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☼ TheAutomator: recovering from PSSD

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theautomator
Hello all :)  

 

Forgive me if this should have been an intro topic, I couldn't decide whether to post it on the intro forum or here. This mainly focusses on my PSSD, one of the last parts of my withdrawal to abate, but I will eventually post a broader story that covers all aspects of my withdrawal success. This was originally posted by me on PP about a week ago - I had just joined, and then it was shut down.

 

 

TheAutomator's PSSD Recovery Story:

 

 

Hello all. I’ve always been a lurker on various forums, but never one to make a post. However, I feel that I owe it to everyone going through the same things I have been, to share this story. 

 

I took Lexapro, followed by Zoloft, for about 8 months in total, back in 2011-2012. I was 24 at the time, and had always had a raging sex drive. Not to give you waaaay too much information here, but I easily masturbated 3 times a day, every day! The most subtle of sexual thoughts could put me into heat. My sex drive was a strong part of my identity, and I never imagined anything could temper it.

 

Well, as the familiar story goes, within a few weeks of starting on SSRI’s (for long standing issues with depression and a new job in a horribly toxic environment), My sex drive began to fade (amongst a whole host of other side effects). Physical sensation was significantly diminished, and the ability to have or maintain an erection was marginal at best. It was entirely impossible without direct physical stimulation as well. Orgasms felt like almost nothing. In my mind I was still sexual, but my body no longer functioned. It was hell.

 

After 8 months, I quit over a 1-2 week period. Lexapro had crapped out, and Zoloft was now doing the same. The side effects (including the one in question here) were too much. I had tried various other ADs before starting these two meds to no avail, or with serious side effects. I decided I was finished with meds.

 

The next 6 months were emotional hell. I slipped for a week and started Zoloft again, but quit promptly. Months passed and my sex drive wasn’t coming back. After reading about PSSD online, I became terrified, and angry at myself for ever trying these horrible pills. I had flatlined – maybe a 10% improvement since a quit and that was it. A year had passed. 

 

I tried every supplement under the sun (as I’m sure many other desperate sufferers have) and soon learned that I was sensitive to many of them, often feeling worse in a variety of ways. I developed a new rule – if it’s not in normal food, I won’t take it. Fish oils yes, Rhodiola no, for example. I tried licorice root once and had the worst two weeks of anxiety and insomnia in my life. I wanted to die. In the end, no supplement really did much for me, with the exception of inositol. Inositol, while doing nothing for physical sensation or arousal, restored my orgasm to pre SSRI levels in a matter of days. It also made me drop the 25 pounds I had gained *after* quitting ADs (with absolutely no change in diet). I had been unable to stop the gain, no matter what I tried, how much I controlled my calories. I had given up. My metabolism was screwed up – another lovely gift care of SSRIs. Inositol has been a god-send here.

 

In the second year I started to experience the “windows” that people talk about. It first started over a weekend. I felt, overnight, almost 75% back to normal in every way (sensation, drive, erections). It was amazing. The sceptic in me feared it wouldn’t last, and he was right. 2 days later I was back to my old new self. Over the year, I had 2 or 3 more such events, lasting up to a week. I felt hope… I wasn’t broken, just malfunctioning.

 

Toward the end of that second year, which is about 3 months ago, I had what I thought was another window. But this time it didn’t really go away. Instead, the entire pattern started to invert. I was mostly functional, but had windows where I’d lose my sex drive for a few days! I was again skeptical the first month, but it has persisted, for 3 months now, and all the while getting better! I quit all my supplements (just to try and figure out if anything was helping and anything wasn’t) and I felt even better! It seems as if some were making matters worse, not better! I now consistently wake up with morning erections every night (I forgot how annoying those can be!), and can become physically aroused without direct contact (just thinking, or with visual stimulation). Women and sex drive me crazy again. I’m not 100% of my old self yet, maybe 80 or 90, but after what I’ve been through, this is heaven. I’ll be sure to return in a few more months for another update.

 

I hope anyone who reads this will keep hanging onto hope. It was the other success stories that I read online that kept me sane. My PSSD lasted longer than I took the freaking SSRIs for, but it eventually started to remit. I think yours will too! It wasn’t a gradual recovery, but a lot of flat-lining, false starts, and eventual rapid change. It’s been like trying to start a car that doesn’t want to crank. A lot of nothing, the occasion where you alllllmost get there, but then the engine goes off again, and then finally that one good turn of the key that gets you over the hill! Keep cranking :)

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Altostrata

Thanks, theautomator. Do you have any other lingering post-acute withdrawal symptoms?


