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Asthenia: Weakness, muscle fatigue in legs, arms or body

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grandmaD

Thanks DLB for suggesting I look at your posts!  I had not seen this thread before, but now find others experiencing the same weakness and cramps and what about spasms?  What about shooting pain in feet and toes that is excruciating?  I now have hip problems and backache and feel fragile like I will break or muscles around chest/ribs will collapse.  It is frightening and today lower neck and upper shoulder is aching and painful and feels like muscle tension/cramping.  I did not CT but have been almost 6 years on a 2.5% taper, so going very, very slowly and yet all these things are getting worse and I don't understand it! 


1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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DLB

Hey grand D, I think if you are the unlucky one like me to get this symptom, it doesn't matter how slow you go. I feel that it is going to happen at low doses no matter how slow you go. I have heard from many and through research I have found it to take several years to go away sometimes. I wonder if yours will take longer because you are going so slow. Whatever happens just hang in there and know it improves. FYI, if I could ever describe this terrible feeling I would say it is like having a horrible cold or flu just in your legs.


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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Earthworm

I'm 30 years old, but I'm literally weaker than my 80 year old father. He can do much more physically than me. Seven years ago one day my muscles just died. It was not a sudden progression, just one day all of a sudden they became super weak and super easily fatigued. It is bizarre to me. This was about 2 years into my discontinuation syndrome chaos.

 

Don't tell me bs that I need exercise. I used to exercise through out my life, ever since the fatigue came, I couldn't anymore. I can do 5 pushups and my muscles will be fatigued for the next 3 days. And I don't mean sore, but so fatigued that they shake and simply are unable to do more work when I ask them too. Before the fatigue came, this would happen when I'd do a super hard weight session at the gym, and the fatigue would only last a few hours. Now after doing as little as 5 pushups, my muscles don't get stronger, they only get weaker for days! Basically exercise doesn't strengthen my muscles anymore, it only makes them weaker.

 

The way it started was one days I was walking up stairs carrying a bag of groceries, and it wasn't even heavy, but I was surprised that my arms were dead. The day before they were fine, but ever since then things have not gotten better.

 

It affects all muscles of my body. I am able to walk, but anything more like lifting objects that are not even heavy, is very difficult and results in fatigue that lasts days.

 

Is there a name for this? And are there drugs to fix this ****?


-On SSRI since April 2006.
-December 2007: SSRI discontinuation and withdrawal start.
-February 2008: SSRI reinstatement... improvement, yet withdrawal symptoms remains to this day.
-Currently taking: 16mg Citalopram, 1mg Risperidone (for insomnia).
-Current issues: obsessive-compulsive disorder (OCD), social anxiety disorder (SAD), insomnia, exaggerated physical symptoms of anxiety, muscle fatigue, weight gain, high prolactin/low testosterone

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Junglechicken

I'm so sorry you're experiencing this being a sporty person, that's too distressing.

 

Off the top of my head, you could try protein recovery powder to make up shakes (can be bought from most sports shops) and/or muscle building anabolic steroids.

 

However, the anabolic steroids need medical supervision as they are actually performance enhancing drugs used by athletes.

 

Then you need to visit sports medicine specialists to find out what's going on.

 

I think you could benefit from getting your body muscle vs fat ratios measured by a nutritionist and get on to a diet which will help you re-build muscle.

 

TC,

JC


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

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stan

hi,

i remember you  from paxilprogress with your computer building and squirrel in garden through window

you had a period akathisia

i think what you have is a nasty side-effect from SRIs, called chronic fatigue syndrom

i have it

it is as you say, we feel 90 years

a drug to fix it, doctors have always drugs for symptoms who will cure nothing

the only way is to no more take legal drugs, and even there, maybe it is too late because you have it  actually, and nobody is able to tell you it will go away and when

i remember you always say that you cannot stop drugs, for me it will not be a miracle

your body is telling you he can no more manage your daily drugs

good luck


for anxiety 

12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 

67 years old - 9 years  med free

 

in protracted withdrawal

rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate,

function as have a lack of nerves, improving have been very little 

 

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miT

hi,

i remember you  from paxilprogress with your computer building and squirrel in garden through window

you had a period akathisia

i think what you have is a nasty side-effect from SRIs, called chronic fatigue syndrom

i have it

it is as you say, we feel 90 years

a drug to fix it, doctors have always drugs for symptoms who will cure nothing

the only way is to no more take legal drugs, and even there, maybe it is too late because you have it  actually, and nobody is able to tell you it will go away and when

i remember you always say that you cannot stop drugs, for me it will not be a miracle

your body is telling you he can no more manage your daily drugs

good luck

So you’re 8 years without drugs now? Feeling any progress as years pass by? Are your muscles gaining strength?

