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"Every time I stopped I'd start crying"

 

That was my reason also for staying on the drug nz11.  

 

I have a friend who has been on some sort of sickness benefit for many years.   All she does to collect, is go off the drugs for a couple of weeks and then goes to the doc - she cries and cries and they then approve her benefit once more.  

 

That's exactly what happened the first time I quit Paxil (cold turkey on the advice of my idiot doctor).  Within 24 hours I was crying nonstop, curled up on the bed in the fetal position.  I called the doc and he said "Oh yeah, sometimes there's a bit of rebound depression.  Just starting taking it again."  In fairness, this was in the late 90's when a lot less was known about withdrawal.  But damn, at that point I felt completely hooked and was terrified to try quitting again.

Paxil 20mg 1994-2005
Tried to quit twice, finally did it on my 3rd attempt in 2005.

I went from 20mg to zero in about four months, believing at the time that it was a reasonable taper.  It wasn't.  I suffered mostly emotional symptoms: frequent episodes of "anxious depression" lasting for about 17 months before it got noticeably better.

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Oh my ...about 27million Americans are on this stuff i wonder how many others have had the same experience.

 

Sounds like im not the only one who fell / has fallen into a state of learned helplessness.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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Oh my ...about 27million Americans are on this stuff i wonder how many others have had the same experience.

 

Sounds like im not the only one who fell / has fallen into a state of learned helplessness.

Ha. Exact same thing happened to me EVERYTIME I tried over a 10 year period. And it's more common than we think. Everyone I know who has been on meds and has tried to come off had the same issues and went back on. My bff has been on Zoloft for 22 years. She could never get past that anxiety/ crying phase and updosed back up or got back on immediately. Sadly she's become an alcoholic now and I can see the intense anxiety and irritability she deals with all the time now ( she lives across the world from me now but visits and we talk). It breaks my heart. She won't listen to me and just says " you're stronger than me. I can do what you did and I resign to this for the rest of my life". She seems terrified to even discuss coming off slowly.

13 years of Ssri's - celexa, Paxil, Prozac, Zoloft

2 fast tapers and 2 cold turkeys over the years

Psych med free since September 4th 2011 - fast tapered then CT'd 12.5 mg of Zoloft

 

 

“Strength does not come from physical capacity. It comes from an indomitable will.”

― Mahatma Gandhi

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Gozsche 2013 book review ct...............

 

 

When I made an official complaint to my doctor about paroxetine he responded with I have many patients on the drug and you’re the first person in 21 years to complain about it.

This is pretty much in line with the pharma marketing lie of : SSRIs have helped to significantly improve millions of  lives.

(This is also the response given to Jeanne Lenzer, a BMJ journalist when querying Lilly on missing suicides from trial data and questioning the safety of the drug-see pg 206 for details of this) .

 

So how does one respond to such an intimidating statement.

 

 Gotzcshe shows us how in ch 17 p 207:

 

“When drug companies face trouble they always try to escape by using big numbers. Millions of lives have NOT been improved significantly. In randomized trials equally many patients stopped treatment while on SSRI as while on placebo, which suggests that, overall, considering benefits and harms together the drugs are pretty useless. [Barbui C, Furukawa TA,Cipriani A. Effectiveness of paroxetine in the treatment of acute major depression in adults: a systematic re-examinayion of published and unpublished data from randomized trials. CMAJ. 2008;178: 296-305.]

 

A 2003-2007 study of 7,525 patients starting antidepressants, of which two thirds were SSRIs showed that already after two months, half the patients had stopped taking the drug.[serna MC, Cruz I, Real J, et al. Duration and the adherence of antidepressant treatment (2003 to 2007) based on prescription database. Eur Psychiatry. 2010;25:206-13.]

What 50 million people tell us is that millions of people have been harmed, as many of those who continue to take the drug become addicted and cannot stop. (207)

 

{This appears to be extraordinarily consistent with Breggins testimony when reporting on the clinic trial data in the trial NGUYEN & FARBER vs GSK trial.

Paxil's Clinical Trials

20. From 1980-1991, approximately 5000 patients were tested on Paxil during SKB's clinical trials. Eighty-three (83) different Paxil trials were conducted. Various time periods were involved in the individual trials. Many patients were tested for only a month or 6 weeks. Some were tested longer, including approximately 400 who were in trials longer than a year. SKB pulled out all the stops to ensure the trials were successful. Only two (2) positive trials are required for FDA market approval. By any reasonable person's perspective, Paxil's track record in the clinical trials was poor. After a decade of juggling data in the 83 different trials, SKB was finally able to cite four (4) "positive" trials and three (3) "supportive" trials to justify Paxil's approval. Dropouts in most trials were rampant. Most of the dropouts occurred because Paxil caused adverse experiences, and the victims wanted nothing more to do with the drug.} See my intro post # 29 for more on this statement by Breggin.

 

"SSRis are not only dangerous in children but also in adults" p207.............."SSRIs likely increase the risk of suicide of all ages. These drugs are immensely harmful." p224

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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WatchingTV426

"You're the first person to complain about it" in 21 years?! HA. And the first person to go through w/d that didn't clear up in 7-14 days, too, I bet. 

 

Thanks for posting this info., nz. It's scary and enlightening. And scary. 

Started Zoloft 07/06, continued through 07/08 (2-month taper, going downhill 6 weeks after stopping [w/d?]) 

Lexapro started 12/08, Lexapro increased/Buspar and Topamax added in '09, continued through 08/10 (3-month taper, disastrous results after 3 week [w/d?]) 

200 mg Zoloft started around 9/10; been between 150 and 200 mg Zoloft since then, also on Topamax and Deplin, and tried things for sleep like Trazadone (worked for a while), and Ambien, Lunesta, and Mirtazapine (all failed) 

--Started tapering 200mg Zoloft--

6-26-14 (150 mg); 7-14-14 (100 mg); 8-20-14 (50 mg); 10-25-14 (25 mg); 11-18-14 (12.5 mg); 12-2-14 stopped Zoloft 

anxiety started 3 days off, depression 12 days off; both severely intensified at 5 weeks off with a work-related trigger and got progressively worse for 10 days 

Reinstated Zoloft 12.5mg on 1-15-15 (one day at 25mg) after 6 weeks and 2 days off 

Also taking 100mg Topamax and 15mg Deplin 

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Gotzsche ct ....ch 17 (well all the good stuff is in this chapter)

 

Leading psychiatrists are often highly effective drug pushers. p197

This is so true you know i went to a psychiatrist to try to find out if anyone new if there existed issues difficulties getting off paroxetine. (This is when i was just waking up to the scam hadnt googled anything at that stage) My doctor at the time didnt know of any, 9 months into my taper and all hell breaking loose said i had an underlying depression. I immediately responded that is not right and so referred me to a psychiatrist. Anyway when i asked him if he new of any issues with this drug i was told 'well if there were problems people would be suing the drug companies.' It only took me about 10 mins when i got home to find out on the computer that this guy was full of crap.

