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ChessieCat

I'm posting this here on Kiki's behalf:

 

hi there, i know this may seem a bit random but does anyone know if there is a clinic which will diagnose dystonia. I am desperate for help, i think GPs have been behaving in a way as if for me to foget that I have it or for it to wear off. I feel desperate for help. I really do. My memory is so poor it is incredible. I am  in a desperate position. Please help, I cannot take this anymore.


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 12 Sept 2020:  Pristiq 0.625 mg (compounded)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Happycat

Hello :) :) :)

 

I am new to this website.

 

Is anybody on here from London? I would love to make some friends from London :)

 

Thanks

Hanako

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Nelly

Hello I would be interested in connecting with anyone in the north wales area


Approx 1984 to present date prescribed various ADs consistently. 1995 approx-present Thyroxine 100 mcgrms. 19 Feb2019 stopped venlafaxine 150mg cold turkey. 

06 March 2019 restarted venlafaxine 150mg 10 beads.

04 April 2019 9 beads. 02 May 2019 8 beads 01 July 2019 7 beads. 29 July started using magnesium oil spray before bed 31 July 2019 started natures best fish oil 1300mg 01 Aug 2019 stopped fish oil 1000mgs 06 Aug 2019 Magnesium citrate 100mg .18 Aug 2019 reduced to 6 beads .11 Aug 2019 increased fish oil to 2,600 mg. 8 Sept 2019 increased magnesium citrate 200mg. 22 Sept  2019 reduced magnesium citrate to 100mg. 24 Sept 2019 reduced venlafaxine to 5 & half beads. 25th Sept increased fish oil to 3900mg . 11 October reduced venlafaxine to 5 tablets 

14 October stopped fish oil. 16 October stopped magnesium & started taking lemon balm infused in water with ginger & lemon.

 

 

 

 

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joy2730

Hi, I am from Ripon/Northallerton area of North Yorkshire.

 

It would be good to hear of anyone from this area, one person has posted from Sunderland, I visit there now and then!


 

Back to 20 mg at some point

22/3/18 down to 19.8 mg and feeling well

31/3/18 down to 19.6 mg and feeling well

14/4/18 down to 19.4 mg

05/5/18 down to 19.2 mg and feeling well

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Bluebird2009

Northern Ireland


Prozac for 18years with break in 1999 for pregnancy. Started to feel unwell with numerous problems 2015 and think I was in a tolerance to drug. Started to come off May 2016 and by June 2016 wasn't able to tolerate any medications at all. Was on Lansoprazole as and when need from 2001 but haven't had to take and wldnt have been able to take since June 2016

 

GP gave sertraline 25mg 6/04/17 loss of appetite, gut pain and then following morning whole body shaking and vomiting. Stopped tablet.

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Lyssa

I'm quite near to London. It would be great to chat with anyone nearby :).


2001 (Age 12) - PROZAC 10mg for situational anxiety. Taken over a few weeks.

2005 - PROZAC 10mg. Taken over 7 months. Made me depressed and feel ill. Tapered off over 2 weeks on advice from doctor. 

April 2014- SERTRALINE 25mg. Had a severe adverse reaction within 12 hours. Only took 1 dose.

October 2014- MIRTAZAPINE 15mg

February 2015- Upped Mirtazapine to 30mg because I was feeling much worse than before I started taking it.

August 2015- Dropped Mirtazapine back to 15mg because 30mg was causing even more severe side effects.

October 2015- Mirtazapine 7.5mg. Desperate to get off and feeling awful.

December 2015- Drug free. 5 days after last Mirtazapine tablet hit by severe WD symptoms.

January 2016. Hospitalised because of WD symptoms. Given 2mg of Diazepam.

January 2016 - December 2016. 2mg DIAZEPAM taken as needed. Didn't really help much and never took more than 5 tablets in a month.

Still suffering from numerous symptoms.

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joy2730

Hi Marmite

 

I am interested in the Healey project.  Haven't got much time to type now, can you let me know what I need to do to participate.

 

Joy


 

Back to 20 mg at some point

22/3/18 down to 19.8 mg and feeling well

31/3/18 down to 19.6 mg and feeling well

14/4/18 down to 19.4 mg

05/5/18 down to 19.2 mg and feeling well

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Seriouslyscared

Live in Newcatle upon Tyne. I note that there's a person here from Sunderland. Any others in the area? Leaving Tyne and Wear is going to be difficult for the foreseeable future.


Dec 98; Paroxetine 20mg, quickly increased to 40mg for mild situational teenage depression which I didn't even go for.

Spring 99; Paroxetine reduced back to 20mg over four weeks after mild depression passes.

Autumn 99; Paroxetine reduced down to 14mg, slowly, as initial 10mg reduction was far too much.

Start of 2000; Paroxetine increased back up to 40mg after a 'relapse' and the most severe depression imaginable. No life.

Late 2012 to early 2013, Paroxetine reduced from a bit above 40mg (perhaps close to 50mg) back down to 40mg.

October 2015; tapered off Paroxetine by 5ml/10mg every 2 weeks after finally had enough of years of constant instability. I never did 'get better' as the doctors said to wait for. Never had remotely normal adult life, cared for full time at family home.

Start of August 2016; tried reinstituting Paroxetine at 1mg for 4 days, disaster; shopping list of physical symptoms develop.

Also taken Proton Pump Inhibitors on and off since early 2003, continuously since 2013 for severe upper GI issues

Took Cyclizine 50mg up to 3x daily since 2013 for crippling nausea from severe GI issues, stopped at start of August 2016.

Propranolol 10mg on occasion since May 2016 for extreme stress/racing heart, stopped at start of September 2016

Omega 3, Magnesium, Zinc, stopped Vitamins B complex, C, D3, multivitamin, probiotic, garlic, digestive enzymes

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Purplerain

Hi all, I'm on the London/Surrey borders x


2008 put on 75mg Effexor XR after breakup with long term boyfriend

2009 Dose increased to 150mg

2010 Dose increased to 300mg plus 25mg Quetiapine added to aid sleep and hypomania

2011 first attempt to withdraw. Taper much too fast on psychiatrist's advice (300-0mg in 1 month) suffer first and only psychotic episode. Put back on 75mg generic Effexor (no more Quetiapine)

2014 reduce dose to one quarter of a 37.5mg Effexor tablet during pregnancy. Suffer extreme social anxiety

2015 Daughter is born. Advised not to breastfeed due to med being present in breastmilk. Suffer PND and go back to taking 37.5mg tablet daily. Start to experience heavy fatigue each day after taking Effexor tablet.

14th June 2017 - start 10% taper reduction method. Reduced to 33.75mg

12.6.18 - 10mg 24.7.18 - 9mg 4.8.18 - 8mg 17.9.18 - 7mg 10.10.18 - 7.5mg (increase) 5.11.18 - 6.75mg 26.12.18 - 6mg

27th January 2019 - 5.5mg (current dose) Supplements: Magnesium citrate; Olive leaf extract; Fish oil capsules

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nz11

This is a gentle reminder urging all people of the motherland to please do the withdrawal survey. Everyone's voice is important but one more so than the UK citizens as it is you that they especially want to hear from. Please do the survey.


Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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nz11

Come on you UK guys lets get survey wise it closes off in two days and you are being beaten by the rest of the world 4:1 in survey response completions.

i know you can do better than this.

nz11

 


Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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peng

Done yesterday.


Born 1945. 

