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Peer support / meet-up groups?


areyouthere

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Who would be interested in a London support group?

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     

2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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  • 3 months later...

Anyone in Portland, OR?

 

SE Portland is where my son is, and hanging on by a thread!  He could really use someone to talk to!!

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  • Moderator

@MissDee

 

I suggest that you tell your son about SA and encourage him to join as a member so that we can provide him with information and support.

 

Edited by ChessieCat

NEW!!!              INTERVIEW with Altostrata, SA's founder               NEW!!! 

 

ADs:  25 years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015  Current from 14 Nov 2020:  Pristiq 0.50 mg

My tapering program                                      My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

REMINDER TO SELF:  I don't need the drug now, but my still brain does.

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  • 2 weeks later...
On 12/5/2015 at 11:11 PM, oskcajga said:

ou NEVER hear a drug addict complaining about symptoms 2 years after stopping - never.  Ever.  They're talking about how to handle their emotions, keep their jobs, handle family etc, but I never heard anyone talk about the long term disabling symptoms of long term hardcore drug abuse (and yes, many many people were hardcore drug addicts and have fully recovered within a 3-9 month period).

This is so true. It is hard to not feel bitter about the time it steals from us.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     

2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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noearthlyfamily

Topic title:  Any experience with NA as a support group for taperers?

 

does anyone have experience with NA (Narcotics Anonymous) as a suport group for those of us tapering and preparing to taper off of other psychiatric drugs?

 

from my experience with AA years ago, i know the 12 steps and i know about sponsors and the like... however i've never been in NA and duno if they are receptive to people on prescription drugs or if there's a difference to them what kind or why we are on them...and do they care if the goal is to be off the drugs eventually for good vs staying in the program post taper and stabilization...i mean do they only allow addicts per se or those people who WANT to keep taking drugs or do they allow people who are trying to get off the drugs and need a support group for the process of however many years it takes? 

 

also does  anyone know if you can be in NA if you don't have a higher power/god/God/etc? can you be in their support group without a belief in a deity?

 

there's a group close to my home, but i'm scared of judgement or rejection because of my tapering and my lack of a religion or belief in any deity. 

 

thanks yall

 

Edited by ChessieCat
added topic title

UPDATED: 9/01/2019

Quetiapine:  2000-2005: 50mg;  2005: 100mg;   2008: 400mg;   2011: 100mg;   2014: 300mg;   2014-2017: 400mg;  7/2018-2/2019: 75mg;  1/2019: 68.75mg;  4/2019: completed switch to 3x daily dosing (25mg 8AM, 18.75mg 4PM, 25mg MIDNITE);  5/2019: 68.75mg (switched to all liquid taper using HUMCO suspension agent)  8/2019: 61mg       

Clonazepam:  2008: 2mg then 0.25mg;   2012: 0.5mg;   2014: 1mg;   4/2019: 1mg ~completed switch to 3x daily dosing (0.25mg 8AM, 0.25mg 2PM, 0.5mg 8PM);   8/2019: 1mg (switched to all liquid taper using propylene glycol as solvent)    

Gabapentin:   2011: 100mg;   2011: 200mg TID    2014: 300mg;  2017: 600mg;   2019: 900mg PM;   3/2019: completed switch to 3x daily dosing (300mg q8h)

Prior drugs: Please see this link:    (the remaining dates & meds records will be updated as i receive my complete medical files.)

Suppl's: Deva Vegan Multi & Mineral Supplement w/Greens 1x, Magnesium Lysinate Glycinate Chelate 100mg 4x, vit c 1000mg  2x, zinc gluconate 50mg 1x q.o.d., Allicin Max 180mg TID,  chlorella/spirulina 50/50 blend 2tabs 5x daily

HRT:  300mg oral progesterone h.s., 0.1mg estradiol transdermal patch 2x week

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  • ChessieCat changed the title to Any experience with NA as a support group for taperers?
3 hours ago, noearthlyfamily said:

Topic title:  Any experience with NA as a support group for taperers?

 

does anyone have experience with NA (Narcotics Anonymous) as a suport group for those of us tapering and preparing to taper off of other psychiatric drugs?

