a scale and went to 9. Stabilized and went to 8.2 oct 1, 2022. Just got hit with wicked low mood, high anxiety, fatigue, chills. The anxiety is high in the AM and  lessons throughout the day. Hoping to stabilize soon 

Link to comment
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy