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Muddles

UK members -- talk to an MP?

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Muddles

I have been speaking to my husband about how we could possibly make change. He has said I should start with our local MP. Has anyone ever tried this?

 

I could get Dr Healy to send me a lot of info. to back up my case and wondering if those in the uk would think of possibly doing the same?

 

My husband seems to think we may get somewhere if enough of us do it.

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WinningThrough

This is a good idea. Any more uk members up for this? Can we get a whole load of us to write our stories? If there are enough of us something might happen.

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LoveandLight

I did think about my mp actually

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dekiru

I also thought about my MP, but as I don't think he'll either care or listen, didn't take it any further.

I also thought about setting up an online petition......though coming up with the exact wording of the petition is proving difficult.

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Muddles

We could do both?? I need to do something. Anyone else? Protest would get us nowhere.....apart from probably being dragged off by psychiatrists, sectioned and poly drugged....ooohhhh they would love to get there hands on me.

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LoveandLight

I don't think a protest then :D

 

Will have a think..I did think about going to citizens advice and telling them the whole story and see if they could direct me.

 

Will look stuff up and post again.

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Muddles

*their* not there!!

 

My husband said he would help me...he is quite clued up and did a law course a few years ago. Ive just learnt some very interesting stuff off him. I need him to help as my brain is not functional anymore.

 

What about a petition?

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Muddles

Thanks joannad

 

Sorry dekiru- I've just seen your post...durhhhh...I'm do dumb now! Definitely a petition.

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LoveandLight

My grievances lie in many places..

 

GP - for giving me prescription at a young age with no warning that they could cause further more severe problems. Then leaving me on them, without careful monitoring. The whole 'mental health profession' for failing to recognise side effects / withdrawal and for advocating the medication first and foremost. For wasting my time and theirs by trying to give me coping techniques all while giving me massive doses of drugs that caused agitation.

 

And of course, pharmaceutical companies.

 

Wouldn't know where to start, but I will make a start.

 

Although I feel that I have to be very well and healthy to do this as when I talk about this, I still feel that I'm being judged that I'm mentally unwell and therefore lack credibility.

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Muddles

I am with you on everything there.

I think my biggest grievance was my doctor telling me citalopram wasn't an antidepressant and then telling me not to check side effects as I was 'obviously very worried about taking pills'. Oh and then telling me I needed to see a pych. Nurse a week later as he thought I had bi-polar!

Bloody Akathisia more like!!!!! If he had not have told me not to check side effects I would have done I'm sure. For some reason those words stuck in my head and I really did think I needed these pills.

 

God - I could go on and on about my treatment over the past 6 years.

 

We need to get something started.

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Muddles

What's happening with Dr healy's risk.org? With all of the stories and all of his knowledge...why isn't this out there. Only those who have been injured know about it. It's too late by then!!

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Muddles

I suppose it all takes time. I did speak to a lady who was gathering info and doing a big, in-depth investigation. I don't even know where she was from as I was very, very ill at the time. She said it would take 4 years to be able to collect info and get it out there.

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LoveandLight

Yes, I'm not sure what though. Cannot believe your doctor blatantly lied to you! I must admit I have been stupid coming off them too quickly without consulting my doctor, so I have to take a little of the blame. But then I did this as I felt they were not helping, which they weren't and the doctors just left me and I think they were going to leave me on them indefinitely..but I'm just a number to them..and the biggest joke IS people saying ' consult your doctor before making changes' - do they know what to do? Looks like most of them do not.

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LoveandLight

Yes, too late once you've been injured. Will go to cab for advice.

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andy013

AllTrials.net shares some of the same goals as people here. It already has had some impact and I think it is the best path to go down. You can sign their petition as well as keep up with their news updates to see how you can help. The reason harmful drugs are being prescribed is because of fundamental problems in medicine that need to be fixed. Only then will the truth about SSRIs slowly be revealed.

 

I actually started working on my own website in the summer. The idea was that people who have had problems withdrawing from SSRIs could sign up and input all their drug history as well as withdrawal symptoms and so on. That data was then used to show overall statistics like how long withdrawal lasted on average and what the most experienced symptoms were. I figured if it got enough members it would be hard to ignore. I feel like sites like this are good for support but unfortunately a lot of the bigger picture is hard to see because the information is hidden away in individual stories.

 

I got a rough version up and running but I don't know if I will ever finish it. I have an anxiety issue that leads me to procrastinate on projects like this. It's very hard for me to overcome. This was actually the original trigger of the depression that led me to go on an SSRI in the first place. I've also been feeling foggy headed more recently and lacking focus, as well as just feeling kind of hopeless about the whole thing. Recently I watched a BBC documentary on SSRI harms from 15 years ago. In 15 years nothing has changed. It sometimes feels like nothing will cause a change anytime soon.

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LoveandLight

Where about are you in the uk andy can I ask?

 

Thanks for web link x

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LoveandLight

Yes it does feel hopeless..but one thing is for sure nothing will defo change if no-one tries to do anything, so may as well try some thing eh? Although I'm not sure what good I will do with such bad brain fog

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andy013

I live near Glasgow.

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LoveandLight

There are quite a few Scottish members on here.

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westcoast

Muddles, great idea, and I hope you all do it. I wrote to Senator Barbara Boxer after she made a speech about medical mistakes and so on, and got a canned reply. Maybe in the states we should write to smaller gov people, at the city level.

 

As for why Healy's brilliance goes unheeded, have a look. I was surprised, not cynical enough. Searched the NY times this morning:

 

" search - Dr.David Healy - did not match any documents. "

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btdt

Muddles, great idea, and I hope you all do it. I wrote to Senator Barbara Boxer after she made a speech about medical mistakes and so on, and got a canned reply. Maybe in the states we should write to smaller gov people, at the city level.

 

As for why Healy's brilliance goes unheeded, have a look. I was surprised, not cynical enough. Searched the NY times this morning:

 

" search - Dr.David Healy - did not match any documents. "

http://www.nytimes.com/2005/11/15/science/a-selfeffacing-scholar-is-psychiatrys-gadfly.html?_r=0

 

Granted it is 10 years old, seems not much headway has been made in 10 years... I wonder how many people started taking and had a bad time with Ads in the last 10 years... that was harm that did not have to be. 

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westcoast

oh dear. I searched for dr.david healy which was dumb (too specific) and had a typo (no space after the period). thanks for doing it right.

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