btdt Posted July 21, 2016 Share Posted July 21, 2016 I have both mental and physical fatigue... I am back to having head drops too along with dropping things wobbling core... and possible seizures.. I am thinking it could be complication of multiple chemical sensitivity which from what I read is another forward step for those of use with CF... but I don't know yet I am waiting to get into a mcs clinic maybe they will know more I will report back after I have gone. At this point the computer makes is making me sick just now so I can't be on too long.... peace all WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
btdt Posted October 9, 2016 Share Posted October 9, 2016 http://www.drcourtneycraig.com/blog/lithium-cfs just a bit see the link Neurocognitive SupportMost are familiar with prescribable lithium utilized for the treatment of psychological and major depressive disorders. While potentially effective for mood stabilization in these conditions, doses this large may be highly toxic over the long-term. Several studies have instead looked at smaller, micro doses and neurocognitive benefits. Possible mechanisms surrounding lithium’s cognitive support include its ability to maintain BDNF levels—the crucial neurotropic product recently found severely depleted in CFS. A cohort of Alzheimer’s patients were given lithium over a 10-week period. At the end of the study, participants had significant increases in BDNF in serum and in the brain (2). Yet another study gave only 300 micrograms of lithium to Alzheimer’s patients over the course of a year which stabilized these patient’s cognitive decline (3). An additional mechanism of neurocognitive support arise in lithium’s role in the metabolism of the omega-3 fatty acid DHA (4). This fat is crucial for brain health, especially the myelin sheaths of neurons, and reduces neuroinflammation through the induction of cytokines. Finally, lithium provides antioxidant protection via its ability to enhance glutathione-S-transferase enzyme expression in the brain (5). Lithium’s Role in MethylationLithium is a key cofactor in the methylation cycle. Not only does it help transport B12, it also is required for function of the MTR (methionine synthase) enzyme, which recycles homocysteine to methionine. Dr. Yasko believes that in order to maintain healthy B12 levels, lithium levels must also be considered. With increasing loads of B12 such as via intramuscular injection, lithium may become further depleted (6). further down.... The commonly prescribed high-dose lithium used for psychiatric conditions is in the form of lithium carbonate. Supplemental forms however are in the better tolerable orotate or citrate forms. Tablets and liquid formulations are available in the dispensary to cater to tolerance. I read another article where a lady was using lithium aspertate something like that word not saying it works just what I read... WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
btdt Posted October 9, 2016 Share Posted October 9, 2016 Medication-Induced Mitochondrial Damage one after my own heart cause I think so too.... http://www.drcourtneycraig.com/blog/2014/11/29/medication-induced-mitochondrial-damage As always more at the link "Damage to mitochondria is understood to play a role in the development of a wide range of seemingly unrelated disorders such as schizophrenia, Alzheimer's, cardiovascular disease, diabetes, and others. Mitochondrial damage is also a hallmark of ME/CFS and Fibromyalgia. Common causes of mitochondrial dysfunction in ME/CFS and Fibromyalgia are numerous. They include: Dysbiosis Chronic viral infections Metabolic dysfunction (poor insulin control, nutrient depletion) Toxin exposure (metals, mold, other environmental factors) Another cause of mitochondrial dysfunction that is less frequently mentioned is medication usage. Mitochondrial toxicity testing is NOT required by the FDA before a drug is approved. Medications can hinder mitochondria through direct or indirect mechanisms. Certain medications interact with mitochondrial DNA and inhibit the creation of protein complexes necessary for ATP production. Other medications block metabolic pathways that interfere with the way fats and carbohydrates are utilized. By indirect means, some medications promote oxidative stress, which damage mitochondria and deplete antioxidants like glutathione. It is believed that many side effects from medications are due to mitochondrial insult. Some classes of medications are known mitochondrial poisons and are often prescribed for various reasons to ME/CFS and Fibromyalgia patients. Unbeknownst to your doctor (who is not aware of your illness or doesn't understand it as a mitochondrial disease) he or she may be contributing to a major setback in your recovery. If medication is required, attempting to counteract the deleterious effects with mitochondrial supports is warranted! THE CULPRITS All classes of psychotropic drugs have documented toxic mitochondrial effects. Many of which block key enzymes in the electron transport chain of the mitochondria. Statin drugs completely block the enzyme HMG-CoA reductase, which severely inhibits CoQ10 production—a necessary nutrient for mitochondrial function. As another example,acetaminophen is known to be hepatotoxic due to the inability to clear its metabolite during liver detoxification. This is believed to be due to glutathione depletion--an indirect cpnsequence of mitochondrial dysfunction. It is not surprising then, that the antidote for acetaminophen poisoning is N-acetylcysteine (NAC), which increases glutathione. A specific list of mitochondrial disrupters may look like this: Antidepressants: Amitriptyline, Celexa, ProzacPain Relievers: Acetaminophen, Voltaren, Naproxen, Aspirin Blood Pressure Medications: Propranolol Cholesterol Medications: Lipitor, Crestor, ZocorDiabetes Medications: MetforminAntibiotics: Erythromycin, TetracyclineAnti-Anxiety Medications: Xanax, ValiumBenzodiazepines: Klonopin, Ativan and more in the posts following this article WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
btdt Posted October 17, 2016 Share Posted October 17, 2016 new book on this topic https://www.amazon.ca/Diagnosis-Treatment-Chronic-Fatigue-Syndrome-ebook/dp/B00IC93WJM Diagnosis and Treatment of Chronic Fatigue Syndrome: it's mitochondria, not hypochondria!Kindle Edition We have around 3000 'mitochondria' in each and every cell in our bodies. They are the powerhouses of our cells, essential for the production and management of energy at cell level. Dr Sarah Myhill, together with Dr John McLaren Howard of Acumen Laboratories and Dr Norman Booth of Mansfield College Oxford, has spent many years studying the relationship between their malfunction and the commonest problem seen by GPs in the UK - fatigue. Their research findings have been published in three scientific papers in the International Journal of Clinical and Experimental Medicine, in 2009, 2012 and 2013. These studies showed that poor functioning of the mitochondria is the central problem in CFS. Patients with the worst mitochondrial function had the worst fatigue and vice versa. This is solid scientific evidence that CFS is a problem with mitochondria and has allowed the objective measurement of fatigue for the first time. With the publication of the third study, which showed that mitochondrial function tests and symptoms improved in patients who took measures to address their mitochondrial problems, Dr Myhill was ready to write this book. Here she explains the importance of healthy mitochondria, how we can measure their functioning and what we can do to keep them healthy, or restore them to health if problems arise. CFS is all in our cells, not in our minds! It would appear that antidepressants would NOT be a good treatment option for CFS given the above information. By the time they sort out one disorder I have moved on to another disorder... multiple chemical sensitivities supposedly related to fibro and cfs in some way... once able I will look more. happy reading peace all WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