 

Good luck,

Tim


Took my first SSRI sipralexa/lexapro/escitalopram in 2007 for depression. In 2010 the doctor switched me to paroxetine/seroxat/paxil for anxiety.

My paroxetine story from then on:

 

2010-15 from 10mg up to 20mg

jan 2016 30mg

may 2016 0mg cold turkey (don't!)

dec 2016 symptoms: anxiety, tremor (could barely stand)

jan 2017 reinstated at 7.5mg to taper in steps of 10%

...

Dose changes from may 2017 to now: 

5.0/4.7/4.4/4.0/3.7/3.5/3.3/3.1mg

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stan

if progress, they are not significant, am still as 90 and some days are very difficult


for anxiety 

12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 

67 years old - 9 years  med free

 

in protracted withdrawal

rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate,

function as have a lack of nerves, improving have been very little 

 

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stan

what is difficult to know is if it is the muscles which are deteriorate or the nerves receptors and transmitters which are deteriorate, the result is the same


for anxiety 

12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 

67 years old - 9 years  med free

 

in protracted withdrawal

rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate,

function as have a lack of nerves, improving have been very little 

 

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rnjsgirl

I am experiencing these symptoms while on my regular dose and inmy firstmonth of reducing my dose. See CENTRAL NERVOUS SYSTEM FATIGUE or CENTRAL FATIGUE. Before I understood what it was I would push myself to do more thinking it was dueto a lack of exercise and then I would end up in bed for 3 days. I am off to seemy dr this afternoon andwill ask what shemight suggest butmy guess is that I will have to just wait for my brain to adjust.

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Earthworm

I am experiencing these symptoms while on my regular dose and inmy firstmonth of reducing my dose. See CENTRAL NERVOUS SYSTEM FATIGUE or CENTRAL FATIGUE. Before I understood what it was I would push myself to do more thinking it was dueto a lack of exercise and then I would end up in bed for 3 days. I am off to seemy dr this afternoon andwill ask what shemight suggest butmy guess is that I will have to just wait for my brain to adjust.

 

Thanks, this must be it. Seems like you have the exact same thing that I have. Exercise doesn't strengthen my muscles but only makes them far weaker.


-On SSRI since April 2006.
-December 2007: SSRI discontinuation and withdrawal start.
-February 2008: SSRI reinstatement... improvement, yet withdrawal symptoms remains to this day.
-Currently taking: 16mg Citalopram, 1mg Risperidone (for insomnia).
-Current issues: obsessive-compulsive disorder (OCD), social anxiety disorder (SAD), insomnia, exaggerated physical symptoms of anxiety, muscle fatigue, weight gain, high prolactin/low testosterone

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genlady

I too experience muscle weakness from time to time.  while withdrawing from Celexa.  It is difficult to explain to other people, but I feel it difficult to move my legs and arms , drop things etc.  


July Medications: Started taking antidepressants in 1981, also benzos off and on; antiphychotics , anti-seizure for years.   Trazodone, Lamotrigine, Klonopin for over 10 years   all at maximum dosages,:Disconcontinued Klonopin in month of February 2011,  discontinued Trazodone and Lamotrigine   in month of March 2011 while in hosptial.  Given Seroquel to "help" go off Klonopin  gradually increased to 600 mg ; doctor took me off 600 mg. Seroquel in two weeks, and switched to Resperidal  because of weight gain on Seroquel, went off Resperidal quickly,   then gradually reinstated  Seroquel to 600 mg. at my request.   Went off Seroquel by myself at 25mg. per month in 2014.     Last medication Seroquel completely off since May 2016. Also went off Morphine at the same time as last 25 mg. of Seroquel in May 2016. Started tapering Celexa 40mg. to 35mg.  on 11 Aug. 2016  ; 16 Oct. Celexa 32.5 mg.; 6 Nov. 2016:  30mg. , 50 mg abt. Feb 26 with occasional 30mg.  , : May 10, 2017 began tapering rapidly because of adverse reaction to Celexa;, 40 mg. Celexa;   May 24, 2017: 35mg Celexa.;  June 8, 2017, 30 mg. Celexa, June 22, 2017 25mg.Celexa,; July 6,2017 20mg. CELEXA, July 20: 15mg.; August 10: Sep 29 2017: 10mg. Celexa + 10mg. Prozac, 5 Oct, 2017:  5mg. Celexa + 10mg. Prozac.; Oct. 14 Celexa 0., Prozac 10mg.Took last Prozac on November 22, 2017, Jan. 31 30mg. Cymbalta........ May Cymbalta 90mg.