I digress another psychiatrist (refused to see the first one again because he was full of BS). The second one tried to go to great lengths to tell me i was atypical, an outlier, a unique case someone who was very sensitive to drugs. However if he really believed that he would have refrained from prescribing me anything right ! Well within 15 mins he was trying to write me a prescription for prop?ol or something ...he quickly stopped doing so when i made it very clear i was not interested whatsoever in any drug he and his cronies were  peddling and to not bother because it would be going straight down the toilet. These people just cant help themselves they say one thing and then go and do another. They don't even listen to their own statements...its time these people stopped and smelled what they are shovelling!

 

 

Psychiatry is in deep crisis. It has not only turned what ere previously acute conditions chronic, it has also medicalized normality. p198

 

All the drugs can cause permanent brain damage and permanent personality changes eg tardive dyskinesia, cognitive decline, and emotional flatness.The brain damage has been shown to occur at receptor level and there is nothing strange  about this, as this is how the brain works. Hashish, LSD and other brain-active substances may also lead to permanent brain damage and psychosis. p200

Well i'm banking my hope on the would 'can' as in might. Holy cow what have i done to myself. How can anyone call these things medicines!

 

It is unhealthy to perturb normal brain function with drugs whether they are legal or illegal. p200

 

And here is the last quote from the book that i will give as i close out on this book review.

 

The chemical imbalance story ..is a big lie. p199

The Irish drug regulator banned GSK from claiming that paroxetine corrects a chemical imbalance. p199

 

"Psychotropic drugs don't fix a chemical imbalance, they cause it, which is why it is so difficult to come off the drugs again. If taken for more than a few weeks these drugs create the disease they were intended to cure." p199 

 

About the Author
Professor Peter C Gotzsche graduated as a Master of Science in biology and chemistry in 1974 and as a physician in 1984. He is a specialist in internal medicine; he worked with clinical trials and regulatory affairs in the drug industry 1975-83, and at hospitals in Copenhagen 1984-95. He co- founded The Cochrane Collaboration in 1993 and established The Nordic Cochrane Centre the same year. He became professor of Clinical Research Design and Analysis in 2010 at the University of Copenhagen. Peter Gotzsche has published more than 50 papers in 'the big fi ve' (BMJ, Lancet, JAMA, Annals of Internal Medicine and New England Journal of Medicine) and his scientifi c works have been cited over 10 000 times. Peter Gotzsche has an interest in statistics and research methodology. He is a member of several groups publishing guidelines for good reporting of research and has co- authored CONSORT for randomised trials (www.consort- statement. org), STROBE for observational studies (www.strobe- statement.org), PRISMA for systematic reviews and meta- analyses (www.prisma- statement.org), and SPIRIT for trial protocols (www.spirit- statement.org). Peter Gotzsche is an editor in the Cochrane Methodology Review Group.

 

Here is my book review summary i posted on amazon books.

This book by Gotzsche will shake you to wake you out of a false sense of trust in those people society holds up as academic giants people we entrust our health our lives and minds to, people who have proclaimed to first do no harm! It will stir the emotions within that cries out for justice and fairness and transparency when it comes to something as precious as our health. It exposes the shameful disgraceful behavior that has led to the prescribing of poisons under a wrapper of lies, fraud and deceit. Behavior that the trusting, humble man in the street is completely unable to conceive of.

Its well referenced documentation silences all critics.

No doubt about it Gotzsche is a true hero and very informed.

 

One area he appears to be uninformed in is the need to taper for years in order to get off psych drugs he seems surprised in one sentence that some 'may have to taper for a full year', unable to conceive of tapers that last for 4-5 years yet that kind of tapering requirement is becoming more and more common as thousands come to the realization that pharma have taken addiction to a whole new level... and lied about it.

 

One quote will stick with me, Gotzsche when asked to comment on the ethical standards in drug companies replied,

......'I am unable to comment on something that does not exist.'

 

A must read for all people who wish to be informed of this unprecedented crime against humanity.

.............................................THE END................................................................

 

Hey just found this book review on amazon books by a psychiatrist named Stuart Shipko, Sounds like Shipko liked the book too.

Thought this might be worth posting ...Shipko is right up there on my heroes list !

 

When I started reading ‘Deadly Medicines and Organized Crime’ I thought that the analogy to organized crime was a metaphor. By the end of the book I realized that this is a perfect description of what is happening with the pharmaceutical industry. Exquisitely referenced and written with enthusiasm and a touch of humor at times, this book is a game changer, and made me realize the lengths the pharmaceutical industry will go to in order to sell a pill, even if it has a significant risk of harming – or killing – the person who takes it. ‘Deadly Medicines’ raises another issue: doctors. Why aren’t they demanding more information on the medications they prescribe? As it stands, physicians are only seeing the marketing information on drugs, not scientific data to support safety and efficacy in any meaningful way. Why is it so easy to buy off a doctor for marketing purposes? There are a lot of good books out there which go into the problems with specific types of medications, but ‘Deadly Medicines’ gives the reader an overview of the whole corrupt system and physician submission and participation in this system. It is a good read, and a book that everyone needs to read before taking a prescribed medication. Gotzsche has done a great service to the public and is to be commended.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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I have just finished reading:

 

 Bass, Alison. Side Effects: A Prosecutor, a Whistleblower, and a Bestselling Antidepressant on Trial. Algonquin Books, 2008

 

 There are many good parts of the book I could share but I have decided to just share a 2 page portion that is very meaningful to me. For this reason:

 

When I complained to a psychiatrist that these drugs cause suicide and should be banned, and that it was a miracle I was still alive, his response was that when the black box warnings went on the drug, suicides rates actually went up and so perhaps people weren’t getting the help they needed.

 

I wasn’t aware of this statistic at the time and so I couldn’t reply back regarding this statement but it just didn’t sit right with me.