RachelE Posted October 18, 2016 Share Posted October 18, 2016 Oh, I wish I haven't read this... Is there anyone who have had many of those serious cfs symptoms during their withdrawal for long time (several months) and have recovered? This is so scary time for me, what if i stay this way? i don't even have the strength to brush my hair. :/ I am not speaking from personal experience, but a woman named Monica was at least as bad off as you are, reachingforthestars. For two years she couldn't leave her bed to use the bathroom without help! Here is a link to her blogsite. http://beyondmeds.com While still not fully recovered, she is MUCH better today. I have been on so many medications since I was 20 and diagnosed as "mentally ill" that I have lost count. Right now, however I have been taking: Lamictal 25 mg: I went on it in March for only 13 days, then cold turkeyed off when I thought I was developing a rash because of it. Pretended to go back on it, but didn't. Not the best idea, but I had no way to reduce the dose. Anyhow I had no adverse withdrawal reactions, probably because I was on it for less than 2 weeks. Abilify 20 mg: I have been on this for several years. Actually at least half the time I have spent as a meds "consumer" I have been on this nasty pill. I finished tapering off it at the beginning of 2016. Was reinstated during the 4 days I spent in a psych ward in March. Tapered off it again in 10 weeks, from say March 15-June 30. Needless to say this is not exact, but I remember I was off it before July 4 (patriotic holiday in America!) I am doing fine, although I know I may have to wait till Christmas or later to know I am out of the danger zone for withdrawal psychosis. The main thing I notice about being off is that I no longer crave sweets all the time and am losing weight without trying. Good thing since I used to weigh 350 lbs.! Effexor 150 mg: This is the real trouble-maker. Since I have no other way of tapering I do the best I can by bead counting. I unscrew the gel capsule and count out the tiny micro-capsules or beads inside. This works fairly well with the generic time release version. Only 120 beads to count of almost identical size. Lately I have been "holding" at 20 bead removal due to some major stress in my life. Moving hundreds of miles from my old home and a bout of strep throat that wouldn't respond to antibiotics. I guess that means I'm on 120 mg of Effexor right now. On October 16 I am going to recommence my taper since I am safely moved and no longer have strep! I admit now that I did something stupid. I had trouble opening the extra strength gel capsules containing the beads so I reinstated at the original dose for a week. I know it's not good to play ping pong with my brain, but I could never open the capsules without spilling those microscopic balls all over so I was never sure what dosage I was taking! Thank the LORD that I finally have the old kind again and can safely count out the amount. I am now back on 135 mg and feel somewhat better. October 30, 2016. I am down to 120 mg effexor. November 27, 2016. Down to 105 mg effexor. December 25, 2016. 90 mg effexor. January 15, 2017. 75 mg effexor. January 21. 82.5 mg effexor. January 23, 90 mg again. Feb. 14, 81.25 mg. Mar. 15, 72.5 mg. Mar. 27, 65 mg. Apr. 9, 58.75 mg. Apr. 24, 52.5 mg. Link to comment Share on other sites More sharing options...
picchy Posted October 19, 2016 Author Share Posted October 19, 2016 Hello everyone, I can't help noticing folks are reading about CFS/ME while in withdrawal and getting understandably scared. As a long-term sufferer of CFS/ME, can I just clarify that the condition is only diagnosed (assuming the doctor is following the guidelines that is!) in the ABSENCE of any other identifiable cause, and when you also have more than one of the symptoms of the syndrome for at least six months. If the symptoms started in withdrawal, then withdrawal is the cause - and it seems the recovery process can sadly last a few years in some cases (including mine). It will of course be relatively easy to find a doctor who will diagnose you with CFS/ME, given the lack of understanding of both withdrawal and CFS/ME. This could be helpful if you need to obtain benefits or get a sick line from work etc - but not if you believe you really have another, incurable illness. If you are in withdrawal I just don't think it's helpful reading about CFS/ME - it will only scare you into thinking you have another, new condition. Hang tight! Picchy Sufferer of moderate ME/CFS since 2005 Started 20mg Citalopram in March 2008 due to bereavement Was fine since then with no adverse effects or depression - so decided to taper off Came off it in March 2014 after a five-month taper, which I thought was a long time Experienced a month of uncharacteristic depression in April 2014 Two months feeling fine In June 2014 return of depression then an overnight physical crash leaving me debilitated in July Tried to take moclobemide at low dose for 2 weeks in July but severe reaction Housebound since then, ME now severe No meds taken Female, 38 years old Link to comment Share on other sites More sharing options...
Christian Posted October 19, 2016 Share Posted October 19, 2016 With all respect Picchy, I beg to differ. CFS (which I have been diagnosed with) is often brought on by stress. I can only speak for myself but the stress I endured from my Lexapro reaction was horrific. The stress drained my cortisol, my magnesium, as well as my testosterone. All are linked to CFS as well as Fibromyalgia. WD is just the source of the stress. Like PTSD can be or trauma. I've read a lot about all of this so I apologize if I seem like a "know it all." Its not my intention. It's just my humble opinion. We can wait for the WD to run its course or we can get tested to see what the damage was. When I waited I got worse. Now I'm treating my symptoms with the care of doctors. And not with psych meds !! Lexapro: started in 2002 at 10 mgs. Ambien: started as a as needed sleep aid in 2010. Quit Lexapro cold turkey in June 20015 due to contributing to low sodium issues. Restarted Lexapro in late November for a week (only 5 mgs) but quit due to dizziness side effects. Side effects worsened for 3 weeks until 12/24/15: Protracted WD hit, experienced extreme anxiety, insomnia lack of full concentration and social challenges. Reinstated Lexapro on 1/1/16 at 5 mgs. Increased per Dr to 7.5 MG. Tapered off Lexapro in March 2016. Started 50MG of Seroquel in late January 2016 for bedtime to help in eliminate Ambien. Tapered off both Seroquel and Ambien in March 2016. 2/14/16: Prescribed both Remeron (15 MG) and Temazapam (15 MG) for sleep. Also use Klonopin and Ambien again in place of Temazapam to avoid addiction. However I did take Temazapam 60 straight days 6/15/16: Stopped use of all benzo's and now use Belsomra 1-2 times a week. Still on 15 MG of Remeron 10/11/16: Off all psych medications After kindling, trying to regain my strength suffering from severe mental and physical fatigue. Link to comment Share on other sites More sharing options...
