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Tapering strips for psychiatric drugs being produced in Netherlands


Altostrata

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I'm adding a video that came out today with the first person to use Dr. Groot's tapering strips, in this case, for Valium:

 

Claire: The First Patient in the UK to Use Dr. Groot's Tapering Strips to Taper Valium - video - 6 minutes

 

From the YouTube description (note: not all of the links are in English, so you may need to use Google translate):

 

Dr. Groot, from the User Research Center of Maastricht University in the Netherlands, has invented "tapering strips" to help solve the problem that many who are experiencing normal dose dependence from prescribed psychiatric drugs are facing—that many of the medications don't come in liquid form or in small enough doses to taper properly.

To use Dr. Groot's tapering strips, you do need a cooperative prescriber. For now, they are only available for an out-of-pocket fee, but the hope is to change this and to petition to have insurers and governments start to pay for them.

To learn more about Dr. Groot and his "tapering strips," listen to James Moore's podcast interview featuring Dr. Groot: https://www.youtube.com/watch?v=oKhh2...

Tapering Strips Description Paper: http://www.cinderella-tx.org/files/20...

User Research Center, Project Tapering (in Dutch, work on English version of the website is in progress): https://urc.mumc.maastrichtuniversity...

List of drugs for which tapering strips are currently available (in Dutch, work on English version of the website is in progress)
*Note from Dr. Groot: "On this website, people can find ordering forms for all the available drug tapering strips. English versions will be available soon. The pharmacist told me that it should be possible to provide the strips to patients in the UK if a licensed doctor fills in the prescription. I would very much like to make it possible for patients in the UK to take part in research projects using self-monitoring with the PyMate-app": https://urc.mumc.maastrichtuniversity...

Tapering Strip Developers to Take on Health Insurers: https://www.maastrichtuniversity.nl/n...

Sign the Petition for a Tapering Solution in the UK: https://www.change.org/p/make-pharmac...

 
Edited by Shep
added bold

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

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Altostrata

From the UK's New Scientist:

 

https://www.newscientist.com/article/2140106-people-are-hacking-antidepressant-doses-to-avoid-withdrawal/

 

People are hacking antidepressant doses to avoid withdrawal

DAILY NEWS 7 July 2017

A patient-led movement is helping people taking psychiatric medicines to hack their dosing regimens so they can wean themselves off the drugs without any side effects. Now a Dutch website that sells kits to help people do this is about to launch an English-language site, triggering safety concerns among UK regulators and doctors.

 

Some people find it impossible to stop taking certain antidepressants and anti-anxiety medicines such as valium because, unless the dose is reduced very gradually, they get severe mental and physical side-effects.

 

The problem is these medicines aren’t sold in small enough tablets to allow for tapering. This has prompted some people to flout mainstream medical advice and use DIY methods for reducing their doses, such as grinding up tablets and dissolving them in water, or breaking open capsules of tiny beads and counting them out. The UK mental health charity Mind advises people who want to stop taking antidepressants of some techniques to try, but recommends they get advice from their doctor or pharmacist first.

 

To help people taper their dose more easily, a Dutch medical charity, called Cinderella Therapeutics,  creates personalised “tapering kits”, with precisely weighed out tablets in labelled packets that gradually reduce over several months. The website recommends people do this under medical supervision and must first receive a doctor’s prescription.

 

The charity has been sending out such kits since 2014, distributing around 2000 tapering kits for 24 different medications so far. Most of these were for people in the Netherlands, but a few kits have been sent to other countries, including the UK. The website is in Dutch, but an English-language version is being launched next week.

 

Its actions are legal in the Netherlands, although most medical bodies advise people not to buy medicines over the internet. “Although prescription-only medicines can be imported for personal use, self-medication is potentially risky and we advise against this,” says a spokesperson for the UK’s Medicines & Healthcare Products Regulatory Agency. “We will be contacting our regulatory partners in the Netherlands to make necessary enquiries.”

