Moderator Emeritus WiggleIt Posted January 29, 2015 Moderator Emeritus Share Posted January 29, 2015 Tanit is trying to help and she is/was in med school. We are all learning and we are all scared. *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment
btdt Posted January 29, 2015 Share Posted January 29, 2015 If that was to me wiggleit I know I have been speaking with her in pms... there is a lot to this subject it takes time to assimilate it. is all i mean... first she needs to get well... like all of us. peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Moderator Emeritus WiggleIt Posted January 30, 2015 Moderator Emeritus Share Posted January 30, 2015 Tanit, are you okay? You've been quiet and you are usually an avid poster, so I want to check in. *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment
Martina23 Posted January 30, 2015 Share Posted January 30, 2015 I think it must not be a failure of Tanit. I think, it is only that the people are a bit angry with doctors in general. The doctors also - put on you a lot of scientific language- you take these ssris and then you are struggling to get out of consequences for years. And naturally, if there are sick people, it is just not wise to say that everybody will stay as he is. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
tanit Posted February 5, 2015 Author Share Posted February 5, 2015 (edited) *post and replies moved from symptoms section, the title was "my blood pressure is terribly fluctuating at night." I know it is a serotonin effect.do you know any natural herb that has a strong anti-hypertensive effect. can`t take calcium channel blocker and magnesium does not work with me. Edited February 7, 2015 by Petunia added note ''I''took paxil for 30 days (did`nt felt a lot of side effects when ''I'' stopped it) after two weeks I developed the worst headache I ever felt (some sort of permanent migraine, tinnitus..). after a month of headaches a decided to take another pill to see.I took a pill because i was thinking that it was may be withdrawal and it caused me a what my doctor called `some thing like serotonin syndrome`` which never improved and caused me severe muscle problems... in retrospect I know that it was not a serotonin syndrome , my receptor were very stimulated and reacted in weird ways Link to comment
Moderator Emeritus ten0275 Posted February 5, 2015 Moderator Emeritus Share Posted February 5, 2015 tanit, hey. hawthorne worked wonders for my blood pressure, but does retain a bit of the calcium channel blocker propensities: Hawthorn has been prescribed by European doctors for years to treat various heart conditions including hypertension, ischemic heart disease (angina), and congestive heart failure. Hawthorn's cardiovascular benefits are primarily due to the unique complement of flavonoid compounds found in its leaves, berries and blossoms, particularly anthocyanidins and proanthocyanidins. These active constituents have been shown to act in three ways to help reduce high blood pressure, and clinical studies have proven that supplementation with hawthorn extract can be a safe, natural method to treat mild to moderate hypertension. As mentioned, hawthorn has been shown to provide three distinctive physiological effects, each of which contribute to its anti-hypertensive properties. These include: ACE – inhibitor Calcium channel blocker Nitric oxide release (vasodilator) http://www.meschinohealth.com/ArticleDirectory/Hawthorn_Natural_Blood_Pressure_Remedy that's all i can come up w/ other than the magnesium. hang in there. dave 1996 - .5mg Ativan as needed, 7.5mg Remeron daily2008 - .5mg Xanax, Ativan discontinued, Remeron continued2012 - .5mg Xanax, .25mg Ativan 3x daily, Remeron continued2/2012 - Jumped from Remeron, continued .5mg Xanax .25mg Ativan 3x daily4/2012 - Began rapid taper of .5mg Xanax .25mg Ativan 3x daily6/2012 - Jumped from Xanax and Ativan, voluntary hospitalization followed7/2012 - 2nd voluntary hospitalization, reinstated Remeron, bumped to 30mg, also given risperidone.8/2012 - discontinued risperidone, tried gabapentin, dicontinued gabapentin, Remeron 30mg continued10/2012 to current - tapered Remeron 10% every 4 to 6 weeks (sometimes more time) using liquid compound12/2014 - 2mg Remeron 1/16/2015 - 1.9mg Remeron 8/1/2015 -1.6mg Remeron - 03/1/2016 - 1.5mg Remeron - 1/2/2017 1.3mg - 5/7/2017 1.2mg - 5/13/2017 - syringe size change - 6/8/2017 - 1.1mg - 7/10/2017 - 1mg - 9/1/2017 - 0.9mg - 10/22/2017 - 0.8mg - 11/22/2017 - 0.7mg - 2/2/2018 - 0.6mg - 3/13/2018 - new compound pharmacy - 5/20/2018 - 0.5mg - 8/31/2018 - 0.4mg - 11/16/2018 - 0.3mg - 12/24/2018 - 0.2mg - 4/1/2019 - 0.1mg - 5/1/2019 - .05mg - 0mg achieved 2019-06-15. 🤞 Link to comment