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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johnson

Thanks for posting this again theautomator. I was on PP when you wrote this story. In case you didn't read my reply,

I just want to say thank you. Your story made me laugh, almost made me cry and gave me more hope to keep going.

 

Thank you so much!


2000 - took accutane for my acne 2001 - On Paxil for about 6 months. Stopped due to side effects mainly severe stomach pain, extreme fatigue, headaches

2006 to 2009 - Went on 150mg of Wellbutrin/Bupropion for about 3 years. Side effects were again stomach pain, fatigue and frequent urination. Didn't feel like it helped my anxiety/depression so I stopped cold turkey. I did not have any major problems after going cold turkey at the time.

2009 to 2012 - Starting taking 100 mg of 5htp and whack load of other supplements(multivitamin, omega 3, protein shake, amino acids, sage, magnesium, vitamin D3, apple cider vinegar pills) every other day. Helped with my anxiety/mood quite a bit.

April 2012 - first signs of sexual dysfunction(pre-cum all the time especially when going to the bathroom to pee and not aroused), but issues were minor. But also had feeling as if I am ready to ejaculate all the time.

June 2012 - major weight loss, was about 15 pounds underweight and severe stomach pain and cramps

Nov 27 2012 - Took last pill of 5htp 50mg. Worst issue severe sexual dysfunction(can't get or sustain an strong erection, loss of feeling, no orgasm, no desire for sexual activity, delayed ejaculation, pre-cum when i'm not aroused, feeling of arousal all the time without thoughts) and frequent urination which is why I stopped taking 5htp and all other supplements completely cold turkey. Experienced the following side effects the past year while still taking the supplement and while getting off;

Feb 2013 - started major symptoms of PGAD Dec 2013 - severe muscle tension. Neck shoulder and headaches and migraines.

-insomnia,hives,eye twitching, restless legs, frequent urination/tingling sensation/arousal(PGAD), upset stomach, cramps, bloating, diarrhea, severe sexual dysfunction(no erection, no feeling, no orgasm, delayed ejaculation, premature ejaculation, constant arousal, morning erection not as strong as it used to be, cold damp genitals) brain zaps, dizziness, nausea, chills, fatigue, anxiety. Lack of natural body sweat especially when active.no emotion,tinnitus
Nov 27, 2018 - 6 years off since I took my last pill of 5HTP, 8 years since taking last pill of Wellbutrin

Present Issues - sexual dysfunction and PGAD(frequent urination, Cold feeling in Genitals, etc) - 6 years

headaches, shoulder and neck tension - 5 years 
vertigo - 1 year

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theautomator

Thanks, theautomator. Do you have any other lingering post-acute withdrawal symptoms?

 

Glad to share. I have a few, but they are slowly improving. Sleep is still an issue although it is slowly getting much better. It used to be that I couldn't get to sleep at all. Then eventually falling asleep became very easy, but I'd wake after a couple of hours and couldn't get back to sleep once I woke up (without sleep medication). Now I still wake up, but can get back to sleep on my own quite consistently, and get an overall 5-8 hours of sleep a night. I began to suspect, after much reading, that this was linked to cortisol spikes at night or blood sugar fluctuations. I got a 4-point cortisol test and was within normal range for all 4 including immediately after waking at night. I also bought a glucose tester and do not get hypoglycemic at night. I'm a bit puzzled, but thankful for the slow improvement over time.

 

Another issue is a weird, physically sick, brain-foggy, somewhat indescribable and very unpleasant malaise I get if I eat too early in the day (especially carbohydrates, and somewhat with protein). I also get it if I wake too early (despite total sleep time). The feeling does not abate until I sleep again the following night, or have a mid day nap (even just five minutes completely fixes it).

 

My memory is also like a sieve. It was never great, but it's embarrassingly poor these days. Specifically recalling things on the fly (like in conversations), and remembering things like people's names.

 

Thanks for posting this again theautomator. I was on PP when you wrote this story. In case you didn't read my reply,

I just want to say thank you. Your story made me laugh, almost made me cry and gave me more hope to keep going.

 

Thank you so much!