 

Withdrawal symptoms

An increasing number of people are taking antidepressants – about 1 in 10 people in the UK, for instance. Many people find antidepressants helpful, and even life-saving, but some struggle to stop taking them when they are ready.

 

Some people say that when they try to stop, they experience intolerable side effects. A study in New Zealand found that 55 per cent of people got withdrawal symptoms on stopping antidepressants.

....

Information leaflets that the drug manufacturers provide alongside the drug warn of short-term withdrawal effects, and doctors usually advise people to reduce their dose slowly. But even if people do that, once they stop taking the lowest dose of tablet available, some still get problems. Some people are told by their doctors that it is a relapse, even if it might not be.

One solution often proposed is to take one pill every other day, but some common antidepressants such as venlafaxine and paroxetine are broken down by the body within hours, so this method leads to drug levels in the blood fluctuating from one day to the next. Instead, people have begun swapping tips about how to taper their medication online.

 

Tapering help

[James] Moore tried cutting up his pills into smaller pieces but found the dosing was too variable and his withdrawal symptoms returned. “I was functioning one day and the next I would be in bed,” he says. He is now leading a campaign to make manufacturers make their drugs available in much lower doses.

 

[JamesMoore is a member of this site; see his topic Petition calling for tapering kits in the UK]

 

David Healy, a psychiatrist in Bangor in the UK, says people’s experiences of withdrawing from antidepressants can vary a lot. He helps those with severe symptoms by prescribing liquid formulations of their medicine, which they can measure out in small amounts. These formulations aren’t as widely stocked as their pill equivalents.

 

....Healy says most GPs refuse to prescribe such liquids because they are more expensive than the standard pills.

 

Pharmacist Paul Harder, who makes the tapering kits for Cinderella Therapeutics, says an unpublished survey by the charity found that about 80 per cent of users manage to completely stop taking their medicine. Another 10 per cent reduce it, but the rest return to their original dose. The average time people use the service taper for is two months, he says, but some people take up to seven months.

 

Tony Kendrick of the University of Southampton in the UK says another option for some people is to switch antidepressants to fluoxetine (Prozac), which is widely available in a liquid formulation. But some people feel they cannot switch.

 

Kendrick is investigating ways to help doctors tell the difference between antidepressant withdrawal symptoms and signs that a person’s depression or anxiety is returning. Withdrawal symptoms tend to start very quickly, often the first day a dose is missed, and disappear when the person returns to their normal level, he says. “A relapse usually takes weeks or months.”

 

A spokesperson for the Association of the British Pharmaceutical Industry did not wish to comment.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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Hi, I have just read this article... 

There is some hope... 

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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  • Administrator

 

Dutch website selling tapering kits for coming off antidepressants launches English-language version

 

The above article came out in the Pharmaceutical Journal yesterday, and they are getting the information wrong.

 

Quote

Patients in the UK will be able to buy kits containing prescription-only medicines from the website without a prescription, but the MHRA warns that self-medication is potentially risky.

 

This isn't true - it does require a prescription. 

 

JamesMoore, a member of SA who has the petition for tapering kits here: Petition calling for tapering kits in  and does a podcast on the Mad in America site posted this in the comments area clarifying: 

 

 

Quote

 

James Moore13 JUL 2017 13:42

I would like to point out that this article is factually incorrect, as is clearly stated on the website for Tapering Strips, a prescription from a doctor is required in all cases. Without a valid prescription, patients cannot order Tapering Strips. 

This is ground breaking and vitally important work and it is important that we report these details accurately.

For the correct information please visit http://www.taperingstrip.org

 

 

I have a feeling there may be a long, drawn out fight over this. 

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

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  • 1 month later...

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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very interesting the government watch dog investigating .the sceptic in me presumes there's an agenda attached to this ,a bit like the FDA in America looking after big pharma rather than its civilians .

if big pharma aren't going to listen about tapering kits ,obviously someone  else is .

