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GiaK

Histamine food intolerance

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freespirit

I wasn't sure where to put this question, but since it's related to Histamine Intolerance, I thought I'd try here. I have a hip injury which does not seem to be healing and the specialist feels an MRI needs to be done. There's a question as to whether I have Avascular Necrosis of the femur or torn labrum. Labral tears apparently need the contrast dye to be fully seen. But because of the HI, I'd prefer to stay away from the dye. The dye that is used is a histamine liberator and can potentially cause anaphylaxis. Has anyone with HI had an MRI with contrast dye?

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Gurgle
On 3/27/2018 at 7:27 PM, GiaK said:

hey...since I got notified of the above quote I thought I'd let you know that I still don't tolerate probiotics much but I've found that if I just eat food that contains them once in a while I do okay. I do a small 8 oz cup of goats milk yogurt occasionally...(my body kinda knows when...if I eat it more than ONCE however I run into problems.) ... then I also drink Kavita (a probiotic beverage in the cooler section of health oriented grocery stores) I drink half and then another half about a week later and that is okay too....

 

the only strain of probiotic pill I tolerate is plantarum and I get the one made by swanson vitamins...L-Plantarum...I can take that several times a week without a problem.

 

that's all I do for the time being...maybe someday I'll be able to add more...don't know. I don't have to be nearly as crazy careful with food anymore but I still don't eat in restaurants...(except for the food bars like the ones in whole foods where all the ingredients are listed)

Hi Gia. Do you have a post somewhere where you offer advice on where to start with an antihistamine diet? I think this may be a big part of my problems. Gurgle

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GiaK

I have collection of everything I've ever written on histamine intolerance at this link

https://wp.me/p5nnb-8Lf

 

I generally avoid giving advice cuz only you can hear your body and what it needs and that's what we really need to learn how to do anyway. I don't even use a histamine intolerance framework anymore although it was very helpful for a long time.

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NorthStar

@GiaK and Others:

 

Thank you so much for starting and contributing to this thread. The information here about histamine and mast cell issues have really helped me, personally, understand my own drug side effect, withdrawal, and tapering journey.

 

I have two questions for folks:

 - It's the middle of a damp, hot, pollen- and mold-infested summer up here in the Midwestern US (thank you, climate change). My WD/dysautonomic symptoms are worsening as the season goes on (food is a component, but not everything - my ears and sinuses plug up when I walk outside among greenery). I find myself actually looking forward to colder weather. Has anyone's symptom's cleared a bit/improved come late-fall or winter (I suppose it would depend on triggers and location)?

 

- Does anyone have thoughts on when it's safe for an extra-sensitive individual to move back into a house that's had some work done? We're in the middle of replacing our windows (professionals are doing this - and are not living at the house while it's going on) and other house improvements. Painting will be involved; some by us. If I participate (I did the dining room earlier in the spring when I was better), I plan on wearing a filtered mask - but I'm wondering if people have any thoughts on how long to wait post-painting + cleaning (fancy HEPA vac, non-toxic cleaning products, mopping-mopping-mopping) before moving back in? And how do you folks manage keeping a low-allergen house when cleaning can aggravate symptoms?

 

Thanks, all.

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GiaK

I'm not sure how to answer your questions about the house. I personally have avoided doing that sort of stuff in our house for years now.

 

I get worse every winter...but that's me. I don't find this sort of comparison helpful ... we are truly all different and I've found that it's best to simply move forward one step at a time and witness my own journey. I learn more from doing that then comparing my experience with others who may be radically different than myself.... at this point anyway. It seems we all do the compare and contrast while we're finding our footing and that too seems like how we learn in the earlier stages. That said, it's easy to pick up fears and concerns that truly don't belong to us so I've largely cut it out.

 

may the new season bring you happiness and joy and lots of healing! 

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Onmyway

Northstar, as someone with chemical sensitivitis unrelated to WD, if you must paint, pls use non-VOC paint for everything. Chemical sensitivities for me are related to formaldehyde but not sure what yours are. It *might* be useful to get allergy testing done. It's a simple procedure on your skin (pollen, dog/cat, dustmites etc) though not sure about food allergies. A constantly running air filter might help as well but choose carefully the kind - you need HEPA at least (there are even better ones than HEPA) + carbon filter (for the chemicals).  These will be expensive - as in upwards of 200-300 quid. 

 

If you have that much mucus constantly in the house I'd worry about dustmite allergies or mold. Both are tough to deal with.