 

Here is a piece from Bass’s book on this very subject which caught my eye:

 

[ Despite such extensive coverage, many medical professionals still take money from the pharmaceutical industry – for both research and consulting gigs. While the most respected medical journals insist on the disclosure of these conflicts (in fine print at the end of the article), many other venues do not. Take, for example, the debate over whether black box warnings should be extended to antidepressant usage in young adults. In December 2006, the FDA held an advisory meeting to consider new findings that young adults between 18 and 25 who took Paxil and eight other antidepressants were significantly more likely than those on placebo to report a suicide attempt, just as the research on children and adolescents had shown. At that hearing, opponents of the black box warnings on SSRI cited preliminary results from a study showing what appear to be a correlation between an uptick in national suicide rates among adolescents and a drop in the prescription of SSRIs among this age group. Several psychiatrists pointed to the apparent correlation as proof that the publicity over the SSRIs in the black box warnings had scared physicians from prescribing these drugs. The lack of treatment, the psychiatrist argued, may have prompted more youngsters to kill themselves.

 

However when this finding was published in the September 2007 issue of the American Journal of psychiatry, it was roundly criticised as being erroneous. The number of suicides among adolescents under the age of 19 did indeed climb about 14% (from 1737 to 1,985) between 2003 and 2004, according to statistics from the centres for disease control and prevention. The number of prescriptions for SSRIs among adolescents, however, remained essentially unchanged from 2003 to 2004 (prescription usage didn’t decline until after 2004). Thus the FDA’s black box warnings cannot be blamed for the apparent increase in suicides among adolescents the year before. This discrepancy in the data was not mentioned at the December 2006 FDA hearing. Nor was it disclosed that an SSRI maker (Pfizer) paid  $30,000, the cost of obtaining prescription data for the AJP study, or that two lead authors of the study have financial conflicts of interest: Robert Gibbons served as an expert witness for Wyeth pharmaceuticals (the maker of effexor another SSRI), and Dr J John Mann a professor of psychiatry at Columbia University, has been a paid consultant to at least two SSRI makers, GSK and Pfizer.

 

Other psychiatric researchers say that the latest upturn in suicide rates does not mean anything, given the small numbers involved and the tendency of suicide rates to fluctuate from year to year. “People who are specialists in statistics know you have to look at trends over years and years”, said Julie Zito an associate Professor  of pharmacy and psychiatry at the University of Maryland, who has published several articles on the subject. “For instance you will see that the overall trend in suicide rates among children and adults has been going down quite a ways before the SSRI s  arrived on the scene.”

 

In the end the FDA did extend split box warnings on antidepressants to young adults. But it also  added language to the labels warning that “depression and certain other psychiatric disorders are themselves associated with the risk of suicide” the FDA’s Thomas Laughren  now director of the Division of psychiatry Products, said the new language had been added because of the agency’s concerns about the uptick in suicide rates between 2003 and 2004. (National suicide rates for 2005 and beyond had not been released when this book went to press). Both Zito and  Dr Peter Lurie deputy director of the public citizen  health research group, say that including language about untreated depression in the black box cautions on antidepressants undermines the whole point of the warning. The important thing is that the risk of suicidal ideation is higher in the treated group than untreated group in randomised controlled trials, and that’s what the warning should be about, Lurie says “whether or not untreated depression also leads to suicidal ideation is misleading and irrelevant. The FDA should not have put in that kind of language because it is intended to confuse.” ] (p225-227)

,

............................................//................................................Great Book Highly recommended.....................................................''.........................

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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  • Moderator Emeritus

Thanks for sharing that NZ, would you like to post it in the media? 

 

http://survivingantidepressants.org/index.php?/forum/15-in-the-media/

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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Done mammaP ...although my title just doesnt sound right you can change it if you want.

 

Post #79 spelling correction ...one sneaked through 'split' s/b black.   It was the dragon having a bad day!

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post

Just spotted another member state this so i wanted to grab it and store it for further future investigation. Wouldnt mind having a read of this these i wonder if they are available on this site.

 

Antidepressant Discontinuation Syndrome (995.20) is a legitimate diagnosis listed in the DSM5 as is Medication-induced acute Akathisia (333.99).

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post
  • Moderator Emeritus

Wow , that's a heap of information.      I can feel your anger from your thread.      What are the words that start with M and I   (so I can be sure to avoid them) ?

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Link to post
  • Moderator Emeritus

Sorry , I can't use the quote yet.     Am referring to your post end of page 1 in above question.

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Link to post
  • Mentor

Must say a lot on the list i cant even say the word let alone know what it is ..that doesnt mean because i cant say it i dont have it.

Anyone know what 'tongue edema ' is.

I have vertical cut like grooves in my tongue surface ...could that be it.

They must have tried that one while I was involuntary patient after bad reaction to valium.     Luckily they had an antidote.  My tongue became so swollen it was physically choking me. luckily I managed to find a nurse, instead of dying in bed.

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post
  • Mentor

Just spotted another member state this so i wanted to grab it and store it for further future investigation. Wouldnt mind having a read of this these i wonder if they are available on this site.

 

Antidepressant Discontinuation Syndrome (995.20) is a legitimate diagnosis listed in the DSM5 as is Medication-induced acute Akathisia (333.99).

Oh Brilliant,   love it!   makes it sound like it is just a mental condition, not a true illness.   How clever they are!

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post
  • Mentor

 

Important going forward,

Note:

I realize that this is a public forum and that people can post whatever they like wherever ..i have been in the past accused of assuming ...so may i just ensure that that is not the case from here on in.

I would like to ask ask out of respect for the op that as we have only one thread per person that should it be that a potential poster has a habit of /desire to... perhaps drag a thread into a debate on the existence of two words that start with M &  I, like to talk about the existence of words that start with 'D' or rhyme with 'my molar' ...and throw in the odd words here and there like 'family history' then can i just pre-empt any posting now by saying gently yet assertively....please refrain from doing so on THIS thread as i loathe this debate and find it extraordinarily disturbing (thats the politist way i can put it).

 

Now that that is cleared up i thank you in advance for your cooperation!

 

Also please avoid declarations of one's allegedly superior level of education/psych knowledge and/or greater insight due to suffering more than anyone else on the planet.

