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Arms, legs feel like they're not attached to body


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I scoured the topics to see if there was anything like this already and I couldn't find anything, so I hope it's okay that I started a new topic.

 

Because of the tricyclic antidepressants, I have fallen victim to something called one sided weakness. But it's more than just one whole side of my body being weaker than the other. It's like my brain isn't detecting that the right side of my body is even there, which means that my muscles don't automatically engage themselves when I move. This is very difficult to describe. For example, if I move my right leg, not all of the muscles wake up to move the leg forward, which could be why it drags.

 

So, it's not just that the muscles are weak; it's that they are not "kicking in," so to speak.

 

Has anybody else recovered from this? Has anybody else had the feeling of your brain not detecting your limbs, but then it has started detecting them again?

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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  • Moderator Emeritus

I remember reading that imac had some leg issues, but I wonder if she felt like they weren't attached?  I know she felt like they weren't coordinated and recovered from that, but wondering if it felt like her brain was not detecting the presence of her legs and, therefore, not detecting the presence of the muscles that activate the legs?

 

I realize this is a nuanced question, but am still hoping for feedback!

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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  • 1 year later...

Has this improved for you? It was quite a while ago. I'm having an issue like you describe. Its the weirdest thing and it's been hard to describe to others. My limbs feel loose and like they're not attached. Just curious how this is going for you!

Intermittent Klonopin use February, 2014 to September, 2015

- Off of SSRIs completely since April, 2012 

- Had horrible side effects from Celexa (constant feelings of terror, insomnia) so stopped taking it after 6 weeks

- Started 20 mg of Celexa in February 2012

- Began to taper off of Zoloft in May, 2011, off Zoloft completely September, 2011

- Increased Zoloft to 75 mg October, 2010 and decreased back to 50 mg in February, 2011

- June 2009- Went on 50 mg of Zoloft

- October, 2007 - July, 2008- Celexa 20 mgs (tapered off fairly quickly)

- 2006-2007- On Effoxor for about 8 months- switched to Prozac and cold turkeyed off

- 2005- Paxil and Lamictal for a few months but stopped taking because it didn't work

- 2004- Paxil for a few months but quit taking because of increased feelings of depression

 

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Not sure if it is the same but my legs feel really weak and sometimes painful. Also, feel like i am not walking like i used to and i trip easier. You have been off meds for 4 years and this is just starting?? Mine happens whenever i get off this crap. This time i did a slow taper and it started again at 1mg. This is a really awful feeling and it feels like my legs are "sick" if that makes any sense.

Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. 

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  • 3 weeks later...

Yes I have had this really bad in the early days and it still is an issue but it has improved in strength... mine too is on the right side.  I had this problem when I was on effexor foot dragging and tripping and getting caught on curbs.. that alone with head dropping to my chest is why the doc took me off effexor. If there were other symptoms I can't recall what they were... at one point I recall having to crawl up the stairs on all fours. Another thing the right foot would not bend I had to wear clogs that I could slide my foot into at least one entire winter ...not cool living in Canada... I could not bend my foot to get it into a boot.  The other foot was fine.  It is this foot that I have since broken twice and I will say that the foot seems to be less stuck now and I can put boots on now without too much trouble buying a larger size helps if you get this too.  It is my ankle that hurts a lot and i have a bone spur in the heal of that foot now... the ankle and up the calf still is not quite right .. there is a lump in the instep of that same foot.  I baby it as much as I can.. orthotics no jumping or fooling around no heals or fancy shoes tho I do miss them. One other thing I have noticed is there is a muscle in that foot that jerks I noticed it by accident one day and took a couple of videos of it .. thinking I would show my doc... but in reality I know she does not want to see any more crap from me... she only sends me to specialists who never find anything... I wears me out and I have to come home and crawl up the stairs into bed... not worth the bother. I kind of feel like this is a problem on my right side but worse in my lower leg and foot.. neck shoulder... spine all on the right have issues. I am a firm believer in epsom salt baths and foot soaks I get plenty of both. I recommend both and physio therapy if you keep having problems. 

I guess the bottom line is it has eased some and seems to be gone only to come back ,.. tho I have not had a problem putting on boots in a few years so it does improve in time. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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4 years off still have this.

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

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I had this problem before withdrawal (though I had done cold turkeys or "2-week" tapers off numerous other meds over a long period of time without knowing the need for slow tapering). I certainly had it for many years after my paxil (and previous benzo) withdrawals - even worse then. I had described it for years to many doctors and they had no idea what it was. But I only very rarely have it anymore. (I suspect that when I do, it's probably because I'm still on 0.5 mg clonazepam (klonopin) and probably having some interdose withdrawal or intermittent other problems from that.)

 

But what I occasionally experience now is just a tiny bit of how strong that feeling was for me for many years after my too-fast tapers off benzos and then paxil. I learned to live with it, unpleasant as it is, and now it's only on the rare occasions I feel it just slightly now, that I even remember how much I felt it pretty much all the time for so many years.