 

Hi johnson, I did read your reply! I was actually going to PP to reply to it when I saw the note saying the forum had been closed! Thank you and I'm really happy that my experience can be a source of hope. Don't give up. I know how terrible it feels when it seems like nothing is getting better. Don't let that feeling phase you. I think you, and everyone else's odds of getting through this and back to their old selves are fantastic. It's just a question of how long it will take. Not if... when :)

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Altostrata

Very, very happy to hear of all this improvement!

 

I think for now, I'll move this to the Intro section as your journal. When you're back to nearer 100%, please write a success story.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Chemistry

Hey automator thanks for posting your success story! I'm glad to see your PSSD has improved, more proof that it really can get better. Sorry if you've already said this but how long exactly since your last SSRI? 


2010 - citalopram 10mg 
2011 - 20-40mg, 1 month taper, PSSD & Anhedonia - Elavil 10mg during taper.
Clonazepam when needed after a month of daily use. 
2012 - Off Elavil - Zoloft (sertraline) 25mg - 50 mgs for 6 months + Buspar for a while. Pssd & anhedonia improved on zoloft, now has gotten a lot worse since a year off. 

 

Off all drugs since October 2012.

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theautomator

Very, very happy to hear of all this improvement!

 

I think for now, I'll move this to the Intro section as your journal. When you're back to nearer 100%, please write a success story.

 

Much thanks Altostrata, will do.

 

Hey automator thanks for posting your success story! I'm glad to see your PSSD has improved, more proof that it really can get better. Sorry if you've already said this but how long exactly since your last SSRI? 

 

Hey Chemistry, no problem, and thanks. My last SSRI ever was April 2013.

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johnson

Hi,

 

Theautomator

 

I have a quick question for you, you mentioned that a few times during your second year off ssri's that you had %75 improvement in your pssd which would last a couple days each time and you would be back to your old new self. Then a few months ago this happened again but this time the %75 improvement in your pssd had stayed? And when this happened each time you literally woke up the next day and notice %75 improvement in PSSD?

 

Sorry for the repeated questions, I'm just feeling a bit low right now, just completely blah with no emotions especially if I see a nice looking woman. It's a strange feeling.

I'm just looking for some hope again. I'm 25 months off since I took my last pill.

 

thanks and sorry.


2000 - took accutane for my acne 2001 - On Paxil for about 6 months. Stopped due to side effects mainly severe stomach pain, extreme fatigue, headaches

2006 to 2009 - Went on 150mg of Wellbutrin/Bupropion for about 3 years. Side effects were again stomach pain, fatigue and frequent urination. Didn't feel like it helped my anxiety/depression so I stopped cold turkey. I did not have any major problems after going cold turkey at the time.

2009 to 2012 - Starting taking 100 mg of 5htp and whack load of other supplements(multivitamin, omega 3, protein shake, amino acids, sage, magnesium, vitamin D3, apple cider vinegar pills) every other day. Helped with my anxiety/mood quite a bit.

April 2012 - first signs of sexual dysfunction(pre-cum all the time especially when going to the bathroom to pee and not aroused), but issues were minor. But also had feeling as if I am ready to ejaculate all the time.

June 2012 - major weight loss, was about 15 pounds underweight and severe stomach pain and cramps

Nov 27 2012 - Took last pill of 5htp 50mg. Worst issue severe sexual dysfunction(can't get or sustain an strong erection, loss of feeling, no orgasm, no desire for sexual activity, delayed ejaculation, pre-cum when i'm not aroused, feeling of arousal all the time without thoughts) and frequent urination which is why I stopped taking 5htp and all other supplements completely cold turkey. Experienced the following side effects the past year while still taking the supplement and while getting off;

Feb 2013 - started major symptoms of PGAD Dec 2013 - severe muscle tension. Neck shoulder and headaches and migraines.

-insomnia,hives,eye twitching, restless legs, frequent urination/tingling sensation/arousal(PGAD), upset stomach, cramps, bloating, diarrhea, severe sexual dysfunction(no erection, no feeling, no orgasm, delayed ejaculation, premature ejaculation, constant arousal, morning erection not as strong as it used to be, cold damp genitals) brain zaps, dizziness, nausea, chills, fatigue, anxiety. Lack of natural body sweat especially when active.no emotion,tinnitus
Nov 27, 2018 - 6 years off since I took my last pill of 5HTP, 8 years since taking last pill of Wellbutrin

Present Issues - sexual dysfunction and PGAD(frequent urination, Cold feeling in Genitals, etc) - 6 years

headaches, shoulder and neck tension - 5 years 
vertigo - 1 year

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BlueLeader

TheAutomater, thank you for posting this!