Cressida Posted February 5, 2015 Share Posted February 5, 2015 I get this too think its caused by fluctuating cortisol effects. Its very unpleasant and scary wakes me up with pounding Paxil 10mg 21/2 years to June 2012 after a 2 month taper Link to comment
btdt Posted February 6, 2015 Share Posted February 6, 2015 I wonder how many just needed a vit B12 shot and got put on meds with out any checking of B12 or thyroid I know it has happened to some. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Moderator Emeritus Fresh Posted February 6, 2015 Moderator Emeritus Share Posted February 6, 2015 Hi tanit , I've been reading your thread with interest - you're clearly extremely knowledgeable about some aspects of this mess. You haven't posted here since 30 Jan. and I'm wondering how you're doing? In your last post you wrote " I am afraid and nauseous but I want to understand my problems so I can fix them". People are only able to advise you if they have basic information about your particular situation. This includes what medications you have taken , dosages , and when you started or stopped . You refer to 2 ssri's and 1 benzo , then refer to paroxetine that your mom slipped you for one month. We want to understand your problems too tanit , and help you fix them as much as we can. I know you're having a rough time , please let us in. Best wishes , Fresh 1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg 2010-2012Cymbalta 120mg Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months. July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months. Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg. October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive. March 2016 , 21mg Link to comment
tanit Posted February 23, 2015 Author Share Posted February 23, 2015 (edited) to people with paxil induced side effects ,I am in the process of developing my own approach to heal myself anyway , the results I am seeing are encouraging (Iam a medical student ) if I really improve, I will report what helped me since it is easy and with no side effects See you all in a couple of weeks. The stuff Iam trying is supposed to reverse what takes years in months at maximum Bye Edited March 6, 2015 by Petunia edited to add post title ''I''took paxil for 30 days (did`nt felt a lot of side effects when ''I'' stopped it) after two weeks I developed the worst headache I ever felt (some sort of permanent migraine, tinnitus..). after a month of headaches a decided to take another pill to see.I took a pill because i was thinking that it was may be withdrawal and it caused me a what my doctor called `some thing like serotonin syndrome`` which never improved and caused me severe muscle problems... in retrospect I know that it was not a serotonin syndrome , my receptor were very stimulated and reacted in weird ways Link to comment
tanit Posted February 23, 2015 Author Share Posted February 23, 2015 meanwhile you can try a spoon of stem seed oil for a week .It is a diatary oil with a lot of health benefit and depending on my own work and others reduce tolerance and side effects of excess serotonin . it is a great anti-inflammatory (even better than omega 3 oil) but you need to use for a short period for it to not lose its potency . try it for a couple of days .A more potent formula can relieve akathisia induced by ssri you will likely feel an improvement quickly . it tastes really bad but the benefits are great . it should help people with benzo addiction when benzo overstimulation causes excitatory effects I am trying a more complex protocol but I can`t tell you to try it until I see improvement on myself so you can try stem seed oil if you can`t wait . ''I''took paxil for 30 days (did`nt felt a lot of side effects when ''I'' stopped it) after two weeks I developed the worst headache I ever felt (some sort of permanent migraine, tinnitus..). after a month of headaches a decided to take another pill to see.I took a pill because i was thinking that it was may be withdrawal and it caused me a what my doctor called `some thing like serotonin syndrome`` which never improved and caused me severe muscle problems... in retrospect I know that it was not a serotonin syndrome , my receptor were very stimulated and reacted in weird ways Link to comment