1999 - First Effexor/Venlafaxine

2016 Withdrawal research. Effexor.  13Jul - 212.5mg;  6Aug - 200.0mg;  24Aug - 187.5mg;  13Sep - 175.0mg;  3Oct - 162.5mg;  26Oct - 150mg 

2017  9Jan - 150.00mg;  23Mar - 137.50mg;  24Apr - 125.00mg;  31May - 112.50mg holding;  3Sep - 100.00mg;  20Sep - 93.75mg;  20Oct - 87.5mg;  12Nov - 81.25mg;  13 Dec - 75.00mg

2018  18Jan - 69.1mg; 16Feb - 62.5mg; 16March - 57.5mg (-8%); 22Apr - 56.3mg(-2%); CRASHED - Updose 29May - 62.5mg; Updose - 1Jul - 75.0mg. Updose - 2Aug - 87.5mg. Updose - 27Aug - 100.0mg. Updose - 11Oct 112.5mg. Updose - 6Nov 125.00mg

2019 Updoses 19 Jan - 150.0mg. 1April - 162.5mg. 24 April - Feeling better - doing tasks, getting outside.  7 May - usual depression questionnaire gives "probably no depression" result.

Supps/Vits  Omega 3;  Chelated Magnesium;  Prebiotics/Probiotics, Vit D3. 

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Scorpio
On 24/01/2015 at 9:57 PM, dekiru said:

I'm interested!

I'm in the south. Just outside Portsmouth

I'm just outside Portsmouth, waterlooville. . 


2006 After sudden death of mother put on 20mg of citaloprom for depression. 

2014 Drug stopped working after two weeks of panic attacks felt fine. 

Aug 2014. Doctor put me on lyrica for rash on face, diarrhoea, sleeplessness,muscle cramp, bruising. Initial dose too strong, halved dose.  Stopped taking it 22/10/14

2014 severe anxiety after several ssri's attempted, seem to have developed severe  sensitivity to any drug, but giving severe  reactions put on cipralex drop form.started on 2 drops and had to increase by 1 drop every 3 days. Eventually got to 12 drops and had to stop as side effects every step of the way dreadful. Psychiatrist kept telling me to stick with it and my body would get used to it.  Eventually down to 8 drops. Bad reactions throughout the time I was on it

Have been on this until may 2017. Stopped over two weeks. Felt fine for 5 weeks after initial dizziness, nightmares, nausea, insomnia.  

Given diazepam by gp and told to take them when anxiety bad. Have only taken them very rarely as they frighten me. 

Last two weeks severe anxiety returned and feeling hopeless 

11July 2017. Cipralex 2mg. Anxiety, nausea still severe

13 July 2017 Cipralex 1mg due to advice of too high dosage  by kind person on thus site. so dropped from 2mg to 1mg and feelings of anxiety still at severe. As well as nausea, headaches, fatigue. 

15 July still feeling extremely anxious verging on panic. Nausea, feelings of fainting, fatigue. Lots of head pains 

3 August. Three weeks into trying to stabilise on one drop of cipralex. Still have waking from 4am. Sporadic upset stomach. Nausea.  High anxiety.  Throbbing/burning in nether regions seems to have eased for time being but stabbing/burning in calves of legs. Tinnitus. Occasional half to whole better days but mainly still struggling. Fatigue   

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Peculiar

Hi Im new here and from UK . South East , Kent.:)


 

Started on this merry-go-round of antidepressants in 1995 after getting a diagnosis of Post Natal Depression : Been on Prozac, Effexor, Lexapro, Celexa, Sertraline, Mirtazapine, Mostly fast taper except Sertraline CT'd.

Recent history: Prozac 20mgs then upped to 40mgs  Nov 2014- Mid August 2017  Taper : 20mgs daily for 14 days : 20mgs every other day for 14 days  20mgs every third day for 9 days- Jumped off  on 25th Setember 2017. Mirtazapine 30mgs for 1day ( 18th Sep 2017) Mirtazapine 15mgs (19th Sept - 18th Oct 2017)Mirtazapine 30 mgs   (19th Oct - 4th Nov 2017)   Cold Turkey.  Reinstated Prozac 20mgs 5th November 2017. Reinstated Mirtazapine 2mls  10th November 2017.