 

from my experience with AA years ago, i know the 12 steps and i know about sponsors and the like... however i've never been in NA and duno if they are receptive to people on prescription drugs or if there's a difference to them what kind or why we are on them...and do they care if the goal is to be off the drugs eventually for good vs staying in the program post taper and stabilization...i mean do they only allow addicts per se or those people who WANT to keep taking drugs or do they allow people who are trying to get off the drugs and need a support group for the process of however many years it takes? 

 

also does  anyone know if you can be in NA if you don't have a higher power/god/God/etc? can you be in their support group without a belief in a deity?

 

there's a group close to my home, but i'm scared of judgement or rejection because of my tapering and my lack of a religion or belief in any deity. 

 

thanks yall

 

@noearthlyfamily

Who can be a member?

If an addict wants to be a member of Narcotics Anonymous, all that addict needs is a desire to stop using. Our Third Tradition ensures that. Whether an individual NA member chooses to be a member of a particular group as well is entirely up to that individual. Access to the meetings of some NA groups is restricted by factors beyond the control of these groups— national border-crossing laws, for instance, or prison security regulations. However, these groups themselves do not bar any NA member from joining them.

 

As is AA, believing in God or a deity is not required.   You can make the group your higher power.

https://na.org/admin/include/spaw2/uploads/pdf/litfiles/us_english/Booklet/Group Booklet.pdf

 

  

Hydrochlorothiazide 25 mg, Multi vit., Calcium, D3,  Magnesium, Fish Oil, Melatonin,  Ambien 3.3 mg 1 or 2X/mo.  Benadryl-seldom, .......2002 - eliminated alcohol

2002- Paxil - 20 mg (3 WD attempts: 2005, 2008, 2010)

2011 - 30 mg 

2018 - 40 mg- Sept to Nov} {Dec - 37.5}

Jan 2, 2019 - 35 mg

Jan 11 -  33.75 mg

Jan 28 - 32.5 mg

Feb 4 -  33.75 mg 

Mar 4 - 32 mg

Mar 30 - 30 mg

 

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noearthlyfamily

yes!!!

 

that's how i remember the old timers saying it...but then the groups were quite different. anybody who was agnostic, atheist, apatheist or of polytheist beliefs was discouraged from speaking. it was not good. but Bill W. said you can make the group your HP! 

 

so...i guess i'll be going at least to feel out the NA group support and if they don't support me then i've got you guys. and hopefully benzo buddies...haven't gotten to know anyone there.

 

this SA has been the most helpful and welcoming source of support and information that i've found online so far. 💜💙💚

UPDATED: 9/01/2019

Quetiapine:  2000-2005: 50mg;  2005: 100mg;   2008: 400mg;   2011: 100mg;   2014: 300mg;   2014-2017: 400mg;  7/2018-2/2019: 75mg;  1/2019: 68.75mg;  4/2019: completed switch to 3x daily dosing (25mg 8AM, 18.75mg 4PM, 25mg MIDNITE);  5/2019: 68.75mg (switched to all liquid taper using HUMCO suspension agent)  8/2019: 61mg       

Clonazepam:  2008: 2mg then 0.25mg;   2012: 0.5mg;   2014: 1mg;   4/2019: 1mg ~completed switch to 3x daily dosing (0.25mg 8AM, 0.25mg 2PM, 0.5mg 8PM);   8/2019: 1mg (switched to all liquid taper using propylene glycol as solvent)    

Gabapentin:   2011: 100mg;   2011: 200mg TID    2014: 300mg;  2017: 600mg;   2019: 900mg PM;   3/2019: completed switch to 3x daily dosing (300mg q8h)

Prior drugs: Please see this link:    (the remaining dates & meds records will be updated as i receive my complete medical files.)

Suppl's: Deva Vegan Multi & Mineral Supplement w/Greens 1x, Magnesium Lysinate Glycinate Chelate 100mg 4x, vit c 1000mg  2x, zinc gluconate 50mg 1x q.o.d., Allicin Max 180mg TID,  chlorella/spirulina 50/50 blend 2tabs 5x daily

HRT:  300mg oral progesterone h.s., 0.1mg estradiol transdermal patch 2x week

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Just now, noearthlyfamily said:

yes!!!

