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Dizziness, vertigo, light-headedness, rocking or swaying sensations

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jac84lp

Hello Everyone. I was on 20mg nortriptyline for 6 weeks. I tapered off the drug over a 1 week period due to it's side effects (increased heart rate, muscle spasms and hair loss). It's been 2 weeks since I stopped taking the nortriptyline and I am still having a very rough time dealing with withdrawal symptoms. I constantly have this rocking, swaying motion that I feel in my head and body as though I'm on boat that's bobbing up and down, left and right, forward and backwards. Although this seems similar to vertigo, things around me in the environment are not spinning. I just feel like my mind and head is always rocking ever so slightly with the beating of my heart and with every breath I take. I should note that I had and am still dealing with constant rapid heartbeats throughout the day with heavy and shallow breathing since I stopped taking the drug. This constant rocking motion in my head makes me feel dizzy and nauseated. Has anyone here experienced movement problems during withdrawal? If so, does it go away and how long does it take for it to go away? It's very bothersome. It greatly hinders my concentration and focus. I'd like to hear from anyone who's had this experience. Thanks.

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shelby

This is my worst physical symptom. Its so bad now I can barely walk or sit up. Has anyone else had this and it got better for them?

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darktimes

Just reading through this thread gives me a lift this is the one symptom that is the worst for me its just there all the time when i have a window its gone but just comes back again . Still have low white noise feeling in head Also .

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shelby

Did this get better for anyone?

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jac84lp

Hi Shelby. I'm going on 9 weeks of feeling like I'm on a boat that's bobbing and rocking 24/7. So no, my balance has not improved and seems to intensify with anxiety.

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Lexy

I've been having the lightheadedness and feeling faint. Is this a wd symptom too?

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stan

i have something as this, for me it is a mix of my original anxiety and anxiety system deteriorate by brain meds, it is called conversion disorder, i think for me 80% from paxil and a little from normal daily stress we can no more manage after years on drugs(drugs deteriorate the ability for normal stress living, being drugged, we have no more a inch of stress, but we need to survive a daily stress fighting, so when we stop, we are unable to live normal sensations, stress, all is to re-learn in a brain in chaos)

from wikipedia:

Motor symptoms or deficits:

  • Impaired coordination or balance
  • Weakness/paralysis of a limb or the entire body (hysterical paralysis or motor conversion disorders)
  • Impairment or loss of speech (hysterical aphonia)
  • Difficulty swallowing or a sensation of a lump in the throat
  • Urinary retention
  • Psychogenic non-epileptic seizures or convulsions
  • Persistent dystonia
  • Tremor, myoclonus or other movement disorders
  • Gait problems (astasia-abasia)
  • Loss of consciousness (fainting)

Sensory symptoms or deficits:

  • Impaired vision (hysterical blindness), double vision
  • Impaired hearing (deafness)
  • Loss or disturbance of touch or pain sensation

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Lexy

I took blood tests for faint and lightheadedness.

Will anything show up in tests?

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Mort81

Ya guys that's the reason I went off ciprelex. I had these tremors, light-headed ness, slow heart rate and a few times fainted and temporary lost my license. I had all the blood tests and saw two neurologists. Its a product of the medication in my opinion. But they told me it was anxiety. Of course to them i went on ssris for PTSD and panic attacks so its the same thing. Only difference is when i used to get panic attacks before medication my body would be in fight or flight and my heart rate went sky high and i was sweating and my adrenaline was through the roof and all that never caused me to faint. These incidents were completely different. Anyway cant be a med that caused the problem they only help people :)

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laineyk

I am 5 months off and the symptom that seems to be unrelenting is the almost constant dizziness

 

I am going to start tapering off lorazepam because I feel that it is making everything 100% worse

 

just wanted to hear from other dizzy people and what did they do to cope

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pocketnurse

I have had balance issues whilst withdrawing from escitalopram. I could say dizziness too but for me it has been more a movement sensation almost like someone is swinging me from a rope or I am sitting in a little boat bobbing up and down on the sea.

 

I sometimes have problems driving too particularly if it is a long journey or I am tired. It is like motion sickness like I sometimes can't work out if it's me in the car moving or the road (I obviously know its the car) like an optical illusion. Lots of people have "dizziness" although it is a term used for different things by different people, some feel spinning and some lightheadedness. Try not to worry about it as the anxiety may make it worse. It can be alarming I know but it will pass with time. 

 

Tiredness makes it worse so get plenty of rest and sometimes rapid movement of the head. 

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KimD

I have been off Celexa for 2 months now after a 2.5 month tapering period.   Of course my initial withdrawal symptoms were the awful dizziness, brain zaps, insomnia, anxiety and panic, inappetance etc etc which lasted for 2 weeks or so.  Since then I have had dizziness off and on almost every day, in addition to anxiety, shortness of breath, tremors and just general feelings of "unwellness."  And lastly I'm feeling joyless and like I am living a shell of a life.