Prestorb Posted February 24, 2015 Share Posted February 24, 2015 Thank you tanit and welcome! 2005-2009, Lexapro 10 - 20 mg, CT WD w/severe depression and anxiety: 2010-2015, Paxil, 30 - 40 mg, tapered off at 10 mg/week, moderate anxiety and depression: 2010-2015, Clonozapam 0.25 mg, as needed for anxiety and sleep: 1/10/2015, Zoloft 25 mg, tried to increase to 50 and 75, but nausea and dizziness: 2/13/2015, Paxil 5 mg, added back after 2 weeks at zero to reduce WD: 2/28/2015, Paxil 10 mg, increased from 5 mg to reduce WD, HOLDING: 3/04/2015, Zoloft discontinued (reduced to ~12.5 mg on 2/19, ~6.25 mg on 2/26, then zero): 4/26/2015, Paxil starting 10% taper (no scale so was inadvertently at 20% taper, yikes!): 4/30/2015, Paxil 10 mg, reinstated (WD disappeared between August 2015 and May 2016) 5/02/2016, Started 10% taper, reinstated to 10 mg on 5/11/16: 4/29/2017, Last dose of Paxil (working with holistic psychiatrist, lots of supplements to aid WD): Primary symptoms: apathy, demotivation, anhedonia, fatigue, stress intolerance, moderate social anxiety 7/1/2018 Finally feeling like myself again, success!!! Praise God! Even with the stress of relocating recently, I am feeling pretty good most of the time now. Granted, I eat healthy, I exercise, I don't drink caffeine or alcohol and I try hard find a healthy balance of quiet and social times. Hang in there and keep the faith, you can do it too! Link to comment
Moderator Emeritus Petunia Posted February 25, 2015 Moderator Emeritus Share Posted February 25, 2015 Tanit, what is stem seed oil? Nothing comes up in a search. I'm not a doctor. My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one. My Introduction Thread Full Drug and Withdrawal History Brief Summary Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects 2 month 'taper' off Lexapro 2010 Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms Failed reinstatement of Lexapro and trial of Prozac (became suicidal) May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins. Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes Supplements which have helped: Vitamin C, Magnesium, Taurine Bad reactions: Many supplements but mostly fish oil and Vitamin D June 2016 - Started daily juicing, mostly vegetables and lots of greens. Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered Oct 2016 -Symptoms returned - bad days and less bad days. April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close. VIDEO: Where did the chemical imbalance theory come from? VIDEO: How are psychiatric diagnoses made? VIDEO: Why do psychiatric drugs have withdrawal syndromes? VIDEO: Can psychiatric drugs cause long-lasting negative effects? VIDEO: Dr. Claire Weekes Link to comment
Moderator Emeritus Petunia Posted March 6, 2015 Moderator Emeritus Share Posted March 6, 2015 I moved your last posts from the symptoms section to your thread to keep all your information together. I'm looking forward to hearing about the results of your experiments, and do tell us more about stem seed oil when you return. I'm not a doctor. My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one. My Introduction Thread Full Drug and Withdrawal History Brief Summary Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects 2 month 'taper' off Lexapro 2010 Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms Failed reinstatement of Lexapro and trial of Prozac (became suicidal) May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins. Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes Supplements which have helped: Vitamin C, Magnesium, Taurine Bad reactions: Many supplements but mostly fish oil and Vitamin D June 2016 - Started daily juicing, mostly vegetables and lots of greens. Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered Oct 2016 -Symptoms returned - bad days and less bad days. April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close. VIDEO: Where did the chemical imbalance theory come from? VIDEO: How are psychiatric diagnoses made? VIDEO: Why do psychiatric drugs have withdrawal syndromes? VIDEO: Can psychiatric drugs cause long-lasting negative effects? VIDEO: Dr. Claire Weekes Link to comment
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