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Chronic Fatigue Syndrome, ME, CFS

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btdt

When I was dx with cfs/fibro I had taken prozac and I have a thread on here called prozac induced cfs.  There you will find a list of drugs that cause mitochondria damage prozac is one the list would likely be longer now as they add to it all the time.  It was my thinking since cfs and fibro are both caused by mitochondria damage or so said the science of the day... that I had found my cause.

  I was dx in 94 years after I had the prozac and had not recovered I had a SAR to prozac. 

There is one article I found also on here some place where a person was dx with fibo or cfs only to have it changed to serotonin syndrome by another doctor treated and recovered.  

 

cfs fm and mcs are now seemingly grouped together... I now have mcs... multiple chemical sensitivity.  

 

The idea that even one person or one article had cfs and ss mixed up makes me wonder the symptoms are very much alike enough to cause a misdiagnosis at least one time. 

 

Serotonin syndrome misdiagnosed as fibro here is the link

http://survivingantidepressants.org/index.php?/topic/1152-fibromyalgia-caused-by-serotonin-syndrome/

 

Nobody has to read it but if you want to it is there on offer as it everything on the net. 

peace all


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Seeker7

Has WD ever led to Chronic Fatigue Syndrome for you folks? I've been wondering about this possibility since my fatigue has become so extreme in the last few years. It's frustrating trying to find reliable info on CFS in the first place, since it seems so hard to even diagnose. That makes me even more reluctant to go to an allopath about it. I'm terrified at the possibility of not being able to work, pay bills, being homeless, etc. Disability seems extremely hard to get for anyone, never mind for something "vague" like this. Not that I know the first thing about that; I'm still slaving away full-time, but I can feel myself getting worn down. I need a break or a cure, and I'm not sure if there is treatment for CFS? Even assuming I have it, which I don't know.

 

Just trying to gather more info from those who have also been through WD.

 

If anyone has had it, have you healed? Fully or partially?

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powerback
2 hours ago, Seeker7 said:

Has WD ever led to Chronic Fatigue Syndrome for you folks? I've been wondering about this possibility since my fatigue has become so extreme in the last few years. It's frustrating trying to find reliable info on CFS in the first place, since it seems so hard to even diagnose. That makes me even more reluctant to go to an allopath about it. I'm terrified at the possibility of not being able to work, pay bills, being homeless, etc. Disability seems extremely hard to get for anyone, never mind for something "vague" like this. Not that I know the first thing about that; I'm still slaving away full-time, but I can feel myself getting worn down. I need a break or a cure, and I'm not sure if there is treatment for CFS? Even assuming I have it, which I don't know.

 

Just trying to gather more info from those who have also been through WD.

 

If anyone has had it, have you healed? Fully or partially?

Hi seeker im wary of giving you an in-depth opinion because you shouldn't  scare your self stiff ,holding down a life like you are is brilliant ,take this and work around it ,learn everything you can control ,not about stuff you cant ,in my opinion withdrawl does cause a lot of issues for our bodys but don't let your mind make you think you'll be that person.

Physical, emotional ,psychological,dietry ,these are all stresses on our body's   and we need to maintain and nurture them

,get good at reading your surroundings and lifestyle and how it impacts you to be able to live productively ,not just in a sense of economical but in aspects of respecting yourself  and your health .

Ive pushed my body negatively for a lot of my life but all that was nothing compared with what ive dealt with the last 2 years .

Get your rest ,you all ready can see signs ,take this sign and learn but control your worry ,this will destroy you if you let it .read the symptom's and self care section ,its not there just to fill up space,99% of your time on these sections and 1% of your time freaking out is a better us of your time and life .

Take care .

 


Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

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Vonnegutjunky

Mods. I apologize if this is in the wrong forum.

Also I apologize if this has already been discussed. 

I searched chronic fatigue syndrome in quotes before posting but I couldn’t find anything.

 

the reason I posit the question is because of my recent visit to an integrative medicine doc. 

She gave me a genetic test and discovered 7 polymorphisms. Additionally I have neuroinflmmation, that has only been detected by the high sensitively crp test.  An mri will get done in December, I digress. 

 

Here is the thing . After my adverse reaction and the subsequent taper I continued to have specific symptoms, ones that most of us have. Anxiety, insomnia,  brain fog,  cognitive issues. Light and sound sensitivities, vision, extremely sensitive to food and supplements, etc - just all around feeling like your in a damn nightmare and can barely function anymore, and it comes and goes. 

 

So as I’m googling looking for possible cbd oil as a treatment for my symptoms I come across forums with people suffering from Chronic Fatigue/Myalgic Encephalomyleitis. 

 

Our symtoms on this website match theirs, to a tee.

 

the coming and going of symtoms, can barely get out of bed, cognitive and sensory issues extreme sensitivity  to foods and supplements, and they suffer off and on for years and years too. 

 

And it’s all caused by an inflammation of the CNS and brain. 