 

Hi Babs, sorry, I am suffering more than you   :(    JUST KIDDING!!!!!!   I dont understand all this gossip in the background stuff, thank goodness :0  I would just like to say like wow, thankyou NZ11, I am copying all your references, thankyou!!

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post

  What are the words that start with M and I   (so I can be sure to avoid them) ?

 If you don't know then you don't need to worry.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post
  • Mentor

Ch 10 can be summed up in one opening quote

 

"If the American people knew some of the things that went on at the FDA they'd never take anything but Bayer aspirin." Len Lutwalk, FDA scientist.

Should change that to never take anything....  just a note, how many people take aspirin, believing it will stop blood clots (which it does, it thins the blood), only to have a stroke instead (blood leaking into the brain).

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post
  • Moderator Emeritus

Hmmm . . .  my brain has gone sloppy from too much reading today.   Best guess is ME and I.     Correct?

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Link to post

 

 I am copying all your references, thankyou!!

 

Kick it in the guts Trev..rattle ya dags mate...gee ...you lazy good for noth'n, Aussie bludging ratbags..you drongos copy everything from us kiwis ...let me think there was, vegemite, pavlova, our race horses, Fred Dag (John Clarke) wait on you stole him, along with Phar lap and Crowded House, 'pineapple lumps' ...maybe you haven't got your copiers onto those yet....oops! sorry! no  i am saying nothing, nothing at all about pineapple lumps ...no you wouldnt like them na. Just forget i even mentioned pineapple lumps ok.  The list just goes on an on ...Russell Crowe ..on second thoughts you can keep him on your side of the ditch.

 

Found this talk really helpful with withdrawal on really bad days. Its a highly reputable peer reviewed talk on how to cope with protracted wdl. You are welcome to copy that too its highly recommended by both Healy and Breggin.

 

https://www.youtube.com/watch?v=5tAWwqKNI7g

 

I think there was a saying about mimickery ...how did it go again!

 

Help yourself ! And pass it around ...the more people read this stuff the better imo.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post
  • Mentor

hahah rofl  You have made me smile, and that is damn hard these days.   I am housebound, cant go and buy the damn books yet.  I reposted most on my fb page, god bless ya!  I think I rely so much on people who got put on this stuff while mentally well, only to have it make them mentally unwell.   

 

so thankyou!   If you cant get out of bed, and a sister says believe the doc, he is wonderful, he has made we well, give him your brain, well, I gave the wrong bast+++ d my brain.   Of course now I am so so sick, my "hereditary" apparently, disease, has progressed nicely while on these brain killers.   I am so glad I got my brain back, and realised the effexor, is so addictive, you dont even know it!  Aggghh!

 

Where are you from in NZ.  I love clivia, as you can see from my pic.   HOWEVER they grow SO MUCH BETTER IN AUSTALIA   :)  

 

Lets hope we can all sue as a class action one day...   :(

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post
  • Mentor

hahah rofl  You have made me smile, and that is damn hard these days.   I am housebound, cant go and buy the damn books yet.  I reposted most on my fb page, god bless ya!  I think I rely so much on people who got put on this stuff while mentally well, only to have it make them mentally unwell.   

 

so thankyou!   If you cant get out of bed, and a sister says believe the doc, he is wonderful, he has made we well, give him your brain, well, I gave the wrong bast+++ d my brain.   Of course now I am so so sick, my "hereditary" apparently, disease, has progressed nicely while on these brain killers.   I am so glad I got my brain back, and realised the effexor, is so addictive, you dont even know it!  Aggghh!

 

Where are you from in NZ.  I love clivia, as you can see from my pic.   HOWEVER they grow SO MUCH BETTER IN AUSTALIA   :)

 

Lets hope we can all sue as a class action one day...   :(

haha rofl, oops that sounds wroong, makes mentally well people, like NZ people, mentally unwell.... sure you know what I am trying to say.   Ahaha!   Like hard actually being called a depressive, then fighting the fact, that I never was depressed, not seriously depressed, as per DMV guidelines, apparently...........At least Australia didnt allow marketing of Paxil to kids... my god... how did they allow marketing of any of this stuff, anywhere?

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post
  • Mentor

 

 

 I am copying all your references, thankyou!!

 

Gee you lazy good for noth'n, Aussies bludgers copy everything from us kiwis ...let me think there was, vegemite, pavlova, our race horses, Fred Dag (John Clarke) wait on you stole him, along with Phar lap and Crowded House, 'pineapple lumps' ...maybe you haven't got your copiers onto those yet....oops! sorry! no  i am saying nothing, nothing at all about pineapple lumps ...no you wouldnt like them na. Just forget i even mentioned pineapple lumps ok.  The list just goes on an on ...Russell Crowe ..on second thoughts you can keep him on your side of the ditch.

 

Found this talk really helpful with withdrawal on really bad days. Its a highly reputable peer reviewed talk on how to cope with protracted wdl. You are welcome to copy that too its highly recommended by both Healy and Breggin.

 

https://www.youtube.com/watch?v=5tAWwqKNI7g

 

I think there was a saying about mimickery ...how did it go again!

 

Help yourself ! And pass it around ...the more people read this stuff the better imo.

 

pavlova is ours   !  Isnt it?  Vegemite WAS ours, now owned by damn yanks  :) god I hope the moderators dont take us too serious x

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

Link to post
  • Moderator Emeritus

There's no need to be patronizing nz11.      This site is for sharing information.

 

You're response to my question   (i.e.   if you don't know then you don't have to worry)    is inappropriate.

 

Fresh

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Link to post

Fresh,

I'm sorry and i apologize if i have offended you. No offense was intended i was simply having a laugh.

Humour is the best medicine. If you feel unhappy i will ask a mod to delete it. They are pretty good like that.

 

Goodness me of course you are welcome to anything ...for heavens sake.

 

I was going to suggest if anyone doesnt know go ask babs...however let me put you out of your misery......

M rhymes with dental ,

I = 2 syllables, 1st syllable rhymes with something you swallow ...2nd syllable rhymes  with kiss.

If you you still not sure pm me i will be happy to tell you.

Go well

nz11

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post
  • Moderator Emeritus

Got it , thankyou :)

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Link to post

Great ....

I've done ya homework for ya, and

I've spoon fed ya....

We've got a happy camper ...(fingers crossed)

Now hopefully ......we can all get some sleep.