 

I found that some symptoms decrease sooner than others, and this for me was one of the slowest to get better. I'm now 10 years off paxil and almost never feel it now. It was many years however (more than four, I know) until it took the occasional slight recurrence - or reading your post now! - for me to even remember how I felt this for most or all of the day for many years.

I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants

 

I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over.

 

My signature is a temporary scribble from year 2013. I'll rewrite it when I can.

 

If you want to read it, click on http://survivingantidepressants.org/index.php?/topic/209-brandy-anyone/?p=110343

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Hi Brandy, was this also a strange weakness too that made you feel like you are walking weird and stiff leg muscles?

Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. 

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Kind of on the same idea has anyone ever had others tell them they apply the gas to the car in an unequal fashion?  I use to hear this all the time from people that I was doing a rhythm when applying the gas. It just dawned on me now that the twitch that is always in my foot the one I took a video of was likely the cause of the uneven pressure.  I cannot control it in the least. 

Anyone?

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I feel this is part of DR/DP for me. I still have pretty severe DR DP with no let up now at 4 years off. I hope by 10 years it will be gone :(

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

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I have had that too No Meaning but I think this is different in that it it more physical and for me painful 

wishing you peace any day it could change... any day:) reminds me of a song what doesn't... peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Hey DLB..Im dealing with benzo WD as well and a huge, recent bout of stress made it much worse. From what I read on Benzo Buddies, what I'm going through is more related to Benzo WD. It's like my arms and legs feel weightless and like they're not there sometimes. Also feels like the ligaments have gotten weaker...like my limbs kind of hang there. Incredibly trippy and unsettling. 

Intermittent Klonopin use February, 2014 to September, 2015

- Off of SSRIs completely since April, 2012 

- Had horrible side effects from Celexa (constant feelings of terror, insomnia) so stopped taking it after 6 weeks

- Started 20 mg of Celexa in February 2012

- Began to taper off of Zoloft in May, 2011, off Zoloft completely September, 2011

- Increased Zoloft to 75 mg October, 2010 and decreased back to 50 mg in February, 2011

- June 2009- Went on 50 mg of Zoloft

- October, 2007 - July, 2008- Celexa 20 mgs (tapered off fairly quickly)

- 2006-2007- On Effoxor for about 8 months- switched to Prozac and cold turkeyed off

- 2005- Paxil and Lamictal for a few months but stopped taking because it didn't work

- 2004- Paxil for a few months but quit taking because of increased feelings of depression

 

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It is interesting that the more we learn the more benzo and Ad wd are the same... so much more is known about benzo wd at times I think those who have lived thru benzo wd don't believe many of the same issues are suffered by Ad wd people. More and more they are looking very much the same.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Yes, AD WD is definitely not validated as much as Benzo WD. It's frustrating. And the symptoms list certainly overlap with the two although I had different symptoms for each. I got anxiety like I never felt before with Benzo WD...was terrorizing. I know people in AD WD get this too.

Intermittent Klonopin use February, 2014 to September, 2015

- Off of SSRIs completely since April, 2012 

- Had horrible side effects from Celexa (constant feelings of terror, insomnia) so stopped taking it after 6 weeks

- Started 20 mg of Celexa in February 2012

- Began to taper off of Zoloft in May, 2011, off Zoloft completely September, 2011

- Increased Zoloft to 75 mg October, 2010 and decreased back to 50 mg in February, 2011

- June 2009- Went on 50 mg of Zoloft

- October, 2007 - July, 2008- Celexa 20 mgs (tapered off fairly quickly)

- 2006-2007- On Effoxor for about 8 months- switched to Prozac and cold turkeyed off

- 2005- Paxil and Lamictal for a few months but stopped taking because it didn't work

- 2004- Paxil for a few months but quit taking because of increased feelings of depression

 

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  • 2 weeks later...

When I quit Zoloft, my legs first disattached at the knees, ankles and hips and also shoulders.  It was so bad that I had to bandaged them because they actually twisted 90 degrees when I walked. The the muscle defence set in and the muscles and ligaments started to pull very tightly around all joints. My spine is still stiffened because of it and my knees and hip joints still twist. The jaws became locked up. The jaws have almost recovered but not the rest. The pulling around the spine is very, very uncomfortable and causes nerve entrapment and breathing difficulties. I should mention that I have always been extremely flexible and this may be one of  the reasons that this happened in withdrawal and that I can't recover. 

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  • 1 month later...

This is unsettling.... I told my previous social work therapist that I was terrified of movement disorders - a possible side effect of antidepressants. She told me not to worry about it and just increase my dose. 

 

I have a question to the posters above... Is this something that developed exclusively due to tapering too fast? 

2000: Paxil, low dose. 2001: Paxil, quickly tapered off. 2006: Zoloft, 25mg. 2007: Wellbutrin, low dose, discontinued after a week or a month. 2007-2009: Zoloft, increasing dose (up to 75mg). 2009-2011: Zoloft, failed withdrawal attempts (cold-turkey; fast tapering). 2009-2011: Trying out Cymbalta, Celexa, Prozac, Lexapro, Ambien, Ativan, and Xanax. 2012-2015: Zoloft, 100mg to 200mg. 2013: Trazadone for Zoloft-induced insomnia, 25mg to 50mg.  2015: Trileptal, dose?, withdrew; Bupropion, up to 200mg. 2016: Zoloft, 137mg, Bupropion, 150mg, Trazodone, 25mg.