I used to wear an N95 mask when I went outside when the season was bad but my allergies were much more manageable - contained in a certain time period - than what you seem to experience. I am also sensitive to new furniture (formaldehyde) or fake wood flooring or new carpets. These sensitivities have been a nightmare for a long time for me. But I have managed to control my environment rather than take pills as most allergy pills don't work well for me and they don't work for chemical sensitivities anyway. Another tip that was very helpful for pollen allergies was to wash your hair when you come from outside as your hair holds lots of pollen. Or put a scarf on (like an old Russian lady). 

 

This sounds like an awful journey. Wishing you some respite soon. Good luck!

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NorthStar
58 minutes ago, Onmyway said:

Northstar, as someone with chemical sensitivitis unrelated to WD, if you must paint, pls use non-VOC paint for everything. Chemical sensitivities for me are related to formaldehyde but not sure what yours are. It *might* be useful to get allergy testing done. It's a simple procedure on your skin (pollen, dog/cat, dustmites etc) though not sure about food allergies. A constantly running air filter might help as well but choose carefully the kind - you need HEPA at least (there are even better ones than HEPA) + carbon filter (for the chemicals).  These will be expensive - as in upwards of 200-300 quid. 

 

If you have that much mucus constantly in the house I'd worry about dustmite allergies or mold. Both are tough to deal with.

I used to wear an N95 mask when I went outside when the season was bad but my allergies were much more manageable - contained in a certain time period - than what you seem to experience. I am also sensitive to new furniture (formaldehyde) or fake wood flooring or new carpets. These sensitivities have been a nightmare for a long time for me. But I have managed to control my environment rather than take pills as most allergy pills don't work well for me and they don't work for chemical sensitivities anyway. Another tip that was very helpful for pollen allergies was to wash your hair when you come from outside as your hair holds lots of pollen. Or put a scarf on (like an old Russian lady). 

 

This sounds like an awful journey. Wishing you some respite soon. Good luck!

 

Thank you so much, @Onmyway. Sensitivities are so tough, especially when your system is already overflowing w/ inflammation (the late, great Histamine Chef calls this the 'inflammation bucket'); I'm trying to attack this from all angles - food, cleaning products, household and outdoor allergens, etc. But I'm struggling. It sounds like you've built quite an arsenal of strategies! Thank you so much for the suggestions. I've become highly reactive to everything in the last couple weeks and couple/few months in general - not sure if it's the meds, the new house, stress; likely all three. We've been using non-VOC (or ultra-low-VOC paint) - or we did for the one room we've painted. And we'll do the same for any varnish (whether I do it or not; if I do, I'll have to wear that heavy-duty mask). I had the skin prick test done ages ago and was positive for tree pollen and one other thing (I think it was dust). They can do foods (they just did that for my son, who's allergic to peanuts and eggs, poor guy), but I'm not sure how helpful the test is if you have a 'sensitivity' or other inflammation (as I do), but I am no expert. Perhaps it's worth revisiting. We have 2 HEPA air cleaners, a HEPA vac, use special pillow covers, and I'm trying to clean regularly but it's really tough when you're in this state. And sometimes it makes symptoms worse. Last month, I tried using Clorox wipes (which I swore I'd never do, but it's supposed to help w/ lead dust - the reason behind the window replacement), and my hands started to peel and I was nauseous for days (later read it's recommended you avoid skin contact - c'mon Clorox). So it's soap, water, and vinegar - strictly no cleaning chemicals. I am really hoping the window replacements and other work being done will help - it's an old house. I've an appointment with someone who specializes in mast cell issues, but I might go back and see an allergist for a new skin prick test.

 

Thanks, again. Wasn't sure if this was the best place for this, but I just wanted some feedback on how sensitive folks have reduced their environmental allergens and how much it matters. I'm working on the food, and have just started using saline-only nasal spray, which has helped in the past.

 

Cheers to you.

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NorthStar
2 hours ago, GiaK said:

I'm not sure how to answer your questions about the house. I personally have avoided doing that sort of stuff in our house for years now.

 

I get worse every winter...but that's me. I don't find this sort of comparison helpful ... we are truly all different and I've found that it's best to simply move forward one step at a time and witness my own journey. I learn more from doing that then comparing my experience with others who may be radically different than myself.... at this point anyway. It seems we all do the compare and contrast while we're finding our footing and that too seems like how we learn in the earlier stages. That said, it's easy to pick up fears and concerns that truly don't belong to us so I've largely cut it out.

 

may the new season bring you happiness and joy and lots of healing! 