Prozac 10mgs from 21 January 2018. Zero Mirtazapine 31 December 2017

All other drugs:  Following a sudden onset of Autoimmune Arthritis : Prednisone 30mgs daily, March 2014- Sept 2014- slow taper. Methotrexte 15 mgs weekly May 2014- Sept 2107. swapped for Sulfasazaline 1000mgs daily Oct 2017 continuing. Folic Acid 5mgs weekly May 2014. until 2 Feb 2018 

Current drugs. 1500mgs Sulfasazaline 2 feb 2018.  Fish Oil 600mgs daily. Magnesium 250mg daily. Prozac 10mgs daily  

  April 2018.. 1000 mgs Sulfasazaline, Prozac 9 mgs, Magnesium 250 mgs 

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Staz

Hi From Bristol.


Dosulepin 75mg 1996 - 1997 tapered off no problem - Prozac sporadic use between 1995 and 2011 usually 9 months then off.

Mirtazapine 2015 tapered off after 4 months no problem -Prozac 20mg 2012-2015 tapered off no problems

Prozac 20mg April 2016-May 2016 stopped ct after 4 weeks due to adverse reaction I believe to be serotnin toxicity due to mirtazapine interaction

Escitlopram 10 mg May 2016 - cut to 5mg May 2016  stopped ct November 2016 no W/d's noted

Lyrica 300mg May 2016 - July 2017 - Taper from Jan to Jul 17 awful taper.

Lofepramine 150mg  November 2016 - January 2017 Swift w/d as it didn't work

Quetiapine 75mg November 2016 changed to 150 XL May2017 changed to 150mg IR July 2017 reduced to in 25mg steps from July to 50mg Oct 17. 37.5mg 12th Nov 17 - 35mg 20 Nov 17 - 30mg 22 Nov 17 - 25mg 24 Nov 17 dropped to 20mg Dec 17, 15mg Jan 18. Current taken at bedtime.

Quetiapine dropped Jan 17th 2018.

Dosulepin 75mg May 2017 - increased in 25mg steps to 175mg Oct 17 Reduced to 150mg Nov 17 current taken at bedtime

Diazepam 15mg May 2016 - c/t'd by shrink after 6 weeks. Reinstated at 12mg after 4 weeks June 16 - current 4mg 3 times a day morning, 2.30pm and bedtime.

Mirtazapine 15mg since March 2015 - current - pooped out within 4 weeks

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Altostrata
On 9/28/2018 at 5:51 AM, Caspur said:

Hi ButterflyHope,

If you are in the UK, then yes it should be possible for you to get a liquid form of citilopram via your GP. The problem I've seen from others reporting is the cost. Some GPs will have one eye on their budgets. The liquid preps are expensive at £100-120 a 150ml bottle. My GP prescribed liquid venlafaxine for me with me even prompting him! That said, if there's any objections just make it clear that the NHS got you onto this drug so it has a moral obligation to help you get off it, whatever the cost!

The British National Formulary shows it is available as oral drops 40mg per ml of liquid; see link here.

https://bnf.nice.org.uk/medicinal-forms/citalopram.html

I'm sure it would be possible for the NHS to get it made up at a lower concentration which is probably what you need.

Good luck with your taper.

Caspur

 


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Caspur

Hi all GB members,

Please can subscribers to this forum sign up to the email updates from the http://prescribeddrug.org/ site? There were only 222 people subscribed but some social media activity has pushed it up to 265+.. There are many thousands of people on this forum who will benefit from the work this organisation are doing. I do appreciate many people have their own struggles, but I'm sure the results of their work will have an impact outside the UK in the medium to long term. Lets show them there's a lot of interest in what they are doing 🙌

Many thanks

Caspur


2011 - started Venlafaxine (again) at 75mg Raised to 150 mg at some point - unsure of dates. Reduced back down to 75 mg. Doctor advised this would be a lifetime, maintenance dose

2017 - Side effects now intolerable. started taper from June 15th - 5% dose reduction steps (two 12 hourly doses).

2017 - October 20th - took last does of Venlafaxine - 4 mg. Debilitating symptoms followed.

2017/18 - diazepam - 8mg/day for 1 month - 7 week taper Feb 2018

2017/18 - duloxetine - max 90mg - now stopped

2018 - Feb 25mg quetiapine, increased to 50mg.

2018 - March/April - increased venlafaxine slowly (10mg steps) to 75 mg/day. Recovery from withdrawal followed.

