Jump to content
Altostrata

Researchers seek prolonged antidepressant withdrawal cases

Recommended Posts

Altostrata

An Italian researcher is collecting anecdotal case reports of prolonged antidepressant withdrawal syndrome for important research papers now in progress.

 

Please send your case report immediately -- instructions and an e-mail address are given below. Reports may be in English, French, Spanish, or Italian.

 

The research effort is led by Dr. Carlotta Belaise, a colleague of Dr. Giovanni A. Fava and frequent co-author with him of scientific papers challenging the long-term use of antidepressants.

 

Dr. Belaise is a research fellow in the Affective Disorders Program of the department of psychology at the University of Bologna in Italy. Her research team is collecting data on antidepressant withdrawal syndrome, "which we strongly believe is a very important, common and delicate clinical problem."

 

"A couple of manuscripts on this important issue are in progress."

 

They also have been gathering anecdotal reports from Web sites such as this one.

 

Please send your case report immediately in an e-mail (no attachments, please), in this format:

 

  • Your pseudonym (to use if your report is published)
  • The date of this report
  • Your current age
  • Gender (if female, menopausal?)
  • Psychiatric drug history
  • What dates and how did you taper off each medication?
  • Your symptoms in the earlier phase of withdrawal
  • Your current symptoms
  • Which symptoms have gotten better? Which have gotten worse? What treatments have been helpful?
  • Is there anything else you would like to say about withdrawal and withdrawal syndrome?

Your identity will remain confidential. Researchers may contact you through your e-mail address for clarification, if necessary, and possibly for longitudinal follow-up periodically to track your recovery. Your e-mail address will not be used for any other purpose. Your e-mail indicates your consent to be included pseudonymously in these papers.

 

Send your e-mail to this address:

 

withdrawal.cases-4.png

 

For some background information, see http://survivingantidepressants.org/index.php?/topic/531-send-your-withdrawal-case-report-to-researchers/ If you have questions, send them to me or post them below in this topic.

Share this post


Link to post
Share on other sites
Altostrata

E-mail your experience with prolonged antidepressant withdrawal to be included in major journal articles by respected medical researchers. For instructions and e-mail address, go to this page.

 

One way to change medicine is to collect case reports of prolonged antidepressant withdrawal syndrome and convincing doctors with the evidence opposing the received wisdom that withdrawal symptoms are mild and last only a few weeks. A team of researchers in Italy is doing just that.

 

Leading the researchers, Dr. Carlotta Belaise is a colleague of Dr. Giovanni A. Fava, long-time critic of the widespread long-term use of antidepressants. Among other papers, she co-authored The concept of recovery in major depression, which suggests that, with supportive psychotherapy, patients may be tapered off antidepressants after 3 months of drug treatment.

 

Dr. Belaise's research team at the University of Bologna in Italy has been gathering anecdotal material about prolonged withdrawal syndrome from various patient support Web sites.

 

Your case report, containing the information outlined here, will make their evidence stronger.

 

For credibility, it is important that reports be traceable. The researchers may contact you at the e-mail address you give for further information or to track your recovery over time. This longitudinal information will help answer the questions of how long recovery takes, what is the process of recovery, and whether anything can be done to hasten it.

 

Collating a pattern of symptoms is also central to devising methods of treatment.

 

According to e-mail from Dr. Belaise, "We are actually very interested in collecting data on withdrawal syndrome which we strongly believe is a very important, common and delicate clinical problem.

 

She is aware information about prolonged withdrawal syndrome is ignored, or as she put it "boycotted."

 

"...as clinicians, psychotherapists and clinical researchers, we have the duty to collect all the

material in order to protect our patients. We strongly believe it is time that whistleblowers' comments and reports [are integrated with] data from RCT's (randomized controlled trials) which are, in most of the cases, manipulated. A couple of manuscripts on this important issue are in progress."

 

One of the planned papers incorporates reports from patients contradicting psychiatry's assumptions about antidepressant withdrawal syndrome -- that cases lasting longer than a few weeks are inconsequentially rare. "A review of the literature on this issue is also planned, including an updated analysis of neurobiological mechanisms behind the syndrome."

 

Do this now. Follow these instructions and e-mail your own case report today.

 

Please post a pointer to the instructions at

http://tinyurl.com/3gevq6u
on any other sites or blogs you know of that touch upon the difficulties of antidepressant withdrawal.

Share this post


Link to post
Share on other sites
Altostrata

Coincidentally, the NY Times had an article on the Italian city of Bologna today:

 

http://travel.nytimes.com/2011/06/12/travel/36-hours-in-bologna.html?src=me&ref=general

 

"VIBRANT, independent and home to one of Europe’s oldest universities, Bologna is a dynamic counterpoint to more popular, touristy cities like Rome and Florence. About 50 miles north of Florence, the city is as famous for its cuisine as it is for its fiery left-leaning politics. Market stalls brimming with asparagus and fava beans, specialty shops selling cured meats, and osterias serving fresh pasta with the city’s signature ragù (known as Bolognese in the rest of the world) offer compelling reasons to linger. And then there are architectural masterpieces like the church of Santo Stefano and the iconic Due Torri (Two Towers)...."

 

Yum!