 

Thank you so much, @GiaK. Your words about comparison and not "picking up fears and concerns that truly don't belong to us" is brilliant (put that on a T-shirt!). I need to do a better job of that. It's tough when your own body is a moving target, as you know, and you're in the first stages of this and everything is so heightened - it's just reaction-panic-react, symptom-panic-react right now. I'm not sure where that line is between seeking advice and following my own lead, but I hope I can find it.

 

All best to you.

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GiaK

Looks to me like you're doing it.🤗

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gn11

recurring histamine sensitivity:  can it get better after finishing WD?

 

I developed histamine sensitivity when I went into  withdrawal after having eye surgery almost 4 years ago. I have been in a slow withdrawal from Celexa for about 3 years after many missteps. I have been in a low histamine diet for about 3 years  but lately I have had a recurrence of symptoms (maybe eating out too ofeten!) It is hard to know why. I am wondering whether anyone has been successful in eliminating or substantially reducing HI after being completely of ADs. I am now at .72 mg of Celexa and hope to be done this year.? Can anyone share how they proceeded as they got close to the finish line. I am wondering if my sensitivity could also be due to getting this close to 0.

 

I am familiar with dietetic approaches DAO and cautions about some strands of probiotics. Anything else that has worked?  txs

Edited by manymoretodays
added title, merged to existing topic

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manymoretodays

Hi gn11,

Have you seen this topic:  Histamine food intolerances

It might be helpful.

I'm just starting to study up on this as well, for myself.  I am just proceeding now, well after hitting the finish line. 

I think that GiaK may have been successful, and possibly Alto as well.  Take a look at that topic though, you'll see posts by both, and I think you might find some of the answers you are seeking.

I just know that we each really do have to learn........ to listen to our bodies, and attend to the ever changing needs post drugs/medications. 

Best,

L, P, H, and G,

mmt

editing in to add:  I don't really have any symptoms of Histamine overload/intolerance right now, that keep me from living a pretty good, functional life.  I feel very fortunate in that regard.

 

Edited by manymoretodays
merged with histamine topic, January 31st
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wanttosurvive

Hi gn11,

 

Yes, you can get better as time passes and as you recover. 

I have been through a harsh journey in terms of WD although I had received ADs only a couple of months. Now I am over 2 years off drugs. 

Last year I dealt with histamine intolerance. I used to avoid almost all foods that are high in histamine. I remember having severe anxiety attacks after eating just small amounts of yogurt... 

But for almost 6 months I do not have any sensitivity about histamine. But I must say that I have gastric disease, so I take famotidine regularly, which is Histamine2 receptor antagonist. But in those days I mean last year I also took the medicine. There is no change in the medicine schedule that I receive. 

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gn11

Thanks for the answer. I have been working on my histamine sensitivity for a while and know quite about diet, causes etc. However as I am getting close to my final drop (I'm at .72 mg of Celexa) I've been wondering if I'd get better or go away all together. Something I know is  that my sensitivity makes my sinus problems worse which in turn make my tinnitus worse for a while after I eat. In addition, post-menopausal women suffer from histamine sensitivity more of often than other groups due to higher estrogen in relation to progesterone. I was hoping that the end of my withdrawal could bring some end to these symptoms and improve my ability to eat things that I ate before .

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jazzmugz

I just want to share what worked for me, although it may seem a little extreme to many.

 

I had histamine intolerance for several years - horrific G.I. symptoms and seasonal allergies so bad my eyes would swell and gum up so that they couldn’t be opened. At first the symptoms could be reduced by taking Zyrtec daily. Then it moved up to 2 Zyrtec, sometimes more. Eventually no amount of antihistamines could help... almost every time I ate I would get red in the face and struggle to breathe. Even a cup of tea or piece of fruit would have this effect.

Finally cut out gluten altogether - I mean 100%, not just ‘mostly’. I’d tried reducing intake previously but saw no difference. Things started improving a lot for me after about 2mths. Keep in mind it might not be gluten that is doing the damage for you, but finding the main culprit(s) and eliminating that was enough to allow my gut to heal to the point I could have a meal without feeling like I was dying.

 

I was traveling a lot for work at that time (still do), so was regularly exposed to cross-contaminated foods which would make me sick again for several days. I decided at that point to try something more drastic - having seen some documentaries and done a lot of online reading I decided to try helminthic therapy. For those unfamiliar, this is where a person inoculates themselves with certain types of parasites, I.e. deliberately giving yourself an infection with a small controlled number of parasites. There is a lot more to the theory but basically these guys, which have adapted to living in the human gut, release immunomodulatory proteins which reduce inflammation.

