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EttaLouWho: looking for support


EttaLouWho

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You may be experiencing interdose withdrawal from gabapentin, as you take it only once a day and it wears off overnight.

 

Suggest you move 100mg of the 200mg gabapentin earlier by an hour each day, until you are taking it at 9 a.m. Please let us know how you're doing as you make this change.

 

10 hours ago, EttaLouWho said:

I have taken diphenhydramine at night for upwards of a decade. 

 

After this length of time, it is unlikely that diphenhydramine still assists you to sleep.

 

After you move the gabapentin, suggest you move diphenhydramine by an hour each day, to noon. 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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@AltostrataShould I just discontinue the diphenhydramine? I’m only taking it for sleep purposes. I’ve always thought it helped with sleep but if you think I should stop I will. I take a Zyrtec in the morning for allergy purposes so I wouldn’t need the diphenhydramine as well. I will start to move the gabapentin tomorrow. Thank you 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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On 8/22/2022 at 6:00 PM, EttaLouWho said:

6am: 50mg metoprolol ER, 15mg of buspirone, 1000 mg of fish oil, 100mg magnesium, 600mg NAC, 500 mg l-tryptophan, 500mg curcumin, 10mg Zyrtec

 

~12:30pm: 15mg buspirone, 100mg magnesium, 500mg l-tryptophan

 

7:30pm: 500mg l-tryptophan, 600 mg NAC, 1000mg fish oil

 

9:00pm: 15mg of buspirone, 25mg diphenhydramine, 200mg gabapentin, birth control pill

 

 

Zyrtec has not been mentioned before. Please specify what times o'clock you take each of your drugs, with their dosages. Please put ALL your drugs in this Interactions Checker and post the report or a link to it in this topic.

 

Suggest you cut down diphenhydramine by half by splitting the tablet or emptying half out of the capsule for a week, then stop.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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20 hours ago, EttaLouWho said:

 

6:00am: 50mg metoprolol ER, 15mg of buspirone, 1000 mg of fish oil, 100mg magnesium, probiotic, 10mg Zyrtec

 

@AltostrataI take Zyrtec at 6am. I will begin the diphenhydramine taper tonight. Thank you 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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@Altostrata It’s 2:45am and I haven’t slept in three days. I’m so tired, it feels like my body is dying. Every time i begin to fall asleep, I jerk awake in complete terror. I start the full body shaking and turn ice cold. My heart rate averages about 130bpm during this time with horrible palpitations. I am very nauseous and have near constant diarrhea. It’s almost as if I go into shock. I slept for 7 hours two days in a row before this and before that went two and a half days with no sleep. I don’t know what to do. I cut the diphenhydramine in half during the previous two days with no sleep as you suggested but went back up to a full pill thinking it would help me to relax. It did help me to sleep the two nights I got seven hours. My anxiety is so severe that I feel stuck in a constant fight or flight mode. I have tried deep breathing, guided meditation, light yoga, distracting myself with activities around the house, and talking to supportive friends but I am making no progress. My windows are blacked out and I stop using electronics for two hours before bed. I don’t know how much longer I can go without sleeping. Please can anyone help? If I don’t sleep I won’t heal and I’m so desperate to heal. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

