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neroli
On 6/23/2018 at 9:35 AM, KarenB said:

I just read this, and sent RadioNewZealand an email telling them of my experience.  Thought some of you might like to do the same.  http://www.radionz.co.nz/news/national/358974/over-half-of-antidepressant-users-suffer-withdrawal-study.

KarenB

 

Did you get any response to your email?  I didn't.

 

 

Hope you are doing ok

 

Neroli

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Songbird

Really shocked to hear about Greg Boyed's suicide.  There's been mention of his struggle with depression - no mention of ADs, but I do wonder if any were involved.

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neroli

Me, too @Songbird and I had similar thoughts if ADs were involved.  Very sad to hear this, he was a brilliant journo/presenter and apparently a good bloke to be around.

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KarenB

NZ effexor / enlafax users might like to join this facebook page: https://www.facebook.com/groups/194897591128692/about/

 

Also for anyone interested in news reporting about Pharmac. The creators of the page were interviewed today and were then the lead story on One News!

 

A Radio NZ reporter has contacted me through the page and is going to be calling me in the next few days. He wrote a good article today on RNZ. https://www.radionz.co.nz/news/national/365486/patients-wanting-special-funding-for-antidepressants-turned-down-by-pharmac

 

It's a good time to push - now that we're getting some coverage. 

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Altostrata

!!!!! Well done, KarenB.

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Ryder

 Karen, that's really good. Go Kiwis. Watching on with interest👍

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Songbird

They keep reporting Medsafe saying the generic drug is "safe" to take.  There's no mention of how different people respond differently to the same drug.  We had the same situation with Loxamine back in 2008.  It makes me wonder how they think suicidal thoughts doesn't count as an exceptional clinical circumstance.  What would it take to be classed as exceptional so you can qualify?

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TaniaNZ

Fellow kiwi here from Christchurch.

 

I'm about to start tapering off this Enlafax stuff.. going to be harder than I had planned since the change from Effexor (thanks Pharmac) means no beads to count!

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TaniaNZ
On 9/4/2018 at 9:48 PM, Songbird said:

They keep reporting Medsafe saying the generic drug is "safe" to take.  There's no mention of how different people respond differently to the same drug.  We had the same situation with Loxamine back in 2008.  It makes me wonder how they think suicidal thoughts doesn't count as an exceptional clinical circumstance.  What would it take to be classed as exceptional so you can qualify?

 I noticed one article said that Pharmac stands by the 'research' that indicates Enlafax is safe. I wonder if anyone knows what 'research' they are referring to?

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maree

Hi and thanks for letting me join this kiwi forum. I'm 55 yrs old and have been on paxil for 20 years, due to a breakdown back then from stuffing down the abusive childhood I had. Over the last 3 years I have been tapering off the paxil from 60mgs per day to 30 mgs per day. The tapering is going ok for now.

I don't work as I have CPTSD (Complex Post Traumatic Stress).

I attend online recovery groups for adults who have come from alcoholic and dysfunctional homes. I would love to hear from anyone who is in similar position as me with cptsd.  I have been very gratefull to the main site of SA for their advice and support...those folk are awesome volunteering theri time and knowledge and I would have been quite lost in how to taper without them.

I own my own home and I am looking for flatmate and wanted to know if it is ok to post the ad here? Does anyone know? I don't want to break any protocol guidelines or upset this wonderful site in any way. It would be lovely to have a kindred spirit who understands our SA stuff  as a flatmate :)

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Altostrata

Hello, maree. Ordinarily, we don't permit advertising.

 

Potential flatmates may contact you via personal messages. They must be registered on this site, but remember everyone here is anonymous, so it is somewhat of a flyer with strangers, like Craigslist. I hope you find someone who is mutually supportive.

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maree

Hi Altostrata. Thanks for letting me know and heas of really good vibes for allyour vlunteer work on this site :)   Maree

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maree

p.s Is it within protocol of hhiss group to put out an invite to anyone living in my area to firstly contact me with the viewthat one day we could meet up at a coffe shop?  And if it is ok do I post such an invite on this thread?  thanks again :)

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Songbird
2 hours ago, neroli said:

Great new initiative - support group for people coming off psych drugs in Auckland - https://www.themindtribe.org/ongoinggroups

 

May it bloom and grow!

 

Looks interesting, and it's just around the corner from my place.

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neroli
18 hours ago, Songbird said:

Looks interesting, and it's just around the corner from my place.

That's great Songbird.  One of the women involved, it may be THE woman who has started this is on SA (I PM'd Mind Tribe). FB page: https://www.facebook.com/themindtribe/?eid=ARCZVMLLq7kn-8RdDBp_CWEHvXm-OyRm17NyHUxRmWoQDp6chAn2t1XEM9m_AgB6jWJ84xpTYy_6n_JP&fref=tag

 

I hope you can get there or it provides some great face-to-face support for you.

