stan Posted July 5, 2011 Share Posted July 5, 2011 hi Squirrel, if you retake something, you can catch an adverse reaction with his consequences, if not, you will experience with time that these meds cure nothing, have heavy side-effects, burn more your nerves receptors, you can be worse than today if you retake, if not adverse reaction, you will be able to wean in the future (we always remember that on meds we were better than today, but the state is not the same, today you are nerves burned, chemical changed) there is no guarantee that your body will be able to create a balance(homeostasis) with your new meds and your body today. He has do a balance before in a different state, but today ... I would try to live with your anxiety/akathisia/equilibrium up and down for anxiety 12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 67 years old - 9 years med free in protracted withdrawal rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate, function as have a lack of nerves, improving have been very little Link to comment
serotonin Posted July 5, 2011 Share Posted July 5, 2011 serotonin, please stop telling people to go back on medication. You don't have a clue what you're talking about. It's not a new idea. Every single one of us has been told to do this. Some of us have tried it. There are good reasons we avoid it. I would never dare tell anyone what to do. My heart goes to squiral, i hope she gets better. And u are right if tht method does not work for so many people then dont do it! Many here have struggled to get off medication and they're not interested in getting back on the merry-go-round again. I'd suggest that you try it yourself -- go back on Prozac -- instead of egging other people on to do it, except that I wouldn't wish a bad result on anyone. As I've said to you repeatedly, many people with withdrawal syndrome have tried re-medication and had major problems with it. Re-medication only works if you are a short time off drugs, and then not always. If I were you, since you seem to be improving on your own without additional meds, I would not chance taking Prozac again. Do not urge other people to take a risky route, it's irresponsible. DO A LOT MORE READING to educate yourself. Read all the Intro topics. Read the papers in the Journals section. Read the articles in the Media section. Informed posts are welcome, I know you can become a valued member of the community. Link to comment
serotonin Posted July 5, 2011 Share Posted July 5, 2011 The above quate answer: U are right, squiral suffered so much. And my best wishes to her! And i want to say i would neer dare tell people what to do! And my best wishes to her! Link to comment
Administrator Altostrata Posted July 5, 2011 Administrator Share Posted July 5, 2011 Thanks, serotonin, your heart is in the right place, and you're trying to think it through to help people. squirrel, we shouldn't have to make these terrible decisions. I feel for you, too. We'll be there for you no matter what you do. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
serotonin Posted July 5, 2011 Share Posted July 5, 2011 Yes, excatly! Squirrel do what u think is the best! Link to comment
Maybe Posted July 5, 2011 Share Posted July 5, 2011 I just wonder if you have ever taken anything else to help your recovery what may have led to an even more unstable cns like any supplements or something like that? Do you take any other medicine right now? End of 2008: Remeron 15mg for around 2 months. Unorthodox taper, no problems.End of August 2009: Lexapro 10mg for only 4 days. Panic attack after 3 pills. Severe gastro problems in the morning for 3 days after last pill. 2 weeks later strong w/d symptoms set in. Acute WD lasted around 3.5 years. I am feeling much better today, 5.5 years out, but still have some symptoms left. Link to comment
Gem Posted July 5, 2011 Share Posted July 5, 2011 Hi Squirrel How you feel is so understandable. I have felt like this many times in my withdrawal. I think it is impossible to stay positive all the time in this situation, I found that sometimes letting myself feel frustrated/down etc and acknowledging these feelings did help at times. It sounds like you are doing all you can. I wonder if Magnesium Citrate could help? Although I know supplements do not suit everyone. I agree, we just shouldn't be put in this position to have to make these decisions. Take care, Gem xxx I came off Seroxat in August 2005 after a 4 month taper. I was initially prescibed a benzo for several months and then Prozac for 5 years and after that, Seroxat for 3 years and 9 months. "It's like in the great stories Mr.Frodo, the ones that really mattered. Full of darkness and danger they were, and sometimes you didn't want to know the end because how could the end be happy? How could the world go back to the way it was when so much bad had happened? But in the end it's only a passing thing this shadow, even darkness must pass. A new day will come, and when the sun shines it'll shine out the clearer." Samwise Gamgee, Lord of the Rings, The Two Towers Link to comment