Please keep daily notes of times of day you take your drugs, their dosages, and your symptoms throughout the day. Post 24 hours of notes at a time in this topic, in a simple list format with time of day on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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5:30am Wake up with severe anxiety, intrusive thoughts, dread, and panic
6:00am Take metoprolol 50mg, fish oil 1000mg, Zyrtec 10mg, probiotic, buspirone 15mg, magnesium 100mg
6:10am Diarrhea and extreme nausea
7:00am Breakfast: 1 slice of Ezekiel bread with almond butter and cinnamon
7:30am Diarrhea, heart palpitations, extreme nausea and anxiety
7:40am Diarrhea
7:45am Body turning cold as ice, nausea so severe I am choking back vomit
8:00am Full body shaking begins
8:06am Diarrhea
8:41am Extreme fatigue
9:00am Full body shaking improves
9:00-12:30pm Extreme OCD, intrusive thoughts, pacing, dread, fear
12:30pm Take buspirone 15mg, magnesium 100mg
1:00pm Take gabapentin 100mg/Eat string cheese and a date but immediately feel horribly nauseous and regret eating
1:30pm-6:30pm Extreme nausea, anxiety and worry, heart palpitations and tachycardia, need to move constantly but also so exhausted can barely function
6:30pm Try to eat some dinner but start dry heaving so abandon efforts
7:00pm Walk dog
7:30pm Pray
8:00pm Shower and try to listen to guided meditation but too distressed to do it
8:30pm Fear, pacing
9:00pm Take birth control pill, buspirone 15mg, Benadryl 12.5 mg, Gabapentin 100mg/Suicidal thoughts
10:30pm Sleep 
10:50pm Wake in full blown terror, full body shaking, ice cold.  Reach out to friend for help.  Begin pacing trying not to vomit
11:30pm-4am Talk to friend/Severe pain all over body, exhaustion, terror, pacing, rocking back and forth, suicidal thoughts, nausea, dry heaving
4:00am Turn laptop on for work.  Contemplate suicide

4:15am Full body shaking begins

 

@AltostrataAm I experiencing tardive akathisia?  I feel like I am being tortured.  I just need it to end.  If you think going back on meds will end it, I will do it.  I am so sick.  

 


 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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@AltostrataCould the akathisia be brought on by switching the timing of the gabapentin dose?  Should I go back to 200mg at night?

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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Hello EttaLouWho,

 

I will pray for you. I know exactly what akathisia feels like.

 

From what you are describing, with the pacing, rocking and insurmountable extreme anxiety, it sounds like that is the case. Though we can't know whether it is acute, chronic or tardive at this point. Specially, fluoxetine withdrawal and/or gabapentin withdrawal being involved.

 

Is the akathisia worse before your gabapentin dose is due? Or is it worse after you take it? It could also be interdose akathisia but from your daily notes of symptom timing it doesn't seem like it!

Anyhow, your best bet is to stabilize right now and improve your sleep. I would implement the changes altostrata suggested.

We are all rooting for you! Keep us posted!!

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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@PortugueseSeathank you so much for reading and responding. I took 200mg of gabapentin last night with my 9pm instead of breaking the dose up through the day and was finally able to sleep some.  I think I will go back to that for now and see if it helps. The no sleep is killing me along with trying to keep my job while experiencing all of this. I feel so afraid all the time.
 

Are you in an akithesia support  group? I have two friends in other states right now who have been my only support but I know they are exhausted and frustrated with me. I desperately need support if I am going to make it. 
 

I will be praying for you too. How long have you had akithesia and has it gotten any better?
 

 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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You gotta be consistent and stick to it. I am glad you have slept but doing what Alto said will likely even out your plasma concentration. Move in the direction he recommends.

I know it's scary, all of this is terrifying but we will see it through, I promise. Keep in touch. We will do just fine, it just takes time.

 

Yes, I'm in the akathisia support group but, to be honest, there is too much godless despair for me to visit often. I will support you as much as I can through SA. Altostrata and all the others will do their best too. Let's do this!

 

I've had akathisia for 9 months, last dose of the causative agent on March the 1st, last dose of a dopamine antagonist in mid-April. Yes, it has gotten better. I am still on Mirtazapine and that might be helping too. Basically my inner distress/tension and dysphoria are still out of control but, that said, panic attacks have faded, pacing, rocking and fidgeting are 90% gone. The compulsion to move is less intense too, it still happens though.

 

It gets better, it's a marathon though, not a sprint.

Have you noticed the akathisia getting worse or better in relation to your gabapentin dosing? Like, before or after? Anything like that? Or is there a daily pattern to it that you have noticed?

