Jump to content
UnfoldingSky

The Medication-Induced Suicide Education Foundation in Memory of Stewart Dolin

Recommended Posts

UnfoldingSky

http://missd.co/#whatis

Akathisia: What to look for

Are you experiencing an increase in any of the following symptoms: anxiety, agitation, panic attacks, insomnia, irritability, hostility, aggressiveness, impulsivity, or physical/inner restlessness, which have in turn caused suicidal thoughts or feelings?

 

Perhaps a friend or loved-one, shortly after starting a new medication, has engaged in strange, unusual or violent behavior, or without warning has even taken his/her own life.

 

You or your loved-one may be suffering from akathisia.

 

More at above link...

 

Share this post


Link to post
Share on other sites
UnfoldingSky

Also please note, I didn't see this on the site and it's important if you or a loved one has this to be aware, some of the other psychiatric drugs besides SSRIs can cause akathisia, either while you take them or while you are withdrawing from them (or sometimes in both circumstances.)   Among them are antipsychotics and benzodiazepines. 

 

A good reference site for side effects of drugs is RXlist.

 

I had a severe form of akathisia and it is also gone now, so also be aware if someone tells you it is irreversible that that is not true.  I am not on any drugs to control it either, it has cleared up. 

Share this post


Link to post
Share on other sites
Altostrata

!!!!!

Share this post


Link to post
Share on other sites
Aria

I had no idea my utter horrible restlessness was drug induced akathisia and when I was up for days pacing I thought I'd go crazy with it. Every time I told my pdoc about it he'd tell me I was manic and increase my drugs. I was fortunate I had a consultation with a neurologist who told me I had the worst akathisia he'd seen in his 40 years as physician. He actually screamed at me, "These drugs are killing you, killing you" (Seroquel among others). I  didn't know what akathisia was.  Describing akathisia as restlessness doesn't adequately say what it is, more like a hellish internal hyperventilation I can't breathe scared OMG help me agitation having to keep moving feeling that could easily drive anyone to the brink. Try sitting still in a restaurant was a joke. We need to write the dam pharmacy inserts describing toxic drug effects'''

 

I'm off all of the psychiatric drugs and thank goodness the akathisia stopped. How wonderful to now sit quietly and read,  just sit.

Share this post


Link to post
Share on other sites
compsports

Several years ago, I became severely agiatated on 5mg of Celexa.  I was working at the time and spent alot of time outside in a nearby park trying to relieve the agiatation.   Amazingly, my boss never said anything.

 

My condition was so bad that the Remeron I normally took at night that was normally sedating was extremely activating.  I was so pissed at my psychiatrist for prescribing this drug that I called him at 11pm to complain. 

 

Anyway, he wanted me to ride out the storm but I decided it was better to switch back to Zoloft, which had been causing foot pain and unfortunately would do so again.   But at least, I was alive which in my opinion, I wouldn't been if I had stayed on this med.

Share this post


Link to post
Share on other sites
UnfoldingSky

 

 

We need to write the dam pharmacy inserts describing toxic drug effects'''

 

I couldn't agree more. 

 

And I know that the diagnosis of depression can apparently include restlessness (they might word it as agitation, I can't be bothered to look it up right now.)  I've read old antidepressants also cause akathisia...I would put every last dollar I have (which certainly isn't much) on the bet that the "restlessness" component of depression was really akathisia that they failed to identify and over time added to the diagnosis. 

 

I haven't met a single person labeled depressed, including those also labeled anxious, who had restlessness when not on drugs. 

Share this post


Link to post
Share on other sites
UnfoldingSky

 

Several years ago, I became severely agiatated on 5mg of Celexa.  I was working at the time and spent alot of time outside in a nearby park trying to relieve the agiatation.   Amazingly, my boss never said anything.

 

My condition was so bad that the Remeron I normally took at night that was normally sedating was extremely activating.  I was so pissed at my psychiatrist for prescribing this drug that I called him at 11pm to complain. 

 

Anyway, he wanted me to ride out the storm but I decided it was better to switch back to Zoloft, which had been causing foot pain and unfortunately would do so again.   But at least, I was alive which in my opinion, I wouldn't been if I had stayed on this med.

