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WinningThrough

Success stories after many years of withdrawal syndrome?

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WinningThrough

Hi

 

Just a thought..there are some partial recovery stories on here and these are great and very uplifting. I love these stories. Recovery doesn't have to be complete. Recovery can be a place that isn't perfect but is better than it was.

 

I just wondered if anyone had any stories of partial recovery? For example, going from non-functional to functional or from the acute phase to the post acute phase.

 

It would give a lot of hope for those in the acute phase. I've gone from wanting to be 100% healed to thinking a 50% improvement would be absolutely amazing or moving out of the acute phase would be awesome.

 

Something to think about.

 

Thanks.

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Altostrata

We have many of those partial recovery stories in the Intro forum. As they're works in progress, the Intro topics gradually evolve.

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btdt

Withdrawal is so different for different people partly perhaps due to how they got off the drug the dose and how long they have been drugged... so may variables. Some could be well on there way to healing after 6 months while others are just crawling out of bed.  There are too many variables for this to be truly productive reading through the countless threads and finding a situation that sounds like your may seem a good idea but even then you will find our own body make up or other not yet understood variables through theories out the window. I know because I have been reading posts for 6+ years... and that is what I have found.  We are all flying by the seat of our pants here and all hoping. That is about the best I can tell you. 

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dalsaan

No offence btdt but I have a more optimistic view that the one you present.  I don't believe I am flying by the seat of my pants.  I make good decisions for myself, despite uncertainty.   I seek advice when I am unsure. I'm prepared to admit when I am wrong,  I read others stories and heed lessons from their experience.   Witnessing others on a path to recovery helps me to maintain hope.

 

I know I am in a lot better position that others on this site, I am also in a lot better position than when I first got here.  Bit by bit I have created my own recovery-in-progress.  I agree that we should keep these in the intro section but I also think they are of great value.  No-ones story will tell you what to do but it can provide guidance, support and hope.  

 

Dalsaan

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btdt

I guess your more of the norm... I wasn't so what appears to be a difference of opinion really isn't it is a difference of experience you withdrawal experience is very different from mine... we agree on keeping this in the intro... for different reasons.  I will say there are many things I have found that have helped me they were not all on withdrawal sites or lets say just one withdrawal site I have looked every place online and in books ect.  I think it is important to keep looking.  Eventually it will all get here.   I agree if you looking for taper advice and are tapering your point is stellar but if your a cold turkey person we don't fit here quite as neatly. 

There are so many issues that differ.. even if your tapering.  Different drugs different health issues specific to each body... different healing rates ... it can be mind boggling.  

No withdrawal

Withdrawal

Tolerance 

Protracted withdrawal 

While there are common threads there are many differences too. The truth is it is asking a lot of any domain to cover all of these issues and is particularly difficult for people in withdrawal to navigate.  I understand wanting to section it to smaller bites. We have to start some place tho and so we do. 

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UnfoldingSky

I am partly recovered.  I haven't put my story up because it was so traumatizing to revisit but I am in the process of trying to write it. 

 

But for those who are in a bad way right now, I managed to recover completely from severe akathisia and partly from memory loss so profound I forgot most of my memories of my own life (my problems were caused by multiple drugs, and withdrawals including a c/t, and several adverse reactions).  And many other problems as well.  A friend of mine also managed an astounding partial recovery after being drugged with almost every psych drug available, given for over a period of almost two decades, and all for a physical problem.  He reacted to pretty well all of those drugs too...His story in some respects is still more amazing than mine as at points he lost his memory so badly if I recall he didn't even know his own name or where he was...And that was a long fall for him as he was a literal genius with an incredible memory.

 

So do take heart, a lot more is possible than we may believe...

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WinningThrough

THANK YOU unfoldingsky. You have no idea how much this helps me. Thank you.

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UnfoldingSky

No problem Winning Through.  I am hoping you get a big window ASAP.  And I'll work on my story some more, hopefully get it up soon too.

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dalsaan

Btdt,

 

I agree we are speaking from different experiences and that no two are the same. That's why I challenged you generalising from your experience to say that it's futile looking at what has happened to others.

 

The point is not to search through everyone's thread to find one that matches your situation and to do what they did-that's not what was being suggested and it's never going to be productive. However, learning bits and pieces from the collective experience and wisdom is useful. As is gaining hope from the fact that others have experienced positive change.