PB

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

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  • Moderator Emeritus
On 08/07/2017 at 7:12 PM, Altostrata said:

Pharmacist Paul Harder, who makes the tapering kits for Cinderella Therapeutics, says an unpublished survey by the charity found that about 80 per cent of users manage to completely stop taking their medicine. Another 10 per cent reduce it, but the rest return to their original dose. The average time people use the service taper for is two months, he says, but some people take up to seven months.

 

80% of people taper off within 2-7 months and 10%  go back to the full dose, 10% reduce the dose but don't get all the way off.  It is a start but still a long way to go. I wonder how many of those 80% stayed off permanently as withdrawal can kick in weeks or months after the last dose. 

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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  • Administrator

I agree. Looks like 10% find reduction too difficult right off and go back on the drug.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 2 weeks later...

I don't know if anyone has mentioned this... but you can indeed use their packages to do longer tapers. For example if you want use their kit to do 1 reduction monthly, buy 30 tapering kits and it will provide 30 tablets of each dose. Hope this helps :)

 

Hoping they start providing a way for customers to separately buy any dose in their kit in large quantities.

2015 Started on Olanzapine 10 mg

 

2016:18th January Down to 7,5 mg (from 9,38 mg) 1st of June 6,75 mg (began 10% taper!) [...] 1st December 3,65 mg

 

2017: 1st Jan. ~3,3 mg, 1st Feb 2,95 mg, 22nd Feb 2,65 mg (began 3-week taper) 15th Mar 2,38 mg, 5th Apr 2,14 mg, 26th Apr 1,94 mg  17th May ~1,74 mg (began 19-day taper) 5th June ~1,56 mg 24th June 1,4 mg (began 17-day taper) 11th July 1,26 mg 30th July 1,13 mg 24th Aug 1,0 mg(!)

17th Sept 15mg 11st Oct 13,5mg 26th Oct 11,75 mg 18th Nov 10 mg 15th Dec 9 mg

2018: 12nd Jan. 8,1 mg 15th Feb 7,5 mg 1st Apr 6,75 mg 1st Apr 6,08 mg 1st Jun 5,48 mg 1st Jul 5 mg 15th Aug 4,6 mg 15th Sep 4,4 mg 18th Nov 4,3 mg 16th Dec 4,2 mg

2019: 16th Jan 4,1 mg 28th Feb 4,0 mg [...] (began 0.01mg per 2.5 months taper!) 1st Oct 3,7 mg 15th Dec 3,6 mg

2020: 1st Mar 3,5 mg (began 0.01mg per 3 months taper!) 1st Jul 3,35 mg (<-- trying a larger drop) 4th Sep 3,25 mg (started 0.1125mg / 2 months) 10th Dec ~3,1125 mg

2021: 1st Feb 3,0 mg

Other medications: Temazepam for sleep, don't want to use it (has too many side effects). Melatonin too, except that doesn't work for me with high doses of olanzapine.

Haven't used any sleeping medications for a long time. Temazepam caused withdrawal symptoms when I last tried it.

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  • 3 months later...
  • 5 months later...

An article on Mad in America about a tapering strip study. https://www.madinamerica.com/2018/05/tapering-strips-help-people-discontinue-antidepressants/#comment-131981

 

People successfully discontinued, but the average duration of tapering was 59 days, so I'd be interested to see how long they stay well afterward.

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

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This looks like the original article, but it's in Dutch http://docplayer.nl/58880844-Ontwikkeling-en-rationaliteit-van-taperingstrips.html

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

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Actually, it can't be the original article. This is, but I can't locate it.

 

Groot, P. C., & van Os, J. (2018). Antidepressant tapering strips to help people come off medication more safely. Psychosis. https://doi.org/10.1080/17522439.2018.1469163

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

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I found this article quite interesting.