2018 - July 13 - stopped quetiapine after 2 month taper. Late July - had to reinstate quetiapine due to intolerable withdrawal. Now tapering from 25mg

2019 - June - stopped quetiapine after 10 month taper. Mild insomnia only symptom.

2020 - sept  - venlafaxine 17.1 mg.

 

Taper history details

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Phoenix76

Hi, I'm in colchester, north Essex, and was wondering if anyone wanted to meet up for a coffee and a chat? I struggled to get clean of anti-depressants after taking Paxil for ten years. Coming off that drug the first time was one of the most awful experiences of my life (don't get me started on GPs). I finally got clean in 2012. Then I went back on them for a few months two years ago, but thankfully stopped. Now I'm struggling to help my mother get off Prozac. Ugghh, it never ends.

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India

Hello Members,

 

Who would be interested in collaborating in starting a London Support Group for SSRI withdrawal?

Has anyone tried to do this before?

Ideas welcome.  I feel it might be more doable as a collective effort.


1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     

2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante

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ChessieCat

FYI

 

On 12/30/2018 at 3:42 AM, eymen23 said:

Thankfully it looks like I may have solved my minor scale drama. I decided that if I could order a decent scale for next day delivery on amazon.co.uk (even if it wasn’t the Gemini-20), I’d go for it. 

 

Anyways, after doing a more in-depth search for over an hour, I found and ordered the Gemini-20 scale and I’ll have it tomorrow!

 

For anybody reading this from the U.K. who wants the scales often recommended here on SA and quickly, search in amazon.co.uk for ‘AWS American Weigh Scales’ and select the milligram option when the search results appear. 

 


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 12 Sept 2020:  Pristiq 0.625 mg (compounded)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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ChessieCat
7 hours ago, Orangeblossom77 said:

For those in the UK- you can get free prescriptions via an NHS card (now a letter) if you are on a low

income and claiming certain benefits. My GP also gives two months supply of meds, this may be helpful 

as you only have to pay one prescription charge, I understand. Then I suppose if you are taking small amounts

of the meds you could buy fillable capsules from Amazon and make more doses as well. I am unsure about 

private prescription charges however.

 

More info here on the NHS free health costs https://www.nhs.uk/using-the-nhs/help-with-health-costs/get-help-with-prescription-costs/

 


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 12 Sept 2020:  Pristiq 0.625 mg (compounded)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Orangeblossom77

Hi, I'm new in Bath, SW.


Fluoxetine 20mg a day, (mornings) Amitryptilline 10-50mg (evenings) for last two years (usually lowest dose of the latter) Previously on and off Fluoxetine since 1999. Off completely for pregnancies in 200s with no problems but recently more difficult to withdraw.End 2018 Tapered to 10mg Fluoxetine (am) and 10mg Amitryptilline (evening)Co-codomol 30/500 prescribed (one to two tabs 6 hrly as required for pain)

 

Start Jan 2019 5mg Fluoxetine mornings. Stopped amitryptilline.

6th Feb 2019 Stopped Fluoxetine, 2 X 425mg St Johns Wort daily. 

9th Feb 2019 Reinstated 5mg Prozac, stopped SJW due to headaches and upset tummy.

10th Feb 2019 Started using liquid diluted Prozac and syringe, dividing doses (2 X 2.5ml) = 5mg daily

12th Feb 2019 Stopped prozac after even small doses seem to be causing a bad reaction.

17th Feb 2019 Started taking single dose 425mg SJW mornings 

 

Also taking supplements: Multivitamin, Longvida Curcumin 500mg a day, Magnesium Citrate 500mg/day, Magnesium L-threonate 50mg/day, Omega 3 (with Vit E) 1000mg/day, Vitamin D3 20000IU

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Kronos18

Hi.I’m in UK, London.


Lorazepam -2 weeks-1 week 3 mg.4 days 2mg, 3 days 1mg. 13-27 November 2018

Lexapro -2 months-6 weeks of 10mg, 2 weeks of 5mg 27 November 2018-27 January 2019

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ChasingRainbows

Another from London here. SW to be precise. Would love to join a support group to meet others on a similar journey. 