 

 

Dear Diary,

Today,  took on 4 mods and the Alto,.... I picked blueberries just outside the designated flagged area thinking i was getting first pick of the choicest ones only to discover afterwards i'd picked a bucketfull of a very sour variety that's used only for cooking....in the evening i upset an Australasian neighbour ....as i went to bed i recalled a Scotty-ism that had long been forgotten.....

'Maybe its time to step back from the computer'! Such a wise saying.

Not too late for New Years resolutions...

nz11 always remember to pick, post and swim between the flags.

I'm taking a day off tomorrow ....if i can!

Goodnight.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post

I was going to promise to never mention malevolent iguanas again.

I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants

 

I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over.

 

My signature is a temporary scribble from year 2013. I'll rewrite it when I can.

 

If you want to read it, click on http://survivingantidepressants.org/index.php?/topic/209-brandy-anyone/?p=110343

Link to post

Moving right along.....

Todays posting is a little gem its an accumulation a codification if you may of RECOVERY TIMEFRAMES.

So todays posting is called just that RECOVERY TIMEFRAMES.

yes i know we are all different. 'Just listen will you just listen!'

 

In withdrawal survival if i had to point to one article that i found most informative hope-filled and hopeful it was this.

 

http://www.antidepressantsfacts.com/reaction.htm

 

This is well worth reading ...its referring to drug free time-frames and recovery,
Note: bold emphasis mine, [insert] mine also.

Some exerts are:
..............................................//.....................................................
The first 3-18 months
One of the long term side-effects after experiencing a reaction to an (SSRI) antidepressant, is an extreme hyper-sensitivity of the nervous system to light, sound, supplements, herbs and fabricated synthetic vitamins. Furthermore physical symptoms such as muscle tightness, electrical shocks through the brain and the body, feelings of burning on the surface or inside of the skin (deregulation of pain perception), visual and/or auditory hallucinations, as well as emotional and psychological problems.

 

Do not charge your nervous system like you always did before your reaction to an (SSRI) antidepressant. If you charge your nervous system too much, like too much stress, a surgery, unhealthy eating patterns, etc., you actually delay your recovery. You will have to learn to listen to your body, what means that you know when to withdraw and when to get active.

 

The key solution to recovery is NOT to stimulate your nervous system, but, to sedate your nervous system. Every time when you stimulate a nervous system that in fact needs to be sedated to recover, you delay the process of healing. We know it will be impossible to lock your self up in a dark, silent room and this is definitely not what we are trying to say. You just have to learn when to withdraw yourself (and thus your nervous system) from stimuli and when to come out.
Consider sweat baths (sauna baths). This is a very healthy habit. Sweat baths are extremely sedating to the nervous system. When you take a sweat bath on a regular base this will strengthen your cardiovascular system and improve the blood circulation. Next to this, go out in nature, trees, green, oxygen, gentle walking, etc..
In these first 3-18 months the cycles or the emotional rollercoasters (the tricks your brain is playing on you) can be extremely frightening. [Tell me about it] And it will seem like it never ends, especially when you find a bit of hope in the evening to be back at square one in the morning. Be firm! We all understand its the most frustrating experience right now for you. It's serotonin related and that's why you are experiencing delayed (withdrawal) side effects and flashbacks, but gradually it will get better. Evaluate your recovery by weeks and months, not days. [ I would like to add the word 'years' here...at least for me.]

.
As previously mentioned above, we do not recommend to expose your body to synthetic chemicals whilst experiencing more or less severe hypersensitivity of the nervous system. We rather recommend to get your essential elements from preferably organic low acid food in a variable balanced diet.
Two to three simple bananas and kiwi's,[Thats a great word!] an egg-sandwich, 2-3 glasses of milk, a few tomatoes and an avocado a day provides many of the essential vitamins, (trace)minerals & amino acids you need on a daily base. Vegetables especially rich in essential elements are: Peas, Potatoes, Broccoli, Squash (Summer), Spinach, Lima Beans & Kale. The taste of nature is nice and it saves you money on unnecessary supplements too!

 

•Don't take Saint John's Worth. St. John's Worth works more or less as a natural SSRI (on post synaptic receptors), also interacting with your serotonergic neural system

•Don't do any intensive exercise like jogging or aerobics, but instead try meditation, gentle stretching, gentle walking. [ Boy this is exactly what sent me running back to the doctor after 2 months drug free after 2yrs use ...i set off a panic attack riding the bike at the gym...clueless and a bit horrified i ran back to the doc put back on no questions asked ]

 

You are going to experience minutes, hours and days that you will start to feel better. The cycles will get longer in duration and eventually you will have more good then bad days. Though, it is most important you also treat your nervous system with care during these better days. Don't think when the better days arrive that you can charge your nervous system like you always did before. It will give you a major set-back! Stick to the list we provide you below, on how to assist your recovery during this period.

Friends and Family
These times are very tough to experience. Your friends and family cannot even imagine the powerful influence these drugs have on your mind and your sub-consciousness. They simply cannot believe that these drugs can have such a powerful effect on someone's brain. You might loose your trust in them after this. Try to accept and understand their ignorant and frustrating reactions. Avoid them for a while, if that's possible.

 

Time and Nature will be your best friends in your healing process. In this battle you don't fight to win because you can't. You simply will survive it. Focus on the thought to survive this, and you will, just as other individuals did. Don't force yourself to become the person again that you were before this, but make a statement to yourself that you will come out of this "trip." Make this statement to your self everyday, every hour.

 

Whilst You are Recovering...
We strongly persist not to take any supplements, herbs and/or synthetic vitamins until your nervous system has strengthened over time. Continue to ingest proper food, vegetables and fruit during this period. Treat your nervous system with care. As mentioned above: don't think when the better days arrive that you can charge your nervous system like you always did before. It will give you a major set-back! Be careful and monitor your body closely whilst you are ingesting a supplement or herb.

...................................I highly recommend this article...........................................

 

A second article that i found most helpful in wdl was this one by Healy on Protracted withdrawal syndrome....

This was also most informative.
http://survivingantidepressants.org/index.php?/topic/1454-dr-david-healy-on-prolonged-antidepressant-withdrawal-syndrome-2009/?p=13488&hl=healy&fromsearch=1#entry13488

 

It is now generally accepted that antidepressants can cause physical dependence and a withdrawal syndrome, so that stopping antidepressants can commonly lead to withdrawal problems, that these problems may be severe in some instances but are generally less severe, and that these problems may last for months but are more often over within weeks. [sorry David i would like to add the word 'years'] This piece outlines what is known about states of persisting difficulty and what can be done to remedy them.