 

https://www.madinamerica.com/2018/05/tapering-strips-help-people-discontinue-antidepressants/

I was on Lexapro 10mg, once a day for about 8 yrs combined with Abilify 2mg, once per day and Klonopin ,25-.50mg up to 4 times a day. Prior to that multiple trials of various SSRIs and low doses of unsuccessful various mood stabilizers in anticonvulsant category with the same dose of Klonopin for a total of over 16 yrs.[/font][/size]Withdrawal from Abilify around Aug. 2015 and slow taper of Lexapro began late Jan. 2016. As of January 2017 I am 11 months full withdrawal from Lexapro and was .25mg of Klonopin at night.(went to .25 klonopin at night only somewhere in October)<p>**Update with my Klonopin taper. I was on .25mg at night and .25mg in AM with varying doses of .125mg during day, maybe once or twice on as needed basis. Starting in early September 2016 reduction of .125mg day dose was decreased to only .25mg AM. Over 2-3 weeks was down to .125mg AM for about 3-4 weeks. As of sometime in October down to only .25mg at night. As of 1/7/17 I am updosed to an additional .25mg at night, for a total of .5mg. As of June 23, 2017 I am on a liquid tapered dose of klonopin. Current dose 4.1ml as of February 21, 2018**

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  • Administrator
Altostrata

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • Altostrata changed the title to Cinderella Therapeutics in Netherlands is producing tapering kits
  • 4 months later...
  • Administrator

FYI, here is the instruction and ordering form for agomelatine tapering strips:

 

http://www.taperingstrip.org/wp-content/uploads/2017/07/GMLT_bestel_GB.pdf

 

The first page:
 

Quote


Instruction for AGOMELATINE

 

Please ensure you have the correct prescription and order form in front of you. There are several different order forms for

Antidepressants (24), Anti-psychotics (23), Sedatives (19), Anti-epileptics (7), Hormones (1) & Analgetics (4).

 

PLEASE READ CAREFULLY BEFORE FILLING IN THE PRESCRIPTION AND ORDER FORM

 

1. A sudden termination of treatment with agomelatine or a sudden reduction in dosage can lead to significant withdrawal

symptoms. To avoid this, the daily dose should be reduced in small steps gradually over a period of time. This can be done

using tapering strips™.

 

2. One or more tapering strips™ can be used to gradually reduce the dose of agomelatine to a desired lower dose or to zero.

If more than one strip is needed the final dose of the previous strip is always equal to the starting dose of the following

strip.

 

3. The treating physician should plan the tapering schedule together with the patient. It is not possible to predict the perfect

schedule for each patient. Some patients are far more sensitive to withdrawal symptoms than others, and some patients

cope with symptoms better than others. The risk of withdrawal symptoms and their intensity can be reduced by choosing

a more gradual tapering schedule. There are two options when choosing a tapering schedule:

  • Variable - Choose a tapering schedule for the first 28 days only, then use the patient’s experiences and feedback to inform the remainder of the tapering trajectory. To do this only the black part of table 4 on page 4 has to be filled in. The experiences of the patient during the first weeks (withdrawal symptoms or not) can then be used to choose the tapering trajectories for the following strip(s) by filling in in the red part of the table 5 on page 5.
  • Fixed - Choose a tapering schedule for the entire period of the dosage reduction. To do this, fill in both the black and (if applicable) the red part of table 4 on page 4.

4. Agomelatine tapering strips™ are only available on prescription. The signed prescription and order form is seen as a valid

prescription. After filling in the form, the treating physician should terminate any current prescription for agomelatine at

the local pharmacy.

 

5. In most countries, the costs of the medication in the tapering strips™ are covered by health insurance. Tapering and sta-

bilisation strips contain medication for a fixed period of 28 days, all strips have the same price. Tapering strip™: € 77.-;

Stabilization strip € 38.50 for a period of 28 days; Prices are subject to change, so please check before ordering.

 

6. Once the prescription and order form has been received by the Regenboog Apotheek, the tapering strip™ will be shipped

to the patient’s home address within a week.

 

7. A tapering strip™ contains 28 numbered pouches, with each pouch containing several tablets. The number of pills may

vary per day. The total dose of the medication reduces over time as the patient takes the pills in each daily pouch.

 

8. The patient starts their tapering schedule on a Sunday by taking the pills in the first pouch, numbered 028. By counting

down, the patient finishes four weeks later on a Saturday, by taking the pills in the last pouch, numbered 001. By doing

this, the patient can easily keep track of how many doses and days are left.