 

What if ssri withdrawal triggers an inflammatory  response in some of us? And it mimics CFS/ME?

 

 All these years I thought, the waves and windows are still going from the med, but I found out I have CFS - my integrative doc said the Paxil most likely triggered it. And she’s not suprised with my polymorphisms. I’m wondering if others may have a genetic predisposition to having an inflammation response when meds are removed.

Arent SSRIs anti-inflammatory ? 

 

I am am not the smartest person, and I could be grasping at straws here, but I felt compelled to at least put it up here to see what everyone (ahem, Alto) thought. 


 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

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India

Does anyone get a weak, and heavy limb sensation? I get it accompanied by a feeling of weakness in my heart too. This is a new symptom. It's different to other fatigue I've had in the past. Like ppl say, I feel as if I have flu. I can no longer walk as far as I did. It's the strangest feeling of weakness..


1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     

2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante

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DogLover
On 9/28/2018 at 2:38 AM, Vonnegutjunky said:

 

 

 

 


What if ssri withdrawal triggers an inflammatory  response in some of us?

 

have dug any deeper into this? tried anti-inflamitory proticals?


20+ years EffexorXR 150mg. and Lorazepam PRN <- I rarely took this and never developed a problem.
2017 (nov-dec?) -> Feb 2018 fast taper - flipped out in Feb. Reinstated with 75mg-150mg (?not sure) stabilized
2018 Feb Began year long taper - somehow made it to 50pellets, did fine
          Sept -  17 bbs <-- where I started keeping track
           Oct - 16 bbs, Nov - 15 bbs, Dec - 14 bbs
2019 Jan - 13bbs, Feb - 12bbs, Feb Had problems - found SA
           March 19 - 15bbs,  April 17 - 20bbs  <--Updosing

 

Supplements: Multivitamin,  Fish Oil, B Complex, Magnesium, GABA,  L-Theanine, Inositol

Low sugar/carb diet, plenty of exercise. Meditation
Blood test Results: High in Copper, Low in Zinc, Very high whole blood hystamines

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Stormstrong

Anyone else experience chronic fatigue on 2nd or 3rd week of a new taper?

 

It's like clockwork now, something I've come to expect. I can barely sit up to type this and may need to go back to bed for another 12 hours of sleep. Eventually the fatigue goes away, by week 3 or 4, I'm not sure.

 

Anyone else experience this?

 

Edited by ChessieCat
added topic title

2000: Paxil, low dose. 2001: Paxil, quickly tapered off. 2006: Zoloft, 25mg. 2007: Wellbutrin, low dose, discontinued after a week or a month. 2007-2009: Zoloft, increasing dose (up to 75mg). 2009-2011: Zoloft, failed withdrawal attempts (cold-turkey; fast tapering). 2009-2011: Trying out Cymbalta, Celexa, Prozac, Lexapro, Ambien, Ativan, and Xanax. 2012-2015: Zoloft, 100mg to 200mg. 2013: Trazadone for Zoloft-induced insomnia, 25mg to 50mg.  2015: Trileptal, dose?, withdrew; Bupropion, up to 200mg. 2016: Zoloft, 137mg, Bupropion, 150mg, Trazodone, 25mg.

05/21/16: Began Zoloft taper - 10% from 150mg - 137ish mg

06/23/16: Zoloft taper - 125mg

08/03/16: Bupropion XL taper - cut 150mg pill in crude half (mistake)

10/31: Zoloft successfully down to 100mg. Staying on 100mg for 2-3 months to let my brain rest.

11/09: Wellbutrin SR prescribed, 150mg once a day, for withdrawal.

12/11: Wellbutrin SR, twice daily - minus 18ishmg = 112.50mg

09/30/17: Off Wellbutrin SR successfully. Zoloft taper: 90ish mg (shaving it off). Trazodone: still at 50mg.

June 2018: Zoloft: 80ish (shaving off). Trazodone: 6mg. End of 2018: Off Trazodone.

01/20: Zoloft: 70ish?

08/20: Still around 80 or 70. Tapering by only 15 shaves each month.

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ChessieCat

Might it be connected to your monthly cycle?


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 17 Oct 2020:  Pristiq 0.56 mg (compounded + liquid)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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ChessieCat
On 5/20/2015 at 11:18 AM, Petunia said:

I also had 'post exertional malaise' develop in withdrawal, I still have it and have to be careful with exercise because if I overdo it, it will trigger a wave. There are some similarities between withdrawal and CFS.

 

This article from Beyond Meds has some useful information:

 

Protracted psychiatric drug withdrawal syndrome, chronic illness, CFS, Fibromyalgia. Yeah, they all have things in common.

 


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 17 Oct 2020:  Pristiq 0.56 mg (compounded + liquid)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Machi

@ChessieCatThank you for the information.

I couldn't update our journey so long. But I will. 
TK's been keeping his cessation for 18 months now. 


