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Blog: My akathisia experience by akathisiainfo

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luv2knit

True, Mort. I didn't do well with Epsom salts before withdrawal. Funny (not so much) story, though. I can only tolerate supplements I took before withdrawal. I take oral mag., and am trying to SLOWLY increase the mag. using mag. oil. One DROP (literally) more than I am used to will put me in complete insomnia and severe akathisia for days. I have to increase by one drop about once a month. I can tell the difference (improvement) as I'm increasing, though, so I'm being stubborn.

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geminigirl

Hey guys,

 

Just wondering,

 

Do you know if akathesia is caused by withdrawal or a side effect of meds?

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scallywag

geminigirl, there are reports of both in this thread, starting with the first post by Alto.

[The linked blog] Documents akathisia as a result of drugs, with many reports of recovery in the comments http://akathisiainfo.wordpress.com/2013/08/13/my-akathisia-experience/

 

 

Since I've tapered off most of the drugs I was on I've realised just how bad my akathisia was,it's dropped to almost zero now I'm nearly off zyprexa

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adrianctn

I wonder how everyone with akathisia is doing?

 

The intensity of my AK varies throughout the day.

 

I recently had 1 week without it (barely noticeable). It was my best week since the horrible decision of taking several pills of Prozac.

 

But:

 

I have to walk almost all day. At peaks, I cannot eat, cannot concentrate on other things, cry because of pain/agitation/restlessness/terror and end up horribly exhausted.

 

Magically, I can sleep normally almost always.

 

Sending all of you healing thoughts

 

Adrian

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Junglechicken

I experienced the full force of this throughout March and April of this year - horrendous.

 

My weight dropped by 7Ibs in one month. I couldn't eat, couldn't stop moving, crying, and thought I was going to die on a daily basis as well as feeling suicidal. It was mental torture. Literally didn't know where to put myself from one minute to the next. It was this period in particular where I was too scared to take a shower.

 

Not to mention the endless negative rumination/mind chatter.

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adrianctn

What did you do to make it stop? Reinstated?

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Junglechicken

adrianctn - it just stopped once my CNS settled.

 

NB: The more experienced Mods may have other theories as to why this happened.

 

Without doubt, the re-location back to the UK from Canada in Feb and the 7 HR time difference I had to deal with, (which involved a gradual daily 1hr adjustment of the time I took my medication) set off that wave and the akathesia.

 

I was extremely messed up and couldn't function, so much so, that my husband found me a psychiatrist.

 

The psychiatrist helped me to see my symptoms in a non-threatening light and I gradually felt better. I have over the last few weeks been in a me tal trough due to the stress of another impending move and starting working again after a year of unemployment.

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adrianctn

Thank you for your reply, JC.

 

I understand, it resolved by itself. Your re-instatement was last year, not this year.

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Junglechicken

Thats correct, I re-instated in Nov 2015.

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Dee22

I'm seeing a connection here with marijuana. My Akathisia has gradually been getting better although the past two days have been a bit difficult. I was trying to trace my timeline back and about a week before I had my severe reaction, I smoked some pot (which I never do) and had a HUGE panic attack. After that incident, I had a couple more mild panic attacks few days later. This was not uncommon for me, I used to smoke more frequently in my 20s and would have panic attacks from it from time to time. 

 

About a week or 2 later is when I reinstated the Celexa and had the severe Akathisia reaction. The weird thing was that upon the onset, it felt exactly like my pot panic attack (started with a surge of adrenaline from my shoulders down to my wrists). Then after a few hours I realized it something more severe as the burning skin and shooting pains set in. 

 

It makes me think had I not smoked the pot, the reinstatement would have been successful. I'm sure my protracted withdrawal didn't help, but here's another bit of info... me and my sister were on the same medication (Celexa) for the same amount of time, then stopped at around the same time. After 6 months or so off, we developed the same exact withdrawal symptom, tingling in ring finger and pinky. She reinstated with no problem. 

 

I'm curious to see if there are any other marijuana connections in other cases. 

 

*Marijuana effects dopamine and norepinephrine and so does akathisia. 

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Annabee

How are all of you doing with akathisia

I hope you've recovered ..

 

I'm in it now.

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luv2knit

At 29 months out, I still have akathisia 24/7. The intensity had improved about 30-40% until about 12 days ago, when I got slammed back practically to square one.

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AliG

Luv . Was there anything that provoked that ?  Any explanation or just random?

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Rain

It's so much deeper than anxiety and depression. It's a feeling of terror beyond anything anyone can imagine. A feeling of darkness and terror residing inside your body that makes you need to move your limbs over and over and over. Keeping still is incredibly hard. It's a feeling of screaming from within. It makes you want to scream and scream and scream. You'd do just about anything to make it stop but you can't. You just have to live with it. You feel like there's something in your body that you want to remove. It's accompanied unimaginable feelings of doom and darkness. Like a feeling of demons being drilled into your head. It's like the feeling you get waking up from a nightmare multiplied by 10. Adrenaline lives in your hands and in your legs. It washes over your whole body all day everyday. It's unthinkable.

Exactly what I am going throgh now, I couldn't sleep for whole night, it just a torcher in my whole body especially tummy, legs... 

 

I don't know if this is caused by my 1/10 cut of lexapro or worsening old WD since 1 year ago. 

 

I need some condidence, I am really afraid that this could be around all my rest of my life, I am only 27. 

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luv2knit

Best I can tell just random, Ali!

 

XOXO

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AliG

 Luv. I'm very sorry too. I hope it's a wave and that you revert back to your baseline improvement of 30 - 40 %.

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luv2knit

Thanks, Ali. Me too! Sleep somewhat better again last night, so hopeful.