 

9. Each pouch of the strip is printed with the sequence number, the colour and strength of each tablet, the total number of

tablets and the name of the pharmacy.

 

10. STABILIZATION: A stabilization strip can keep the patient on a fixed dose for a desired period of time. Such stabilization

may be necessary if tapering appears to be going too fast for the patient, or the patient does not wish to reduce the dose

to zero, but remain at an optimal lower dose. The stabilization strip can be produced at almost any desired dose rounded

off to 1 mg agomelatine.

 

11. In some cases, the patient is currently using a dose that is higher or different from the starting dose of the available

tapering strips (see table 4 on page 4). These patients can also reduce their dose gradually by using customized tapering

strips™ for the first part of the taper (see table 4 on page 4).

 

.....

 

 

Interesting that instructions for stabilization are included.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 3 months later...

Not sure if they have been discussed previously on here but may be helpfull for someone link below,

 

https://www.taperingstrip.org

 

Best regards 

Currently on - 25mg of Sertraline

Original dose - 50mg started Oct 2017

Dosege reduced  - March 2019

 

 

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  • Altostrata changed the title to Tapering strips for psychiatric drugs being produced in Netherlands
  • 3 months later...

Hello everyone,

 

Does anyone know anything about tapering strips or had any experience ordering them? 

https://www.taperingstrip.org/

 

Thank you.

Edited by manymoretodays
moved from introductions to tapering topic

2009 - September: Escitalopram 10mg and Mertazapine 30mg

2010 - January: Stopped Mertazapine with fast taper

2013 - February: Tapered from Escitalopram (during 6 months)

2013 - August: Relapse/severe panic symptoms

2013 - October: Back on Escitalopram

2014: - February: Mertazapine 30mg

2014: - Mertazapine abruptly stopped. Lithium started.

2014 - September: Overdose. All meds stopped. Escitalopram started again

2015 - November: Quetiapine started 100mg increased to 250mg. Pregablin started 150mg

2016: Tapered completely from Pregablin and reduced Quetiapine to 200mg. No symptoms. Only on Escitalopram and Quetiapine.

2019: - November: increase Quetiapine to 450mg. Introduce Pregablin 150mg

2020 - January/February - Tapered from 450 to 300mg Quetiapine

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  • Moderator
manymoretodays

Hi Devi, @Devi

We've got this topic that you might find helpful.  I haven't had experience ordering them or using them, so not helpful in that regard.  Perhaps, someone will have, though.

And welcome aboard.

L, P, H, and G,

mmt

Edited by manymoretodays

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016. 

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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On 3/1/2020 at 11:25 PM, Devi said:

Hello everyone,

 

Does anyone know anything about tapering strips or had any experience ordering them? 

https://www.taperingstrip.org/

 

Thank you.

My friend did. They are legit pharmacy in the Netherlands. Everything is good there.

AD: Seroxat since 2005 20 mg and tapering from March 2018 10% every 4 weeks.

15-11-2019 down to 5.5 mg 

28-12-2019 crashed really bad on 5.5mg 

01-01-2020 updose to 7mg

16-01-2020 Updose to 9 mg

 

Benzos: Bromazepam 1.5 mg daily since 2015

Quit CT Bromazepam 16-01-2020 No withdrawals 

Occasionally 1.5 mg extra

Last extra 1.5 mg 12-01-2020

 

 

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  • 7 months later...

For everyone reading this:try this pharmacie in the Netherlands. They can make every tapering strip you need. The smallest dosage ( Regenboogapotheek in Bavel the Netherlands)

 

https://www.taperingstrip.nl/

 

 

Edited by ChessieCat
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1999-2000 1 year Fluvoxamine/Luvox/ stopped CT no witdrawal symtoms maybe 2 days brainzaps

2008-2018 10 years Prozac  30 mg. Stopped bacause I was getting depressed again, went to Pdoc en got Welbutrin cut down 20 % of Prozac

after 2 month when felt litlle better cut rest of Prozac. withdrawel set in.