squirrel Posted July 5, 2011 Author Share Posted July 5, 2011 I started taking cod liver oil a couple of months ao but not had any since week before last. Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
solida Posted July 5, 2011 Share Posted July 5, 2011 Could this( quitting the cod liver oil) have been leading to a kind of rebound/withdrawal state you are in now?? solida Sept.2007 Citalopram for burn out,reverse reaction Paroxetin 20mg,5 weeks,had to stop because of reverse reaction after a manic episode,severe withdrawal hit after 6 weeks, hospitalization twice,during the first 2 years withdrawal got worse and worse disabled since Link to comment
Administrator Altostrata Posted July 5, 2011 Administrator Share Posted July 5, 2011 squirrel, did you look into seeing an ear doctor about the dizziness? When you went to Priory, did you talk to Ben Green? He's collected some cases of prolonged withdrawal syndrome. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
summer Posted July 5, 2011 Share Posted July 5, 2011 squirrel, did you look into seeing an ear doctor about the dizziness? I was thinking the same thing. Also, have you had a physical lately... blood work up, etc? Also, I was recently diagnosed with sleep apnea... and have discovered the lack of "good" sleep makes many things much worse and more complicated. Just found out I was diabetic as well. Altho not life threatening, it's depressing to have to deal with this on a daily basis. What I'm trying to say is that it would be a good idea to rule out everything... I think it would give you peace of mind and lift your spirits to find out all is okay, and that it's "just" WD. Thinking of you and sending warm hugs. Charter Member 2011 Link to comment
squirrel Posted July 5, 2011 Author Share Posted July 5, 2011 Just been to doc's; she is concerned that I have lost 2 kilos since feb.now weigh 7st 2lb gonna have blood tests done on fri. i am seeing a balance specialist and I explained to him about my Seroxat withdrawl. He did not wanna know about that.he did a blood test for viruses and the results were that I had shingles & german measles ( recently he said, this was in nov last year) so he told me it was visual vertigo cause by shingles virus. he gave me some vestiular exercises to do at home. alto I have never been to the priory that was Poodlebell. Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
Claudius Posted July 5, 2011 Share Posted July 5, 2011 i am seeing a balance specialist and I explained to him about my Seroxat withdrawl. He did not wanna know about that. Do you mean he denies thait it exists or he just does not want to talk/hear about it? Unfortunately this is the attitude many doctors choose, and the aggression they show makes it very clear to me that they DO actually know, but there is a broad conscensus to keep the issue silent. Just like the "Omerta" in the Mafia. I have chosen the attitide that each doctor who denies WD and does not want to listen to my well underpinned story of addiction and withdrawal, I dismiss him/her as not relevant and not capable to help me. 10 mg Paxil/Seroxat since 2002 several attempts to quit since 2004 Quit c/t again Oktober 2007, in protracted w/d since then after 3.5 years slight improvement but still on the road after 6 years pretty much recovered but still some nasty residual sypmtons after 8.5 years working again on a 90% base and basically functioning normally again! Link to comment
squirrel Posted July 5, 2011 Author Share Posted July 5, 2011 did not want to hear about the past he said. Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
