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direstraits

sorry, @coldturkmama

I know it seems like it will never end sometimes.

hope today is better

xx

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jonnypeters1234567

Do you have akathisia Direstraits?

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direstraits
1 minute ago, jonnypeters1234567 said:

Do you have akathisia Direstraits?

Hi jonny,

I think I may have but not sure....I don't have the need to pace but feels like an inner torture,mental and physical,feeling like I don't want to be here....it's an unbearable feeling.😞

 

how are you doing?

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jonnypeters1234567

sounds like akthisia, i get hunger with it too.

 

I'm not doing too great

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direstraits
55 minutes ago, jonnypeters1234567 said:

I'm not doing too great

so sorry...hang in there.

xo

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jonnypeters1234567

I can handle most but the inner agitation and restlessness is the worst

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direstraits
5 minutes ago, jonnypeters1234567 said:

I can handle most but the inner agitation and restlessness is the worst

believe me,I understand completely.

you're not alone,it will get better.

 

hugs,ds

xx

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jonnypeters1234567

When did you see the most improvement? What is your diet?

 

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jonnypeters1234567

Sorry I was meant to write, did you find diet helped?

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direstraits
7 hours ago, jonnypeters1234567 said:

When did you see the most improvement? What is your diet?

 

this past May I started to think I was really starting to recover,but then I started to get the waves again but they don't seem to last as long as before and not as severe....this can be an excruciatingly long journey but we will recover at some point.

 

7 hours ago, jonnypeters1234567 said:

Sorry I was meant to write, did you find diet helped?

I think we always do better when we eat better,regardless of WD.

I can't have too much sugar...no caffeine..haven't adhered to any specific diet though.

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Rosetta
On July 30, 2018 at 12:05 PM, direstraits said:

 

yes it would be nice to see someone in person who understands this...

 

 

So true.

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coldturkmama
12 hours ago, direstraits said:

sorry, @coldturkmama

I know it seems like it will never end sometimes.

hope today is better

xx

 

Sooo true xo

today was better for me.  Was it better for you?

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direstraits
11 hours ago, coldturkmama said:

 

Sooo true xo

today was better for me.  Was it better for you?

I'm glad you had abetter day...not too bad of a day,was able to get out with my husband and go to lunch but kinda sad too,it would have been my daughter;s 45th birthday.

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coldturkmama
11 hours ago, direstraits said:

I'm glad you had abetter day...not too bad of a day,was able to get out with my husband and go to lunch but kinda sad too,it would have been my daughter;s 45th birthday.

 

 

Awww  that would be hard 💕

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Carmie
On 8/2/2018 at 10:12 AM, direstraits said:

this past May I started to think I was really starting to recover,but then I started to get the waves again but they don't seem to last as long as before and not as severe....this can be an excruciatingly long journey but we will recover at some point.

 

I think we always do better when we eat better,regardless of WD.

I can't have too much sugar...no caffeine..haven't adhered to any specific diet though.

 

Hi Direstraits, 

 

Hope you’re coping as best you can today. I’m glad that your waves have been getting shorter. Yay! Yep, the journey is long but it will definitely end one day like you said. All we can do is live in the moment n look at the positives we still have and when withdrawals are bad to just keep distracting ourselves. 

 

I keep finding new things to distract me. I’m in a window still as I’m not tapering until the end of this month but I have to still find distractions as I’ve been ill in bed for a lot of the time. Im in good spirits though. I’ve been learning lots of interesting things off YouTube.

 

Sending you hugs🤗

 

 

 

 

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direstraits

thanks for writing to me, @Carmie

having lots of anxiety lately,but I've been worse.

my eyes drive me crazy too, so annoying.

 

glad to read you're still in a window but sorry you're stuck in bed, must be so frustrating.

does CFS ever go away? I hope you feel better soon.

 

thanks for the hugs,back at you!

love,ds

xx

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coldturkmama
4 hours ago, direstraits said:

thanks for writing to me, @Carmie

having lots of anxiety lately,but I've been worse.

my eyes drive me crazy too, so annoying.

 

glad to read you're still in a window but sorry you're stuck in bed, must be so frustrating.

does CFS ever go away? I hope you feel better soon.

 

thanks for the hugs,back at you!

love,ds

xx

 

What happens with your eyes??

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direstraits
2 minutes ago, coldturkmama said:

 

What happens with your eyes??

they burn.light sensitive,floaters,tics...ugh!

 

howare you,ctm? xx

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coldturkmama

Ughhh that sucks 

I’m doing okay 

it will be 5 years in October 

i definitely still have issues. 