05/21/16: Began Zoloft taper - 10% from 150mg - 137ish mg

06/23/16: Zoloft taper - 125mg

08/03/16: Bupropion XL taper - cut 150mg pill in crude half (mistake)

10/31: Zoloft successfully down to 100mg. Staying on 100mg for 2-3 months to let my brain rest.

11/09: Wellbutrin SR prescribed, 150mg once a day, for withdrawal.

12/11: Wellbutrin SR, twice daily - minus 18ishmg = 112.50mg

09/30/17: Off Wellbutrin SR successfully. Zoloft taper: 90ish mg (shaving it off). Trazodone: still at 50mg.

June 2018: Zoloft: 80ish (shaving off). Trazodone: 6mg. End of 2018: Off Trazodone.

01/20: Zoloft: 70ish?

08/20: Still around 80 or 70. Tapering by only 15 shaves each month.

04/2021: 50mg!

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  • 2 years later...

I felt it but for a very short time, it goes away

In 2008 I was 16 years old. 2008 - 2010 paxil, clonazepam & semisodium valproate. 2013 - 2017 many psych meds with cold switches and CT's prescribed by psychiatrists.

Nov/30/17 started quetiapine IR tablets 100mg 0-0-1. Dec/1/17 started pristiq 50mg tablets 1-0-0. Jan/14/18 started 1.5mg melatonin 0-0-1

Tramadol: 2 year well done (slow and gradual) taper: from Mar/12/18 to Feb/11/20 

Pristiq taper: Jun/15/20 Converted from pristiq 50mg to efexor xr 75mg for 57 days (felt good).  Aug/11/20 weaned to efexor 37.5mg and stayed there for 2 months with 26 days (felt good). Nov/6/20  CT 0mg of efexor xr (felt good). Total time in tapering pristiq 50mg by converting to efexor xr 75mg: 4 months with 22 days: Jun/15/20 to Nov/6/20. (felt good)

Efexor 0mg and quetiapine 100mg (Nov/6/20 to Dic/11/20) (felt good being without effexor and taking 100mg quetiapine)

Dic/11/20 quetiapine 75mg, so 75mg from Dic/11/20 to Jan/4/21  25 days. Jan/5/21 quetiapine 50mg (1 day in 50mg).

Jan/6/21 1st CT of quetiapine. Mar/1/21 CT melatonin. Felt terrible so Mar/25/21 reinstated 100mg quetiapine. 

100mg quetiapine 19 days (Mar/25/21 - Apr/13/21) Felt good while in quetiapine 100mg. 75mg quetiapine 55 days (Apr/14/21 - Jun/8/21) the 55th day (Jun/8/21)  felt hellish so CT'd quetiapine for a 2nd time on Jun/9/21. 

Jun/9/21 - Nov/16/21 1st days insomnia, anxiety, took cbd and felt very good many days (healed insomnia & anxiety), CT'd ginkgo which made me felt terrible so reinstated ginkgo. Started intolerable back pain (spasm) so tried other herbs along with cbd, then started derealization, panic, indecisiveness, nostalgia & others. Stopped taking cbd & herbs, reinstated quetiapine 75mg Nov/17/21, immediately after taking it, had severe heart palpitations, so Nov/18/21 back to cbd (no quetiapine). Nov/20/21 reinstated 75mg quetiapine (stopped cbd & herbs), severely couldn't breathe for 5 seconds after taking quetiapine 75mg so reduced to 50 mg on Nov/28/21. The 32nd day of quetiapine 50mg (Dec/30/21) started having consistent improvements (almost no DR, no panic and no anxiety & feeling more stable but still having some days severe adverse effects). Jan/20/22 @10pm took cbd instead of quetiapine, felt very bad so reinstated quetiapine 50mg @1am. The 30th day (feb/20/22) started having consistent improvements but some days I had severe adverse effects like involuntary movement of legs caused by severe anxiety and impatience so feb/26/22 did my last try of CT of quetiapine (and of ginkgo), felt awful so reinstated quetiapine 50mg @3am of feb/27/22.  (also reinstated ginkgo 40mg, I know I have to slow taper it too).  I CT'd many times quetiapine because I had developed new severe symptoms/adverse effects and others that I have had for a long time, now became much more extreme and worse so I don't know if I need to stop taking it, I need someone knowledgeable in WD to tell me what to do because I'm not an expert and doctors in my country don't know how to treat WD, I'm willing to pay for a personalized guidance from a moderator of SA or a doctor/health practitioner that has all the knowledge of SA, please help. I don't want to make my own decisions anymore regarding to tapering,

Currently taking:  At 11:30am omega 3 fish oil supplement.

At 9:30pm omega 3 fish oil supplement and magnesium supplement

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