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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The akathisia has seemed to increase dramatically as I moved 100mg of my gabapentin dose an hour each day as suggested.  I used to sleep at least 4-5 hours a night but have been going three days at a time on absolutely zero sleep and in a constant state of terror.  I know my medicine needs consistency but after having slept again once returning to the 200mg at 9pm last night I'm afraid to split the dose.  It just seemed to make me so much worse.  Before moving the dose I honestly thought I just had extremely bad anxiety, panic attacks, and terror upon waking.  While moving it, I felt terror 24/7 to the point of just being unable to function whatsoever.  The only thing I could think about was how to make this end.

 

I appreciate your support so much and will do my best to support you on here as well.  It makes me so happy to hear that your akathisia has gotten better.  It gives me hope that maybe mine will as well.

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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10 hours ago, EttaLouWho said:

The akathisia has seemed to increase dramatically as I moved 100mg of my gabapentin dose an hour each day as suggested.  I used to sleep at least 4-5 hours a night but have been going three days at a time on absolutely zero sleep and in a constant state of terror.  I know my medicine needs consistency but after having slept again once returning to the 200mg at 9pm last night I'm afraid to split the dose.  It just seemed to make me so much worse.  Before moving the dose I honestly thought I just had extremely bad anxiety, panic attacks, and terror upon waking.  While moving it, I felt terror 24/7 to the point of just being unable to function whatsoever.  The only thing I could think about was how to make this end.

 


I see, and so you decided to stick with the evening dosing. The panic attacks, bad anxiety and terror upon waking could be part of the akathisia or secondary to the akathisia. One way or the other, I completely understand the fear, despair and the drive to make it stop. I live with it everything. The thing about akathisia is that is that any amount of it is maddening and drives one to despair. Right now I am having a morning wave, which is unusual, I am fidgety and have that unmistakable nervousness but it is not bad enough to make me pace. That said, it instantly makes me suicidal, not being able to relax even for a second is a prison I do not wish upon no one.

It gets better but it is not linear, some days you will feel like it is gone or largely gone, other days it will hit you like a pile of bricks. When that happens practice radical acceptance, affirmations are great, it is temporary, I am healing; and do reach out. This is not something one should go through alone.

Is aerobic exercise an option for you? Like jogging or even brisk walking outside. Anything that can reduce and rebalance noradrenaline might help!

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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I am so sorry you are experiencing a wave this morning. I completely understand the despair you are talking about. Akathisia is so overwhelming and all encompassing that I would do almost anything to get it to stop. It feels unlivable. I saw in a video online that said the Gulag used to give large doses of antidepressants to political prisoners and then stop them suddenly to induce akathisia as a form of torture. I mean if that doesn’t just sum up the situation right there then I don’t know what else could. No one deserves this pain. 
 

I try to walk for at least twenty to thirty minutes a day and I find that helps to burn off some of the anxiety. I also try to do some light circuit training 3-4 days a week but some weeks I’m too sick to do it so I don’t push. I appreciate talking to you about this so much. I truly cannot even express how grateful I am. I pray that your wave remits soon and you are able to find some peace. Will you please update me on how you’re feeling later in the day or tomorrow? I will be praying for you. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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Antipsychotics, yes. 

Which is exactly what some anti-emetics are, namely the one that got me into this mess, metoclopramide.

No, this pain is inhuman. But we will make it through.  Your aerobic exercise habit is great, yeah, never push it.
I also walk around 10.000 steps a day and I feel it helps. It is also good for your brain.

 

Thanks, same here. It is now 13pm and I feel it is starting to calm down. Let me know how you are feeling, I will pray for you too later today.
The anhedonia and depression are also quite bad but I know it is "just the drugs".

Every month I get further away from dopamine antagonists I am closer to healing, though I'll have to taper the mirtazapine eventually...

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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  • Administrator
On 9/10/2022 at 2:49 PM, Altostrata said:

Suggest you move 100mg of the 200mg gabapentin earlier by an hour each day, until you are taking it at 9 a.m. Please let us know how you're doing as you make this change.