RachelE Posted October 19, 2016 Share Posted October 19, 2016 I don't consider myself to have CFIDS or ME in that I wasn't "normal" to begin with, having been drugged so many years on a cocktail from Hades. I read about the condition/s though and have found some tips in getting through the day that I find useful. I don't want or need a doctor's diagnosis--if I could get one. I just find it useful to learn coping skills from people with that disorder so I can apply them to my situation. Unlike "true" ME, I know I will get better and maybe even make a full recovery. But it may take a long, long time. I have been on so many medications since I was 20 and diagnosed as "mentally ill" that I have lost count. Right now, however I have been taking: Lamictal 25 mg: I went on it in March for only 13 days, then cold turkeyed off when I thought I was developing a rash because of it. Pretended to go back on it, but didn't. Not the best idea, but I had no way to reduce the dose. Anyhow I had no adverse withdrawal reactions, probably because I was on it for less than 2 weeks. Abilify 20 mg: I have been on this for several years. Actually at least half the time I have spent as a meds "consumer" I have been on this nasty pill. I finished tapering off it at the beginning of 2016. Was reinstated during the 4 days I spent in a psych ward in March. Tapered off it again in 10 weeks, from say March 15-June 30. Needless to say this is not exact, but I remember I was off it before July 4 (patriotic holiday in America!) I am doing fine, although I know I may have to wait till Christmas or later to know I am out of the danger zone for withdrawal psychosis. The main thing I notice about being off is that I no longer crave sweets all the time and am losing weight without trying. Good thing since I used to weigh 350 lbs.! Effexor 150 mg: This is the real trouble-maker. Since I have no other way of tapering I do the best I can by bead counting. I unscrew the gel capsule and count out the tiny micro-capsules or beads inside. This works fairly well with the generic time release version. Only 120 beads to count of almost identical size. Lately I have been "holding" at 20 bead removal due to some major stress in my life. Moving hundreds of miles from my old home and a bout of strep throat that wouldn't respond to antibiotics. I guess that means I'm on 120 mg of Effexor right now. On October 16 I am going to recommence my taper since I am safely moved and no longer have strep! I admit now that I did something stupid. I had trouble opening the extra strength gel capsules containing the beads so I reinstated at the original dose for a week. I know it's not good to play ping pong with my brain, but I could never open the capsules without spilling those microscopic balls all over so I was never sure what dosage I was taking! Thank the LORD that I finally have the old kind again and can safely count out the amount. I am now back on 135 mg and feel somewhat better. October 30, 2016. I am down to 120 mg effexor. November 27, 2016. Down to 105 mg effexor. December 25, 2016. 90 mg effexor. January 15, 2017. 75 mg effexor. January 21. 82.5 mg effexor. January 23, 90 mg again. Feb. 14, 81.25 mg. Mar. 15, 72.5 mg. Mar. 27, 65 mg. Apr. 9, 58.75 mg. Apr. 24, 52.5 mg. Link to comment Share on other sites More sharing options...
btdt Posted October 21, 2016 Share Posted October 21, 2016 When I was dx with cfs/fibro I had taken prozac and I have a thread on here called prozac induced cfs. There you will find a list of drugs that cause mitochondria damage prozac is one the list would likely be longer now as they add to it all the time. It was my thinking since cfs and fibro are both caused by mitochondria damage or so said the science of the day... that I had found my cause. I was dx in 94 years after I had the prozac and had not recovered I had a SAR to prozac. There is one article I found also on here some place where a person was dx with fibo or cfs only to have it changed to serotonin syndrome by another doctor treated and recovered. cfs fm and mcs are now seemingly grouped together... I now have mcs... multiple chemical sensitivity. The idea that even one person or one article had cfs and ss mixed up makes me wonder the symptoms are very much alike enough to cause a misdiagnosis at least one time. Serotonin syndrome misdiagnosed as fibro here is the link http://survivingantidepressants.org/index.php?/topic/1152-fibromyalgia-caused-by-serotonin-syndrome/ Nobody has to read it but if you want to it is there on offer as it everything on the net. peace all WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment Share on other sites More sharing options...
powerback Posted May 6, 2017 Share Posted May 6, 2017 I found this to be very interesting and not just about the tittle ,he says he went through a tough time himself so has experience in the system ,gives us all hope one day he is the norm and not the exception . I love the analogy at 38mins ,sums up tests Alcohol free since February 2015 1MG diazepam 4.5MG PROZAC. Link to comment Share on other sites More sharing options...
Seeker7 Posted September 25, 2018 Share Posted September 25, 2018 Has WD ever led to Chronic Fatigue Syndrome for you folks? I've been wondering about this possibility since my fatigue has become so extreme in the last few years. It's frustrating trying to find reliable info on CFS in the first place, since it seems so hard to even diagnose. That makes me even more reluctant to go to an allopath about it. I'm terrified at the possibility of not being able to work, pay bills, being homeless, etc. Disability seems extremely hard to get for anyone, never mind for something "vague" like this. Not that I know the first thing about that; I'm still slaving away full-time, but I can feel myself getting worn down. I need a break or a cure, and I'm not sure if there is treatment for CFS? Even assuming I have it, which I don't know. Just trying to gather more info from those who have also been through WD. If anyone has had it, have you healed? Fully or partially? Link to comment Share on other sites More sharing options...
powerback Posted September 25, 2018 Share Posted September 25, 2018 2 hours ago, Seeker7 said: Has WD ever led to Chronic Fatigue Syndrome for you folks? I've been wondering about this possibility since my fatigue has become so extreme in the last few years. It's frustrating trying to find reliable info on CFS in the first place, since it seems so hard to even diagnose. That makes me even more reluctant to go to an allopath about it. I'm terrified at the possibility of not being able to work, pay bills, being homeless, etc. Disability seems extremely hard to get for anyone, never mind for something "vague" like this. Not that I know the first thing about that; I'm still slaving away full-time, but I can feel myself getting worn down. I need a break or a cure, and I'm not sure if there is treatment for CFS? Even assuming I have it, which I don't know. Just trying to gather more info from those who have also been through WD. If anyone has had it, have you healed? Fully or partially? Hi seeker im wary of giving you an in-depth opinion because you shouldn't scare your self stiff ,holding down a life like you are is brilliant ,take this and work around it ,learn everything you can control ,not about stuff you cant ,in my opinion withdrawl does cause a lot of issues for our bodys but don't let your mind make you think you'll be that person. Physical, emotional ,psychological,dietry ,these are all stresses on our body's and we need to maintain and nurture them ,get good at reading your surroundings and lifestyle and how it impacts you to be able to live productively ,not just in a sense of economical but in aspects of respecting yourself and your health . Ive pushed my body negatively for a lot of my life but all that was nothing compared with what ive dealt with the last 2 years . Get your rest ,you all ready can see signs ,take this sign and learn but control your worry ,this will destroy you if you let it .read the symptom's and self care section ,its not there just to fill up space,99% of your time on these sections and 1% of your time freaking out is a better us of your time and life . Take care . Alcohol free since February 2015 1MG diazepam 4.5MG PROZAC. Link to comment Share on other sites More sharing options...