 

The final point concerns the likely duration of a tardive dysthymic episode. [Lets just call this protracted withdrawal shall we.] Based on the precedent of tardive dyskinesia, and of the difficulties some patients faced on discontinuation from benzodiazepines such states may last for 1-4 years. In older individuals there is a possibility they may last indefinitely. In younger individuals, they are more likely to clear up in a 12-36 month timeframe.

 

A great number of individuals presenting to their doctors with these disorders are in all likelihood being told they have a recurrent affective disorder and are probably commonly being put back on an antidepressant.

This will happen for three reasons. First the problems will often look “depressive”. Second, most physicians simply do not think that higher order neurological problems of this sort could persist this long. Third, the problems at this point may seem to physicians to be different to the original problems on withdrawal and those affected may be persuaded of this. This interpretation is made more likely by the fact that most people will have had slightly better periods before a bad period leads them to seek help. But even tardive dyskinesia goes through good and bad phases.

 

....................................................................//A highly rec read imo.......................................................................

 

It was the article #1 timeframe of 18months above that informed me and gave me hope to press on despite extreme difficulty,
When this timeframe passed and i still struggled it was Healys timeframe of 1-4 yrs that i then turned to once again hold onto ...i just hated it when the goalposts kept shifting!! But at least i was still in the game ..it encouraged me to know it was not game-over yet!

 

I thought from memory that Healy had said 2-4 years for recovery ...so i have a funny feeling there is another article out there (i shall try to find it and post it) and he has revised this timeframe...for me 2-4 is a better one but not exhaustive. I agree with the 2 ..

 

I have so much paperwork lying around the house, any one would think there has been a burglary if they were to suddenly walk enter the house,…printouts, articles, etc everywhere. Decided to codify some into one posting. These are some that talk about timeframes.

 

Accumulated from another site and now posted here unfortunately as I often printed details I cannot advise of the original source.

 

1). Taken from a reply from Dr Shipko to a long-term SSRI sufferer.

Dear Dr Shipko,
I live in the UK. I took paxel for 8 years for panic attacks. I stopped in 2005 (Cold Turkey) as my doc adviced. I have been to hell and back with horrible withdrawal symptoms I am still here! And I’m suffering every day feeling spaced out, kind of drunk, I have balance problems get rushes of anxiety for no reason. No one is willing to help me. Can you offer any suggestions please.

 

Reply: [Reading between the lines it appears the reply was in 2011]

I can’t offer you specific suggestions, but I can share some general educational information. You are writing that you are having persisting withdrawal symptoms now since 2005 –? Six years. In my practice I have seen persistent symptoms associated with withdrawal lasting for 6 or 7 years and then improving for no apparent reason. It is, of course, important to make sure that the symptoms are not due to some other drug medication condition. Regarding the supplement based cues offered over the Internet, I don’t know of any that have offered meaningful benefit. Some people feel that acupuncture helps these sorts of symptoms. In some people, for whom the persistent withdrawal symptoms are too uncomfortable, restarting the drug has sometimes offered the better quality of life.
Good luck to you.
Dr S.

 

Nz11 comment: Doctor Shipko is a kind and generous person imo he is on the heroes list for sure. I personally would avoid suggesting the last sentence to people. But that is just me and yes I am very biased.

 

2). This is a comment from ‘Sharon’ from a now deceased site.
………………………….
Two more general things may be of interest.
Robert Whitaker, a journalist you may well have come across, has a good summary of recent research pointing to how and why SSRIs may induce a chronic condition of depression where it did not exist at the outset. (Refer ‘Mad in America’).

One of the most telling things for me, somewhere on the site can’t remember exactly there is a comment from an addiction counsellor who says that SSRI withdrawal is tougher than heroin. I was a little sceptical, and one day ran into a friend who’s done addiction counselling for years. I ran this by him and without missing a beat he said,

 

“Oh sure that is common knowledge in the addiction world. It is harder because it just goes on and on for many months, but it’s also harder because with heroin there’s a clear sense that your doing something virtuous, regaining virtue, whereas with SSRIs, well, a doctor prescribed them to treat a disease, so people think you must be a little odd or a hypochondriac or just nuts to be having these problems.”

I’m paraphrasing but that’s the gist. Basically its rough!
……………………..

  3). Miriza said in approx. 2012,
……………………………….
Someone who works with people in benzo withdrawal mentioned to me that after the person feels relatively find they enter a remission period where it takes the CNS an extra 2-5 years to get strong again. In other words, taking any drug or alcohol or extreme stress during those 2-5 years after the end of major withdrawal, could bring back some symptoms temporarily. I would imagine that the same holds true for antidepressant withdrawal it  does not mean that we are doomed to have to stay home all the time caged like a bird. But sometimes it’s a time to take some precautions like avoiding alcohol, unnecessary drugs legal/illegal and major stresses like bungee jump! :)
…………Miriza if you are out there I am wishing improvements for you ………

 

4) Taken from HOPE from compilation of success stories.
Exert
…………..
I was on Paxil for 7 years and it took me about 5 years to completely recover from the discontinuation syndrome. I am doing pretty well. My short-term memory took a huge hit and I do miss my brain, but am able to work around it with lists, and post it notes. I’m working full-time in a pretty rough high school and in managing the stress like any normal person (so much for that anxiety disorder). I teach special education. I’ve been back to work for 4 years.
I did a lot of alternative medicine. Saw a few cracks along the way. But first and foremost, I would encourage anyone going through this to go slow and be patient with the process. For some people, like me, getting off the drugs was of the tough part it was the part afterwards – getting my brain chemistry nervous system to normalise and recover (huge), and to learn to deal with life without something to numb difficult situations.

 

nz11 comment: Sure can relate to that making lists etc …if I have appointments I make a note and sellotape it to the front door ..if I lie down to nap I must set the alarm so I can wake up if I have to go somewhere..sometimes when I nap I fall asleep, its very deep and its as if the whole cns turns off and I can’t even get up I feel physically dead but alive inside. Sometimes I nap in the evening then am unable to have the strength to get up and get changed into pyjamas then by about 1am I wake up with new strength and get changed and go back to sleep if I can. Wdl sure sucks eh.
………………………………….

5) Can’t acknowledge this to any particular person and it came under a thread with a heading anybody ever have an MRI showing brain damage?
……………………………..