 

 

Dalsaan

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btdt

I am partly recovered.  I haven't put my story up because it was so traumatizing to revisit but I am in the process of trying to write it. 

 

But for those who are in a bad way right now, I managed to recover completely from severe akathisia and partly from memory loss so profound I forgot most of my memories of my own life (my problems were caused by multiple drugs, and withdrawals including a c/t, and several adverse reactions).  And many other problems as well.  A friend of mine also managed an astounding partial recovery after being drugged with almost every psych drug available, given for over a period of almost two decades, and all for a physical problem.  He reacted to pretty well all of those drugs too...His story in some respects is still more amazing than mine as at points he lost his memory so badly if I recall he didn't even know his own name or where he was...And that was a long fall for him as he was a literal genius with an incredible memory.

 

So do take heart, a lot more is possible than we may believe...

Thank you for posting this is much like my story.  I wonder is the friend you speak of on here if not maybe he would like to be... I bet you have suggested it already I for one would like to hear his story.

peace to you...

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Jemima

Here's a partial success story in this topic: http://survivingantidepressants.org/index.php?/topic/3078-rhi-incremental-success/

 

I've found that even after posting my success story, there's is still some recovery to go.  I didn't think that when I wrote it, but I'm realizing from time to time that I still have some withdrawal symptoms such as sleeplessness and anhedonia, but they are mild and fading away. I'm also finding that I'm needing much less medication to sleep, I'm getting up earlier, I have less physical pain and stiffness, and there are occasional moments of feeling utterly content like I used to experience on weekends when I was away from my utterly frustrating and stressful job. I'm able to keep busy nearly all of the time instead of having long stretches of boredom and consequent mild depression and fatigue. Today I was amazed that I was able to do gardening for about two hours, most of it on my knees, without having pain or exhaustion. I have been doing exercises for osteoporosis and following the alkaline-acid balanced diet, and I think both are helping now, but they might not have during earlier withdrawal.  More likely I never would have started either or stuck to them if I did.

 

Life just keeps getting better.

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UnfoldingSky

 

I am partly recovered.  I haven't put my story up because it was so traumatizing to revisit but I am in the process of trying to write it. 

 

But for those who are in a bad way right now, I managed to recover completely from severe akathisia and partly from memory loss so profound I forgot most of my memories of my own life (my problems were caused by multiple drugs, and withdrawals including a c/t, and several adverse reactions).  And many other problems as well.  A friend of mine also managed an astounding partial recovery after being drugged with almost every psych drug available, given for over a period of almost two decades, and all for a physical problem.  He reacted to pretty well all of those drugs too...His story in some respects is still more amazing than mine as at points he lost his memory so badly if I recall he didn't even know his own name or where he was...And that was a long fall for him as he was a literal genius with an incredible memory.

 

So do take heart, a lot more is possible than we may believe...

Thank you for posting this is much like my story.  I wonder is the friend you speak of on here if not maybe he would like to be... I bet you have suggested it already I for one would like to hear his story.

peace to you...

 

 

No, he's not on here.  Unfortunately we lost touch because of a rather trying circumstance.  I can post some of his story though but I will have to dig it up, he gave me permission to write about it before we lost contact.

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UnfoldingSky

Jemima, thank you for posting, it's wonderful to know things can still improve. 

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NoMeaning25

Dear Unfoldingsky

 

 

I am interested in your story, as i am now 21 months free and still in severe hell. I have severe DR/DP, Memory problems are very severe, i feel confused and dizzy, i dont really konw whats happening around me if you know what i mean.

 

I c/t from 4 years paxil and when trying to reinstate a different drug, had a severe adverse reaction.

 

Im looking for hope. Is 21 months too early? No improvements. Really if the DR/DP would just improve i would be happy. I am worried and scared to death.

 

I am partly recovered.  I haven't put my story up because it was so traumatizing to revisit but I am in the process of trying to write it. 

 

But for those who are in a bad way right now, I managed to recover completely from severe akathisia and partly from memory loss so profound I forgot most of my memories of my own life (my problems were caused by multiple drugs, and withdrawals including a c/t, and several adverse reactions).  And many other problems as well.  A friend of mine also managed an astounding partial recovery after being drugged with almost every psych drug available, given for over a period of almost two decades, and all for a physical problem.  He reacted to pretty well all of those drugs too...His story in some respects is still more amazing than mine as at points he lost his memory so badly if I recall he didn't even know his own name or where he was...And that was a long fall for him as he was a literal genius with an incredible memory.

