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Looking For Those who improved after years


NoMeaning25
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I hope this can stay here because no one will see this in my intro thread.

 

I'm looking for people who had no improvements for years and then went on to recover.

 

I'm 2.5 years off or 30 months and haven't seen improvements in my symptoms except for 2 (Head pressure and severe depression)

 

Having over 60 symptoms in extreme severity for 2.5 years now so please if anyone was in a similar situation that got better I would appreciate your response as I am ready to give up now.

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

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I hope this can stay here because no one will see this in my intro thread.

 

I'm looking for people who had no improvements for years and then went on to recover.

 

I'm 2.5 years off or 30 months and haven't seen improvements in my symptoms except for 2 (Head pressure and severe depression)

 

Having over 60 symptoms in extreme severity for 2.5 years now so please if anyone was in a similar situation that got better I would appreciate your response as I am ready to give up now.

 

I am curious about this as well.  I have been off from cold turkey/rapid taper for almost four months, but I have so many symptoms in such severity that I wonder what my future holds.  I can no longer walk or swallow solid foods.  

 

Have you tried looking in the Recovery section of the website?  You may find some answers there that you are looking for.

 

Also, it is difficult to get responses to your thread when you are new.  The same thing happened to me, but I kept posting on my thread, and kept posting on other people's threads, and eventually developed a little community of friends here.  I still sometimes wish I got more responses, but I think so many of us are struggling so badly that we don't necessarily have the answers.

 

I do suspect, though, that there may be some stories in the Recovery section that will inspire you.

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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Here is a story that has helped me a lot.  It's about someone who took SIX YEARS to recover completely.

http://survivingantidepressants.org/index.php?/topic/7989-pax80a-paroxetine-and-diazepam-survivor/#entry123730

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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No more bickering, please. I hid all the contentious posts.

 

NoMeaning, I can understand why you'd ask this question.

 

This site is filled with people who have had withdrawal syndrome for several years and are recovering.

 

It took me 9 years to recover. Please see Recovery success stories for the information you're seeking.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Hi Alto. I have read all the recovery stories there is to find on the Internet. What I am asking is if there are stories out there where people had seen 0 improvement 30 months or more into protracted withdrawal and still recovered. I know protracted withdrawal can last many years way beyond 7 years in the minority of cases as I have seen but that's not what I am searching for.

 

The only person I have seen gone so long with 0 improvements are Selmalady (In her ct valium) and Christiana (complicated history and still on med, which I am not)

 

There was one person on PP who was extremely severe, yearakathisia, very very severe probably the worst I have ever seen. He had no improvements for 30 months and then started recovering. I am approaching 31 months free and only took the med's for 4 years.

 

I am very concerned

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

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There are stories of every kind of recovery. If you read the Intro topics, you can see many people are convinced they will never recover. Then, after a while, they do.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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iMac on here stands out..I remember reading 3 yrs I think no improvements and then recovery (I think)..sorry hope you don't mind iMac it just stands out for me and I think this might be what your looking for x

2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

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Hi NoMeaning25,

I'm at 35months off and have had very little in the way of improvements since the daily panic attacks stopped. I had too rapid a taper and also sometimes wonder if I'll ever fully recover. Have you read "Recovery and Renewal," by Bliss Johns? That helps me when I'm scared and in loads of pain.

01/2006 Put on Prozac for anxiety and panic attacks 08/2008 Came off Zoloft after tapering don't remember taper, lost weight, felt like had cold constantly, very panicky, pain everywhere (misdiagnosed fibromyalgia), head funny.05/2010 put back on Zoloft03/2012 came completely off Zoloft followed Dr standard taper- no appetite, lost weight (0.5 stone), flu-like feelings constantly, pain everywhere, head funny, nausea, very panicky, very strong emotions etc Lost 1 stone.04/2013 improving. actually put on some weight and hungry most of the time. Still burning pain joints, stomach upset, headache/feel faint and emotions very strong. Chest very painful too.01/2014 improving still. Gained weight!! Still hungry. Still headache/feel faint and strong emotions and chest/shoulder muscles painful. Periods irregular and very painful. Very tired. Joints burn only if eat refined sugars. Started eating fruits again.03/2014 2 years off. Now intolerances developed to nuts and soya. Permanently hungry, Emotions strong but started healing psychological reasons I was put on antidepressants with therapist. Shoulder pain bad, heady often, very tired.06/2014 flu-like symptoms returned, many intolerances, stomach painful, skin crawling feeling, muscles painful, very emotional. :-((

09/2016 over 4.5 years off, no real changes in symptoms, still much pain, headiness, heart weird, digestion bad, hormones unbalanced, nausea yet very hungry, tired, flu like symptoms etc etc.

<p>taking - vit C, probiotics and digestive enzymesI have Aspergers Syndrome.

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