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GiaK

Histamine food intolerance

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freespirit

I wasn't sure where to put this question, but since it's related to Histamine Intolerance, I thought I'd try here. I have a hip injury which does not seem to be healing and the specialist feels an MRI needs to be done. There's a question as to whether I have Avascular Necrosis of the femur or torn labrum. Labral tears apparently need the contrast dye to be fully seen. But because of the HI, I'd prefer to stay away from the dye. The dye that is used is a histamine liberator and can potentially cause anaphylaxis. Has anyone with HI had an MRI with contrast dye?

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Gurgle
On 3/27/2018 at 7:27 PM, GiaK said:

hey...since I got notified of the above quote I thought I'd let you know that I still don't tolerate probiotics much but I've found that if I just eat food that contains them once in a while I do okay. I do a small 8 oz cup of goats milk yogurt occasionally...(my body kinda knows when...if I eat it more than ONCE however I run into problems.) ... then I also drink Kavita (a probiotic beverage in the cooler section of health oriented grocery stores) I drink half and then another half about a week later and that is okay too....

 

the only strain of probiotic pill I tolerate is plantarum and I get the one made by swanson vitamins...L-Plantarum...I can take that several times a week without a problem.

 

that's all I do for the time being...maybe someday I'll be able to add more...don't know. I don't have to be nearly as crazy careful with food anymore but I still don't eat in restaurants...(except for the food bars like the ones in whole foods where all the ingredients are listed)

Hi Gia. Do you have a post somewhere where you offer advice on where to start with an antihistamine diet? I think this may be a big part of my problems. Gurgle

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GiaK

I have collection of everything I've ever written on histamine intolerance at this link

https://wp.me/p5nnb-8Lf

 

I generally avoid giving advice cuz only you can hear your body and what it needs and that's what we really need to learn how to do anyway. I don't even use a histamine intolerance framework anymore although it was very helpful for a long time.

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NorthStar

@GiaK and Others:

 

Thank you so much for starting and contributing to this thread. The information here about histamine and mast cell issues have really helped me, personally, understand my own drug side effect, withdrawal, and tapering journey.

 

I have two questions for folks:

 - It's the middle of a damp, hot, pollen- and mold-infested summer up here in the Midwestern US (thank you, climate change). My WD/dysautonomic symptoms are worsening as the season goes on (food is a component, but not everything - my ears and sinuses plug up when I walk outside among greenery). I find myself actually looking forward to colder weather. Has anyone's symptom's cleared a bit/improved come late-fall or winter (I suppose it would depend on triggers and location)?

 

- Does anyone have thoughts on when it's safe for an extra-sensitive individual to move back into a house that's had some work done? We're in the middle of replacing our windows (professionals are doing this - and are not living at the house while it's going on) and other house improvements. Painting will be involved; some by us. If I participate (I did the dining room earlier in the spring when I was better), I plan on wearing a filtered mask - but I'm wondering if people have any thoughts on how long to wait post-painting + cleaning (fancy HEPA vac, non-toxic cleaning products, mopping-mopping-mopping) before moving back in? And how do you folks manage keeping a low-allergen house when cleaning can aggravate symptoms?

 

Thanks, all.

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GiaK

I'm not sure how to answer your questions about the house. I personally have avoided doing that sort of stuff in our house for years now.

 

I get worse every winter...but that's me. I don't find this sort of comparison helpful ... we are truly all different and I've found that it's best to simply move forward one step at a time and witness my own journey. I learn more from doing that then comparing my experience with others who may be radically different than myself.... at this point anyway. It seems we all do the compare and contrast while we're finding our footing and that too seems like how we learn in the earlier stages. That said, it's easy to pick up fears and concerns that truly don't belong to us so I've largely cut it out.

 

may the new season bring you happiness and joy and lots of healing! 

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Onmyway

Northstar, as someone with chemical sensitivitis unrelated to WD, if you must paint, pls use non-VOC paint for everything. Chemical sensitivities for me are related to formaldehyde but not sure what yours are. It *might* be useful to get allergy testing done. It's a simple procedure on your skin (pollen, dog/cat, dustmites etc) though not sure about food allergies. A constantly running air filter might help as well but choose carefully the kind - you need HEPA at least (there are even better ones than HEPA) + carbon filter (for the chemicals).  These will be expensive - as in upwards of 200-300 quid. 

 

If you have that much mucus constantly in the house I'd worry about dustmite allergies or mold. Both are tough to deal with.

I used to wear an N95 mask when I went outside when the season was bad but my allergies were much more manageable - contained in a certain time period - than what you seem to experience. I am also sensitive to new furniture (formaldehyde) or fake wood flooring or new carpets. These sensitivities have been a nightmare for a long time for me. But I have managed to control my environment rather than take pills as most allergy pills don't work well for me and they don't work for chemical sensitivities anyway. Another tip that was very helpful for pollen allergies was to wash your hair when you come from outside as your hair holds lots of pollen. Or put a scarf on (like an old Russian lady). 