 

So do take heart, a lot more is possible than we may believe...

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btdt

No offence btdt but I have a more optimistic view that the one you present.  I don't believe I am flying by the seat of my pants.  I make good decisions for myself, despite uncertainty.   I seek advice when I am unsure. I'm prepared to admit when I am wrong,  I read others stories and heed lessons from their experience.   Witnessing others on a path to recovery helps me to maintain hope.

 

I know I am in a lot better position that others on this site, I am also in a lot better position than when I first got here.  Bit by bit I have created my own recovery-in-progress.  I agree that we should keep these in the intro section but I also think they are of great value.  No-ones story will tell you what to do but it can provide guidance, support and hope.  

 

Dalsaan

I did not think my view was presented as having no optimism... I was saying you can't count on your withdrawal to be exactly like anyone else we have agreed and at the same time you feel you have to take a poke at me I am maybe taking this personally ...

I find it happens to me a  lot on this website and maybe it is time I started my own for that very reason.... bit tiring being a target.  it gets old fast

That is how I am feeling here lately...like a target.  I know you will not miss me when I am gone.

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UnfoldingSky

 

Dear Unfoldingsky

 

 

I am interested in your story, as i am now 21 months free and still in severe hell. I have severe DR/DP, Memory problems are very severe, i feel confused and dizzy, i dont really konw whats happening around me if you know what i mean.

 

I c/t from 4 years paxil and when trying to reinstate a different drug, had a severe adverse reaction.

 

Im looking for hope. Is 21 months too early? No improvements. Really if the DR/DP would just improve i would be happy. I am worried and scared to death.

 

I am partly recovered.  I haven't put my story up because it was so traumatizing to revisit but I am in the process of trying to write it. 

 

But for those who are in a bad way right now, I managed to recover completely from severe akathisia and partly from memory loss so profound I forgot most of my memories of my own life (my problems were caused by multiple drugs, and withdrawals including a c/t, and several adverse reactions).  And many other problems as well.  A friend of mine also managed an astounding partial recovery after being drugged with almost every psych drug available, given for over a period of almost two decades, and all for a physical problem.  He reacted to pretty well all of those drugs too...His story in some respects is still more amazing than mine as at points he lost his memory so badly if I recall he didn't even know his own name or where he was...And that was a long fall for him as he was a literal genius with an incredible memory.

 

So do take heart, a lot more is possible than we may believe...

 

 

OliviaS,

 

Sorry you are still doing so badly that far out.  I had a very hard time for the first three years after a series of drug reactions and c/t, and yes had DP/DR for those years that was severe along with many other severe problems too (memory loss was really bad.)  I basically felt like I was out of my body for three years and felt like the world was not quite real.

 

I don't know if this is your situation but I also would have only about one or two windows a year, for some reason in the winter.  Initially after the first (mildish) drug reaction I had the usual windows and waves pattern (I took one dose of a drug that I had a mild reaction to, stopped it, then had some withdrawal) but as time wore on and I was put back on drugs and then taken off, the situation got much more complicated, eventually leading to the three year period with almost no windows, where it was honestly all I could do to just get through each day.

 

So things can turn around even if it has been a long time and even if it is severe.  I now no longer have DP/DR, I have back many memories of my past, I have better recall of recently formed memories, no akathisia to speak of, etc..

 

And also things could change for you even more quickly than they did me since I was put on more drugs than you and had issues with most of them.

 

Keep the faith things will turn around. 

 

Best wishes,

 

Unfolding Sky

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NoMeaning25

UnfoldingSky

 

 

Thank you very much for this. I really needed the hope and encouragement. I have only experienced one window, that was more than a year ago. I am really really hoping and praying that the DR/DP will lessen and go away. II have it very severely and like you, my memories are mostly gone.

 

I am very happy to hear that you are doing much better and that the DR/DP went away. If i may ask, was there anything specific you did to aid in your recovery? Diet, meditation etc?

 

I have severe dizziness too that i hope will go away aswell. My list of symptoms is enormous, but these few things are the most bothersome. If they would just go away i wouldnt mind the others, really. I dont have akathisia, but i have inner restlessness that comes and goes.

 

 

 

 

Dear Unfoldingsky

 

 

I am interested in your story, as i am now 21 months free and still in severe hell. I have severe DR/DP, Memory problems are very severe, i feel confused and dizzy, i dont really konw whats happening around me if you know what i mean.