 

It gives me hope someday I might get better


Mid 2006-Early 2013  Celexa 40 MG, Xanax .50, Trazadone 50 MG - No problems with side effects

Very fast-few weeks taper in Early 2013 off all medication.

Crashed summer 2013 Went back on all meds same dosage (different brand of Celexa) Sept 2013. 

 

Sexual Side Effects (which I never had before) begun December 2013.  Off Celexa February 2014.  Xanax remained while Trazadone done in August 2014.

Continue to experience complete PSSD to this day with sadly no signs of improvement yet.

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Zoran1

Omg... everytime I see a ''recovery  case'' I just get disappointed again and again. Instead of a way out of this Hell I get a story of somebody who had some ''windows'' and ''waves'' ...  

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Micromonster

just giving you a stalk, hope al is well


paroxatine.30mg-98-14 (16years)/15mg March 14/15mg may 2014 every two days on docs advice, went nuts so went up to 10mg. Took 2months to stabilise.10mg July 2014-sept 2014 (6.9mg)tried WD at 10% every two weeks. went nuts, nearly left husband, cats and country.10mg sept-December 14/9mg Dec-Jan 15/8.5mg Jan-Feb 15/8mg Feb-March 15/7.5mg march 15/7mg march-present. By October, off meds and on ivf. 3 failed ivf and end of 11yr relationship.10mg/July 16- July 17/5mg Jan 18- july 18

0mg july- present. Really struggling 

 

 

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btdt

 

Hello all :)  
 
Forgive me if this should have been an intro topic, I couldn't decide whether to post it on the intro forum or here. This mainly focusses on my PSSD, one of the last parts of my withdrawal to abate, but I will eventually post a broader story that covers all aspects of my withdrawal success. This was originally posted by me on PP about a week ago - I had just joined, and then it was shut down.
 
 
TheAutomator's PSSD Recovery Story:
 
 
Hello all. I’ve always been a lurker on various forums, but never one to make a post. However, I feel that I owe it to everyone going through the same things I have been, to share this story. 
 
I took Lexapro, followed by Zoloft, for about 8 months in total, back in 2011-2012. I was 24 at the time, and had always had a raging sex drive. Not to give you waaaay too much information here, but I easily masturbated 3 times a day, every day! The most subtle of sexual thoughts could put me into heat. My sex drive was a strong part of my identity, and I never imagined anything could temper it.
 
Well, as the familiar story goes, within a few weeks of starting on SSRI’s (for long standing issues with depression and a new job in a horribly toxic environment), My sex drive began to fade (amongst a whole host of other side effects). Physical sensation was significantly diminished, and the ability to have or maintain an erection was marginal at best. It was entirely impossible without direct physical stimulation as well. Orgasms felt like almost nothing. In my mind I was still sexual, but my body no longer functioned. It was hell.
 
After 8 months, I quit over a 1-2 week period. Lexapro had crapped out, and Zoloft was now doing the same. The side effects (including the one in question here) were too much. I had tried various other ADs before starting these two meds to no avail, or with serious side effects. I decided I was finished with meds.
 
The next 6 months were emotional hell. I slipped for a week and started Zoloft again, but quit promptly. Months passed and my sex drive wasn’t coming back. After reading about PSSD online, I became terrified, and angry at myself for ever trying these horrible pills. I had flatlined – maybe a 10% improvement since a quit and that was it. A year had passed. 
 
I tried every supplement under the sun (as I’m sure many other desperate sufferers have) and soon learned that I was sensitive to many of them, often feeling worse in a variety of ways. I developed a new rule – if it’s not in normal food, I won’t take it. Fish oils yes, Rhodiola no, for example. I tried licorice root once and had the worst two weeks of anxiety and insomnia in my life. I wanted to die. In the end, no supplement really did much for me, with the exception of inositol. Inositol, while doing nothing for physical sensation or arousal, restored my orgasm to pre SSRI levels in a matter of days. It also made me drop the 25 pounds I had gained *after* quitting ADs (with absolutely no change in diet). I had been unable to stop the gain, no matter what I tried, how much I controlled my calories. I had given up. My metabolism was screwed up – another lovely gift care of SSRIs. Inositol has been a god-send here.
 