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ittakesavillage

Hi NZ members!! My name is Rachel and I am over a year clean off of Effexor XR. Since then, I have been working with my brother, who is in the Mental Health sector, to support people on the same journey.

 

Check out our new Facebook group - 

 

https://www.facebook.com/groups/safetaperingnz/

 

This group is for people considering, in the process of or who have experience with psychiatric drug withdrawal.

The goal of this group is to create a hub of resources and discussion to support those who want to withdraw in a safe way.

We recognise that psychiatric drugs can be beneficial for some while harmful to others. Everyone's experience is valid. We will not tolerate any shaming or discounting of others' experiences.

If you are thinking about coming off your psych meds, we recommend you gather resources and support before starting the tapering process, and attend The Mind Tribe's weekly support group to talk with people who have lived experience. Please visit our website for a list of resources and education on how to taper.

www.themindtribe.org

 

Our support group is in Auckland and I will post more about it shortly but feel free to message me or reply to this post if you are interested. 

 

Lots of Love

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neroli

Thanks @ittakesavillage all the best with it.  We need it here in NZ and I'm so appreciative of all of you who have started it up.

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cathnz

Hi there, 

Can someone here in NZ please advise if they've used a compounding pharmacy before to taper? Currently on 30mg of Mirtazapine and not doing well. Wish to taper in future (when a bit more stable) but not confident enough in myself to make the liquid. And it seems the liquid is the preferred method by people (the compounded tablet doesn't have beads that I can count). I've called the compounding pharmacy and it seems they make capsules... has anyone had experience with this? 

Advice welcomed. Thanks 

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maree

Hi CathNZ,  Maree here from NZ also. I hope you find the answers you need. I'm sorry I can't help you. I'm on an ssri drug and wish I wasn't. I tried tapering but it was too hard. Now I'm toying with the idea of finding out what it would take to swap to something I heard called and ssni drug. But I don't know. As I don't work due to complex post traumatic stress disorder, and spend quite a bit of time on online recovery groups healing from that I find the understanding and tapering drugs is all a bit much for my understanding really. But I hope you find the help you need. Maree

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maree

Please can some-one help me. I have been on paroxitne 20mg (APO) for many years. I tired to taper down (really slowly with medical scales that I needed a mask for so my breath wouldn't change the weight on the scales)a couple of year ago and my anxiety and Depression got so bad again my suicidality was getting out of control and I had to stop tapering. I told my doctor and he said the only way to change drugs is to stop completely the paroxitine I'm on and then start a new one. I just about freaked out as I'd just said how hard the tapering was and he knows that when I first started on ani=ti anxiety and antidepressants they put me on prosac and it was a night mare. PLEASE HELP ME. What am I going to do when Apotrex pulls out of New Zealand. I won't be able to get my life saving drug and I have tried doing a switch and it almost killed me. Please help. Please tell me what I need to do. I have absolutely no family and only a few  acquaintances. I haven't been able to work for decades  Sorry if I've posted this in the wrong place I'm freaking out and can't think straight. Maree
 

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maree

Please can some-one help me. PLEASE SEND ME A MAIL MESSAGE as I normally have trouble with anxiety and can't navigate this site and at the moemnt it's super bad. I have been on paroxitne 20mg (APO) for many years. I tired to taper down (really slowly with medical scales that I needed a mask for so my breath wouldn't change the weight on the scales)a couple of year ago and my anxiety and Depression got so bad again my suicidality was getting out of control and I had to stop tapering. I told my doctor and he said the only way to change drugs is to stop completely the paroxitine I'm on and then start a new one. I just about freaked out as I'd just said how hard the tapering was and he knows that when I first started on ani=ti anxiety and antidepressants they put me on prosac and it was a night mare. PLEASE HELP ME. What am I going to do when Apotrex pulls out of New Zealand. I won't be able to get my life saving drug and I have tried doing a switch and it almost killed me. Please help. Please tell me what I need to do. I have absolutely no family and only a few  acquaintances. I haven't been able to work for decades  Sorry if I've posted this in the wrong place I'm freaking out and can't think straight. Maree

Here are two of many links showing this drug company pulling it's supply out of New Zealand.:  (where I live)

https://www.newshub.co.nz/home/new-zealand/2020/07/a-million-kiwis-to-be-impacted-by-major-pharmaceutical-company-leaving-new-zealand.html

https://www.newshub.co.nz/home/new-zealand/2020/07/doctors-and-patients-anxious-after-pharma-giant-apotex-quits-new-zealand.html

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ChessieCat

https://www.newshub.co.nz/home/new-zealand/2020/07/a-million-kiwis-to-be-impacted-by-major-pharmaceutical-company-leaving-new-zealand.html

 

From the above, this is just below the video.  It's by the end of next year, not this year, so at least you have more time to work things out.