 

I am sorry you had difficulty splitting the gabapentin dose.

 

Do you have diarrhea every morning? When did this start?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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@PortugueseSeaI’m glad to hear you got a little relief. It’s so scary to think anti nausea meds can do this. My doctor kept trying to give me anti nausea meds for my withdrawal nausea and I’m so glad that I read on here about them affecting the nervous system because I never would’ve known not to take them otherwise. I’m so paranoid about every medicine now. I always thought I was doing “the right thing” by taking the antidepressants and anti anxiety meds.  Now I am in this mess and would do anything to go back and never touch them but wishing to change the past never helps. 
 

I am very thankful I slept again last night. Not sleeping makes my akathisia so much worse. Going three to four days with no rest will break anyone. 
 

I am still on gabapentin and buspirone. I will eventually need to taper both of these but right now my focus is on stabilization. Do you feel stable even though you are still experiencing waves and windows?

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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@Altostrata I typically have diarrhea or a lose stool at least once a day since withdrawal started, with it ramping up to several times a day or more when in a bad wave. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

When did you start metaprolol? Have you ever reviewed adverse effects of this drug? It's your responsibility as a drug consumer to look up adverse effects of your drug, and recommendations about how to take it. Were you aware of this:

 

Quote

Take metoprolol with food. This drug may cause nausea. Taking it with food will allow your stomach to digest it better. Take it either with a meal or right after a meal.

 

Suggest you take fish oil with lunch.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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I have been taking metoprolol for close to a decade. I will make sure I eat something with it and will move the fish oil to lunch. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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4 hours ago, EttaLouWho said:

I always thought I was doing “the right thing” by taking the antidepressants and anti anxiety meds.  Now I am in this mess and would do anything to go back and never touch them but wishing to change the past never helps.

Before I took that poison, my health problems were a little occasional nausea and work related stress. That is it. Now I suffer daily and am moving back to my parents', leaving my job and family behind so I can recover from all the damage. If you had told me a year ago what was about to happen I wouldn't believe you. How could a doctor prescribe such a medication so haphazardly? Specially without a diagnosis. 

I didn't do my due diligence, true, but neither did the doctor or any of the pharmacists. When I got worse I talked with several doctors and no one did even consider akathisia as a possibility, despite my rx at the time.

It took months for them to realize, and then I got a prescription cascade that would have berried my if it wasn't for this website and Alto's advice.
 

5 hours ago, EttaLouWho said:

I am still on gabapentin and buspirone. I will eventually need to taper both of these but right now my focus is on stabilization. Do you feel stable even though you are still experiencing waves and windows?


I was just withdrawing, I am just withdrawing, now after being kindled so it is worse, should have left it alone. Like you with gabapentin and buspirone, I am taking Mirtazapine, still have crises and wouldn't be surprised if it took me a year to stabilize fully. We have to both be patient and suffer through this. We will make it. I promise.

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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It’s truly heartbreaking. We trust doctors to act in our best interests not to harm us with medication. I was 15 when I was put on medication. A minor. I had no idea what these pills could do to me. By the time I was legal age I was brainwashed into thinking the meds were the only thing keeping my abnormally functioning brain going. I was so desperate to just feel better and lead a normal life like others my age that I would’ve taken anything handed to me.

 

Im so sorry you have to leave your family so you can recover with your parents, but it’s such a blessing that your parents are willing and able to care for you. I am terrified because I don’t have anyone to help me. I am so scared to think about what will happen to me if I lose my job and cannot support myself. I have nowhere to go really.  Im afraid all the time and I never feel safe. I have a good therapist but she doesn’t take insurance and the cost is high.  
 

Is constant terror and unrelenting fear your main akathisia symptom? Do you have waves and windows or is the akathisia constant? Have you found anything that helps make it better?

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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On 9/23/2022 at 10:38 PM, EttaLouWho said:

I am terrified because I don’t have anyone to help me. I am so scared to think about what will happen to me if I lose my job and cannot support myself. I have nowhere to go really.