 

This sounds like an awful journey. Wishing you some respite soon. Good luck!

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NorthStar
58 minutes ago, Onmyway said:

Northstar, as someone with chemical sensitivitis unrelated to WD, if you must paint, pls use non-VOC paint for everything. Chemical sensitivities for me are related to formaldehyde but not sure what yours are. It *might* be useful to get allergy testing done. It's a simple procedure on your skin (pollen, dog/cat, dustmites etc) though not sure about food allergies. A constantly running air filter might help as well but choose carefully the kind - you need HEPA at least (there are even better ones than HEPA) + carbon filter (for the chemicals).  These will be expensive - as in upwards of 200-300 quid. 

 

If you have that much mucus constantly in the house I'd worry about dustmite allergies or mold. Both are tough to deal with.

I used to wear an N95 mask when I went outside when the season was bad but my allergies were much more manageable - contained in a certain time period - than what you seem to experience. I am also sensitive to new furniture (formaldehyde) or fake wood flooring or new carpets. These sensitivities have been a nightmare for a long time for me. But I have managed to control my environment rather than take pills as most allergy pills don't work well for me and they don't work for chemical sensitivities anyway. Another tip that was very helpful for pollen allergies was to wash your hair when you come from outside as your hair holds lots of pollen. Or put a scarf on (like an old Russian lady). 

 

This sounds like an awful journey. Wishing you some respite soon. Good luck!

 

Thank you so much, @Onmyway. Sensitivities are so tough, especially when your system is already overflowing w/ inflammation (the late, great Histamine Chef calls this the 'inflammation bucket'); I'm trying to attack this from all angles - food, cleaning products, household and outdoor allergens, etc. But I'm struggling. It sounds like you've built quite an arsenal of strategies! Thank you so much for the suggestions. I've become highly reactive to everything in the last couple weeks and couple/few months in general - not sure if it's the meds, the new house, stress; likely all three. We've been using non-VOC (or ultra-low-VOC paint) - or we did for the one room we've painted. And we'll do the same for any varnish (whether I do it or not; if I do, I'll have to wear that heavy-duty mask). I had the skin prick test done ages ago and was positive for tree pollen and one other thing (I think it was dust). They can do foods (they just did that for my son, who's allergic to peanuts and eggs, poor guy), but I'm not sure how helpful the test is if you have a 'sensitivity' or other inflammation (as I do), but I am no expert. Perhaps it's worth revisiting. We have 2 HEPA air cleaners, a HEPA vac, use special pillow covers, and I'm trying to clean regularly but it's really tough when you're in this state. And sometimes it makes symptoms worse. Last month, I tried using Clorox wipes (which I swore I'd never do, but it's supposed to help w/ lead dust - the reason behind the window replacement), and my hands started to peel and I was nauseous for days (later read it's recommended you avoid skin contact - c'mon Clorox). So it's soap, water, and vinegar - strictly no cleaning chemicals. I am really hoping the window replacements and other work being done will help - it's an old house. I've an appointment with someone who specializes in mast cell issues, but I might go back and see an allergist for a new skin prick test.

 

Thanks, again. Wasn't sure if this was the best place for this, but I just wanted some feedback on how sensitive folks have reduced their environmental allergens and how much it matters. I'm working on the food, and have just started using saline-only nasal spray, which has helped in the past.

 

Cheers to you.

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NorthStar
2 hours ago, GiaK said:

I'm not sure how to answer your questions about the house. I personally have avoided doing that sort of stuff in our house for years now.

 

I get worse every winter...but that's me. I don't find this sort of comparison helpful ... we are truly all different and I've found that it's best to simply move forward one step at a time and witness my own journey. I learn more from doing that then comparing my experience with others who may be radically different than myself.... at this point anyway. It seems we all do the compare and contrast while we're finding our footing and that too seems like how we learn in the earlier stages. That said, it's easy to pick up fears and concerns that truly don't belong to us so I've largely cut it out.

 

may the new season bring you happiness and joy and lots of healing! 

 

Thank you so much, @GiaK. Your words about comparison and not "picking up fears and concerns that truly don't belong to us" is brilliant (put that on a T-shirt!). I need to do a better job of that. It's tough when your own body is a moving target, as you know, and you're in the first stages of this and everything is so heightened - it's just reaction-panic-react, symptom-panic-react right now. I'm not sure where that line is between seeking advice and following my own lead, but I hope I can find it.

 

All best to you.

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GiaK

Looks to me like you're doing it.🤗

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