 

I c/t from 4 years paxil and when trying to reinstate a different drug, had a severe adverse reaction.

 

Im looking for hope. Is 21 months too early? No improvements. Really if the DR/DP would just improve i would be happy. I am worried and scared to death.

 

I am partly recovered.  I haven't put my story up because it was so traumatizing to revisit but I am in the process of trying to write it. 

 

But for those who are in a bad way right now, I managed to recover completely from severe akathisia and partly from memory loss so profound I forgot most of my memories of my own life (my problems were caused by multiple drugs, and withdrawals including a c/t, and several adverse reactions).  And many other problems as well.  A friend of mine also managed an astounding partial recovery after being drugged with almost every psych drug available, given for over a period of almost two decades, and all for a physical problem.  He reacted to pretty well all of those drugs too...His story in some respects is still more amazing than mine as at points he lost his memory so badly if I recall he didn't even know his own name or where he was...And that was a long fall for him as he was a literal genius with an incredible memory.

 

So do take heart, a lot more is possible than we may believe...

 

 

OliviaS,

 

Sorry you are still doing so badly that far out.  I had a very hard time for the first three years after a series of drug reactions and c/t, and yes had DP/DR for those years that was severe along with many other severe problems too (memory loss was really bad.)  I basically felt like I was out of my body for three years and felt like the world was not quite real.

 

I don't know if this is your situation but I also would have only about one or two windows a year, for some reason in the winter.  Initially after the first (mildish) drug reaction I had the usual windows and waves pattern (I took one dose of a drug that I had a mild reaction to, stopped it, then had some withdrawal) but as time wore on and I was put back on drugs and then taken off, the situation got much more complicated, eventually leading to the three year period with almost no windows, where it was honestly all I could do to just get through each day.

 

So things can turn around even if it has been a long time and even if it is severe.  I now no longer have DP/DR, I have back many memories of my past, I have better recall of recently formed memories, no akathisia to speak of, etc..

 

And also things could change for you even more quickly than they did me since I was put on more drugs than you and had issues with most of them.

 

Keep the faith things will turn around. 

 

Best wishes,

 

Unfolding Sky

 

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Lilu

Thank you very much for this. I really needed the hope and encouragement. I have only experienced one window, that was more than a year ago. I am really really hoping and praying that the DR/DP will lessen and go away. II have it very severely and like you, my memories are mostly gone.

 

I am very happy to hear that you are doing much better and that the DR/DP went away. If i may ask, was there anything specific you did to aid in your recovery? Diet, meditation etc?

 

I have severe dizziness too that i hope will go away aswell. My list of symptoms is enormous, but these few things are the most bothersome. If they would just go away i wouldnt mind the others, really. I dont have akathisia, but i have inner restlessness that comes and goes.

 

 

What is DR?DP?

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Lilu

Withdrawal is so different for different people partly perhaps due to how they got off the drug the dose and how long they have been drugged... so may variables. Some could be well on there way to healing after 6 months while others are just crawling out of bed.  There are too many variables for this to be truly productive reading through the countless threads and finding a situation that sounds like your may seem a good idea but even then you will find our own body make up or other not yet understood variables through theories out the window. I know because I have been reading posts for 6+ years... and that is what I have found.  We are all flying by the seat of our pants here and all hoping. That is about the best I can tell you. 

 

This is true, what you're saying. However, reading through dozens of profiles over the years, has informed me about what can happen during withdrawal. This has been important in recognizing the symptoms, physical or mental, as being DUE TO withdrawal, as opposed to, say, a permanent change in my personality, for whatever ungodly reason.   Knowing that what I am experiencing, may or may not be a symptom of withdrawal tells me that "it too shall pass".  Reading about Olivia's experience, makes me feel grateful that my experience hasn't been that bad. But it also makes me feel scared about what will happen when my taper is over.  I am optimistic however.  I'm grateful that despite the brain fog, lethargy, and fatigue, my memory has remained impeccable.   One thing we all are doing on here, is exercising our brains and our memories by reading and learning so much scientific information and employing critical thinking. 

 

I had a really hard time when I got to 1 mg of my medication.  It was a very long and nasty wave.  I came very close to trying yet another antidepressant.   Y'all talked me out of it.   And then, a window opened up.  And I was like, "Oooh, THAT's what they're talking about."  It seemed like I had to cross a very long threshold.  In the past however, I would think that "ok, i'm healed now. It's over."   But now that I know about the up and down nature of withdrawal, I am aware that I may have another wave.  I am also aware that emotionally stressful situations can bring on a wave, and that I have to do my best to avoid them.