 

It makes me so angry reading about psychiatrists who tell people to wait out akathisia while on a drug.  What's the point of taking it if it causes such serious problems?  Ugh.

 

I wonder how many other people call that psychiatrist at off hours because of akathisia. I read for some drugs it's apparently a common effect!  I couldn't believe they were still on the market after reading that. 

 

Glad you managed to survive.   And you too Aria.

Share this post


Link to post
Share on other sites
UnfoldingSky

Also meant to say in my first post, RIP Stewart Dolin.

Share this post


Link to post
Share on other sites
Aria

Unfolding Sky,

Thank you for the link to Steward Dolin's website. It's tragic story but at least his wife is letting others know of the dangers. If this poor man on a small dose of antidepressants had this reaction than heaven help me on the drugs I was on and was told every time it was ME, never the prescribed drugs.

 

I'm amazed we are still alive with what we endured from toxic drugs. I'll say it again, what is the use of a monthly med check if the prescribing psychiatrist doesn't notice (or care) our behavior has changed as different drugs are given?

 

Share this post


Link to post
Share on other sites
btdt

I wish I had known this when I took prozac in 1989... the hell it would have saved me... I had no idea it was the drug...

All the months I had it and was seeing a shrink.. still he never told me a name for it... and all I could get him to agree to after a year or more of seeing him after ct when I would not take any more drugs was this...

When  person is put on the drugs they should be told there is a chance of mania and they should be told what the symptoms of mania are... at the time I thought what I had was some sort of mania... I still did not know... and I had lived thru so many different states by then... and had akathisia at least some of the times I was with him in his office... he never once dx it... 

All he ever said to me was he could give me a mood stabilizer... to which I said no thank you... 

Share this post


Link to post
Share on other sites
mammaP

"Severe agitative depression" was my label when I was so sick with akithisia I couldn't

even think about staying alive. And all the time it was caused by the drugs.  They said 

the drugs 'unmasked' my illness and that I had to get worse before I could get better  :angry: .

 

I never had that before drugs either. No-one does because it is caused only by drugs

and withdrawal from drugs.  It is admirable that Stewart's wife is raising awareness. 

Thank you for sharing this US. 

Share this post


Link to post
Share on other sites
compsports

 

Several years ago, I became severely agiatated on 5mg of Celexa.  I was working at the time and spent alot of time outside in a nearby park trying to relieve the agiatation.   Amazingly, my boss never said anything.

 

My condition was so bad that the Remeron I normally took at night that was normally sedating was extremely activating.  I was so pissed at my psychiatrist for prescribing this drug that I called him at 11pm to complain. 

 

Anyway, he wanted me to ride out the storm but I decided it was better to switch back to Zoloft, which had been causing foot pain and unfortunately would do so again.   But at least, I was alive which in my opinion, I wouldn't been if I had stayed on this med.

 

It makes me so angry reading about psychiatrists who tell people to wait out akathisia while on a drug.  What's the point of taking it if it causes such serious problems?  Ugh.

 

I wonder how many other people call that psychiatrist at off hours because of akathisia. I read for some drugs it's apparently a common effect!  I couldn't believe they were still on the market after reading that. 

 

Glad you managed to survive.   And you too Aria.

 

Thanks US.   I am glad we all survived too.

 

I wonder how many suicides occurred because of advice like what I was given.  I shudder to think of the ramnifications.

Share this post


Link to post
Share on other sites
compsports

Unfolding Sky,

Thank you for the link to Steward Dolin's website. It's tragic story but at least his wife is letting others know of the dangers. If this poor man on a small dose of antidepressants had this reaction than heaven help me on the drugs I was on and was told every time it was ME, never the prescribed drugs.

 

I'm amazed we are still alive with what we endured from toxic drugs. I'll say it again, what is the use of a monthly med check if the prescribing psychiatrist doesn't notice (or care) our behavior has changed as different drugs are given?

Probably so they can CYA.   Funny, my mother noticed I was deteriorating on the meds but my psychiatrist didn't.   And her advice was free but I stupidly blew it off.