 

Supplements Cal/Mag , Potassium, , Multi Vitamin.  digestive aid, antioxidant

Medications presently taking:    Lyrica 150mg. 2x day  , Synthroid 175mcg, Nasonex 2 sprays each nostril, once a day ,     Tylenol  1,000 mg. 2x day., , Restasis eye drops 2x day,  Trazodone 100 mg, Cymbalta 90 mg. Arthrotec 50 mg., Plavix

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Webhead21

Can you tell us, anyone of you, some of the things you've done to solve this issue? I also have muscle problems in my legs, which have stung for months on end leading to weaking legs. Because I have also been excersing and something if I push to much they worsen.


Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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PoetJester

when I was on Zoloft and zyprexa, I lost most of my muscle tone and strength. I used to run cross country and track and occasionally lift weights and was pretty fit before i started the drugs.. My parents have a pull up bar in the garage and i went out there once well into my pill taking years to try to do some pull ups and between my 70 lbs of weight gain and loss of muscle i could not even come close to doing a pull up. i used to be able to do dozens of them in high school and college.

 

i also remember going ice fishing with my father in 2008 back when i was on the pills and i tried to help out drilling a hole with a manual ice auger and could barely put a dent in the ice. i just had no strength or stamina. My dad grabbed the auger and made a hole in no time. it was embarrassing. i thought it was due to inactivity, but it was probably pill induced muscle fatigue and weakness. . I didn't notice my lack of strength so much because i was usually housebound and only made food in the kitchen or pressed buttons on the remote control for about the last 8 years i was on the pills, from 2006-2014.


Court committed to take Prozac, Paxci, and Respiradol from 8/95 to 3/96.   developed severe akithisia and brain damage.  Was unable to speak and walking in circles 15 hours a day.  Went in for 5 sessions of ECT during a 10 day period in March of '96 and my forced medication was discontinued at that time.  My akithisia and brain damage cleared up within a few days of stopping the meds.

 

On Zoloft (200 mg) and Zyprexa (17.5 mg) March 1998- Feb 2014

In between was placed on Effexor 200 mg and Abilify for six months in 2004.  Developed mild akithisia which went away once I stopped the Abilify.  Developed severe GI issues in Dec 2001 and from that time on suffered from fatigue and hypersomnia where I would sleep between 12 and 20 hours a day and rarely ever left my apartment. 

 

Had tapered to 100 mg of Zoloft and 7.5 mg of Zyprexa at the time of going cold turkey Feb. 2014

Went 5 days without sleep at the beginning while vomiting all over my apt.  Had brain zaps for a number of weeks and also lightheadedness which both eventually went away.  However 2 1/2 yrs later I still struggle with insomnia, depression, and fatigue.

 

 

 

 

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Webhead21

Has anybody had any success with rebuild any muscle? Through dieting or excerise, whatever.


Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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DLB

Has anybody had any success with rebuild any muscle? Through dieting or excerise, whatever.

Well, I have had this issue when I started this crap and every time I tried coming off of it. I used to be 210 pounds of muscle and now I may be 185 and it is all muscle loss. I had severe weakness in my legs for 2 years this time after a 15 month taper. It started at about 2.85 mg and lasted the whole way down to zero and 2 years after that. It is only in the past 2 months that I feel significant improvements. It is about 85% better now consistently. Like PoetJester says, it comes on through the years insidiously as a steady weakening and you get little hints but don't realize it. Then when you come off of this crap you basically feel like jelly legs 24/7. It is quite a disturbing feeling in your legs. Anyway, mine seems to be improving and I assume you will to. What is your drug history?