 

I guess this kind of living forces you to live "in the now", appreciate more and take advantage of your good days. And take better care of yourself on your bad days.    There's gotta be a reason why so many of us are on this long and difficult journey.  I just wish that people could learn from each other's experience.  I wish that my experience could have stopped others from taking these drugs.  But, so far it hasn't.  In today's fast moving society, people prefer to pop a quick pill, rather than cultivate the skills necessary to manage whatever mental dis-ease ails them.

 

Of course, as I have learned from this site, many of you wound up on psychotropic drugs for NON-Mental reasons.  And that's just  unfortunate that psychotropic drugs have so many off-label uses, and doctors prescribe them without letting patients know what may happen to them.  I have made it my policy NOT TO fill any drug without thoroughly researching it, and checking if it can exacerbate my other health issues.

 

Anyway, this topic is about hope, without which we can't live without. So I'm happy to report for the moment that I have gone down to .5 mg/ml in my taper, and am feeling reasonably good.  Better than I have felt when I was in the 1.5 - .7 range.  We'll see what happens next.  One thing for sure, I just have to keep going, and believe that there's light at the end of the tunnel.  

Peace.

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Lilu

Memory problems are very severe, i feel confused and dizzy, i dont really konw whats happening around me if you know what i mean.

 Olivia, have you heard of a supplement called Phosphotidyl serine?  It is recommended for memory and brain fog.  I found out about it by reading a review posted by a woman on vitacost.com where I was buying vitamins.  In turn, she said that she found out about it from Dr. Amen (who frequently appears on PBS (public television).

Here's some info:

Phosphatidyl choline – Helps increase levels of the neurotransmitter

acetylcholine, which is associated with brain speed and short-term memory function.

Appears to prevent further deterioration of mental function in Alzheimer’s patients.

 

Phosphatidyl serine (PS) – Occuring naturally in the brain, PS

supplement may reverse about 12 years of memory decline. PS is intricately

involved in the strength, permeability, elasticity and maintenance of the

structural integrity of all cell membranes, especially those of the brain.

 

Ginkgo biloba – May lessen age-associated memory impairment

(AAMI) and improve some mental functions in those afflicted with AAMI.

 

from: http://www.newyou.com/the-source/features/memory-lift/

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NoMeaning25

Derealization and depersonalization

 

 

 

Thank you very much for this. I really needed the hope and encouragement. I have only experienced one window, that was more than a year ago. I am really really hoping and praying that the DR/DP will lessen and go away. II have it very severely and like you, my memories are mostly gone.

 

I am very happy to hear that you are doing much better and that the DR/DP went away. If i may ask, was there anything specific you did to aid in your recovery? Diet, meditation etc?

 

I have severe dizziness too that i hope will go away aswell. My list of symptoms is enormous, but these few things are the most bothersome. If they would just go away i wouldnt mind the others, really. I dont have akathisia, but i have inner restlessness that comes and goes.

 

 

What is DR?DP?

 

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NewMe

Hello

 

I am partially recovering and it is not an easy rd but worth it

 

I also attend al anon and acoa. It has helped me with all aspects of recovery - which includes the reasons I was medicated for but never knew why I had horrid depression.

 

Now I know. I use the steps as an assist during  mindful, watchful taper. I am now facing my issues a bit at  time by working a 12 step prog and being gentle w myself. I also accept rolling through the difficult days and accepting them as they come rather than reacting to them.

 

Best wishes

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btdt

 

Memory problems are very severe, i feel confused and dizzy, i dont really konw whats happening around me if you know what i mean.

 Olivia, have you heard of a supplement called Phosphotidyl serine?  It is recommended for memory and brain fog.  I found out about it by reading a review posted by a woman on vitacost.com where I was buying vitamins.  In turn, she said that she found out about it from Dr. Amen (who frequently appears on PBS (public television).

Here's some info:

Phosphatidyl choline – Helps increase levels of the neurotransmitter

acetylcholine, which is associated with brain speed and short-term memory function.

Appears to prevent further deterioration of mental function in Alzheimer’s patients.

 

Phosphatidyl serine (PS) – Occuring naturally in the brain, PS

supplement may reverse about 12 years of memory decline. PS is intricately

involved in the strength, permeability, elasticity and maintenance of the

structural integrity of all cell membranes, especially those of the brain.