 

I am sorry Aria for all the horrible experiences you had at the hands of psychiatry.   Words fail me regarding your situation.

Share this post


Link to post
Share on other sites
btdt

"Severe agitative depression" was my label when I was so sick with akithisia I couldn't

even think about staying alive. And all the time it was caused by the drugs.  They said 

the drugs 'unmasked' my illness and that I had to get worse before I could get better  :angry: .

 

I never had that before drugs either. No-one does because it is caused only by drugs

and withdrawal from drugs.  It is admirable that Stewart's wife is raising awareness. 

Thank you for sharing this US. 

"I never had that before drugs either. No-one does because it is caused only by drugs

and withdrawal from drugs."

100% agree!

Share this post


Link to post
Share on other sites
btdt

 

Unfolding Sky,

Thank you for the link to Steward Dolin's website. It's tragic story but at least his wife is letting others know of the dangers. If this poor man on a small dose of antidepressants had this reaction than heaven help me on the drugs I was on and was told every time it was ME, never the prescribed drugs.

 

I'm amazed we are still alive with what we endured from toxic drugs. I'll say it again, what is the use of a monthly med check if the prescribing psychiatrist doesn't notice (or care) our behavior has changed as different drugs are given?

Probably so they can CYA.   Funny, my mother noticed I was deteriorating on the meds but my psychiatrist didn't.   And her advice was free but I stupidly blew it off.

 

I am sorry Aria for all the horrible experiences you had at the hands of psychiatry.   Words fail me regarding your situation.

 

My boyfriends mother asked me what drugs I had been taking she actually asked me If I had taken street drugs I told her no just some anti inflammatroy for pain in my leg cause that is what I thought it was...

 

she had owned a rooming house in the 60's and rented to hippies but I was sure I did not take any drug like that and told her so .... she thought I had based on her experience i did not hear her and went to the hosp for help... stupid stupid stupid move on my part... if only there had been computers then to look up the name of the drug..

 

Could you imagine the state we would all be in if there were no computers... holly **** that idea terrifies me... eekk

Share this post


Link to post
Share on other sites
btdt

If not for computers and the internet I for one think I would be crazy or dead...

I have to give credit to God or hallucination but I think it was God as he or him in my dead mothers form told me to stop taking the drugs or lay in that bed and dye. 

yep I know there is God. for anyone else who doubts.

Share this post


Link to post
Share on other sites
WinningThrough

Unfoldingsky thank you so much for sharing this. It is helping to raise awareness. We really need to get the word out there. I have been exchanging emails with Jenna from that website. I'll let her know about the survivingantidepressants site. I think she will find it really helpful. When I'm through this horrendous akathisia, which I have to believe I will be (don't want to speak too soon but I think I'm feeling a slight improvemement) I intend to really do something to raise awareness and prevent others from going through this, also to raise awareness of protracted withdrawal syndrome and the other horrific side effects that can be experienced on these drugs. So much suffering could be prevented if people were warned of the dangers of these drugs.

 

I wonder how the big pharma drug pushers would like to be stuck in a 24/7 riverdance, be in a constant state of terror and be zapped through the head every few seconds?!! Oh, and be congnitively impaired too and no longer be able to engage in any hobbies? And no longer be able to work. Etc etc. I'm on a roll!

 

Mammap, I was told I had agitated depression too. I didn't believe it for one moment. I knew the drugs were driving me crazy. When I tried to explain to the psychiatrist that the drugs were doing it to me, he said I was 'losing touch with reality'. Hmmm.

 

I am so sorry you all had to go through this horrendous experience. It really helps me to know you all got through it. I dream of being able to sit without crazy inner sensations. They are easing, though, and I can sit now. I'm looking forward to writing a success story and to reading all of yours.

Share this post


Link to post
Share on other sites
UnfoldingSky

Unfolding Sky,

Thank you for the link to Steward Dolin's website. It's tragic story but at least his wife is letting others know of the dangers. If this poor man on a small dose of antidepressants had this reaction than heaven help me on the drugs I was on and was told every time it was ME, never the prescribed drugs.

 

I'm amazed we are still alive with what we endured from toxic drugs. I'll say it again, what is the use of a monthly med check if the prescribing psychiatrist doesn't notice (or care) our behavior has changed as different drugs are given?

