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Facial tics, jaw, tongue muscle tension and pain, bruxism, teeth clenching, TMJ

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floaks

Hi, I went off luvox (150mg) on August 1st, 2013 almost cold turkey after being on it for 4 years since 2009. I had earlier also tried to gradually (very very slowly over the course of a year) quit luvox and that time I developed peripheral neuropathy, TMJ, jaw pain, teeth problems. I went back on it and my withdrawal symptoms improved. The doctors or my psychiatrist never agreed that it could be because of luvox. Later my physician who was treating me for neuropathy admitted that it could be because of luvox doing somethig in the brain. He was never able to figure out a cure and told me to go back on it and  exercise more. I went back on luvox and with time (more than a year) and exercise my neuropathy symptoms became manageable.

 

Now that I had quit taking luvox completely again in Aug 1st 2013, I started experiencing severe sensitivity in teeth two months after stopping it. It was so bad that I wasn't able to rinse my mouth with water at room temperature. Gradually by the end of third month that developed into severe teeth and jaw ache and pain in gums and now I have to be on ibuprofen continuously. I don't know what I should do. Sometimes even ibuprofen doesn't help either or takes time to kick in. My dentists says that my teeth look alright.

 

I found this website which is a bit helpful but it is a closed forum now and is no longer operating: http://antidepressantwithdrawal.info/forum/showthread.php?149-Antidepressant-Withdrawal-Induced-Dental-Pain-Distress-and-Sensitivity

 

Any help will be much appreciated. Thanks.

Alex

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skybert

I used to have a lot of trouble with this. Still have some small issues every now and then.

It kind of felt like my teeth didn't fit in my mouth anymore, or something was just wrong with my whole mouth. It was painful and caused me a lot of headache.

I think it is because we clench our teeth at night. 

You could wear a mouth guard or something like that. It is to my understanding pretty common in withdrawal.

It gets better.

Hang in there:)


Started Esctialopram (Lexapro) 10mg june 2012. 20mg august 2012.15mg february 2013 - 10mg april 2013 - 5mg may 2013 0mg - 26.june 2013 Crashed mid. august 2013. Reinstated 2mg Escitalopram 22.september 2013 2.5mg 29 september 2013, 3mg 15 november 2013.

First taper from 3mg to 2.7mg 10 may 2014

Micro cuts since then.

Current dose september 2017 1.7mg

Current supplements: Nothing. (GI issues)

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floaks

Thank you Skybert. You have given me a lot of hope.

 

While I was on luvox I started having these symptoms and pain in jaw and cheek bones. My dentist at that time also said that probably I am clenching my teeth in night. Now that I have completely stopped luvox this pain has become unbearable. (I read Dr. Glenmullen's book, Prozac backlash where he says that these drugs can cause these conditions and also suppress the symptoms while you are on it. But once off these meds, these symptoms appear in full swing.) Usually my pain pain is worse in the morning when I wake up which again means that I am clenching in the night. I also feel like there are stones in my mouth instead of teeth. Also my gums have become red and swollen.

 

I tried one of the mouth guards that we get over the counter in wallgreens or CVS pharmacy. It seemed to help for two days but afterwards when I would wear it my teeth started feeling stiff and would hurt as if someone is holding them tighter than normal. So I had to just remove it from my mouth. Probably I have to ask my dentist to get a custom made one. But I am not sure if that would help. May be the size of that mouth guard was shorter or may be my teeth have moved. Have you tried any over the counter mouth guards? Thank you again for your reply.

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floaks

Also, one question I want to ask is that is it OK to take ibuprofen to get some relief from this pain. I am on ibuprofen continuously. If I don't take it every 8 hours the pain becomes unbearable. I have to take 400 to 800mg every 8 hours. I try to take less and at larger time intervals but sometimes it is just not possible. I also try to alternate between acetaminophen and ibuprofen. Is this ok or could this cause further problems for me? Are their any alternatives? Thanks.