I don't have any particular advice for you, but I just wanted to say that I know what you're going through and I empathize!  Out of all my symptoms, the dizziness is the least bearable.  

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laineyk

I made a mistake its 5 months on Oct 2nd

 

each month off I seem to get sicker...and the off balanced feeling is HORRENDOUS

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dalsaan

Mine was like what pocket nurse describes - a kind of motion sickness feeling. When it got bad I took some motion sickness tablets and ginger if I was nauseous. It helped. Does it make you nauseous? Is yours like uneven movement or a real,spinning aroud?

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Petunia

Here is our dizziness topic: Dizziness, vertigo, lightheaded, etc. - Symptoms and self ...

 

There is a lot of discussion, information and suggestions about this symptom already collected in this thread. Please search for existing topics and add to them rather than start new ones. This keeps all the collected wisdom and experiences together in one place and easily accessible through searches.

 

The search function on this site doesn't work very well.  The best way to search this site for specific information  is to use Google. Type in survivingantidepressants.org then the symptom or information you wish to search for.

 

If after searching, you can't find what you're looking for, please start a new topic.

 

Also see What to do for dizziness, queasiness, nausea

Edited by Petunia
added another link

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ShortStraw

Anyone having any improvement with the dizziness? Mine seems mild compared to many, I still feel comfortable driving/working (supermarkets are a little challenging though), but if it would just go away things would probably be a lot easier to deal with. It's just so distracting.

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laineyk

First may I ask Short straw, you took Lexapro for 2 days and you think you are in w/d????? I am so confused

 

anyway I must say the WOOZY/ OFF BALANCED/ DIZZY is my worst symptom now. I keep miscalculating how long I have been off this  #$%&  but it will be 5 months Oct 9th  and  this has gotten worse with each passing day it seems.

 

I am finding it hard to do just about anything....

 

I also made a huge decision to taper a very little off my lorazepam and will hold that for awhile in hopes that the dizziness will get somewhat better

 

Whats worrying me is I am becoming afraid to drive or pretty much do anything because of my head feeling all squished and whacked

 

just wanted to read that I am not alone

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laineyk

I am really fried I have not been off the Zoloft for 5 months until Oct.9th!!!!  what the heck?

 

I also tapered .15mg off the lorazepam three days ago...I won't taper anymore until hopefully this dizziness subsides some.

 

waiting on neurologist to make a appt. but at this rate it will be next summer before I get in/ to see him

 

 

head just feels so squishy and whacked....My gosh maybe I should have stayed on the poison

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laineyk

dalsaan, mine is not vertigo (spinning) mine is woozy/off balanced feels like I am on a tilt a whirl...no nausea thank God

 

but by far the worst symptom I have right now

 

afraid I will stumble and fall its so bad

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dreamspirit

So taking antihistamines and anti-viral drugs are bad? I've been taking Zyrtec for years now and I take a anti-viral when needed.

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primekittycat

Dizziness is my number one withdrawal symptom. When I went off last year (pretty much cold turkey by advice of a psychiatrist), the dizziness was sudden and never abated, even when waking up in the morning. :( this went on for over 3 months, couldn't drive to work, etc. I was convinced I had a brain tumor because it also came with bad headaches at night. Neurologist thought it was my anxiety coming back (uhh, I had never been dizzy or had headaches before?) Went back on effexor and felt fine after a couple weeks. As I taper, I get those dizziness symptoms (but not half as bad) for a couple days. I tell myself that I can handle it and I'm not actually going to fall over or anything. Helps to know that nothing is wrong and it is just your body healing.

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laineyk

I just had an MRI this morning because the dizzy /woozy feeling is UNRELENTING. I need to know for sure its not a brain tumor

 

5months off this "CRACK"   and I am still so unbalanced

 

why oh why did I ever take this drug for so many years?

 

 

when will I be well again...well enough to start tapering the lorazepam

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Jlynn

I am worried I am going to be dizzy and swaying for the next two years or more as I go through my taper. If I waited for the dizziness to subside before dropping I am not sure I would get anywhere. It is by far the most irritating symptom I have had with this round of tapering. I have not found anything that works for getting rid of it. We are going on a cruise next month, maybe being on a boat will give me some relief since that is what I feel like on land, 

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laineyk

MRI was clear...I have  had BPPV since my 30's and prior to that bouts of dizziness...so this is not new for me. What is new is that its daily and its never ending now

 

I may have Migraine associated vertigo...seeing neurologist in Nov.

 

I will say though whatever is happening it all became a nightmare once off the Zoloft

 

been crashing ever since.

 

that stuff has really left a dent in my fender (brain)

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primekittycat

MRI was clear...I have  had BPPV since my 30's and prior to that bouts of dizziness...so this is not new for me. What is new is that its daily and its never ending now

 

I may have Migraine associated vertigo...seeing neurologist in Nov.

 

I will say though whatever is happening it all became a nightmare once off the Zoloft

 

been crashing ever since.