 

No problem Aria. I am amazed too that so many of us have survived.  I've read your situation and can't fathom how they didn't get the drugs were the problem. 

 

I was in hospital, where I'd admitted myself for an AD reaction and you could see certain people get noticeably worse on drugs.  How they don't clue in about the revolving door aspect of their "care" I can't understand.  I know with me I first went in with "mild" drug reaction symptoms and by the end of my second stay I couldn't even remember my own past and had umpteen other new problems.  I was a completely different person by then.  Why didn't they notice?  I even told them later on the drugs were to blame and they still didn't seem to clue in.  

Share this post


Link to post
Share on other sites
UnfoldingSky

I wish I had known this when I took prozac in 1989... the hell it would have saved me... I had no idea it was the drug...

All the months I had it and was seeing a shrink.. still he never told me a name for it... and all I could get him to agree to after a year or more of seeing him after ct when I would not take any more drugs was this...

When  person is put on the drugs they should be told there is a chance of mania and they should be told what the symptoms of mania are... at the time I thought what I had was some sort of mania... I still did not know... and I had lived thru so many different states by then... and had akathisia at least some of the times I was with him in his office... he never once dx it... 

All he ever said to me was he could give me a mood stabilizer... to which I said no thank you... 

 

 

They aren't likely to tell you a name for it, as akathisia isn't usually a part of "mental illness" and is usually caused by drugs (and it isn't a part of pain, since that was why you were on drugs to begin with.)  It might be part of Parkinson's, but it has nothing to do with depression, bipolar, schizophrenia, and even anxiety (though certainly could be confused with it.)  So if they tell you you have it, they are asking to be sued (of course, that is, if they write it down.)  It's much safer for them then to blame you in some way, claim you have mania or anxiety or (in my case) an "agitated depression" so that you don't go running to a lawyer. 

 

 

Share this post


Link to post
Share on other sites
UnfoldingSky

"Severe agitative depression" was my label when I was so sick with akithisia I couldn't

even think about staying alive. And all the time it was caused by the drugs.  They said 

the drugs 'unmasked' my illness and that I had to get worse before I could get better  :angry: .

 

I never had that before drugs either. No-one does because it is caused only by drugs

and withdrawal from drugs.  It is admirable that Stewart's wife is raising awareness. 

Thank you for sharing this US. 

 

I am sorry to hear you had this too mammaP.  I was told the same thing, that it was an "agitated depression".  I swear that's the term they've come up with to cover up akathisia. 

Share this post


Link to post
Share on other sites
UnfoldingSky

 

Thanks US.   I am glad we all survived too.

 

I wonder how many suicides occurred because of advice like what I was given.  I shudder to think of the ramnifications.

 

 

I've read that something like half of suicides happen in the first two weeks after a person sees a psychiatrist.  Very alarming, as for sure a huge number of those are drug-induced. 

Share this post


Link to post
Share on other sites
UnfoldingSky

 

"I never had that before drugs either. No-one does because it is caused only by drugs

and withdrawal from drugs."

100% agree!

 

 

Mine was definitely from drugs too.

 

I think though that it really can be a part of Parkinson's and maybe encephalitis too.  And I think some street drugs cause it as well, I've read ecstasy does.  But yeah, overall it's usually from psych drugs.  Although probably if it is part of Parkinson's it's caused by a drug there too...I surely won't take them at face value on that point.

Share this post


Link to post
Share on other sites
UnfoldingSky

My boyfriends mother asked me what drugs I had been taking she actually asked me If I had taken street drugs I told her no just some anti inflammatroy for pain in my leg cause that is what I thought it was...

 

she had owned a rooming house in the 60's and rented to hippies but I was sure I did not take any drug like that and told her so .... she thought I had based on her experience i did not hear her and went to the hosp for help... stupid stupid stupid move on my part... if only there had been computers then to look up the name of the drug..