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skybert

This sounds very familiar indeed:P You describe just what I experienced. I never got around to get a mouth guard. 
Maybe because I'm very used to this kind of pain from my younger days I wore braces and all kinds of crazy stuff to fix my messed up teeth. 
But the fact that you get pain from over the counter mouth guards make very much sense and that tight feeling is classic when it's not custom made.
Maybe there is something better for this problem out there. This topic have been discussed here:
http://survivingantidepressants.org/index.php?/topic/1058-bite-guard-for-teeth-grinding-clenching-bruxism/?hl=clenching
 
I used some ibuprofen thing for this problem.  I can't really give very much advise about using ibuprofen or acetaminophen. I'm fairly new on this forum and maybe someone with more experience would chime in on that subject. Just don't overdo it I guess and pay attention to how it makes you feel.
But try not to worry about it. It will pass:)


Started Esctialopram (Lexapro) 10mg june 2012. 20mg august 2012.15mg february 2013 - 10mg april 2013 - 5mg may 2013 0mg - 26.june 2013 Crashed mid. august 2013. Reinstated 2mg Escitalopram 22.september 2013 2.5mg 29 september 2013, 3mg 15 november 2013.

First taper from 3mg to 2.7mg 10 may 2014

Micro cuts since then.

Current dose september 2017 1.7mg

Current supplements: Nothing. (GI issues)

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floaks

Thanks Skybert. The link you gave is quite helpful. I am more hopeful now after talking to you.

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floaks

Hi Skybert

 

I also want to mention that probably my teeth ache is not just because of grinding in the night. I think that the nerves in my teeth are inflamed. If my nerves die then I would need a root canal like what happened with one of my tooth. If they get better then everything should be fine. I am saying this because when I gradually stopped luvox last year I started getting peripheral neuropathy. So, in my opinion ssri meds also affect the peripheral nervous system. 

 

Also I came across the website "the road back" and ordered their supplements. I am sure you must have also heard about this website. I was initially worried to order anything from there because no one knows whether they are trying to make money or are really trying to help.  Also I had not other option and at this point I had already wasted so much money on dental treatment that spending a few dollars on their supplements didn't seem that I would lose anything. Within 30 minutes of taking their supplement I found immediate relief. The uneasiness in my teeth is till there but it has only been a day that I have taken their supplement. After about 20-25 days of being on too much ibuprofen, yesterday was the first day that I could do without it. My TMJ hasn't improved at all on taking this supplement but I am glad that tooth ache is in control and I can live without ibuprofen.  I am hoping that continued use of their supplement as they prescribe should help me with the withdrawal. I am just so relived that i do not have to take ibuprofen. I emailed them before ordering anything from their website. They provide free consultation over email and suggested me to only take neuro endure mini. They have other supplements listed on their website as well but they said that for my particular case I only need neuro endure mini and not anything else. Because they did not try to lure me to purchase all the supplements that they sell I am thinking that may be the are really trying to help. I thought that I should let you know. I will also keep updating about how I am doing on this supplement and whether my symptoms improve or get worse. I am hoping they don' get worse.

 

 

Thanks

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floaks

Now it seems to me that I have written the above post too fast. I am still feeling uneasy as if having a flu. My face seems swollen and limbs are achy too :(

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floaks

And now that I have been up from my bed for a while the stuffy feeling in face is disappearing. the symptoms get worse when I lie down.

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Barbarannamated

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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UnfoldingSky

I am wondering how many other people have this?

I might have tardive dyskinesia from having taken and reacted to several drugs (one an antipsychotic used off label for another drug reaction.)  The symptoms are so mild now though that I forget I might actually have it.

 

However, every, oh, year or so, I'll have a problem where my jaw won't close, then it moves sideways on its own.  It happens, freaks me out (my jaw will just get stuck for a minute or so), and then it moves, then hurts a lot, then it clears up.

 

So it has happened tonight just out of the blue...only it still feels like my jaw is off.  Seems worse than the last time it happened.  Feels like it could get stuck again, and also like I'm having some mild troubling swallowing.  Like I have to think too much about swallowing.

 

I'd stopped really thinking about TD and  sort of convinced myself it was gone.  Now I don't know what to  think.  I know jaw problems can come with it, but do others have this who DON'T have other signs of TD?  (other signs are things like uncontrollable blinking, jerking of hands/feet/limbs)

 

Also, what do I do if it locks or starts moving uncontrollably???  I can't take benzos, or other psych drugs...next time they will be likely to kill me.  Are there other remedies in case this gets worse?

I feel so, so, so terrible for people with severe TD, any "doctor"  who gives anyone TD belongs in jail. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Meimeiquest

That is a problem with the TMJ (temporal mandibular joint or something like that). It is a common problem even apart from tardive dyskinesia. I think a dentist would be the first point in getting help, but I could be wrong. It might be caused by grinding your teeth in your sleep. Sorry you have one more thing to deal with!