Claudius Posted July 5, 2011 Share Posted July 5, 2011 This is bizarre, if you can show that some event in the past left you wityh severe brain damage, he should take that into account in whatever are his plans for treatment. As as we all know, sometimes "doing nothing" is the best treatment. But if he denies that Seroxat WD can cause brain damage during use and/or WD, he is not the right doc to help you... 10 mg Paxil/Seroxat since 2002 several attempts to quit since 2004 Quit c/t again Oktober 2007, in protracted w/d since then after 3.5 years slight improvement but still on the road after 6 years pretty much recovered but still some nasty residual sypmtons after 8.5 years working again on a 90% base and basically functioning normally again! Link to comment
squirrel Posted July 5, 2011 Author Share Posted July 5, 2011 there are not many balance specialists in uk so not much choice Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
Brandy Posted July 5, 2011 Share Posted July 5, 2011 Claudius, I can't speak for Squirrel's doctor or what he's thinking, but I got the feeling he was concerned with what's going on with her now given that she's six years off the med. I would think he would consider it as part of her medical history, but I think it's a good thing that he didn't assume that there might not be another cause of her starting to feel so ill at this point. Indeed, it looks like he did find some things that could account for the recent problems (which I do agree might be felt more intensely due to heightened CNS sensitivity in protracted w/d - but which still needed to be identified in order to understand and treat the recent medical conditions). Just been to doc's; she is concerned that I have lost 2 kilos since feb.now weigh 7st 2lb gonna have blood tests done on fri. i am seeing a balance specialist and I explained to him about my Seroxat withdrawl. He did not wanna know about that.he did a blood test for viruses and the results were that I had shingles & german measles ( recently he said, this was in nov last year) so he told me it was visual vertigo cause by shingles virus. he gave me some vestiular exercises to do at home. alto I have never been to the priory that was Poodlebell. I had actually contacted Squirrel because I couldn't shake the feeling that she might have had a bad virus or something else that might have triggered CNS problems. I've had this happen; our nervous systems stay hypersensitive for some time in protracted w/d, but it can be another acute condition that triggers this. I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over. My signature is a temporary scribble from year 2013. I'll rewrite it when I can. If you want to read it, click on http://survivingantidepressants.org/index.php?/topic/209-brandy-anyone/?p=110343 Link to comment
Administrator Altostrata Posted July 6, 2011 Administrator Share Posted July 6, 2011 did not want to hear about the past he said. Well, that's dumb. Shingles can be a serious problem. I'm sure that's added to your distress, squirrel. And german measles, no wonder you've been feeling terrible. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
Maybe Posted July 6, 2011 Share Posted July 6, 2011 The problem with wd is, there are so many symptoms that one surely will lose his "normal" body feeling and be unable to distinct between what is wd and what may be another illness. And when there is another illness this surely does not help the cns to recover. I think we often forget, that the usual life cycle goes on even in wd. So I hope some of your symptoms will be cured soon, which will help you to take the last steps to recovery, Squirrel Besides, I kinda feel discriminated by "German measles" End of 2008: Remeron 15mg for around 2 months. Unorthodox taper, no problems.End of August 2009: Lexapro 10mg for only 4 days. Panic attack after 3 pills. Severe gastro problems in the morning for 3 days after last pill. 2 weeks later strong w/d symptoms set in. Acute WD lasted around 3.5 years. I am feeling much better today, 5.5 years out, but still have some symptoms left. Link to comment
squirrel Posted July 6, 2011 Author Share Posted July 6, 2011 i do not remember having either surely there would have been a rash! Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
stan Posted July 6, 2011 Share Posted July 6, 2011 i remember you say you have these equilibrium/anxiety since withdrawal, why suddenly another thing it is as my standing, it is here since withdrawal, since 27 months, and today i have new diseases because two years of hell destroys a body and we are more vulnerable what i think is , as people say here, in withdrawal we are weaker, so opportunist diseases can add on a fatigued body one rule i learned : never trust a doctor, even a specialist, always verify what he says , does; we can fall a second time in a trap with the knowledge of these big specialists for anxiety 12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 67 years old - 9 years med free in protracted withdrawal rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate, function as have a lack of nerves, improving have been very little Link to comment