I do believe I’m a lot better when I avoid sugar and gluten. 

Ive been following the Claire Weekes method to try and do better with the symptoms and it seems to help when I practice it. 

I am having a bit of a harder day today anxiety wise. Blahhhh!!

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direstraits

glad Claire Weekes is helping...maybe I'll check that out.

sorry you're having anxiety....you're not alone!

 

xxx

6 minutes ago, coldturkmama said:

Ughhh that sucks 

I’m doing okay 

it will be 5 years in October 

i definitely still have issues. 

I do believe I’m a lot better when I avoid sugar and gluten. 

Ive been following the Claire Weekes method to try and do better with the symptoms and it seems to help when I practice it. 

I am having a bit of a harder day today anxiety wise. Blahhhh!!

 

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brassmonkey

Hi Direstrits-- have you tried "sunning" your eyes.  I find it quite helpful when mine get tight and tired. 

 

Keeping your eyes closed all the time look directly into the sun.  Let your face relax and feel the heat.  There will be a lot of different colors show up but they will calm to an overall red after a few minutes.  Look away from the sun and open your eyes.  You might be a touch dizzy for a moment or two.  There are a lot of detailed instructions on line.

 

I find it very relaxing for the eyes and relaxing in general. I don't do it a lot but it really helps when I need it.

 

Brassmonkey

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coldturkmama
39 minutes ago, direstraits said:

glad Claire Weekes is helping...maybe I'll check that out.

sorry you're having anxiety....you're not alone!

 

xxx

 

 

Yes give it a try, it’s alllll about healing a sensitized nervous system.

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direstraits
4 hours ago, brassmonkey said:

Hi Direstrits-- have you tried "sunning" your eyes.  I find it quite helpful when mine get tight and tired. 

 

Keeping your eyes closed all the time look directly into the sun.  Let your face relax and feel the heat.  There will be a lot of different colors show up but they will calm to an overall red after a few minutes.  Look away from the sun and open your eyes.  You might be a touch dizzy for a moment or two.  There are a lot of detailed instructions on line.

 

I find it very relaxing for the eyes and relaxing in general. I don't do it a lot but it really helps when I need it.

 

Brassmonkey

hmm,never heard of that but I'll try it,thanks brassmonkey.

xx

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manymoretodays

(((())))) Hi Dire,

hugs and butterfly wings.  I think I saw something about the beach and grandkids and Luv2knit is back around and posting!  Yay.

 

Love, peace, healing, and growth,

mmt

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Happy2Heal

just popping in to say hi DS 

 

thanks for posting on my thread

 

sure wish things were better for you, this is such a long journey.

 

I cherish every little bit of improvement, but as i am finding out today, I am not above whining when things get bad 

:(

 

Brass's suggestion sounds interesting, I may try that too

 

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direstraits
4 hours ago, manymoretodays said:

(((())))) Hi Dire,

hugs and butterfly wings.  I think I saw something about the beach and grandkids and Luv2knit is back around and posting!  Yay.

 

Love, peace, healing, and growth,

mmt

great to hear from you,mmt!!

 

I love butterflies...haven't been to the beach as much as I'd hoped this summer but it's not over yet.😁

had my grandson over Friday night,we always have fun together....keeps me on my toes!

yeah,it's nice to see  an "old-timer" back here,I've missed her.

 

anyway,it's sad to see so many coming on here every day, but you're doing a great job helping them.

you've come a long way,mmt….proud of you.

 

big hugs,ds

xx

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direstraits
1 hour ago, Happy2Heal said:

just popping in to say hi DS 

 

thanks for posting on my thread

 

sure wish things were better for you, this is such a long journey.

 

I cherish every little bit of improvement, but as i am finding out today, I am not above whining when things get bad 

:(

 

Brass's suggestion sounds interesting, I may try that too

 

Hi,h2h

thanks for visiting....we all deserve to whine now and then.

I still think I'm heading in the right direction but last night was scary as hell,I woke up feeling like I couldn't catch my breath,my husband was trying to calm me down and holding my hand...anxiety I guess?

anyway,today not too bad,thankfully.

 

hope you feel better soon.

xx

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manymoretodays

You are sweet.  Honestly.......there are very few places else for people to go with this stuff.........harm reduction tapering and education around these medications........not to mention support.  It IS sad and sometimes now........harder to be around suffering.  This too will pass I presume.  I take breaks.