 

About a year after my first 2 innoculations with Necator americanus (common name human hookworm) I intentionally ate a bowl of Singaporean rice pasta made with non-gluten free soy sauce... and nothing happened. It is more than 3 years since first starting with hookworms and my digestion has never been better, and seasonal allergies are non-existent. I don’t even avoid gluten anymore. The only things I still have to avoid are most types of preservatives; includes wine and cider which contain sulphites.


I never would have thought it at the time, but now I am actually grateful for the histamine intolerance. It forced me to learn so much about health, nutrition and to listen to my body, and now I have an infinitely healthier lifestyle which might never have happened otherwise.

Edited by manymoretodays
spacing for readability

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AlaskanGlacier

Anyone have this as well? It sucks knowing that fermented kraut, kimchi, kombucha, etc are so good for your gut and health/healing but can't use them now because they cause sxs flares. When I take some I get extremely agitated above and beyond normal for a day or two after... to the point it's too much to take. It really flares sxs for me at this point when it didn't previously as much. Histamine? I'm not sure, but if anyone has had similar issues please let me know.

Edited by manymoretodays
merged with histamine topic

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Junglechicken

I think I am back onto this bandwagon, lol!

 

Going to work with my naturopath to find out what's going on with my gut.

 

No doubt, some expensive tests to be done involving samples.

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manymoretodays

Hi Jungle!

And bummer!

All I really know is that I do really well, as long as I get my daily spinach, blueberry, cranberry juice, and greek yogurt blender concoction in.  Seriously.

I throw in some protein powder too.

I just switched from bone broth powder to whey protein, which seems to be going okay so far.

 

I haven't really had to go further than that.  Minimal symptoms for me I think.  Along the lines of sometimes more sneezing, dry and itchy skin, especially in the winter months that I have to attend to with good lotion(s).

 

I'm still sleuthing on what to avoid, as far as histamine goes though.

 

And had a blood test done last July that showed normal Histamine with a experimental blood assay.  I was right in the middle of the range.  Although.........I don't know anything about the accuracy of that test.

 

Good luck to you!

L, P, H, and G,

mmt

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Junglechicken
5 minutes ago, manymoretodays said:

Hi Jungle!

And bummer!

All I really know is that I do really well, as long as I get my daily spinach, blueberry, cranberry juice, and greek yogurt blender concoction in.  Seriously.

I throw in some protein powder too.

I just switched from bone broth powder to whey protein, which seems to be going okay so far.

 

I haven't really had to go further than that.  Minimal symptoms for me I think.  Along the lines of sometimes more sneezing, dry and itchy skin, especially in the winter months that I have to attend to with good lotion(s).

 

I'm still sleuthing on what to avoid, as far as histamine goes though.

 

And had a blood test done last July that showed normal Histamine with a experimental blood assay.  I was right in the middle of the range.  Although.........I don't know anything about the accuracy of that test.

 

Good luck to you!

L, P, H, and G,

mmt

 

Thanks MMT, lol!

 

I'm laughing at how absurd this has all become.  

 

Wow, you can get bone broth powder?!? I wonder if we can get that in the UK?

 

Anyway, no doubt I'll be back on this thread updating you guys.

 

Onwards, and happier gutwards 🤪

 

JC

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manymoretodays
1 minute ago, Junglechicken said:

Wow, you can get bone broth powder?!? I wonder if we can get that in the UK?

 

Yes.  It's become one of those latest rages I think. 

A bit expensive but I just did 1/2 of the recommended, which helped stretch it out for a whole month.

 

And yes, onwards!  (?Hail the Queen, and what about those Princes?)......lol, I shall get over to your introduction soon.  Good to see you back around.

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Junglechicken
8 minutes ago, manymoretodays said:

 

Yes.  It's become one of those latest rages I think. 

A bit expensive but I just did 1/2 of the recommended, which helped stretch it out for a whole month.

 

And yes, onwards!  (?Hail the Queen, and what about those Princes?)......lol, I shall get over to your introduction soon.  Good to see you back around.

 

Well, I was on a winning streak for a while in the minimal WD symptom department, and then it all went south after the holidays (boo hoo!).

 

It would be weird to say "its great to be back!", but hey, here I am, lol!

 

P.S Yes, just checked, we can get bone broth powder here, and yes, it is very expensive.

 

 

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