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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DLB

Oh, I forgot to tell you, I drink a whole lot of protein drinks daily to help my muscles. Not sure if it works or not but my muscle wasting was frightening so I figured protein helps rebuild. Worth a try at least to keep weight on.


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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LexAnger

Glad to find this topic and just read everyone's experience.

 

For me, I call it paralysis. It always happens on my left side including every part from head, shoulder, arm, leg. When it's not super bad, it's a feeling of weakness, but when it's bad, they are paralyzed, brain dead, arm/ hanD not own cant type, hold forks, and leg wabbling when walk. I know it's not muscle weakness or loss of muscle as when this passes, they all function normal. I believe it's the nerve signal missing for the needed function.

 

It started when I accidentally updosed Lexapro for one day, but it was not frequent or bad, until this year when I jumped down to close zero dose. Actually 2 days after the jump ( 0.8 mg to 0.06 mg in a month), I felt my left side was totally non existing for some minutes, and since then it became regular paralysis feeling although not everyday.

 

Earthworm, did yours start AFTER your reinstate of your ssri? What ssri do you take?

Lex


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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Junglechicken

Just been reading how high cortisol levels in the body can lead to muscle wastage.


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

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spidey

I always thought it was an issue with the hpa axis. I think everything up in your head just gets crazy after the stress of quitting these drugs and can't communicate the way that it used to.

 

I can still remember the first time I experienced the paralysis that would later lead to excessive chronic fatigue. I used to be a housekeeper. One afternoon I was scrubbing the toilet of a resident as usual. Suddenly I couldn't move my arms....the slightest movement felt like it took all of my effort to preform. Did my best to finish the task, but had to keep stopping to pant and rest. Started crying then and there....it was rather terrifying. Had to quit my job soon thereafter as I simply could no longer keep up with the work demand. It's the strangest feeling when it happens. Inside my head I will be screaming at my body to move, but it stagnates and refuses to cooperate.

 

For me things like probiotics, magnesium (crazy important), and good nutrition (make sure your b vitamin and iron levels are up to snuff) and rest help a great deal. Goes without saying that the more I stress my body out, the more dysfunctional it will become in this and other things.

 

I am so sorry that you are experiencing this. I am right there with you. It is frustrating to no end and complete bs that our brains are seemingly frozen in this state of dysregulation.


1993: Diagnosed with "Depression" & "GAD, given Prozac
1994: Diagnosis changed to Bipolar II, Lithium added
1994-1997: Tried Wellbutrin and Zoloft
1997: Prescribed Effexor XR & Depakote ER
2012: Stopped Depakote, decreased dose of Effexor over the course of 2 or 3 months, used Prozac to help
2012: Stopped Prozac, began noticing disturbing symptoms after a few weeks of being antidepressant free.
late 2012: Prescribed Cymbalta
2013: Felt disconnected, disoriented, not "real".... Dr. recommended increasing the dose from 30mg to 60mg. Increased dosage was too much for my body/brain to handle....I had a very nasty reaction.

2014: Tried to go off Cymbalta. It did not work. I now take 15 beads.

2016: I take 3 beads daily...can't get off this crap. Obvious brain damage...most days I feel defeated and hopeless.

 

 

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Junglechicken

Just been reading how high cortisol levels in the body can lead to muscle wastage.

 

Another nugget of information on the subject of muscle weakness:

 

Too much licorice root extract can lead to low levels of potassium in the body, which causes muscle weakness. This condition is called hypokalemia.


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

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Webhead21

 

Has anybody had any success with rebuild any muscle? Through dieting or excerise, whatever.

Well, I have had this issue when I started this crap and every time I tried coming off of it. I used to be 210 pounds of muscle and now I may be 185 and it is all muscle loss. I had severe weakness in my legs for 2 years this time after a 15 month taper. It started at about 2.85 mg and lasted the whole way down to zero and 2 years after that. It is only in the past 2 months that I feel significant improvements. It is about 85% better now consistently. Like PoetJester says, it comes on through the years insidiously as a steady weakening and you get little hints but don't realize it. Then when you come off of this crap you basically feel like jelly legs 24/7. It is quite a disturbing feeling in your legs. Anyway, mine seems to be improving and I assume you will to. What is your drug history?