 

Are you feeling well versed in your recovery lately?  Could you use a here comes the sun symbol? B)

You generally seem to be in a good place now with it all.  You are right........we all are grieving at some point in our lives......and it's ongoing.........ebbs and flows.  We learn to carry it well and those lost in our hearts.

Not just because you complimented me 😻 but because you haven't caved, and have stayed off the medications now since 2014!!!!!

 

I'm just trying to stay out of the smokey air today(from nearby wildfires)........but oh........what I wouldn't give about now for an ocean beach(without the crowds).  Here's hoping for some fall or spring travel.  I've got some reservoirs, rivers, and streams and the like anyway.......

 

I'll check on back later or manana.

 

Yay for little kids.......glad you are getting some time in........yah, I know........they are a handful if you are doing 24/7 with them.  Smart, wise, and very cute little buggars though........THEY are going to change this world!!!!!!  I am counting on them.

 

Love, peace, healing, and growth,

mmt

p.s. proud of you too Dire. 🖤

Edited by manymoretodays

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direstraits
7 minutes ago, manymoretodays said:

Are you feeling well versed in your recovery lately?  Could you use a here comes the sun symbol?

oh boy,I have to think about that one,don't wanna jinx myself but I'll get back to you on that.

sorry to hear you're near the wildfires...so heartbreaking out west...we've had too much rain,wish we could send some out there.😧

 

take good care of yourself.

love,ds

xx

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Carmie

Hi Direstraits, 

 

How are you doing? How are your eye problems? Have they settled any? I hope so. Thanks so much for checking in with me, it was much appreciated.

 

Sending hugs🤗

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direstraits

Hi, @Carmie

thanks for asking..eyes still driving me crazy...we drove down to the shore Wed. but I was feeling so awful couldn't enjoy it,was having obsessive thoughts about the past and just started crying and we had to go home.😢

anyway,doing better the last few days,went to dinner last night ….weather's been awful this summer,ready for fall.

 

glad you enjoyed your holiday.sounded lovely.

 

hugs,ds

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coldturkmama
1 hour ago, direstraits said:

Hi, @Carmie

thanks for asking..eyes still driving me crazy...we drove down to the shore Wed. but I was feeling so awful couldn't enjoy it,was having obsessive thoughts about the past and just started crying and we had to go home.😢

anyway,doing better the last few days,went to dinner last night ….weather's been awful this summer,ready for fall.

 

glad you enjoyed your holiday.sounded lovely.

 

hugs,ds

 

Hope you’re feeling a bit better!

ive has some hard days again...fake UTI symptoms and anxiety etc

so annoying!

its got to go someday!

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Carmie
11 hours ago, direstraits said:

Hi, @Carmie

thanks for asking..eyes still driving me crazy...we drove down to the shore Wed. but I was feeling so awful couldn't enjoy it,was having obsessive thoughts about the past and just started crying and we had to go home.😢

anyway,doing better the last few days,went to dinner last night ….weather's been awful this summer,ready for fall.

 

glad you enjoyed your holiday.sounded lovely.

 

hugs,ds

 

Hi Direstraits, 

 

Im so sorry that your eyes are still giving you problems.

 

It’s good to cry sometimes, a bit of a release, though sadly it doesn’t fix anything. I’ve shed many tears. We can just take each moment as it comes. 

 

Yes, holiday was nice. I loved the boat ride on the canal, I really didn’t want to get off the boat. Loved having beautiful pools as well. 

 

Glad you’ve had a few good days, hope you have many more💚

 

 

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direstraits
11 hours ago, coldturkmama said:

 

Hope you’re feeling a bit better!

ive has some hard days again...fake UTI symptoms and anxiety etc

so annoying!

its got to go someday!

Hi mama,this  morning was awful,anxiety through the roof,yesterday it wasn't there when I woke up..I'll never figure this out.

yes,that day can't come soon enough!

thanks for visiting. xx

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direstraits
1 hour ago, Carmie said:

 

Hi Direstraits, 

 

Im so sorry that your eyes are still giving you problems.

 

It’s good to cry sometimes, a bit of a release, though sadly it doesn’t fix anything. I’ve shed many tears. We can just take each moment as it comes. 

 

Yes, holiday was nice. I loved the boat ride on the canal, I really didn’t want to get off the boat. Loved having beautiful pools as well. 

 

Glad you’ve had a few good days, hope you have many more💚

 

 

thanks,Carmie

hope you're doing well. xx

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direstraits

had a cocktail with my dinner Sat. night and woke up Sun. with no anxiety...maybe I should start drinking...I feel so desperate sometimes.

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