In the second year I started to experience the “windows” that people talk about. It first started over a weekend. I felt, overnight, almost 75% back to normal in every way (sensation, drive, erections). It was amazing. The sceptic in me feared it wouldn’t last, and he was right. 2 days later I was back to my old new self. Over the year, I had 2 or 3 more such events, lasting up to a week. I felt hope… I wasn’t broken, just malfunctioning.
 
Toward the end of that second year, which is about 3 months ago, I had what I thought was another window. But this time it didn’t really go away. Instead, the entire pattern started to invert. I was mostly functional, but had windows where I’d lose my sex drive for a few days! I was again skeptical the first month, but it has persisted, for 3 months now, and all the while getting better! I quit all my supplements (just to try and figure out if anything was helping and anything wasn’t) and I felt even better! It seems as if some were making matters worse, not better! I now consistently wake up with morning erections every night (I forgot how annoying those can be!), and can become physically aroused without direct contact (just thinking, or with visual stimulation). Women and sex drive me crazy again. I’m not 100% of my old self yet, maybe 80 or 90, but after what I’ve been through, this is heaven. I’ll be sure to return in a few more months for another update.
 
I hope anyone who reads this will keep hanging onto hope. It was the other success stories that I read online that kept me sane. My PSSD lasted longer than I took the freaking SSRIs for, but it eventually started to remit. I think yours will too! It wasn’t a gradual recovery, but a lot of flat-lining, false starts, and eventual rapid change. It’s been like trying to start a car that doesn’t want to crank. A lot of nothing, the occasion where you alllllmost get there, but then the engine goes off again, and then finally that one good turn of the key that gets you over the hill! Keep cranking :)

 

" My PSSD lasted longer than I took the freaking SSRIs for, but it eventually started to remit. I think yours will too! It wasn’t a gradual recovery, but a lot of flat-lining, false starts, and eventual rapid change. It’s been like trying to start a car that doesn’t want to crank. A lot of nothing, the occasion where you alllllmost get there, but then the engine goes off again, and then finally that one good turn of the key that gets you over the hill! Keep cranking  :)"

 

Since you don't have a history here could you say how long you were on ssri drugs and how long the recovery actually took?  Was it more than 7 years is what I am asking.  Also did you have bad headaches with the onset of physical tension associated with orgasm?  From what I can find on this they are known as orgasm headaches.  I am just curious. Thanks 

peace

 

ps if it is a rule of thumb or turns out to be that it takes longer to heal than the time you were drugged I will be in an old folks home ...likely drugged and not caring much by then... meant as a bit of dark humor... I was drugged a long time..peace


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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theautomator

Hi,

 

Theautomator

 

I have a quick question for you, you mentioned that a few times during your second year off ssri's that you had %75 improvement in your pssd which would last a couple days each time and you would be back to your old new self. Then a few months ago this happened again but this time the %75 improvement in your pssd had stayed? And when this happened each time you literally woke up the next day and notice %75 improvement in PSSD?

 

Sorry for the repeated questions, I'm just feeling a bit low right now, just completely blah with no emotions especially if I see a nice looking woman. It's a strange feeling.

I'm just looking for some hope again. I'm 25 months off since I took my last pill.

 

thanks and sorry.

 

Hi, I'm sorry for the delay in responding. Yes! It was overnight - I'd literally wake up one day feeling the improvement. There was nothing gradual about it. Then one time it happened and just persisted. Unfortunately I've been really sick lately with both toxic mold in a bad apartment, and carbon monoxide poisoning from an exhaust leak in my car. Back to back... I've felt horrible, and my sex drive (and emotional health, and sleep, and energy) have all been adversely affected. I'm just starting to recover after moving and losing $1000's of furniture. I hope things will go back to where they were and will post here as time goes on. I hope you're not still feeling so low. Don't let the frustration get to you yet.

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theautomator

 

 

Hello all :)  
 
Forgive me if this should have been an intro topic, I couldn't decide whether to post it on the intro forum or here. This mainly focusses on my PSSD, one of the last parts of my withdrawal to abate, but I will eventually post a broader story that covers all aspects of my withdrawal success. This was originally posted by me on PP about a week ago - I had just joined, and then it was shut down.
 
 
TheAutomator's PSSD Recovery Story:
 
 
Hello all. I’ve always been a lurker on various forums, but never one to make a post. However, I feel that I owe it to everyone going through the same things I have been, to share this story. 
 