Vonnegutjunky Posted September 28, 2018 Share Posted September 28, 2018 Mods. I apologize if this is in the wrong forum. Also I apologize if this has already been discussed. I searched chronic fatigue syndrome in quotes before posting but I couldn’t find anything. the reason I posit the question is because of my recent visit to an integrative medicine doc. She gave me a genetic test and discovered 7 polymorphisms. Additionally I have neuroinflmmation, that has only been detected by the high sensitively crp test. An mri will get done in December, I digress. Here is the thing . After my adverse reaction and the subsequent taper I continued to have specific symptoms, ones that most of us have. Anxiety, insomnia, brain fog, cognitive issues. Light and sound sensitivities, vision, extremely sensitive to food and supplements, etc - just all around feeling like your in a damn nightmare and can barely function anymore, and it comes and goes. So as I’m googling looking for possible cbd oil as a treatment for my symptoms I come across forums with people suffering from Chronic Fatigue/Myalgic Encephalomyleitis. Our symtoms on this website match theirs, to a tee. the coming and going of symtoms, can barely get out of bed, cognitive and sensory issues extreme sensitivity to foods and supplements, and they suffer off and on for years and years too. And it’s all caused by an inflammation of the CNS and brain. What if ssri withdrawal triggers an inflammatory response in some of us? And it mimics CFS/ME? All these years I thought, the waves and windows are still going from the med, but I found out I have CFS - my integrative doc said the Paxil most likely triggered it. And she’s not suprised with my polymorphisms. I’m wondering if others may have a genetic predisposition to having an inflammation response when meds are removed. Arent SSRIs anti-inflammatory ? I am am not the smartest person, and I could be grasping at straws here, but I felt compelled to at least put it up here to see what everyone (ahem, Alto) thought. 2 *Currently at 8.2-8.5 mg of my 10mg pill of Paxil (they actually weigh 12.5mg) january 2023 I began reducing my med again. I was a 9mg weight for years, I went to 8.9 in January, went to 8.6mg in February, and in March 2023 I went down to 8.5-8.2 mg ( my scale varies, so I stick within that .3 range because of that) *No other supplements or vitamins *Taper schedule in the pdf Blank.pdf https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564 Link to comment Share on other sites More sharing options...
India Posted October 13, 2018 Share Posted October 13, 2018 Does anyone get a weak, and heavy limb sensation? I get it accompanied by a feeling of weakness in my heart too. This is a new symptom. It's different to other fatigue I've had in the past. Like ppl say, I feel as if I have flu. I can no longer walk as far as I did. It's the strangest feeling of weakness.. 1999: Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months. 2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects) 2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram 2mg , approx 16th Sept 4mg , approx 25th Sept 6mg held. 2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg (Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts) I did not die, and yet I lost life’s breath - Dante Link to comment Share on other sites More sharing options...
DogLover Posted April 29, 2019 Share Posted April 29, 2019 On 9/28/2018 at 2:38 AM, Vonnegutjunky said: What if ssri withdrawal triggers an inflammatory response in some of us? have dug any deeper into this? tried anti-inflamitory proticals? 20+ years EffexorXR 150mg. and Lorazepam PRN <- I rarely took this and never developed a problem. 2017 (nov-dec?) -> Feb 2018 fast taper - flipped out in Feb. Reinstated with 75mg-150mg (?not sure) stabilized 2018 Feb Began year long taper - somehow made it to 50pellets, did fine Sept - 17 bbs <-- where I started keeping track Oct - 16 bbs, Nov - 15 bbs, Dec - 14 bbs 2019 Jan - 13bbs, Feb - 12bbs, Feb Had problems - found SA March 19 - 15bbs, April 17 - 20bbs <--Updosing Supplements: Multivitamin, Fish Oil, B Complex, Magnesium, GABA, L-Theanine, Inositol Low sugar/carb diet, plenty of exercise. Meditation Blood test Results: High in Copper, Low in Zinc, Very high whole blood hystamines Link to comment Share on other sites More sharing options...
LostInMarshes Posted September 6, 2020 Share Posted September 6, 2020 (edited) Anyone else experience chronic fatigue on 2nd or 3rd week of a new taper? It's like clockwork now, something I've come to expect. I can barely sit up to type this and may need to go back to bed for another 12 hours of sleep. Eventually the fatigue goes away, by week 3 or 4, I'm not sure. Anyone else experience this? Edited September 7, 2020 by ChessieCat added topic title 2000: Paxil, low dose. 2001: Paxil, quickly tapered off. 2006: Zoloft, 25mg. 2007: Wellbutrin, low dose, discontinued after a week or a month. 2007-2009: Zoloft, increasing dose (up to 75mg). 2009-2011: Zoloft, failed withdrawal attempts (cold-turkey; fast tapering). 2009-2011: Trying out Cymbalta, Celexa, Prozac, Lexapro, Ambien, Ativan, and Xanax. 2012-2015: Zoloft, 100mg to 200mg. 2013: Trazadone for Zoloft-induced insomnia, 25mg to 50mg. 2015: Trileptal, dose?, withdrew; Bupropion, up to 200mg. 2016: Zoloft, 137mg, Bupropion, 150mg, Trazodone, 25mg. 05/21/16: Began Zoloft taper - 10% from 150mg - 137ish mg 06/23/16: Zoloft taper - 125mg 08/03/16: Bupropion XL taper - cut 150mg pill in crude half (mistake) 10/31: Zoloft successfully down to 100mg. Staying on 100mg for 2-3 months to let my brain rest. 11/09: Wellbutrin SR prescribed, 150mg once a day, for withdrawal. 12/11: Wellbutrin SR, twice daily - minus 18ishmg = 112.50mg 09/30/17: Off Wellbutrin SR successfully. Zoloft taper: 90ish mg (shaving it off). Trazodone: still at 50mg. June 2018: Zoloft: 80ish (shaving off). Trazodone: 6mg. End of 2018: Off Trazodone. 01/20: Zoloft: 70ish? 08/20: Still around 80 or 70. Tapering by only 15 shaves each month. 04/2021: 50mg! 11/2022: 40ish mg Link to comment Share on other sites More sharing options...
Moderator Emeritus ChessieCat Posted September 6, 2020 Moderator Emeritus Share Posted September 6, 2020 Might it be connected to your monthly cycle? * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment Share on other sites More sharing options...
Moderator Emeritus ChessieCat Posted September 7, 2020 Moderator Emeritus Share Posted September 7, 2020 On 5/20/2015 at 11:18 AM, Petunia said: I also had 'post exertional malaise' develop in withdrawal, I still have it and have to be careful with exercise because if I overdo it, it will trigger a wave. There are some similarities between withdrawal and CFS. This article from Beyond Meds has some useful information: Protracted psychiatric drug withdrawal syndrome, chronic illness, CFS, Fibromyalgia. Yeah, they all have things in common. * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment Share on other sites More sharing options...