1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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UnfoldingSky

Hi Meimei, and thank you so much for your reply.  Is it possible if I don't grind my teeth that it's still TMJ?  I'll gladly believe it's that over TD, this is very scary to have to deal with.  I haven't had many of the other symptoms of TD recently, so I am hoping it really isn't that. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Meimeiquest

Absolutely it could not involve teeth grinding. Absolutely it could be from tardive dyskinesia. And it would still be aTMJ problem. It's also possible a dentist can't help you, but that is where I would start. Maybe others have seen it done other ways as well. We had a friend who had a total life nightmare from TMJ, but you've already had your total life nightmare :).


1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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UnfoldingSky

Definitely have had my life's fill of nightmares...Thanks for responding Meimei.  It's calmed down some since I posted about it, but there's a strange feeling left over in my jaw that makes me think it'll start up again. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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UnfoldingSky

Well now I have spoken to a relative who doesn't have TD but also has similar issues.  So it's looking like you were right Meimei...I think that it could be caused by TD but led to TMJ.  His description is quite similar to what I have.

 

Apparently the nonsurgical treatments include acupuncture, which I am doing.  So hopefully that will be enough to keep this under control.

 

He also said he hasn't read about anyone having their jaw lock and not unlock, so that was comforting.


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

Jaw pain is a common wd effects as it did to me, although I now am thinking it was more likely caused by the generic lexapro. It was so intense one time in the early stage of the wd it actually triggered my first ever panic attack. It has been with me for a whole year now I only started feeling a tiny bit better after 6 months back to name brand. Now I can bite without much pain. I never had closing mouth problem though but hard to open my mouth. It also causes head pain, shoulder pain and even back pain when it's really bad.

 

I went to my dentist and he recommended another dentist specializing in Tmj. I will update after seeing him.

 

Jaw pain has been reported by others as wd symptom from other ADs


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

LexAnger, so sorry to hear you are experiencing the same problems. I hope the dentist can help.  I may see my doctor to see if this isn't linked to something he might be willing to actually diagnose, then probably a dentist too as I expect that won't go well. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

Thank you unfoldingsky!

Surprisingly, I had a very good day today with minimal pain. I actually started having on and off windows in the past week. Changes made include 1) switched back to brand for 6 months 2) stopped PPI 3 weeks ago. Don't know which is causing the effect or maybe just timing since tapering. No matter what the reason is, this indicates my brain is not permanently damaged in terms of the pain. So there seems hope and hang on there. If it continue improving, jaw doctor visit may not be necessary. I will keep you updated.


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

Good to hear things are improving for you Lex.  I wonder if there was some interaction between the SSRI and the PPI that caused your problem?  Were you on the PPI the whole time you were taking Lexapro?


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

Thank you, upholdingsky!

Yes I have been on ppi for 15 yrs until 3 weeks ago. I'm happy to tell my pain (jaw, head, neck, back) is continuing improving. I actually had the best day ever since one yr ago starting tapering! I used all recommendations like mouth guard, Mg, fish oil, relax and support (supplement from a tapering program from POINT OF RETURN), alcupuncture, massage, chiropractoring, nothing really helped except for some temp and slight relieve (chiropractor Is the one helped most).

 

For the first time in the year, I regained feeling of enjoyment of being alive, music is dance to, sky is blu, and can laugh again. I know I still have a long way to go to be completely off, but really am grateful to the break and the confidence it provides.

 

Since you are off the AD for 3+ yrs and most other symptoms are gone. With the severity of your jaw problem, I would think it important to see a TMJ doctor to have it checked out. The bad news is TMJ specialist is very expensive and usually not taking insurance. If that's a concern, you may want to try to use a mouth guard first for a while see if it helps. You can get one round 20-30 bucks from drug store. Also, my chiropractor is really good at it too for pain. I did alcupuncture by a nationally recognized Chinese doctor but did not help.

 

I do hope something will help and eventually fix it. I know how miserable it feels. Since Yous is not WD anymore, there should be some professional who can help.


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

Thank you for your concern Lex!  Glad to hear that you are improving.  Sounds like you are in a window, may it continue indefinitely!