 

"UPDATE: This story has been updated due to incorrect information provided by Pharmac, for which it apologises. The earlier version said Apotex was pulling out this year when it is in fact next year.

 

More than a million Kiwis may need to change to different medications before the end of next year due to a major pharmaceutical company pulling out of the New Zealand market, leaving Pharmac looking for new suppliers for dozens of medications."

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ChessieCat

Good news!

 

9 minutes ago, Songbird said:

 

It says in the article:  "All but one of the 41 medications Apotex supplies are supplied by other companies, the only one being discontinued is the heart medication Cilazapril with hydrochlorothiazide."  This means there will be another company that can supply paroxetine, so don't worry about that.

 

 

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cathnz
12 hours ago, ChessieCat said:

Good news!

 

 

@ChessieCat @Songbird i began panicking too as my mirtazapine is supplied by Apotex and I'll only be part way into my taper 😭 But do I take the above message to mean that it's likely to be the same formulation anyway? 

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ChessieCat

@cathnz

 

Pharmaceutical companies, when making generic versions of drugs, must include the same drug and amount as the brand version.  There can be differences in the fillers that they use.  And the shape, size and colour of the tablet/capsule may be different.  For example Effexor brand capsules have lots of tiny beads in them, whereas some of the generic capsules have 3 or 6 mini discs inside the capsule, but they are still the drug venlafaxine at the correct dose.

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maree

Please can some-one help me. I have been on paroxitne 20mg (APO) for many years. I tired to taper down (really slowly with medical scales that I needed a mask for so my breath wouldn't change the weight on the scales)a couple of year ago and my anxiety and Depression got so bad again my suicidality was getting out of control and I had to stop tapering. I told my doctor and he said the only way to change drugs is to stop completely the paroxitine I'm on and then start a new one. I just about freaked out as I'd just said how hard the tapering was and he knows that when I first started on ani=ti anxiety and antidepressants they put me on prosac and it was a night mare. PLEASE HELP ME. What am I going to do when Apotrex pulls out of New Zealand. I won't be able to get my life saving drug and I have tried doing a switch and it almost killed me. Please help. Please tell me what I need to do. I have absolutely no family and only a few  acquaintances. I haven't been able to work for decades  Sorry if I've posted this in the wrong place I'm freaking out and can't think straight. Maree

I am so scared I can't think straight. Here are two of many links showing this drug company pulling it's supply out of New Zealand.:  (where I live)

https://www.newshub.co.nz/home/new-zealand/2020/07/a-million-kiwis-to-be-impacted-by-major-pharmaceutical-company-leaving-new-zealand.html

https://www.newshub.co.nz/home/new-zealand/2020/07/doctors-and-patients-anxious-after-pharma-giant-apotex-quits-new-zealand.html

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maree

That's also scary because the ingredients could be in different percentages and I had such a hard time trying to taper 2 years ago that the smallest change may be a nightmare (if possible at all)

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ittakesavillage

Hi everyone! 
 

I have been a long time member and am now successfully off medication(Effexor). My brother and I run a Safe Tapering Group in Auckland which has just moved online as part of the Whakatau Mai Well-being Sessions. 
 

This is a weekly face to face meeting on a Zoom platform for anyone considering, in the process of or who have experience tapering off psychiatric medication. 


Here is the link for registration: 

 

https://changingminds.zoom.us/meeting/register/tJIpd-mhrjIpHNQXj2Ix0YxVLowA5DflNN-U

 

Come along if you need the support! 
 

Rachel

The Mind Tribe

 

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maree

Hi Rachel. 
Thankyou so much for that info. Fortunately I already found it and have an appointment time to talk to a Danny this afternoon via audio. But thank you  for thinking of folk like me. I had a frustration conversation with a doctor yesterday who said among other things "they can't give a guarantee that the drug manufacturer Imy meds have been transfered to won't pull out of New Zealand also or that my meds will be avaialbe in 5 years ( this after I told her my attempt 2 yrs ago which I had to abort because it was to hard would have taken me 28 yrs to get off)"   and I was then asked " if the meds I'm on stablise my life more than if I'm not on them why would I want to taper?"  I thought didn't we just have a discussion about  Apotex pulling out of New Zealand and didn't you just say you can't give me a guarantee that my drug will be available here in 5 years even.  
So I'm really keen to now know how to taper off paroxitine  so i'll never have to go into that scary 'are my drugs not going to be available anymore' freakout I went into for 2 and a half days.  
I'd love to know if anyone in New Zealand has come off ssri and how long it took them and apart from valium is there also any herbal products that can help.

I want to thank all the moderators and folk on here also for helping me with staying in contact while I freaked out. My meds will still be available through another manufacturer....but for how long is the question I'm wondering so I'm super keen to know how to get off them

 

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