btdt Posted March 17, 2014 Share Posted March 17, 2014 Can be found here http://cepuk.org/ Welcome to the website of CEP, the Council for Evidence-based Psychiatry. CEP exists to communicate the evidence of the damaging effects of psychiatric drugs and treatments in the UK to the people and institutions that can make a difference. This evidence shows that psychiatric drugs, portrayed as useful and effective by many areas of the medical profession, can cause considerable harm to many patients, particularly when taken long term. Our members include psychiatrists, academics, withdrawal support charities and others who are deeply concerned about the prevalence of the ‘medical model’ and the increasing numbers of potentially damaging prescriptions being given to both adults and children. We believe that current practices would change if policymakers and medical practitioners became aware of both the latest research and of the extent of this harm. Starting with various Unrecognised Facts, we seek to provide three layers of evidence: the opinion of doctors, practitioners, and academics; the stories of those who have suffered harm as a consequence of their treatment; and lastly summaries of the latest research, where it exists.Furthermore CEP intends to identify gaps in existing research, with a view to supporting new research into under-reported areas of psychiatric harm, as well as alternatives to the medical model. The mission of CEP is therefore: To reduce psychiatric harm by communicating the latest evidence to policymakers and practitioners, by sharing the testimony of those who have been harmed, and by supporting research into areas where evidence is lacking WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
Moderator Emeritus Rhiannon Posted March 18, 2014 Moderator Emeritus Share Posted March 18, 2014 Well that's kind of encouraging. Nice! Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. Started multidrug taper in Feb 2010. Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea. Feb 15 2010: 300 mg Neurontin 200 Lamictal 10 Celexa 0.65 Xanax and 5 mg Ambien Feb 10 2014: 62 Lamictal 1.1 Celexa 0.135 Xanax 1.8 Valium Feb 10 2015: 50 Lamictal 0.875 Celexa 0.11 Xanax 1.5 Valium Feb 15 2016: 47.5 Lamictal 0.75 Celexa 0.0875 Xanax 1.42 Valium 2/12/20 12 0.045 0.007 1 May 2021 7 0.01 0.0037 1 Feb 2022 6 0!!! 0.00167 0.98 2.5 mg Ambien Oct 2022 4.5 mg Lamictal (off Celexa, off Xanax) 0.95 Valium Ambien, 1/4 to 1/2 of a 5 mg tablet I'm not a doctor. Any advice I give is just my civilian opinion. Link to comment Share on other sites More sharing options...
btdt Posted March 18, 2014 Author Share Posted March 18, 2014 Yes I liked it too it looks serious and I hope they force the changes needed. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
Moderator Emeritus mammaP Posted March 18, 2014 Moderator Emeritus Share Posted March 18, 2014 And we get a mention too I've shared it on fb and got some likes **I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge. Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem) 1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat 2002 effexor. Tapered March 2012 to March 2013, ending with 5 beads. Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013 Restarted taper Nov 2013 OFF EFFEXOR Feb 2015 Tapered atenolol and omeprazole Dec 2013 - May 2014 Tapering tramadol, Feb 2015 100mg , March 2015 50mg July 2017 30mg. May 15 2018 25mg Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33 Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible Link to comment Share on other sites More sharing options...
UnfoldingSky Posted March 20, 2014 Share Posted March 20, 2014 Excellent find bdtd, I've bookmarked it! I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Link to comment Share on other sites More sharing options...
alex Posted March 20, 2014 Share Posted March 20, 2014 Excellent site; I got Ballyssa's book RECOVERY and RENEWAL, a very inspiring and encouraging book. 4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.Tapered 150-0mgs in 3 months. Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.First 3 months off acute w/dProtracted w/d ever since.Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD 04/13/2014 Awful Relapse.Recovered fairly fast. 3 years and 4 months off. waves and windows.Very much recovered. November 2015,health issue.Setback. Link to comment Share on other sites More sharing options...
btdt Posted April 7, 2014 Author Share Posted April 7, 2014 They are doing a survey if you want to help...here is the link..maybe should have done a new thread...maybe somebody else will too lazy http://cepuk.org/2014/04/02/survey-cep-needs-contribution-bma-review-prescribed-drugs/ WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
Member cymbaltawithdrawal5600 Posted April 12, 2014 Member Share Posted April 12, 2014 Much harder to find solutions and change the status quo I think. Did you read the link? It is our stories of struggles that are under-reported. The research is already started. Getting the doctors out from under the one-sided views of the drug companies will be very hard indeed. They are the main resource for the docs and they appear to have a vested interest in profits, not health. Sites like this are helping but the docs usually dismiss them because they are internet based. Even my friends dismiss them as not valid. What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878 July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site. Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey. Link to comment Share on other sites More sharing options...
btdt Posted April 15, 2014 Author Share Posted April 15, 2014 Much harder to find solutions and change the status quo I think. Did you read the link? It is our stories of struggles that are under-reported. The research is already started. Getting the doctors out from under the one-sided views of the drug companies will be very hard indeed. They are the main resource for the docs and they appear to have a vested interest in profits, not health. Sites like this are helping but the docs usually dismiss them because they are internet based. Even my friends dismiss them as not valid. I suggest you read the ideas for changing the system in the back of Grace E Jackson's book Drug Induced Dementia the perfect crime she has given a lot of thought and seen this problem from the other side. Look her up. She dedicates this book to Jim Gottstein, Esq. founder of the Law Project for Psychiatric Rights tireless opponent of the Pharmacaust not sure what that last word means but I have copied it as it was printed... WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
Member cymbaltawithdrawal5600 Posted April 15, 2014 Member Share Posted April 15, 2014 Btdt, My comment was to show that for a lot of things in life it is the change that is harder and without seeing the need for change that prescribing drugs for things such as depression (because it seems they don't really work for many in the long run and are devastating when they are stopped) won't get much research. 'Pharmacaust', I think, is likening it to the horrors of the Holocaust. What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878 July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site. Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey. Link to comment Share on other sites More sharing options...
btdt Posted April 15, 2014 Author Share Posted April 15, 2014 Btdt, My comment was to show that for a lot of things in life it is the change that is harder and without seeing the need for change that prescribing drugs for things such as depression (because it seems they don't really work for many in the long run and are devastating when they are stopped) won't get much research. 'Pharmacaust', I think, is likening it to the horrors of the Holocaust. Yes I expect any system would be hard to change especially one so entrenched with the need to be trusted ... so many stories of doubt cast on these drugs already maybe it is just time and the change will come because too much is known now...we may be getting close it is hard to judge from where I sit with the little I know about how to change it... Grace E Jackson has already thought about this a lot by the looks of her suggestions in her book.. I so wish I was of sound mind just now I can't seem to read it .. and I wanted it for such a long long time... it is sad. As far as research she talks a lot about research in the book tho I have not read it from cover to cover and then read it again as I would normally do making notes... i have flipped thru the pages and she presents a ton of research autopsies on human brains ... mice studies ect tons of it.. getting it into my head in another thing... I am not doing this sort of thing well at the moment... it will have to wait till I can. There is the study where they are asking for input from people who have taken the drugs... righthere http://cepuk.org/2014/04/02/survey-cep-needs-contribution-bma-review-prescribed-drugs/ : that is a start.... Any time I see a research project I always say what my experience was just so I feel like I am doing something how much good will it do .. it has to be better than doing nothing... but I don't know what to expect ..I actually have no expectations at all that way I won't be disappointed. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
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