I know it's not much but as long as there's internet we will be here, I will be here. And I will keep praying for you. Feel free to reach out whenever, even though I'm across the world at least read and listen I can do.

 

On 9/23/2022 at 10:38 PM, EttaLouWho said:

 

Is constant terror and unrelenting fear your main akathisia symptom? Do you have waves and windows or is the akathisia constant? Have you found anything that helps make it better?


Restlessness is by far my worst symptom, it's the most relentless and "painful" to bear. It's almost constant. I get terror too at times, but it's not all the time.

The akathisia is constant in that I barely get any windows from the restlessness, it does vary in intensity though. Terror and other symptoms (head pressure, chest pressure, tinnitus, despair, anxiety, depresson) fluctuate, often wildly.

 

I have found that autogenic training helps me a bit, the mirtazapine and klonopin SEEM to help too. Though I'm hardly comfortable with taking anything but supplements right now. I'm very afraid of making things worse as getting worse means more time away from my family and regular work.

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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@Altostrata is there any correlation between length of time on meds and length of withdrawal? I was on SSRIs for 27 years. Does that mean I am stuck in this hell for decades? I know everyone is different but what has been your experience with this?

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

Length of withdrawal cannot be predicted.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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My dear Etta, we can't know how long it will take to get 100% better. That said, you will stabilize much earlier than that. Take heart.

Early December 2021 - Started Metroclopramide (Anti-Emetic) nausea 30mg (10mg 3x day).

Mid December 2021 - Akathisia symptoms start; Metroclopramide gets changed to PRN, taken 5mg, first every other day, then once every 3 days.

Early March 2022 - Akathisia diagnosed; Metroclopramide stopped; started Propranolol 10mg x twice a day to no effect, Biperiden PRN (0.5mg to 1mg).

Early April 2022 - Started Tandospirone 30mg (10mg 3x day), Quetiapine 25mg (only taken once, it skyrocketed symptoms).

Mid April 2022 - Mirtazapine 7.5mg, 10 day window followed. Discontinued Propranolol.

1st of May 2022 - Akathisia symptoms continue, Mirtazapine upped to 15mg. 7 day window followed. Tandospirone cut to 2x 10mg.

20th of May 2022 - Mirtazapine cut back to 11.75mg (3/4 of a 15mg pill).
June 2022 - Mirtazapine updose to 15mg. Tandospirone and Biperiden discontinued. Klonopin started PRN (0.5mg)

Current regimen: Mirtazapine at bedtime for akathisia/sleep/anxiety/depression, 15mg; Magnesium at bedtime for akathisia/sleep/anxiety/depression, Klonopin PRN (0.5mg). Waiting to stabilize.

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Thank you @PortugueseSeafor your support and friendship. It means the world to me.  Thank you @Altostratafor helping all of us on here with your knowledge and experience. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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Monday 9/27/2022

 

6:00am  Wake up, take meds--slept better than usual

6:10am  Loose stool

6:15am  Breakfast

6:30am  Walk dog

7:50am  Diarrhea, anxiety building

8:30am  Body turns ice cold, full body shaking

9:00am  Diarrhea, extreme fatigue, panic attack

9:30-10:30am  Receive support from family

10:30am-12:30pm  Low level anxiety

12:30pm  Meds/lunch

12:45pm-3:00pm Low level anxiety

3:00pm  Panic attack

3:30pm  Diarrhea

3:35pm Full body shaking, panic attack

3:40pm-5:00pm Sobbing uncontrollably, sheer terror

5:00pm  Try to eat

5:15pm-10:30pm  Severe akathisia, shaking in terror, sobbing, rocking back and forth while hiding in closet, on phone constantly for support, can only repeat the phrase "I'm so scared"

10:45pm  Startle awake in absolute terror after dozing for fifteen minutes, diarrhea, try to self soothe

11:00pm-2:00am  Sleep but mind is still in constant terror

2:00am-5:45am  In and out of sleep, filled with terror, shaking

 

Family has pulled together and vowed to support me.  Mom wants me to move home so she can help take care of me.  Sister promises to help in any way she can.  I'm in constant terror but my family believes I have akathisia and promises not to force medicate me and help me through.  Talking to boss about relocating out of state.