Share this post


Link to post
Share on other sites
compsports

Coincidentally, the NY Times had an article on the Italian city of Bologna today:

 

http://travel.nytimes.com/2011/06/12/travel/36-hours-in-bologna.html?src=me&ref=general

 

"VIBRANT, independent and home to one of Europe’s oldest universities, Bologna is a dynamic counterpoint to more popular, touristy cities like Rome and Florence. About 50 miles north of Florence, the city is as famous for its cuisine as it is for its fiery left-leaning politics. Market stalls brimming with asparagus and fava beans, specialty shops selling cured meats, and osterias serving fresh pasta with the city’s signature ragù (known as Bolognese in the rest of the world) offer compelling reasons to linger. And then there are architectural masterpieces like the church of Santo Stefano and the iconic Due Torri (Two Towers)...."

 

Yum!

 

Not to get off topic but wouldn't it be nice if we could have an SA meeting there?

 

Anyway, I will check out the link you posted.

 

CS

Share this post


Link to post
Share on other sites
cinephile

How wonderful this is! I'm so proud of you Alto. I just KNOW a large inspiration for this study was from you, even if it was indirectly. I just know it. This most be a very emotional time for you.

 

I'm going to print this out and pass it around to people at the convention tomorrow and Sunday.

Share this post


Link to post
Share on other sites
Altostrata

Thank you, cine. I'm sure many factors converged to make this happen.

 

As for myself, I've been working on this, corresponding with researchers including Dr. Fava, for 5 years. The cases I collected on another site, recently deleted, are a large part of those Dr. Belaise has now.

Share this post


Link to post
Share on other sites
Baxter

Alto - you are a hero. One of the last still working since I came into the online in 2007...Gianna Kali, Philip Dawdy. and others have moved away from the fray. Thank you so much for continuing the battle.

Share this post


Link to post
Share on other sites
Altostrata

I would love to go to Bologna some day.

Share this post


Link to post
Share on other sites
Claudius

I would defintately go if I feel a little bit better than today. To meet some SA fellows and see that beautiful city!

Share this post


Link to post
Share on other sites
cinephile

Alto - you are a hero. One of the last still working since I came into the online in 2007...Gianna Kali, Philip Dawdy. and others have moved away from the fray. Thank you so much for continuing the battle.

Thank you for saying this. I feel the same way. The thing about Alto is she's consistent AND persistent...even while in withdrawal hell! She has survived so much and done so much. And she's so bright and focused and well-balanced. Really, just an amazing spirit that won't -- CAN'T -- be broken.

 

Thanks again Alto. We all appreciate what you do. And you do it well.

Share this post


Link to post
Share on other sites
Altostrata

Well, I don't know what to say. :blush:

 

Thank you for the kind words.

 

At least some attention will be paid to all this suffering!

Share this post


Link to post
Share on other sites
mcsquared

I'm wondering if you can provide an outside link for this study so people can ask questions without having to join this community first.

I was hoping to spread word of this study to my network but limiting it to people on this community would give a very skewed sample.

Share this post


Link to post
Share on other sites
squirrel

My story was on the other site. Would I need to send it again?

Share this post


Link to post
Share on other sites
Altostrata

I'm wondering if you can provide an outside link for this study so people can ask questions without having to join this community first.

I was hoping to spread word of this study to my network but limiting it to people on this community would give a very skewed sample.

 

mc2, guests should be able to see the posting, no registration needed. They should be able to use the links as well.

 

Thank you for your suggestion. I've added a link. Guests may send questions to me.

 

What questions do you have?

 

My story was on the other site. Would I need to send it again?

Yes, please, it would be helpful to have the information in the format above.

Share this post


Link to post
Share on other sites
poodlebell

Hi

 

I have sent my w/d story today

 

thanks for this

 

poodlebell

Share this post


Link to post
Share on other sites
Altostrata

Well done, pb!

Share this post


Link to post
Share on other sites
Phil

Is this only for people who are already off ssris?

Share this post


Link to post
Share on other sites
Altostrata

Is this only for people who are already off ssris?

 

Prolonged withdrawal syndrome follows SSRI discontinuation.

 

Phil, if you mean people who are having great difficulty tapering off psychiatric drugs -- personally I think those stories are valuable, too. You might send yours in and perhaps it will inspire the researchers to follow another line of inquiry as well.

Share this post


Link to post
Share on other sites
Altostrata

Folks who are new here may not have noticed this.

 

If you have prolonged withdrawal syndrome, please send your case to the researchers.

Share this post


Link to post
Share on other sites
Altostrata

Bumping this topic to bring it to everyone's attention.

 

If you would like to post a pointer to this topic on other sites, the short URL is http://tinyurl.com/3zuaxo9

Share this post


Link to post
Share on other sites
jfrank17

Alto, I see this was posted a year ago. Do you know if they are still collecting stories?

Share this post


Link to post
Share on other sites
Altostrata

The last I heard, the paper was being reviewed.

 

I'll check to see if they still want cases.

Share this post


Link to post
Share on other sites
jfrank17

I would love to hear what their research has discovered.

Share this post


Link to post
Share on other sites
Altostrata
Guest
This topic is now closed to further replies.

×

Important Information

By using this site, you agree to our Terms of Use.