summer Posted July 6, 2011 Share Posted July 6, 2011 one rule i learned : never trust a doctor, even a specialist, always verify what he says , does; we can fall a second time in a trap with the knowledge of these big specialists Stan... doctors aren't Gods, they are people just like us. There are some excellent doctors around... but not one of them fall into the God (like) category. They can be overworked, ill, just had a fight with their spouse or boss, tired of what they do, etc. In any situation with a doctor or a hospital, one must be one's own advocate, or for sure have a family member or close friend overseeing what's going on. I think you need to find a doctor you feel on some level you can trust. At some point in your life, you will have to see a doctor for something or other. There must be one or two doctors in France that you can call... and feel somewhat comfortable. I realize finding a doctor who understands withdrawal might be a problem... but you do need to find someone you have some trust in. You can interview them... you are hiring them to do a job for you. I know fairly quickly if I like a doctor/specialist or not. It's important to have a physician you can call in the middle of the night if you're not feeling well. xo Charter Member 2011 Link to comment
Claudius Posted July 6, 2011 Share Posted July 6, 2011 Doctors are surely no Gods and make mistakes just like all people. But this is a different situation... The addictive and destrpying power of these SSRI dems are known for long, and everybody with a normal function mind can understand that all brain-altering susstances can create addiction and withdrawal effects. There are plenty pscientific publication and even more anecdotical reports from the devasating effects of these meds. And then always blame it to the patients "original disease" or force the patients to take more meds is nothing less than a crime! 10 mg Paxil/Seroxat since 2002 several attempts to quit since 2004 Quit c/t again Oktober 2007, in protracted w/d since then after 3.5 years slight improvement but still on the road after 6 years pretty much recovered but still some nasty residual sypmtons after 8.5 years working again on a 90% base and basically functioning normally again! Link to comment
summer Posted July 6, 2011 Share Posted July 6, 2011 Squirrel... Shingles and German measles... what a combo! I have no doubt both are contributing big time to how you are feeling. My daughter had the German measles as an adult and landed in the hospital. It can be very serious, especially when you are an adult. I am not sure if you can get Shingles more than once. But, there is a Shingles injection out now. You can still get Shingles even if you have the injection, but reportedly, a much milder case. Hope you are feeling even a little better today! Charter Member 2011 Link to comment
Brandy Posted July 6, 2011 Share Posted July 6, 2011 i do not remember having either surely there would have been a rash! I don't understand. You haven't had any rashes, or at least blisters? If I'm understanding that right, how did the doctor arrive at those diagnoses? Did he run any lab tests of any kind? Can you ask him what led him to these diagnoses - were they based on symptoms (which doesn't make sense if you haven't had any rashes)? I wonder if he might have misunderstood some of the symptoms you've had. Many things can cause similar symptoms, but the causes can be very different. But if he analyzed secretions or did other lab tests that showed you actually have these diseases in your system, you may have had them without being aware of them (rash in a place not visible, like on your back, or perhaps having attributed them to withdrawal when you had them). If you don't get satisfactory answers from this specialist, can you talk to your regular doctor and have him sort out the basis for these diagnoses? I'm especially confused because you mentioned a specific time (last winter) when you had at least one of these diseases, so I assumed you had specific symptoms then. Once you get such a virus, it can remain in your body even when you're not having acute symptoms. Perhaps that's what the doctor meant I hope you get clear, specific answers. Maybe he meant this is a "working diagnosis" based on your symptoms and examination he conducted, but needs to be confirmed by lab tests. If he can't explain clearly what he's doing, please find another doctor (not balance specialist - a family practice doctor or internist) who can evaluate all this and sort it out and explain it well! I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over. My signature is a temporary scribble from year 2013. I'll rewrite it when I can. If you want to read it, click on http://survivingantidepressants.org/index.php?/topic/209-brandy-anyone/?p=110343 Link to comment