 

that stuff has really left a dent in my fender (brain)

 

lainey, so glad it came back clear (like I suspected). the neurologist also at first thought that I had migraine associated vertigo even though I'd never had a migraine before - and can a migraine really last 3 months, and be 24/7? I took the migraine medicine he prescribed once to see if it did anything, and it did nothing. When I told him that I got off Effexor a few months earlier, he immediately blamed it on my anxiety 'coming back'. Nope, it was protracted withdrawal syndrome. I'm not sure if it's too late for you to reinstate something in order to feel normal again. 

 

Since you do have BPPV, have you tried taking meclizine? You can get it OTC as Dramamine. This did nothing for me in withdrawal, but if it's your BPPV it should help.

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Happy2Heal

I don't know what the heck happened but I was suddenly hit with a terrible episode of some kind of dizziness or vertigo and bad nausea

 

I was afraid I was having a stroke. (Ok my aunt just had one so it's kind of on my mind, plus I have a high risk of stroke as I have afib and a history of PE and hypertension)

 

I called the nurse hotline cuz if I go to the ER and it's not a "real" emergency my insurance can refuse to pay

they said that what I was describing was not "emergent"

geez ppl couldn't ya just say it doesn't sound like an emergency? my mind gets so muddled I kept repeating that word, and asking her what she meant, and she just kept saying, it's not emergent

well, thank you very much, miss smarty pants, I'm glad YOU know what that means, but repeating the same word over and over did not explain much to me with my scared and addled brain

smh.

 

I can actually recreate the dizziness by putting my head down, bending it as if I'm going to put my chin on my chest (I dont need to go that far to recreate the sensation)

 

the nausea seems both related and un related, I dont 'get nausea from bending my neck

 

I am trying to sort out, is this a WD symptom or something to do wiht the cervical spinal stenosis?

 

i have had dizzy spells since last Spring that the dr has not been able to diagnose with more than something tentative (she thinks it's vagal, from a sudden drop in blood pressure)

but she never did the testing she said I should have (a 24hr blood pressure monitoring)

 

wow, what a crappy night.

I still feel really awful but in ways I can't even describe

 

I'm glad I do not  appear to be having a stroke but wow, this sucks

I had such a great day, to have a night like this is discouraging

 

 

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stan

when you are tapering psychotropics, at the end, the lack of the substance between nerves makes nerves inflamations, everywhere, brain, gut, legs, chest  etc in random, it is not only in one place, we feel fainting, or stroke, or adrenal , all this is complex, and if you wait, it goes away and unfortunately comes back, worse, different or milder...first years i called 3 times emergency, thinking dying and do not go, finally i was always alive, bad but alive, all this is classic disorder in nerves path, false amount hormones because the lexapro is no more here, it is classic chaos with strange symptomes with no logic, 

with time it will be better

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Happy2Heal

thank you Stan for your response. It just hit me like BAM and I was so scared, it felt so bad I thought I was having a stroke or maybe had a brain tumor.

 

I was afraid waiting it out might mean I'd "wake up dead" as they expression goes, but I'm glad I stayed home and eventually, about 3hrs later, things started to get better and I was able to sleep

 

wow, this stuff really sucks. but it's nice not to be alone with it anymore

thank you

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Meimeiquest

It's exactly how a hard bang of WD feels. Glad you're getting better!

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Happy2Heal

thanks

today has been stressful, very confused, memory even worse

i am just tking it easy and trying to take care of myself

 

went for  a little walk, it's unseasonably warm here

 

think i will have tea and a nap as i cna't seem to focus on anything at all

 

so glad i found this place and that i am not going crazy and (probably lol) not dying, but omg sometimes it feels like i must be

:/

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Mort81

I haven't talked about being dizzy all that much. Its been off and on for 16 months. Floaty boat is how I feel when it's strong. Its a clear signal to me that my body is still in WD.

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Toulouse

Dizziness / Light headedness is my latest WD symptom, just starting at 7 months out.  It might have to do with the increased anxiety I'm feeling suddenly too, so it's very possible the dizzy feeling and the anxiety are connected.  I haven't had a flat-out panic / anxiety attack, with the classic symptoms (heart pounding, shallow breathing) but the light headed /dizziness that comes out of nowhere, then I start feeling a bit panicky, because I think I'm going to fall or pass out.  I think I'm in a wave right now and hope it goes away soon as I find this symptom the most debilitating of any of my others.

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Mort81

Hey Toulouse. It will weaken and comes and go. Mine has done this. But mine is definitely not from anxiety. Sometimes Ill get anxiety from the dizzy feeling but not the other way around.

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Toulouse

Sorry if there's another topic, but I couldn't find anything in the archives.   I've been suffering through dizzy spells (along with panic and anxiety).  I have read that antihistamines and dramamine can help with the dizzy symptoms.  Has this worked for anyone?  I tried omega 3 and was not sure if it made it worse actually. 

 

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