 

Could you imagine the state we would all be in if there were no computers... holly **** that idea terrifies me... eekk

 

 

I know what happens if you don't have a computer to look this stuff up, as that was what happened to my friend, he was made so sick by psychiatry before the net was popular...I mean for years and years.  Finally one day he decided to go to a library and look up what the drugs do.  You could just imagine his shock when he learned that the more than fifteen plus years of misery they'd put him through was all down to those drugs.  I remember having shocks like that myself--my hair turned partly white at a young age because of them.

 

And his situation was like yours btdt, started with a drug given for pain and he had no history of "mental illness" at all. It's how I know that the drugs out and out cause psych issues, all of his experiences (except the trauma from it) were down to drugs and they started right away after taking an AD off label.  It is amazing to me he survived and even managed a partial recovery. 

Share this post


Link to post
Share on other sites
Aria

Just the few members who posted here all had severe akathisia (seen as mania, worsening mental illness) and none of the prescribing physicians had a clue it was drug induced? I kept telling the pdoc I felt restless but he only prescribed more drugs. We've learned so much about psych drugs on our own, on this forum but unfortunately the psychiatrists haven't.

Share this post


Link to post
Share on other sites
WinningThrough

No, it's awful, aria. It's labelled as 'agitated depression'. Funny how none of us had agitated depression before we took the drugs. Maybe doctors worry that if they admit to akathisia, the patient might sue. Who knows.

 

I wish all psychiatrists would take a good look at this forum.

Share this post


Link to post
Share on other sites
WinningThrough

I never exactly got a diagnosis of akathisia but I got close. My original GP (who was the only one who seemed prepared to accept that there might be some correlation between my symptoms and the drugs) had mentioned the term when I said I was restless on citalopram. That was really early on after I started the drug. I can't remember but he may have described it as restless legs. Later down the line when I'd come off citalopram, I mentioned the term to the psychiatrist during my first appointment with him. He said I didn't have that and he demonstrated a sort of sideways leg motion which he said I'd be doing if I had that. Hmm. He also said he'd never seen citalopram do to anyone what I said it had done to me and said I had agitated depression. He also said I should have upped my dose. No surprise there, then.

 

The hospital psychiatrist described it as something different and said I didn't have it. She said I seemed to be doing well on the drugs (!!!!!!) and didn't seem to be having any reactions to them (so raging akathisia, loss of sensation in the bladder, numb arm, tremor and myoclonic jerks where not reactions then!) At that stage, I hadn't researched akathisia. I just remembered the term being used by my first GP. She also said it was all me, not the drugs.

 

When I got out of the hospital, something told me to research akathisia. That's when I realised that was exactly what I had been suffering from all that time. It was a big relief to finally know what was going on. I saw a different GP to tell him that's what I believed I had, he said I didn't have that because the movements would be involuntary. Akathisia does not cause involuntary movements.

 

I saw my original GP, told him all my symptoms and he said "ah, akathisia". I was so pleased that it was acknowledged. He did not seem to link it to the psychological issues though and didn't want me off my meds. I guess that's because I'd attempted suicide and it would be too risky. I was also pleased to see that he had put 'patient thinks she has akathisia' because at least the word is in my notes.

 

In my final appointment with my out of hospital psychiatrist, I said I'd been doing extensive research and realised I had akathisia because everything I'd read about servere akathisia exactly matched what I'd been going through. I said I'd also read up on agitated depression and it didn't match what I had been experiencing. It was then that he said that it was very difficult to distinguish between agitated depression and akathisia and the reason he'd prescribed seroquel (quetiapine) was because it could help with those kind of disorders. (It can also cause them.) So although he never admitted to it or gave it as a diagnosis, this indicated that he had actually suspected it. The time I mentioned it in that earlier appointment, he told me it was all me and told the hospital psychiatrist that I was losing touch with reality. Which I wasn't. I never lost touch with reality.

Share this post


Link to post
Share on other sites
btdt

 

My boyfriends mother asked me what drugs I had been taking she actually asked me If I had taken street drugs I told her no just some anti inflammatroy for pain in my leg cause that is what I thought it was...

 

she had owned a rooming house in the 60's and rented to hippies but I was sure I did not take any drug like that and told her so .... she thought I had based on her experience i did not hear her and went to the hosp for help... stupid stupid stupid move on my part... if only there had been computers then to look up the name of the drug..