I took Modafinil 7 time in the span of 3 months, then 2 pills lexapro now I have every symptoms on the map. I've always been unlucky, always.


Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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Webhead21

If I were to visit a doctor, want will I be expecting to hear?  Would I be wasting my time looking for help?


Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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btdt
On 2017-5-24 at 5:58 AM, stan said:

what is difficult to know is if it is the muscles which are deteriorate or the nerves receptors and transmitters which are deteriorate, the result is the same

 

Hi Stan a long time ago I found something about ion channles and how they control the muscle I know I posted it on whatever site I was part of them.. not sure if SA existed then or not.  I cannot recall the name but know there was once a diagram showing ions and how they are affected by ssri drugs... calcium mag sodium... all were affected if I recall correctly. 

I wonder about feed back loops too... how feed back from body parts not working affects the brain and vise versa.  Could be mito damage could be cns damage... the longer I live the more I suffer different effects the more I wonder but no answers. 

 

At this point it seems to be a movement disorder which my osteopath and gp both think is a upper brain function problem... nobody said a word about this over the past many years of suffering muscle issues. I guess they were all waiting to see where my body would go next... and still are. From what I can tell that is all that is being done watching me... like the lab rat I am. I wonder if they take bets on which way my nervous system will turn next. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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btdt
On 2017-6-7 at 4:34 AM, Webhead21 said:

If I were to visit a doctor, want will I be expecting to hear?  Would I be wasting my time looking for help?

you could get lucky I guess but the chances are very slim... getting another diagnosis and taking more drugs to treat whatever they dream up has been my experience which all in all lead to a very bad place... but you could go see what they say...sometimes I do that then think it over later decide if I believe them or not... 

 

here is the problem your the one who owns the body 

your the one who is going to suffer should they be wrong

 

things to think about... do they have any proof.. is there a lab test any sceince behind their idea check the science... who paid for the studies... ect it is not an easy thing to do seeing a doctor is like loading a gun with a bullet and putting it to your head ... and asking yourself if you feel lucky


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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grandmaD
On 03/06/2017 at 2:04 AM, Junglechicken said:

Just been reading how high cortisol levels in the body can lead to muscle wastage.

 

You might find this interesting on withdrawal and cortisol

 

https://beyondmeds.com/2012/01/03/adrenalvswithdrawal/


1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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Junglechicken
17 hours ago, grandmaD said:

 

You might find this interesting on withdrawal and cortisol

 

https://beyondmeds.com/2012/01/03/adrenalvswithdrawal/

Thanks GrandmaD, I hadn't read that.


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

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Jeanny44
On 2.6.2017 at 2:55 AM, DLB said:

Well, I have had this issue when I started this crap and every time I tried coming off of it. I used to be 210 pounds of muscle and now I may be 185 and it is all muscle loss. I had severe weakness in my legs for 2 years this time after a 15 month taper. It started at about 2.85 mg and lasted the whole way down to zero and 2 years after that. It is only in the past 2 months that I feel significant improvements. It is about 85% better now consistently. Like PoetJester says, it comes on through the years insidiously as a steady weakening and you get little hints but don't realize it. Then when you come off of this crap you basically feel like jelly legs 24/7. It is quite a disturbing feeling in your legs. Anyway, mine seems to be improving and I assume you will to. What is your drug history?

Hello DBL,

 

I also have severe muscle weekness. It's in my arms and back. But mostly in my legs.I've never had this before and also not during taking Effexor for 9 years. Did you also expierience tight thighs? The muscles there are very sensitive. I always feel them. I only need to touch the skin lightly. Also there are twitches and vibrating in the whole legs and a feeling of electrical power. Sometimes the muscles feel like they have nausea. To read here, that some people have this weakness still after years, scares me. Have you been able to walk even through the weakness? Did you do some excersise? And when did you start to take the proteins?