2018- jan 2019 took welbutrin 150 mg, did not work, tapered off with taperingstrips in 4 month.

2 month AD free then started Fuvloxamine again on july 5th 2019

2020 added Lamotrigine 150 because it did not work.

march 10 2020 CT lamotrigine

April 2020 stop fluvoxamine with a 4 month taper

AD free since 29 July 2020

 

 

 

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  • ChessieCat changed the title to Tapering strips
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merged similar topics

 

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 27 Mar 2021:  Pristiq 0.295 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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  • 4 weeks later...

Sourcing Sertraline tapering strips in the uk

 

Hi Folks,

 

Has any of the UK members had any luck getting their GP to authorise the purchase of tapering strips from the supplier in the netherlands, im currently waiting on mine making a decision but its not looking likely even though i have offered to pay. Is there any other way to obtain these if your doctor refuses?

 

Thanks in advance

 

Edited by ChessieCat
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Currently on - 25mg of Sertraline

Original dose - 50mg started Oct 2017

Dosege reduced  - March 2019

 

 

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Smokeandmirrors22
On 11/20/2020 at 7:15 PM, Gryffe74 said:

Sourcing Sertraline tapering strips in the uk

 

Hi Folks,

 

Has any of the UK members had any luck getting their GP to authorise the purchase of tapering strips from the supplier in the netherlands, im currently waiting on mine making a decision but its not looking likely even though i have offered to pay. Is there any other way to obtain these if your doctor refuses?

 

Thanks in advance

 

Hi!

 

I’ve  been wondering the same thing. It’s such a shame that the NHS is so slow in adopting new methods, they don’t even have an official taper guidance for the GPs.

Good luck with this and let us know the outcome! 

 

I haven’t spoken to my GP about this personally but I was going to ask about the citalopram oral drops first as they are already available in the UK. I’ve been thinking about this, another option is to go through a private psychiatrist and ask them to write the prescription for this. However an initial appointment is about £320 without private insurance. 


Oct 2018 - Mar 2019  citalopram 20 mg

Mar - 12th Apr 2019 - Failed attempt at tapering down. Skipped a lot of doses, alternating days of 10 mg and 20 mg.

12th April - 1st June - Nothing.

1st June 2019 - Reinstated 10 mg.

 

The WD symptoms that have bothered me the most have been physical: shivers, hot flashes, swollen lymph nodes, flu-like symptoms, fatigue, dry eyes and mouth, sore throat, sore tummy, unconscous jaw clenching, POTS (undiagnosed by a professional for now), brain fog, difficulty concentrating, sleeping too much, sleeping too little.

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Gryffe74

Hi,

 

Good news on the tapering strips, my doctor was ok with signing off the form and have now received the strips and am now well into my taper. The downside is I had to cover the cost for 2 x strips but I see it as worth it if it makes things more tolerable. I have had very little in the way of side effects using these strips as yet(now down to 5mg of sertraline) so fingers crossed things stay the same. My doctor actually had never heard of them and seemed genuinely interested in researching them. The benefit of the strips is they take the worry out of dosing as you taper down, I had previously tried the crushing tablets and making into liquid technique but found it labour intensive and also felt side effects coming on pretty quickly.

 

I will report back periodically to update anyone who's intrested on my progress.

 

Thanks  

Currently on - 25mg of Sertraline

Original dose - 50mg started Oct 2017

Dosege reduced  - March 2019

 

 

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ChessieCat

  

9 hours ago, DutchMaddy said:

@Altostrata  @ChessieCat @SebasI regret to inform you about the Dutch tapering clinic. It seems better than it is. They are going to do trials. So one half gets a placebo and the other half of the patients gets tapering strips. Our Dutch organisation for tapering in Holland is mad about it because we already know that tapering is necessary!  They rejected strongly to stop what they are planning to do and asked them  to “just” start helping them to taper. Because now one half of the people will do a CT with their AD with all the consequences from that 😪

 

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 27 Mar 2021:  Pristiq 0.295 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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