Moderator Emeritus Baxter Posted July 6, 2011 Moderator Emeritus Share Posted July 6, 2011 Squirrel, I am so sorry you're having a rough time. Shingles REALLY SUCKS. Anybody who has ever had chicken pox can get it. Repeatedly. I am so sorry! Hugs 1989 - 1992 Parnate* 1992-1998 Paxil - pooped out*, oxazapam, inderal 1998 - 2005 Celexa - pooped out* klonopin, oxazapam, inderal *don't remember doses 2005 -2007 Cymbalta 60 mg oxazapam, inderal, klonopin Started taper in 2007: CT klonopin, oxazapam, inderal (beta blocker) - 2007 Cymbalta 60mg to 30mg 2007 -2010 July 2010 - March 2018 on hiatus due to worsening w/d symptoms, which abated and finally disappeared. Then I stalled for about 5 years because I didn't want to deal with W/D. March 2018 - May 2018 switch from 30mg Cymbalta to 20mg Celexa 19 mg Celexa October 7, 2018 18 mg Celexa November 5, 2018 17 mg Celexa December 2, 2019 16 mg Celexa January 6, 2018 15 mg Celexa March 7, 2019 14 mg Celexa April 24, 2019 13 mg Celexa June 28, 2019 12.8 mg Celexa November 10, 2019 12.4 Celexa August 31, 2020 12.2 Celexa December 28, 2020 12 mg Celexa March 2021 11 mg Celexa February 2023 Link to comment
squirrel Posted July 6, 2011 Author Share Posted July 6, 2011 I HAVE NOT HAD SHINGLES TO MY KNOWLEDGE AND FROM WHAT I HEAR ABOUT IT I WOULD KNOW AND NOT HAD MEASLES SINCE I WAS A CHILD. HE DID A BLOOD TEST FOR VIRUS AND THAT WAS THE OUTCOME.HE RECKONS IT WAS RECENT. Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
stan Posted July 6, 2011 Share Posted July 6, 2011 in France ,when doctors do not know, they say it is nerves, or a virus, for nerves they prescribe psychotropics and for virus i have learned there is no med a flu virus:no med for anxiety 12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 67 years old - 9 years med free in protracted withdrawal rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate, function as have a lack of nerves, improving have been very little Link to comment
Moderator Emeritus Rhiannon Posted July 8, 2011 Moderator Emeritus Share Posted July 8, 2011 Well, if nothing else is working, here's something you might want to consider: Gianna Kali of Beyond Meds has been suffering a lot, very disabled, during and after her med withdrawal. She has found a lot of relief (last time I talked to her, which was before I lost Internet) from the GAPS diet. Wow, let's see, where do I start, to describe my thinking on this one... 1. Enteric nervous system. It turns out we have an entire complex nervous system in our guts. It's huge and complex and derives from the same embryonic tissues that produce the spinal cord system, and has more cells than the spinal cord. It uses the same neurotransmitters as the brain. It uses something like 70% of the body's serotonin. And the drugs we take are absorbed by this system BEFORE they go through the liver and get metabolized, so they're really potent. So psych drugs must, it seems to me, affect this system a lot. 2. Normal intestinal flora (the normal healthy bacteria that we co-exist with, which co-evolved with us). Well, that's a sexy topic in science these days. I think there was an article about it in Discover recently. maybe in March. I just read an article in the latest issue of Science News about it too. The GAPS diet is designed to balance and rehabilitate and re-normalize gut flora and heal the gut lining. Once the balance and community of normal flora has been disrupted--very common in the modern world because antibiotics are, to quote a scientist, like "driving a bulldozer through your garden", as far as your normal flora are concerned, PLUS modern diets of processed foods also devastate them--anyway, once they're disrupted, they don't return to balance spontaneously. They may be changed forever. (Discussed in that Discover article.) 