I took Lexapro, followed by Zoloft, for about 8 months in total, back in 2011-2012. I was 24 at the time, and had always had a raging sex drive. Not to give you waaaay too much information here, but I easily masturbated 3 times a day, every day! The most subtle of sexual thoughts could put me into heat. My sex drive was a strong part of my identity, and I never imagined anything could temper it.
 
Well, as the familiar story goes, within a few weeks of starting on SSRI’s (for long standing issues with depression and a new job in a horribly toxic environment), My sex drive began to fade (amongst a whole host of other side effects). Physical sensation was significantly diminished, and the ability to have or maintain an erection was marginal at best. It was entirely impossible without direct physical stimulation as well. Orgasms felt like almost nothing. In my mind I was still sexual, but my body no longer functioned. It was hell.
 
After 8 months, I quit over a 1-2 week period. Lexapro had crapped out, and Zoloft was now doing the same. The side effects (including the one in question here) were too much. I had tried various other ADs before starting these two meds to no avail, or with serious side effects. I decided I was finished with meds.
 
The next 6 months were emotional hell. I slipped for a week and started Zoloft again, but quit promptly. Months passed and my sex drive wasn’t coming back. After reading about PSSD online, I became terrified, and angry at myself for ever trying these horrible pills. I had flatlined – maybe a 10% improvement since a quit and that was it. A year had passed. 
 
I tried every supplement under the sun (as I’m sure many other desperate sufferers have) and soon learned that I was sensitive to many of them, often feeling worse in a variety of ways. I developed a new rule – if it’s not in normal food, I won’t take it. Fish oils yes, Rhodiola no, for example. I tried licorice root once and had the worst two weeks of anxiety and insomnia in my life. I wanted to die. In the end, no supplement really did much for me, with the exception of inositol. Inositol, while doing nothing for physical sensation or arousal, restored my orgasm to pre SSRI levels in a matter of days. It also made me drop the 25 pounds I had gained *after* quitting ADs (with absolutely no change in diet). I had been unable to stop the gain, no matter what I tried, how much I controlled my calories. I had given up. My metabolism was screwed up – another lovely gift care of SSRIs. Inositol has been a god-send here.
 
In the second year I started to experience the “windows” that people talk about. It first started over a weekend. I felt, overnight, almost 75% back to normal in every way (sensation, drive, erections). It was amazing. The sceptic in me feared it wouldn’t last, and he was right. 2 days later I was back to my old new self. Over the year, I had 2 or 3 more such events, lasting up to a week. I felt hope… I wasn’t broken, just malfunctioning.
 
Toward the end of that second year, which is about 3 months ago, I had what I thought was another window. But this time it didn’t really go away. Instead, the entire pattern started to invert. I was mostly functional, but had windows where I’d lose my sex drive for a few days! I was again skeptical the first month, but it has persisted, for 3 months now, and all the while getting better! I quit all my supplements (just to try and figure out if anything was helping and anything wasn’t) and I felt even better! It seems as if some were making matters worse, not better! I now consistently wake up with morning erections every night (I forgot how annoying those can be!), and can become physically aroused without direct contact (just thinking, or with visual stimulation). Women and sex drive me crazy again. I’m not 100% of my old self yet, maybe 80 or 90, but after what I’ve been through, this is heaven. I’ll be sure to return in a few more months for another update.
 
I hope anyone who reads this will keep hanging onto hope. It was the other success stories that I read online that kept me sane. My PSSD lasted longer than I took the freaking SSRIs for, but it eventually started to remit. I think yours will too! It wasn’t a gradual recovery, but a lot of flat-lining, false starts, and eventual rapid change. It’s been like trying to start a car that doesn’t want to crank. A lot of nothing, the occasion where you alllllmost get there, but then the engine goes off again, and then finally that one good turn of the key that gets you over the hill! Keep cranking :)

 

" My PSSD lasted longer than I took the freaking SSRIs for, but it eventually started to remit. I think yours will too! It wasn’t a gradual recovery, but a lot of flat-lining, false starts, and eventual rapid change. It’s been like trying to start a car that doesn’t want to crank. A lot of nothing, the occasion where you alllllmost get there, but then the engine goes off again, and then finally that one good turn of the key that gets you over the hill! Keep cranking  :)"

 

Since you don't have a history here could you say how long you were on ssri drugs and how long the recovery actually took?  Was it more than 7 years is what I am asking.  Also did you have bad headaches with the onset of physical tension associated with orgasm?  From what I can find on this they are known as orgasm headaches.  I am just curious. Thanks 

peace

 

ps if it is a rule of thumb or turns out to be that it takes longer to heal than the time you were drugged I will be in an old folks home ...likely drugged and not caring much by then... meant as a bit of dark humor... I was drugged a long time..peace

 

 

I took SSRI's for about 8 months, and have been off around 2 years. No headaches or anything like that associated with orgasm. Sigh, I wish the relationship between length of use and length of recovery was clear. One thing for sure is that it varies enormously between individuals, but it's possible to get there given enough time (and soem bumps in the road, as you can see in my above post).