 

that's how i remember the old timers saying it...but then the groups were quite different. anybody who was agnostic, atheist, apatheist or of polytheist beliefs was discouraged from speaking. it was not good. but Bill W. said you can make the group your HP! 

 

so...i guess i'll be going at least to feel out the NA group support and if they don't support me then i've got you guys. and hopefully benzo buddies...haven't gotten to know anyone there.

 

this SA has been the most helpful and welcoming source of support and information that i've found online so far. 💜💙💚

 

You can also use AA.

  

Hydrochlorothiazide 25 mg, Multi vit., Calcium, D3,  Magnesium, Fish Oil, Melatonin,  Ambien 3.3 mg 1 or 2X/mo.  Benadryl-seldom, .......2002 - eliminated alcohol

2002- Paxil - 20 mg (3 WD attempts: 2005, 2008, 2010)

2011 - 30 mg 

2018 - 40 mg- Sept to Nov} {Dec - 37.5}

Jan 2, 2019 - 35 mg

Jan 11 -  33.75 mg

Jan 28 - 32.5 mg

Feb 4 -  33.75 mg 

Mar 4 - 32 mg

Mar 30 - 30 mg

 

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  • Moderator

NEW!!!              INTERVIEW with Altostrata, SA's founder               NEW!!! 

 

ADs:  25 years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015  Current from 14 Nov 2020:  Pristiq 0.50 mg

My tapering program                                      My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

REMINDER TO SELF:  I don't need the drug now, but my still brain does.

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ChasingRainbows

I would love to join a support group in London, UK. Is there anybody there who would be interested in meeting up somewhere nice? 

20 mg citalopram hydrobromide stopped on Friday 25th January 2019 💊

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noearthlyfamily
On 2/18/2019 at 5:32 PM, noearthlyfamily said:

yes!!!

 

that's how i remember the old timers saying it...but then the groups were quite different. anybody who was agnostic, atheist, apatheist or of polytheist beliefs was discouraged from speaking. it was not good. but Bill W. said you can make the group your HP! 

 

so...i guess i'll be going at least to feel out the NA group support and if they don't support me then i've got you guys. and hopefully benzo buddies...haven't gotten to know anyone there.

 

this SA has been the most helpful and welcoming source of support and information that i've found online so far. 💜💙💚

 

okay! so that was very encoraging and i'd have to rate the first NA meeting as a success! i waited for a period of 3 day window where i slept pretty good and seemed more stabilized before i went to the meeting. i'm ypersensitive around people now, so i wantwed to be as confident and feeeling as safe as possible. i went to the 8-9:30pm meeting, and at the end, i asked if i could speak. the groups was super supportive and encouraged me to talk. 

 

i asked about the psych med tapering longterm thing and the godless thing making the group my higher power and they wholeheartedly agreed and even quoted the literature supporting it. they repeatedly told me i was in the right place and a welcome member of the group!

 

after i shared my querstions, a man spoke and said i just told his story! he has been tapering off psych meds for 14 years nad he totally understood. so i gave my number and asked if there were any women i could talk to maybe for sponsorship etc who understood about my meds tapering and wouldnt shove god down my throat...

 

two women came and hugged me and one gave me her name and number so i'll call tomorrow. 

 

it's easier to go forward face the withdrawals knowing i have a support group to back me up.

 

just wantedt o share my good experience with yall!

UPDATED: 9/01/2019

Quetiapine:  2000-2005: 50mg;  2005: 100mg;   2008: 400mg;   2011: 100mg;   2014: 300mg;   2014-2017: 400mg;  7/2018-2/2019: 75mg;  1/2019: 68.75mg;  4/2019: completed switch to 3x daily dosing (25mg 8AM, 18.75mg 4PM, 25mg MIDNITE);  5/2019: 68.75mg (switched to all liquid taper using HUMCO suspension agent)  8/2019: 61mg       

Clonazepam:  2008: 2mg then 0.25mg;   2012: 0.5mg;   2014: 1mg;   4/2019: 1mg ~completed switch to 3x daily dosing (0.25mg 8AM, 0.25mg 2PM, 0.5mg 8PM);   8/2019: 1mg (switched to all liquid taper using propylene glycol as solvent)    

Gabapentin:   2011: 100mg;   2011: 200mg TID    2014: 300mg;  2017: 600mg;   2019: 900mg PM;   3/2019: completed switch to 3x daily dosing (300mg q8h)

Prior drugs: Please see this link:    (the remaining dates & meds records will be updated as i receive my complete medical files.)