Machi Posted September 7, 2020 Share Posted September 7, 2020 @ChessieCatThank you for the information. I couldn't update our journey so long. But I will. TK's been keeping his cessation for 18 months now. Clonazepam(CLZ), Clomipramine(CLI), Paroxetine(PAR), Escitalopram(ESCIT),Diazepam (DIZ), Propranolol(PRO) 2003 July CLZ 0.5mgX3/D CLI 25mgX4/D →polypharmacy world, 2013~TK & family's struggled to get out of this anxious hell, stopping stable work (TK & me). After 19 years, we finally see the light. Black part was original signature. (2017 Feb. CLZ 3mg, CLI 50mg, June.-Sep. CLZ liquid tapering failed. Extremely ill. nothing could stabilize. Oct. Crossover CLZ 3mg to DIZ 60mg, Start Ashton Protocol tapering. PAR 12.5mg, PRO 10mgX3 as needed. 2018 tapering continued till June DIZ tapering 10%/ month or slower, June 26 Sudden Crossover PAR 12.5mg to ESCIT 10mg, Dec.12 Sudden Crossover DIZ 6mg to CLZ 1.5mg(2 wks), Dec. 20 ESCIT tapering finished. 2019 Jan.1 Holding CLZ 0.5mg, dull pain started in limbs, Feb. 11 CLZ tapering too difficult/jumped 0.125mg→0mg, Mar.16 Fibromyalgia diagnosis, Mar.19~ Neurotropin tab 4 n.u. 2- 6 tablets/D. for 3 weeks only. No use. Mar.19 At pain clinic: Neo Vitacain Injection 5mlX2, Mar.22 Fascia release injection, Mar.24~till now tobacco cessation, Mar.25 & April.8,9 Pregabalin 75mgX2.) The Cure was the Cause. On Feb 11 2022, the family will celebrate TK's 3-year-complete cessation of all drugs (after many failures in the past). It was severe PWS, followed by so called "FM, ME/CFS, POTS, and hypoglycemia diagnoses". But Now his gentle personality, Circadian Rhythm, coping skills are all back. Muscle weakness and pains still remain but he manages. I'm so grateful to SA for the vital information, VC,Omega3, Mg. Link to comment Share on other sites More sharing options...
LostInMarshes Posted September 12, 2020 Share Posted September 12, 2020 On 9/6/2020 at 5:20 PM, ChessieCat said: Might it be connected to your monthly cycle? Not necessarily. The tapering half-life of Sertraline that kicks in after a week and a half, doesn't always fall in the middle of my PMS. The fatigue feels different, also. Actually feels like Neuro Fatigue 2000: Paxil, low dose. 2001: Paxil, quickly tapered off. 2006: Zoloft, 25mg. 2007: Wellbutrin, low dose, discontinued after a week or a month. 2007-2009: Zoloft, increasing dose (up to 75mg). 2009-2011: Zoloft, failed withdrawal attempts (cold-turkey; fast tapering). 2009-2011: Trying out Cymbalta, Celexa, Prozac, Lexapro, Ambien, Ativan, and Xanax. 2012-2015: Zoloft, 100mg to 200mg. 2013: Trazadone for Zoloft-induced insomnia, 25mg to 50mg. 2015: Trileptal, dose?, withdrew; Bupropion, up to 200mg. 2016: Zoloft, 137mg, Bupropion, 150mg, Trazodone, 25mg. 05/21/16: Began Zoloft taper - 10% from 150mg - 137ish mg 06/23/16: Zoloft taper - 125mg 08/03/16: Bupropion XL taper - cut 150mg pill in crude half (mistake) 10/31: Zoloft successfully down to 100mg. Staying on 100mg for 2-3 months to let my brain rest. 11/09: Wellbutrin SR prescribed, 150mg once a day, for withdrawal. 12/11: Wellbutrin SR, twice daily - minus 18ishmg = 112.50mg 09/30/17: Off Wellbutrin SR successfully. Zoloft taper: 90ish mg (shaving it off). Trazodone: still at 50mg. June 2018: Zoloft: 80ish (shaving off). Trazodone: 6mg. End of 2018: Off Trazodone. 01/20: Zoloft: 70ish? 08/20: Still around 80 or 70. Tapering by only 15 shaves each month. 04/2021: 50mg! 11/2022: 40ish mg Link to comment Share on other sites More sharing options...
Miko789 Posted October 4, 2020 Share Posted October 4, 2020 On 10/13/2018 at 9:23 PM, India said: I feel as if I have flu. I can no longer walk as far as I did. It's the strangest feeling of weakness.. have it too. is there cure for cfs? 2011 protracted withdrawal symptoms from Effexor, managed to come off 2013-2015 risperidone consta 50 mg, started tapering from March 2015 to 1,66mg/day and from 02/2015 started seroxat 10mg/day 01/17 Seroxat 2,0mg,olanzapine 5mg,risperidone consta 25mg/every 15days 05/17 Seroxat 1mg,olanzapine 5mg,risp.consta 25mg/every 15days 06/17 Seroxat 2drops,olanzapine 5mg,liquid risperidone2mg 07/17 Seroxat 1 drop,olanzapine 5mg,Risperidone 0mg, 10/17 Seroxat 0mg,olanzapine,5mg,Risperidone 0mg, 12/17 Seroxat 1/2 drop, olanzapine 5mg, 04/18 Olanzapine 1,25mg, 04/18 xanax 0,5mg 24/06/2019 doc said to take 10mg olanzapine for 13days and down to 5mg been taking 10mg for 14 days, 5mg for 8 days and tapered to 3/4quart. 5mg for 14 days, 1/2 for 14 days, 01/08/19 2,5mg 08/2021 5mg olanzapine Supplements Omega 3, Turmeric, Bacopa monneri, Mucuna Pruriens Link to comment Share on other sites More sharing options...
Mentor DaBro Posted November 2, 2020 Mentor Share Posted November 2, 2020 So I realise this an old post, but I wondered if you have an update Picchy. I had had heart surgery and a traumatic event in work in April 2016 and ended up not sleeping and highly anxious. Fast forward to Nov 16 and I’m diagnosed with CFS and put on Zoloft which was horrific but it got me sleeping. I then improved slowly in 2017 and was sort of able to work full time in 2018 with tactical time outs, but I felt like I’d plateaued and didn’t like the Zoloft side effects so decided to come off Zoloft in Nov 18. I didn’ Know about withdrawal so followed my doctor instructions and tapered off over a couple of weeks. Initially I felt sharper but wasn’t sleeping so well and it affected my work. Then several months later I experienced withdrawal which wrote off mid 19 to mid 20. So here I am now, feeling similar to how I was in 2016, and certainly not as good as 18 but free from Zoloft. I dont know if the Zoloft actually helped reduce the symptoms of CFS, probably by helping me sleep and I’m back with my old CFS Or Im still getting zaps and pulsative tinnitus (pop rocks) which may be the scrag end of WD or, purging the Zoloft is actually allowing some healing from CFS as my frontal lobe is experiencing all kinds of burning and jabbing sensations which I never had on Zoloft. If you can share anything on how your journey in recent years has gone I’d appreciate it. Of course I understand we all have different CFS and WD symptoms. I’m currently barely holding down a job and struggling to sleep more than 5-6 hours. 50 mg Sertraline Nov 2016 to Dec 2016 100 mg Sertraline Jan - March 2017 50 mg Sertraline April - June 2017 25 mg Sertraline July 2017 - Sept 2018 12.5 mg Sertraline Oct 2018 0 mg Nov 1 2018 Link to comment Share on other sites More sharing options...