Taken Effexor/ Venlafaxine from 2007 - 2016

Came off with 37,5 mg in July 2016 by the advice of 2 psychiatrist, that this is save

Protracted withdrawal began in october with loss of hunger and apetite,

closed psychiatry August - Septembre 2017

Duloxetin 2 week, Sertraline then 5 weeks, quit on my own at home at 25mg, during the whole time was given Lorazepam 8quit in hospital too fast, dunno the dosages of the other meds, 

 

Symptoms: dizziness, balance issues, loss of hunger and apetite, pressure in head, tinitus, swayinglike feeling in the brain, tingleing and buzzering, nausea, feeling of a sore stomach and gut,  cognitive issues, can't talk much nor listen, very sensitive to noises and movements, agitation, fast constipation, tunnellike vision ( can't get the whole picture for example by reading, i can only see one word, pictures in tv are to fast), weakness in legs and arms, feeling my nerves with tingleing and a weird feeling in my thighs til my feet, low bp: around 100/ 60, high heartrate: in rest around 100, like 150 - 160 when I get up, pulse gets already up when I just turn around in bed, can hear the pulse in my left ear, can't leave the house, symptoms got worse with every month

 

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DLB
On August 1, 2017 at 10:50 AM, Jeanny44 said:

Hello DBL,

 

I also have severe muscle weekness. It's in my arms and back. But mostly in my legs.I've never had this before and also not during taking Effexor for 9 years. Did you also expierience tight thighs? The muscles there are very sensitive. I always feel them. I only need to touch the skin lightly. Also there are twitches and vibrating in the whole legs and a feeling of electrical power. Sometimes the muscles feel like they have nausea. To read here, that some people have this weakness still after years, scares me. Have you been able to walk even through the weakness? Did you do some excersise? And when did you start to take the proteins?

Wow Jeanny, I have used the word nausea to explain the weird feelings in my legs many times, it is the only word to describe it.  For me it has been getting a little better lately but just in the past two days it is back pretty bad. My thighs were always the thing that bothered me most especially the tightness and weakness. Now it is in my calves and right behind my knees in the back of them it is weak and extremely tight. My muscles are sore to the touch in many places on my legs and this was NEVER a issue before quitting Paxil. I did have the same feeling when I was first put on this crap but after two months it went away. Every time I reinstated I got it too. I can walk but cannot even think about running. I started the protein smoothies in December of last year. I do get the twitching an electrical vibrating feeling in my thighs too. I think it gets worse if under stress or with excercise. Hang in there, there does get to be good days and weeks eventually.


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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Jeanny44
8 hours ago, DLB said:

Wow Jeanny, I have used the word nausea to explain the weird feelings in my legs many times, it is the only word to describe it.  For me it has been getting a little better lately but just in the past two days it is back pretty bad. My thighs were always the thing that bothered me most especially the tightness and weakness. Now it is in my calves and right behind my knees in the back of them it is weak and extremely tight. My muscles are sore to the touch in many places on my legs and this was NEVER a issue before quitting Paxil. I did have the same feeling when I was first put on this crap but after two months it went away. Every time I reinstated I got it too. I can walk but cannot even think about running. I started the protein smoothies in December of last year. I do get the twitching an electrical vibrating feeling in my thighs too. I think it gets worse if under stress or with excercise. Hang in there, there does get to be good days and weeks eventually.

Hello DLB,

 

Thank you for your answer. So it seems, this will never go away? Have you ever got checked this by a specialist, a neurotherapist for example? Did you take supplements, like magnesium? And have you may heard about people, where these special symptoms improved? Many questions, I know. 

 


Taken Effexor/ Venlafaxine from 2007 - 2016

Came off with 37,5 mg in July 2016 by the advice of 2 psychiatrist, that this is save

Protracted withdrawal began in october with loss of hunger and apetite,

closed psychiatry August - Septembre 2017

Duloxetin 2 week, Sertraline then 5 weeks, quit on my own at home at 25mg, during the whole time was given Lorazepam 8quit in hospital too fast, dunno the dosages of the other meds, 

 

Symptoms: dizziness, balance issues, loss of hunger and apetite, pressure in head, tinitus, swayinglike feeling in the brain, tingleing and buzzering, nausea, feeling of a sore stomach and gut,  cognitive issues, can't talk much nor listen, very sensitive to noises and movements, agitation, fast constipation, tunnellike vision ( can't get the whole picture for example by reading, i can only see one word, pictures in tv are to fast), weakness in legs and arms, feeling my nerves with tingleing and a weird feeling in my thighs til my feet, low bp: around 100/ 60, high heartrate: in rest around 100, like 150 - 160 when I get up, pulse gets already up when I just turn around in bed, can hear the pulse in my left ear, can't leave the house, symptoms got worse with every month