20 mg citalopram hydrobromide stopped on Friday 25th January 2019 💊

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ChessieCat
6 hours ago, ChasingRainbows said:

Would love to join a support group to meet others on a similar journey. 

 

peer-support-meet-up-groups

 


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 12 Sept 2020:  Pristiq 0.625 mg (compounded)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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ChasingRainbows

Anyone from London, UK? 


20 mg citalopram hydrobromide stopped on Friday 25th January 2019 💊

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LivR

Hi, 

 

I live in Hertfordshire! It would be wonderful if people in this group could complete my survey on antidepressants and withdrawal. It's for a masters journalism project, which is looking at the difficulties people face when they come off antidepressants and the alternative treatments available to them, i.e. talking therapies, cognitive hypnotherapy etc. All results are anonymous and much appreciated!

 

Thanks very much

 

uk-survey-for-those-that-have-taken-antidepressants-in-the-uk

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sunnysideup69
On 11/1/2018 at 7:26 PM, India said:

Hello Members,

 

Who would be interested in collaborating in starting a London Support Group for SSRI withdrawal?

Has anyone tried to do this before?

Ideas welcome.  I feel it might be more doable as a collective effort.

 

Hello there India, wondering if this got started at all. If so, would be interested,

Best regards.


January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

 

 

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India
On 5/10/2019 at 9:03 AM, LivR said:

Hi, 

 

I live in Hertfordshire! It would be wonderful if people in this group could complete my survey on antidepressants and withdrawal. It's for a masters journalism project, which is looking at the difficulties people face when they come off antidepressants and the alternative treatments available to them, i.e. talking therapies, cognitive hypnotherapy etc. All results are anonymous and much appreciated!

 

Thanks very much

 

uk-survey-for-those-that-have-taken-antidepressants-in-the-uk

I will 

@sunnysideup69 We could start it informally. Like a meet-up in a coffee shop once a month.  I’ve been quite unwell with a mix of health issues so this month is out . I called up MIND today.. asked about any support groups or chance of a future group . Reply : contact your gp or pharmacist!! The usual. I feel we need someone strong to run it. It’s incredibly difficult when you are fragile to think of trying to get it together.


1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     

2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante

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sunnysideup69

@India that's a good idea.....I am really up for meeting up informally.


January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

 

 

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Altostrata

UK members -- Emergency! We need testimonials from UK people who have experienced antidepressant withdrawal syndrome.

 

I need this immediately, to communicate to Royal College of Psychiatrists, who are revising their clinician guidelines for next week.

 

It would be best if you had been taking only one antidepressant, no complicated polypharmacy, for a relatively straightforward case history.

 

Please write up 2-3 paragraphs summarizing your drug history, how you tapered, and withdrawal symptoms. You may use a pseudonym, but include your e-mail, as RCPsych may wish to contact you for more information to write up your case.

 

Please send it to me in a pm. If you do this, please be aware you are giving your permission, for publication by the RCPsych, with your identity masked,.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Altostrata

The UK advocates have enough stories for now, thank you to all who responded.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Harriet8

Hi, I live in Brighton (although currently staying with parents in Luxembourg because unable to care for myself due to condition).  Housebound, so v tricky to meet up.  But really glad to post here.  Hoping, hoping, hoping there's a way through.  Things so uncertain just now, could find myself based in London for a while, or back at home in Brighton; or in Luxembourg..... 

 

Anybody here have any experience of psychiatrists who are understanding, informed about this stuff?  I am pursuing possible appointment with a Dr Benito (recommendation from this website).  She's in London.  I think she helped someone on here with a taper.  I have complex array of symptoms, have taken many many meds, and currently on 4 and not stable.  So am deeply afraid of being deemed "beyond help" and receiving that message again, and suggesting a see a neurologist or....  