Suppl's: Deva Vegan Multi & Mineral Supplement w/Greens 1x, Magnesium Lysinate Glycinate Chelate 100mg 4x, vit c 1000mg  2x, zinc gluconate 50mg 1x q.o.d., Allicin Max 180mg TID,  chlorella/spirulina 50/50 blend 2tabs 5x daily

HRT:  300mg oral progesterone h.s., 0.1mg estradiol transdermal patch 2x week

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  • 3 weeks later...
On 2/24/2019 at 5:29 AM, ChasingRainbows said:

I would love to join a support group in London, UK. Is there anybody there who would be interested in meeting up somewhere nice? 

@ChasingRainbows I was interested in one too. I am in London. 

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     

2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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Anyone in Los Angeles area?  The city of Angels (as well as  traffic and pollution)

Citalopram 40 mg — (Now 6mg after 8 months approx) 

clonazopam 1.5 mg (Now .25 mg after 10 months approx)

lamotrigine 150 mg

methylphenidate (ritalin) 54 mg

modafinil 400 mg

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  • 6 months later...
On 3/16/2019 at 5:48 PM, India said:

@ChasingRainbows I was interested in one too. I am in London. 

I would be very interested in this! Came on here to ask about this actually!

Medication History

6/14-Started (50mg) 5 HTP, rescue remedy,kalms,herbal nightol,antihistamine,

7/14-Discontinued 5 HTP

8/14-Took 2 doses of Sertraline (Zoloft) (50mg)

8/14-paracetemol and contiuined 5htp and nightol and rescue remedy - also vitamin b complex

8/14 started 2mg valium

9/14 stopped 2mg valium

10/14 started omega 3

 

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  • 2 months later...
On 6/28/2018 at 6:59 AM, Shep said:

This looks like a good resource for members who are setting up meet-ups - you can contact them for a "toolkit" for setting up a meet-up of people coming off these drugs.

 

WARM Network - Withdrawal and Recovery Meeting

 

More from the co-founders are on Rxisk.org:

 

The WARM Network: Withdrawal and Recovery Meetings

This sounds quite promising.  Unfortunately, there's nothing available near where I'm currently at.  

 

I have run support groups in the past.  The part of Arizona we're going to be moving back to is near Tucson.  I might be interested in looking into setting up a WARM group there once I'm settled.  I could even offer a group en español if there was enough interest in it.    

 

I'm most familiar with the ACA 12-step groups (Adult Children) and Al-Anon.  The Adult Children groups have been the most welcoming and helpful for me.  If there were an Emotions Anonymous group near me I'd give it a try, it sounds intriguing.  

1994  Venlafaxine XR 300mg, 2003 tapered, 2004 off briefly back to 37.5 then 75mg, held, June 2019 up to  150mg, Aug.12 tapered down to 112.5mgs, Oct. 21, 2019 96mg;  Dec. 8, 2019  90mg, Jan. 8 2020 81mg, Feb. 4, 75mg;

2003/2004? Diazepam 10mg/bedtime

2013 Lyrica 300mg to 25mg; April 6, 2020 17mg; April 28, <5mg; May 7, 2020 Lyrica 0 mg!

2013 Tramadol 50mg tablets, 200mg/day divided

2005? Trazodone 50mg bedtime, Feb. 12, 2020 40mg, March 7, 25mg; Oct 1 20mg

2009? Zolpidem 5mg at bedtime. Nov. 9, 2019 Zolpidem 0 mg! 

1990? Omeprazole 20mg in morning.