ThatOneGirlStitch Posted December 10, 2021 Share Posted December 10, 2021 Just got chronic fatigue a few days ago. I'm am absolutely worn out. For a few hours I feel like I can drag myself around, but by 4pm I need to lay down and by 7pm I don't want to move a muscle. I can take energy just to mumble. Does anything help with chronic fatigue? When I was feeling worn out this past summer, my doctor said I as low on vitamin B12 and told me to take over the counter B12 1000mg a day. It seemed to help. Should I go back to doing that? That was before I got kindled by the remeron. Would it be risky to try that again after all this time? Could it make WD symptoms worse? Do I have other options? Any advice or thoughts appreciated. Current: Bupropion 450mg, Neurontin 800mg, Klonopin 0.5mg History: July 2020: started Cogentin 1mg, Lamictal 50mg, Zoloft 150mg, Zyprexa 5mg (+5mg as needed), Klonopin 0.5mg November 2020: stopped all meds cold-turkey February 2021: started Latuda 60mg, Lithium 300mg, Melatonin 5mg, Protonix 40mg, Topamax 25mg 2 weeks later: stopped Topamax, increased Lithium 900mg, started Klonopin 1mg, Lexapro 20mg, Neurontin 400mg April 2021: started Bupropion 150mg, Revia ?mg May 2021: stopped Revia, Protonix, Lexapro, increased Neurontin 800mg, started Celexa 10mg August 2021: decreased Celexa 5mg (stopped Celexa 2 weeks later), increased Bupropion 300mg September 2021: increased Latuda 80mg October 2021: decreased Lithium 600mg for 4 days, Lithium 300mg for 4 days, stopped Lithium, Latuda, increased Bupropion 450mg, started Remeron 15mg, decreased Remeron 7.5mg, stopped Remeron Link to comment Share on other sites More sharing options...
Mentor Happy2Heal Posted December 11, 2021 Mentor Share Posted December 11, 2021 You should probably get your level checked, low B12 will cause some distressing symptoms and taking a supplement to restore your levels to normal seems to me like it wouldn't cause a problem but then I don't know that for sure, so hopefully someone else will know I have to take B12 on a regular basis and did all thru out withdrawal/recovery. Don't recall having any issues with it. I take one pill per week. 1 PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 2013 too fast taper down to 5mg but WD forced me back to 20mgs June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until Sept, then acute WD hit!! reinstated at 0.3mgs in Oct. 2106 Tapered off to zero by Oct. 2017 Doing very well. Nov. 2018 feel 95% healed, age 63 Jan. 2020 feel 100% healed, peaceful and content Dec 2023 Loving life! ❤️ with all it's ups and downs Link to comment Share on other sites More sharing options...
Estman Posted March 21, 2022 Share Posted March 21, 2022 Hi! The last three weeks have been beautiful sunny weather We have a winter here, but the mood is extremely tired I noticed that when the weather went to spring, the depression weakened and I wanted to be more active. But now there is a lot of fatigue and the body is in pain Could it be related to spring fatigue? I eat otherwise normally and I have also taken Omega fish oil and vitamin D. the last reduction was 12 days ago But the fatigue has been greater for several weeks I like to do it, I can't be more active but I can't Xanax 0,5mg 1999-2019 a Xanax 0,5mg paar korda kuus, vajadusel Cymbalta 30mg 2012-25.04.2018 kitsenev 2-3 kuud,rasked sümptomid 1 nädal pärast viimast annust Amitriptüliin 25mg 25.05.18-20.01.19 ,kitsenev 2-3 kuuga, unetus, paanika-ärevus, segasusseisund, iiveldus Valdoxan 25mg 10.02.19-10.03.19, ei stabiliseerinud olukorda, Lorasepaam 10.02.19-20.02.19 vajadusel üleöö Brintellix 5mg 10.03.19-30.06.19 ,ei stabiliseerinud olukorda, hirme, segasust ja unetust, olin haiglas 1 nädal Olansapiin 5mg 01.03.19-02.08.19,unetuse leevendamiseks suureneb segasus, suureneb depressioon, tekib raske akatiisia Cymbalta 30mg 30.06.19-01.08.19,ei tööta enam, olukord ei stabiliseeru, jälle haiglas 2 nädalat Levomepromasiin 5mg 03.08.19-20.12.19 aitas magada, kuid suurendas segadust ja depressiooni Anafraniil 75mg03.08.19-15.12.19 15.12.19 , 35mg 17.05.20 , 27mg 01.01.21 16.07.21 oli päevane A19 mg 01.04.22 11mg 01.11.22 8,6mg, 01.11.23 6,5mg 01.01.24 5mg Link to comment Share on other sites More sharing options...
ThatOneGirlStitch Posted March 23, 2022 Share Posted March 23, 2022 On 3/21/2022 at 9:43 AM, Estman said: Hi! The last three weeks have been beautiful sunny weather We have a winter here, but the mood is extremely tired I noticed that when the weather went to spring, the depression weakened and I wanted to be more active. But now there is a lot of fatigue and the body is in pain Could it be related to spring fatigue? I eat otherwise normally and I have also taken Omega fish oil and vitamin D. the last reduction was 12 days ago But the fatigue has been greater for several weeks I like to do it, I can't be more active but I can't Yes the better weather can improve mood. I have not heard of it causing fatigue. I have heard people of people trying to be more active because of the weather and that triggering fatigue. Is it that your body just moved into a stage of fatigue? (It may have happened regardless of the weather) Or are you trying to move more? I can get hit by fatigue from having a conversation. But I did have a few weeks were it would not lift. Current: Bupropion 450mg, Neurontin 800mg, Klonopin 0.5mg History: July 2020: started Cogentin 1mg, Lamictal 50mg, Zoloft 150mg, Zyprexa 5mg (+5mg as needed), Klonopin 0.5mg November 2020: stopped all meds cold-turkey February 2021: started Latuda 60mg, Lithium 300mg, Melatonin 5mg, Protonix 40mg, Topamax 25mg 2 weeks later: stopped Topamax, increased Lithium 900mg, started Klonopin 1mg, Lexapro 20mg, Neurontin 400mg April 2021: started Bupropion 150mg, Revia ?mg May 2021: stopped Revia, Protonix, Lexapro, increased Neurontin 800mg, started Celexa 10mg August 2021: decreased Celexa 5mg (stopped Celexa 2 weeks later), increased Bupropion 300mg September 2021: increased Latuda 80mg October 2021: decreased Lithium 600mg for 4 days, Lithium 300mg for 4 days, stopped Lithium, Latuda, increased Bupropion 450mg, started Remeron 15mg, decreased Remeron 7.5mg, stopped Remeron Link to comment Share on other sites More sharing options...