 

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DLB
On August 5, 2017 at 6:34 AM, Jeanny44 said:

Hello DLB,

 

Thank you for your answer. So it seems, this will never go away? Have you ever got checked this by a specialist, a neurotherapist for example? Did you take supplements, like magnesium? And have you may heard about people, where these special symptoms improved? Many questions, I know. 

 

I tried everything possible including acupuncture and magnesium and everything you can imagine. I'm not sure if it was time or what I take now but it is almost completely gone now and it was horrible. 

 

For the past two years I take:

2 fish oil per day 1,200 mg each

2 turmeric per day  500 mg. each

2 vitamin D per day 2,500 iu each

2 niacin 500 mg. each per day

1 scoop Dr. Gundry's Vital Reds polyphenols and antioxidants. 


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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Webhead21
10 hours ago, DLB said:

I tried everything possible including acupuncture and magnesium and everything you can imagine. I'm not sure if it was time or what I take now but it is almost completely gone now and it was horrible. 

 

For the past two years I take:

2 fish oil per day 1,200 mg each

2 turmeric per day  500 mg. each

2 vitamin D per day 2,500 iu each

2 niacin 500 mg. each per day

1 scoop Dr. Gundry's Vital Reds polyphenols and antioxidants. 

Did you experience muscles atrophy, if so has it recovered?  Maybe describe it a little more in detail?

 


Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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DLB

Yes atrophy and I still am not as physically capable as I was 5 years ago, but I will be 50 in a year so that can be an issue too.  I went from a muscular 210 lbs down to 190 and am 6 ft. My shoulders and arms are noticeably smaller as well as a little bit of legs. Mostly shoulders though. I also get injured a little easier too. I have been stable at this weight now and I also drink a protein smoothie daily to support the muscles.


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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grandmaD

DLB thanks for coming here to tell us the muscle issues do get better, but it took 2 years after you were off the meds!  Oh boy....

What about your knees?  I have only just started having knee pain and aches.  Has that improved for you also?


1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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Webhead21
20 hours ago, DLB said:

Yes atrophy and I still am not as physically capable as I was 5 years ago, but I will be 50 in a year so that can be an issue too.  I went from a muscular 210 lbs down to 190 and am 6 ft. My shoulders and arms are noticeably smaller as well as a little bit of legs. Mostly shoulders though. I also get injured a little easier too. I have been stable at this weight now and I also drink a protein smoothie daily to support the muscles.

In what sense have to experience improvment?  I'm close to 2 years and I have relieve through excerise, mostly walking, but I what it feels like is my nerve are so damage  its just non responsive.  Also my forearm are know tingling and lossing muscle.  So, what I hope your experiencing is better sensitivity, no sense of numbness?  

 

Soild job on the work you have done coming this far.  Have to also have any draw back from your "treatment" routine?


Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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DLB
On August 26, 2017 at 3:52 AM, grandmaD said:

DLB thanks for coming here to tell us the muscle issues do get better, but it took 2 years after you were off the meds!  Oh boy....

What about your knees?  I have only just started having knee pain and aches.  Has that improved for you also?

Yes the knee pain is all gone now but I have this weird tightness just behind them and down my calves. Used to be bad in my thighs but that is mostly gone now. I got the knee pain right about where you are now in your taper.

Hope you are feeling better...


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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DLB
On August 26, 2017 at 5:39 PM, Webhead21 said:

In what sense have to experience improvment?  I'm close to 2 years and I have relieve through excerise, mostly walking, but I what it feels like is my nerve are so damage  its just non responsive.  Also my forearm are know tingling and lossing muscle.  So, what I hope your experiencing is better sensitivity, no sense of numbness?  

 

Soild job on the work you have done coming this far.  Have to also have any draw back from your "treatment" routine?

I do get tingling in my arms and a couple of fingers when I bend my elbows for a long time. Some of that is normal but I never had it this bad since Paxil. It comes and goes though.


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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