2010? Levothyroxine 75mcg morning

2011? Liothyronine 5mcg morning

1999? Buspirone 30mg twice a day  August 2019 15mg once a day,  Oct.21, 2019 2.5mg evening  Oct. 25, 2019 Buspirone 0 mg!

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  • 3 months later...
  • Moderator
manymoretodays
Posted (edited)

Announcing a Peer facilitated group, that I saw a flyer for and participated in myself this past week, out of Western Massachusetts

 

It's titled "Online Psych drug Support Group", and is intended for anybody in any stage of thinking about, or making changes, reducing/ coming off psych drugs.

It's a space for mutual support, and to share resources, learning, and relevant information with one another.  Not meant to tell people how or if they should come off.

This isn't for family members and friends, just the individual.

 

It is held via a Zoom format, on Tuesdays, at 7 pm EST(US time) and goes for 90 minutes.

 

More information and how to access below:
7pm EST: Pysch Drug Support Group* (For people withdrawing from, making changes to, or otherwise examining their relationship to psychiatric drugs)

Access: E-mail zoe@westernmassrlc.org or jeanmarie@westernmassrlc.org for login and other details

 

^ taken from the Western Massrlc.org website

Home > Online and phone supports> scroll down to Groups for People Struggling with Substances(both prescribed and non-prescribed)> Tuesday Psych Drug Support Group

Edited by manymoretodays

Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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  • Mentor
FarmGirlWorks

@manymoretodays: what was your experience with it? I've been going to AA meetings on Zoom and impressed with how quickly folks are responding to it. I was thinking that an online group for ADWD would be great to combat isolation and a scary experience. Anyways, curious what your thoughts are.

  • Prozac | late 2004-mid-2005 | CT WD in a couple months, mostly emotional
  • Sertraline 50-100mg | 11/2011-3/2014, 10/2014-3/2017
  • Sertraline fast taper March 2017, 4 weeks, OFF sertraline April 1, 2017
  • Quit alcohol May 20, 2017, quit coffee October 2017, quit cannabis 😩 July 2018
  • Magnesium powder, fish oil, estradiol, kombucha, gluten/dairy/histamine-lite
  • Lifestyle changes: AA, kundalini practice

 

"If you've seen a monster, even if it's horrible, that's evidence of divinity." – Damien Echols

 

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  • Moderator
manymoretodays
Posted (edited)

Hi FGW.  Yes me too...Zoom AA and even a family Zoom.  This group I shared/mentioned was set up prior to the Covid19.  Yes, some kind of group, Zoom or other online with video, for specifically ADWD could be nice, for now, and ongoing support.  As we know....support is often nonexistent for many of us, during normal times, non pandemic virus times.  I liked it, the one I attended from above.  Good group format.....no one really took the floor.  Around the issues/topics, pretty much that they had outlined.  I felt pretty shy....timid....as I usually do in new places with new people.  And will stop in to that one when time allows.  I am busier than ever lately.  And pacing( myself, not literally pacing B)).  Zoom is about $15.00/month I believe, for the originator.  I need to, even now, limit my time on screen or droid too, and keep a healthy balance for myself.  Too many hours screen for me, not healthy.  Beautiful day today here.  Some bulbs poking their little heads up and sunshine off and on.  Be well.  L,p,h, and g.  mmt

Edited by manymoretodays
pacing clarified

Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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  • Moderator
manymoretodays

Oh...adding to.  I think that I may be so inspired to start a local group, on the ground sometime.  Could be several months is my understanding, to continue with precautions.  Thankfully, due to all my experiences to date, and I suspect many others here, I have a great repertoire of non drug coping skills and practices for social isolation.  And am floored by all the unsung heroes and heroines during this tough time for all. It can bring out the best in human beings!  ❤️

Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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  • 1 month later...

Announcing the new Ohio Psych Drug Survivor Support group:  We first started it through Meetup.com, but their fees were prohibitive, so right now we just have a FB page. We had one meeting back in March, just before the Coronavirus shutdowns, so until people are able to reconvene, it is unclear when we will meet in person again. Here is the link to our Facebook page: 

 

https://www.facebook.com/groups/217087892822751/

 

Please share.  We are located near Cleveland but hope to involve any Ohioans in advocacy and support.