 

 

 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

What do you have for breakfast? Is it the same thing every day?

 

7 hours ago, EttaLouWho said:

12:30pm  Meds/lunch

 

Please specify the meds and their dosages.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Lately I have been having a glucerna shake because i haven’t been tolerating food and thought I wasn’t getting enough nutrients. Sometimes I eat a piece of Ezekiel bread too and/or a banana. 
 

lunch meds: buspirone 15mg, fish oil 1000mg, magnesium 100mg

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

Since starting the Glucerna shake, how has your symptom pattern changed? How do you feel before and after drinking it?

 

9 hours ago, EttaLouWho said:

6:00am  Wake up, take meds--slept better than usual

 

What are you taking at 6:00 a.m., with dosages?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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At 6am I take 50mg metoprolol, 10mg Zyrtec, 15mg buspirone, 100mg magnesium, and a probiotic. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

Please review adverse effects of metoprolol. To be an informed consumer, you should look up adverse effects of every drug you take.

 

It is possible the diarrhea is from metoprolol. Is there some reason you are taking it in the morning?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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That was how I was directed to take it. It’s never given me diarrhea before and I have been on it for over a decade but that doesn’t mean it’s not giving it to me now. I personally feel like the diarrhea is related to my extreme anxiety though. The panic attacks seem to bring it on. 
 

The Glucerna shakes have helped me I think. I have seen an increase in appetite and ability to stomach food since starting them. 

1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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  • Administrator

Your symptom pattern, which is consistent, indicates something you're ingesting in the morning is causing gut problems shortly afterward.

 

On 9/10/2022 at 4:25 PM, Altostrata said:

Please put ALL your drugs in this Interactions Checker and post the report or a link to it in this topic.

 

We need your drug interactions report.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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1995  Prozac      1996  Prozac and Paxil       1997  Celexa      1998-2018  Cymbalta 60-120mg-- failed taper and restarted at 20mg after development of intense rage--finally able to taper off in late 2018    2017-2021  Clonazepam 0.5mg BID--discontinued over 4 weeks in April 2021 resulting in severe benzo withdrawal for 5 months maybe still ongoing at time of AD rapid taper in Dec 2021

2018-2019  Bupropion    *Have been polydrugged since 1995 with a variety of benzos, sleeping pills, anxioltyics, and ADs.  Too many to list or remember. Never properly tapered by doctor before switching medicines*

2020  Started on Buspirone 15mg TID     2020-2021   Antidepressant was changed three times: Trintellix, Pristiq, Fluvoxamine.  Underwent 6 months of ketamine infusions. Advised to discontinue all meds due to inefficacy in November 2021.  Weaned off Fluvoxamine by psychiatrist over 6 weeks-- last dose ~December 10, 2021.  Severe ongoing withdrawal.   February 2021  Started on 300mg Gabapentin for anxiety, restless legs, insomnia, and wide spread body pain from withdrawal.  Began Gabapentin taper to 200mg on 8/5/2022. Worsened withdrawal symptoms.  Also began 2000mg of L-Tryptophan for depression/AD withdrawal, 2400mg of N Acetyl Cysteine for OCD and 300mg of Magnesium for depression.  Began L-Tryptophan taper from 2000mg to 1500mg on 8/14/2022. Completed l-tryptophan and NAC taper on 8/29/2022. 

Current Meds: 15mg of Buspirone TID, 200mg of gabapentin QD, metoprolol 50mg QD, 10mg Zyrtec QD, 12.5mg of Benadryl QD, birth control pills Current Supplements: 100 mg of magnesium TID, 1000mg of  Fish Oil BID

 

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