Is this withdrawal? or is it recovery from a traumatic brain injury? I believe it is the latter.
Do we recover? Yes I think the damage is not permanent, but certainly lasts longer in some than others, there is not enough research and many many variables so we don’t know how things turn out for everyone.
Also it seems that so many people have different issues, for some its anxiety and depression, for others it seems to be cognitive issues and memory problems. So who knows what’s going on. Lets not argue about it we are all on the same side, we are all the victims in this, I think recovery will continue to happen until the brain finds the correct balance, most people it seems find recovery somewhere between 1.5 -3 years, but the recovery properly continues far beyond that point. Permanent brain damage is a possibility but hopefully not as we are suffering now perhaps we should all donate aims to medical science so they can have a good look what’s happened to all our receptor sites.

 

Stuart Shipko likens SSRI withdrawal to severe chemical toxic brain damage which he says resolves very slowly between 5-10 years.

 

We know that a lot of people feel better at the 9, 18, 27 month mark, again it seems to be 9month cycles, so I am aiming for those points!!

 

nz11 comment:
For me it was a continual game of moving goalposts,
2 -3 weeks then 2-3 months then 18 months then 1-4 years, now its 5-10 years.
Healy is so 2014 ! I’m now with Shipko now on this I am in my 5th year 2015 and I feel I am still improving spoke to another local victim last week Jan 2015 and they are in there 6th year and still feel improvements are occurring. “I felt small things just seemed so hard to do, it was like work now I’m finding they aren’t difficult anymore” … “I feel like I have to relearn everything all over again” they said. [Tell me about it cant remember when i did the vacuuming last ..must get onto it ..this year]
Sounds similar to the Rhi-ism we have to ‘regrow our brains’   
………………………………….

 

6). Comment from Shea Carney from another site.
It appears that Shea took 3-7 years to recover.
Exert from compilation of success stories
…………………………………

How do you tell someone it  might take 2 years to feel human again, 3 years to start building a new life for yourself and 5 to 7 years to begin to sleep with some regularity? This was my experience, and by no means does it follow that everyone will take the same path to recovery, however, it was my experience and to convey this possibility daunting at best.

 

nz11 comment: It appears that I am following the same projectory. Gee can’t wait for the year 7 goalpost to come up. Hopefully it will be in cement by the time I get there. Thats if some little toe-rag doesn’t shift it again!! "Hey you put that down" Get in behind!
……………………………………

 

7). Taken from another site thread title ‘Dependence on SSRIs’
I was probably one Dr Healy would have said couldn’t stop. But what choice did I have? Note that he points out the “clear effects on the heart” these drugs have. That effect on the heart was why, regardless of how horribly I suffered, I could not reinstate. I would have died. Period. I guess those such as myself can only pray for recovery and suffer for a very long time, some longer than others: not months, but years, as was predicted in my case by Dr Shipko: (5-8 yrs). Mercifully I have regained some quality of life. I suspect, with enough time, most can recover, at least to the point where they can get some pleasure out of life. The question is: How long do people have to suffer? I have turned the corner, but there are those who have not. That is the travesty of SSRI overprescribing.
…………………………………….

 

8) Put together by Iggy from compilation of success stories from another site.

I just once again wanted to reassure you that this is w/d NOT your new natural state...here are the people who posted success stories here and how long their recovery took:

 

rubberduckie - 3 years
no fears - 2.5 years
areoman - 4 years
jonno - 2 years
dottie - 6 years
mightywarrier - 2.5 years
blankets 2/3 years
llhh - 3 years
marebear - 3 years
paxhell - 3 years
akenew - 3-5 years
hopeful 2.5 years
saiff - 16 months
wallflower - 2 years for 80%
lov4k9 - 18 months
banjodan - 2 years
hope -- 5 years
shea carney 3-7 years
rickyjohnson - 3 years
zoloftfree - 3-5 years
SCHNAUZERPOWER - 2 years
nolex - 3 years
expaxman - 2 years
nicoasg - 3 years
whatisnormal - 2 years
lossleader - 4.5 years
WURSTBROT - 2.5 years
EDROPHIS - 3 years
goldenbawls - 2.5/3 years
……………………………………………………..

9). This is a statement shared by one who was desperate and looking for hope. Good old Dr Shipko responded to them:
Your letter indicates that you are looking for hope.  There is indeed hope.  I never followed six patients for 7 years.  Rather, there were three patients who did significantly improve after about 7 years.  There were no patients followed for 7 years who did poorly.  My experience is not the only information on the subject.  I have spoken to people who tell me that they improve even after longer than 7 years.  Do not despair.  Rather, do what you can to promote good health - proper diet, exercise as tolerated, etc
Dr S.
…………………………………………………

10). In my limited reading of Breggin I haven’t come across any timeframes other than a reference to a possible ‘many years.’
‘Breggin doesn’t seem to quantify anything though….what a wise man!

 

Let me sum up today's posting

 

Summary  by nz11:

Withdrawal sure sucks!! Big time!
Going drug free and going wdl symptom free are not synonymous terms.

Withdrawal can in many cases continue for many years once off the drug … during this period take nothing but T-I-M-E and photos.

Be patient.  (ok Omega 3 and magnesium may help…and almond nuts so I am told).

This is the end of todays postings …

...now (at 4 years and 4 months drug free to the day exactly) I am now off to the gym,

not because I must,

not because I may,

not because I should,

but simply because,

I now can!

That 4 year goalpost was a little beauty! :)

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post

Exellent post nz1! 

Put on Prothiaden for severe depression in 1989.  Recovered.   Prescribed Paxil for another bout of depression around 2000.   Have been trying to taper ever since but always crash about 2 months after getting to zero.   Because of the crashes, for years I thought that there was something wrong with me.   Then found that the crashes were simply withdrawal.   Now following a maximum of a 10% reduction every month or so and ready to slow down any time I feel any symptoms whatsoever.  Feeling good:).

7th Jan 15 - 3.6mg

28th Jan 15 - 3.2mg

Link to post

Mark! What a brilliant post. Thanks for your passion and amazing research. What would we do without you!!

Ps. Love the little video you sent me. I've renamed it. Lmao!!

13 years of Ssri's - celexa, Paxil, Prozac, Zoloft

2 fast tapers and 2 cold turkeys over the years

Psych med free since September 4th 2011 - fast tapered then CT'd 12.5 mg of Zoloft

 

 

“Strength does not come from physical capacity. It comes from an indomitable will.”