3. There are about three times as many messages coming FROM our gut TO our brains than the other way around. Our guts are talking to our brains all the time. 4. I simply cannot imagine a scenario in which this information would not be significant in any situation where people are or have been taking psychiatric neurotransmitter-tweaking drugs. Those drugs affect neurotransmitters everywhere in our bodies, not just in our brains. 5. The GAPs diet and its close cousin the Specific Carbohydrate diet have shown a remarkable track record in helping children emerge and recover from autism. 6. A friend told me yesterday that studies show that women who either have taken an SSRI before pregnancy or take one during pregnancy are more likely to have autistic children. AND...well, what can I say. I'm kinda listening to my gut feelings on this one. (No joke intended, but you have to admit it's thought-provoking...) I trust my intuition and my complex pattern-discerning mind, especially now that I'm getting it back. (Have I mentioned how much FUN it is to be getting my mind back? OMG I missed it!) I personally am experimenting with most of the principles and foods of the GAPS diet now, because I think that keeping my gut happy, given how many signals it's sending to my brain every nanosecond, might be a good idea, under my circumstances (of tapering five meds and trying to heal 20 years of nervous system disruption and damage). So, anyway, the gut/brain connection might be something to take a look at and consider. It's not as wacky an idea as it may have once sounded. And a healing diet where you get to eat all the butter you want sounds ever so much more pleasant a thing to experiment with, than taking more drug$ and seeing more doctor$. Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. Started multidrug taper in Feb 2010. Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea. Feb 15 2010: 300 mg Neurontin 200 Lamictal 10 Celexa 0.65 Xanax and 5 mg Ambien Feb 10 2014: 62 Lamictal 1.1 Celexa 0.135 Xanax 1.8 Valium Feb 10 2015: 50 Lamictal 0.875 Celexa 0.11 Xanax 1.5 Valium Feb 15 2016: 47.5 Lamictal 0.75 Celexa 0.0875 Xanax 1.42 Valium 2/12/20 12 0.045 0.007 1 May 2021 7 0.01 0.0037 1 Feb 2022 6 0!!! 0.00167 0.98 2.5 mg Ambien Oct 2022 4.5 mg Lamictal (off Celexa, off Xanax) 0.95 Valium Ambien, 1/4 to 1/2 of a 5 mg tablet I'm not a doctor. Any advice I give is just my civilian opinion. Link to comment
squirrel Posted July 9, 2011 Author Share Posted July 9, 2011 Thanks Rhi I will check it out. Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
squirrel Posted July 14, 2011 Author Share Posted July 14, 2011 Hi All had my blood results today . all normal. so I feel like death but I am apparently healthy!! Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
Nadia Posted July 14, 2011 Share Posted July 14, 2011 I know how frustrating+relieving that can be. I just got full blood-work done about three weeks ago, and apparently, except for a slightly high AM cortisol level, I am perfectly healthy. And yet I have never felt so bad. It is maddening. Of course we WANT to be healthy and are grateful for it, but at the same time it would be so great to have some concrete answer to explain what we are going through... '94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.9/11-9/12 Waves and windows of recovery.10/12 Awful relapse, DP/DR. Hydrocortisone?11/12 Improved fairly quickly even though relapse was one of worst waves ever. 1/13 Best I've ever felt. 3/13 A bit of a relapse... then faster and shorter waves and windows. 4/14 Have to watch out for triggers, but feel completely normal about 80% of the time. Link to comment
Administrator Altostrata Posted July 15, 2011 Administrator Share Posted July 15, 2011 Many of us sought all kinds of tests for years, most all coming back normal. Autonomic nervous system damage doesn't show up on these tests. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
squirrel Posted July 15, 2011 Author Share Posted July 15, 2011 does any medical person know how long it can take to recover ? Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice) Suffered severe and protracted withdrawl ever since. No other medication taken. Link to comment
Administrator Altostrata Posted July 15, 2011 Administrator Share Posted July 15, 2011 Not that I know of. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
Administrator Altostrata Posted July 16, 2011 Administrator Share Posted July 16, 2011 Squirrel -- time for an update here. How are you doing? This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
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