 

Could you imagine the state we would all be in if there were no computers... holly **** that idea terrifies me... eekk

 

 

I know what happens if you don't have a computer to look this stuff up, as that was what happened to my friend, he was made so sick by psychiatry before the net was popular...I mean for years and years.  Finally one day he decided to go to a library and look up what the drugs do.  You could just imagine his shock when he learned that the more than fifteen plus years of misery they'd put him through was all down to those drugs.  I remember having shocks like that myself--my hair turned partly white at a young age because of them.

 

And his situation was like yours btdt, started with a drug given for pain and he had no history of "mental illness" at all. It's how I know that the drugs out and out cause psych issues, all of his experiences (except the trauma from it) were down to drugs and they started right away after taking an AD off label.  It is amazing to me he survived and even managed a partial recovery. 

 

Do you know how he got off did he go cold turkey? 

Share this post


Link to post
Share on other sites
btdt

 

Unfolding Sky,

Thank you for the link to Steward Dolin's website. It's tragic story but at least his wife is letting others know of the dangers. If this poor man on a small dose of antidepressants had this reaction than heaven help me on the drugs I was on and was told every time it was ME, never the prescribed drugs.

 

I'm amazed we are still alive with what we endured from toxic drugs. I'll say it again, what is the use of a monthly med check if the prescribing psychiatrist doesn't notice (or care) our behavior has changed as different drugs are given?

 

No problem Aria. I am amazed too that so many of us have survived.  I've read your situation and can't fathom how they didn't get the drugs were the problem. 

 

I was in hospital, where I'd admitted myself for an AD reaction and you could see certain people get noticeably worse on drugs.  How they don't clue in about the revolving door aspect of their "care" I can't understand.  I know with me I first went in with "mild" drug reaction symptoms and by the end of my second stay I couldn't even remember my own past and had umpteen other new problems.  I was a completely different person by then.  Why didn't they notice?  I even told them later on the drugs were to blame and they still didn't seem to clue in.  

 

I looked it up as I had missed the link

http://missd.co/

 

I will say it again Grace E Jackson talks about this in her book.. I can't get myself steady enough to read it but It is here and I pick it up and read a page or two in no order here and there... 

I will have to get it again at a later date as it is a inter library loan my time is running out... ask at your libraries maybe they have it or can get it. 

Share this post


Link to post
Share on other sites
UnfoldingSky

Unfoldingsky thank you so much for sharing this. It is helping to raise awareness. We really need to get the word out there. I have been exchanging emails with Jenna from that website. I'll let her know about the survivingantidepressants site. I think she will find it really helpful. When I'm through this horrendous akathisia, which I have to believe I will be (don't want to speak too soon but I think I'm feeling a slight improvemement) I intend to really do something to raise awareness and prevent others from going through this, also to raise awareness of protracted withdrawal syndrome and the other horrific side effects that can be experienced on these drugs. So much suffering could be prevented if people were warned of the dangers of these drugs.

 

I wonder how the big pharma drug pushers would like to be stuck in a 24/7 riverdance, be in a constant state of terror and be zapped through the head every few seconds?!! Oh, and be congnitively impaired too and no longer be able to engage in any hobbies? And no longer be able to work. Etc etc. I'm on a roll!

 

Mammap, I was told I had agitated depression too. I didn't believe it for one moment. I knew the drugs were driving me crazy. When I tried to explain to the psychiatrist that the drugs were doing it to me, he said I was 'losing touch with reality'. Hmmm.

 

I am so sorry you all had to go through this horrendous experience. It really helps me to know you all got through it. I dream of being able to sit without crazy inner sensations. They are easing, though, and I can sit now. I'm looking forward to writing a success story and to reading all of yours.

 

I hope your success story is not far away Winning.  Akathisia must be one of the worst things a person can ever experience.  It's ridiculous that they told you you were losing touch with reality...Though I am not surprised.  I put nothing past psychiatrists now. 