 

XOXO

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WinningThrough

Luv I'm really really sorry to hear you still have this too. I'm 30 months out now and mines still 24/7. We are about the same timescale. Let's hope 2017 brings some changes! Thinking of you all.

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Cherry47

Best wishes Luv and Winning for a better 2017

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luv2knit

WT, I have been thinking about you and wondering how you are doing. Keeping you in my prayers!

 

Thanks, Cherry! Praying 2017 is a better year for all of us!!

 

XOXO

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WinningThrough

At 29 months out, I still have akathisia 24/7. The intensity had improved about 30-40% until about 12 days ago, when I got slammed back practically to square one.

Hi luv. Thinking of you.

 

I'm so sorry you got slammed backwards.

 

You said yours had improved about 30-40%. I just wondered, was there anything you did to improve it or did it just improve on its own?

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luv2knit

Hey WT! Just time. It is/was still 24/7, mind you--but the intensity had improved. Hopefully I am moving in the right direction again. Still not back where I was, though, and sleep is going backwards!

 

Hoping you are seeing some degree of improvement!!

 

XOXO

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WinningThrough

Hey WT! Just time. It is/was still 24/7, mind you--but the intensity had improved. Hopefully I am moving in the right direction again. Still not back where I was, though, and sleep is going backwards!

Hoping you are seeing some degree of improvement!!

XOXO

Thanks luv. I'm so sorry it's still 24/7 for you too but good that it lessened for a while. I'm sure it will lessen again soon. Sorry about the sleep..mine is rubbish as well! I wish I could say I was seeing improvement but unfortunately I'm not yet and I have new symptoms I didn't have before. We will get there in the end! Xox

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luv2knit

Yes, we will, WT. I'm sorry you're still suffering. From what I have seen in the various groups I'm in, this does eventually end once one is off the drugs. (I believe we've both been off about the same time--give or take a month?!) While some are sooner, of course, some have been around 3 years. One guy just randomly got rid of the akathisia over about a 3-week time period, after having NO windows for about 4 years. Hang in there!!

 

XOXO

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Vonnegutjunky

Hello everyone -

I also got akathisia from a reinstatement of Paxil - normally a 10mg user- during wd my doc bumped me to 20mg - the next day I had it and isn't even know it - I stayed like that,for 4 months

 

The acute 24/7 horror and terror have disappeared - I never had the pacing - just felt like I was plugged in- like a light bulb

 

For the last year I get waves and windows -

For the last 2 months during my windows I feel 100% normal for a few days -

So I am very grateful

 

But I still get waves of this horrid depression and a fear (which is not coneneted to anything cognitively)

 

I hope these waves eventually stop -

I don't know that they ever will-

I feel like I will be stuck with them for the rest of my life -

It makes me really sad and it really interrupts my life

 

I no longer have any confidence

And I don't make plans any more since I never know when a wave will come

 

It is horrible depression

But it's better than akathisia

 

I'm so sick of feeling fear for no reason -

 

But outside of these waves I feel normal-

 

I have not used any supplements or meds at all-

 

I just slowly tapered my Paxil through it -

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Hibari

I'm sorry if this has been spelled out clearly here but the question I have is:  During my withdrawal I have suffered from anxiety and despair after i make my cuts.  

These days, I am also more agitated and restless.   Is this what pushes the awful depression and anxiety of wd into akathisia? 

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Vonnegutjunky

I personally don't think so Hibari- akathisia is not like anxiety - it's not even close -

It's something all together different - you will know something is just wrong if it happens to you -

You almost can't describe it either - and no one really knows why or how

Some get it and others don't

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Hibari

Thank you for your reply.   I am more exhausted these days that I think you are right-exhaustion does not seem to be part of the symptoms described. 

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kronymom

Hi All, got a question. My story is posted in this site under adverse reactions. Is it possible to develop akathesia again years into a protacted withdrawal? Adverse reaction eight years ago, got "better" then hit my nerves again a few times over the years which weakened them more each time. Made it through the recovery each time. In Aug 2016 had to take two days of d-mannose powder to kick a uti. Made it two days and last dose broke my nerves down again. UTI gone but back in a breakdown again. Coming back from that started grinding then into clenching my jaw in Nov 2016. It caused terrible anxiety and akathesia type issues until got jaw splints going. Then nerves were happier and I started to recover from that. Unfortunately all that year and a half of clenching kept weakening my nerves in there. I found that out last month Feb 9 when I was socializing with some family friends for a couple hours and got home and felt like nerves were fried and by next day could tell. I was getting worse the more I tried to talk. Talking is stimulating my cns which is causing akathesia symptoms. The less I talk which is basically nothing the better I get. The clenching gets worse the more I keep stimulating my nerves which further aggravates the akathesia from correcting itself. It's crazy I know couldn't make this up if I tried. I'm scared of the future and what this means for me. It's hard living like this. Not talking to my hubby or kids. Writing, texting, anything to communicate. I know this is akathesia but why would it start so late in the game? To much cns stimulation over the years? Thanks for any thoughts. Hanging by a thread. 

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Allreadygone

This thread has been down for months just wondering how people are doin?Im goin thru AK for the second time both med induced.First time from zyprexa,seroquil both ANtipsycotics added to my AD cocktail due to bad symtoms.CT both drugs and lowered my ADs and after 6-8months of waves and windows was able to function with only DP symtom left.This time I was titrating my meds again went lil to fast and forgot a portion of the Effexor ,,tried to updose lamictal for 2/3weeks and AK hell returned.After 2months had 3week window,started eating lot of sugar at night and goin in public to soon may have brought symtoms back just as bad as initial.

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