1997   1st psychiatric appt: began medications (no record);   2002   Efexor XL, Xanax, Risperdal, Stilnoct; 2003  Efexor, Xanax, Stilnoct, Serlain;   2004   many medications (no record), but including Lithium, Diazepam, Lorazepam;   2005  Clomipramine; Imipramine; (8 sessions of Electroconvulsive Therapy, ECT);   Sept 2005 Citalopram, Quetiapine 800mg, L-Tryptophan;   2006 - 2009 Reduced L-Tryptophan and Quetiapine, finished Quetiapine Nov 2009;  Jan 2010  Began reducing Citalopram   >>>STARTED NOTICING SOMATIC SYMPTOMS (described above)>>>   2012   Citalopram, Diazepam, Zolpidem, Promethazine, Risperidone, Mirtazepine, Trazadone, Buspirone, L-Tryptophan, Chlorpromazine, Alprazolam   Sept 2012medications changed to Citalopram, Quetiapine, Diazepam, L-Tryptophan;   2015 - 2017: reduced meds until just Citalopram 60mg;   2017  1 May   Citalopram, 50mg   25 May Citalopram, 40mg   Dec 2017 - Apr 2018: Citalopram, 35mg > 30 mg >   25 mg > 20mg;   2018   1 May Citalopram 30mg,   21 May 35mg   Jun Diazepam, 2mg, increased to 6mg (3 x 2mg to assist eating)   Aug Zolpidem for 10 days   Sept Zopiclone 3.75mg;   (Nov: inpatient admission):  Dec Pregabalin 100mg added, Diazepam increased to 8mg, Citalopram increased to 40mg;   2019  Jan Citalopram 40mg, Diazepam 8mg, Pregabalin 100mg, Zopiclone 3.75mg (now reducing Zopiclone: 2.81mg on 2 May, 1.88mg on 16 May)

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Purplerain
On 5/14/2019 at 4:40 PM, Ruthmcg said:

@India that's a good idea.....I am really up for meeting up informally.

 

Count me in as well! x


2008 put on 75mg Effexor XR after breakup with long term boyfriend

2009 Dose increased to 150mg

2010 Dose increased to 300mg plus 25mg Quetiapine added to aid sleep and hypomania

2011 first attempt to withdraw. Taper much too fast on psychiatrist's advice (300-0mg in 1 month) suffer first and only psychotic episode. Put back on 75mg generic Effexor (no more Quetiapine)

2014 reduce dose to one quarter of a 37.5mg Effexor tablet during pregnancy. Suffer extreme social anxiety

2015 Daughter is born. Advised not to breastfeed due to med being present in breastmilk. Suffer PND and go back to taking 37.5mg tablet daily. Start to experience heavy fatigue each day after taking Effexor tablet.

14th June 2017 - start 10% taper reduction method. Reduced to 33.75mg

12.6.18 - 10mg 24.7.18 - 9mg 4.8.18 - 8mg 17.9.18 - 7mg 10.10.18 - 7.5mg (increase) 5.11.18 - 6.75mg 26.12.18 - 6mg

27th January 2019 - 5.5mg (current dose) Supplements: Magnesium citrate; Olive leaf extract; Fish oil capsules

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ChasingRainbows

@IndiaI would love to meet up also. I can give all interested parties my Whatsapp/Viber and we can come to mutual time and date. 


20 mg citalopram hydrobromide stopped on Friday 25th January 2019 💊

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Prince1924

Hi,

 

I live in Edinburgh, bonny Scotland.

 

Just wondering if any SA members are meeting up here? 

 

 


From 2000 onwards - Prozac 20mg daily.. Numerous attempts to come off have been disastrous - extreme anxiety,  depression.

(2005 - 2007 Tried Citalopram, 20mg. But switched back to Prozac.)

2007 - 20016 Prozac, 20mg.

Feb 2016 - Feb 2017 Have reduced gradually from 20mg to13mg.

Feb 2017 -  Jan 2018,  have reduced gradually from 13mg to 12mg.

This is going very slowly  because I reduced too quickly and had to go back up. 

Been a long journey but already I feel much more like me. Less brain fog...

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