Share this post


Link to post
Share on other sites
UnfoldingSky

Just the few members who posted here all had severe akathisia (seen as mania, worsening mental illness) and none of the prescribing physicians had a clue it was drug induced? I kept telling the pdoc I felt restless but he only prescribed more drugs. We've learned so much about psych drugs on our own, on this forum but unfortunately the psychiatrists haven't.

In my case I had a diagnosis of a drug reaction before the akathisia got to be severe.  So I am convinced they knew what I had.  When it got bad and I described what was going on I remember the doc I was seeing then had a look on her face like she had seen a ghost.  I am sure she knew exactly what the cause was as she was the one that diagnosed the adverse reaction.

 

And a nurse in hospital I asked about it, wondering what they could do for it told me that if the akathisia was caused by a drug they removed the drug and if it was from withdrawal they would just put the person back  on the same drug.

 

So they had a protocol...so they know a lot more than they let on.

Share this post


Link to post
Share on other sites
UnfoldingSky

No, it's awful, aria. It's labelled as 'agitated depression'. Funny how none of us had agitated depression before we took the drugs. Maybe doctors worry that if they admit to akathisia, the patient might sue. Who knows.

 

 

 

I'm convinced that is why they won't admit to it. 

 

Though in some cases if you don't meet some ridiculously stringent diagnostic criteria they'll claim it's something else.  I was able to force myself to sit still while I was on a drug that partly masked it and because of this the doctor I was seeing used to claim I didn't have it. Mind you had I been totally unable to sit still I'll bet she'd still have claimed I didn't have it.  But with me being able to force myself to sit for that short period it gave her an out to blame me. 

Share this post


Link to post
Share on other sites
UnfoldingSky

I never exactly got a diagnosis of akathisia but I got close. My original GP (who was the only one who seemed prepared to accept that there might be some correlation between my symptoms and the drugs) had mentioned the term when I said I was restless on citalopram. That was really early on after I started the drug. I can't remember but he may have described it as restless legs. Later down the line when I'd come off citalopram, I mentioned the term to the psychiatrist during my first appointment with him. He said I didn't have that and he demonstrated a sort of sideways leg motion which he said I'd be doing if I had that. Hmm. He also said he'd never seen citalopram do to anyone what I said it had done to me and said I had agitated depression. He also said I should have upped my dose. No surprise there, then.

 

The hospital psychiatrist described it as something different and said I didn't have it. She said I seemed to be doing well on the drugs (!!!!!!) and didn't seem to be having any reactions to them (so raging akathisia, loss of sensation in the bladder, numb arm, tremor and myoclonic jerks where not reactions then!) At that stage, I hadn't researched akathisia. I just remembered the term being used by my first GP. She also said it was all me, not the drugs.

 

When I got out of the hospital, something told me to research akathisia. That's when I realised that was exactly what I had been suffering from all that time. It was a big relief to finally know what was going on. I saw a different GP to tell him that's what I believed I had, he said I didn't have that because the movements would be involuntary. Akathisia does not cause involuntary movements.

 

I saw my original GP, told him all my symptoms and he said "ah, akathisia". I was so pleased that it was acknowledged. He did not seem to link it to the psychological issues though and didn't want me off my meds. I guess that's because I'd attempted suicide and it would be too risky. I was also pleased to see that he had put 'patient thinks she has akathisia' because at least the word is in my notes.

 

In my final appointment with my out of hospital psychiatrist, I said I'd been doing extensive research and realised I had akathisia because everything I'd read about servere akathisia exactly matched what I'd been going through. I said I'd also read up on agitated depression and it didn't match what I had been experiencing. It was then that he said that it was very difficult to distinguish between agitated depression and akathisia and the reason he'd prescribed seroquel (quetiapine) was because it could help with those kind of disorders. (It can also cause them.) So although he never admitted to it or gave it as a diagnosis, this indicated that he had actually suspected it. The time I mentioned it in that earlier appointment, he told me it was all me and told the hospital psychiatrist that I was losing touch with reality. Which I wasn't. I never lost touch with reality.

 

When were you told Celexa doesn't cause it?  What year was that?

 

It's a listed effect so that's utter nonsense.  And they should know about it; I don't even think it's a rare effect.  Celexa (and Lexapro) are pretty activating drugs and I'll bet may even cause it more often than do some of the other SSRIs/SNRIs. 

