luv2knit Posted January 10, 2019 Author Share Posted January 10, 2019 Hi, H2H. Hanging in there, thank you. I have come a long way, but still have a ways to go. Akathisia is still 24/7, but the intensity is gradually (VERY slowly) becoming less. I still have other symptoms, but this is far my most troubling one! Hope you are doing well! XOXO Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Mentor Happy2Heal Posted January 10, 2019 Mentor Share Posted January 10, 2019 oh I am so sorry you're still suffering with akathisia but glad it's lessening in intensity. it's progress, right? and that's a good thing. I pray that it is totally gone soon! I am doing well, thank you. PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 2013 too fast taper down to 5mg but WD forced me back to 20mgs June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until Sept, then acute WD hit!! reinstated at 0.3mgs in Oct. 2106 Tapered off to zero by Oct. 2017 Doing very well. Nov. 2018 feel 95% healed, age 63 Jan. 2020 feel 100% healed, peaceful and content Dec 2023 Loving life! ❤️ with all it's ups and downs Link to comment
luv2knit Posted January 10, 2019 Author Share Posted January 10, 2019 Yes--Progress! Thank you for your prayers. They are greatly appreciated! Glad you are doing well! XOXO Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Cherry47 Posted January 10, 2019 Share Posted January 10, 2019 Hello Luv2knit - saw you here on one of my rare check-ins and good to hear how you are getting on. I have just reached the four year mark after going CT and seem to be still travelling a similar path to you. Lots of things are better and the intensity of others has dropped, but still a lot of bad days. I tried to convince myself there for a while it was just the ME/CFS that was so bad because I am so old but there is no denying those horrible w/d symptoms. I can’t do very much at all and still can not tolerate any medications. 50mg of Q10 is the only thing keeping me upright most of the time. But....... as you say I have come a long way, I read a lot, am able to potter in the garden (which has saved my sanity on many occasions) and continue to remain positive. Chronic Fatigue Syndrome for 32 years, given AD for this condition alone in 2000 Zoloft 100mg for 15 years, last five of these complained about adverse effects, unable to tolerate other meds even supplements Slowly felt sicker, advised by different Dr maybe on ads for too long Cut back 100 - 50 over 6 months, still getting worse, so stopped over about 6 weeks starting Dec 2014 First month, slow, emotional, useless then POW! Horrendous withdrawal symptoms, completely non-functional for about five months, slowly started to come back to life and continue with waves and windows, still more bad than good, but bads are less bad, and goods slightly better each time Link to comment
luv2knit Posted January 10, 2019 Author Share Posted January 10, 2019 8 hours ago, Cherry47 said: Hello Luv2knit - saw you here on one of my rare check-ins and good to hear how you are getting on. I have just reached the four year mark after going CT and seem to be still travelling a similar path to you. Lots of things are better and the intensity of others has dropped, but still a lot of bad days. I tried to convince myself there for a while it was just the ME/CFS that was so bad because I am so old but there is no denying those horrible w/d symptoms. I can’t do very much at all and still can not tolerate any medications. 50mg of Q10 is the only thing keeping me upright most of the time. But....... as you say I have come a long way, I read a lot, am able to potter in the garden (which has saved my sanity on many occasions) and continue to remain positive. Good to hear from you, Cherry! Yes, the supplements I was on at the time of withdrawal are the only ones I am able to tolerate, so I understand. I have recently been able to SLIGHTLY tweak a couple of dosages, so that is encouraging. I am 53 months off now--almost 54--so it is frustrating. Definitely better than it was, though. Hang in there, Cherry! We will get there! Take care!! XOXO Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Vasherr Posted September 21, 2022 Share Posted September 21, 2022 Hi, @luv2knit, long time has passed since You've posted, hoping You've gotten some relief from Your symptoms, let us know how are You doing if it isn't too much of a hassle. Wishing You a lifelong window! V. Duloxetine 2016/17 - 30/60mg/30mg, c/t, light WD. Sertraline June 2019 50mg ADR Clorazepate June 2019 20-15-10mg for 3 weeks then sparsely until 2022, 2 times per month max and very low dose (5mg) Clorazepate Jan2022 10mg 5 days 2,5mg 2 days then off Venlafaxine June 2019 75mg ADR, 17,5mg, titrated to 37,5mg Venlafaxine Jan 2022 Covid, hard ADR on 37,5mg, reduced to 20mg ADR, tried ct, crash, Venlafaxine 22Jan22 reinstated 9,4mg, too low/ 01Feb22- 12mg/ 12Feb- 11,25mg/ 16Feb- 11mg/ 20Feb- 10,8mg/ 24Feb22-10,575mg/ 16Mar22- 10,46mg/ 26Mar22- 10,35mg/ 26Apr22- 10mg/ 01Oct- 9,9mg/ 13Nov- 9,7mg 01Jan24-7,5mg MAR24 Due to another sudden intolerance had to fast taper venlafaxine to 1,14mg Seems like all of this time I was in benzo withdrawal, because when I took it now in desperation to help it made me feel worse, tried reinstatement first 1mg, then 0,05mg both made me feel worse. Link to comment
Lauren90 Posted December 10, 2022 Share Posted December 10, 2022 Hi! How are you doing? 2000-2018 150-200mg Sertraline and Vyvanse 2018- vyvanse 60mg to 0 over 6mo. 200mg Sertraline to 150mg. 2019- 150mg Sertraline to 100mg. Early 2021- 100mg to 87.5, two weeks later 87.5 to 75mg, 1.25-4mg bromazepam PRN. Mid 2021 - Feb 2022 taper 2.5%-5% 75mg to 50mg. March 2022 bromazepam for 3 weeks. May 9th 2022 started Propranolol, 10mg in the morning and 10mg in the evening. July 2022- off propranolol Oct 2022- off birth control. Dec 2022- updose sertraline 100mg, benztropine 1mg and Ativan 1mg. March 2023- stop benztropine. May 2023 - ativan taper finished. May 2023 - updose Sertraline to 125mg added propranolol 40mg added Ativan 1mg. July 5- sertraline 112.5mg propranolol 60mg, quick 2 week Ativan taper. Current meds: propranolol 60mg, sertraline 106.25mg, Ativan .025mg, B6, CoQ10, Magnesium Glycinate Link to comment
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