 

Ginkgo biloba – May lessen age-associated memory impairment

(AAMI) and improve some mental functions in those afflicted with AAMI.

 

from: http://www.newyou.com/the-source/features/memory-lift/

 

I think Alto tried that one if you search on here you may see her take on it. 

peace

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NewMe

An update - I am now at -48 beads of effexor. 6 wks later than my post up there ^

 

Was able to slow down the taper as I finally was accepted for coverage in hardship. 

 

I am doing ok. Some days are tough. But that is more than likely due to my living situation etc. 

 

No severe brain zaps. When on paxil I was suicidal more often than not. Started happening with effexor. I can attest that it is very different now. I do not think about suicide near as much as when I was on full strength. Sad to actually read that part in print. If nothing else, it serves as a warning re what this med did to me.

 

Thinking is pretty clear though I do not have the sensation of - - increased blood pressure to my head. Cannot describe. Some of my memory is foggy.

 

I am optimistic and hope all of you are still holding down the fort

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andy013

Hey, I don't visit this forum very often and I was looking for some success stories to give me hope. I had a look through the success story forum but a lot of them were relatively short term recovery. I wondered if anyone here knows of any people who recovered over a longer timeline (5 years or over)?

 

I am currently approaching the 3 and half year mark after going cold turkey from citalopram (6 months use). My symptoms are still pretty severe and I don't believe I will be fully recovered any time soon.

 

I actually can become depressed reading many success stories of people who have recovered after 2 or 3 years (or ever 4 as I doubt I will be recovered by then either). I feel so envious of those who managed to dodge this bullet.

 

I'm also interested to know if anyone has experienced "bad waves" after social situations. For me, just going into a social situation for a few hours can end up triggering a bad wave the following day. It has happened so many times now and so severely that it is a clear pattern. I figure something must be messed up in that part of my brain because I also have problems relating and having conversation with others as well. I've not seen many other people with these symptoms this far out.

 

Sometimes I feel like I am improving very slowly but other times I doubt that. It's so difficult to tell.

 

 

 

Also, does anyone know of a person who has reinstated after being off for years and what the outcome was? I figure as a last resort (a few years from now if things haven't improved) I may as well try the drugs again, maybe I am just dependent on them now.

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LoveandLight

Wishing you healing!!

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Rhiannon

I think Alto's recovery was over a pretty long timeline. Claudius has recently written a success story, I think his recovery period was something like 7 years. Have you checked out Gianna's story on Beyond Meds? I think it was somewhere around year 4 that she gained significant improvement, and she's still healing. I'm not sure what Jemima's time frame was but I know it was long.

 

I'm sure there are others but I think a lot of people, when they get to that point after years where they're finally starting to get their lives back, they don't hang around here much. They're well enough to get back into life more, but they don't really feel "done" so they don't write a success story, and by the time they're well enough to really finally say okay, I guess I'm better, this forum is just no longer part of their lives and coming back here to write a success story either doesn't occur to them or just doesn't sound appealing (not exactly the home of their happiest memories). 

 

What you'll mostly see here are people in the beginning and middle of the process. By the time you get to the end and you're starting to be able to enjoy life, you don't stick around here because you are SO done.

 

I've definitely met people, over my five years in this "world", who have recovered over longer time frames. I would say it's more the norm (to eventually recover even if it takes a long time) than the exception.

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Whoopsie

Hi Andy,

 

I haven't posted on the forum much but am here today reading.  I am 5.5 years off and I want to tell you that over the last few months I have finally been able to get back out into the world of the living.  I have signed up for an art class, Tai Chi classes, a Swing Dance Club and am volunteering at the Senior Center doing dishes or catering.   I am not fully recovered but have come such an awful long way that I must encourage you to keep going and don't look back.  Unfortunately it does take some of us a great amount of time to heal. 

 

I'm not ready to write a success story yet as I still have struggles with negative intrusive thoughts and nerve pain in the mornings but those too are much, much improved over the first couple of years off.  I am certainly not going to give up, not ever.  I have fought valiantly for my life and my health and you have too, stick around and wait for the rewards ok?

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Altostrata

Andy, please follow this forum. We encourage people to post success stories and from time to time, they do.