― Mahatma Gandhi

Link to post

Thanks Ever and imac you guys are real encouragers.

 

yep that was 6 hours solid work today to put post #101 together.

Stopped for about 15 mins to make a sandwhich and a drink and then straight back into it.!

Paxil induced OCD can sure come in handy sometimes !

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post

.

21 classics

One of my favourite posts on another site was my ‘12 classics’ now updated to 21 classics. (To be honest i know of no other profession where one can talk such utter nonsense and still keep their job)

 

Here are my top 21 Classic statements heard from either a doctor (D)or a psychiatrist (P) Truly I am not joking………I have paraphrased to put them in context.

  • D …..you have a chemical imbalance in your brain
  • D.........if you had a broken leg you would put it in a cast right, well it’s the same with your brain.
  • D…….so you are having an adverse reaction to this med… Just keep taking it, it takes three months before it starts to work.
  • D...so you have just stopped taking your med and having an onset of suicidal ideations… well this is a return of your original condition.
  • P1 Some people need to be on this drug all their life.
  • D So your hand is still sore and not improving and you feel chronically fatigued ok I think we need to … Double the dose of Effexor.
  • D No… No! It’s not addictive.
  • D Side-effects… Don’t worry you won’t even notice them
  • D So you have been tapering down for 9 months and are not coping… What’s being revealed as an underlying depression.
  • P1 Well if there were problems with people getting off paxil … People would be suing the drug companies. (about 3 months later GSK got fined 3 billion! In order to pay settlement for people suing them re 3 drugs one being paxil)
  • P1 so you have lost all genital sensitivity, well have you considered the fact you might have a sexual disease.                             I refused to talk to P1 again
  • P2 So you  have had a bad experience with paxil well I think you are clearly atypical, an outlier, a rare case, you are a person  sensitive to drugs. (It was interesting this pdoc said this yet within 15 mins of saying this he was trying to write me a prescription for an anxiety drug I told him don’t waste your  time I’m not interested in your drugs)
  • D. So you have been off for three months now and having uncontrollable anxiety and restlessness… Well it can’t be due to the drug because it is totally flushed out of your body within 48 hours.
  • P2 So you are not happy with paxil, well some people die from anaesthetic you know  and my wife had a very bad reaction to aspirin.
  • D So you feel you have been chemically castrated well it can’t be due to the drug you stopped taking that two years ago!
  • P2 So you want to know why you have extremely low T levels (turns and types into computer) okay let’s have a look I’ve just typed low T and anxiety and got half a million hits, so it must be due to anxiety
  • P2 I’ve never heard of PSSD whats that?
  • P2 So you want me to try some of paxil for myself….well I think a better idea would be to investigate a  persons genome blah blah blah…”ok but why don’t you try some paxil for yourself”  blah blah blah five minutes later blah blah blah “okay but why don’t you try paxil for yourself”…well I er umm look I wouldn’t take anything without googling it first.
  • P2 No I’m not aware of paxil causing cognitive issues slurred speech and difficulty slowed thinking finding vocab
  • P2 (Re: loss of sexual functioning), well it’s because you’re old, you are living a monastic lifestyle, there are not enough pretty girls in your town not like New York where I come from, and you are not married but even if you were married it would be because you’re not having a mistress… Actually I can’t give you a prognosis.
  • This one comes from a phone call to the national depression helpline in 2012 and I asked them to define ‘slowly’ for a person 10 years paxil use in respect of tapering this is the reply:‘well you would alternate doses for a month then skip doses in the second month then get off in the third month.’ (Yes i have it recorded!)

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post

I spelt excellent wrong.  It's going to bug me.  :wacko:

Put on Prothiaden for severe depression in 1989.  Recovered.   Prescribed Paxil for another bout of depression around 2000.   Have been trying to taper ever since but always crash about 2 months after getting to zero.   Because of the crashes, for years I thought that there was something wrong with me.   Then found that the crashes were simply withdrawal.   Now following a maximum of a 10% reduction every month or so and ready to slow down any time I feel any symptoms whatsoever.  Feeling good:).

7th Jan 15 - 3.6mg

28th Jan 15 - 3.2mg

Link to post

Couldn't figure out how to number them the numbering got lost on transit between copying and pasting. ahhhh

 

Heard any of those Ever. No i suppose not.

Maybe its just me. 

 

nz11

(Mr 2% in everyway)

 

I didn't even notice your speling mistake!

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Link to post

Such a great post thx so much..you have helped me a great deal this week and I am truly grateful..

I started ssris around 2000 sorry I cant remember exactly everything and when but i will try

Paxil from about 2000-2004 from 10 mg right up to 40 mg felt like it wasnt working

THen I have been on Celexa from 2004-2007, then well butrin and abilify was thrown in somewhere up until 2010

tried to c/t off celexa a few times could do it..

went on Cymbalta from about 2010-2012 then had gastric bypass surgery so i wasnt absorbing it very well

2012-2014 went back to celexa then slowing between july 2013 and april 2014 weaned about 1 mg a month

last dose taken was April 2014 And havent really felt that bad at all.. until recently 9 months out and wanted to start college i think this sent me into a wave...i suffered 2 strokes in the small part of my brain in around 2010 but they arent exactly sure when by the time we found them. I had c/t off my meds at that time and was given a triple dose of birth control pill to take for a few months ( so we think that could have caused them)..

Link to post
“Oh sure that is common knowledge in the addiction world. It is harder because it just goes on and on for many months, but it’s also harder because with heroin there’s a clear sense that your doing something virtuous, regaining virtue, whereas with SSRIs, well, a doctor prescribed them to treat a disease, so people think you must be a little odd or a hypochondriac or just nuts to be having these problems.”

I’m paraphrasing but that’s the gist. Basically its rough!

……………………..

 

I always felt like that in withdrawal.  Almost jealous of people who "only" had to withdraw from heroin or some other drug, and they were seen as heroes while SSRI withdrawal sufferers were disbelieved.  I think the lack of validation is one of the toughest things about it.

Paxil 20mg 1994-2005
Tried to quit twice, finally did it on my 3rd attempt in 2005.

I went from 20mg to zero in about four months, believing at the time that it was a reasonable taper.  It wasn't.  I suffered mostly emotional symptoms: frequent episodes of "anxious depression" lasting for about 17 months before it got noticeably better.

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