Clonazepam(CLZ) Clomipramine(CLI) Paroxetine(PAR) Escitalopram(ESCIT)

Diazepam (DIZ) Propranolol(PRO)

2017 Feb. CLZ 3mg, CLI 50mg,  June.-Sep. CLZ liquid tapering failed. Extremely ill. nothing could stabilize. Oct.  Crossover CLZ 3mg to DIZ 60mg, Start Ashton Protocol tapering. PAR 12.5mg, PRO 10mgX3 as needed.  2018  tapering continued till June  DIZ tapering 10%/ month or slower, June 26 Sudden Crossover PAR 12.5mg to ESCIT 10mg, Dec.12 Sudden Crossover DIZ 6mg to CLZ 1.5mg(2 wks), Dec. 20 ESCIT tapering finished.  2019  Jan.1 Holding CLZ 0.5mg, dull pain started in limbs, Feb. 11  CLZ tapering too difficult/jumped 0.125mg→0mg, Mar.16 Fibromyalgia diagnosis, Mar.19~  Neurotropin tab 4 n.u. 2- 6tablets/D. started. Mar.19 At pain clinic: Neo Vitacain Injection 5mlX2Mar.22 Fascia release injection, Mar.24~ tabacco cessation, Only Mar.25, April.8,9 Pregabalin 75mgX2, 

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Stormstrong
On 9/6/2020 at 5:20 PM, ChessieCat said:

Might it be connected to your monthly cycle?

Not necessarily. The tapering half-life of Sertraline that kicks in after a week and a half, doesn't always fall in the middle of my PMS. The fatigue feels different, also. Actually feels like Neuro Fatigue


2000: Paxil, low dose. 2001: Paxil, quickly tapered off. 2006: Zoloft, 25mg. 2007: Wellbutrin, low dose, discontinued after a week or a month. 2007-2009: Zoloft, increasing dose (up to 75mg). 2009-2011: Zoloft, failed withdrawal attempts (cold-turkey; fast tapering). 2009-2011: Trying out Cymbalta, Celexa, Prozac, Lexapro, Ambien, Ativan, and Xanax. 2012-2015: Zoloft, 100mg to 200mg. 2013: Trazadone for Zoloft-induced insomnia, 25mg to 50mg.  2015: Trileptal, dose?, withdrew; Bupropion, up to 200mg. 2016: Zoloft, 137mg, Bupropion, 150mg, Trazodone, 25mg.

05/21/16: Began Zoloft taper - 10% from 150mg - 137ish mg

06/23/16: Zoloft taper - 125mg

08/03/16: Bupropion XL taper - cut 150mg pill in crude half (mistake)

10/31: Zoloft successfully down to 100mg. Staying on 100mg for 2-3 months to let my brain rest.

11/09: Wellbutrin SR prescribed, 150mg once a day, for withdrawal.

12/11: Wellbutrin SR, twice daily - minus 18ishmg = 112.50mg

09/30/17: Off Wellbutrin SR successfully. Zoloft taper: 90ish mg (shaving it off). Trazodone: still at 50mg.

June 2018: Zoloft: 80ish (shaving off). Trazodone: 6mg. End of 2018: Off Trazodone.

01/20: Zoloft: 70ish?

08/20: Still around 80 or 70. Tapering by only 15 shaves each month.

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Miko789
On 10/13/2018 at 9:23 PM, India said:

 I feel as if I have flu. I can no longer walk as far as I did. It's the strangest feeling of weakness..

 

have it too.

is there cure for cfs?


2011 protracted withdrawal symptoms from Effexor, managed to come off
2013-2015  risperidone consta 50 mg, started tapering from March 2015 to 1,66mg/day and from 02/2015 started seroxat 10mg/day

06/16 Seroxat 3mg/day, olanzapine 5mg,risperidone consta 2,5mg

09/16 Seroxat 2,7mg,olanzapine . 5mg,risperidone  consta 2,5mg

01/17 Seroxat 2,0mg,olanzapine 5mg,risperidone consta 25mg/every 15days

05/17 Seroxat 1mg,olanzapine 5mg,risp.consta 25mg/every 15days

06/17 Seroxat 2drops,olanzapine 5mg,liquid risperidone2mg

07/17 Seroxat 1 drop,olanzapine 5mg,Risperidone 0mg, 10/17 Seroxat 0mg,olanzapine,5mg,Risperidone 0mg, 12/17 Seroxat 1/2 drop, olanzapine 5mg,  04/18 Olanzapine 1,25mg, 04/18 xanax 0,5mg

24/06/2019 doc said to take 10mg olanzapine for 13days and down to 5mg
 been taking 10mg for 14 days, 5mg for 8 days  and  tapered to  3/4quart. 5mg  for 14 days, 1/2 5mg for 14 days,

01/08/19 2,5mg

Supplements Omega 3, Turmeric, Magnesium

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