 

And what were they thinking claiming things like myoclonic jerks was you doing well on a drug?   That's one fairly sound way to tell the drug is the problem!  And again, what was that GP thinking saying it's involuntary?  It has a volitional component. 

 

Tardive dyskinesia is involuntary (there's some thought they are related though I don't know that there's any proof that's true except that they both are caused by drugs.)  But akathisia has some element of volition.

 

And they should know better than to put someone on Seroquel if there is even so much as a very slim chance they have akathisia.  It's utterly critical that they assume it is akathisia, since Seroquel (and so many other drugs) can cause it...

 

I am amazed they even admitted you had it at all.  I had exactly one doctor say it to me and that was only when I didn't spoon feed the diagnosis to them.  I don't know if she wrote it down and later on she pretty much retracted everything she had said about me having drug-related issues. 

Share this post


Link to post
Share on other sites
UnfoldingSky

 

 

My boyfriends mother asked me what drugs I had been taking she actually asked me If I had taken street drugs I told her no just some anti inflammatroy for pain in my leg cause that is what I thought it was...

 

she had owned a rooming house in the 60's and rented to hippies but I was sure I did not take any drug like that and told her so .... she thought I had based on her experience i did not hear her and went to the hosp for help... stupid stupid stupid move on my part... if only there had been computers then to look up the name of the drug..

 

Could you imagine the state we would all be in if there were no computers... holly **** that idea terrifies me... eekk

 

 

I know what happens if you don't have a computer to look this stuff up, as that was what happened to my friend, he was made so sick by psychiatry before the net was popular...I mean for years and years.  Finally one day he decided to go to a library and look up what the drugs do.  You could just imagine his shock when he learned that the more than fifteen plus years of misery they'd put him through was all down to those drugs.  I remember having shocks like that myself--my hair turned partly white at a young age because of them.

 

And his situation was like yours btdt, started with a drug given for pain and he had no history of "mental illness" at all. It's how I know that the drugs out and out cause psych issues, all of his experiences (except the trauma from it) were down to drugs and they started right away after taking an AD off label.  It is amazing to me he survived and even managed a partial recovery. 

 

Do you know how he got off did he go cold turkey? 

 

 

From what I can recall he quit most of the drugs he was on cold turkey.  It was frankly amazing that he survived.  I recall him saying that even with withdrawals though he'd notice immediate improvements on stopping most of them.  The big exception was benzos, someone pulled him off one of them abruptly and that didn't go well.  Not that I would recommend anyone try cold turkey for any drug, but in his case he reacted to quite a few of the drugs he stopped abruptly so it may well have been the only thing he could do.  Then again back then there was no info for him to go to to find out about withdrawals, and doctors most certainly were not helping him try to get off the drugs; even though he was not violent they often forced him to take them.  It was utterly horrific.  

Share this post


Link to post
Share on other sites
WinningThrough

It was last year, unfoldingsky. I was on celexa aug-nov. It was then that he said he'd never seen people react like that to it. This is the same psychiatrist who said he'd never heard of anyone having problems with anti depressants. Yep, he really did. I told him I'd heard about lots of people who hadn't got on with him and got better when they came off them.

Share this post


Link to post
Share on other sites
WinningThrough

I mean sept to nov. I keep making typing errors!

Share this post


Link to post
Share on other sites
UnfoldingSky

It was last year, unfoldingsky. I was on celexa aug-nov. It was then that he said he'd never seen people react like that to it. This is the same psychiatrist who said he'd never heard of anyone having problems with anti depressants. Yep, he really did. I told him I'd heard about lots of people who hadn't got on with him and got better when they came off them.

 

I should have read your signature, forgive me, I was pretty spaced out when I wrote that.

 

Last year!  How in the world can he make claims like this???? 

 

Years ago now when I reacted to Celexa I went to an emergency ward and I was told they were seeing a lot of people with electrical shock sensations from the drug and that they expected there would be lawsuits.  Mind you that was by a nurse; later doctors I saw there were much less forthcoming about what the drugs do. 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×

Important Information

By using this site, you agree to our Terms of Use.