 

Hey, that might not be an entirely bad thing. The last time I visited an old folks home, the nurses were pretty cute ;)

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theautomator

TheAutomater, thank you for posting this!

 

It gives me hope someday I might get better

No problem :)

 

Omg... everytime I see a ''recovery  case'' I just get disappointed again and again. Instead of a way out of this Hell I get a story of somebody who had some ''windows'' and ''waves'' ...  

Well, for me (and everyone is different), I found inositol to be a big part of "a way out". I suspect it had more to do with my progress than I alude to, but I don't like to openly speculate. Whatever the case, my improvement did become a lasting one until some recent severe health issues (see 2 posts up). Even still, I'm much better than I used to be. I know it's tough, but stay positive.

 

just giving you a stalk, hope al is well

Thank you.

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BlueLeader

theautomater, hope you feel better soon.  Thank you for the clarification.

Seems pretty odd that one day it was just better.  I go to sleep often thinking "Perhaps tomorrow" Got to hold onto hope ya know?

 

Please continue to post updates


Mid 2006-Early 2013  Celexa 40 MG, Xanax .50, Trazadone 50 MG - No problems with side effects

Very fast-few weeks taper in Early 2013 off all medication.

Crashed summer 2013 Went back on all meds same dosage (different brand of Celexa) Sept 2013. 

 

Sexual Side Effects (which I never had before) begun December 2013.  Off Celexa February 2014.  Xanax remained while Trazadone done in August 2014.

Continue to experience complete PSSD to this day with sadly no signs of improvement yet.

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alexjuice

How do you know you had toxic mold ?

 

I have been dealing with a mold exposure myself.


"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

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Petunia
Well, for me (and everyone is different), I found inositol to be a big part of "a way out". I suspect it had more to do with my progress than I alude to, but I don't like to openly speculate.

 

How did inositol help you?  Perhaps you would like to add your experience with it to our inositol discussion here:

 

http://survivingantidepressants.org/index.php?/topic/4908-inositol/


I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Altostrata

Very happy to hear you're doing well. I added our cheerful "here comes the sun" symbol

 

 

to the title of your Intro topic.

 

Please continue to let us know how you're doing. I hope you will add your story to our Recovery Success Stories eventually!


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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BlueLeader

theautomator, Wondering how you are doing and any progress you have made with your PSSD?


Mid 2006-Early 2013  Celexa 40 MG, Xanax .50, Trazadone 50 MG - No problems with side effects

Very fast-few weeks taper in Early 2013 off all medication.

Crashed summer 2013 Went back on all meds same dosage (different brand of Celexa) Sept 2013. 

 

Sexual Side Effects (which I never had before) begun December 2013.  Off Celexa February 2014.  Xanax remained while Trazadone done in August 2014.

Continue to experience complete PSSD to this day with sadly no signs of improvement yet.

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theloneranger86

I would really move  this thread to "Success Stories"

 

Mods, please take notice 

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scallywag

tlr86: we don't move intro topics to the Success Stories forum.  We ask members to post a success story after they have had 12 symptom-free months and leave it up to individual members to make that assessment.

 

Please (re-)read these posts:

On 2014-12-21 at 6:29 PM, Altostrata said:

Very, very happy to hear of all this improvement!

 

I think for now, I'll move this to the Intro section as your journal. When you're back to nearer 100%, please write a success story.

 

On 2015-01-01 at 10:56 AM, theautomator said:

Much thanks Altostrata, will do.

...

 

On 2015-02-22 at 5:45 PM, Altostrata said:

Very happy to hear you're doing well. I added our cheerful "here comes the sun" symbol ☼ to the title of your Intro topic.

 

Please continue to let us know how you're doing. I hope you will add your story to our Recovery Success Stories eventually!

.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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