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cymbaltawithdrawal5600

I think there is a time for many when they are in the thick of wd (and for some this could still be happening several years out) that you are grasping for some shred of hope that this will eventually end. You start to seek out recovery stories but don't quite find what you want. There are recovery stories everywhere and there are enough already! But you want to find someone with your exact drug or your exact length of struggle who also has this or that qualifier and THAT is impossible to find. So you dismiss what you read and moan that you are unique and recovery won't ever happen for you.

 

I've got news for you: the fat lady hasn't sung yet. I will take any and all bets that you will recover, that anyone will, I just cannot predict when. You just have to stay alive long enough for it to happen. In my case, I read all the stories (and more than once) and what they did is seep into my subconscious. At some certain point (and never during my worst withdrawal times) they would pop into my mind and I could see there might be a light at the end of the tunnel and that now I can see it. You have to be able to recognize that you are always evidencing some measure of recovery (your depression isn't as deep, you haven't thought of suicide for the last hour, you slept 10 minutes more last night) even though it may get worse again. That is the body healing and it is erratic in it's efforts but in the end it will manage to pull it all together and you will be the new and improved version of 'YOU', sadder but wiser and more resilient to life's stresses. Those things start creeping up and you finally see them and you start knowing that it will happen for you. Unfortunately you can't force it, the body has it's own wisdom and timetable. You just have to give it the tools to work with. See my post here about what I think is important (it is in the last half).

 

Everyone on this board is a recovery story waiting to happen, their thread is a journal of how they are getting there. Read them all. (Except skip the beginning of mine, I was nuttier than fruitcake when I got here...)

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AlasLlama

I am substantially healed today. I was on meds between 1996 and 2009. In 2009 I tapered myself off of Effexor. 

 

Here is what has worked for me:

 

A sound and light machine helped me sleep. 

 

EMDR therapy put my severe depression and anxiety into remission. The EMDR therapist also provided a safe environment and supervision while I discontinued medications. The word on the street among EMDR researchers is that one cannot successfully complete this type of therapy if one is on medication... my sense is that any EMDR therapist will likely be very supportive and have a lot of helpful experience.

 

Neurofeedback training helped with the residual side effects of the Effexor. My worst side effect was extremely severe memory loss. I had to quite my job because I could not remember what was on page one of a document when I turned to page two. Today I am able to work again.

 

Slowly, slowly, year by year, I have rebuilt my capacity to feel contentment and joy. Exercise has helped. I pay a lot of attention to diet and nutrition. I try to spend a lot of time outdoors. I make sure I sleep. I periodically refresh my neurofeedback training. 

 

Best of luck to you. One can recover. It is slow.

 

The silver lining to this cloud for me ... I have a sensitive child who worries. Due to my own experiences, I know enough to keep him away from the medication peddlers and to teach him alternative ways to calm himself down. 

 

I never regained my ability to write poetry. So that is my long term goal. I will *not* give up. 

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alex

Thank you for your update.It gives me hope.

I am a 61 yrs man struggling with wd from 4+years of Effexor use.

I am 28 months med free now.I really don't know how I've survived.

I have seen important improvement, longer and clearer windows, but still in the rollercoaster of hell.

For what I've read 4 years seems to be the magic number for a nasty drug like Effexor..

I am giving he good fight.

You are all my heros.

 

Blessings.

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LexAnger

Hi andy013, I tapered last year from 10mg lexapro to 2.5 started getting sever WD, so backed up immediately to 2.7 which stopped the WD. After 10 month on 2.7 I increased to 4.5 due to other reasons ended up severe reaction getting humorous severe problems physical, mental and psyc all so bad nearly disabled. My own experience is, reinstate or even increase after a long hold can be very very harmful, lot more harmful than WD itself. It's not only damages you in all ways but also makes your brain very sensitive. I used to be able to change dose by 1-2 mg without much problems but now I can't even tolerate 0.05 mg change.

 

If I can go back, I would rather hold on dealing with the WD instead of reinstate/ increase

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Altostrata

Unfortunately, reinstatement is the only way medicine knows to reduce withdrawal symptoms, but as we have seen, it doesn't work for everyone.

 

I believe the hypersensitivity to subsequent increases is created when the drug was initially decreased too fast. That is why we suggest trying a very, very small dosage for reinstatement -- because the hypersensitivity may already exist.

 

AlasLlama, if you feel your healing has reached a stable place, please start a topic in this forum (Recovery Success Stories) and write up your story now that you can look back on it. This will give a lot of people hope.

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