Mentor Happy2Heal Posted March 23, 2022 Mentor Share Posted March 23, 2022 37 minutes ago, ThatOneGirlStitch said: Yes the better weather can improve mood. I have not heard of it causing fatigue. I have, I looked it up once and there's a biological explanation (or maybe it was a theory, I forget, sorry) Something to do with how your body stores heat for the winter (of course this is in areas that have seasonal changes) and then when it warms up, your body needs to 'throw off' or release that, and that is what may cause the fatigue in spring It always bothered me that I would be feeling happy and want to do more things in spring, but also be more tired than usual. Increased activity would certainly be an explanation or partial one, as well. but I have had the tiredness even without increased activity. I should google this again......... PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 2013 too fast taper down to 5mg but WD forced me back to 20mgs June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until Sept, then acute WD hit!! reinstated at 0.3mgs in Oct. 2106 Tapered off to zero by Oct. 2017 Doing very well. Nov. 2018 feel 95% healed, age 63 Jan. 2020 feel 100% healed, peaceful and content Dec 2023 Loving life! ❤️ with all it's ups and downs Link to comment Share on other sites More sharing options...
ThatOneGirlStitch Posted March 24, 2022 Share Posted March 24, 2022 6 hours ago, Happy2Heal said: I have, I looked it up once and there's a biological explanation (or maybe it was a theory, I forget, sorry) Something to do with how your body stores heat for the winter (of course this is in areas that have seasonal changes) and then when it warms up, your body needs to 'throw off' or release that, and that is what may cause the fatigue in spring It always bothered me that I would be feeling happy and want to do more things in spring, but also be more tired than usual. Increased activity would certainly be an explanation or partial one, as well. but I have had the tiredness even without increased activity. I should google this again......... I see, good to know it is a thing. Current: Bupropion 450mg, Neurontin 800mg, Klonopin 0.5mg History: July 2020: started Cogentin 1mg, Lamictal 50mg, Zoloft 150mg, Zyprexa 5mg (+5mg as needed), Klonopin 0.5mg November 2020: stopped all meds cold-turkey February 2021: started Latuda 60mg, Lithium 300mg, Melatonin 5mg, Protonix 40mg, Topamax 25mg 2 weeks later: stopped Topamax, increased Lithium 900mg, started Klonopin 1mg, Lexapro 20mg, Neurontin 400mg April 2021: started Bupropion 150mg, Revia ?mg May 2021: stopped Revia, Protonix, Lexapro, increased Neurontin 800mg, started Celexa 10mg August 2021: decreased Celexa 5mg (stopped Celexa 2 weeks later), increased Bupropion 300mg September 2021: increased Latuda 80mg October 2021: decreased Lithium 600mg for 4 days, Lithium 300mg for 4 days, stopped Lithium, Latuda, increased Bupropion 450mg, started Remeron 15mg, decreased Remeron 7.5mg, stopped Remeron Link to comment Share on other sites More sharing options...
Antecedent Posted October 15, 2022 Share Posted October 15, 2022 On 9/28/2018 at 10:38 AM, Vonnegutjunky said: Our symtoms on this website match theirs, to a tee. the coming and going of symtoms, can barely get out of bed, cognitive and sensory issues extreme sensitivity to foods and supplements, and they suffer off and on for years and years too. And it’s all caused by an inflammation of the CNS and brain. Yes, I have been suffering from similar symptoms after Covid and a rushed jab. ME, long covid and AD withdrawal do seem very similar. Now I am 15 months after covid. Initial symptoms: intermittent fever, fatigue with PEM, loss of appetite and nausea, anxiety. After many months of searching for diagnosis, I was prescribed Paxil. And it was working, I was able to eat, do some work, walk 2 km, drive etc. Then when I felt better, I decided to come off. Tapered too quickly. Ended up with my post-covid symptoms plus a lot more! Now barely can walk 15 minutes, can't eat, achy all over, sensitive to light and sound, strange sensations, bad anxiety etc. Sometimes symptoms ease a little bit, then come back. So I think some of the underlying mechanisms of CFS and AD are similar. January - May 2022 Paroxetine 20mg June 2022 - fast taper during 3 weeks to 0mg September 2022 - Hidazepam for ten days for anxiety and lump in the throat (set off terrible WD and health decline) December 16.2022 - Jan 07, 2023 mianserin - 5-10-5-2,5-1,25mg, then stopped January 20, 2023 - escitalopram 2,5mg (reinstated instead of Paxil) January 25, 2023 - now - escitalopram 5mg Link to comment Share on other sites More sharing options...
Tigz91 Posted July 28, 2023 Share Posted July 28, 2023 I've just found this thread and I really think I have CFS/ME I'm just about to be 9 months off CT and I'm really struggling with what feels like fatigue and adrenal overload. Symptoms I still have constantly all the time: • off balance/drunk on a boat feeling. This happens even when sitting and laying down but can be really bad when sleeping on my side. I also get really weak when I sit or lay down Maybe dysautonomia? Is it Presyncope? • heart palpitations • adrenaline rushes. When these happen I feel like I might pass out. •morning cortisol spikes •anxiety •paresthesia • Akathisia • dry mouth and eyes •GI issues Symptoms that seem to come and go regularly • my eyes have pressure and feel heavy • legs feel sore and heavy •brain fog • inflammation around my body • migraines • burning up and feeling cold •intrusive thoughts • struggling to think • air hunger I've read that a lot of these symptoms are those of CFS and just wanted to see if anyone else gets these and seen improvement. Citalopram 10mg sep14-nov14, cit 20mg nov14-jan15, cit 40mg jan15 -jan22, tapered cit 40mg-0mg in 10 days. mirtazapine 15mg then 30mg jan22-Mar22, tapered in 1 week. citalopram 20mg apr22- may22( had a reaction this time, hives everywhere), no taper cold turkey sertraline 50mg then 100mg may22-nov22, tapered in 2 weeks. Link to comment Share on other sites More sharing options...
Mentor Happy2Heal Posted July 28, 2023 Mentor Share Posted July 28, 2023 14 minutes ago, Tigz91 said: Symptoms I still have constantly all the time: • off balance/drunk on a boat feeling. This happens even when sitting and laying down but can be really bad when sleeping on my side. I also get really weak when I sit or lay down Maybe dysautonomia? Is it Presyncope? • heart palpitations • adrenaline rushes. When these happen I feel like I might pass out. •morning cortisol spikes •anxiety •paresthesia • Akathisia • dry mouth and eyes •GI issues Symptoms that seem to come and go regularly • my eyes have pressure and feel heavy • legs feel sore and heavy •brain fog • inflammation around my body• migraines • burning up and feeling cold •intrusive thoughts • struggling to think • air hunger I've read that a lot of these symptoms are those of CFS and just wanted to see if anyone else gets these and seen improvement. during my withdrawal and recovery I had all of those symptoms (pus others not mentioned), and all of them went away Going off these drugs take a huge toll on our body and brain. All sorts of odd symptoms come and go in different combinations as you are healing If you go to the Success Stories you can see that most everyone sees improvement over time. you will heal too 1 PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 2013 too fast taper down to 5mg but WD forced me back to 20mgs June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until Sept, then acute WD hit!! reinstated at 0.3mgs in Oct. 2106 Tapered off to zero by Oct. 2017 Doing very well. Nov. 2018 feel 95% healed, age 63 Jan. 2020 feel 100% healed, peaceful and content Dec 2023 Loving life! ❤️ with all it's ups and downs Link to comment Share on other sites More sharing options...