 

Re TMJ specialists, I am in Canada so likely it is covered for me.  Chiropractors aren't usually though...I may try the mouth guard anyway though since I am getting tired of the pain.  I wake up sometimes with sharp pain in my ear on the side I have been sleeping and that certainly isn't helping a sleeping issue I developed because of the drugs. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

You are exactly right unfoldingsky! What I am getting is windows as today was not as good as the past two days, although still better than before. This is still hopeful to me as I was thinking the damage is permanent since my brain seemed not doing anything and the pain never lessened regardless what I did in the past year.

 

I had the ear pain sometimes too, most time in middle of nights and it did go away in the morning or so.

 

I'm glad you are covered for the tmj. I have to pay co-insurance for chiropractor too, but with the 24/7 pain for that long, I feel it worthwhile for the short break chiropractor provides.

 

If no structure changes to your jaw, time is the main force eventually takes effect. The jaw problems is believed caused by too much stress hormone so avoiding stress is important.

 

Another thing I tried and helped is the guided medication for pain management.

http://quietmindcafe.com/pain-management.html

 

Hope you feel better soon.


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

Thank you Lex!  Sorry to hear your window isn't as strong today.  At least you know though you are not permanently damaged.  Hopefully tomorrow will be a better day for you.

 

I didn't realize that stress was such a big component of this.  I figured it would be involved but it sometimes just seems to have a mind of its own.  The first time it came on I was on vacation...not doing anything stressful.  Or maybe I was and just didn't realize it..maybe I need a vacation from my vacation, lol.

 

Thank you for the pain management meditation, I am going to try that.  I will also pass it on to someone I know who has chronic pain from an unrelated health problem.  We've been looking for some alternative solutions so your timing is perfect!


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

It is believed Ssri changes the hormone cortisol level which in turn causes muscle tension including jaw pain. During withdrawal, cortisol level is much more controlled by the drug changes than the physical environment.

 

http://www.shape.com/lifestyle/mind-and-body/symptoms-stress

 

Hope less pain to all of us, day after day, even it's extremely slow.


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

I hope so too, Lex.


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Meimeiquest

If you put your thumb inside your mouth and fingers outside, near the joint, are the muscles tight and painful? Sometimes massaging them in that position helps me. I just bought a mouth guard but I need to fit it still. Sometimes I wake up with my lower front teeth jammed over the top ones.


1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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LexAnger

Good tip on massaging! That's also what was suggested by my chiropractor. Need to start doing it. It is important to have a month guard not only for the pain, also for the tooth protection. My teeth are wored out a lot more than they are supposed topper my dentist.


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

If you put your thumb inside your mouth and fingers outside, near the joint, are the muscles tight and painful? Sometimes massaging them in that position helps me. I just bought a mouth guard but I need to fit it still. Sometimes I wake up with my lower front teeth jammed over the top ones.

 

They can be sore. It's really strange.  Sometimes they feel tight but the tightness comes and goes, as in, it can be tight at one point during the day then later not really at all, then tight again.  When it's tight I feel like I can't open my mouth all the way though if I try I usually can.

 

That sounds scary re your teeth overlapping.  Hope it clears up Meimei.


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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UnfoldingSky

Well this problem over all is not getting better, not right now anyway.  I just had my jaw move and lock again, though it unlocked quickly this time.

 

So I'll be seeing the doctor for sure now. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

Very sorry to hear that sky. A disappointing update from me too, that my window only lasted for 1.5 days without pain and feeling happy and energetic. The pain picked up quickly over the past couple days and was very severe today that I had to tale a pain killer even I tried my best strength not to take it over the past yr. the shooting and sharp extended to neck, shoulder and back on the left side ( always on this left side) which makes me losing hope again as I have no clue at all how to think of the entire situation.


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

I am sorry to hear of your ongoing issues too Lex.  I don't know what to think about this either. 


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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UnfoldingSky

I've just realized two things that might be making this worse right now.  One, the weather just changed--I used to have pronounced difficulties in early withdrawal when barometric pressure would change.  So I think that is at play at the moment.

 

The other I don't know what to do about. I have been taking several herbs on and off that help with some problems I have (some drug-induced and some not).  I keep forgetting though that sometimes it seems to make the jaw issue more pronounced.  I don't know what to do; the herbs do help with brain fog and some other problems but if it comes down to getting weird short bouts of lock jaw I am not really keen on continuing with them.


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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LexAnger

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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UnfoldingSky

Thanks for this Lex, will look into it.

 

I hope your jaw is better today.  Here it is not so bad but now I have substituted it for head pains.


I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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