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Blog: My akathisia experience by akathisiainfo


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@UnfoldingSky

thank you for your reply. I’m terrified it’s not going to go away. The akathesia and suicidal thoughts are horrific 

  • 5-28-20 given cymbalta. Had bad reaction. Stopped immediately. 
  • 6-20-20 stopped vicodin after 5 years. Suffered akathesia. 
  • 7-20-20 to 11-13-20 mirtazapine. On 7.5 tapered for 8 weeks  jumped off at 1.5
  • 11/20 to Feb 3. .25 klonopin, tapered 4 weeks. Jumped off at .0935
  • present - med free. Still suffering from akathesia, insomnia,depression and anxiety
  • melatonin 1mg. Magnesium 400mg daily
  • Vicodin one week. Stopped 12-5-21
  • temezapam prn 
  • sonata sleeping pill. Prn 
  • tried kratom for one week
  • 1-15-22 - symptoms - visual issues, dizziness, severe brain fog, suicidal ideations
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Please read the Intro topics of the people @UnfoldingSky mentioned. Everyone is terrified their symptom pattern will go on forever.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 10 months later...

I've recently realised for sure I am having symptoms of this akathesia. I don't have the urge to pace and move all the time which made me think I didn't have it, but I have these very dark scary intrusive distorted thoughts and a constant high alert state of panic and anxiety in the body, like someone's plugged me into a power socket. I get very angry very quickly and the smallest sound triggers an extreme fear response in me. This symptom really is next level horrible!

History of depression and anxiety. Symptoms of PTSD.

1998-1999 Venlafaxine 2006-2007 Prozac. 2013-15 Sertraline 50mg. 2015 cross-tapered to citalopram 20mg. 2015-2021 Citalopram 20mg (brief increase to 30mg for 2/3 months in 2019.

01/2021 Dropped from 20mg to 10mg, back up to 20mg til June.

25/6/21 stopped CT. Started 50mg 5htp after a week without citalopram in the hope this would balance out my serotonin levels. After 3 days increased to 100mg 5htp.
11/7/21 Stopped 5htp with the intention of reinstating citalopram at 1mg.  

16/7/21 Reinstated cit at 1mg.

2/8/21 Increased dose to 2mg. 
28/11/21 10% reduction to 1.8mg.

8/12/21 2mg 6/1/22 1.8mg 10/2/22 1.6mg 13/5/22 1.5mg 4/6/22 1.55mg 4/7/22 1.4mg 4/8/22 1.25mg

Multiple unsuccessful previous attempts to taper off citalopram. Vegan, otherwise healthy lifestyle. Other medications; kliovance (HRT) Other supplements; magnesium glycinate, calcium, B12, vitD and vegan omega3. I use valerian and lemon balm tea for anxiety relief

Completely OFF booze (since 6/11/21) and caffeine (since July 21) now. Main symptoms; crushing depression, anhedonia/emotional anesthesia, irritability, rage, anxiety/fear, cognitive fog, inability to focus, restlessness and some insomnia

 

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  • 3 weeks later...

When I had akathisia I found it helpful to wear compression garments, for example exercise clothing (leggings, performance tights, athleisure, that sort of thing) with compression effect. Especially on legs, lower body. 

It felt soothing and helped calm me down. 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin 

August 1, 2022 - 1 mg melatonin

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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On 6/8/2022 at 3:33 PM, Kat66 said:

I've recently realised for sure I am having symptoms of this akathesia. I don't have the urge to pace and move all the time which made me think I didn't have it, but I have these very dark scary intrusive distorted thoughts and a constant high alert state of panic and anxiety in the body, like someone's plugged me into a power socket. I get very angry very quickly and the smallest sound triggers an extreme fear response in me. This symptom really is next level horrible!

Hi @Kat66! How are you? I feel exactly like that. Sending many positive thoughts for you to cross this path. And a question: did your akathisia get worse during the taper?

All the best,

Fantini

2012 - 2022: 10 years on Seroquel starting at 25mg and working up to 100mg (for insonia)

aug 2021 - dez 2021: decrease my dose by 50% every month (100 mg, 50 mg, 25 mg, 12,5 mg, 0 mg)

fev 2021: start 100 mg of Lyrica (for anxiety and it gives me akathisia) 

mar 2022: decrease my dose by 50% (akathisia) 

apr 2022: reinstart 0.5 mg Seroquel 

 

 

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Hi @Fantini these symptoms of akathesia come and go, but have been worse the longer the taper goes on. How are you doing? Do you experience akathesia too?

History of depression and anxiety. Symptoms of PTSD.

1998-1999 Venlafaxine 2006-2007 Prozac. 2013-15 Sertraline 50mg. 2015 cross-tapered to citalopram 20mg. 2015-2021 Citalopram 20mg (brief increase to 30mg for 2/3 months in 2019.

01/2021 Dropped from 20mg to 10mg, back up to 20mg til June.

25/6/21 stopped CT. Started 50mg 5htp after a week without citalopram in the hope this would balance out my serotonin levels. After 3 days increased to 100mg 5htp.
11/7/21 Stopped 5htp with the intention of reinstating citalopram at 1mg.  

16/7/21 Reinstated cit at 1mg.

2/8/21 Increased dose to 2mg. 
28/11/21 10% reduction to 1.8mg.

8/12/21 2mg 6/1/22 1.8mg 10/2/22 1.6mg 13/5/22 1.5mg 4/6/22 1.55mg 4/7/22 1.4mg 4/8/22 1.25mg

Multiple unsuccessful previous attempts to taper off citalopram. Vegan, otherwise healthy lifestyle. Other medications; kliovance (HRT) Other supplements; magnesium glycinate, calcium, B12, vitD and vegan omega3. I use valerian and lemon balm tea for anxiety relief

Completely OFF booze (since 6/11/21) and caffeine (since July 21) now. Main symptoms; crushing depression, anhedonia/emotional anesthesia, irritability, rage, anxiety/fear, cognitive fog, inability to focus, restlessness and some insomnia

 

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