Tigz91 Posted July 28, 2023 Share Posted July 28, 2023 2 minutes ago, Happy2Heal said: during my withdrawal and recovery I had all of those symptoms (pus others not mentioned), and all of them went away Going off these drugs take a huge toll on our body and brain. All sorts of odd symptoms come and go in different combinations as you are healing If you go to the Success Stories you can see that most everyone sees improvement over time. you will heal too Thank you for your reply, I think I'm just in a bad wave and some of these symptoms are ones I've not had before. I think I overdid things a little last week as I done a lot of physical stuff( building 2 horse stables) and I think that has thrown me into a wave which has made me thing CFS. How are you doing now? Citalopram 10mg sep14-nov14, cit 20mg nov14-jan15, cit 40mg jan15 -jan22, tapered cit 40mg-0mg in 10 days. mirtazapine 15mg then 30mg jan22-Mar22, tapered in 1 week. citalopram 20mg apr22- may22( had a reaction this time, hives everywhere), no taper cold turkey sertraline 50mg then 100mg may22-nov22, tapered in 2 weeks. Link to comment Share on other sites More sharing options...
Mentor Happy2Heal Posted July 28, 2023 Mentor Share Posted July 28, 2023 4 minutes ago, Tigz91 said: I think I overdid things a little last week as I done a lot of physical stuff( building 2 horse stables) and I think that has thrown me into a wave which has made me thing CFS. How are you doing now? wow you built 2 horse stables?!?! during withdrawal/recovery? I'm impressed Yes that might be a factor in how you are feeling now For comparison, during my recovery, I could not tolerate a slow 30 min walk after around 1 pm or so. If I did anything physical later in the day I had a very hard time falling asleep, and would then wake up many times with a cortisol rush or something like that. You are doing great to be so active during this time! I am doing wonderfully! if you read thru my signature, you can see that I was on lots of different psych drugs for over 40 yrs. I am now off of all of them and have been for almost 5 yrs I am doing GREAT!! I am truly living my best life now! I wish I had done this a long time ago. 1 PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 2013 too fast taper down to 5mg but WD forced me back to 20mgs June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until Sept, then acute WD hit!! reinstated at 0.3mgs in Oct. 2106 Tapered off to zero by Oct. 2017 Doing very well. Nov. 2018 feel 95% healed, age 63 Jan. 2020 feel 100% healed, peaceful and content Dec 2023 Loving life! ❤️ with all it's ups and downs Link to comment Share on other sites More sharing options...
Tigz91 Posted July 29, 2023 Share Posted July 29, 2023 16 hours ago, Happy2Heal said: wow you built 2 horse stables?!?! during withdrawal/recovery? I'm impressed Yes that might be a factor in how you are feeling now For comparison, during my recovery, I could not tolerate a slow 30 min walk after around 1 pm or so. If I did anything physical later in the day I had a very hard time falling asleep, and would then wake up many times with a cortisol rush or something like that. You are doing great to be so active during this time! I am doing wonderfully! if you read thru my signature, you can see that I was on lots of different psych drugs for over 40 yrs. I am now off of all of them and have been for almost 5 yrs I am doing GREAT!! I am truly living my best life now! I wish I had done this a long time ago. Thank you for your message Citalopram 10mg sep14-nov14, cit 20mg nov14-jan15, cit 40mg jan15 -jan22, tapered cit 40mg-0mg in 10 days. mirtazapine 15mg then 30mg jan22-Mar22, tapered in 1 week. citalopram 20mg apr22- may22( had a reaction this time, hives everywhere), no taper cold turkey sertraline 50mg then 100mg may22-nov22, tapered in 2 weeks. Link to comment Share on other sites More sharing options...
Estman Posted August 4, 2023 Share Posted August 4, 2023 On 7/29/2023 at 12:26 AM, Happy2Heal said: wow you built 2 horse stables?!?! during withdrawal/recovery? I'm impressed Yes that might be a factor in how you are feeling now For comparison, during my recovery, I could not tolerate a slow 30 min walk after around 1 pm or so. If I did anything physical later in the day I had a very hard time falling asleep, and would then wake up many times with a cortisol rush or something like that. You are doing great to be so active during this time! I am doing wonderfully! if you read thru my signature, you can see that I was on lots of different psych drugs for over 40 yrs. I am now off of all of them and have been for almost 5 yrs I am doing GREAT!! I am truly living my best life now! I wish I had done this a long time ago. It's great that you have returned after so many years! I am often tired and exhausted I have been quietly reducing my clomipramine for 3.5 years I'm moving slowly with v because I also have a lot of digestive problems But I have a lot of fatigue and exhaustion Even a change in weather creates a wave of dizziness/brain fog and extreme fatigue and exhaustion This happens when a storm falls and there is also a rainy period Often there is a migraine first and then fatigue/apathy and exhaustion Like some dysfunction This in turn causes anxiety because I feel that there is absolutely no energy. If you got rid of the drugs, how long would it take for the fatigue to subside and the energy to be restored Did you also experience chronic fatigue/fatigue during your withdrawal symptoms? Xanax 0,5mg 1999-2019 a Xanax 0,5mg paar korda kuus, vajadusel Cymbalta 30mg 2012-25.04.2018 kitsenev 2-3 kuud,rasked sümptomid 1 nädal pärast viimast annust Amitriptüliin 25mg 25.05.18-20.01.19 ,kitsenev 2-3 kuuga, unetus, paanika-ärevus, segasusseisund, iiveldus Valdoxan 25mg 10.02.19-10.03.19, ei stabiliseerinud olukorda, Lorasepaam 10.02.19-20.02.19 vajadusel üleöö Brintellix 5mg 10.03.19-30.06.19 ,ei stabiliseerinud olukorda, hirme, segasust ja unetust, olin haiglas 1 nädal Olansapiin 5mg 01.03.19-02.08.19,unetuse leevendamiseks suureneb segasus, suureneb depressioon, tekib raske akatiisia Cymbalta 30mg 30.06.19-01.08.19,ei tööta enam, olukord ei stabiliseeru, jälle haiglas 2 nädalat Levomepromasiin 5mg 03.08.19-20.12.19 aitas magada, kuid suurendas segadust ja depressiooni Anafraniil 75mg03.08.19-15.12.19 15.12.19 , 35mg 17.05.20 , 27mg 01.01.21 16.07.21 oli päevane A19 mg 01.04.22 11mg 01.11.22 8,6mg, 01.11.23 6,5mg 01.01.24 5mg Link to comment Share on other sites More sharing options...
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