--Current supplements: Fish oil 1000 mg x4 (split into 2 doses of 1000 mg); Vit. D 2,000 iu once daily; 2-3 tsp coconut oil daily

--3/14/20: Re-discontinued gabapentin after 2 weeks, due to agitation

--2/27/20: Reinstated Kpin .5mg and also briefly reinstated gabapentin 300mg. 2x/daily, to help with side effects (Kpin dose usually taken in a.m. between 5-8 a.m.; gabapentin once in a.m. and once around 6 p.m.)

--2/13/20: Tried reducing Kpin down to .375mg due to dysphoric side effects; tried to CT but started hallucinating again after 4 days

--1/23/20: Placed on daily .5mg dose of Klonopin

--From July 2017-Jan. 2020: PRN Klonopin 1mg. :  up to 1x/day:  sometimes weeks without it, sometimes 1-2x/week, sometimes 4-5x/week; tried to CT in Jan. 2020 and ended up in hospital with delirium and hallucinations

--November 2019: Weaned down gabapentin approx. 100 mg. per week and discontinued it

--August 7, 2019-10/18/19: Reduced Trintellix from 10mg. down to zero (insurance stopped paying for it - I couldn't afford it).

--February 2019-11/30/19: Reduced nortriptyline from 75 mg. to zero

--As of February 2019:  Meds were 10 mg. (1x/day) Trintellix, 75 mg. (1x/day) nortriptyline, and 600 mg. gabapentin

--1992 through 2018: On various cocktails of meds, starting with anafranil

 

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  • 6 months later...

I’m in Westchester County, New York. Have been looking for some kind of support group here but nothing exists. Anyone else in this area interested in this idea or maybe meeting up?

Been on medication since 1999. Previous medications include Remeron, Zoloft, Celexa, Lexapro, Lamictal, Xanax, Ativan, Valium, Ability.

 

Current medication:

Amitriptyline: 50 mg 2015-5/20. Decreased 50mg to 25 mg first week in May, 25mg to 12mg second week in May, 25mg to 10mg third week in May, 10mg to 8 mg fourth week in May. Stayed here for a month and reinstated 2 mg in July. July to current date 10mg.

11/7/20 9mg

Klonopin: .5 mg since 2001

 

Supplements:

Magnesium citrate: 250 mg

Fish oil: 1200 mg

 

 

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  • Moderator
ChessieCat
18 hours ago, Mia1 said:

Anyone else in this area interested in this idea

 

See this post - good information by Altostrata:

 

peer-support-meet-up-groups

NEW!!!              INTERVIEW with Altostrata, SA's founder               NEW!!! 

 

ADs:  25 years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015  Current from 14 Nov 2020:  Pristiq 0.50 mg

My tapering program                                      My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

REMINDER TO SELF:  I don't need the drug now, but my still brain does.

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  • Moderator
ChessieCat
18 hours ago, Mia1 said:

I’m in Westchester County, New York.

 

I suggest that you also post in this topic:

 

New York members, please check in here

NEW!!!              INTERVIEW with Altostrata, SA's founder               NEW!!! 

 

ADs:  25 years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015  Current from 14 Nov 2020:  Pristiq 0.50 mg

My tapering program                                      My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

REMINDER TO SELF:  I don't need the drug now, but my still brain does.

Link to post
4 hours ago, ChessieCat said:

I suggest that you also post in this topic

 

Thank you for your help!

Been on medication since 1999. Previous medications include Remeron, Zoloft, Celexa, Lexapro, Lamictal, Xanax, Ativan, Valium, Ability.

 

Current medication:

Amitriptyline: 50 mg 2015-5/20. Decreased 50mg to 25 mg first week in May, 25mg to 12mg second week in May, 25mg to 10mg third week in May, 10mg to 8 mg fourth week in May. Stayed here for a month and reinstated 2 mg in July. July to current date 10mg.

11/7/20 9mg

Klonopin: .5 mg since 2001

 

Supplements:

Magnesium citrate: 250 mg

Fish oil: 1200 mg

 

 

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